Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Good afternoon y’all! I was not able to do my normal Let It Go Friday post, but do have an even better one to share with y’all! I hope you had a good week, and you are ready to enjoy your weekend safely! Do y’all have any plans for the weekend? We were thinking about going to look at kittens, but I think we are putting this on hold for a little while. We might hold off for summertime because there is a ragdoll mama that will be having kittens and they will be available!
There is always so much bad news we hear about daily, so when we finally get good news it is something to celebrate and share! I believe I told y’all that I was waiting for my reapproval for my Gilenya copay assistance. This medication had worked very well keeping my Multiple Sclerosis at bay, which is wonderful. The only problem with this medication is the cost. With insurance, but without copay assistance, this medication would cost $8,000 per month. Logically, who can afford something this outrageous?
I had mailed the application to the Gilenya Go Program about 2 weeks ago because I do not have a fax machine at home, we all know how slow mail is! Anyways, last week I received a request for additional information from the Gilenya Go Program. Thankfully, while I was at my doctor’s appointment last week, the nice ladies there faxed the paperwork that was requested for me. Today, I heard the BEST news I have heard all month, and my application was approved. Instead of paying $8,000 per month for this medication, I will pay nothing!
Of course, I have not had an appointment with my Neurologist to go over the results from my MRI, but I did read the report. From what I read and not having a medical license, it appeared that the results were stable, and nothing had changed from the previous MRI I had a few years ago. In my naïve and not professional thoughts, no change is much better than changes for the worst! This is all thanks to the Gilenya that I take daily for my MS. Previously, after I had an MRI, I dreaded the results because there were normally negative results.
I have an appointment on March 23rd to hear my neurologist talk about the results in medical terms. I am not dreading this appointment because from what I read, my results are not awful and remaining better than they were in the past! I am just extremely relieved that my application with the Gilenya Go Program was approved and I will be able to get the medication every month, without any delays or problems!
Thank you for stopping by my site today! I know we are all busy and I appreciate you taking the time to read what I wrong, and share your amazing comments. I hope you have a great Friday and a fantastic, and safe weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
On Saturday morning, with an incredibly special thank you to my wonderful husband, I was finally able to get the COVID vaccine. If I had waited for either my specialist or the governor of the state, I live in to get this vaccine, I am sure I would have been waiting until at least summer. I do understand the need for front line workers and elderly individuals to be among the first to get the vaccine. However, I also think people with a weak immune system should be able to get the vaccine as well. Truthfully, it is not just because I have a weak immune system but those with a weak immune system can become deathly ill with this virus. I guess in a sense it is a blessing this vaccine was created so quickly, but it is also awful there are so many people that will have to wait to get the vaccine because not enough were rolled out.
It typically takes 5-10 years to create a vaccine and yet the COVID vaccine was done in less than one year. I know I did just get the vaccine, but one of many reasons why I was so hesitant about getting the COVID vaccine was because it so fast. I was obviously concerned about the side effects it might have that they were unaware of. I do not think there were enough tests completed, but during this pandemic with so many people dying each day, I guess there were not many options.
We have all been living in fear for so many months and most of us have been staying at home to be safe. This past year has created the feeling of isolation, which can feel very lonely. Many of us missed out on celebrating the holidays with our family because of this virus. I do still believe that if everyone had followed the advice from experts in the beginning, things might have been better. There was a lot of misinformation being released from the government, which as y’all already know had me feeling terribly angry. It will not be a surprise to any of you that have been reading my posts during the Trump administration, but I think the way the pandemic was handled or rather not handled was all wrong.
I do passionately believe that if there had been someone else in charge in the beginning of the pandemic, things would have been handled faster and more efficiently. We were all told so many lies about the virus either not being that serious or that the virus was a hoax. Many people never thought anyone could put the lives of other human beings in danger, but that was not the situation. Unfortunately, the former president of the United States did not have any concerns about anyone but his own safely.
I know y’all are not reading this to hear about what I think of the former president or the ways this virus got so out of control, but I do want to let y’all know how my experience was getting the COVID vaccine. I am not going to lie to y’all I was very nervous. As I already said one of my biggest concerns was the possible side effects of a new vaccine. Another concern I had was any potential interactions with my MS medications. The Nurse Practitioner at my specialist’s office told me some of the other patients on Gilenya did already get the vaccine and did not have any side effects. I also called the manufacturer of Gilenya to find out if they heard of anyone taking this medication getting the vaccine and having a bad interaction, but with the vaccine being so new they did not have any information. I am also very aware that no two people will probably experience the medication, the vaccine or the two together the same way, but I had to cover all basis before I got the vaccine.
Before I even got the vaccine, I was already dealing with a nasty headache, but I think it may have been caused by stress and lack of sleep. After I got the vaccine on Saturday morning, my husband and I stopped to get some breakfast because I was so hungry. We just went through the drive-thru and took the food home to eat. My headache did not ease up and I was exhausted, but again, the night before I hardly slept at all. Overall, besides the fatigue and headache, I did experience body aches all weekend. To be completely transparent, I could not tell if the body aches were from the vaccine or the rainy weather we were expecting. On most days I do ache from head to toe, but the aches seemed much more intense.
Much to my surprise, I did not have any severe side effects from the vaccine and even have the second one scheduled for February 13 at 9:00 AM. I prefer to do things like this early in the day and when I have a day or so without having to work just in case, I end up not feeling well. I think another reason I was so terrified of the vaccine is because I never even got the normal flu shot because of possible negative interactions with my MS medicine.
My husband has already had his 2nd COVID vaccine and even after I do as well, we will continue to behave as if we did not get it. We will both continue to wear masks, social distance, and sanitize everything because we both feel that you can never be too safe. It is awful that thousands of people are still dying daily because of this virus and upsetting how many others still refuse to wear a mask. I will never understand why people cannot see the increased numbers of new cases and deaths, and still think a mask is too uncomfortable to wear. In my eyes, a little discomfort for a short amount of time is worth it if it will save lives!
I am not going to be one of those people that says you must get the vaccine because I think you need to be comfortable with this. Nothing I have said in this post is meant to be medical advice and I would still advise you to consult your physician before getting the vaccine. Yes, I think it will keep you safer, but even after getting the vaccine you can still get COVID. I was told if you have had the vaccine and get the virus, symptoms might not be as severe. Unfortunately, with this virus and the vaccine still being new, I do not think anyone really knows answers to be 100% true, but they are working with the information they do have.
I would like to thank you for taking the time to read my post today! I guess this topic can be controversial, but I did want to share my vaccine experience with y’all. I hope you enjoyed what I have shared and hope it will help you to make your own decision to get the vaccine or to not get the vaccine. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I have honestly debated with myself for the past week if I should or shouldn’t write this because I want to steer clear of negativity as much as I possibly can. I must have started and stopped writing this at least 15 times, but I do feel this information is crucial and really needs to be shared as much as possible for the safety of human lives. There have already been so many people that lost their lives because of this virus and things urgently need to change.
My husband is a wonderful man and has always been very supportive of my writing and dreams of doing more with it. For the first time when I explained to him earlier in the week what I was planning to write about he actually deterred me from writing anything negative about the president. Let me clarify this, he did not deter me from writing negatively about the president because he supports him because like myself he doesn’t support that man at all, he just did not want anything I wrote about to negatively impact my life in any way. What I am actually writing about today is so much bigger and more important than a simple man like the president. I am writing about what most people worldwide have lived in fear of for the past 6 months, COVID-19.
There have been many false claims made and a vast amount of important information that was either not shared or it has been forgotten or it was not taken seriously. When the president of a county isn’t taking something seriously, none of his followers/supporters are going to take it seriously either, which in the United States where I live is an enormous problem.
If you are like me and you do not care much for politics, think about what you would think if your favorite musician was not taking this virus seriously. Would you follow how that person behaved or would you think the musician was out of their mind? Now think about how people you know and care for are behaving towards this virus. Do you have family or friends that are not viewing this virus seriously? Thankfully even though my mother supports the president she does understand the severity of the situation we are in here in the United States.
The COVID-19 numbers in the state I live in are steadily increasing without fail. I tend to think it is because I live in a mostly Republican supporting state with only a few exceptions. Recently, I spoke to one of our neighbors at the mailbox and she flat out said that she thinks the virus is a hoax. Of course, I always keep 6 feet distance between myself and anyone else that doesn’t live in my household.
The many things I find irritating when I do have to leave my house, which is not often, is that so many people do not respect others with social distancing and hardly anyone wears a mask. I just do not understand, except that neither the president nor vice president wears a mask. Nonetheless, people should appreciate the science involved and listen to the experts.
Recently, I saw that the United States has been the worst-affected country with more than 3.6 million diagnosed cases and at least 139,960 deaths. It is terrifying how many innocent or uneducated people have had to lose their lives because of this awful virus. How many people need to die before everyone will do what is necessary? It is easy to wear a mask and if they do not have a mask, wear some kind of face covering. It is even easier and doesn’t cost a thing, practice social distancing. Even in the south where I live in the United States, stores have markings on the ground indicating where 6 feet is, but yet many people still can’t maintain the 6 feet that is required.
I think y’all know by now that I am a very emotional person, which explains why it is hard for me to not breakdown in tears when I hear about someone that lost someone they love to COVID-19. It is the people’s life that has forever changed because they have to learn to live without someone they love.
Some spouses have lost the person they promised to love, honor, and cherish for the rest of their lives. Some parents have lost their child or maybe even grandchildren. How can anyone see this and not understand the urgency of wearing a mask, practice social distancing, disinfect everything they touch, and or wash their hands multiple times a day?
Most of you that have read my posts also know that I have Multiple Sclerosis and that I take a medication that weakens my immune system which means that I am at a very high risk of contracting the virus that is causing so much fear and stress throughout the entire world.
I am thankful for the job that allows me to work in the safety of my home. I am thankful for my husband that always supports me and does his best to protect me. I am thankful that my mother and stepfather are aware and staying safe from the virus. I am thankful for the intelligent people the United States has, even if those people are not always listened to because without these people we would not know what we do know about the dangers this virus has the potential of.
I want to ask each and every one of you to stay safe and follow all the safety protocols that we have been made aware of. I completely understand how uncomfortable it is to wear a mask, but I also think a little discomfort is worth your life and safety. No matter what everyone else is doing or how different you might look, please always wear a mask when you leave your home!
I know parts of this post might have seemed a little negative, but I hope you were able to see the positive within my words. I want to thank you for taking the time to read this information and I hope you will always stay safe! I worry about my family, friends, fellow bloggers, all humankind, and animals because animals can get COVID-19 just like we all can.
I hope y’all are having a lovely and safe weekend. I would love to read your comments on the information I have provided. I promise to respond as quickly as I can and within no more than 24 hours. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
I know I am a little delayed in telling y’all about my first day at my new work from home job and I am so sorry about that! It was also my first day working after several months of not working, so I was pretty exhausted. To add on to my first day of work after not working for several months, I also did not sleep for close to 48 hours. I do not know why, but I was unable to sleep most of the weekend. There isn’t really a reason for it either. Thankfully, I actually finally did sleep on Monday evening for about 5 or 6 hours, so now I can tell y’all about the first day with my work from home job!
Monday morning started off well, but on barely any sleep it was twice as exhausting. I had two Zoom meetings, one of which thankfully I wasn’t on screen but the other one, unfortunately, I was on camera. I don’t know about y’all, but I hate seeing myself on screen. I don’t think it is a very nice image! This job is working with a mortgage company and it was amazing how much I ended up remembering from when I worked for a mortgage company a few years ago. I will say this company seems a lot more organized than the previous mortgage company I worked for.
I will be the first to say that I am not all that great with hooking up computer equipment, but thankfully my husband is great at it. The poor guy was up until about 7 in the morning making sure all my equipment was set up and working correctly. I guess it is a good thing he works nights and does well being up all hours of the night! Unfortunately, he doesn’t work for the company I do so he doesn’t have access to what the IT people do, but he did amazing with what he could. I did have to call the IT department because there was something wrong, but it was nothing my husband didn’t do, it was on the company’s side. The IT support person even admitted the issue was a known problem.
The second day of work was a few Zoom meetings and yes, I was on video again. I don’t know why I hate seeing myself on screen or in pictures. I am very critical of myself! But the second day went well. I had a few modules to read and then complete a test. Testing has never been something I was good at. I could know the answers to all the questions, but when the timer starts I forget everything. The third day will be doing modules and one Skype meeting, which I will not be on camera!!
Thank y’all for visiting my site today and I am so sorry I was so delayed with telling y’all about the first day at work! I hope your week has started well and you are staying safe! This virus isn’t over yet and if you live in the United States you already know our so-called leader isn’t doing anything to protect any of us. This person is caught up in his reelection campaign and his pole numbers.
Please, if you do live in the states don’t forget to vote in November. We the people need to join together and END the Trump presidency! I hope you never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
I hope your weekend is starting off well and you are looking forward to a relaxing and safe couple of days! With things being so uncertain and unsafe at the moment it can be difficult to do the things we want to do. We are forced to take precautions that even though we have been dealing with for several months can still be challenging and extremely frustrating. Wearing a mask everywhere we go outside our homes is uncomfortable and make it difficult to enjoy what we are doing. I keep telling myself a little discomfort is much better than the alternative.
I think y’all already know how much I wanted to find a work from home job. I wanted this in part because of COVID-19, but also for my comfort. It can be so aggravating getting ready every morning, driving through traffic with people that are terrible drivers, going on a half-hour lunch, or maybe an hour lunch, then the drive home with terrible drivers again for five days in a row is simply exhausting! After being unemployed and searching for a work from home job, it finally happened for me! I had an interview on Wednesday and got the offer on Friday afternoon.
It isn’t easy to be patient when we really want things to happen, but I do believe good things happen to those who wait. I am honestly not the most patient person in the world, but I am persistent and very determined and I am learning to be more patient. The good news is, I am going to start on July 6 and it is work I am familiar with because I did it for 3 years before we moved.
Between now and July 6 I am going to keep up with the number of posts I have been doing, but might not be able to do as much once I start working full-time again. Considering I truly love blogging and writing as much as I can I am going to try to keep up, but we will see what the future holds!
Thank you for visiting my site today. I do always appreciate all your support and kind ways. I hope you have a great weekend, but PLEASE stay safe. Unfortunately, things are not back to normal or safe and I am not even sure if they will be anytime soon. It is just better safe than sorry, so please continue practicing all the well known safety protocols. Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!
The decision I finally made today took a lot of thought. For some very strange reason, turning in my resignation to my job was a rather difficult thing for me to do. In the past I have always given the proper two weeks notice, but why should I do what is proper when they never did for me? Does this make me just as shallow as those I worked for are or did I just do what was best for my health? Who can really say what is right and wrong? The truth is, everyone has a breaking point when they just can’t take it anymore and in this situation we need to put ourselves ahead of anything else, especially a job! No job is worth it when you are constantly being mistreated and stressed. Music helps my stress in so many ways!
At this point I feel a sense of relief mixed with worry. Of course I have had several interviews and feel pretty confident one of them will work out, but then I think what if I don’t? I am 38 years old and haven’t ever left a job when another wasn’t a sure thing, but for the first time in my life I decided to put my health first!
I do know and completely understand that things in Corporate America are never 100% fair, but at the same time if everyone is being mistreated in the same way, I can deal much better with it. I know that didn’t sound very nice, but being treated equally is important! I am pretty sure my next job will come with the same issues, but my goodness it can;t ever be as terrible as where I have been at. I should have known something was not right when I started at the apartment community when everyone that had worked there before left. I highly doubt it was because of new management and way more likely because of the current management! I should have followed what my instincts were telling me! A valuable lesson was learned!
There is a part of me that will miss some parts of the job I just left, but nothing big enough for me to stay there. There are a handful of residents I will miss and I kind of regret not being able to say bye to them. I do not think it will have an impact on their life and yet I do wish them wellness!
The funny thing is, I am glad to be closing this chapter of my life and look forward to the next chapter. I am playing the waiting game to hear back from another opportunity, which I am terrible at, but I will be fine! Change isn’t always easy, but it is a necessary thing as well!
Thank you so much for stopping by my site today. I always appreciate your thoughts on what I have shared and do encourage them! I promise to respond to your comments as quickly as I can. I do hope your weekend has been wonderful and you are feeling well. Please never forget that I am always sending y’all LOTS of love , comfort, and many positive vibes!
Good afternoon y’all! I hope you had a good week and you are enjoying this beautiful weekend! It is finally trying to warm up where I live and no rain at the moment. Rain can be relaxing when I am at home and even though it does increase my pain, it also provides a calming sound. I definitely prefer to not be out or at work when it is raining only because it makes me even more tired than normal.
I am sorry that I didn’t share a pick-me-up Thursday this week, but I was way too tired to do much of anything after being at work in front of a computer for 8 hours. The new job is an actual full-time thing and it is pretty exhausting. I know my previous job was also full-time, but I was salary and it wasn’t actually 40 hours. My energy level has been rather low as I am getting adjusted to this, but hopefully I will get there soon and be able to be active with my blog way more than I was this week.
Not only did I start this new job, but I am also still battling with some kind of stomach issue that has been here well over a month now! Considering I do not have insurance yet, I can’t really afford to go to a doctor that will only want to run a ton of tests on me. I knew I would have to deal with my chronic illness without insurance for 90 days, but this stomach issue I wasn’t expecting. Currently there are only a few things I am able to eat, so my diet at the moment is crackers and ginger ale, not very exciting I know!
The people I am going to be working with seem rather nice and laid back, but we will see how long that lasts. I have gotten to know one girl and we like the same kind of music, so that is always a good talking point. The person that hired me understands what MS is because his sister battles with this as well. He has actually been great and told me to take breaks when I needed to. Typically breaks are every 2 hours, so at least I know I can do them more frequently if needed.
I am very behind with reading and commenting on all of your incredible posts, but I will try to catch up this weekend. I am not going to make any promises though because I am not sure how much I will be able to catch up on or what I am going to be capable of moving forward, but I will tell you I will do my best. I always enjoy being able to blog because it really is the best therapy ever!!
Thank y’all for taking the time to visit my site today and I do appreciate your understanding during my adjustment period. I hope y’all have a fabulous weekend and you are able to do what brings you the most joy! Please remember, even though I am dealing with an adjustment at the moment, I am always sending y’all LOTS of love, comfort and many positive vibes!
Good evening y’all! It is incredibly hard to believe that it has already been two weeks since my husband and I uprooted our lives by moving to a new state and city! Two weeks ago when we made this change I was terrified about the decision we had made, but now I couldn’t be happier we made this fabulous move! I think the new city and my new job have done so much for the sanity I still had left and my massive stress-levels. The new city is a little smaller than where we were living and so far the people are a lot nicer.
My new job has so far been absolutely amazing and the people are SO very kind, which is a huge change for me. I mean don’t get me wrong, there were a few people at the old job that were great, but the bad definitely out-weighed the good there. My new boss is an older man who stays very busy with numerous meetings and tasks, but when he is in the office he is super kind and willing to answer any questions I might have. So far, my job has been very interesting! I have been learning about what my job entails and how to maintain a schedule for the VP of Finance. There is so much more to this job that I am very excited to learn. I am thrilled that I am going to be traveling with a co-worker for a week of training out of the state. This training will make me become a Certified Housing Counselor. I am looking forward to the chance to build relationships with the home buyers and feel that I will be able to offer a lot of compassion and understanding during a stressful time for them.
I work with so many incredibly nice and understanding people. Of course they only have one name to remember, where I have about 20. Thankfully, everyone is extremely understanding when I have to ask their name again, which has really only happened once or twice.
The moving process was stressful and a lot of hard work, which caused me a great deal of fatigue and pain. I wasn’t the best with resting because I just wanted everything done and organized immediately, which is impossible. It has only been recently I decided that we have plenty of time to get things situated in the new home. There doesn’t need to be a rush on things because thankfully time is on our side with the new house. The only thing that is important and time sensitive is we MUST get our old home ready to be sold and hopefully sold sooner than later! I look forward to the day we get a phone call saying we have an offer on the house! I am logical enough to understand it will take time before the townhouse actually sells.
As y’all already know, I am trying to find my way to continue blogging because I really do love it, while working a full-time job, which I haven’t done in a long time. This process is a trial and error situation, but I am determined to make this happen! I know many people probably will never not fully understand this, but I find writing and blogging a great way to reduce any stress I am feeling. I think most of y’all already know that I battle with stress issues, but I am working to improve this. I think being a walking/talking stress case for 37 years is long enough and now it is time to change my ways.
I do believe that my new job is improving my stress because it is a wonderful place to work. Please know, I am working on getting caught up with reading and commenting on your posts, while also working on my own blogging thoughts. I appreciate all the encouraging words y’all have shared with me over the past weeks and I am looking forward to getting back to a semi-schedule with my site.
I hope y’all have had a great day and I really hope you are feeling well. I am honestly struggling with some pain issues at the moment, but it is possible it is due to the rainy weather. I know it is going to be rainy for a few days with the hurricane heading towards Florida and even though I am a few states away from Florida, we are still expecting a lot of rain. My body doesn’t appreciate or tolerate rain very well, but I am going to keep a strong hold on positive thoughts because I think that is important. In a matter of days the rain will pass and hopefully the weather will be calm!
I want to thank you for visiting my site this evening and I do hope you have a lovely evening! I will do my very best to respond to any of your comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love and comfort!