Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
We are finally able to enjoy the weekend😊! My goodness was it a long week for me! Unfortunately, today is day # 6 of a headache that I do not think is ever going to go away. I am not sure why this headache has been here so long, but I do know I am ready for a break from it. Honestly, headaches are very common for me but, they do not normally stay around for this long. The issue making it slightly abnormal is, that it is creepy down into my neck and shoulder. I have no intentions of letting my MS specialist know about this because I feel she is on a need-to-know basis, and she does not need to know this!
Another issue that started yesterday is my big toe on both feet is completely numb. The numbness is trying to move up into the rest of my foot. I am sure it will stop and not get any worse. Of course, I am not a medical professional, but I do have a few years of knowledge of living with Multiple Sclerosis and I am assuming the issues I am dealing with have a lot to do with heat and stress. At least I have the weekend to rest and recuperate before another week begins😊!
Thank you for visiting my site today. I hope you have a great, relaxing, and safe weekend. We all know how short the weekends are, so I hope you make the most of it. This is going to be a short post because of my non-stop headache, but hopefully, it will improve soon, and I can do another tomorrow. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I have always known that weather conditions, extreme temperatures, and stress can create issues with how Multiple Sclerosis behaves. If I am being honest, Multiple Sclerosis tends to misbehave frequently and have crazy toddler-like temper tantrums. I am not sure which issue causes more issues but do know that combination causes massive and miserable pain. I do not enjoy complaining about the pain and know that tears do not fix a thing, but yesterday my pain was at a high that makes me wonder how I managed to make it through my workday.
Of course, it has been rainy a lot lately with some wild storms. The power did go out while I was working yesterday, but only for about fifteen minutes. There was a part of me that hoped it did not come back on so fast because of how awful I was feeling. My poor cats hate when it storms because they seem to think the thunder is going to kill them and they all hide under the bed. I swear I often think where I am living is trying to be like Seattle where it rains most days☹.
What can you do when you are in so much pain and nothing helps? Right, there is nothing that you can do. I have heard so many times that stress is the silent killer, and I could not agree more with this. Stress can cause additional pain, headaches, loss of appetite, sleep disturbances, and invade your mind. Unfortunately, I have always worried about those I care about and worry about what they may be going through in life. The world is such a mess right now. We already went through years of COVID fears and now we need to worry about Monkeypox. I mean, when is it ever going to end? Right, no one knows, so all we can do is follow the experts’ advice.
We have finally made it to the end of this week and my goodness has it been a long week! The weekend is going to begin soon, and we need to let go of all the never emotions the week has caused. The weekends are so short, so we do not need to carry the negativity from the long week into the weekend! Friday is the perfect day to just let go and I hope the quote I am sharing with you today will help you do so. I hope your week went well and you did not have to endure any unnecessary stress and hardships.
Thank you for visiting my site today. I hope the quote I shared helps you to learn to let go of negativity and enjoy your weekend. I know I have asked y’all before to stay safe and do what is necessary with vaccines, but it is looking like Monkeypox can be extremely dangerous. I am looking forward to reading your comments and I promise to respond as quickly as I can. I will be playing catch up this weekend with comments as I do not have anything else planned. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Just like that July is over and August is here. It always surprises me how fast time flies by. Tomorrow we will begin the 8th month of 2022. I guess the positive side is, that summer will end soon, and cooler days are near. Of course, August and September can still be hot in the south, but I am looking forward to days when the temperatures are not in the low 90’s at 10:00 at night. This heat has been awful this year and I do not expect next year to be any different☹. I am hopeful that next year we will have central air in our house, so we will not feel like we are living in a sauna even with window units.
Tomorrow, I have my follow-up doctor’s appointment with my pain doctor. You know the one that forced me to reschedule because I was a few minutes late and two minutes away after driving for an hour and a half a couple of weeks ago! It probably is not a good thing that I am still feeling a little sour about this and I already know they will have me wait for no less than 20 minutes tomorrow. Why is it okay for them to always run late, but when I do one time I have to reschedule, leave work early again, and drive that long drive for a second time within two weeks, especially when gas prices are out of control? This hardly seems fair to me, and it is going to be extremely hard to not let them know how I feel about this!
I think I have mentioned this to you before, but the Gilenya I take for the MS is a blessing and a curse. It is a blessing because it seems to be keeping the MS at bay and not letting it progress, which I appreciate. It is a curse because one of the main side effects is sinus issues and I have had an evil sinus headache for three days now. If you remember I did post several years ago about stopping the Gilenya and trying something different because I was sick of the sinus headaches. Honestly, there was no way to know that this medication was helping as much as it is. I knew years ago I would have to decide to either deal with the sinus headaches or risk my health, which logically seems like a no-brainer. I hate the constant headaches but would regret changing medications and end up in a terrible situation. This is a catch-22 situation, but I decided a long time ago that I would just endure the sinus headaches.
Thank you for visiting my site today. I hope your weekend has been full of relaxation and doing what you enjoy. Tomorrow is the start of a new week and a new month, which will hopefully include many amazing new opportunities. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
For the past several days I forced myself through my workday and the things that I had to do. Unfortunately, I was unable to do any posts, work on my essay for the writing competition, or read because I have been battling a headache that seemed to be never-ending. Anytime I thought it was improving, I was proven to be incorrect when the massive pounding in my head returned with a vengeance.
Many of you reading this post today and may have visited my site before are already aware that I have Multiple Sclerosis. Anyone new to my site, thank you for taking the time to visit and I hope you will return. I enjoy writing about various topics and hope you will enjoy what I write about as well.
I have lived with Multiple Sclerosis for over 20 years, so basically more than half of my life. Over all these years, I have had numerous challenges, setbacks, disappointments, frustrations which fueled stress, and enough tears to fill the ocean. The one thing I have not experienced is giving up and letting MS control my life.
One of the main reasons why I refuse to give up is I made a promise to my late grandfather shortly after my diagnosis that I would always continue to try to move forward, and I would never surrender to MS. Although he has been gone for almost 9 years, I will continue to keep the promise I made to him. It might help that I am also extremely stubborn and obviously a born fighter, just not the violent type of fighter😊!
During the 20-plus years of living with MS, I have dealt with vision impairments, numbness, various forms of pain, stress from the harshness of symptoms, fears from potential disease progression, changing and deciding the right medications, relapse, neuropathy, doctor’s appointments, dizziness, and much more. Most of my pain does not prevent me from living my life and I just push through it and try my best to ignore it. After all the years of experiencing head pain, I am still unable to tolerate it. Unfortunately, it does not matter how many headaches I have already had in my life or how often I battle with them in any given week, the headache always wins our war.
There once was a time when I had a headache, I could take Advil and lay down with an ice pack for an hour or so and the headache would be gone. I wish I could explain how much I miss those days! Unfortunately, over the past few years, nothing provides me with any relief. Although I had many reservations, I ended up trying everything my doctors recommended, but they were all a complete waste of time and money because they did not help. I have tried combinations of over-the-counter medications, such as Advil, Excedrin, and Sudafed, which have helped more than anything else.
Over the past several days, not only was I dealing with the headache straight from hell but the invasive tight band feeling also known as the “MS Hug” visited me. The only good thing about COVID was social distancing, but I guess the MS Hug did not get the memo. I am just speculating, but I think I am experiencing the tight band feeling because of stress, the insane heat, or a nasty combination of the two.
This outrageous and uncontrollable heat is my enemy because it always causes me to feel awful. Over the weekend, I had to run out to two different stores and when I finally made it back home, I told my husband I am not leaving the house again during the day until at least November. I am pretty sure if the temperatures get any hotter, it will be the death of me. I do understand that this massive heat is being felt all around the world, and I do not think anyone can say global warming is not real anymore.
How are y’all handling the incredibly dangerous heat? One thing that I believe helps is to stay hydrated. I have four different stainless steel insulated water bottles. I fill the bottles about a quarter of the way with water and put them in the freezer. This makes it so I always have ice-cold water handy! I strongly recommend them, especially during the summer months. These stainless-steel insulated water bottles are very affordable on Amazon and there are any colors you can think of😊!
Another thing I recommend during these HOT summer months is if you must leave the house, start your car, and let the A/C run for a few minutes. It is never a good idea to try driving when you are hot because you could get overheated, which can cause you to feel dizzy and faint. The heat can do some terrible things to our bodies and minds, so it is best to do everything we can to stay as cool as possible.
Thank you for visiting my site today. I hope what I have shared was helpful for you. If you have any other suggestions regarding staying cool with these drastic temperatures, please share. Also, if you have experienced the evil MS hug, is there anything you do that helps? I am looking forward to reading your comments and I will respond as soon as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Full disclosure and I am sorry in advance. I know I am mentioned the following statement multiple times over the years, but it still stands to be true, and I feel is worth repeating. Although life can be complicated and exhausting at times, life is short. No matter what we go through or how overwhelmed we feel, we should never give up and must do what brings us the most joy. We do not need to explain ourselves to anyone because this is our life. Other people may not agree with how we live our life or any of the decisions we make, but no one needs to understand why we made certain decisions. As long as we are not causing harm to anyone else, it should not matter how we are living our lives.
Over the past several years and the first days of knowing what COVID was, and the damning effects it inflicted, many have been stressed and scared. These feelings are normal because COVID has killed so many. I am sure everyone has heard another strain that is more contagious making its way through the world. The new strain BA.5 has caused illness in people that have been vaccinated and boosted, which has been upsetting. However, we all must keep our vaccinations current because, without them, the chances of survival decrease significantly. It does seem as though anytime we think we have seen the last of COVID, something new appears.
I do understand that many people were hesitant about the COVID vaccine when we were first introduced to it, and many refused to get the vaccine because it was so new. We are all entitled to our opinions, but if we look at how many unvaccinated people have died when they got COVID to the number of vaccinated people that had a breakthrough infection and survived, it seems like an easy and logical decision. Scientists have stated that those who get the newest strain of COVID that are vaccinated have experienced less severe symptoms and heal faster than those who are unvaccinated. Recently, a friend of mine got sick with COVID. She has an underlying condition and was double vaccinated and had the booster, she has made a full recovery but might not have if she was not vaccinated. I think the decision to be vaccinated or not is a gamble with our lives and I am not a gambler!
Another issue everyone around the world is experiencing is the unbearable heat! Yesterday I had to go out to do a few things, which I normally do not have to do. The heat was so awful that walking from my front door to the truck caused more dizziness and irritation. Do you wonder why the heat is so out of control? Is there any doubt that global warming is real? The healthiest people in the world cannot tolerate this heat, so for anyone who battles with health issues, it can feel like their life is being sucked out of them. Extreme temperatures have always caused me additional problems with my Multiple Sclerosis, but the extreme heat is making things 100 times more intense. I told my husband yesterday that I am not leaving the house during the day anymore until at least November. I did look ahead at what the weather was going to be like next week and it looks as though more miserable days with heat are coming!
What are some of the most important things in your life? Do you think anyone should have to explain why they love who they love? Does it seem like there is too much hatred filling this world? I am unable to understand hate and I do not think I ever will understand it because, in my opinion, we are all human and deserve to be treated fairly and with compassion. We will never know what someone else is going through in life unless we try. Sometimes a person will have an unpleasant attitude because they are struggling with something in their life, but it is possible they just need someone to understand and offer them love. Do you ever think that being kind to another person might have a HUGE impact on their life and make a difference? I do without a doubt!
Thank you for visiting my site today. I hope you are having a good weekend and staying safe. I am looking forward to reading your comments and hope that you have enjoyed this post. I will respond to all comments as quickly as I can. It is a little sad the weekend is becoming to an end soon and we will be getting ready for another long week, but if we view each week as an opportunity, it might make it a little easier😊! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
As Sunday rolled in and we know Monday will be following behind, we should take this day to relax and ponder thoughts, and prepare for the week ahead! There has been a lot of rain where I live and it included many crazy thunderstorms. My poor cats are terrified of the storms and hide under the bed. Last Thursday, we had an awful storm that knocked trees down, which caused a power outage. Unfortunately, the power when I still had two hours left of my work day causing me to make up the hours on Friday.
Although the rain does increase my pain levels, it does have a relaxing sound. I know we all need rain during these terribly HOT months, but we have had too many consistent days of rain and I have had enough of the atrocious pain. Do you enjoy the rain and the storms it can produce? Does rain make you sleepy and cause extra pain for you? Earlier the rain was so bad, all the cats because scared again and hid under the bed. I believe we are going to be getting more storms next week and I hope it does not knock out the power again.
How do rainy days make you feel? Do you become relaxed and read a good book or do you binge-watch something on Netflix? I prefer to not drive when it is rainy because it makes it hard for me to see. Of course, it increases my pain levels and causes my feet to not work as well with stepping on the gas or brake pedal. I do enjoy it when it rains while I am sleeping because the sound is soothing and it already makes me sleepier. The other good thing about rain is instead of the temperature being in the high 90’s, it has been in the 70’s today. I would rather have cooler temperatures as opposed to the deadly heat!
Thank you for visiting my site today! I hope you have had an enjoyable and relaxing weekend! The weekends are always so short, but I am thankful for them no matter how short they are. Last week was a “short” week that felt brutally long. It does not make sense why the so-called short weeks feel longer than a normal week, but they always do! I look forward to your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Of course, it was a “short” week, but it definitely felt much longer than four days. I think one reason it has felt so long is that it has been SO darn HOT. Anyone reading this that has Multiple Sclerosis knows that the heat is our enemy. Thankfully, I hardly leave my house, but we do not have central air in our house and it gets really hot even with the window units. I have been ready for fall since April because it was already getting hot back then and now it is ridiculously hot. It is at times like this that I drink nothing but ice-cold water!
At this point in the week, I am sure we could all use a pick-me-up to help get us through the last part of the week. We all go through SO much in life and it can be painfully difficult. Sometimes it may take every ounce of energy and strength we have inside, but we will find a way to survive any challenges we must endure. We may feel broken at times, but we have so much courage and determination that we can conquer anything we decide to and do so with grace, and dignity! Never back down and try to stand up tall with pride!
As the week is coming to an end shortly, how was your week? Do you have anything planned for the weekend? My only plans for the weekend are to rest and recuperate from this past week because it was a crazy week. Although we did have a long weekend, I never slept in and feel incredibly drained today. Even though my plan is to sleep in, I know my cats will never allow this to happen. I love them with all my heart, but sometimes I want to strangle them because they wake me up every day at the same time, which is at 6:30 AM!
Thank you for stopping by my site today. I hope you have enjoyed what I shared and you found meaning in the quote. I look forward to reading your comments and I will respond as quickly as I can. Something important to remember is, you are important and you deserve nothing but the BEST in life! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Despite having lived with Multiple Sclerosis for 20-plus years and understanding it more than I wished, there are still times I get discouraged and frustrated. Of course, I understand that most of the symptoms that make me feel this way will subsite in time, they can be difficult to tolerate. Something worse than normal, and I have been forced to endure for the past several days is the neuropathy in my legs. I should be used to dealing with this because it is not new, but it does not get easier. Lately, it has been painful to walk and even sit down the sensation of tingly, pain, and the “spider dance party” on my legs have been almost unbearable. Considering I have been dealing with this for years, I can almost guarantee the reason for the increased issues is due to heat and stress.
Another issue that is not new but has been returning frequently is dizziness. It used to happen more later at night, but for the past few days it comes on suddenly at random times throughout the day. The only way I learned how to deal with this is to sit down immediately (to avoid falling), never lay my head backward, and or force on a still object. I already know I will get extremely dizzy if I lay my head backward, so I try to never do this. Heck, I also know when I go to the neurologist, they always have me do this, even though I explain what happens. It seems many doctors do not listen to their patients; you know the one that knows more about their body than any medical school can teach?
Many things can make Multiple Sclerosis symptoms flare up and we need to learn how to avoid these issues as much as possible. Summer in the south makes avoiding the heat pretty much impossible. Anytime I must leave my house and get in the car, I make sure to never drive until the air conditioning has been on long enough for it to not be too hot. How do you avoid heat when there are more hot months than cool months?
Stress is also a HUGE factor. Stress can make old symptoms return and create new evil symptoms. I am still learning how to avoid stress, but for me it is impossible. Everyone already knows that stress is a silent killer, but what it can do to Multiple Sclerosis is miserable. I know many of the reasons I have had awful relapses previously were because I was stressed about work, life, medication, money, and many other issues we all face.
Something else I have always had a hard time with is fatigue. It is hard for me to sleep most of the time and even more so during the insanely HOT summer months. I do try getting enough sleep, but it hardly ever happens, which more than likely has something to do with the inability to turn my mind off. Unfortunately, my mind is always racing, and I have not figured out how to stop this. It does not matter what day it is or what time I go to bed, I am awake at the same time every single day. If I am not awake at a certain time, the cats will play their part and force me to wake up. The truth is, I tend to wake up early anyway because of the pain I experience.
Finally, pain is a major burden in my life. I deal with pain in multiple parts of my body 24 hours a day, 7 days a week, and with no breaks. The crazy thing is, that I would not feel normal if I did not have pain. Of course, I would love to have one day or even one hour when I was not in pain, but it is not in the cards for me. I try to embrace the pain and just ignore it the best I can. My logic is, why focus my attention on something that is not going to change and use up the energy I do not have I have for something cannot control when many other things need my energy and focus? Great way to think, right?
Thank you for visiting my site today. I hope you are having a wonderful and safe long weekend, so far. I would love to read your comments and any advice you have regarding what I have shared today. I promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
It never matters what goes on, life keeps moving on whether we are ready or not. It seems like life is on an endless cycle of time. Life will keep going even when we are suffering from some type of challenge or hardship. The crazy thing is, that we are strong enough to handle it all, even when we cannot see the strength within ourselves. We did not ask for it, but the day we were born was a gift and we can decide what we do with this gift.
Although I know we all appreciate our lives, I am sure there are things you wish you could change. One thing that never stops is, that bills come at the same time every single month. Of course, we work to survive, pay bills, and enjoy life, but the darn bills get old! It would be nice if just once the bills would not come in. It seems like some, especially the power bill increases every month! I am sure the power bill increase has something to do with the insane heat! I am not sure about you, but I cannot deal with the heat.
I can still remember a time when there were four different and unique seasons. Unfortunately, now it seems like spring and summer became one where temperatures are just HOT. Then autumn and winter have become one of the same where you can hardly tell the difference between the two. Spring used to be tolerable temperatures. Autumn used to be a beautiful season with the leaves changing colors and temperatures getting cooler. During the winter months, the ground was covered with powdery snow that glistened. Summer has always been hot, but now it is too hot to survive.
Is there anything you wish you could change about life? Yes, life can be beautiful and exciting, but there can be improvements with everything. The two things I wish I had the power to change are the insane temperatures and the bills that will not stop coming. Logically, I know there is nothing I can do to change these things, but it would be great if I did. I am not trying to complain because I know complaining does not change anything, I am just venting😊!
We are already almost at the end of June, so we have almost made it through half of the year. How are your week and year going? What do you want for next month or next year? Dreams and hopes should never leave our hearts because they are meaningful😊! I know the past few years have been a struggle, but we have survived, and we are stronger because of everything we have gone through. Sometimes, we need to remind ourselves how incredible we are and how much courage we all have!
Thank you for visiting my site today! I hope you are doing well and having a great week! I am looking forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Monday, y’all! I hope you had a nice and relaxing weekend! I do not know if it was the heat or fatigue, but I was a little slack from blogging last week. I am going to do my best to back in the swing of things again and do better. It never fails, as the weather causes extremely hot temperatures, I end up feeling more exhausted and my pain levels increase rapidly. I have lived in the south more than 20 years and do not think I will ever get used to how incredibly HOT it gets, but I do think it has been worst in the last decade or so.
I would like to start this new week off being motivated and optimistic. Of course, the weather has been a struggle for me and it has not been easy, but do not want to allow this issue to hold me down. I hope you are going to find the quote I am sharing with you today motivating and it helps to carry you through the days until the weekend returns. I think it is important for us to hold onto our dreams and never let them go. Life is always going to be challenging and we will never stop experiencing difficult times, but our dreams can carry us through them all.
Thank you for visiting my site today. I look forward to reading your comments and will respond as quickly as I can. I hope you have a lovely week and you do not deal with any extra stresses. Please never forget that I am always sending y’all LOTS of love, comfort, support and MANY positive vibes!