Friday Sunshine!

struggleGood morning Y’all and a very happy Friday! Even though logically I know it is not possible, it feels like the weeks are getting longer. I had expectations for myself for this week, but those expectations were unfortunately not met. I told y’all in the beginning of the week I was going to try to increase my work hours from 6 hours daily to 7, but I was not able to. I also said I would not be hard on myself if I did not achieve this goal, which is a little untrue. As y’all know I have been struggling with a lot of spasticity in my legs, which is causing a massive amount of pain. I tried to push myself further so I could work 7 hours, but the most I was able to do was 6.5 hours. All I can say is, better luck next week because you know I will keep trying until I achieve my goal!

How was your week? Do you feel like the weeks are getting longer or is it all in my head? I think my week might have felt longer because I wanted so much to work longer hours and I was having so much pain! Frustration was definitely at a high! 

I am trying to make an important decision about whether I should or should not get another MRI. The only reason why my specialist sent the order in was because I haveMS Warrior been back on the Gilenya for 6 months and they want to see if it is helping my illness. Until I mentioned that I was on Gilenya for 6 years previously they did not seem to have any idea and now it might not even be necessary. It is a little disturbing to me that my specialist did not know or remember that I was on Gilenya for so many years prior to October. When she first told me I needed to have the MRI, I thought it was to see if the new active lesions from the October MRI had went into remission or if there were new lesions, I did not know she was ordering this because of the 6 month time line due to restarting the Gilenya! If I am being 100% honest, the only reason I would want this MRI done is to see if there are new active lesions causing all this spasticity and pain. But all the MRI will do is cause me a lot of unnecessary stress and in turn upset me way too much, which we all know the damage being upset will cause. I mean seriously, if all is well with the MRI the specialist mswill say I am doing well with the Gilenya but, if there is any activity on the scan she might say the Gilenya is not strong enough for me and I need to consider starting a different medication. The bottom line is I am NOT switching medications again until there is a cure because the Gilenya worked SO well for me for 6 long years and if the MS has progressed to Secondary, Gilenya is still used to treat the illness. Do you think I am being logical or irrational with my thought process?

I really appreciate you taking the time to visit my site today and I am really looking forward to your comments, which you know I will always respond to as soon as I possibly can! I hope y’all have a fantastic Friday and I also hope you are feeling well! Please never forget that I am always sending y’all positive vibes and lots of ❤love and comfort!

Love 2

Always, Alyssa

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Happy Saturday!

Happy SaturdayI hope y’all are enjoying your Saturday! It has been a rainy mess here, but I guess it could be worse! We are actually supposed to have rain all week-long, which will not be any fun for those of us that suffer with pain. I will say though, rain on the weekends is actually wonderful! The nasty weather gives me a great excuse to stay at home and do my best to stay on the couch with a blanket and my cats, of course!

I did go have my MRI done this afternoon. I have had so many MRI’s through the 16 years  I have had MS, but this one seemed insanely long! It is always cold in those rooms, so the MRI tech put a heated blanket on me to keep me comfortable. I was only about half way through the first part of the test and was so hot and felt like I was having a panic attack. I tried to waited it out, but I finally hit the button to get their attention to have the blanket removed. The removal of the blanket helped some, but I was still so hot and did not feel right. I was so relieved when the test was finally over, all I wanted was to go home so I could relax peacefully. Now, I have to spend the rest of my weekend waiting to hear about the results from the doctor next week. I am really bad at waiting for something simple, now I am being forced to wait for something that is so extremely important to me! We will see how that goes!

I am going to try not think about my MRI for the remainder of the weekend. I am going Saturday 1to have to find something that will keep me distracted. I am still experiencing so much pain, so I am really not sure if I am going to work on Monday, or if I am going to head straight to my doctor’s office to try to get the answers that I need. But, it is only Saturday and I am going to try to only think about things one day at a time! There is really no point in doing as I have always done, and try to plan my week out in advance, because things never work out perfectly! Saturday’s have always been my more restful day, and I would actually try to get things done on Sunday!

I am thinking that for the rest of my weekend, I am going to try to watch a mindless movie or TV show and possibly finish my Nicholas Sparks book. I have honestly been having some troubles focusing lately, but that could be because I have been under a massive amount of stress or because of the pain, who knows? Does anyone have any good books they could recommend, for my next book? I had been reading so many of James Patterson’s books, but I think that with all the other violence that we hear about on the news, I am going take a break from his books, as they are all full of violence. Do not get me wrong though, I am still a huge fan of his! I am thinking right now especially, I need a book that is more carefree and happy. 

I hope the rest of your Saturday is fantastic! I really appreciate all of your comments and truly love our connections we have made. Y’all take care and enjoy your evening!

 

Love 2

 

Always, Alyssa