Most likely many of you are aware that March is Multiple Sclerosis Awareness month. There are only 31 days to raise awareness of a disease that impacts and changes the lives of those living with the disease for the rest of their lives. Although I am sure there are more, I am going to share with you 31 reasons why I detest MS. Of course, I do not mean to sound negative, but this disease is anything but pleasant or easy to deal with. Please know these reasons are not in any specific order.
1. This disease is incurable and a lifelong condition.
2. Multiple Sclerosis is unpredictable and can strike at any time without any notice.
3. Neuropathy is something that can cause issues such as pain, numbness, tingling, weakness, and a pins and needles sensation.
4. Random and frequent headaches, which no one could ever get used to.
5. Numerous appointments with different doctors.
6. The expenses of medication are higher than they should be in the United States where free healthcare is not an option.
7. Vision changes can happen to anyone but seem more common with MS.
8. Multiple Sclerosis can be hard to control considering there are no answers to the causes.
9. Never-ending fears of losing mobility.
10. Constant daily changes.
11. Back Pain, which I have lived with for years in my lower to mid back.
12. Leg pain, mostly neuropathy. This can make walking challenging.
13. Heat intolerance, which living in the south can be miserable.
14. Weight gain due to the inability to exercise much because of the pain.
15. Sleeping troubles due to waking up with pain and not being able to fall back to sleep.
16. Frustrations! You can do everything the doctors recommend, but it does not appear to make a difference.
17. Memory issues.
18. Missing the feeling of being normal.
19. Adjusting to weather changes can be challenging. Too hot creates issues, but too cold can cause me to tense and cause even more pain.
20. Dealing with doctors that do not always listen or understand. Doctors may understand the disease as much as they can, but they have no idea what it is like to live with it. Studying and reading can only do so much.
21. Understanding what creates additional issues, such as food, lack of sleep, stress, etc.
22. Worrying about the possibility of progression. This has always been a huge concern for me.
23. No answers regarding the causes of the disease.
24. With the unpredictability, one needs to always have a backup plan. This may be easy, but it is not easy explaining to friends and family.
25. Trying to stay positive without any changes in medical progress.
26. Knowing the best medication for the disease can be different for each person.
27. MS Hug. This is a painful hug that no one would ever want!
29. Flareups and steroids can weaken teeth causing them to break easily.
30. Fatigue. It is difficult to always feel tired because you are unable to get enough sleep.
31. Trying to explain to others how one can appear normal but are always in pain.
I have always known that this disease can take away my mobility and it has terrified me since I was diagnosed. Of course, I am always aware that it could be worse because my form of the disease is minor in comparison. I used to believe this disease was a punishment for something I did wrong in life, but logically know that it is not. We all have negative moments in life and trying to push past those thoughts can be challenging, but also necessary. This disease does not discriminate and can happen to anyone.
It is always important to remember that no matter what we are dealing with in life, someone else is dealing with something worse. While I do detest MS, I do know that no of us will have to endure something that we cannot handle. Whether this is true or not, it does help me to keep moving forward. Plus, I did make my late grandfather a promise that I will never all this disease to get and keep me down.
Thank you for visiting my site today. I hope you have a wonderful weekend and you are able to recuperate from last week because I know it was a long week. I hope you found what I have shared today interesting and I look forward to reading your comments. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!