Midweek Inspiration

Sunday Weather Thoughts

MS & Fatigue

Random Saturday Thoughts

Neuropathy Triggers

Multiple Sclerosis is a nuisance, painful, troublesome, and unpredictable, which makes for a miserable combination of frustration and anger. Those of us that are trying to get through the days with what feels like a rain cloud over our heads and never leaves can understand that we cannot predict how the days will flow, but we sure as hell figure out things to avoid. I know science has come a long way, even since I was diagnosed over 20 years ago, but something must change with the symptoms related to this disease as they are extremely annoying and daunting.

Of course, there is an overwhelming amount of information online, and there are many great neurologists that have studied this disease, but they might not be living with it personally, and everyone experiences things differently. I could ask 100 people living with this disease what the worse part about Multiple Sclerosis is, and I am sure that I would get 100 different answers. This does not mean that each person does not experience similar issues, but they willĀ NOTĀ be felt the same way. I guess I finally understand why Multiple Sclerosis is often referred to as ā€œsnowflake diseaseā€ because no two snowflakes are identical, no two MS cases are either.

As I am writing this post, it is 2:00 in the morning. Everyone in the house is sleeping, and I am awake unable to sleep because of the neuropathy pain in my feet and legs. They have not been feeling well all day, which I chalked up to the rainy weather, but then I made the mistake of having something with too much dairy for dinner. I know how much the weather affects my legs and realize it is unavoidable, but I am wise enough to know that dairy increases neuropathy issues but did it anyway. After living with Multiple Sclerosis for more than half of my life, I know the triggers, and try to avoid them. I have no excuse for why knowing the triggers I ignore some, such as dairy and stress.

Thank you for visiting my site today. Last night was very brutal, but I am trying to stay hopeful the neuropathy will subside and stop causing so much pain. As you can tell, I did not post this at 2:00 AM when I was unable to sleep, but wanted to get this out there and hope it helps someone else not feel alone. I hope you have been able to enjoy your weekend, but the good news is, it is not over yet and we still have several hours left of the weekend before we begin a new week. I look forward to reading your comments, and I will respond as quickly as I can. Please never forget that I am always sending yā€™allĀ LOTSĀ of love, comfort, support, andĀ MANYĀ positive vibes!

Always, Alyssa

Sunday Thoughts

Good afternoon, and happy SundayšŸ˜Š! I hope you are enjoying your weekend and you have been able to do something that brought you happiness! The weekends can help prepare us for the upcoming week or at least as much as we can be prepared. We never can know definitively what the following week will have in store for us, but we can hope for the best. Challenges can arise at any moment, but we must have faith and believe we are strong enough to handle them because we are! One of the biggest challenges I face in the summer is the heat, and there seem to be limited ways to escape from it.

What have you been doing this weekend? I made the mistake yesterday of going outside to repot a few plants. I thought doing this early in the day would be better and not nearly as HOT, but I was wrong. Of course, living with Multiple Sclerosis, I know better than to get overheated because it can cause extreme issues. Heat intolerance is very real for those with Multiple Sclerosis, and it is a miserable to deal with. After I repotted four of my plants, I felt awful and stayed inside for the remainder of the day. I also drank more water than normal and snacked on ice pops because this was the only way to cool my body temperature.

I have always felt the best way to spend the weekend is to rest on Saturday, and do as little as possible, but take care of what needs to be done on Sunday. I think many people do the opposite and use Sunday as their restful day. Everyone is different, and what works for one person will not work for another. What is the best way for you to spend the weekend? There is no right or wrong with this! Do you enjoy summer, and do you think it is hotter than it was last year? I am sure I am exaggerating because I always think it is too hot!

Thank you for visiting my site today. I hope you enjoyed what I have shared, and I look forward to reading your comments. I will respond to all comments as quickly as I can. Yes, the weekend is close to being over, but we do still have several hours left and I hope you enjoy them to the fullest. Please never forget that I am always sending yā€™all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

MS Kryptonite

Happy Midweek and I hope you have had a good week so faršŸ˜Š! Thankfully, we have made it through the first half of this week, and I would like to believe the second half of the week will be easier. I am sure everyone is looking forward to the week, and next week there is a holiday, so it will be a shorter week, which honestly always feels longer to me. It would have been better if Monday was going to be the holiday, but it is what it is, and I will not complain! We do not have any plans for the 4th of July, but I will say our poor cats will be terrified because people will be setting off fireworks and they hate every second of itā˜¹. I am sure they will be hiding under the bed until it all ends.

Something I want to talk about in this post is how much heat is the enemy for anyone that is living with Multiple Sclerosis. The heat can cause numerous issues, and each person will experience the heat differently. Any MS symptom can become worse in the heat and trigger newer and unfamiliar symptoms. The symptoms may include numbness in the extremities, fatigue, blurred vision, tremors, weakness, and cognitive issues. These symptoms depending on the individual can range anywhere from annoying to debilitating.

I can speak for myself, but I am sure many others that living with Multiple Sclerosis may agree about how much heat is like our kryptonite. I live in a southern state in the United State which seems like the weather is too warm for about nine to ten months out of the year. Recently, another blogger who was recently diagnosed with Multiple Sclerosis had a suggestion regarding a neck fan that she purchased on Amazon. I had never heard of something like this before, but after her recommendation decided to purchase one, and mine will be arriving today at some point. With that said, I also want to recommend for anyone interested in ways to deal with Multiple Sclerosis to check out her site at https://calmwithkari.com/. Also the neck fan on Amazon that I purchased https://www.amazon.com/Portable-Operated-Rechargeable-Bladeless-Headphone/dp/B0BK8FS5ZG/ref=sr_1_4?crid=1EIS65IUG6VQZ&keywords=neck+fan+purple&qid=1687911304&s=home-garden&sprefix=neck+fan+purple%2Cgarden%2C119&sr=1-4, but there are many others available.

As soon as I try out the neck fan, I will share my thoughts with you, and you can decide for yourself if it is something you are interested in trying. Of course, I had to get the purple neck fan because it is my FAVORITE color! Now that summer is in full force, it will only continue to get hotter until Autumn. There is no need to suffer when there are options to avoid the burden of the heat. I know the weather will change at different times depending on where you are living, but as I said in the south where I live that might not be until November.

Thank you for visiting my site today. I hope the information that I shared was helpful for you and you have a wonderful day! I look forward to reading your comments, and I will respond as quickly as I can. I do sincerely hope you check out the bloggerā€™s site I suggested because she is sharing some amazing, and helpful information. Please never forget that I am always sending yā€™all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Increased Dizziness

Even after living with Multiple Sclerosis for more than half of my life, each season still has some unique challenges I must adapt to. Although it does take my body time to adjust to any weather changes, I always find the extreme heat the most challenging and harsh. It is not even summer yet, but it has already reached over 90 degrees. A few of the challenges I must overcome are increased fatigue, an inability to sleep, lack of energy, and intensified and escalated dizzy spells. For some reason, yesterday I was dealing with the worst dizzy spells, which typically only happen at night, but I was dizzy all day.

The rare times I do leave the house, especially during the warmer weather, I always must allow time for my vehicle to cool off before I begin driving. I know the extreme heat will cause my dizziness to be even more brutal and I never want to be driving when it happens. It helps to roll down the windows and turn the air conditioning on high for a few minutes. Another thing I do to help with the hot weather is keep a bottle of cold water with me at all times. I have four insulated water bottles that I purchased on Amazon. I fill the water bottles up about halfway and let the water freeze and continue to add water to the bottles, so my water is always coldšŸ˜Š!

Do you have a favorite and the least favorite season? I absolutely love Autumn because the weather is not too hot or too cold. Honestly, where I live, I am pretty sure we only have two and a half seasons,Ā HOT, warm, and cool. I miss living where there are four seasons, and it has been more than 20 years since I have seen all the seasons. It seems like the summer lasts way too long, and it is only getting more intenseā˜¹.

Thank you for visiting my site today. Have you been able to enjoy your weekend? There is still a little left of the weekend, so I hope you can relax and enjoy it as much as possible. Tomorrow is Monday and our week will begin again, so we must try to only view the new week as an opportunity. I hope you have enjoyed what I have shared today, and I am looking forward to reading your comments. I will respond to your comments as quickly as possible. Please never forget that I am always sending yā€™all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

My Sunday Thoughts

Happy Sunday, yā€™all! I hope you are having a great and relaxing weekend! I had planned to write a few posts about topics I feel are important, but unfortunately, I have been struggling with awful leg and feet pain this weekend. I know it is just neuropathy, and I am assuming it has something to do with the change in weather. Yesterday, it was 90 degrees where I live, which I feel is wayĀ TOO HOT! I have never dealt well with hot weather, but this weekend has been challenging. I am doing everything I am supposed to do, at least according to my Neurologist, but I cannot deal with the neuropathy all summer. I am sure my body will adjust to the extreme temperatures, but I wish it would do so faster!

What have you been doing this weekend? As I already mentioned, I have been dealing with neuropathy issues, so I have not left the house or done much of anything. I was able to rest most of the day yesterday, but I did do a few loads of laundry. A few things I remember about last summer were to start my vehicle and let the air conditioning run for a little while before driving. Also, it is crucial to stay hydrated, so I have been drinking tons of water!

Considering I have no intention of leaving my house until Tuesday when I must go to the pharmacy to pick up prescriptions, I am hoping to work on the posts I wanted to do yesterday at some point today. I am not going to make any promises, but I hope to have both completed by the end of next week. Every month has awareness topics, but there are two in June that I feel are important to share and discuss. One of them is, Pride Awareness, and the other is Gun Violence. Pride Awareness is important because I do not think anyone should feel any shame because of who they love or be discriminated against. And Gun Violence because there is too much of this happening and it needs to end!

Thank you for visiting my site today. I hope you can enjoy the rest of your weekend, and you are able to do something that brings you joy. I always enjoy reading your comments, and I will respond to all of them as quickly as I can. Please never forget that I am always sending yā€™all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Pick-Me-Up Friday Eve

I know it has been a shorter week, but it has felt like a long week! As much as I enjoy long weekends, I always dread the short weeks because you have to consolidate five days into four, which tends to be chaotic! How has your week been? Of course, Tuesday was disastrous, and Wednesday was only slightly better. Today is the first day of June, which also means the HOT weather is coming, especially in the south where I live. I know I have said this before, but I do not like when the weather gets too hot to even leave the house. Does anyone reading this enjoy warmer weather or rather HOT weather?

This week is almost over, but we do still have one more day until the weekend returns, so I thought a little pick-me-up could be helpful for everyone! I know it is not a long weekend, but do you have anything planned for this weekend? I am happy to say that I have nothing planned but am hoping for a nice, and relaxing weekend. Unfortunately, during the week, or maybe even in our personal lives, we might feel as if we are expected to be how others want us to be. I have always been happy to be myself, which includes all of my imperfections and many flaws, and if someone else cannot accept me for me, that is their loss, not mine. This is why I wanted to share this quote with everyone today because you should be proud of who you are and know how amazing you are!

What do you think makes a home feel homier? Does hanging pictures on the walls, decorating the inside and or outside of your home, or it is all love that makes your home feel homier? Since the weekend when I finally hung pictures on the walls in our living room and added beautiful plants to our front porch area, our home feels more like we are living here and it feels like home. Of course, our house has always contained a lot of love, but these simple things made everything prettier! The only things we still need to do is, hang more wall art, put curtains, and shutters up in the living room, and curtains in the guest bedroom!

Thank you for visiting my site today! I hope you enjoyed what I shared today, and it provided you with the pick-me-up needed near the end of the week. More than a pick-me-up, I hope it reminded you how amazing, and wonderful you are regardless of any imperfections. We all have imperfections, but they make us unique! I look forward to reading your comments, and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes! 

Always, Alyssa