Beat The Heat

As y’all already know March was Multiple Sclerosis Awareness Month. Even though March is almost over, MS for me and everyone else living with this illness will continue to battle with the challenges that come along with it. With that being said, I do want to share a few additional posts to further explain the struggles that Multiple Sclerosis creates.

One thing common with those with Multiple Sclerosis is heat intolerance. Simply taking a hot shower, spending too much time in the sun, or possibly making a hot meal because the stove and oven can make the kitchen extremely hot. The reason people with MS are sensitive to heat and temperature changes is that MS causes nerves to lose their conductive coating, which is referred to as a myelin-sheath.

Heat issues may cause a person with MS to have an escalation of symptoms such as dizziness and/or increased heart rate. I am going to share 6 tips that may help you to defeat the brutality of the heat enemy. Some of these tips might seem like common sense, but they are important to mention, or at least I think it is.

Stay Inside:

Logically, this makes perfect sense, but the warm summer months are closing in on us relatively fast and this needs to be very well understood. Staying inside with the air conditioner or at least fans may contain MS symptoms. Be sure to pay close attention to the forecast and avoid outdoor get-togethers when it is too hot. It will be much better for you and your health to stay inside when the temperatures and humidity increase because you do not want the symptoms to get too awful.

Utilize Cooling Products:

There are numerous cooling products available online and in stores. The MS Society has cooling vests, wrist, ankle, neck, and head cooling packs. These are fantastic cooling packs that can help you to tolerate the heat and even make picnics possible. Something as simple as a cloth dipped in cold water and applied to your head can make a remarkable difference in the way you feel.

Ice Cold Beverages:

On those insanely hot summer days, there is nothing better than ice-cold water with or without lemon. It is amazing what powers and benefits can be had with liquids. Aside from an ice-cold beverage, you may also experience relief from popsicles, ice cream, or frozen yogurt. To save time walking to the kitchen at night and searching for something cold to drink, try freezing a bottle of water and place it beside your bed. This will provide you the much needed cool down without leaving the comfort of your bed.

Cool Down in the Pool:

As the temperatures start increasing, spending time in a pool when possible can give you the cooldown needed. Not only will a pool help you cool down but provide you with some exercises that can be done easily and without high impact on your body that might cause you extra pain. For additional cooling powers, keeping your wet swimsuit on after leaving the pool can be wonderful because it will also keep you nice and cool!

Plug in a fan or fans:

The fan you use does not need to be high-tech or fancy to offer you cooling benefits. A simple oscillating fan that is easy to move to other rooms can provide you great and fast relief from the evil heat. A ceiling fan helps to circulate air, which can give useful relief from the heat as well.

Lighten Up Clothing:

It can be astounding how our choices of clothing can make a considerable difference. Thinking in layers of clothing when we get dressed might serve you as a benefit. Dressing in lightweight and easy to remove clothes allows you to remove layers, as necessary.

I hope the information provided in this post was helpful for you. In the southern state that I live in, I can speak from experience on how awful the heat makes me feel. It typically starts getting a little too hot for me in April and previously when I did leave the house, I would be overheated just walking to my car. A few years ago, I did reach out to the National Multiple Sclerosis Society and they sent me a few cooling products that are phenomenal, and I am thankful to have them. Of course, over the past year, I hardly leave the house, but hopefully, things will become safe again soon.

Thank you for visiting my site today. I know I have been a little off with my typical posts, but life and fatigue sometimes get in the way. I would love the opportunity to read what you thought about this information and will do my best to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

9 Multiple Sclerosis Facts

In previous posts, I have explained that Multiple Sclerosis is an autoimmune and neurologist illness. What this means is MS affects the nerves, but also the body’s defenses to fight disease fails and begins to attack the cells. The immune system attacks the body’s myelin when you have MS. Myelin is a protective substance covering the nerves, so when this happens it leaves the nerves unprotected. The nerves being unprotected makes them vulnerable to damage, which causes them to not function as they would if there was healthy myelin. The damaged nerves create a wide range of symptoms that vary in seriousness.

A few additional facts regarding MS to understand are:

1.Multiple Sclerosis is a chronic condition, which means it is a lifelong condition and it does not currently have a cure. It is important to understand that even though there is not a cure, it is not fatal. There are 2.3 million people worldwide living with MS and they all have the standard life expectancy. It is only in rare cases there might be complications severe enough to shorten the life of a person. Overall, with MS most symptoms can be regulated with medication, adjustment to lifestyle, or both.

2. Multiple Sclerosis affects younger adults, and often women. Although MS can be diagnosed in children and older adults, people are mainly diagnosed between the ages of 20 and 50. Women are two to three times more likely to develop MS than men. If the person is diagnosed is over the age of 50, this is normally called late-onset MS. It can be challenging for older adults to find a diagnosis of MS due to other age-related conditions having similar symptoms.

3. Multiple Sclerosis can be arduous to diagnose. Often symptoms and single tests are not enough to be able to make an accurate MS diagnosis. The challenges are due to the symptoms mirroring the symptoms of other conditions. Numerous tests that can be used to rule out other potential causes of the symptoms a person is experiencing, which include:

A. Blood tests to rule out Lyme disease, which can trigger the same symptoms of MS.

B Neurologist Exam

C. Magnetic resonance imaging (MRI)

D. Visual evoked potential (VEP) test, which looks for impaired transmission present along the optic nerve pathways.

E. Cerebral Spinal Fluid (CSF) Analysis is a way to look for conditions affecting the brain and spine. The CSF analysis is a series of laboratory tests performed on a sample of the CSF, which is a clear fluid that cushions and delivers nutrients to the CNS.

F. Optical coherence tomography (OCT)

4. The symptoms involved with Multiple Sclerosis vary and the list is long. The truth is, there is no such thing as typical symptoms because everyone that lives with this illness experiences it differently. Some symptoms may simply come and go, or some may regain a lost function, such as bladder control. A few possible symptoms include numbness and tingling, vision problems, balance and mobility issues, and slurred speech. The unforeseeable pattern of symptoms is due to whatever nerves are being attacked by the immune system at any given time. Most things are just unpredictable, and we must deal with the issues as they come up.

5. Multiple Sclerosis is comprised of relapses and remissions. Remission is the period of time when the symptoms have improved. Remission does not indicate the MS is gone, but these periods may last days, weeks, months, or in some cases years. Relapse or exacerbation is the incidence of a new symptom or worsening of an old symptom. This occurrence can be mild or severe enough to interfere with the ability to function. No two exacerbations are the same, so it is important to consult with your neurologist when you deal with one.

6. There is a cognitive part to Multiple Sclerosis. All the damage MS causes to the nerves can also impact critical thinking and other cognitive (mental) skills. It is not unheard of or abnormal for people with MS to have issues with memory and or finding the right words to convey what they are thinking. A few other cognitive effects may include:

*An inability to concentrate or pay attention

*Decreased problem-solving skills

*Difficulty with spatial relations, which means the ability to perceive two or more objects positioned in space relative to oneself and in relation to each other.

*It is normal for cognitive problems to create frustration, depression, and/or anger, but these are issues your doctor can help monitor and manage.

7. Multiple Sclerosis has been labeled as an “invisible illness” or “silent disease”, which makes sense because at face value people with MS look no different than those without MS. Symptoms such as blurred vision, sensory problems, and chronic pain cannot be seen by anyone else. However, some people that do require special accommodations, even though they do not have mobility issues and appear to be fine. One reason why MS has been labeled a “silent disease” is that even during remission, the disease is still, unfortunately, progressing, which has been referred to as “silent progression” of MS.

8. Staying cool whenever possible is greatly beneficial. Heat intolerance is another common issue that can cause an exacerbation of symptoms. People with MS may experience an increase of symptoms from hot weather or sun exposure, fever or illness, hot baths, or showers, and overheating from exercise.

It might be helpful to use fans and air conditioning, cool drinks, and/or icy compresses to stay cool. Wearing layers of lightweight clothing that is easy to remove may serve as a benefit as well. Also, utilizing a cooling vest that can be purchased online. Although people might experience a heat-related relapse, it is important to understand that heat does not cause MS to progress any faster.

9. Vitamin D plays a vital role in Multiple Sclerosis. Research has indicated a link between Vitamin D and MS, which showed the nutrient can function as a protector against MS and possibly lead to fewer relapses. Sunlight triggers the production of Vitamin D in the body, but that sun exposure can also lead to heat-induced symptoms. There are plenty of ways to increase Vitamin D without sun exposure which include fortified milk, orange juice, cod liver oil, salmon, tuna, and eggs or there are also Vitamin D supplements available.

I hope you found this information useful for yourself or someone you know. Please just keep in mind that I am not a doctor or medical professional, I am just someone that has lived with MS for over 20 years. I have experienced most of what is in this post, but that one thing I did not do when I was diagnosed was have the CSF Analysis. I have heard it is not pleasant, but people do live through it. There are still a few days left in the month of March and I do plan on doing a few more posts for Multiple Sclerosis Awareness. I do feel like there is a lot of information available and it needs to be shared with as many people as possible!

Thank you for visiting my site today. I always appreciate your continued support and truly love reading your comments. I hope you are having a good week and you are staying safe because COVID is still a threat. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Been on my mind

~Living Life With An Unpredictable Illness~

I have decided to write about a few things that have been weighing on my mind lately. Lately, I have been feeling overwhelmed with life, work, and health concerns. There always seems to be something going on in the world from the political insanity to COVID-19 to mass levels of hatred that is being spread even fast than the virus.

I think after everyone that wanted to vote did so and the counting was finished, there should not be any more talk about it. The voices of SO many American people spoke out and there is going to be a new president starting in January 2021! There is a chance we may have hope now because we are not going to have an immature person that is unable to take accountability for what has happened with this pandemic and is definitely not a leader in the White House.

As for COVID-19, if people would just follow the advice we have all been told for months now, MAYBE there would be more control over the virus by now. Unfortunately, the few times I actually leave my house hardly anyone is wearing a mask. I just do not understand why because I know they must have seen the news and see the numbers on the consistent rise. The virus is NOT a joke. This virus is killing thousands of people every day and it needs to stop.

The hatred that is being spread will never make sense to me. I have said this to y’all multiple times, but I have to say it again, everyone should be treated equally and with respect. A person’s race, color, sex, national origin, sexual orientation, religious following, and anything else should not matter because we ALL have a beating heart and feelings. No one should ever feel shame for who they are, but instead should be proud. The rage and hate that is filling the United States must end because the death, injuries, and fear are things that never should happen.

I will end my little rant now, but I do want to share with y’all a little about what my life has been like living with an unpredictable illness, especially during the pandemic. Most of you, if not all of you are already aware that this is definitely not easy. Of course, there are good days along the way, but then there are also those days that are more grueling than any others. The truth is there are some days it is challenging for me to even get down the stairs to the home office and begin my workday because my legs hurt terribly and they are extremely weak, but I do manage to get there.

Besides the continuous pain I have from my knees down to my toes, I have massive amounts of pain issues from the middle to the lower area of my back. Considering I have been living with Multiple Sclerosis for two decades, I have learned to live with the pain. I guess it is safe to say that I have learned to not just live with the pain, but also accept it as part of my life. I mean there really isn’t another way because I am not going to allow for Multiple Sclerosis to dictate my life as I want to control my own life. Unfortunately, there is not a cure for Multiple Sclerosis yet and I want to live my life to the fullest I possibly can. After all, I did make my late Poppy a promise 20 years ago that I would NEVER give up and I refuse to disappoint him by not keeping that promise!

Another difficult symptom I have been dealing with more lately is dizziness. Previously, the dizzy spells were random and only a few times a year, but recently they have been awful. Last week, I had two dizzy spells within a few days of each other. The second one happened after my husband and I finished dinner, and I told him before I tried to start cleaning that I didn’t feel right. When I tried standing up and I told my husband I was very dizzy, so he started cleaning up for me. I still attempted to try helping and when I thought I had control of the dizziness, I fell in the kitchen. Of course, my husband came running to my side to make sure I was not hurt. The only injuries were a few bruises to my knees and thankfully did not hit my head. Even after sitting on the floor with my husband for a few minutes, I still didn’t feel like I could stand without falling, so my sweet and caring husband carried me into our room.

I want to thank y’all for visiting my site today and reading this post. Even though I know some of you can relate to this, I wish you didn’t have to because I know it isn’t all that fun. On my worst days something that helps me get through them is I can hear my Poppy’s voice saying “No matter what you are going through in life, someone else is always going through something worse. “ He always told me he believed in me and that I was strong enough to get through anything thrown at me and I know he was right!

I would love to read your comments and promise to respond as quickly as I can. I know sometimes it takes me longer to respond, but that is because I have been working no less than 45 hours a week and sometimes more. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

My weekend of pain

Three days of migraine & pain hell!

Since Friday afternoon I have been battling with a nasty headache, which I think was more an evil migraine. It started when I was still working and I had to force myself through the last part of the day, which even though I work at home was difficult to make it until 5:00. I know some would say the migraine and pain came from stress, but I actually disagree with this. Yes, I did get a little worked up about a loan I was working because I was a little confused about what I had to do next, but I did get everything figured out and was fine.

I have been working with my new company for three weeks and I still love my job. During the initial few weeks after training, we are all supposed to work on the loans that are assigned to us, and then the team lead would review our work before we could proceed with changing the status to “complete”. Well on Friday while I was dealing with the start of my nasty migraine, my team lead told me I did not need to have my work reviewed anymore and could proceed on my own. I am not sure why I was so shocked by this because I do understand the work, but to be told this during the end of my third week was a good feeling and made me feel confident. This is the same team lead that told me during my second week on the job I was going to be his “rock star”, so I guess I have a lot to live up to!

When I did finally make it through my horrible painful day on Friday, I laid down with an ice pack on my head around 11:00 PM and did not really get up until late Saturday. Not only am I dealing with a migraine from hell, but my entire body aches. I do not know where this is all coming from. It has been incredibly hot in the south, but I do not leave my house so I don’t know why the heat would be causing me so many issues.

As I am trying to write this I can feel the pain starting back up again, not that it actually stopped it just eased up some. Dealing with pain is not easy and can cause some stress. Trying to understand why the pain has to be this severe is something that can’t be understood. Normally, I can deal with pain, but I am not able to deal with head pain.

Headaches/migraines will have me in the bed with an ice pack and nothing helps. It has been a frustrating weekend that is almost over. I can only hope the headache/migraine will leave me alone as the week starts.  I promise I have done everything I know to get rid of the pain, but at this point, nothing is working. I am staying hydrated and even trying to eat.

Do y’all ever get massive migraines or pain in general? How do y’all deal with this? I would like to believe I am a strong person, but I am losing that strength dealing with all this pain. Any advice y’all may have would be greatly appreciated.

Thank y’all for visiting my site today. I do hope your weekend has been lovely, you have been able to enjoy it, and you have stayed safe. Please know that even though I am struggling with pain issues right now, I am always sending y’all LOTS of love, comfort, support, and many positive vibes!

Always, Alyssa

Wednesday’s Random Thoughts

My Random Thoughts

Happy Wednesday y’all. I hope you are having a great week, you are feeling well, and of course, you are staying safe. I keep telling myself to stop obsessing about new COVID-19 cases in the city I live in, but yet I continue monitoring the massive increases daily. It doesn’t make any sense why I keep doing this because all it does is upset me and keep me stressed. I do not leave the house most days unless it is necessary and when I do, I always wear my mask inside places like the grocery store. It blows my mind how many people do not wear a mask and hardly ever respect social distancing. I am not sure which irritates me more, the carelessness of not wearing a mask, or the complete lack of awareness for social distancing. I was thrilled to hear the city I live in passed a law requiring people to wear a mask anytime they leave the house and will be fined if they do not. I think this should have happened months ago!

Do y’all ever have days when there is so much on your mind and numerous things you want to do, but then feel overwhelmed and do not do any of the things you wanted to? Or when your mind is consumed with things you want to write about, but then you just end up staring at a blank page for hours or constantly erasing what you just typed or wrote? I tend to have days like this a lot and do not know what to do about it. Do y’all have any advice? I may being feeling this way because I have not worked in several months and therefore I am not on any logical kind of schedule, which drives me crazy.

Life can sometimes feel more like a very long and nerve-wracking rollercoaster ride with many added sharp curves and free falls. The moment we think things are getting easier and it is safe to take a deep breath, we face another painful challenge. Sadly, I honestly feel like too much has taken place over the past four months or so and there doesn’t seem to be relief or improvement anytime soon.

I don’t think it would surprise anyone, but what we have witnessed recently has been heartbreaking and terrifying. The other situations that have made the news are things we have known to be hellacious issues for a long time, these mainly being inequality, racism, and pure hatred. Y’all know that I tend to blame negative things that happen on the president and even though things he says might fuel hate and racism, the issues wouldn’t be fueled if the people didn’t already feel a certain way to start with.

No one on the face of this earth has ever gone through a pandemic like the one we are seeing now with COVID-19. I do not even think anyone has thought of something this awful. COVID-19 has put fear in people around the world. Unlike some people in the world, COVID-19 does not discriminate and has affected people from all walks of life.

Even though I am viewing the world in different ways right now, not everything is horrible and stressful. Of course, the issues with the virus do cause me stress and sadness. I hate knowing some people that get this virus will lose their life and their family will have that pain to deal with. And even though I am a small-town girl that grew up in a state with no diversity and moved to a big city with LOTS of diversity when I was 19, racism will NEVER make sense to me. I have always believed that everyone was equal and deserved our respect. With people, the only thing that matters to me is how they treat others and the color of their skin, who they love, who they worship, or anything else that is different from my views does not matter.

Thank y’all for visiting my site today and reading some of the thoughts that have been racing through my mind for a while now. No pressure at all, but I would love to read your thoughts on this post! I promise to respond to all comments as quickly as possible! I hope you are having a good day so far and it continues to be pleasant. Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa

Struggles With Dizzy Spells

My Struggles with Dizzy Spells

Unfortunately, dizziness is a very common issue for those of us living with Multiple Sclerosis. Of course, this doesn’t make the experience any easier and might even just knowing it is common, make matters worse. It could cause anyone to think it will happen often and or it will never end, but it does end in time. Dizziness rarely continues without an end in MS patients.

Dizziness is a condition known also as vertigo. This issue may cause a person to feel off-balanced, lightheaded, or have a sensation either they or their surroundings are spinning. Even though dizziness and vertigo are often thought to be the same and discussed together, they are both very unpleasant, but also different.

Allow me to describe what dizziness and vertigo mean. Dizziness is used to explain a variety of sensations, such as feeling faint, woozy, weak, or unsteady. This can give a false sense you or your surroundings are spinning, which is called vertigo. Vertigo is not necessarily a condition, but it is rather a symptom. Vertigo may not be noticeable, but can also be severe enough to make it difficult to maintain balance, creating a higher fall potential.

Of course, vertigo is common with multiple sclerosis, which is the reason I am so familiar with this symptom, but it also impacts almost 40% of adults in the United States at least once during their lifetime. In general, this is more common in older individuals, but people of any age can be affected.

There are two main types of vertigo, peripheral vertigo which has other types as well, and central vertigo. Peripheral Vertigo is the result of an issue with the inner ear, which is what controls our balance. The first type of peripheral vertigo is known as Benign Paroxysmal positional vertigo (BPPV). This form is the most common, typically causing short, frequent spells of vertigo. It is believed that small pieces of the anatomical debris break off from the inner ear canal and prompts small hairs lining the inner ear. This process confuses the brain causing the dizziness sensation.

Another type of peripheral vertigo is called Labyrinthitis, which causes dizziness or a sensation of moving when you are perfectly still. An inner ear infection is the common cause of this type of vertigo. There are often other symptoms the will follow the infection, including fever and earache. The infection is in a structure in the inner ear that controls both balance and hearing known as the labyrinth. The infection may be caused by a viral illness such as a cold, flu, or a bacterial ear infection.

Vestibular neuronitis is a type of vertigo that is also known as Vestibular Neuritis. There is an unexpected onset of vertigo that may cause unsteadiness, earache, nausea, and or vomiting. This is normally the result of an infection that spread to the vestibular nerves, which controls our balance. A viral infection, such as a cold or flu will commonly follow.

Meniere’s disease produces unforeseen vertigo that may last up to 24-hours. Vertigo experienced is most often severe causing nausea and vomiting. Meniere’s disease may also cause hearing loss, ringing in the ears, and feeling of fullness n the ears.

Central Vertigo is a clinical condition causing an individual to experience hallucinations involving motion. These hallucinations may be in their surroundings or a feeling of spinning while remaining completely still, this is a result of a dysfunction of the vestibular structures in the central nervous system (CNS).

Vertigo that arises from Central Vertigo is common because of a disease that begins in the central nervous system. Lesions on cranial nerve VIII are common as well.

Vertigo symptoms may be different from person to person. Depending on what is causing the sue, symptoms can range from mild to severe and anything in between. The symptoms of peripheral vertigo and central vertigo have distinct differences which are as follows:

Peripheral Vertigo has signs and symptom that consist of:

*Dizziness

*Feeling you are moving or spinning

*Problems focusing eyes

*Hearing loss in one ear

*Balance troubles

*Ringing in ears

*Sweating

*Nausea or vomiting

Central Vertigo signs and symptoms may consist of:

*Double vision

*Complications swallowing

*Facial paralysis

*Eye movement issues

*Slurred speech

*Weakness in limbs

When you go to your doctor with issues of dizziness, the doctor should do the following ask questions regarding the symptoms and current medications. He should also complete physical exams which include viewing the way you walk and maintain balance and how major nerves of the central nervous system work

Other tests the doctor may order are: eye movement tests, head movement tests, posturography, rotary chair test, and blood work to check for infections.

If you start experiencing dizziness it is best to consult with your physician to find the cause and determine the best treatment plan. Issues with dizziness are not usually life threatening, but it is still best to have a treatment that will best help deal with these issues.

This past Wednesday, I started having massive dizzy spells early in the day. Considering I have dealt with these multiple times during my MS lifetime, I thought it would be best to rest and let it subside on its own. Unfortunately, later in the evening it only got worse causing me to fall twice. I was not injured from these falls thankfully, but it was still alarming. I still was having dizzy spells into Thursday, but they were nowhere near as awful. I am happy to say that today I have been dizzy spell free for almost two days and hope it will stay that way. The only thing I can think is that the heat and humidly is what caused my two days of dizziness. It isn’t even officially summer time, but the southern heat is already pretty bad.

Thank y’all for visiting my site today. I hope you are having a nice, relaxing and safe weekend so far. It leaves me speechless how many people are not taking COVID-19 seriously because where I live the cases are increasing in triple digits now. Of course, I do what I can to stay safe by leaving the house only when necessary and when I do I wear a mask! I would love to read any comments you may have about dizzy spells and if you experience them how you try to manage them. I promise to respond to all comments within 24 hours and hopefully sooner than that! Please know that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa

What is Multiple Sclerosis?

27b889827d7b041c766fd1b5e7ba47faWhat is Multiple Sclerosis?

March is Multiple Sclerosis (MS) Awareness Month. Multiple Sclerosis is an incurable neurological condition that affects the brain, spinal cord, and optic nerves.  The body’s immune system attacks the protective myelin sheaths that cover the nerve fibers which cause areas of scarring, known as sclerosis. The immune system also attacks and destroys the fatty myelin coating that surrounds and insulates nerve cells which is a process 348sknown as demyelination.

Experts suggest there being 250,000-350,000 people in the United States currently living with this illness. There is an indication the rate of the disease is increasing regularly in the 20th century with approximately 200 new cases each week. Those of Northern European descent have a higher risk for the disease, but Native Americans of North and South America and Asian Americans are at a lower risk. The disease is much more common in colder climates.

There are four types of Multiple Sclerosis, all having different characteristics.

  1. Relapsing-Remitting Multiple Sclerosis (RRMS). This is the most common form, RRMSbeing that 85% of those with MS are initially diagnosed with. Patients with this form will have relapses and periods of stability in between the relapses. Relapses are the episodes when new or worsening symptoms that are not caused by fever or infection appear. These episodes typically lase more than 48-hours. Between relapses are periods of remission where there is no clinical evidence of disease progression. Periods of remission can last for years, but this can range from person to person.
  2. Secondary-Progressive Multiple Sclerosis (SPMS) can basically be considered the SPMSsecond phase of the disease. Most people that are initially diagnosed with RRMS will transition to this form at some point. Symptoms with SPMS will worsen steadily over time with or without occurrences of relapses or remission. There may or may not be times of relapses caused by inflammation, but will continue towards the progressive phase indicating nerve damage or loss. With this form of MS, the disability only continues to get worse.
  3. Primary-Progressive Multiple Sclerosis (PPMS) is less common than the ms_disease-course_PPMSother forms and only affects 10-15% of those with MS. On average people with PPMS start having symptoms between 35-39 years old. There is a slowly worsening of symptoms from the beginning with no relapses or remissions. With this type of MS there can be times of short-term, but temporary, minor improvements, however the decline of neurologic progression is constant. Symptoms of PPMS include pain, electric-shock-sensation running down the back and limbs when the neck is bent, trouble walking, vision problems, muscle weakness, trouble balancing, paralysis, numbness, prickling feeling, dizziness, shakiness, trouble thinking clearly, mood changes, depression, sexual problems, and trouble with bowel and bladder control.
  4. Progressive-Relapsing Multiple Sclerosis (PRMS) is a rare form of MS. There will PRMSbe a steadily worsening of the state of the disease from the beginning with acute relapses, but no remission will occur. The symptoms of this form are the same as those with PPMS.

The first neurologic event suggesting MS is known as Clinically Isolated Syndrome (CIS), which usually lasts at least 24-hours. The symptoms will indicate a single lesion (Monofocal) or more than one lesion (Multi-focal) in the central nervous system (CNS). There are many symptoms involved with Multiple Sclerosis some being common and others being less common.

Common Symptoms Associated with Multiple Sclerosis86665331_3276961818997285_6990907139438936064_n

  • Fatigue (Mental and Physical)
  • Pain
  • Tingling or burning sensation in the arms, legs, trunk of body or face
  • Vision issues (blurred or loss of vision)
  • Stiff muscles
  • Attention and memory issues
  • Dizziness, vertigo, and clumsiness
  • Trouble walking

Less Common Symptoms Associated with Multiple Sclerosis

  • Migraines
  • Speech problems
  • Body tremors
  • Seizures
  • Hearing loss
  • Itching for no reason
  • Mood changes such as depression or euphoria
  • Ability to concentrate or multi-task effectively
  • Difficulty making decisions, planning or prioritizing

Secondary Symptoms that can develop

  • Bladder and bowel problems
  • Difficulty breathing
  • Osteoporosis
  • Muscle weakness
  • Difficulty swallowing
  • Sexual health issues

ms awareness marchWith all the possible symptoms one can experience, there are ways to manage most of them. Bladder control can be something one can experience and this can be rather embarrassing if it happens out in public, but there some suggested strategies to manage this.

  • Drink enough fluids. The kidneys need at least 2 liters of water daily in order to flush waste products. Do not try rationing intake because this could increase the risk of infection.
  • Time your drinks. Try to spread fluid intake evenly throughout the day.
  • Limited caffeine and alcohol intake. Both of these can increase the amount of MS Painurination.
  • Special exercises such as exercises that strengthen the pelvic floor.
  • Continence aids such as disposable pad can be beneficial.
  • Medication can be provided to reduce the urgency to urinate and help the bladder empty itself.

Pain with MS can be primarily due to the neurologic condition. Pain could also be due to secondary conditions, such as musculoskeletal issues as a result of altered posture or spasticity. The weakening of leg muscles tends to trigger aches and pain in the back or knees. The unfortunate truth is, people with Multiple Sclerosis can feel pain anywhere, but there are ways to help manage the pain which includes medication, physical therapy, and relaxation techniques.27b889827d7b041c766fd1b5e7ba47fa

Every person that lives with Multiple Sclerosis is different and deals with this illness in a way that serves them best. A person can experience similar issues as another but at the end of the day, we all handle it differently. Each symptom, relapse, remission, and medication affects each person vastly different but yet can understand what another person is going through. It is vital that no matter what stage the illness is, there needs to be an understanding of what our limitations are and to never push beyond that.

Thank you for visiting my site laughtoday! I hope the information I provided to you was helpful. There is a chance I have stated the same thing in previous years, but I do feel it is important for us to spread as much awareness as we can because it does not seem like this illness is going away anytime soon. I do want to believe that someday in our life time there will be a cure, but until then we must continue to live our lives the best we can. I hope you are having  a great day and feeling the best you can. Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes! 

love-2-e1526867753936

❤Always, Alyssa❤

 

P.S I will be doing additional posts about MS during the month, but felt they needed to be separate posts because there is SO much information available. The crazy thing is, no matter how many years I have lived with MS, reading about it is a little upsetting.  

 

 

 

What you need to know about dizziness!

Dizziness medical concept. Vector illustration.How many of you have experienced dizziness before? I have honestly been dealing with this for many years and know just how difficult it can be. It used to be difficult to explain to others because I didn’t completely understand why it was happening, so I didn’t feel I had a right to try explaining it. When I experience dizziness today, the best and most effective way to help someone understand is, to say it feels like I am trying to walk a straight line intoxicated and it isn’t working.

Over the past few days, I to have had these dizziness times more frequently. I am not sure if stop-dizziness-conceptual-illustration-open-hand-text-163893555it is stress, over-tired, the weather changing or all three of them combined. What I can say is it has been extremely frustrating and I just want it to STOP!

I think many people confuse dizziness and vertigo, whereas they are similar they are different at the same time. Dizziness is not simply a disease on its own, but a symptom of a disease. Dizziness is a feeling of being lightheaded, woozy and or unbalanced. These issues affect sensory organs, such as ears and eyes and can cause fainting. There are many causes for dizziness, which include dehydration, migraines, medications, alcohol or problem in the inner ear where balance is regulated.

download (5)Vertigo and disequilibrium both cause dizziness, but they have their differences. Vertigo is known as a spinning sensation and disequilibrium is the loss of balance. Beign Paroxymsmal Postional Vertigo (BPPV) is the most common cause of vertigo. BPPV occurs when changing positions too fast and is short-term dizziness.

Meniere’s Disease is a disease that affects the inner ear. This can cause fluid to build up in the inner ear with associated ear fullness, hearing loss, and tinnitus. This disease can trigger dizziness and vertigo.

POSSIBLE CAUSES OF DIZZINESS ARE:

  • A sudden drop in blood pressure
  • Heart muscle disease
  • The decrease in blood volume
  • Anxiety Disorders
  • Anemia ( low iron)dizziness-about.jpg
  • Hypoglycemia ( low blood sugar)
  • Ear infection
  • Dehydration
  • Heatstroke
  • Excessive exercising
  • Motion Sickness
  • Dizziness can also be caused by Multiple Sclerosis, stroke, malignant tumor or another brain disorder.

types-of-dizziness-hh19DIZZINESS CAN BE FELT IN A VARIETY OF DIFFERENT SENSATIONS INCLUDING:

  • A false sense of spinning
  • Lightheartedness or feeling faint
  • Unsteadiness
  • Loss of balance
  • Feeling like you are floating or swimming

If sudden dizziness occurs alongside any of the following, it becomes a lot more URGENT to notify your doctor IMMEDIATELY:dizziness looks like

  • Head injury
  • Headache
  • Neck ache
  • High fever
  • Difficulty speaking
  • Hearing loss
  • Blurred vision
  • Numbness or tingling
  • Droopiness of the eye or mouth
  • Chest Pain
  • Ongoing vomiting

feat-how-to-get-rid-of-dizziness12 STEPS TO HELP PREVENT DIZZINESS

  1. IMMEDIATELY sit or lie down when feeling dizzy and do not get up until the dizziness has stopped. This is easy and could save you from falling because of losing balance.
  2. Utilize a cane or walker to help you with stability.
  3. When walking up or down theavoid-vertical-trip-fall-sign-s-4394 stairs, ALWAYS use the HANDRAILS! Personally, this has helped me many times when I felt a little dizzy halfway down the stairs and knew I would not make it without falling if I wasn’t holding onto something. So handrails can be your best friend that will never let you fall!
  4. Try doing activities to help improve balance.
  5. Do your best to AVOID moving or changing positions suddenly.
  6. If you experience frequent dizziness without any warnings, it might be best to AVOID driving a car.
  7. Caffeine, alcohol, and tobacco can trigger dizziness and possibly even make things worse, so try AVOIDING these substances!
  8. At a minimum try drinking 8 cups of water daily, get 7 or more hours of sleep a night and AVOID stressful situations the best you can.
  9. Eat a HEALTHY diet consisting of fruits, vegetables, and lean proteins to help prevent emergencycaredizziness.
  10. If you feel a certain medication is contributing to your dizziness, talk to your doctor about changing the dosage or the medication altogether. REMEMBER, you know your body better than anyone else and should be heard by your doctor.
  11. Over the counter medications, such as Meclizine (Antivert) or an antihistamine as they both help with nausea and dizziness. These medications can cause additional drowsiness, so be sure you will not have to be active or productive after consuming these medications.
  12. Ensure to rest in a cool place and drink plenty of water if your dizziness is caused by being overheated and or dehydrated.

6 REMEDIES THAT MAY HELP WITH DIZZINESS

  1. Dehydration: Of course various things that can cause dizziness, but we need to 82a2e997ed79b4c2f819093416cbb364understand that dehydration is the most common contributor. If you are feeling tired, thirsty and urinate less while you are dizzy, you should try to drink more water and stay hydrated because it should help you!
  2. Ginger: It has been said that ginger helps relieve symptoms of motion sickness, nausea, and dizziness. There are numerous ways to consume ginger including adding to your diet, Ginger Tea or you can take ginger supplements.
  3. Vitamin C: The Meniere’s Society has suggested the consumption of Vitamin C can a1fe476a2524caab5984b0763be3bd66reduce vertigo. Just a few ideas for you regarding foods that are rich in Vitamin C: oranges, grapefruit, strawberries and bell peppers.
  4. Vitamin E: The supplements for Vitamin E may prevent coronary heart disease, support immune function, prevent inflammation, promote eye health and lower risks of cancer. Another important thing about Vitamin E is, by maintaining the elasticity in the blood vessels, it helps prevent circulation problems. A few foods that contain Vitamin D are wheat germ, seeds, nuts, kiwis and spinach.
  5. Vitamin D: I think it is pretty amazing how much Vitamin D helps us. It promotes healthy bones and teeth, supports immune, brain and nervous system health, regulates insulin levels, and supports lung function and cardiovascular health. Some foods that contain Vitamin D are fatty fish, beef liver, orange juice, cheese, and egg yolk.
  6. Iron: People that have anemia are encouraged to get more iron because their levels change. A few foods that contain iron are red meat, beans, poultry, and dark leafy greens.

I know this post is slightly longer than I normally do, especially now that I am back vertigoworking full-time, but this was important to me because of the insane dizzy spells I have been dealing with for the past few days. I would be lying to you if I said they didn’t scare the hell out of me because they do! On a plus side though, at least I haven’t fallen because my last fall was disastrous.

I hope you had a wonderful weekend and you are feeling well. I also really want to thank you for taking time to not only read this long post, but to also leave great comments. The weekend definitely flew by fast, but I guess that is just how life goes! No pressures to answer this question, but do any of you deal with dizzy spells and if so how to you manage them? Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

love-2-e1526867753936

❤Always, Alyssa❤