Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
I have been trying for several days to write a post, but I have not been able to. I have a few reasons why things have been so challenging, and I will try to explain. One issue is I have not been sleeping well due to awful tooth pain. I know my fear of the dentist is very irrational, but I have never been able to shake this fear in all my years. After several mornings waking up at 3:00 AM in excruciating pain and it takes me a while to fall back to sleep, I finally scheduled an appointment with a dentist. My husband and I are still relatively new to where we are living and I did not know any dentists, heck, I hardly knew of any doctors besides my neurologist, but I reached out to an extremely sweet couple that has lived in the city for years for a recommendation. This couple is kind, trustworthy, and I feel confident they would steer me in the right direction, the only problem is the dentist did not have any openings until April 19th, but I have dealt with it this long, what is a few more weeks?
The other issue I have been experiencing is my legs and feet are feeling the annoying tingling, pins, and needles sensation, and a great deal of spasticity. This seems to be getting increasing worst at night, which makes it hard to get comfortable and fall asleep. Even though it is known to those with MS that heat causes issues, previously a heating pad on my legs would help calm the problems down. Unfortunately, a heating pad or a warm bath is not helping at all and I am just having to be patient with my legs and feet, which I am not good at being patient at all!
As y’all know from things I have said in previous posts fatigue is a huge issue with people with Multiple Sclerosis, so not getting anywhere near enough sleep due to my tooth pain and twitchy legs is only producing more fatigue. I do not know about you, but when I get too overtired, I become very irritated with everything. It does not matter how small the issue is, it will make me want to scream and or cry. You can only imagine how I would feel if something huge happened.
I like to think that I am a patient and tolerant person, and always try being understanding because I do know everyone is going through something in their life. It takes a lot to push me to my breaking point, which is not always a good thing because that involves a lot of pent of frustrations. While it can be a good quality to be able to let go of things that are not crucial, the built-up of frustration can be like if a volcano, collided with a tornado, and an earthquake happened simultaneously. This is just me and I might be abnormal because I hold onto things for extended periods of time before anyone would ever know something was bothering me and I know this is something that needs to be worked on and improved.
I am not making any promises because I do not like breaking a promise, but I am going to try finishing the posts I had mentioned before. I know March and Multiple Sclerosis Awareness Month are over, but there are still a few things I want to mention. March being over does not mean that those of us living with Multiple Sclerosis get a break because unfortunately, we still have the same battle to fight.
I would like to thank you for taking the time to visit my site today. I still have so much that I would like to write about, and I am doing the best I can. I hope your week is going well and you are continuing to stay safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Multiple Sclerosis can be a challenging illness to live with, but there are often ways to manage the difficulties. Many things can trigger symptoms, but there are also ways to avoid many of these triggers. It takes time to understand what exactly triggers your symptoms and then to discover the best way to avoid them. Just like each person experiences MS differently, each person will have different triggers and ways to combat those triggers. Of course, please remember that I am not a doctor or medical professional, I am just another person living with MS, and have researched the topic. Today, I am going to share 10 triggers and ways to avoid these triggers.
1. Stress: We all experience stress in our life but having a chronic condition like Multiple Sclerosis can create an entirely new source of stress. Other types of stress can be a result of work, personal relationships, or financial struggles. Too much stress for anyone can cause difficult times, but too much stress for someone with MS can contribute to the worsening of symptoms.
Ways to avoid stress might include finding a relaxing, stress-reducing activity that takes your mind off stress. This activity is anything you find enjoyable because this is for YOU and YOUR health. A few things that may appeal to you are yoga, meditation, and breathing exercises. These practices can help you to relax and obliterate risks for causing symptoms to worsen.
2. Heat: Any form of heat whether it be from the sun, sauna or, a hot tub can be too extreme for people with Multiple Sclerosis. This can often time lead to an exacerbation of symptoms. From my own experience, heat is the enemy which is difficult because I love the beach. I think my saving grace at the beach is the ocean breeze!
It is not always easy to avoid the heat, especially where I live in the south. The best way to avoid this is to keep your house cool and purchase extra fans. Also, on days when there is extreme heat avoid direct sunlight, wear light loose clothing, and stay in the shade as much as possible. Steer clear of saunas, hot tubs, and those hot yoga studios.
3. Childbirth: Many women with MS experience a relapse after giving birth. As a matter of fact, 20-40% of women endure a relapse in the period of time after giving birth. Thankfully, my husband and I do not have children, so I have not experienced this issue. Of course, no one can prevent a relapse after childbirth, but this would be a time to take some steps to reduce how severe the impact is. During the immediate days after childbirth, lean on family and friends to assist with your new bundle of joy so you may get rest and take care of yourself. This can help your body recover more effectively.
4. Becoming Sick: Certain types of infection can cause a relapse and MS can create certain types of other infections. Infection such as the flu or even something as simple as the common cold may cause MS symptoms to worsen.
Avoiding sickness can be challenging, especially with COVID spreading like wildfire. Even with the numerous challenges involved with avoiding getting sick, living a healthy lifestyle can help with preventing infections and other illnesses. It is also helpful to wash your hands for at least 20 seconds multiple times a day and distance yourself from anyone that is sick, especially if you are experiencing a relapse.
5. Some Vaccines: While most vaccines are safe and recommended for those with Multiple Sclerosis, certain vaccines contain live pathogens, which can create the risk of exacerbating symptoms. If you are experiencing a relapse or taking certain medications, consult with your neurologist before getting any vaccines because it might be in your best interest to postpone the vaccine. Your doctor will know the best way to handle this and will advise you regarding vaccines.
I will be completely honest with y’all with the medication I take for MS, Gilenya, I was advised years ago to not get vaccines. Of course, that was 20 years ago and so many changes with medications with additional research. I had always been leery of getting anything and it was not due to the needles, I just feared for negative interactions. However, my current neurologist told me things with the Gilenya had changed over the years and the only vaccines that were not safe were the ones that were live vaccines, and I was able to get the COVID vaccine and I can get the flu vaccine if I decide I want it. My neurologist did highly recommend I get the flu vaccine, but I am not in any rush to do this!
6. Vitamin D Deficiency: At least one study discovered that people with lower vitamin D levels have an increased risk of relapse than someone with adequate vitamin D levels. It has been suggested that Vitamin D can protect against developing MS, but even more research that revealed Vitamin D affects the disease as it is needed.
The best way to prevent the issue of Vitamin D deficiency is to make sure your doctor regularly checking your Vitamin D levels. There are supplements available, some foods have high amounts of Vitamin D, and safe sun exposure can help increase and maintain your levels. However, while supplements may seem safe and legit, it is best to discuss any supplements with your doctor before beginning them to ensure there are not any negative interactions and they will provide suitable results.
7. Inadequate Amount of Sleep: Sleep has an important role in our overall health. The body utilizes sleep to repair the brain and restore other areas that have been damaged. When we do not get sufficient sleep, our body does not get the necessary time to rest and rejuvenate. Too much fatigue can trigger symptoms and/or make symptoms worsen. With muscle spasms, pain, and tingling, MS can make sleep rather troublesome.
Considering how vital sleep is for our health, it is crucial to discuss sleep issues with your doctor. Bring the issue to your doctor’s attention can help determine if any other conditions causing the sleep struggles.
8. Poor Diet: A well-balanced and healthy diet, along with regular exercise can be beneficial for avoiding relapses and/or reduces Multiple Sclerosis symptoms. A diet considering of processed foods will not supply your body with the nutrition that is required.
To avoid developing a poor diet habit, working with a dietitian to discover the best healthy eating plan you can carry on with could be extremely helpful. Although, research is not clear as to the best diet is for people with MS, eating healthy foods can have a positive impact on everyone’s health. Concentrate on good sources of protein, healthy fats, and carbohydrates is one of the best ideas.
9. Certain Medications & Stopping Medications Too Soon: The truth is some medications that can make symptoms worse. Your neurologist will need to monitor all medications you are taking to ensure there are no interactions that can trigger symptoms to worsen. Even though some medications can have negative side effects, this does not mean you should stop any abruptly. You should always consult with your neurologist before starting or stopping all medications as to not increase your risk of a relapse.
The 10th Trigger Can Be Pushing Yourself Too Far & Too Hard: As already stated, fatigue is a common symptom for those living with Multiple Sclerosis. With that said, if you have MS and continuously push yourself to go with too little sleep and/or overwork yourself physically and/or emotionally, you might face ramifications. The combination of overexertion and fatigue can trigger a relapse or make a relapse last longer.
The best way to avoid a relapse due to pushing yourself too hard is, be easier on yourself or at least listen to the cues your body is telling you. Start slowing down when you become tired. Rest as much as possible when you can. Understand that pushing yourself to exhaustion, the recovery will take that much longer. It is important to know that our body does know when it has had enough and when it needs to rest and take a break!
I hope the information provided in this post will be beneficial whether you have MS or another chronic condition. Living with any chronic condition can be complex and I am only way too familiar with Multiple Sclerosis, and with March being Multiple Sclerosis Awareness Month, I wanted to be able to share as much useful information as I could.
Thank you for visiting my site today! I hope you have a nice and safe weekend! I am looking forward to reading your comments and I promise to respond as quickly as I possibly can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
~Terms to know when living with Multiple Sclerosis~
Whether you are newly diagnosed with Multiple Sclerosis or you have been living with MS for many years, you already know it is hard enough living with MS. Then adding learning and remembering an entirely new vocabulary makes things even more challenging, and confusing. I know there are times I still get a little flustered when talking to my neurologist or try explaining to someone the way I am feeling. I am going to share some useful terms to try to help make things somewhat easier to understand. Please keep in mind that I am not a doctor or medical professional, just a person that has lived with MS for more than twenty years.
Fatigue is one term we are probably all too aware of. This is one of the most common and important symptoms relating to MS. It has been suggested by the National Multiple Sclerosis Society, that this affects about 80% of all people living with MS.
Vision problems tend to be the first sign of MS for many people. This was the way the doctors discovered that I had MS. I think I have told y’all before, I had gone to the eye doctor thinking I was going blind in one eye, but the doctor said as gently as he could that he thought I had MS. I was terrified and only 19 years old, so I was still a child with a naïve mind. Inflammation of the optic nerves is knowns as optic neuritis. This can cause several problems, such as blurred vision, eye pain, and/or blind spots.
Brain fog is not a medical condition, but a term that is used to explain certain symptoms affecting the ability to think. Brain fog can make thoughts seem cloudy and you are not able to think clearly. This might cause you to feel confused, disorganized, and/or find it difficult to focus or put thoughts into words. This is also sometimes referred to as MS brain, cog fog, or cotton brain.
Slurred speech is often due to the loss of coordination of the tongue, lip, cheek, and mouth muscles. This loss of coordination may also result in trouble swallowing.
Loopy, which can be best described as feeling tired and/or almost like you are drunk.
Jelly leg, which may be referred to as jell0o legs or noodle legs. When experiencing jelly legs, you are legs will not work correctly.
Hallway pinball is when your walk is weaving from side to side. With MS, your legs may sometimes feel wobbling, weak, and tired. You might lose some control of your legs and when walking down a hallway, forcing you to bounce back and forth from side to side like something you would see on a pinball machine, hence the name.
Wooden leg or legs is a phrase that is used to describe the stiffness in the legs.
Foot drop is a term used to explain weak muscles that make it difficult to lift the front part of your foot or feet as you walk.
One major symptom of MS is chronic or acute pain. Shooting pains are typically acute, which means they come on suddenly, intensely, and then disappear. Pain is something I have battled with for the past 20 years and it does not get easier with each year that passes. However, I will not allow the pain that my life is plagued with bring me down and will always try to continue pushing through it, no matter how awful it gets. Truthfully, the pain does get worse when it rains or I am stressed. Lhermitte’s sign is a type of shooting pain. This is a sudden sensation that mirrors an electric shock passing down the back and into the spine and might radiate out into your arms and legs. This is usually triggered by bending your head forward towards your chest.
MS hug is a type of hug I never want. This term describes a constricting pressure surrounding the chest or waist area. It feels like there is a snake around you and just continues to squeeze or at least that is how it feels to me. The pain involved with the MS hug can range anywhere from mildly annoying to extremely annoying and tends to come along with a burning sensation. An MS hug is caused by spasms of the muscles between the ribs.
Spasticity, also referred to as spazzy. This is a common symptom of MS and can occur in any area of the body, but most commonly is in the legs. With this, the muscles might feel simply tight or can be extremely painful. There are two types of spasticity:
1. Flexor affects the back of the leg and upper thigh.
2. Extensor which affects the front of the upper thigh and inside of the upper leg.
Twitchy means you are experiencing twitching from spasticity.
Considering MS affects the central nervous system, the pins and needles sensation is common and most often felt in the limbs. This has been something I have dealt with for years and it is not easy to deal with. Even though I am on a high amount of Gabapentin, I do still feel this every day of my life.
Thank you for visiting my site today. I hope you found this information helpful or at least made things a little clearer. Believe me when I say, I understand how hard it is to remember every term used in the medical field and I have learned more by sharing this information with y’all. I think we can all continue to learn more, and we can help one another with this learning curve. I would love to read your comments on this post, and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
There is so much focus on getting at least 8 hours of sleep each night to be more productive and feel most energized. This tends to make people center their attention only on the night but is just as important to consider what we can do during the day to help us get a good and restful night’s sleep.
One common mistake people make after a bad night’s sleep is to take it easy or rest up. Often our energy level feels like it is a limited resource, and we try to reserve it, but this is not the best idea. We can increase our energy and reduce fatigue by doing more, instead of less. Now allow me to explain further with 4 simple key areas.
Continue with your full schedule
Whether you have work, school, or both do not call in sick and/or cancel appointments. Maintaining the same schedule, you had planned when you anticipated sleeping well can serve as a benefit. Your typical schedule might keep you busy enough so you do not have time to think about how tired you are. Another benefit is the next time you lay your head down to fall asleep, you will not have to stress about how you are going to deal with a bad night of sleep because you know you can deal with it the best way possible by staying busy.
Avoid low energy people
When it comes to other people, your first thought might be avoiding high-energy people because you are feeling so low energy. Of course, I know right now with COVID we are not around many people, but it is possible that spending time with others that make you feel more energized and alive will increase your energy. Whether it is due to COVID or you are more introverted, find just one friend or family member you enjoy spending time with, but do this safely. This might assist you in reducing moodiness and make your mood better.
Maintain confidence in your body and relax your mind
Throughout the day, do not dwell on how you are going to catch up on sleep. Understanding that our body can adjust to most situations and will help us sleep more soundly and restful when necessary. Our body is more resilient than we give it credit for and it knows how to take care of itself. Going to bed earlier than normal or taking naps will create problems with our internal clock and we will have more issues in the long run, which is why it is crucial to maintain our normal schedule. We need to trust our body to get the sleep we required and wasting time watching the clock and calculating the amount of sleep we will get only generates stress and irritation, which will make sleep nearly impossible.
Do not rely on caffeine or coffee
Natural methods for increasing energy are much better for our body. We should always try to avoid caffeine pills and energy drinks because they are only a short-term fix, but the crash and/or other negative side effects can be awful, and we will wish we did not consume anything. The benefits you can get from sunlight, talking with friends, or exercise, even just a short walk may be a lot more powerful for the long-term.
Over the years, I have dealt with sleep problems and mainly because my mind is always on overdrive. The nights that I struggled with sleep and then the next day felt exhausted with hardly any energy, but I did always push through the day. Normally, I can handle a lack of sleep well for a couple of days because I do trust that my body knows when it has had enough.
Something I have done without for over one year is caffeine. In the past when I was low energy due to a bad night’s sleep, I would consume a great amount of caffeine. Honestly, to me, the crash from caffeine is worst than the tired feeling because it can produce awful headaches and I already endure these so I do not need any additional headaches.
I hope you found the information I have provided helpful! I would, of course, love to know what you thought or if this was how you normally handle a bad night’s sleep. I hope you had a lovely, relaxing, and safe weekend! Daylight savings tends to throw my internal clock off, so I am still awfully tired today. I guess it is a good thing I have a day to get used to the time change before another week begins tomorrow or it would be a long week! Thank you for taking the time to read this post! I hope the rest of your weekend goes well! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We have already made it halfway through this week, which means there is not much long until we see the weekend again! How is your week going? I do hope you are having a good week and you are staying safe! Of course, sometimes the weeks seem much longer than they are and all we can do is keep trying. We might be going through challenging times, but we do still have a lot to be thankful for and just need to focus on that.
Considering all of us are still dealing with various struggles, I think a little inspiration might help us through some of those times. With all the stresses that COVID has put on us all, it is hard to remember that someday things will get better. There are also so many built-up frustrations and hatred blanketing the world, which we can help by being kind and understanding. Of course, no one knows exactly when things are going to improve, but that is where hope and determination come into place. I do realize how difficult it is staying home all of the time and when we do finally leave the safety net of our homes we have to wear masks but all troubles, and struggles will someday dissipate, and we will have so much to be proud of because we made it. It is easy to want to throw your hands up and give up, but the strong people I know we all are will not just give up without a fight!
I hope your week is going well and you are remaining safe, and not having any extra stresses added onto you. Life has never been easy and we do all face numerous complications, but somehow we make it through them all. Our strengthens build character and further perseverance for which we should feel gratification. I know how difficult life can be, I mean I was diagnosed with a debilitating illness when I was still a teenager and did not let it deter me from trying to achieve my goals in life.
Thank you for visiting my site today. I hope you enjoyed the quote I shared with y’all and it provided you a little inspiration! I am looking forward to reading what you thought about the quote and everything else I have shared with y’all today. I promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
As you read this post, please be advised that I am not a medical professional. The information in this post is based on the research I have done since being diagnosed with this disease 20 years ago. The one thing about this disease that is important to understand is, it is extremely unpredictable and everyone, no matter what type of MS they have experiences it different. It does not matter if two people have the same type of MS, everyone experiences and deals with it differently.
Multiple Sclerosis (MS) is an autoimmune disease that means that the body’s immune system attacks its tissues. This is a very unpredictable disease, and everyone experiences it differently. In this post, I am going to explain the four different types of MS and the distinctive characteristics of each type.
Radiologically Isolated Syndrome (RIS), is not considered part of the MS path, but has been utilized to categorize those with abnormalities on the brain and/or spinal cord that are consistent with a lesion of MS, and do not have any current or previous neurological symptoms or abnormalities discovered on a neurological exam. Many individuals had an MRI due to symptoms, such as headache, and revealed lesions appearing similar to those found in MS. During a study in 2020, it was uncovered that more than half of individuals with RIS will develop MS within 10 years.
Clinically Isolated Syndrome (CIS) is a path of MS. CIS is referred to as the first occurrence of neurologic symptoms, which last at least 24 hours. This occurrence is caused by inflammation OR demyelination in the Central Nervous System (CNS). CIS can be classified as monofocal OR multifocal. Monofocal is when a person experiences a single neurologic sign or symptom that is caused by a single lesion. An example of this is an optic neuritis attack. Multifocal occurs when a person endures more than one sign or symptom caused by lesions in more than one area. An example of this is an optic neuritis attack and tingling in the feet. An important thing to be aware of is, just because an individual experiences CIS, it does not mean they will develop MS. The healthcare provider faces two challenges with diagnosing CIS:
1. Determining if the person is experiencing a neurologic episode caused by damage to the CNS.
2. Determine the chance from the damage the person is experiencing is a form of demyelination that will develop into MS.
Relapsing-remitting MS (RRMS) is the most common and the type I was diagnosed with 20 years ago. Approximately, 85% of individuals with MS are originally diagnosed with RRMS. This type of MS has evidently defined the attack of new or increasing neurologic symptoms. The attacks are also referred to as relapse or exacerbations and are followed by periods of partial or complete recovery, which is also known as remissions. While there is not any obvious progression of the disease during a remission, symptoms may disappear or some of the symptoms may continue and become permanent.
RRMS can be further described by inflammatory attacks on myelin, which is the layers insulating membranes surrounding nerve fibers in the central nervous system (CNS) and the nerve fibers. Throughout the inflammatory attacks, activated immune cells cause small, restricted areas of damage that create the symptoms of MS. Considering the areas of the damage varies, no two people will experience the same symptoms at any given time.
Those who have RRMS tend to have more brain lesions and more inflammatory lesions that appear on the MRI scans. Individuals are often diagnosed with RRMS in their 20’s and 30’s but can also occur in both childhood and later adulthood. Women are diagnosed 2-3 times more often than men.
The symptoms of RRMS can and normally are different for each person, but there are some common issues. The most common symptoms for RRMS are fatigue, numbness, vision problems, spasticity or stiffness, bowel and bladder problems, and issues with cognition. It has been suggested that a transition from RRMS to years SPMS typically will take place in people who have lived with RRMS for at least 10, but this does not always happen.
Secondary Progressive MS (SPMS) is another type of MS. This type of MS usually follows a period of the relapsing-remitting disease, the levels of disability gradually increase with or without evidence of disease activity.
SPMS is basically a second phase of the disease. Individuals with this type of MS may or may not ensure relapses caused by inflammation. However, the disease slowly changes from the inflammatory process like seen with RRMS to a consistent phase classified by nerve damage or loss.
Before the availability of disease-modifying therapies, some studies suggested that 50% of those diagnosed with RRMS would shift to SPMS within 10 years, and 90% would change within 25 years. The many different medications that are available in 2021 have provided a positive impact on disease progression. However, experts say it is still too soon to know the extent to which these disease-modifying treatments will change or slow the transition to SPMS.
Considering the transition from RRMS to SPMS is a gradual process, the healthcare provider will not know when exactly it occurs. The challenges the healthcare provider faces is establishing if:
1. The worsening is permanent, but some damage remains after the inflammatory attack ended, meaning the individual is experiencing an RRMS disease course.
2. OR the disease continues to get worse, but the individual is no longer enduring an inflammatory relapse, which would indicate the person has transitioned to an SPMS disease course.
The fourth type of Multiple Sclerosis is Primary Progressive MS (PPMS). This type is classified by worsening neurologic function from the onset of symptoms without early relapses or remissions.
Each person that lives with PPMS will experience this disease differently. Commonly, PPMS may have short intervals when the disease is stable, with or without a relapse or any MRI activity, as well as duration when there is increasing disability occurring with or without new relapses or lesions on an MRI.
PPMS is different from RRMS and SPMS because it does not include the same issues with inflammation. Although people with PPMS have fewer brain lesions than those with RRMS and SPMS, they do tend to have more lesions on their spinal cord. Typically, people with PPMS experience more problems with walking and may require more assistance with everyday activities.
From my own experience with Multiple Sclerosis, I was a terrified child when I was diagnosed. I was only 18 years old and did not know much about the disease. In my naïve childlike mind, I was going from being diagnosed to a wheelchair and then death. Yes, I was diagnosed, but did not end up in a wheelchair yet. I think it is extremely important for anyone newly diagnosed to do research, build a strong and honest relationship with a neurologist, and have a strong support system. It can be a scary and terrifying diagnosis, but a normal life can still be lived, especially one the right disease-modifying treatment is found!
Thank you for visiting my site today. This is my first post about Multiple Sclerosis for MS Awareness Month. There is so much information out there about this disease and I only wish I had this when I was diagnosed all those years ago. I can remember how I felt because I was alone in the exam room when I heard the news and it felt like the room was spinning out of control. I did not want anyone to know I had MS, but that was rather silly. Now days, I am open about it and want to help others that are dealing with this disease. I want y’all to know, no matter how alone you feel, you are never alone! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes! I also want you to feel free reaching out to me any time if you ever need any extra support and help!
After work yesterday I went to have my dreaded MRI. I have been dreading getting another MRI for about three years, but finally did not have a choice and had to get it. I already mentioned that the MRI is insanely expensive because of our ridiculous healthcare in the United States. I think I have had an issue with the healthcare issue for a long time because we are the ONLY developed country that does not have “free healthcare”. It seems that many Americans believe that free healthcare is wrong, and I cannot understand their logic. I have heard from many people living in countries that do have free healthcare and they love it.
The complaint I have heard about free healthcare is you have to wait a long time before seeing a specialist or having a procedure, such as an MRI. The thought process is ludicrous and typically the thoughts of someone that believes what the politicians are saying, which is mostly lies.
Anyways, my MRI was not that bad. It was EXCEPTIONALLY long and LOUD. One of the images felt more like a small earthquake because it felt like the entire machine was shaking vigorously. The other images had annoying sounds that were way too loud. I can say the two radiology techs were nice and told me how long each image would take. Midway through the MRI, they pulled me out to add the contrast, and at that time, I told them that one of my hands and both feet and my back were numb. They laughed and said it was probably because I was trying too hard to stay still, which was true, but I did not want to be there any longer than I had to for images to be taken again. I did ask one of the techs if anyone had ever told him that he caused headaches with all the loud noises, he just laughed and said he had heard that a few times before!
I am sure many of you have had an MRI before and know how not comfortable it is. Did you ever notice the moment you are in the machine and told to stay still, everything itches! My hair kept blowing in my face and making my nose itch, and almost every part of my body itched as well. I think it is just because I was told to stay still, and I am not good at being still for long periods. The good news is, I was told I did well, and all images were taken the way they needed to be.
I do know that I am not excited about hearing the results and would prefer my specialist just tell my husband. I figure he would be able to give me the news better if it is not good than the doctor could. I tend to think that most neurologists have the personality of a fly if that! I did have a neurologist previously that was amazing and truly kind, but he understood me and my personality because I reminded him of his daughter. I cannot begin to say how much I miss him! I think I like the Nurse Practitioner at my new specialist office better than the actual doctor, but that is how I normally am.
I am glad the MRI is over and hopefully will not need to do it again for many years! I went about three years before this last one and hopefully can do that again! When I do know what the results of the MRI are, I will do a post about it and share the news, whether it is good or bad news. Let us just hope for the best!
Thank you for visiting my site today. I know I normally do “Tranquil Tuesday”, but felt it was better to tell you about the MRI experience. Overall, the MRI was not as awful as I was making it out to be, but it did cause a mild headache. I hope you are having a good week and staying as safe as you possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Today, I am going to write about two different things. One topic is about today being three weeks since we lost our sweet little girl, Chloe. The second topic is the MRI I am being forced to get. Both topics are weighing heavily on my mind, so I need to write about them because that is how I cope with difficulties with life. The one thing that is and always will be a constant in our lives is challenging times. There is no way to avoid challenges, but we need to be able to address them head-on!
I think most of you already read my post about when we lost Chloe. I cannot believe it has already been three weeks since that precious little girl took her last breath. Even though this loss was extremely painful, and we are still struggling with losing her, we can find some comfort, and peace that we provided her with a wonderful life full of love. The Friday before Chloe passed, we had been informed by her doctor that she probably would not make it through the weekend. Of course, the offer was made we could have put her to sleep, but I am glad we decided not to, and she was able to pass in the comfort of her home and on my lap.
Tomorrow, after work on I am going to get an MRI (Magnetic Resonance Imaging). If I remember correctly, my last MRI was almost three years ago, and while I was dealing with a relapse. Of course, this type of testing is non-invasive and does not include any pain. I am sure most of you have had an MRI in the past, so you know they are uncomfortable, in part because they seem longer than they are, and you cannot move, or the image will need to be done again.
The images generated from an MRI enable doctors to see lesions in the CNS (Central Nervous System). Depending on the type of damage and the scan used, lesions will show up as white or dark spots. An MRI will show damaged areas called lesions, or plaques on the brain or spinal cord and can be used to monitor disease activity or progression.
An MRI with contrast dye can show MS disease activity by showing a pattern consistent with inflammation of active demyelinating lesions. Contrast dye is a substance injected into the vein and used to make certain types of lesions show clearer on the MRI scan. Demyelinating lesions are a kind of lesion that is either new or increasing in size due to demyelination, which is damage to the myelin covering certain nerves. The images obtained with contrast can also indicate areas of permanent damage that will appear as dark holes in the brain.
I have resisted getting another MRI for several years for a few reasons. One reason being, they are insanely expensive, even with insurance. The estimate for the MRI I am getting tomorrow was $2,700. The price does not make sense to me because I do have insurance and almost makes me wonder what the point of is paying for healthcare insurance when I still have an outrageous out-of-pocket for everything. I have said this several times before, but I will say it again, the United States has some of the worst healthcare in the world.
Another reason I have resisted the MRI is that the results do not matter, and I am not changing my MS medication. I feel confident saying the Gilenya is doing what it is supposed to with slowing the progression of my MS. Medications I have been on previously did not work near as well and it could have been because I was not taking them like I was supposed to. I hated doing the medications that involved giving myself shots, so with the Gilenya being oral, it is easier!
The final reason I have been stubborn about getting the MRI is because of COVID. I am still worried about going into the imagining place, but I will be wearing my mask and stay as safe as I can. I am logical enough to know the MRI is needed, but I am not thrilled about going tomorrow. I do not want to hear what the results are because they always make me cry and it is not worth the emotions or stress, so I will have the results shared with my husband.
I hope you are having a nice and safe weekend! I know y’all have busy lives, but I appreciate you taking the time to visit my site today and read what I have written. I look forward to reading your comments and promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We all leave a mark on this world and it is our choice what that mark is. I think it is important to remember that tomorrow is not promised to any of us, so we never know when our time on this earth will end. It has always been in my mind and thought process, we need to live each day as if it were our last day here in this world. The way we treat others might stay with that person long after we are gone and leave that person feeling down about themselves. We need to treat others with respect and love, instead of disrespect and ugliness.
I try to always view things from other’s perspectives. It is noticeably clear that everyone is different, which makes each experience we encounter a way to learn and grow. Of course, we are not going to agree with everyone’s way to view situations, but we can try to understand other viewpoints. Everything we undergo during our lifetime should continue to make us better than we were yesterday and help us to be more compassionate and empathetic.
It is crucial to decide how we want to be remembered because we only get one chance at this life. We do not have a rewind or a pause button, so the way we behave will be our legacy. We often fail to remember how short life is because we become desensitized to reality. In the United States alone, there have been over 510,000 deaths due to COVID-19 and yet there are still so many that are not taking this deadly virus as seriously as it needs to be.
If I were to ask you what you want your legacy to be, what would you say? Without having to think about it too deep, I know I want my legacy to be kind, compassionate, understanding, empathetic, fair, and thoughtful. I have always been the kind of person that puts everyone else’s needs ahead of my own and would stand up for anyone that could not stand up for themselves. In a world that seems to be increasingly full of hatred and greed, I do the best I can to not live my life under those terms.
2020 began under uncertain times due to the pandemic. I feel strongly that people showed their true colors, and they were not pretty colors. We all knew a virus was spreading rapidly throughout the world and to decrease the spread, certain things needed to occur. Staying home for a few weeks should not have been a challenging thing to do. I know how isolating staying at home felt, but it was these small sacrifices that could have made a huge difference.
When most people refused to just stay home for a few weeks, wearing masks was the next step. Of course, wearing a mask is not comfortable and feels rather suffocating, but to keep the spread limited it was necessary. I do not think many people understood that wearing a mask was to help keep others safe from the virus but to keep ourselves safe as well. There were many asymptomatic COVID carriers. This just means they did not have any of the typical COVID symptoms but were infected with the virus and spreading the virus to anyone they encountered.
As we are all still struggling to get COVID under control, many have been able to get vaccinated. Unfortunately, there is still a vast majority of the population that have not been vaccinated yet and are waiting for their time. To add more devastation to the world, the COVID virus has mutated into other variants. Regrettably, viruses naturally mutate over time, so it was not only a matter of when but how many others there would be. At this time, there are already three variants that are being researched. There is no way to know if everyone that was vaccinated from the COVID-19 virus will be safe from these other types or not.
As I just stated, there are already three variants to the COVID virus. Considering they are still new, there is so much to learn and there are knowledgeable scientists doing the research. Of course, wearing a mask is one of the best ways to avoid contracting these viruses, but it is still unsettling. I wanted to share a map of what viruses are in each state as of now. Please understand and remember how quickly COVID spread and know these variants will spread just as fast or faster.
I think if we have learned anything from COVID-19, it is awful things can and will happen. We would probably be naïve to think there will never be another pandemic again because it can happen at any time. At this point, it is not a matter of if it will happen again, it is when and will we be ready. My hopes are the world leaders will act accordingly and operate in a matter to save lives, instead of trying to downplay the situation.
I want to thank you for visiting my site today. I know you might not agree with everything I wrote and that is okay, but I would love the chance to read your comments. I can promise you that I will respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I have some really wonderful and amazing news for y’all! Of course, this week has not been a great one because I went through another loss, my Grandmother passed away last Sunday, but the good news is this week is finally over! It does feel like the weeks are getting longer, but I guess it could be worse. The other issue with this week was, I had an awful headache that started on Tuesday evening and it did not ease up much. I am used to headaches, but they are no fun at all How was your week? I hope you had a good week and you are continuing to stay safe!
Now that the weekend is finally here, do you have any plans? This will not be a surprise to any of you, but I pretty much have nothing planned. The only thing I would like to do over the weekend is finally finishing two posts I started but was not able to complete because of the nasty headache, but I do not want to make any promises. Whatever plans you have for the weekend, please just stay safe. Not only is COVID not under control, but three new variants are evading the United States and many other countries as well.
Now that this week is just about over, we need to take this time to let go of anything negative that occurred during the week, so we can enjoy the short weekend! I am hoping the quote I am sharing with y’all today will offer you some comfort and help to let go of negative emotions. I am looking forward to reading your comments on the quote I am sharing and promise to respond as quickly as I can! I just want to quickly tell y’all why I love this quote as much as I do. Our life is so short and we do not know what it has in store for us. It is crucial to understand that tomorrow is not a promise and we need to enjoy the life we were given!
Thank you for visiting my site today! I hope you had a great week and you have a nice, and safe weekend! I am going to try to finish the few posts I started last week, and stick to my typical blogging schedule next week. Between the nasty headache I had and the loss of my Grandmother, I did not have enough energy to do my normal post, but I am going to get back on schedule. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!