Human Rights

Abortion has been a controversial issue for decades and long before anyone had heard about Roe. Since June 24, 2022, when Roe vs Wade was overturned, abortion has become an even more heated topic. The views and beliefs of people around the world are plentiful and remain extremely controversial. I understand some of these views fall in line with religious beliefs, which is their right and no one can alter their beliefs. Row vs Wade was a ruling made almost 50 years ago in January of 1973, during a time before things were more progressive. In the past, nearly 50 years have we progressed at all? Are we trying to evolve or are we only consistently devolving?

I am very aware that there will be numerous people that are going to disagree with my thoughts, but I am going to share them anyway. This issue has caused me a lot of frustration and anger, and this post has taken me over a week to finish. First, let me start by saying that I do not agree with using abortion as a form of birth control. There are risks a woman may experience from having an abortion, which may include pain and cramping, plus some intense mental health struggles, and social and financial burdens. There is already a negative stigma surrounding abortion, so I do not believe any woman is going to choose to have an abortion if it is not truly necessary.

People do need to be responsible and practice safe sex, but unforeseen things can happen. When a woman decides for whatever reason that she wants to have an abortion, there are safe ways to have this procedure completed. According to the World Health Organization, about 45% of all abortions are unsafe of which 97% occur in developing countries. Unfortunately, unsafe abortions are a leading avoidable cause of maternal deaths. If women lose the ability to get a safe abortion where the dangers decrease, the problem will be more unsafe abortions and an increased number of women dying unnecessarily.

Another HUGE problem I have with banning abortions is it is taking away a woman’s right to decide what she can do with HER body. The United States “claims” to be a “free” country”, right? Please explain how taking away a woman’s right to her body is freedom because this does not sound like what I consider freedom.

If a woman is raped, how can anyone force her to keep her rapist’s baby? That baby will be a constant reminder of the worst day in her life, which is NOT fair. If a woman gets pregnant and can be mature enough to admit that she does not have the means to provide a safe and happy life for that child, WHY should she be forced to? She was trying to put that child’s needs first and not bring it into a world where it would not have what it needs to flourish.

Please take a look at the states that have already banned abortion. Do you see a common denominator to these states? The first two states to put an abortion ban were Indiana and West Virginia. I am not surprised about Indiana, but I have been to West Virginia and have seen what people are like there, so I am shocked they were the 2nd state to ban abortion. I do not mean to bring politics into this as that is another hot topic and causes more arguments, but most of the states that have banned abortion are Republican leading with the voting poles. This is not an opinion, but a fact!

Regardless of an individual’s political or religious ideology, what gives anyone the right to tell a woman what she can or cannot do with HER body? In a “free” country, how can a government dictate law for a human body? Why should a woman that is raped be forced to carry her rapist’s baby for nine months? I have heard the argument that she can give the baby up for adoption, but nine months is a long time to carry a baby and endure childbirth all because a man did not listen to the simple two letters word “NO”.

Again, I understand that many people reading this post will have opposite views that I do and that is your right. I am not trying to take anyone’s rights away from them, like so many states are doing to women. Like I have already said, I do not think abortion should be used as a form of birth control, but that is not my right to decide for another woman, it is hers and hers ONLY! I believe in a woman’s right to decide if she can take care of another human life and if she knows she can’t, I do not think she should be forced to. More than anything else, I do not think any woman should be told she must carry her rapist’s baby because this was no fault of hers.

I am sorry if this post has offended anyone but am not sorry for the way I see things. I am not sorry that I think a woman is the only person that can decide what happens to her body. I am not sorry that I do not agree a woman should never have to carry a baby from rape or incest. I am not sorry that I do not agree with what is going on in the United States. I am not sorry that I view freedom differently than some do. I am not sorry that I feel a woman has the right to decide!

Thank you for visiting my site today. Although I do know many will disagree with everything I stated, I do hope it provides you with an understanding as to why I view things the way I do. When I find something extremely disturbing and when something upset me, I feel the need to write about it because it helps me to accept things and let the anger go. I hope you are having a nice and safe weekend. I do encourage you to leave a comment and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes. 

Always, Alyssa

~How to deal with manipulative people~

What does manipulation mean to you? The Webster’s Dictionary shows manipulation to mean a few different things, but for this post, it means, “to control or play upon by artful, unfair, or insidious means, especially to one’s advantage”. To your knowledge, has anyone in your life ever tried to manipulate you? If so, how did this make you feel and how did you handle it?

Unfortunately, manipulative people can be found anywhere. These people can be family, friends, co-workers, or even new people in your life. They are not always easy to detect because they can easily lie and deceive you. Although they are skillful in their deceptive and treacherous behaviors, they are careless and selfish with only their benefits in mind. 

Manipulative people know how to find your weaknesses, use them against you, and convince you to do what will benefit their interests. Some may attempt using positive tactics, such as disingenuous compliments and artificial closeness, but they typically use negative means like silent treatment, criticism, and emotional abuse. 

The feelings felt when being manipulated are unpleasant, to say the least. This can easily leave a person feeling sad, disappointed, hurt, and even betrayed. If you have even been on the receiving end of manipulation, please let this be a lesson and never treat another person in this way.

**Please note, I am not a psychologist, mental health professional, or medical professional in any way, but the following tips are what I discovered through research and I hope they will help you end manipulative people before they can hurt and deceive you**

Remember, NO means NO:

Learn how to say “NO” in a firm, calm, and diplomatic way. There is no need to add anything else to the conversation. When we offer any reason, it can just provide ammo for the person to use to get through your defenses and force you to say “yes”. Initially, the manipulative person may become irritated and persistently try to convince you of something other than what you have already stated. Do not allow their determination or pushy behavior to change your mind. Continue to say “NO” and they will eventually give up. 

Do not apologize automatically:

Manipulative people are skillful at turning the tables to make everything be your fault, even when in your heart you know it was not. These types of people are always the victim. Of course, we are all human and it may seem easier to apologize to keep the peace and end the conversation, but this will just provide them with more control. Stand your ground and know manipulative people will never take responsibility for their actions.

Do not react:

Although it is not easy, the more you defend yourself or explain your reasons, the farther you fall into their web of control. Manipulative people know the way you think and will take advantage of it. They will create drama and chaos and the more emotional you become, the calmer they will feel. They want to make you seem like the crazy one and they are sane. No matter how many accusations and criticisms they throw at you, try to walk away and simply say, “I am sorry you feel that way”.

Establish clear boundaries:

Manipulative people are drawn to and prey on people pleasers because their boundaries are often weaker. Boundaries are important in all relationships as lines are clearly drawn. If there is a manipulative person in your life that continues to cross even one of your boundaries, know when it is time to walk away and not engage further. Define ahead of time what the consequences are when the person continues to disrespect you and your boundaries.

Take time to make decisions:

Often a manipulative person will be forceful and demand an answer right away. Try to never cave into their pressure because it only gives them more control. Take as much time as you need to provide them with an answer.

Keep your distance: 

The best and most challenging thing to do is to cut these manipulative people out of your life because they will try to make you feel guilty. Sometimes ignoring the person is easier because they are unaware of what is going on.

Thank you for visiting my site today. I hope the information in this post will help you deal with a manipulative person in your life or at least prepare you to handle on if you ever are forced to. Life is not easy, and we always need to do what is best for us because it is our life! If you have dealt with this type of person before, I am interested to read about it and how you handled it or knew it was happening. I will respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

May is Mental Health Awareness Month

May is National Mental Health Awareness Month. This was established in 1949 to strengthen an understanding of the importance of mental well-being. It is time to recognize and praise recovery from mental illness for those inflicted with mental illness. Prevention and treatments can work for people. It is an effective way to help people recover from mental disorders and to live a full, and productive life. Unfortunately, in 2022 there is still a negative stigma surrounding mental illness. People are thought to be crazy, incompetent, or dangerous. This is a false understanding of mental illness, which this month is meant to alleviate and correct.

Over the past two decades, the Substance Abuse and Mental Health Services Administration and others within the US Department of Health and Human Services have collaborated to increase the importance of comprehending the prevention and treatment of mental health issues. There have been effective efforts to raise awareness regarding the significance of mental health and encourage acceptance, support, prevention, and recovery from mental health conditions which include but are not limited to the following:

Congress provided substantial behavioral health workforce investments in 2022, which included $225 million for behavioral health professionals and paraprofessional education.

SAMHSA supports the development of a Behavioral Health Workforce tracker, which is a new database of over 1 million behavioral health providers. This tracker offers users a visual of available behavioral health providers by geography, provider type, and Medicaid acceptance status.

It would be false to say that the United States has not failed to correct the misunderstanding of mental illness and help those suffering for the past several decades, but changes are being implemented now. The current administration in the United States remains dedicated to addressing the behavioral health dilemma people have been faced with and strengthening the mental health and well-being of all Americans. It has been acknowledged mental health challenges intensified drastically due to the COVID pandemic, including substance abuse, youth mental health, and suicide.

In March 2022, President Biden signed the Lorna Breen Health Care Provider Protection Act into law. This act will invest $135 million over 3 years towards improving mental health in healthcare providers, including suicide prevention efforts.

Our mental health refers to our emotional and social well-being. This can impact the way we think, feel, and behave, which can influence how we connect with others, decisions making, tolerate stress, and numerous other aspects of our daily life. We all focus our attention heavily on our physical health, which is important, but our mental health is just as important and often neglected.

Mental health is crucial for everyone. Taking care of ourselves is vital to prevent mental health from declining. Circumstances such as nutrition and gut health, stress, sleep, relationships, trauma, and much more can produce further poor mental health. While our mental health is strong and healthy, we can practice and learn coping skills to ensure we can handle difficult situations when they occur because we know they can happen at any time.

A mental health condition or mental illness is referring to a set of symptoms recognized by the mental health community. Individuals with a mental illness or condition encounter changes in mood, thinking, and or behavior. This can be extreme and unexpected for some. For others, it can mean they are unable to think clearly and avoid friends, family, and enjoyable activities. Unfortunately, some may hear voices that others cannot hear. For someone to be diagnosed, their changes in thinking and emotions must severely harm their ability to do the things they want to do. It does not matter what kind of mental health condition a person endures because the possibility to recover is possible.

There are many contributing factors to mental health problems. It is extremely likely for many people to have a complex combination of factors. Everyone is different, so some may be much more deeply impacted by certain things than another person would be. The following factors can result in a period of poor mental health:

Child abuse, trauma, or neglect.

Social isolation or loneliness.

Experiencing discrimination and stigma, including racism.

Social disadvantage, poverty, or debt.

Bereavement (loss of someone close to you).

Severe or long-term stress.

Living with a long-term health condition.

Unemployment or loss of a job.

Homelessness or poor housing.

Drug and alcohol abuse.

Domestic violence, bullying, or other abuse in adult life.

Significant trauma as an adult, such as military combat, experiencing a serious incident where you feared for your life, or being a victim of a violent crime.

Various physical causes such as a head injury or neurological conditions.

I plan to do a second post about treatments for mental health conditions because I did not want to make this post too long. One important thing to mention is trying to understand and support those with mental health conditions is going to be much more helpful than judging the person. Everyone around the world, whether they have a mental health condition or not deserves kind treatment and understanding. With the negative stigma people with mental illness face currently, they deserve compassion because we never know what will push them too far.

Thank you for visiting my site today. I hope the first part of my Mental Health Awareness post was interesting and provided you with a slightly clearer understanding. Life is hard enough already without judging an innocent person battling with a mental health issue, but we need to try to understand how challenging it must be for them. We might not understand the illness, but chances are it is confusing for them as well. I hope you are enjoying a relaxing and safe weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Thought Filled Sunday

It is a gloomy, but peaceful Sunday. I am not sure why, but I feel chilly and still feel drained from last week. Of course, weekends are “supposed” to be a time to recuperate and prepare for the week ahead, which I tried doing. Unfortunately, I still failed to catch up on the sleep loss from last week. I guess once we are sleep deprived and have missed out on many hours of sleep, we cannot ever get those hours back and we are forced to keep going, no matter how exhausted we feel. I know the end of the weekend is near and another long week is getting closer, but there is still time left for our weekend.

I am going to continue to try doing at least one post each day this week and hope to be successful in doing so. There are a couple of topics I am working on right now and hope to have at least one completed today. One crucial thing I will be sharing information about is the importance of mental health. May is Mental Health Awareness Month and I feel this is critical to try to understand this complicated topic. At this time, I only can speak to the fact that the United States has failed miserably in providing care for individuals suffering from mental health issues.

Another topic I will be writing about is the differences between trust and forgiveness. Trust is important and fragile. It can take years to build trust in another person and seconds to break the trust. Once you lose trust in a relationship, there is no guarantee you can trust that person again. If you can work through the lost trust issues and try forming trust again, it takes time and patience. Even when we decide to forgive someone for their wrongdoings and betrayal, that does not mean trust is automatically replenished.

Another topic I would like to write about is the challenges involved in living with a chronic illness without a cure. Sadly, we have genius scientists and doctors around the world, but so many chronic illnesses still do not have a cure. I know this is not 100% true, but in 2022 there seems to be a steady increase in the numbers of illnesses and hardly any headway to curing these illnesses☹.

People should be trying to progress and evolve with the times, but that is not happening. One thing that continues to grow is hatred and mean behavior. When people do not understand the way another person lives, they become scared and decide the way another person is living is wrong and evil. This is a cowardly way to live in the world. It does not matter how another person lives “their” life, as long as they are not causing harm and they are happy, it should not matter or be the business of anyone else!

Thank you for visiting my site today. I hope your weekend has been filled with everything that makes you happy. I have found it can be complicated to find topics to write about that will be intriguing to everyone, but I am trying. Honestly, some things I write about are to help me process issues in my life. I hope you enjoy the last part of your weekend! I look forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Child Abuse Prevention Month

National Child Abuse Prevention Month was first observed 39 years ago by proclamation by President Ronald Reagan. Since 1983, every April has been an opportunity to learn signs of child abuse and ways to prevent this from continuing to happen. Through this post, I am going to explain the different forms of abuse innocent children may endure and explain the risk factors that can lead to child abuse and neglect. As a country, it is crucial that we work together to prevent and address child abuse and make sure every child can grow up in a safe home so they can live a happy life.

Every child deserves to be in a safe and happy home environment. Unfortunately, for too many children abuse and neglect have come their reality and is part of their daily life. Parents should protect their children, but sadly many fail their children. As responsible adults, we can know and understand the signs a child is being abused and report our suspicions.

The following are some emotional signs a child may display, but they do not necessarily mean the child is being abused. However, the signs are reasons an adult should be concerned and pursue help for the child and report their concerns.

* Becomes attached to strangers or new adults in their environment.

*Shows delayed emotional development

*The child comes to school or other activities early, stays late, and does not want to go home.

*Appears to be fearful of their parents and other adults.

There are also several physical signs a child may have that should be reported. These physical signs may indicate the child is being abused at home and they need to be addressed.

*Unexplained injuries, bruises, burns, bites, broken bones, or black eye.

*The child has not received help for physical or medical problems that were brought to the parents’ attention.

*Does not have appropriate clothing for the weather.

*The child displays abusive behavior towards animals or pets.

*Does not have necessary medical or dental care, immunizations, or glasses.

The number of children abused in the United States is staggering and appalling. Nearly 700,000 children in the United States are abused annually. About 90% of children that are victims of abuse know their abuser. Even more repulsive and upsetting, about one in ten children will be sexually abused before they are 18 years old. Approximately, 30% of children that are sexually abused are abused by a family member and 60% are abused by someone they trusted.

It is a disgusting world when children who cannot defend themselves are being abused so much. The effect of abuse is something that does not go away and will never leave the child’s mind. They may experience thoughts they are not loved and will battle these feelings their entire life. They might think the abuse was their fault, when logically they were not at fault.  I am sure it is clear that this is a topic I feel passionate about, and it breaks my heart to know it happens as much as it does. It enrages me to hear stories of parents harming their children because they did not ask to be born.

If you suspect a child is being abused the number to call in the United States is 1-888-CARE4US or 1-888-227-3487. You can call this number 24 hour a day, 7 days a week.

Thank you for visiting my site today. I hope the information I provided was helpful and provided you the insight needed to help an innocent child. Considering this is a sensitive and emotional topic for me, I am going to do this in a few posts. Hopefully, I will have more information on this topic early next week. I hope you are enjoying your weekend and getting as much rest as you can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Few days left of Multiple Sclerosis Awareness Month

There are only a few days left of Multiple Sclerosis Awareness Month. March will be coming to an end, but unfortunately, those living with this illness still must endure the issues involved. There are always so many questions that come to my mind and none of them have any answers. Do I wish this illness had a cure? I would be lying if I said no because I wish with everything in me there will be a cure someday soon. Is this illness frustrating? Again, I would be lying if I said no because it is one of the most frustrating things in my life. Is there anything I can do to change things now? Of course, the only thing I can do is stay positive and take care of myself the best that I can.

There are many reasons Multiple Sclerosis is incredibly frustrating one is that I feel like I do not have control of it. Yes, I might have minor control issues. I like things to go according to a plan that makes sense and is clear. I hate not being able to control my body because of an illness that does not have a cure, yet. I do not understand why there has been so much research done and the only thing that changes is the medications being pushed out by the pharmaceutical companies. I know that many people in these pharmaceutical companies care more about themselves and their bank accounts than those living with this illness.

Another reason Multiple Sclerosis is extremely frustrating is that I must live in pain every minute of every day and that is exhausting! I woke up this morning with my back in so much pain it hurt more to lay in bed than get up but still was painful trying to move. Last night, I felt a migraine working its way into my head. The only thing I could do was go to bed and hope it would be gone in the morning. Unfortunately, the head pain was not gone, but it was slightly more manageable. Pain is awful to live with, but migraines are the absolute worst because it often feels like there is a sledgehammer pounding on my head!

Overall, I do loathe Multiple Sclerosis, but I know it could be much worse than it is. I guess there is a small part of me that is thankful for the type I live with. I do not and never will know what caused me to have this condition, but I feel like there must be a reason. When there are no explanations for things, I find it immensely irritating, and it makes me slightly angry. Considering I have always believed there is a reason for everything that happens in our life, I feel there must be a reason I have Multiple Sclerosis.

No matter how frustrating Multiple Sclerosis can be and how many times a day I want to give up, I made a promise all those years ago when I was diagnosed to my late grandfather that I never would surrender and would continue to fight. Sadly, I know there may come a day when I am unable to fight any longer, but that day will not come for many more years. I am far too determined to let anything, especially an illness control my life.

Thank you for visiting my site this afternoon. I hope you are having a lovely and relaxing day! I look forward to reading your comments and will respond as quickly as I can. The weekend will be coming to an end soon, so enjoy what is left of it safely! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Invisible Illness

I have written about Multiple Sclerosis many times before and I have talked about it a lot as well, but neither of these can explain what it is like to live with it. Many people have heard Multiple Sclerosis referred to as the “invisible disease” and I supposed for the most part it is invisible. Of course, some people stumble because they struggle their balance, or they may have challenges to walk and are bound to a wheelchair or use a walker. These challenges are obviously visible because the person cannot and should not feel compelled to hide them. However, some try to out of fear of being judged. There was a time that I felt I needed to hide my illness because I know people talk and it is always about things, they know nothing about, but that is not my fault, and it is on them.

Out of all the issues Multiple Sclerosis puts on a person, many that are truly invisible issues to deal with. No one can feel the pain someone feels, which those with Multiple Sclerosis tend to face daily. I have mentioned before that I live in pain every minute of every day but try my best to hide it and not because I am afraid of what people may think. I hide the pain because nothing helps my pain ease. It does not matter if I explain how I feel or even cry about it, the pain will still be there. I am thankful that the pain I feel cannot be felt by those around me because I would not wish that on anyone, and it is not fair for anyone to experience it.

Another issue I deal with that is invisible is the neuropathy. The feeling of spiders crawling around on my legs and feet is only something I endure, and no one can see it. This is something that I feel daily and mostly it increases at night, but still there are times during the day I get experience this. Of course, my husband that is with me all the time can see it because I start getting fidgety and cannot stay still. Not that it helps but I will start rubbing my legs when we are watching TV or having lunch together. I cannot explain why I rub my legs or feet, but I supposed I am trying to make the feeling go away. My husband has even asked me if it helps or why I do it and I cannot explain it to him, I guess it is just a habit.

Stress causing my condition to deteriorate is not something anyone can see. Heck, I cannot even see it immediately, but will understand later what stress does to me. Stress can cause symptoms to worsen and potentially cause a relapse. Anyone that has Multiple Sclerosis or knows someone with it understands how bad a relapse can be and it is something that we all try to avoid. A relapse can be awful, but the actions taken to decrease the length of time one deals with them are typically by using steroids. For anyone that has been on a high dose of IV steroids, you know how terrible that can make you feel. I can admit that the steroids will make the relapse not last as long, I would prefer to not take them.

The only person that knows how exhausted I always feel is me. It is not something anyone can see, but I do see and feel it. I cannot even explain it to anyone because it does not matter how much sleep I get. I will wake up feeling like I have not slept at all and truthfully, I probably did not sleep well through the night. The pain and tingling will wake me or prevent me from falling asleep, but I still try pushing through the day like I have slept eight hours.

COVID introduced a new invisible issue to Multiple Sclerosis. Everyone had to deal with the normal things that came with COVID, but anyone that is on a medication that weakened their immune system had to be even more careful. Even after there were vaccines available, we had to determine how safe they were mixed with their medication. Being under isolation could make people feel even more isolated and nervous for what could happen if they got COVID. I know I was afraid that if I got COVID and being on Gilenya if I would survive. Anytime I left the house, I would wear a mask and be looked at like I was insane, but I do this because I refuse to gamble with my life.

I think COVID has made everyone feel like they are living under house arrest. My mother moved to Texas a few years ago and we did not see each other before she moved because of the fears of COVID. It is not that I do not want to see my mother, but I refuse to get on an airplane until COVID is gone and there are no new variants. I also do not want her getting on an airplane to come to where I live because I do not want her getting COVID or bringing it into my house. It is not easy dealing with this because she is my mother and I know she would get on a plane tomorrow, but it is not safe for either of us.

Considering March is Multiple Sclerosis Awareness Month, I thought it would be good to do a post about the invisible side of it. I understand why people would call it the invisible disease because much of it is invisible. Truthfully, I would prefer the balance issues I deal with to be invisible because I feared when I was diagnosed about being in a wheelchair and not that it is a bad thing. After all, it can happen. Although the pain is invisible, anyone that knows me can see how much I hurt.

Thank you for visiting my site today and reading what I have written. I hope this provides some clarification to the issues I deal with that are truly invisible and why I hide some of them. I am not hiding things because I am ashamed, but because it does not help. I do look forward to reading your comments because I know they will be insightful. I will respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Frustrations of living with Multiple Sclerosis

Living with Multiple Sclerosis has been challenging and frustrating at times. Yes, the disease itself is painful, but many do not understand the symptoms and how they affect daily life. If someone does not have the disease, they are not able to fully comprehend what it is like to deal with the symptoms. Even those that are closest to me and see me daily but do not suffer with the consequences of the disease have a difficult time knowing what it is like to manage. Many people I meet would not even know that I have Multiple Sclerosis because I look perfectly normal, but underneath the mask I wear is a battle with my own body. 

When your body manages to attack itself and you have no control over the symptoms, it can be challenging to explain to others that do not understand because they do not have to endure the difficulties. It is not easy when you have no control of how your body reacts to the pressures in life or even to just being awake. I have said to some that they would not understand unless they could live in my body for one day, but most could not handle it well at all.

One extremely frustrating symptom is the constant feeling of fatigue. It does not matter what time I go to bed or how much sleep I get (which is normally NEVER enough), the fatigue issue consumes my life. I can say that it does get worse as the day progresses and by about 1:00 PM I need a nap, so by the time my husband is ready to have dinner and watch a TV show I am spent and exhausted. I have explained this to him numerous times, but it does not register to him, and he continues to want to have dinner and watch TV or a movie later at night. I guess I can understand this because he does work nights, but I still think there needs to be some compromise and meeting in the middle.

Another frustrating symptom is the never-ending pain. Being in pain 24 hours a day, 7 days a week with hardly any relief is not easy. I try to ignore the pain, but there are times when it is extreme and overbearing, and I am unable to ignore it. Pushing through the pain when it is at the worse and it is hard to stand, or move is immensely demanding. Heck getting out of bed when I know what the day holds, is aggravating and irritating. It is not that staying in bed would help much because just lying in the bed, I still hurt! 

The issue with neuropathy is also a challenge. The feeling of pins and needles or spiders crawling around on my legs and feet is hard, especially because NOTHING helps. I am already maxed out on the medication that is “supposed” to help so how can I have hope for relief, when the medication that should help the neuropathy is not helping? I know it is best to believe things will improve, but it has been many years of this, and it is not coming to an end.

Thankfully, even though I do experience dizziness frequently, I have learned how to cope with it. I have learned that when I do get a dizzy spell, if I focus on a still object, it will help to get the dizziness under some control. However, when it happens when I am driving, it can be a little terrifying, but then I will focus on the lines on the road and manage to stay in between the lines.

I am sure there are other symptoms are not easy to handle, but the one I want to mention is the headaches/migraines. Out of all the other types of pain I endure, this is probably the worst and the only one that will have me in the bed for hours or at least until it gets better. Most pain is something we can learn to deal with, but headaches/migraines I have not been able to learn to deal with and I have been experiencing these since I was a child. I guess when the pain is concentrated on the head, it starts to affect the way we think and communicate.

I know that stress is my biggest enemy and not a friend to the Multiple Sclerosis. The only thing that stress does is make any symptoms with MS more intense. Right now, I am trying to get my medication that helps keep the MS at bay but going through the process and jumping through all their hoops is stressful. This is a medication that without the Gilenya Go Program would cost about $8,000 per month and that is not something any normal person can afford. Unfortunately, I only have enough medication to get me through until Saturday and then I am out. This medication has done well keeping the MS under control and being off of it will only cause me stress.

Thank you for visiting my site today. I hope you found this post helpful with understanding the frustrations of living with an uncurable disease. This post was meant to be a quick overview of the complications of living with Multiple Sclerosis. I would love the change to read your comments and will respond to all of them as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Multiple Sclerosis Awareness Month Part 2

March is Multiple Sclerosis Awareness Month and as I said in my post on March 3rd, I want to do a post about MS each week during the month. I know some information I have shared previously, but I do want to explain again what this disease is and the symptoms one might experience with this unpredictable disease. I also want to do my part in providing knowledge about Multiple Sclerosis to as many people as I can because it can easily be misunderstood or confused with other diseases. Please be advised that I am not a medical professional, but I am someone that has lived with MS for 21 years and has done countless hours of research.

Multiple Sclerosis is a potentially disabling disease of the brain and spinal cord. With Multiple Sclerosis, the immune system attacks the myelin, which is the protective sheath covering nerve fibers and causes communication issues between the brain and the rest of the body. In time this disease can cause permanent damage or deterioration of the nerves. Unfortunately, at this time there is no cure for MS, but medication can decrease the rate of progression.

The signs and symptoms can be different from person to person. No two people will experience the same signs and symptoms at the same time. Some symptoms that target movement are numbness and or weakness in one or more limbs, typically on one side of the body at a time. People may also experience an electric-shock sensation with certain neck movements. Others may suffer from a lack of coordination or unsteadiness.

A common complication with Multiple Sclerosis is vision problems. The issues with vision can vary from partial or complete vision loss, typically in one eye at a time. Others may have prolonged double vision or blurry vision. I remember when I was diagnosed with MS, I went to my eye doctor because I had lost vision completely in my left eye. Imagine being 19 years old going to the eye doctor thinking you are going blind and finding out the vision can be repaired, but you have a lifelong, incurable disease. It was a shock to my young mind, but I guess it was good news in a way.

Even though everyone experiences MS differently and deals with different symptoms, some common symptoms are slurry speech, problems with sexual, bowel, and bladder functions, fatigue, dizziness, tingling, and or pain in parts of the body.

I still have a few other posts I will be sharing about Multiple Sclerosis this month. I will be sharing a few reasons I get frustrated with this disease. I try my best to not get overly frustrated with others who do not understand or cannot comprehend the struggles I deal with, but I am only human and do get aggravated sometimes. I will also do a post to explain the different types of Multiple Sclerosis, so please stay tuned if you are interested.

Thank you for visiting my site today. I hope you are having a great and safe week. We have almost made it through this entire week and will be able to enjoy the weekend soon. Do you have any plans for the weekend? Whatever you do this weekend, please remember to continue to stay safe. I also want to remind everyone to continue keeping those living in Ukraine in your prayers. Unfortunately, the battle they are enduring is not over yet, but hopefully, they will find peace and safety during this tragic time. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Multiple Sclerosis Awareness Month Part #1

March is Multiple Sclerosis Awareness Month, which provides an opportunity to share information about this illness. Those of you that have been following my blog already know that I have been living with Multiple Sclerosis since I was 19 years old, so it has been 21 LONG years. Of course, I am not a medical professional, but I do know the challenges that come along with this illness. I plan to do a few posts about Multiple Sclerosis because there is a lot of information that needs to be understood. My first post about this will be simple, but hopefully it provides some information for you.

Muscle weakness

Unpredictable

Long-last disease

Tingling

Insomnia

Pain

Laborious

Exasperation

Sensitivity to heat

Central nervous System

Let downs

Equilibrium

Relapse Remitting

Offensive

Stinging

Irritating

Sharp

During the rest of this month, I will do a post about the types of Multiple Sclerosis, symptoms, different medications, and various challenges. If anyone has any questions about this illness, I would be happy to answer them the best I can. Again, I am not a medical professional, but have a lot of knowledge I would be happy to share with anyone that wants to know.

Thank you for visiting my site today. I hope you found this post interesting, and you are looking forward to my future posts. I would love to read your comments and will respond as soon as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa