What do you do after a bad week?

The truth is, we all have bad days that can turn into a bad week. Unfortunately, last week was one of the worst weeks I have had in a long time. I was thankful for the week to end, but I am still struggling to forget and let go of all that happened. It is not easy to let go of things, even after you take full responsibility for your actions. Guilt and frustration can be consuming and almost make you feel like you are drowning.

After my fall on Tuesday evening, the week seemed to spiral out of control into nothing positive. The fall was terrifying and I should have done things differently than I did. I knew I was having dizzy spells and should have gone to bed instead of trying to do anything else. I know from past experiences what can happen if I continue to push myself when I feel dizzy and yet, I did not do what would have been logical. I have lived with Multiple Sclerosis and the issues that come along with it for over 20 years, so I know better than to keep pushing when things such as dizziness arise.

Another issue I should have recognized is that I was not allowing myself to get enough sleep. When we are sleep-deprived, things never go well. Our behaviors and way of thinking are compromised, which causes other awful things to occur. I had been pushing myself so much with my new job and allowing myself to be drained by stress and for what? I know that I am still new with this job and learning more daily, so allowing myself to be swallowed up with stress only creates more issues and my health to deteriorate.

Thank you for visiting my site today. I hope you are enjoying your weekend, relaxing, and doing what brings you joy. I am using this weekend as a time-out to recuperate and refocus because I know that is what I need. Life is too short to spend it stressed, especially because of a job. I am looking forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Massive Dizzy Spells and the fall

For many years dizzy spells have been a common challenge I face. I have been able to find ways to shorten the duration of these spells, such as sitting down immediately or focusing on a still object, which works about 75% of the time. Unfortunately, on Tuesday evening nothing was helping and when I “attempted” to sit down on the floor, I somehow ended up hitting my head, arms, and legs on a hard object.

I am not 100% sure what happened because I was in a daze, scared, and extremely confused. If I had to guess, I would say my head hit the corner edge of the nightstand and while trying to catch myself and prevent the fall, my arm was collateral damage and hit the nightstand as well. It is obvious my head hit something rather forcefully because I have a bruise and swelling on my forehead. Also, my bottom lip is swollen with a nasty laceration. I do have sore areas on my scalp, which made washing my hair very painful.

I had to work the day after this exciting event and was unable to focus. There was not one part of my body that did not hurt. It is not easy working when in the amount of pain, I was in, but I am new with the company and refused to call out sick. I mean, I work from home, so I do not have to go anywhere or see anyone, so why call out? The entire day, I had two speeds, slow and stop, which ended up being stop for much of the day! YES, this made for an extremely LONG day!

Thank you for visiting my site today. I hope your week is going well and you are taking care of yourself. Never forget, YOU are important, and you cannot take care of others if you neglect your health. Yes, this is something I am awful with. I look forward to reading your comments and I will respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Frustrations of living with Multiple Sclerosis

Living with Multiple Sclerosis has been challenging and frustrating at times. Yes, the disease itself is painful, but many do not understand the symptoms and how they affect daily life. If someone does not have the disease, they are not able to fully comprehend what it is like to deal with the symptoms. Even those that are closest to me and see me daily but do not suffer with the consequences of the disease have a difficult time knowing what it is like to manage. Many people I meet would not even know that I have Multiple Sclerosis because I look perfectly normal, but underneath the mask I wear is a battle with my own body. 

When your body manages to attack itself and you have no control over the symptoms, it can be challenging to explain to others that do not understand because they do not have to endure the difficulties. It is not easy when you have no control of how your body reacts to the pressures in life or even to just being awake. I have said to some that they would not understand unless they could live in my body for one day, but most could not handle it well at all.

One extremely frustrating symptom is the constant feeling of fatigue. It does not matter what time I go to bed or how much sleep I get (which is normally NEVER enough), the fatigue issue consumes my life. I can say that it does get worse as the day progresses and by about 1:00 PM I need a nap, so by the time my husband is ready to have dinner and watch a TV show I am spent and exhausted. I have explained this to him numerous times, but it does not register to him, and he continues to want to have dinner and watch TV or a movie later at night. I guess I can understand this because he does work nights, but I still think there needs to be some compromise and meeting in the middle.

Another frustrating symptom is the never-ending pain. Being in pain 24 hours a day, 7 days a week with hardly any relief is not easy. I try to ignore the pain, but there are times when it is extreme and overbearing, and I am unable to ignore it. Pushing through the pain when it is at the worse and it is hard to stand, or move is immensely demanding. Heck getting out of bed when I know what the day holds, is aggravating and irritating. It is not that staying in bed would help much because just lying in the bed, I still hurt! 

The issue with neuropathy is also a challenge. The feeling of pins and needles or spiders crawling around on my legs and feet is hard, especially because NOTHING helps. I am already maxed out on the medication that is “supposed” to help so how can I have hope for relief, when the medication that should help the neuropathy is not helping? I know it is best to believe things will improve, but it has been many years of this, and it is not coming to an end.

Thankfully, even though I do experience dizziness frequently, I have learned how to cope with it. I have learned that when I do get a dizzy spell, if I focus on a still object, it will help to get the dizziness under some control. However, when it happens when I am driving, it can be a little terrifying, but then I will focus on the lines on the road and manage to stay in between the lines.

I am sure there are other symptoms are not easy to handle, but the one I want to mention is the headaches/migraines. Out of all the other types of pain I endure, this is probably the worst and the only one that will have me in the bed for hours or at least until it gets better. Most pain is something we can learn to deal with, but headaches/migraines I have not been able to learn to deal with and I have been experiencing these since I was a child. I guess when the pain is concentrated on the head, it starts to affect the way we think and communicate.

I know that stress is my biggest enemy and not a friend to the Multiple Sclerosis. The only thing that stress does is make any symptoms with MS more intense. Right now, I am trying to get my medication that helps keep the MS at bay but going through the process and jumping through all their hoops is stressful. This is a medication that without the Gilenya Go Program would cost about $8,000 per month and that is not something any normal person can afford. Unfortunately, I only have enough medication to get me through until Saturday and then I am out. This medication has done well keeping the MS under control and being off of it will only cause me stress.

Thank you for visiting my site today. I hope you found this post helpful with understanding the frustrations of living with an uncurable disease. This post was meant to be a quick overview of the complications of living with Multiple Sclerosis. I would love the change to read your comments and will respond to all of them as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Challenges with Multiple Sclerosis

I think y’all already know that I have had Multiple Sclerosis for over 20 years and for the most part I am still going strong. Honestly, some days are worse than others and most issues are triggered by either the weather or stress. I do not like having a pity party but wanted to quickly explain what I think are some of the most challenging aspects that come with this illness. Thankfully, over the years I have been able to get a much clearer understanding of what MS is and what it can do to a person. Crazy as this might sound, this has been good because when I was diagnosed, I was very ignorant to this illness and had an immature mind, but I was young and that is my excuse for my childlike thought process.

Of course, I do know it could always be worse and I am thankful it is not any worse than it is, but that does not mean it is not challenging and frustrating. The issues I am going to explain are not in order because I cannot say one is more challenging than the other, as they can all be grueling. No matter how challenging and or frustrating these issues are, most can be managed or at least I try to ignore them.

Multiple Sclerosis can be incredibly unpredictable, which can be burdensome. Never knowing what to expect or when it is going to strike is unnerving. It is embedded in my mind to have things planned but living with the unpredictability of MS can force plans to be altered or cancelled. Of course, with COVID there have not been many outings planned and I work from home, so life just keep moving along.

This illness is not something new and even though there have been vast amounts of research done, a cure has not been discovered. I dream that a day will come when I wake from the nightmare of Multiple Sclerosis and I will not have anymore pain, weakness, numbness in my legs and feet, dizzy spells, or any of the other awful symptoms caused by MS.

Another issue that can be exhausting is the constant pain I feel in my legs and mid to lower back. This has been something the MS caused since I was diagnosed, so I try to not allow it to impact my daily life too much, but it does still cause difficulties. I would say the leg pain is a lot harder to deal with than the back pain because leg pain makes moving around extremely laborious. The back pain is awful, but most of the time a heating pad helps relax the muscles.

I also experience neuropathy in my legs and feet, which causes an annoying tingling sensation. This issue is not easy to ignore because it is constant. It does not bother me as bad during the day but gets increasingly worse at night. The tingling feels like spiders crawling around my legs and feet and not too much decreases this issue. The neuropathy issue makes falling asleep and staying asleep very challenging.

Another issue I battle with is fatigue. It does not matter how much sleep I get, which is never as much as it should be, I am always tired. I have noticed this gets worse towards the afternoon and I start losing my focus because I am exhausted. I arrange my work tasks, so the most in-depth things are handled in the morning when I am the most alert.

The hug I never want is called the MS hug. Thankfully, this is not something I deal with daily, but when I do it is miserable. It kind of feels like there is a snake wrapped around my abdomen and continues to squeeze. It is uncomfortable and painful. For the past few days, I have been battling with this and ignoring it is not making it stop. However, I do think my specialist is on a need to know and I do not think she needs to know about this because I do not want her trying to force steroids on me as that alone makes me feel terrible.

Although I have lived with this disease for over 20 years, some of the fears I had in the beginning do still haunt me. I wonder will there ever be a cure, how much longer will I be able to walk for until I am in a wheelchair, is this disease going to end my life someday, and many more questions run through my mind. Even with all the unanswered questions, I am still never going to give up and allow the MS to win the war we have been fighting.

Thank you for visiting my site today. I hope you have enjoyed your weekend and you were able to do what brings you the most joy. I hope what I have shared with you today will be give you some comfort and help you with something you are dealing with. I do not normally share posts that might come across as complaining, but I do want everyone reading to know that no matter what you might be struggling with, there is someone that understand. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Beat The Heat

As y’all already know March was Multiple Sclerosis Awareness Month. Even though March is almost over, MS for me and everyone else living with this illness will continue to battle with the challenges that come along with it. With that being said, I do want to share a few additional posts to further explain the struggles that Multiple Sclerosis creates.

One thing common with those with Multiple Sclerosis is heat intolerance. Simply taking a hot shower, spending too much time in the sun, or possibly making a hot meal because the stove and oven can make the kitchen extremely hot. The reason people with MS are sensitive to heat and temperature changes is that MS causes nerves to lose their conductive coating, which is referred to as a myelin-sheath.

Heat issues may cause a person with MS to have an escalation of symptoms such as dizziness and/or increased heart rate. I am going to share 6 tips that may help you to defeat the brutality of the heat enemy. Some of these tips might seem like common sense, but they are important to mention, or at least I think it is.

Stay Inside:

Logically, this makes perfect sense, but the warm summer months are closing in on us relatively fast and this needs to be very well understood. Staying inside with the air conditioner or at least fans may contain MS symptoms. Be sure to pay close attention to the forecast and avoid outdoor get-togethers when it is too hot. It will be much better for you and your health to stay inside when the temperatures and humidity increase because you do not want the symptoms to get too awful.

Utilize Cooling Products:

There are numerous cooling products available online and in stores. The MS Society has cooling vests, wrist, ankle, neck, and head cooling packs. These are fantastic cooling packs that can help you to tolerate the heat and even make picnics possible. Something as simple as a cloth dipped in cold water and applied to your head can make a remarkable difference in the way you feel.

Ice Cold Beverages:

On those insanely hot summer days, there is nothing better than ice-cold water with or without lemon. It is amazing what powers and benefits can be had with liquids. Aside from an ice-cold beverage, you may also experience relief from popsicles, ice cream, or frozen yogurt. To save time walking to the kitchen at night and searching for something cold to drink, try freezing a bottle of water and place it beside your bed. This will provide you the much needed cool down without leaving the comfort of your bed.

Cool Down in the Pool:

As the temperatures start increasing, spending time in a pool when possible can give you the cooldown needed. Not only will a pool help you cool down but provide you with some exercises that can be done easily and without high impact on your body that might cause you extra pain. For additional cooling powers, keeping your wet swimsuit on after leaving the pool can be wonderful because it will also keep you nice and cool!

Plug in a fan or fans:

The fan you use does not need to be high-tech or fancy to offer you cooling benefits. A simple oscillating fan that is easy to move to other rooms can provide you great and fast relief from the evil heat. A ceiling fan helps to circulate air, which can give useful relief from the heat as well.

Lighten Up Clothing:

It can be astounding how our choices of clothing can make a considerable difference. Thinking in layers of clothing when we get dressed might serve you as a benefit. Dressing in lightweight and easy to remove clothes allows you to remove layers, as necessary.

I hope the information provided in this post was helpful for you. In the southern state that I live in, I can speak from experience on how awful the heat makes me feel. It typically starts getting a little too hot for me in April and previously when I did leave the house, I would be overheated just walking to my car. A few years ago, I did reach out to the National Multiple Sclerosis Society and they sent me a few cooling products that are phenomenal, and I am thankful to have them. Of course, over the past year, I hardly leave the house, but hopefully, things will become safe again soon.

Thank you for visiting my site today. I know I have been a little off with my typical posts, but life and fatigue sometimes get in the way. I would love the opportunity to read what you thought about this information and will do my best to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

9 Multiple Sclerosis Facts

In previous posts, I have explained that Multiple Sclerosis is an autoimmune and neurologist illness. What this means is MS affects the nerves, but also the body’s defenses to fight disease fails and begins to attack the cells. The immune system attacks the body’s myelin when you have MS. Myelin is a protective substance covering the nerves, so when this happens it leaves the nerves unprotected. The nerves being unprotected makes them vulnerable to damage, which causes them to not function as they would if there was healthy myelin. The damaged nerves create a wide range of symptoms that vary in seriousness.

A few additional facts regarding MS to understand are:

1.Multiple Sclerosis is a chronic condition, which means it is a lifelong condition and it does not currently have a cure. It is important to understand that even though there is not a cure, it is not fatal. There are 2.3 million people worldwide living with MS and they all have the standard life expectancy. It is only in rare cases there might be complications severe enough to shorten the life of a person. Overall, with MS most symptoms can be regulated with medication, adjustment to lifestyle, or both.

2. Multiple Sclerosis affects younger adults, and often women. Although MS can be diagnosed in children and older adults, people are mainly diagnosed between the ages of 20 and 50. Women are two to three times more likely to develop MS than men. If the person is diagnosed is over the age of 50, this is normally called late-onset MS. It can be challenging for older adults to find a diagnosis of MS due to other age-related conditions having similar symptoms.

3. Multiple Sclerosis can be arduous to diagnose. Often symptoms and single tests are not enough to be able to make an accurate MS diagnosis. The challenges are due to the symptoms mirroring the symptoms of other conditions. Numerous tests that can be used to rule out other potential causes of the symptoms a person is experiencing, which include:

A. Blood tests to rule out Lyme disease, which can trigger the same symptoms of MS.

B Neurologist Exam

C. Magnetic resonance imaging (MRI)

D. Visual evoked potential (VEP) test, which looks for impaired transmission present along the optic nerve pathways.

E. Cerebral Spinal Fluid (CSF) Analysis is a way to look for conditions affecting the brain and spine. The CSF analysis is a series of laboratory tests performed on a sample of the CSF, which is a clear fluid that cushions and delivers nutrients to the CNS.

F. Optical coherence tomography (OCT)

4. The symptoms involved with Multiple Sclerosis vary and the list is long. The truth is, there is no such thing as typical symptoms because everyone that lives with this illness experiences it differently. Some symptoms may simply come and go, or some may regain a lost function, such as bladder control. A few possible symptoms include numbness and tingling, vision problems, balance and mobility issues, and slurred speech. The unforeseeable pattern of symptoms is due to whatever nerves are being attacked by the immune system at any given time. Most things are just unpredictable, and we must deal with the issues as they come up.

5. Multiple Sclerosis is comprised of relapses and remissions. Remission is the period of time when the symptoms have improved. Remission does not indicate the MS is gone, but these periods may last days, weeks, months, or in some cases years. Relapse or exacerbation is the incidence of a new symptom or worsening of an old symptom. This occurrence can be mild or severe enough to interfere with the ability to function. No two exacerbations are the same, so it is important to consult with your neurologist when you deal with one.

6. There is a cognitive part to Multiple Sclerosis. All the damage MS causes to the nerves can also impact critical thinking and other cognitive (mental) skills. It is not unheard of or abnormal for people with MS to have issues with memory and or finding the right words to convey what they are thinking. A few other cognitive effects may include:

*An inability to concentrate or pay attention

*Decreased problem-solving skills

*Difficulty with spatial relations, which means the ability to perceive two or more objects positioned in space relative to oneself and in relation to each other.

*It is normal for cognitive problems to create frustration, depression, and/or anger, but these are issues your doctor can help monitor and manage.

7. Multiple Sclerosis has been labeled as an “invisible illness” or “silent disease”, which makes sense because at face value people with MS look no different than those without MS. Symptoms such as blurred vision, sensory problems, and chronic pain cannot be seen by anyone else. However, some people that do require special accommodations, even though they do not have mobility issues and appear to be fine. One reason why MS has been labeled a “silent disease” is that even during remission, the disease is still, unfortunately, progressing, which has been referred to as “silent progression” of MS.

8. Staying cool whenever possible is greatly beneficial. Heat intolerance is another common issue that can cause an exacerbation of symptoms. People with MS may experience an increase of symptoms from hot weather or sun exposure, fever or illness, hot baths, or showers, and overheating from exercise.

It might be helpful to use fans and air conditioning, cool drinks, and/or icy compresses to stay cool. Wearing layers of lightweight clothing that is easy to remove may serve as a benefit as well. Also, utilizing a cooling vest that can be purchased online. Although people might experience a heat-related relapse, it is important to understand that heat does not cause MS to progress any faster.

9. Vitamin D plays a vital role in Multiple Sclerosis. Research has indicated a link between Vitamin D and MS, which showed the nutrient can function as a protector against MS and possibly lead to fewer relapses. Sunlight triggers the production of Vitamin D in the body, but that sun exposure can also lead to heat-induced symptoms. There are plenty of ways to increase Vitamin D without sun exposure which include fortified milk, orange juice, cod liver oil, salmon, tuna, and eggs or there are also Vitamin D supplements available.

I hope you found this information useful for yourself or someone you know. Please just keep in mind that I am not a doctor or medical professional, I am just someone that has lived with MS for over 20 years. I have experienced most of what is in this post, but that one thing I did not do when I was diagnosed was have the CSF Analysis. I have heard it is not pleasant, but people do live through it. There are still a few days left in the month of March and I do plan on doing a few more posts for Multiple Sclerosis Awareness. I do feel like there is a lot of information available and it needs to be shared with as many people as possible!

Thank you for visiting my site today. I always appreciate your continued support and truly love reading your comments. I hope you are having a good week and you are staying safe because COVID is still a threat. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Been on my mind

~Living Life With An Unpredictable Illness~

I have decided to write about a few things that have been weighing on my mind lately. Lately, I have been feeling overwhelmed with life, work, and health concerns. There always seems to be something going on in the world from the political insanity to COVID-19 to mass levels of hatred that is being spread even fast than the virus.

I think after everyone that wanted to vote did so and the counting was finished, there should not be any more talk about it. The voices of SO many American people spoke out and there is going to be a new president starting in January 2021! There is a chance we may have hope now because we are not going to have an immature person that is unable to take accountability for what has happened with this pandemic and is definitely not a leader in the White House.

As for COVID-19, if people would just follow the advice we have all been told for months now, MAYBE there would be more control over the virus by now. Unfortunately, the few times I actually leave my house hardly anyone is wearing a mask. I just do not understand why because I know they must have seen the news and see the numbers on the consistent rise. The virus is NOT a joke. This virus is killing thousands of people every day and it needs to stop.

The hatred that is being spread will never make sense to me. I have said this to y’all multiple times, but I have to say it again, everyone should be treated equally and with respect. A person’s race, color, sex, national origin, sexual orientation, religious following, and anything else should not matter because we ALL have a beating heart and feelings. No one should ever feel shame for who they are, but instead should be proud. The rage and hate that is filling the United States must end because the death, injuries, and fear are things that never should happen.

I will end my little rant now, but I do want to share with y’all a little about what my life has been like living with an unpredictable illness, especially during the pandemic. Most of you, if not all of you are already aware that this is definitely not easy. Of course, there are good days along the way, but then there are also those days that are more grueling than any others. The truth is there are some days it is challenging for me to even get down the stairs to the home office and begin my workday because my legs hurt terribly and they are extremely weak, but I do manage to get there.

Besides the continuous pain I have from my knees down to my toes, I have massive amounts of pain issues from the middle to the lower area of my back. Considering I have been living with Multiple Sclerosis for two decades, I have learned to live with the pain. I guess it is safe to say that I have learned to not just live with the pain, but also accept it as part of my life. I mean there really isn’t another way because I am not going to allow for Multiple Sclerosis to dictate my life as I want to control my own life. Unfortunately, there is not a cure for Multiple Sclerosis yet and I want to live my life to the fullest I possibly can. After all, I did make my late Poppy a promise 20 years ago that I would NEVER give up and I refuse to disappoint him by not keeping that promise!

Another difficult symptom I have been dealing with more lately is dizziness. Previously, the dizzy spells were random and only a few times a year, but recently they have been awful. Last week, I had two dizzy spells within a few days of each other. The second one happened after my husband and I finished dinner, and I told him before I tried to start cleaning that I didn’t feel right. When I tried standing up and I told my husband I was very dizzy, so he started cleaning up for me. I still attempted to try helping and when I thought I had control of the dizziness, I fell in the kitchen. Of course, my husband came running to my side to make sure I was not hurt. The only injuries were a few bruises to my knees and thankfully did not hit my head. Even after sitting on the floor with my husband for a few minutes, I still didn’t feel like I could stand without falling, so my sweet and caring husband carried me into our room.

I want to thank y’all for visiting my site today and reading this post. Even though I know some of you can relate to this, I wish you didn’t have to because I know it isn’t all that fun. On my worst days something that helps me get through them is I can hear my Poppy’s voice saying “No matter what you are going through in life, someone else is always going through something worse. “ He always told me he believed in me and that I was strong enough to get through anything thrown at me and I know he was right!

I would love to read your comments and promise to respond as quickly as I can. I know sometimes it takes me longer to respond, but that is because I have been working no less than 45 hours a week and sometimes more. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

My weekend of pain

Three days of migraine & pain hell!

Since Friday afternoon I have been battling with a nasty headache, which I think was more an evil migraine. It started when I was still working and I had to force myself through the last part of the day, which even though I work at home was difficult to make it until 5:00. I know some would say the migraine and pain came from stress, but I actually disagree with this. Yes, I did get a little worked up about a loan I was working because I was a little confused about what I had to do next, but I did get everything figured out and was fine.

I have been working with my new company for three weeks and I still love my job. During the initial few weeks after training, we are all supposed to work on the loans that are assigned to us, and then the team lead would review our work before we could proceed with changing the status to “complete”. Well on Friday while I was dealing with the start of my nasty migraine, my team lead told me I did not need to have my work reviewed anymore and could proceed on my own. I am not sure why I was so shocked by this because I do understand the work, but to be told this during the end of my third week was a good feeling and made me feel confident. This is the same team lead that told me during my second week on the job I was going to be his “rock star”, so I guess I have a lot to live up to!

When I did finally make it through my horrible painful day on Friday, I laid down with an ice pack on my head around 11:00 PM and did not really get up until late Saturday. Not only am I dealing with a migraine from hell, but my entire body aches. I do not know where this is all coming from. It has been incredibly hot in the south, but I do not leave my house so I don’t know why the heat would be causing me so many issues.

As I am trying to write this I can feel the pain starting back up again, not that it actually stopped it just eased up some. Dealing with pain is not easy and can cause some stress. Trying to understand why the pain has to be this severe is something that can’t be understood. Normally, I can deal with pain, but I am not able to deal with head pain.

Headaches/migraines will have me in the bed with an ice pack and nothing helps. It has been a frustrating weekend that is almost over. I can only hope the headache/migraine will leave me alone as the week starts.  I promise I have done everything I know to get rid of the pain, but at this point, nothing is working. I am staying hydrated and even trying to eat.

Do y’all ever get massive migraines or pain in general? How do y’all deal with this? I would like to believe I am a strong person, but I am losing that strength dealing with all this pain. Any advice y’all may have would be greatly appreciated.

Thank y’all for visiting my site today. I do hope your weekend has been lovely, you have been able to enjoy it, and you have stayed safe. Please know that even though I am struggling with pain issues right now, I am always sending y’all LOTS of love, comfort, support, and many positive vibes!

Always, Alyssa

Wednesday’s Random Thoughts

My Random Thoughts

Happy Wednesday y’all. I hope you are having a great week, you are feeling well, and of course, you are staying safe. I keep telling myself to stop obsessing about new COVID-19 cases in the city I live in, but yet I continue monitoring the massive increases daily. It doesn’t make any sense why I keep doing this because all it does is upset me and keep me stressed. I do not leave the house most days unless it is necessary and when I do, I always wear my mask inside places like the grocery store. It blows my mind how many people do not wear a mask and hardly ever respect social distancing. I am not sure which irritates me more, the carelessness of not wearing a mask, or the complete lack of awareness for social distancing. I was thrilled to hear the city I live in passed a law requiring people to wear a mask anytime they leave the house and will be fined if they do not. I think this should have happened months ago!

Do y’all ever have days when there is so much on your mind and numerous things you want to do, but then feel overwhelmed and do not do any of the things you wanted to? Or when your mind is consumed with things you want to write about, but then you just end up staring at a blank page for hours or constantly erasing what you just typed or wrote? I tend to have days like this a lot and do not know what to do about it. Do y’all have any advice? I may being feeling this way because I have not worked in several months and therefore I am not on any logical kind of schedule, which drives me crazy.

Life can sometimes feel more like a very long and nerve-wracking rollercoaster ride with many added sharp curves and free falls. The moment we think things are getting easier and it is safe to take a deep breath, we face another painful challenge. Sadly, I honestly feel like too much has taken place over the past four months or so and there doesn’t seem to be relief or improvement anytime soon.

I don’t think it would surprise anyone, but what we have witnessed recently has been heartbreaking and terrifying. The other situations that have made the news are things we have known to be hellacious issues for a long time, these mainly being inequality, racism, and pure hatred. Y’all know that I tend to blame negative things that happen on the president and even though things he says might fuel hate and racism, the issues wouldn’t be fueled if the people didn’t already feel a certain way to start with.

No one on the face of this earth has ever gone through a pandemic like the one we are seeing now with COVID-19. I do not even think anyone has thought of something this awful. COVID-19 has put fear in people around the world. Unlike some people in the world, COVID-19 does not discriminate and has affected people from all walks of life.

Even though I am viewing the world in different ways right now, not everything is horrible and stressful. Of course, the issues with the virus do cause me stress and sadness. I hate knowing some people that get this virus will lose their life and their family will have that pain to deal with. And even though I am a small-town girl that grew up in a state with no diversity and moved to a big city with LOTS of diversity when I was 19, racism will NEVER make sense to me. I have always believed that everyone was equal and deserved our respect. With people, the only thing that matters to me is how they treat others and the color of their skin, who they love, who they worship, or anything else that is different from my views does not matter.

Thank y’all for visiting my site today and reading some of the thoughts that have been racing through my mind for a while now. No pressure at all, but I would love to read your thoughts on this post! I promise to respond to all comments as quickly as possible! I hope you are having a good day so far and it continues to be pleasant. Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa

Struggles With Dizzy Spells

My Struggles with Dizzy Spells

Unfortunately, dizziness is a very common issue for those of us living with Multiple Sclerosis. Of course, this doesn’t make the experience any easier and might even just knowing it is common, make matters worse. It could cause anyone to think it will happen often and or it will never end, but it does end in time. Dizziness rarely continues without an end in MS patients.

Dizziness is a condition known also as vertigo. This issue may cause a person to feel off-balanced, lightheaded, or have a sensation either they or their surroundings are spinning. Even though dizziness and vertigo are often thought to be the same and discussed together, they are both very unpleasant, but also different.

Allow me to describe what dizziness and vertigo mean. Dizziness is used to explain a variety of sensations, such as feeling faint, woozy, weak, or unsteady. This can give a false sense you or your surroundings are spinning, which is called vertigo. Vertigo is not necessarily a condition, but it is rather a symptom. Vertigo may not be noticeable, but can also be severe enough to make it difficult to maintain balance, creating a higher fall potential.

Of course, vertigo is common with multiple sclerosis, which is the reason I am so familiar with this symptom, but it also impacts almost 40% of adults in the United States at least once during their lifetime. In general, this is more common in older individuals, but people of any age can be affected.

There are two main types of vertigo, peripheral vertigo which has other types as well, and central vertigo. Peripheral Vertigo is the result of an issue with the inner ear, which is what controls our balance. The first type of peripheral vertigo is known as Benign Paroxysmal positional vertigo (BPPV). This form is the most common, typically causing short, frequent spells of vertigo. It is believed that small pieces of the anatomical debris break off from the inner ear canal and prompts small hairs lining the inner ear. This process confuses the brain causing the dizziness sensation.

Another type of peripheral vertigo is called Labyrinthitis, which causes dizziness or a sensation of moving when you are perfectly still. An inner ear infection is the common cause of this type of vertigo. There are often other symptoms the will follow the infection, including fever and earache. The infection is in a structure in the inner ear that controls both balance and hearing known as the labyrinth. The infection may be caused by a viral illness such as a cold, flu, or a bacterial ear infection.

Vestibular neuronitis is a type of vertigo that is also known as Vestibular Neuritis. There is an unexpected onset of vertigo that may cause unsteadiness, earache, nausea, and or vomiting. This is normally the result of an infection that spread to the vestibular nerves, which controls our balance. A viral infection, such as a cold or flu will commonly follow.

Meniere’s disease produces unforeseen vertigo that may last up to 24-hours. Vertigo experienced is most often severe causing nausea and vomiting. Meniere’s disease may also cause hearing loss, ringing in the ears, and feeling of fullness n the ears.

Central Vertigo is a clinical condition causing an individual to experience hallucinations involving motion. These hallucinations may be in their surroundings or a feeling of spinning while remaining completely still, this is a result of a dysfunction of the vestibular structures in the central nervous system (CNS).

Vertigo that arises from Central Vertigo is common because of a disease that begins in the central nervous system. Lesions on cranial nerve VIII are common as well.

Vertigo symptoms may be different from person to person. Depending on what is causing the sue, symptoms can range from mild to severe and anything in between. The symptoms of peripheral vertigo and central vertigo have distinct differences which are as follows:

Peripheral Vertigo has signs and symptom that consist of:

*Dizziness

*Feeling you are moving or spinning

*Problems focusing eyes

*Hearing loss in one ear

*Balance troubles

*Ringing in ears

*Sweating

*Nausea or vomiting

Central Vertigo signs and symptoms may consist of:

*Double vision

*Complications swallowing

*Facial paralysis

*Eye movement issues

*Slurred speech

*Weakness in limbs

When you go to your doctor with issues of dizziness, the doctor should do the following ask questions regarding the symptoms and current medications. He should also complete physical exams which include viewing the way you walk and maintain balance and how major nerves of the central nervous system work

Other tests the doctor may order are: eye movement tests, head movement tests, posturography, rotary chair test, and blood work to check for infections.

If you start experiencing dizziness it is best to consult with your physician to find the cause and determine the best treatment plan. Issues with dizziness are not usually life threatening, but it is still best to have a treatment that will best help deal with these issues.

This past Wednesday, I started having massive dizzy spells early in the day. Considering I have dealt with these multiple times during my MS lifetime, I thought it would be best to rest and let it subside on its own. Unfortunately, later in the evening it only got worse causing me to fall twice. I was not injured from these falls thankfully, but it was still alarming. I still was having dizzy spells into Thursday, but they were nowhere near as awful. I am happy to say that today I have been dizzy spell free for almost two days and hope it will stay that way. The only thing I can think is that the heat and humidly is what caused my two days of dizziness. It isn’t even officially summer time, but the southern heat is already pretty bad.

Thank y’all for visiting my site today. I hope you are having a nice, relaxing and safe weekend so far. It leaves me speechless how many people are not taking COVID-19 seriously because where I live the cases are increasing in triple digits now. Of course, I do what I can to stay safe by leaving the house only when necessary and when I do I wear a mask! I would love to read any comments you may have about dizzy spells and if you experience them how you try to manage them. I promise to respond to all comments within 24 hours and hopefully sooner than that! Please know that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa