Pick-Me-Up Thursday!

Quotes-_-When-Ya-Just-Need-That-Pick-Me-Up-e1533242488825Good morning y’all! I hope you have had a great week and you are looking forward to the weekend that is SO close, I know I sure am! It’s rather nice not really having any plans and even better to know I will not hear an annoying alarm go off early in the morning! Y’all know I am still getting use to my new job and I do have a lot to learn, so I have not been able to blog as much as I would like. I am often so tired when I get home and it is just too difficult to get on a computer again. I would like to catch up on reading all of  your amazing blogs this weekend, but we will see how that goes!Enjoy-Your-Thursday-Pink-Graphic

I missed my Pick-Me-Up Thursday last week, but didn’t want miss it again this week! The quote I want to share with you today means a lot too me and it’s because of my previous post this past Tuesday. I believe that if we can all join together there is a chance we can have even more success! The is power in numbers and we all understand each other very well! I really hope you find this quote as powerful as I do!strength in numbers

I often feel that living with a chronic illness can and does make life pretty difficult, especially when many are against providing us with protection with health insurance. It shouldn’t be like this, but unfortunately it seems to be, especially in the United States strengthwhere pharmaceutical companies run the thoughts of the weak-minded, again no names being mentioned! It you read my post from Tuesday, you will know why I am pushing standing together through the hard times we can possibly face!

I want to thank y’all for stopping by my site today and I really hope y’all have a fantastic day! I do always encourage you to leave a comment, which I will respond to as quickly as I can because I        ❤ love reading your brilliant thoughts! Please never forget for a second that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Advertisements

Outraged!

IMG_0579I can’t believe it’s only Tuesday because it certainly feels we should be much closer to the weekend. It is crazy how fast the short weekends go by and then how LONG the work weeks are. I am thankful I found a job that is close to home and all, but strongly believe 40 hours a week is too much for anyone to dedicate to a job! I think it is even more outrageous that here in the United States we are often forced to wait 90 days before we can even get insurance, not to mention the fact it is INSANELY expensive! I mean, if I were to get insurance for myself and my husband the cost per pay check would be more than a quarter of my paycheck!

I know I have written about this before, but now it is getting painfully more real! The obamacare-pre-existing-conditionsnews I heard, after a long day at work, was so disturbing and caused me so much ANGER, as it would anyone with a heart and any empathy for others! For someone during their campaign they ran to become president, no names being mentioned of course, saying they wouldn’t do anything negative to those of us with pre-existing conditions, to now doing the EXACT OPPOSITE and trying to eliminate protection for pre-existing conditions! I know this person in the white house has some of-nonelderly-adults-with-a-pre-existing-condition-twitter-v1crazy issues with the former president,  but to banish the good things that were done is very wrong. How anyone could still support this person is beyond me because I sure as hell couldn’t and never would! There are millions of people in the United States that will be affected by this and many could even lose their lives if anything happens to their health insurance. 

I try my best to keep my blog encouraging and never talk politics because we are all understandingtheacaentitled to our opinions, but when something can change my own life for the negative, I can’t help but to share my thoughts on the matter! I have been trying to tell myself that no one would ever think about doing something so awful and ruin lives for so many, but it just may happen! Striking down the Affordable Care Act, as has been put on the table, is wrong on so many levels, no matter what your political views are! I wish there was something more I could do to stop anything like this from happening, but I do not even know what that would be! Of course I can write about it, but I don’t know how much that will really change the issues! I do understand there is a chance that nothing being proposed will pass, but what if it does? How can anyone afford the medications they need to live their lives? I know there is absolutely NO way I could ever afford the medications I take to slow the progression of my Multiple benefits-affordable-care-actSclerosis down without insurance. Where would this leave people battling with a chronic illness and does anyone in power really care??

I am sorry for my second rant in a matter of days, but I am hoping we could some how all join together and find a way to help make things better for millions of people! We all deserve WAY better than this and it is shameful we are facing this fear now! I have always heard that there is strength in numbers, so all I can do is hope for better times!

Thank you for visiting my site today and reading this rant! My frustrations are sky-high and the only thing I know to do is write about them! This helps me calm my nerves and ease my stress some! I hope y’all have a pleasant and relaxing evening. I always encourage your comments and I will respond as quickly as I can! Please know that even though I am a little high-strung right now about all this, I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

The rant about healthcare & insurance!

charlie-ergen-quote-to-use-a-poker-analogy-if-the-deck-is-a-bitHave y’all ever felt like the cards were stacked up against you? Living with a chronic illness already gives the house a much better hand, but I will always refuse to fold! We have all learned various ways to cope with what we live with and to keep up a good fight despite any additional struggles we are forced to face. I learned many years ago that the storms of life will only gain more strength, but weathering these storms can and will be done.

I do think the unexpected issues that arise can be the most problematic and perplexing ones. Losing my job for absolutely no reasonable or seasonable reason really did send my mind into a downward spiral. I have tried my best to stay positive dda6dd8c8211c5c345ce66f0f5558197--quotes-about-worrying-quotes-about-stressthrough the time I was without a job, but the continued nagging fear of being without insurance while living with a chronic illness is beyond terrifying. It almost feels like being on a roller coaster without a safety belt on and this feeling gets the best of me more than I like to admit. I know I have complained before, which isn’t helpful at all, about how crummy and expensive insurance is, but being without it with Multiple Sclerosis or any chronic illness is very unpleasant. Medications and doctor’s visit are expensive with insurance and I hate that I know how much these things are without insurance. Thankfully I have only been forced to go to one doctor’s visit without insurance which was very expensive and I found that GoodRx.com does help reduce the price of medications! Even though I have found ways around the doctor’s visits, I am still always in a constant fear of what will happen if I have a relapse or if these corrupt idiots corruption-power-quotes-01.jpgrunning this country mess with pre-existing conditions because this could happen. I do know that thinking about these things is nothing but stressful and will only create additional health issues, but it is impossible for me to let go of these thoughts and feelings.

Y’all already know that I have been battling with a crazy stomach issue for over a month and I am avoiding seeking medical attention until I have insurance again. I mean who stomach issuescan really afford these various appointments and all the tests doctors think they need to run on their patients? I am not, never have been and never will be in the tax bracket that can afford this. What kind of person can look at someone with an illness of any kind and only see dollar signs? To me, that is not a good or compassionate person, but they are the ones on top. It is really unfortunate that some can be as evil and corrupt as they possibly can be, but not ever face the consequences for their bad behaviors.

gilenyaThe Gilenya I take daily to keep my Multiple Sclerosis under some kind of control costs $8,500 per month without insurance. This is completely absurd and absolutely ludicrous! Unfortunately, GoodRx isn’t able to assist with this medication. I don’t know about you, but I sure as hell can’t afford these high costs. I have been going through an amazing program called Gilenya Go Program since being on this medication and my cost has always been $0. I don’t even want to think about what I would have gilenya-go-programdone if this program didn’t exist. Considering I do not have insurance at the moment and only have about one month left on hand of this medication, I did panic. I have spoken with an amazing representative for the Gilenya Go Program and she told me all I would need to do is call them when I am down to one week left and they will send this medication to me free of charge and can do this for about 2 months. By the time they aren’t able to assist me any longer, I will have insurance again, so thankfully I will not go without. This is just me, but Gilenya has been helping keep me semi free of relapse and further progression.

GLN01260I also take Neurontin, three times a day. This is another medication that is a little expensive, but nowhere near the crazy cost of Gilenya. A one month supply of Neurontin with insurance was only $10, which is very affordable. Now without insurance this will end up costing me close to $300 per month! If I do go through the GoodRx,com website, I might be able to get this medication for around $47 per month which is still high but a lot more feasible than $300!

Now there are a few other medications I do take daily that are rather expensive, but the GoodRx website has been very helpful with these. How is it that the United States of othercountrieshealthcarecs.jpgAmerica is the ONLY developed country that doesn’t offer free healthcare? An even better question is why are the American people so scared of having free healthcare? My guess is, these people are blindly listening to the ones in power that say this will never be a good option and much more negative lies about it. Free healthcare has been great for all the other developed countries with the citizens only saying great things about their free healthcare! In my personal opinion, those that say nothing good about free healthcare need to dig a little deeper and far beyond what American leaders say, until they can think for common sensethemselves with a clear mind and actual logic!

I want to thank you for visiting my site today and reading my rant about how awful healthcare is in the United States. In all honesty I do not like to complain because it doesn’t fix the issue, but I needed to get my thoughts out and really want to know your thoughts on this! I hope you have a lovely and peaceful Sunday. I feel that the weekend went by way too fast and I have to get up early again and back to work tomorrow. I mean seriously, where did the weekend go? Is it really too much to ask to have our weekends be a little longer? I promise to respond to all your comments as quickly as I can and considering it is Sunday, I should be able to do this! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

More talk about MS!

ms march awarenessMultiple Sclerosis is a very complex and frustrating battle to face. Unfortunately, this illness does impact everyone’s life in  so many different ways and to the point it’s almost hard to pinpoint what is what! There have been various names people choose to use when referring to  MS; such as the snowflake disease or invisible illness. I think these terms can also be used in many other chronic illnesses as well because they are fitting. I mean if you think about it, there are no two snowflakes that are exactly the alike,  just like no illnesses experiences the exact same symptoms. Also, there are so many of these illnesses that are completely naked to the eye, so they are pretty much invisible in the bigger picture. 51209211_2039825619447292_5206443739896197656_n

Let me ask my wonderful fellow bloggers, whether you live with MS or know someone else that does, what do you already know about this not so fun illness? Honestly,I think the only thing everyone knows to be 100% true is this illness can vastly differ for each individual! There might be times throughout the years each person with MS will unfortunately have a new symptom emerge and they need to learn to cope with this. While no one wants to deal with anything additional and all symptoms can be daunting, there  really are always ways to carry on with life!

symptomsI know there may be countless responses to this, but what are your top 5 most challenging issues you have been forced to accept during your journey? One thing I find very challenging and the most aggravating is how completely unpredictable this illness is. I have and probably always will be an obsessive planner! It drives me crazy for any unplanned issues to appear without any warning! Over the years, I have learned to expect the unexpected and be willing to rearrange my plans.

Another part of my MS life I find challenging, but am learning to accept is there are th-26-300x111NEVER any real answers for the numerous questions I ask my doctor. I would have never thought my questions were so difficult that my specialist can’t answer them. I mean these doctors go through enough schooling they should have a wealth of knowledge to match this. I am sure the schooling for many years is very expensive and probably more money than I will make in MANY years! Maybe while in school they should have a class in good bedside manner because most neurologist have a terrible personality. I think they have a godlike and ego maniac demeanor. 

flat,550x550,075,f.u4The third challenging aspect of this life that I have almost accepted is, the complete ignorance and total lack of empathy most people have for others. The ugly glances and degrading comments I have seen and heard over my years, especially when I park in a handicap parking space are nothing short of hurtful! Even though I have lived with this for many years, these glances and comments still can bring me to tears. This really doesn’t have anything to do with me, but is all on them! These people probably believe that misery loves company and try to bring me down to their level, which I try to avoid!

It doesn’t matter how long I have struggled with this illness, fatigue still tries to kick my Worst-MS-symptombutt daily! It was always complicated for me when I was working full-time because it never failed at about 1:00 or 2:00 if I am lucky I was exhausted! I have accepted this issue and try my best to conserve my energy so I am not ready for a nap at lunch time!

Lastly and to keep this from being too terribly long, the final challenging thing for me to accept is the constant pain I feel. It often seems like I am going to always to battle with pain and with little to no relief. I do know that dwelling on this pain only causes the pain to worsen instead of lesson and this just  isn’t an option for me! I do try focusing on the positive in my life instead of the negative hoping these thoughts will trick my body into healing! I also believe acceptance is half the battle and laughcan help keep my stress in check which will in-turn lessen the pain.

I would like to thank y’all for stopping by my site today. I told y’all on March 1st that for MS Awareness month I wanted to shed more light on this illness because knowledge is power! I am looking forward to reading your comments and do hope this was helpful for you!

I hope you have had a good week and of course hope you are feeling well. The weekend is finally here and  I hope you enjoy every moment of it! Please never forget that I am always sending y’all LOTS of love ❤, comfort and  many positive vibes!

My signature heart

❤Always, Alyssa❤

Hello March!

MarchGood morning y’all! We are now welcoming March with hopes for not only new opportunities,  but many happier days ahead of us. I am sure most of us are wondering when the weather worldwide will improve, considering it has been pretty all over the place. The numerous changes with weather has effected the safety and well-being of so many people. There has been treacherous rainfall in many areas and then horrible heat waves in other areas of the world. It almost seems like Mother Nature is very upset about something and is doing her best to get our attention.

Y’all might already know this, but March is Multiple Sclerosis Awareness Month. Of course for many people myself included, this illness is much more than just one monthflat,550x550,075,f.u4 of awareness because it is our daily battle. I believe this is a struggle that tests our strengths and forces us to not give up on ourselves but continue to fight a good fight!

There is no denying the fact that being diagnosed with this very unpredictable illness is emotional and terrifying. Even though this illness has been acknowledged since it was discovered in the 1800’s in England, there is still SO much left unknown which is pretty frustrating! Much research has been done and yet there still isn’t a cure or even a known cause for this illness. With the amount of “so-called” intelligent doctors and scientists working on finding cures, it leaves me at a loss for words for why there still hasn’t been one found yet. I often question what they are really doing with the all money that has been raised and donated to places like the MS Foundation or these walks for a cure.

ms march awarenessWhen I started blogging way back in July of 2017, my goals were to raise awareness of Multiple Sclerosis but also spread as much positivity as I possibly could. During this time I have been fortunate enough to meet others around the world that understand what I live with and the challenges I face. I have been able to gain SO much additional knowledge to what I already knew about Multiple Sclerosis and this has all been very beneficial. I think it often takes strength in numbers to deal with any type of chronic illness and the blogging community definitely offers this and SO much more! I do appreciate all my ❤ blogging friends ❤ more than words could ever begin to say. 

Many of you already know a lot about Multiple Sclerosis, but during this month I want to continue to raise awareness of this illness that tried and failed to control my life. My wp-1456957606031plans are to share more of my personal experiences and lessons I have learned while living with this illness. I must say the most valuable lesson I have learned through my years is, stress is our worst enemy and must be avoided at all costs! I am still teaching myself how to stress less, but I do fail miserably with this too often! I will be sharing with you which symptoms I experience most frequently and how they try to affect my day-to-day life, but how I fight against this as well!

I am going to explore new things that could possibly cause Multiple Sclerosis symptoms to worsen and other things that can potentially help these symptoms stay inactive, which we all really want to happen! There are actually foods that can increase inflammation, which is terrible for those of us with Multiple Sclerosis.

a02951d061ebca2ba4855c39ee90d206--like-a-girl-autoimmune-diseaseI want to thank you from the bottom of my heart for stopping by my site today. I always appreciate the support you offer me every day. I do hope March will be a great month for you and you are feeling the best you can. I do look forward to reading what your thoughts are about this post and anything you know about MS, I will respond just as quickly as I can. Never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

 

❤Always, Alyssa❤

What are the struggles & benefits of living with a chronic illness?

Struggles and benefitsThe struggles of living with any chronic illness are numerous and endless. So many chronic illnesses come with various issues that might be difficult to treat, which can and does lead to SO much frustration. Through many visits to several different doctors, we are caught up in SO much medical debt, because the United States does not offer free healthcare like ALL other developed countries offer! For instance, I am required to see my MS Specialist to try slowing the progression of my illness down, but have to see another specialist to treat the pain issues! It does not make any sense to me because the pain is a direct result of the MS, so why it is my MS specialist can not treat the pain as well? Oh that’s right, because there is an opioid epidemic so anything related to pain needs to be monitored by a painchronic-pain-chain-diagram specialist who only sees me for 3-5 minutes every 2 months! Do you really think the pain doctor actually specialized in pain or they just could not hack it with being a real doctor? That might sound a little cruel as I am sure this “pain specialist” passed medical school, but seriously there are no medical schools out there that really specialize in pain!

Another struggle those of us that are living with a chronic illness faces is dealing with the dreaded insurance companies! We all know these insurance companies only see $$ dollar signs when they see our information come through! They know our medications cost a small fortune, so therefore we pad their paychecks with the many medications we are required to take. I know that my Gilenya alone without assistance would cost around $1500 a month and that is with insurance! Who can afford that on the wages we make? That’s right NO ONE can and quotes-to-inspire-people-with-chronic-illness-RM-alt-722x406therefore our conditions would worsen drastically over time! Do the insurance companies care? NOT AT ALL! I do believe that the insurance companies and government work together so they can be very well off in life without any regard for human life! Now with the talk among the government, some of us many worry that we will lose our expensive insurance in the near future. I do sincerely hope that I am wrong about this though, but that is honestly what I think is on the agenda!

Some of us may worry about the struggles of working a full-time job, as many of us probably can not afford to work part-time hours! Even if we are able to work a schedule with reduced hours this can not only be a financial burden, but also causes nonsenseYou-Dont-Look-Sick-722x406 judgments from co-workers! The comments that are made can be extremely frustrating and offensive, but we are doing all we can in life! I know that all of us would prefer to be able to tolerate full-time work, but when we are not able to we are doing the best we can and should not be looked down on! As you can probably tell I have heard the comments made about working ONLY 6 hour days, but I am pushing myself to do this!

Another struggle some of us may face is fun times with parking! Some of us may have handicap parking, which should be making our lives easier! However, some may look perfectly normal to the naked eye. We may suffer from something know as an “Invisible Illness”, which of course we feel but NO ONE sees our struggles! They may make butterflies-cant-see-their-wingsignorant comments about someone who looks completely normal parking in a handicap parking space. Rude comments have been made towards me and it did hurt my feeling terribly! But it has now been a few years since I was given the handicap parking, so I have had many experiences that I want to forget ever happened. Now days I do not allow negative comments to get to me as much and just feel sorry for the people making the ignorant comments and even worse for their children to grow up in that horrible environment because they may end up just as ignorant!

Fatigue and migraines are somethings I know many of us deal with almost daily! Both of these can be relatively difficult, but we handle them the best we can! Now I do not get migraines daily, but I get them enough to understand how hard they are to cope with.Background concept wordcloud illustration of fatigue Fatigue on the other hand I struggle with daily! I normally begin feeling much fatigue around 1:00 every day which is why I get into work earlier. For some reason, I feel much better earlier in the day and worse as the day progresses. It does not matter what time I wake up, always around 1:00 I feel like I need a nap!

OH WOW I almost forgot, I did say there were benefits to living with a chronic illness! The benefits are often very difficult to find, but they are there somewhere deep down. When living with an illness has NO cure it can make us more sympathetic, empathetic, and compassionate to what others might be dealing with at any moment in life. It may falling down is how we groweven give us the opportunity to meet others that understand our struggles and also offer support to others living with something similar! It may take work, but we are able to build strong networks with many others that can be very beneficial to all that is involved. Through the blogging community, I have been able to build powerful and valuable connections with SO many very incredible people who I have come to care so much for! I am truly thankful for all of my blogging friends and feel we might not have met if it were not for the chronic illness!

I sincerely appreciate you visiting my site today and always encourage your comments as they are fantastic! I hope y’all have a lovely day and you are feeling the best you can! Please remember that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Yesterday was World MS Day

world ms daySo World MS day was yesterday on May 30th and I did not make any posts about this. I did not ignore World MS Day because I do support the research, but MS is something that plagues my life everyday and it takes so much out of me. My energy level has been pretty low lately and I have been dealing with a lot of fatigue and PAIN! I only want to share information when I can put my heart❤ and soul into writing, but unfortunately yesterday just was not the day! I am trying my best to make up for this today💞!

Y’all know that I have battled MS for almost 18 years without ever giving into the illness. I made myself a promise when I was diagnosed that I would never allow this to control my life and that someday I would win the fight! I am a strong believer that positive thoughts brings positive things into our lives, but you also know sometimes that is easier said than done! MS adds so many different issues to everyone’s life and none of these funworld ms day 1 difficulties are the same for anyone! We all experience this illness in similar, but also different ways. I guess maybe that is the reason it has been so difficult for the doctor’s to figure out a cure, but someday I must believe it will happen for us! 

My journey with MS started when I had lost vision in my left eye, but thankfully the vision came back after a few days of steroids. Y’all already know that steroids are never any fun, but I have definitely had my fair share of this not so pleasant and I guess helpful drug. Over my years with MS, I have experienced so much pain at times and numbness at others, it has been absolutely miserable! But I still refuse to give in and keep fighting a good fight! 

I hope y’all have had a good Friday Eve and hope you are looking forward to a nice relaxing weekend! I really hope y’all are feeling well and of course staying as positive as you possibly can! We all must stay strong to fight through this illness until the wonderful day of a cure. Please never lose hope for this because I do believe it is going to happen for us! Your comments are really appreciated and I love❤ to read them. I do my very best to respond as quickly as I can! I will continue to always send you LOTS of love and comfort! 

My signature heart

❤Always, Alyssa❤