Appointment Update and other thoughts

I was unusually nervous about my appointment today with the Neurologist. I always worry they are going to give me the bad news and that the MS is progressing. It is always something that weighs on my mind and remains in the back of my mind. I know it is irrational, but it is a concern that I live with. Thankfully, the appointment went well, and the PA does not think the MS is progressing. She understands that the issues I am experiencing are worse than they have been, but it is something we will be working on. There is another medication she would like for me to try to help the neuropathy pain, but I am not sure I am completely comfortable with it. She also mentioned a therapy that might help with the increased dizziness I have been dealing with as well.

The medication the PA would like for me to try for Neuropathy issues is Lyrica. If anyone reading this has tried this medication, please let me know how it worked for you and if it is worth trying or if I should not bother. I am a little nervous to try different medications and other neurologists have recommended this before, but I refused. Yes, I know I am stubborn and sometimes we must take chances.  I would love to read your opinions on this!

I know the reason I did not sleep well last night is that my nerves were out of control. Crazy how being nervous about a simple appointment can keep you up at night or just not allow for a decent night’s sleep. Of course, I did wake up before the alarm went off, but I did wake up to good news! I do not live in the state of Georgia, but I was focused on the senate run-off election in the state. I was not and never will be a supporter of Herschel Walker because every word that came out of his mouth was a lie. Please excuse me for my next comment, but I did not think someone could lie more than the former President, but Herschel Walker proved me wrong on that!

I am not foolish enough to think any politician is honest, but to hear Herschel Walker speak his lies was offensive and a complete disgrace to the American people. I know how controversial abortion is and everyone has an opinion, but if you have already paid for several, you are obviously not against it. It is hard for me to support any politician because I think honesty is important, but it seems to be a lost personality trait in way too many people. Sometimes it might be hard to be truthful about things and it takes a strong person to overcome this, but it is critical to be truthful!

Is it just me or does it seem like people have lost the ability to be understanding and kind to others? This is something that bothers me tremendously because I feel that people should always be kind to one another. It does not matter if we agree with each other because we are never going to always agree with everything another person does. We are “supposed” to be living in a free country, which to me means we are entitled to our opinions. I know that I am firm in my beliefs and will not allow anyone to change my mind, but I also do not try to change how someone else feels.

Thank you for visiting my site today. I hope you have enjoyed what I have shared, and I do look forward to reading your comments. I will also appreciate any thoughts you may have about Lyrica. I hope you are having a good day and your afternoon is amazing! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Inspirational Wednesday

We have successfully made it through the first part of this week, so we just have the other half left until the weekend returns. How has your week been so far? The way I view things is, if we survived the first part of the week, the second half should be a breeze😊! My week has not been too terrible, and work has been a little slow. The good thing about my job must be the great people I work with. Of course, I have never met any of them in person, but I have made some good friends by getting to know them through email and chats. Most of the people that I work with, I would have loved to work within an office setting!

This morning I must go to my dreaded appointment with my neurologist. I know the Nurse Practitioner means well and so does the doctor, but they never offer good news and I tend to leave the office feeling discouraged. I think it must be because I am overly sensitive when it comes to Multiple Sclerosis issues☹. You would think after dealing with this for over 20 years I would be more accustomed to the random issues, and nothing would bother me, but it still does rub me the wrong way every time. I have tough skin for most things, but still have very thin skin when it comes to this. I feel like I need to go into these appointments with low expectations and expect the worst so that I am not disappointed and upset the rest of the day.

Considering we do have a few days left this week, I think we all need to find ways to remain happy and feel the inspiration to keep going. I hope you will find the quote I am sharing with y’all today as inspiring as I did when I saw it. We all deal with many challenges in life, but it is so important to find ways to be happy, no matter what! I am holding this quote close to my mind today as I am not looking forward to my appointment this morning. I do not like dealing with Multiple Sclerosis or doctor’s appointments, but there is a part of it that has given me the strength I never knew I had!

Thank you for visiting my site today. I hope you enjoyed the quote I shared, and it provided you with inspiring thoughts for the day! I look forward to reading your comments and I will respond as quickly as I can. Hopefully, I will do a post tonight about how the appointment went and hopefully the Nurse Practitioner will not have awful and discouraging news for me. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Motivational Monday

Welcome back to the beginning of a new week! The weekends are always way too short, but each week brings us new and amazing opportunities. How was your weekend? My weekend was uneventful and peaceful, which was nice. I did even get to sleep in a little on Saturday and the rest of the weekend I just took things slow. Sunday is always my day to get things done and I prefer to relax and rest on Saturday. I also spent a lot of time with our three cats, and there was rarely a time I did not have at least one of them on my lap.

As we have to say our goodbyes to the weekend and start a new week, which might feel long, we all need to find a way to stay motivated. I decided to share this quote with y’all today because I think we can all agree that life is complicated. With that being said, we need to find ways to learn how to be happy despite the challenges we face because there will always be something we must endure. Why not accept and welcome the challenges, instead of trying to ignore them? Sometimes facing issues head-on will make the complications easier in the long run!

Do you have anything going on this week that you are looking forward to or dreading? I have a follow-up appointment on Wednesday with my Neurologist. I know they have their policies, but I think this appointment is senseless and I do not understand why it cannot be done via Zoom. Honestly, this is probably my fault because I reached out to them after my appointment with the pain management doctor due to something I have been experiencing for weeks now. I do not think they need to see me in person to understand what is going on because I explained exactly how I will when I am face-to-face with them. Needless to say, I am not looking forward to this appointment and I am going to flat-out refuse having another MRI!

Thank you for visiting my site today. I hope you found the quote that I shared motivating and each day gets better until the weekend returns. I look forward to reading your comments and I will respond as quickly as possible. No matter what challenges each day throws your way, never forget that you are strong enough to master anything. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Emotional Strength

Strengths we have that can benefit our lives moving forward have nothing to do with our physical strength. It does not matter how much you can lift or carry because the important type of strength is emotional strength. Strong, stable, and healthy emotional strength works as our compass for discovering personal and career success. Just like any other skill, to be able to enjoy all the benefits of emotional strength we must concentrate on the development of this powerful and incredibly beneficial skill.

Those who were emotionally strong can distinguish the difference between what they can and cannot control, and do not waste precious time on what is beyond their control. Emotionally strong people do not give up if they fail, but stand back up, brush themselves off, and try again. Emotionally strong people do not feel resentment when someone else succeeds but will rejoice in others’ success and view it as encouragement.

Emotions are powerful and we all have them. The emotions that we experience at various times can lead us down positive and negative paths. Emotional strength and stability are the main components of our success and happiness in life. Demonstrating the capability to conquer arduous obstacles by viewing them as an opportunity for growth, instead of a nuisance shows emotional strength. Those who have emotional strength have numerous distinct and unique traits that include the following undeniable traits.

Determination:

When you are faced with a problem, you refuse to give up until you find a solution or an answer.

Display Confidence:

Emotionally strong and stable people radiate self-confidence anywhere they go and light up every room. They do not need attention from others. After all, they do not need to know what they are worth because they already know.

Optimistic:

No matter what challenges you face in life, you remain cheerful and see there is hope for your future. You always hold onto faith and see promising and encouraging events moving forward in life.

Self-Awareness:

We will face many things in life that we cannot control, but the people we allow in our life we can control. Those that are emotionally strong have a deep understanding of this and surround themselves with others that are a positive influence and reflect who they are. It is not easy, but it is necessary to remove those from our lives that are holding us back from living a positive life.

Focus On Strengths:

People who are emotionally strong focus on what they are doing right and do not get caught up with what they are lacking. They understand what their strengths are. This does not mean they do not try to improve, but it does mean they can comprehend focusing completely on what they lack will only create self-doubt.

Thank you for visiting my site today. I hope you are enjoying your weekend and you enjoyed what I have shared in this post. I know there are many more traits of emotionally strong people, but I did not want to have you read a super long post. I do look forward to reading your comments and I will respond as quickly as possible. Unfortunately, this is the last day of our weekend, but we do have today remaining to enjoy before we begin another week. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Let It Go Friday

Finally, happy Friday y’all! I hope you have had a good week, but are looking forward to the weekend! I am definitely looking forward to a weekend I do not have any plans or anything I must do besides laundry! This might sound insane, but I enjoy doing laundry, but absolutely despise cleaning a bathroom or to be more specific despise cleaning a tub! I think the worst part of cleaning a tub is the fact there is too much space to cover and the smells from the cleaners make me nauseous and slightly dizzy! I know it seems like it would make sense to leave the bathroom door open while cleaning the tub, but I am unable to do this because of our cats and one of them has asthma.

As today is the last day of the week and the weekend will begin soon, so now is the day to let go of anything that caused frustration or stress during the week, so we can enjoy the weekend! I think it is important to learn to walk away from negative things in our lives, which might be people, jobs, and anything else that causes negative emotions because life is far too short to deal with anything that brings us down. It is crucial for everyone to know what they are worth and to never allow anyone or anything to diminish our self-worth!

Thank you for visiting my site today. I hope you have had a good week and you have a wonderful, and safe weekend! Whatever you do this weekend, I hope it brings you a lot of joy. I am hoping after resting this weekend that the pain I have been struggling with for a while now will get better, but I am logical and know it has been part of my life for years and does not seem to be letting up. I am looking forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

The Golden Rule

I find all the violence and hate we witness daily extremely sad and disturbing. When is the last time you could watch the news or read an article about world news and not see or read about another act of violence? I try to avoid the news because it is very depressing, but I will click on news apps and constantly read about tragic violent acts that have occurred. I think I need to refrain from doing this from now on or at least until people can learn to be kind to one another.

Something I have always held close to my heart and mind is the meaning of the Golden Rule. The real and easy-to-understand meaning of the Golden Rule is it is the principle of treating others the way you want to be treated. This seems like it should be common and easy practice to follow. We all want to be treated with respect and kindness, right? So, with that said why would it be difficult to treat those we come in contact with in the same way?

The level of resentment continues to rise, while the level of contentment decreases rapidly. This is a massive issue in the United States. People are resorting to extreme measures and or name-calling. Of course, a lot of this tension stems from political and social differences. This trend is upsetting and counterproductive and only creates more anger and animosity.

It is completely understandable to have differences of opinion, but it is crucial to handle these peacefully and respectfully. We can voice our opinions without name-calling or violence and get much more accomplished. When things get too out of hand and there is no progress being made, sometimes it is just better to walk away and agree to disagree. I would much rather walk away from a discussion where neither people cannot agree, and neither will budge because it will only escalate and cause things to be much more intense than is necessary.

Those who have differences of opinion can both be correct in a sense. We do not all always have to agree on everything, but we also cannot change another person’s mind because we can all believe in what we believe in and need to remain respectful of the way another person chooses to believe and live their life. Regardless of who is trying to make changes or thinks their views are the right ones, we are still living in a free country.

Thank you for visiting my site today. I am sure everyone reading this post already knows what the Golden Rule is and follows this daily, but unfortunately, not everyone seems to be staying in line with this rule. It breaks my heart to see so much violence in the country I was born and raised in, and I do not understand the massive levels of hate there is. I have always believed that we were all created equally, and we all have a beating heart, so we should all be treated with kindness and respect. I hope you enjoyed what I have shared as this was just a condensed explanation of the Golden Rule! I do look forward to reading your comments and I will respond as quickly as possible. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Pick-Me-Up Thursday

Happy Friday Eve y’all! I hope you are having a good week. I was unable to do a post the past few days because I was battling with a nagging headache that refused to go away. It started to worry me a little because I read about a new variant of COVID which is causing headaches and body aches. I typically do not worry much with headaches or body pains because I deal with them SO often, but after seeing there is a new COVID variant that is bypassing the vaccine, I worried a little. Thankfully, after three days of pure misery, I am finally starting to feel a little better.

This week has been painful because of the nagging headache I was dealing with, but this week is nearly over now. Of course, we do have a couple of days left before the weekend returns and I think we could all use a little pick-me-up to help us push through the last few days of this week, or at least I know I could! I hope you will find the quote I am sharing with you meaningful and that it resonates deeply with you. I enjoyed this and wanted to share it hoping it will brighten your week. I think it is extremely important to be kind, respectful, and considerate of others because we never know what they are going through in life.

Now that the weekend is so close, do you have any plans you are looking forward to? The only thing I am looking forward to is the chance to possibly sleep a little later than 7:00 AM. It does not matter what day it is, I always wake up at the same early time and never take naps. I am also looking forward to staying at home and having a quiet weekend. Considering my week has been challenging, I really need a couple of days with nothing but calmness and peace!

Thank you for visiting my site today. I hope you enjoyed what I have shared and I look forward to reading your comments. I will respond to all comments as quickly as I can, so please bear with me! I hope the last part of your week goes even better than the first part and you have an amazing day. Stay tuned as I have two other posts that are nearly complete, I am just putting some finishing touches on them. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Sunday Thoughts

Hello Sunday! How do you prefer to spend your Sunday, knowing that this is the last day before the work week begins again? Many people think that Sunday is a day for rest, but I prefer to rest on Saturday and get things done on Sunday because it prepares my mind for the work week ahead. Of course, my mind appears to be on a set schedule that never changes because I get up at the same time everyday, even though I want to sleep in more than I could ever explain. Since the time change, my internal clock seems broken because I still wake up an hour early, which is so frustrating!

Life is filled with various challenges that sometimes we may not feel prepared for, but we find a way to manage and carry on! None of us asked for what we encounter in life and often we may wish we did not have to deal with the struggles we face. I think it is important to remember that we are all stronger than we know and we must learn how to believe in ourselves much more than we do. The reason I am sharing the quote I am today is because I think it is extremely powerful and a nice reminder!

How was your weekend? Did you go out in the insanity of “Black Friday”? Thankfully, I worked and did not have to fight through the massive amounts of people searching for a deal that was not worth the craziness. It always baffles me how many people think it is necessary to become aggressive and rude just to obtain something they think is a requirement in life and they think the “deals” were worth it. I am just not into all the consumerism that happens because I think there are many more important things in life. I think of all the people in the world that are suffering and in need, which breaks my heart. I wish everyone around the world could live a comfortable and safe life, which would include a roof over their head, food on the table, and warmth when the temperatures get cold.

Thank you for visiting my site today. I hope you enjoyed the quotes that I have shared and they resonate with you. As today is the final day of the weekend, I hope you have been able to enjoy it and do the little things that bring you the most joy before the demanding week begins. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

MS Hug Struggles

As everyone reading this now and who has read some of my previous posts knows, I have had Multiple Sclerosis for over 20 years. This has been something I have lived with for almost half of my life, and I still find it extremely frustrating. Even after all these years, there are still things I do not understand or know about this disease. The one obvious thing is how unpredictable it can be. I do find it amazing how much we can adapt to and tolerate life when we have no other choice but to keep moving forward.

There are many things about Multiple Sclerosis and days living with this disease that can feel like things will never improve, which can make you feel hopeless. Even though I have days when I feel like this, I also believe that we are not forced to deal with anything we cannot handle! Of course, it takes a strength we never knew we had, but it is possible to keep moving forward.

I wish I knew the name of the person who thought they were being clever and humorous by naming something the “MS Hug” because this is the worst kind of hug I have ever heard of. It completely ignored the advice from the experts about social distancing and never considered getting approval before hugging someone. I have always thought that MS Hug was very disrespectful and invasive.

Even though I still do not know who came up with the name, I do know that MS Hug is very uncomfortable, but it is not life-threatening even though it feels like it is at times. The MS Hug is an uncomfortable, sometimes painful tightness or pressure around the abdomen or chest. This can last for seconds or minutes, which is the best-case scenario but can also last hours or longer.

There are two effects of Multiple Sclerosis that can trigger the MS hug to happen. One is muscle spasms in the small muscles between the ribs, known as the intercostal muscles. The second is changes in sensations known as dysesthesia, which while they can be, are not always painful.

Just like everything else regarding Multiple Sclerosis, everyone experiences the MS Hug differently. The ways that help one person may not help another in the same way. Various things can help or even eliminate the MS Hug sensation including the following:

Discover your triggers:

This could include fatigue, temperature changes, eating a large meal, feeling unwell, or being stressed. It may not always be easy to discover what triggers the MS hug, but once you do it may be a good plan to avoid or at least reduce the issues you know are your triggers. Keeping a journal with what the temperature was each day, stress level, feelings of fatigued, and what you eat each day may help to determine what your triggers are.

Loose vs Tight Clothing:

For many people tight clothing triggers, them to experience the MS hug and even makes the sensation worse. This may mean not wearing an underwired bra or removing it as soon as your situation allows. It will just seem logical to wear loose clothing if you know tight clothing causes problems. As with everything else, tight clothing helps some people to deal with the MS hug. For reasons not always understood, the grip of tighter clothing can distract the brain, making the MS hug sensation less noticeable.

Moving and or Stretching:

For some people staying mobile and stretching relieves the pain from the MS hug, but for some people laying down is the only thing that offers them any relief. This is all a matter of personal choice and what helps you the most!

The use of hot or cold compress:

Again, different things work better for each person, so you just need to play around with heat and cold compresses until you know what works best for you. Hot water bottles, warm towels, or a heating pad when applied to the affected area may offer relief. If this does not work, you can try a cold compress or an ice pack to the affected area. Please understand and be careful of both hot and cold as it is easy to cause further damage to the skin.

Physiotherapy or other physical treatments:

his can include TENS which is transcutaneous electrical nerve stimulation. I honestly do not know a lot about this because something about electrical nerve stimulation scares me, but I have heard it can be helpful!

Relaxation, Mindfulness, and CBT:

Relaxation and mindfulness exercises can be helpful for anyone, not just those dealing with MS and the MS hug. Things like self-hypnosis and hypnotherapy have been successful for many people around the world. Controlled breathing techniques can be found with a quick Google search and are inexpensive. 

Multiple Sclerosis has come along way with treatment since I was diagnosed, but for some reason there still is not a cure. I wish there was a magical medication that could make all the pain and issues I deal with daily go away, but until there is I will just continue to fight and not allow this unpredictable, frustrating, and ugly disease steal the light and fire I have inside me. As I am sure you can assume, I am dealing with the MS hug right now and it has been a struggle. I am SO thankful that I work from home because with the way I was feeling today, there is no way I could have driven to an office and dealt with being this uncomfortable for 8 very long hours.

Anyone that is reading this and has Multiple Sclerosis, have you dealt with this issue before and if so what helps you? The funny thing is, normally heat is my enemy, but for this issue and other types of pain, my heating pad is my best friend. The only way I can be comfortable is wearing loose clothing because I find that to be the most comfortable. The weather has been changing each week, so I can only assume that might be the reason the evil hug is back!

Thank you for visiting my site today. I hope the information that I have shared was useful and interesting to you. I am looking forward to reading your comments because I am sure what you have to say will be helpful. I hope you had a good week and you have an amazing weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Almost Thanksgiving

Twas the day before Thanksgiving and many are excited to visit with family with COVID numbers decreasing. This time last year many were isolated due to fears of COVID, which caused most to feel sad about not being able to spend a holiday with their families. Unfortunately, last year we were seeing high numbers of COVID, and no one wanted to get sick or cause their loved ones to get sick. Yes, this year the numbers have decreased, and many have been vaccinated so all we can do now is hope for the best😊! I know that I am not the only one that is tired of hearing about COVID, as we dealt with it for far too many years!

Thanksgiving is a time to remember the things that we are thankful for. Of course, we should show how thankful we are daily, but with tomorrow being Thanksgiving this post is going to be about being thankful! What are a few things you are thankful for? Unfortunately, many of us have lost loved ones and we wish they were with us to celebrate, but we can still honor those we have lost by cherishing their memory. Our lost loved ones would want us all to keep living our lives and be happy while still remembering them😊!

Years ago, my husband and I would try to spend Thanksgiving with my mother. It was a nice time to get together and catch up. This year, my mother is living in another state, and it will be a little different. I am beyond thankful that my mother has found love and happiness and is living her best life. We were talking about having her and her husband come to visit us around Christmas, but I am logical about money and thought it would be a less expensive flight to wait until after Christmas for them to come!

I am very thankful that my husband and I are safe and healthy (besides my having Multiple Sclerosis). We have a wonderful life with our three amazing cats that bring us so much joy. We do terribly miss our cat Chloe whom we had for almost 16 years, but the two little cats we adopted are wonderful and all three cats get along so well. We both find it incredible to watch the three cats interact with one another, the bond they have formed, and the unconditional love they have for each other and us.

Another thing that I am thankful for is my husband’s side of the family. They have all been so welcoming since the day he and I met, and they continue to be the best in-laws any girl could ask for. Family can be unusual and unique, but love is consistent and unconditional.

In a very strange way, I am thankful for my job and my work family. I have not met any of my co-workers in person but have built strong relationships with several of them. The few that I have made a strong connection with are my supervisor and a few of my other co-workers that share the same title as I do. One of the girls loves her cats as much as I love mine, and sadly lost two of hers back-to-back a few months ago. We spend more time at work than we do not at work, so it is nice to be able to work with good people!

Too many people in this world forget how to be thankful for what they have in their lives and then take things for granted. I think that is sad because there are so many people, especially in the United States that do not have a roof over their heads, food on the table, or love in their hearts and are unable to have compassion or understanding for anyone else. We all share the world we are living in and it does not matter the color of someone’s skin, who they love, where they are from or anything else, this world is for us to live and grow in!

Thank you for visiting my site today. I hope you enjoyed this post and I look forward to reading your comments and what you are thankful for. I was going to make beef stew for dinner tomorrow, but we are now going to order a turkey dinner to have for Thanksgiving. My husband was looking forward to turkey, so this saves me from cooking! I am still hopeful that everyone around the world can remember what love means and start being kind to everyone! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa