Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Happy Tuesday y’all! I hope you are having a great week and you are continuing to stay safe! Yesterday was a busy day at work for me, but I prefer it to be busy because it makes the day go much faster. I find when I do not have anything to do, the day drags by and it seems like the clock stopped moving or sometimes backward. How do you prefer your day at work to be, slow or busy? I am curious because I know my husband prefers his time at work to be slow.
Now that we have one day over in our week, I have to believe or at least hope the rest of the week is going to be great! Tomorrow, the new president will be inaugurated and even though some people are unhappy about this, I think a few set of eyes on the problems in the United States might be a good thing! The United States, like every other country has faced some serious hard times. Personally, I think there has been too much violence and a massive spread of hate, which does not and never will make sense to me. I guess this is the reason I found the quote I am sharing with y’all so incredible and touching! I think what this quote says is exactly what we need a lot more of. What do you think?
What do y’all honestly think about the issues you see on the TV that are going on in the United States? The roll-out of the COVID vaccine has not gone the way we all wished it did. I looked it up last night when I would be able to get the vaccine and at this point, it almost looks like people in prison will get it long before I do. I do under that prisoners’ are all in close quarters everyday and therefore could spread the virus much more quickly, but why are it law abiding citizens forced being I to wait and put in grave danger? I often wonder what happened to common sense!
Thank you for visiting my site today! I hope you have a great day, and please stay safe. I know I say it multiple times in each post, but this virus scares me and I want to encourage everyone to do everything in their means, to safe! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! How has your week been so far? I hope you are having a good week and you are able to stay safe, and calm! There are so many awful things that we are still seeing in the country, but we must try the best we can to distance ourselves from the negativity in the world and continue to be good individuals. If you are anything like me, you will be heartbroken because we have a heart and care about the lives of other human-beings.
Let us get out of this negative thinking and stay optimistic. I am hoping the quote I am sharing with y’all today will provide you just a little peace. I am not the best at avoiding stress because I tend to stress about everything, but I am going to start trying harder to practice peace over stress! I can speak from personal experience that stress does not do anything positive for our mental well being. I have found that stress causes me many more health issues that I do not need and it is not worth it, especially with COVID and I do not want to go to the doctor’s office.
How are things going where you live with COVID-19? I will tell you that where I live, the numbers are increasing at a steady rate. If I am not mistaken, the lowest number I have seen in the past few weeks is around 450 new cases. I guess it still does not make sense to me as to why people will not wear a mask or even social distance, I mean this can save lives. I hate to say this, but people still do not think this virus is serious and will not hit home to them until the virus affects someone they know or love. All I want to ask of y’all is stay safe and listen to the advice the experts have shared.
Thank you for visiting my site today. I hope the quote I have shared provided you with peace and encourages you for the rest of the week. I hope your week is going well and you are staying safe! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! It often feels like the days and weeks are going by extremely fast, but then when you stop to think that it is Tuesday and it feels like it should be Thursday. Why do you think that is? I love the fact that work is busy right now because it makes the days go by faster, but sometimes that can be frustrating as well. It is only frustrating when everyone gets demanding and pushy, and I have to explain there is only so much I can do to make things happen! I am learning to not let work stress get too out of control, but it does still happen from time to time!
We have already made it through one day of this week, making the weekend closer than it was yesterday! Even though one day is over, we do still have four more days to get through and we need some tranquil and positive thoughts to help us do that! I hope you will find the quote I am sharing with y’all beneficial, but I do want to read your brilliant thoughts on the quote! I am trying to get better and faster at responding to your comments as well because I love the interaction!
So, how is the weather where you live? I live in the south in the United States, where the weather changes without any real notice. I can be in the high 60’s one day and the next day be in the low 40’s. It is insane, and considering my body takes time to adapt, my system just stays confused. The temperatures are getting colder, which also gives me some problems because I tend to stay tense with the chills and that causes me a lot of pain!
Thank you for visiting my site today! I hope your week is going well so far and you are staying safe! I know the vaccine for COVID was released yesterday, but I still think it will be a while before it is safe, so we need to act accordingly! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! We have already made it through one day and only have four to go, I think we’ve go this! How was your Monday? My Monday was rather long and I work over 9 hours, but overall it was not horrible. I honestly think if the rest of the week follows how Monday was, it will not be that bad. It is nice to hear from upper management they appreciate your hard work!
I got a little distracted last week with work and was not able to do my normal “Tranquil Tuesday” post, which I am sorry for. This week will be different because I am learning how to balance the job I do enjoy and life outside of work! Sometimes I do feel like work and home balance is about as difficult as walk the tightrope at the circus, but it is doable! During the fears of COVID and holidays upon us, we all need a little tranquility in our lives. I hope you will find the quote I am sharing today inspiring and encouraging, but would love to read your thoughts on it! It might not always be easy to be optimistic, but it is much better than being pessimistic.
There is no doubt we are all in the same situation right now with COVID. The living in fear is exhausting and the constant questions is beyond frustrating because for most of those questions, there are no clear answers. The most important thing is, we need to keep ourselves, our families, and other people safe from the virus. It really is not that difficult, it just requires masks, social distancing, and following the experts advice! We are all in this fight together!
Thank you for visiting my site today! I hope you enjoyed the quote I shared and really hope y’all are staying as safe as you possibly can! I do look forward to reading your thoughts and promise to respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We have made it through one day of the week already, so happy Tuesday y’all! How is your “short” week going? Unlike the past few days when I worked, where I worked at least 10 hours a day, yesterday I only worked 9 hours! I think that is progress to slowing down a little, what do you think? The truth is, I do not know how to go slow when I work because I am focused on getting as much done as I can.
I told y’all that everyday this week instead of doing my normal posts with quotes, I was going to tell you two more things I am thankful for and why I am thankful for them. Before I share two more things I am thankful for, I want to thank y’all for sharing what you are thankful for. All of you are amazing and strong people, and I feel honored to have you as friends!
Another thing I am thankful for is something I don’t think about often, probably because I avoid thinking about the past, but I am thankful for the amazing neurologist that caught my Multiple Sclerosis early. My first neurologist was a patient and kind man, and I miss him more than I can even explain. I was determined to prove he was wrong about my diagnosis, but he stood by me and did everything he could to find the right medication for me. Without him and his early diagnosis, who knows where I would be now. For those of you that do not know, Dr. Kaufman was my first neurologist and he retired several years ago. He is irreplaceable.
Something else I am very thankful for daily is my two amazing and loving cats. Our oldest is Chloe, who is 15 years old and still so strong. Our poor baby girl was diagnosed a few years ago with early-stage kidney disease. Even though I can see she has lost weight and sometimes shows she is not feeling well, but that is just because I know her so well and she still beats up on her younger brother! Our youngest is our 10-year-old little boy Sundance. Sundance is a loving little boy with a fun personality, who really isn’t all that little because he is about 3 times the size of Chloe. Sundance has asthma and needs medicine twice a day. These two sweet creatures show so much love for one another and, me and my husband!
I hope you are looking forward to Thanksgiving on Thursday. I know holidays this year are going to be a little different from what we are used to, but we must continue doing what we can to stay safe! My husband works on Thanksgiving, so we will of course, we safe at home with each other and our sweet furbabies, and I am thankful for the safety of our home. We are able to keep each other and those beautiful cats safe and happy!
Thank you for visiting my site today. I hope you have a great and safe day. I am looking forward to reading two more things y’all are thankful for and promise to respond as fast as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! One day down and only four to go, but it is going to be a great week! It is much better to view each day as an opportunity, instead of an inconvenience. There is still so many unpleasant feelings being spread around and it is sad. I know there are some people in the United States that are not happy with the outcome of the election, but many others that are happy with the results. Unfortunately, those that are not happy about the results are angry and starting arguments, and causing harm to others, which should never happen. It is time to let things be what they are and only hope for better times in the future.
The new week has started and Monday is in the past now. To try and cleanse ourselves from troublesome feelings, we need more tranquility in our lives. I hope the quote I am sharing with y’all today will offer you comforting and easing feelings. I do believe the more we try understanding others and knowing we are all dealing with struggles. We might not always know how to help others, but we can at least try listening and put forth an effort.
As we all already know, there are still huge spikes in new cases of COVID-19. All I ask is, please stay safe and continue following the advice we have heard from the experts. It is crucial to always wear a mask when you leave you home and practice social distancing. I know that no one enjoys wearing a mask and I do understand that because it is uncomfortable, but I do think a little temporary discomfort is worth our life. Social distancing is the easiest thing we can do and yet many people have a difficult time with this.
Thank you so much for visiting my site today! I always appreciate you taking the time to read and love reading your comments, which I try responding to as quickly as I can. I hope you have a great day and of course, stay safe! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
We have already made it through one day of this week! How has your week been so far? My week so far has been okay and not as busy as last week, yet! Y’all are probably going laugh when you read this, but that is okay. We have the cutest groundhog that lives behind our house and when I see him in the morning, my day goes much better than when I do not see him. I don’t even know if this groundhog is a boy or girl, but he is an adorable fat little guy that brightens my mood!
We all battle with something in our lives whether it be a chronic illness, work and or family stress or anything number of other things. The great thing is, we all have this internal strength that shines through each day because we refuse to give up. This is why I chose the quote I did for Tranquil Tuesday and I hope it leaves you feeling strong and amazing!
Thank you for visiting my site today and reading my rather short post. It is shorter than I normally do because I am still recovering from my super long week last week. Truthfully, I am feeling a little under the weather with pain and tingling, but I will be okay. I hope you have a great and safe day! I am looking forward to reading any comments you have and will respond as quickly as I can, I promise! Please never forget that I am always sending y’all LOVE of love, comfort, support, and MANY positive vibes!
Many of you already know that I have battled my fight with Multiple Sclerosis for going on 20 years now. Most days I can’t even believe it has been that long and yet I still remember the day I heard the doctor say the words to me “Alyssa, you have Multiple Sclerosis.”I was a 19- year- old girl, alone in the exam room, and was in complete shock. At the time of my diagnosis, I was naïve, scared, and did not know what my life was going to be like. I only knew one person that had MS and she was in a wheelchair. Being so young and clueless I thought I was going to be diagnosed, and then bound to a wheelchair, and then death. I know how ridiculous that sounds now because I have a better understanding of this disease.
Of course, the past 20 years have come with many ups and downs, but not only am I still here to talk about it and hopefully help others living with chronic illnesses. Yes, I do live with various issues, but I have learned to live a fairly normal and full life with all of it. I think it is important to understand that no matter what our struggles are in life, we can learn to make the most of it. Life is short and no one ever said it was going to be easy. I think the more struggles we overcome, the stronger we are.
It has been a while since I have written about Multiple Sclerosis and considering I had an appointment a little more than a week ago with my new neurologist; it might be a good time to write a little about what I deal with day in and day out with Multiple Sclerosis. The real reason I do not write much about it anymore is I do not think it is good to dwell on things we have no control over, but it is important to help others that do not have MS understand what it is all about and others that live with this unpredictable disease to know they are not alone. I say this because I remember when I was first diagnosed, I felt so incredibly and painfully alone.
One of the most important things when living with any chronic illness is finding a specialist that you trust and can work well with. Over my years with Multiple Sclerosis, I have had my fair share of specialists that I respected and trusted, but then there were those I would do anything just to avoid them. The only reason those I trusted, respected, and admired are not my specialist anymore is that they retired. I have only met my new specialist was virtually, but she said one thing that won me over, she knew, admired, respected, and loved my first neurologist. As simple as this may sound, I have been missing my first neurologist since the day he retired. It did take me time to be accepting of him because he was the one that confirmed I had Multiple Sclerosis. The only reason I left the practice he was at is because the neurologist that was taking his place insulted him when speaking with me and this was a HUGE no, no!
During my two decades of living with Multiple Sclerosis, (WOW that sounds like a LONG time), I have faced and dealt with various issues. Of course, some of what I have struggled with have ranged anywhere between being a minor inconvenience to almost unbearable, and everything in between. Symptoms involved with Multiple Sclerosis and any other chronic illness can be different for each individual because we are all unique.
I am sure that most of you know about Multiple Sclerosis because you or someone you know has it, but I am going to take this time to provide you a brief overview, and then I will describe the issues I battle with every day of my life. I will begin by explaining what Multiple Sclerosis is.
What is Multiple Sclerosis?
Multiple Sclerosis is a disease that may become disabling of both the brain and spinal cord. With MS, the immune system attacks the myelin, which is the protective sheath covering nerve fibers and creates communication issues between the brain and the rest of the body.
What are the types of Multiple Sclerosis?
Unfortunately, in 2020 there is still not a way to foresee with absolute certainty how a person’s disease will advance and or how fast this will happen. The four main types of MS have been established by the: International Advisory Committee on Clinical Trials of MS and were defined as the following explanations.
Clinically Isolated Syndrome (CIS):
This is the first occurrence of neurological symptoms that are caused by inflammation and demyelination in the central nervous system. Although the occurrence must last for at least 24-hours to be considered a characteristic of MS, it still doesn’t meet the specifications for an MS diagnosis because those that experience CIS may or may not have MS.
It is when CIS comes along with lesion on a brain MRI, which is typically seen in MS, that the probability of the person having a 2nd MRI is high, and being diagnosed with RRMS is very common.
Relapsing-Remitting Multiple Sclerosis (RRMS):
This is the most common form of MS with 85% of people being diagnosed originally with it. RRMS is distinguished by undeniably defined attacks of new or increasing neurological symptoms, which are known as relapse or exacerbation and are typically followed with partial or complete times of partial or complete remission. While in remission, all symptoms may disappear or the symptoms may continue and be permanent, but during this time there isn’t any progression seen. RRMS can be further described as either active, which is with relapse and or confirmation of new MRI activity in a specific time frame, or NOT active, as well as worsening or not worsening.
Secondary Progressive Multiple Sclerosis (SPMS):
Secondary Progressive Multiple Sclerosis is a type when one was initially diagnosed with RRMS and progressed into SPMS. The progression from RRMS to SPMS is due to the increasing worsening of neurological function over time. SPMS can also e distinguished as either active, not active, as well as progression indicating disability accrual over time.
Primary Progressive Multiple Sclerosis (PPMS):
Primary Progressive Multiple Sclerosis is classified by increased deteriorating neurological function from the onset of this disease and without early relapse or remissions. Just like the first few types of MS, PPMS can also be distinguished as active, not active, progression, and without progression. Only about 15% of people with MS are diagnosed with PPMS.
The symptoms for each person living with Multiple Sclerosis might be very different, slightly different, similar, but they will never be exactly the same because we are all very different. I really did not mean for this post to get so long, so I will briefly share with you the symptoms I deal with both daily and or randomly.
The way I discovered that I had MS all those years ago, is because I lost vision in my left eye and went to the eye doctor. Never in a million years did I expect that this vision loss was the start of my journey with Multiple Sclerosis. After going through the MRI to confirm the doctor’s suspicions, I was put on an insane amount of steroids, which even though I completely and utterly detest steroids; they did help restore my vision. One would think I would have been relieved to learn I wasn’t going blind, but I often think the diagnosis was worse than the diagnosis.
Through the years, I have experienced a wide range of symptoms that have varied from mild and tolerable to awful and intolerable. A few things that have been a constant are pain, numbness and tingling, and spasticity. Sometimes I think that if I had one day without any pain, numbness and tingling life wouldn’t seem as normal. My legs always have that numbness and tingling sensation from my knees to the tips of my toes. It can make walking be challenging depending on how bad it is, but normally I am fine with walking. My back hurts every minute of every day from the middle to lower back, but I try not to let that get me down too much. There are times when the mixture of pain, numbness, and tingling can contribute to muscle weakness. I also experience a lot of fatigue and then have a hard time falling asleep. It is an annoying cycle!
Another symptom I have dealt with over the past two decades that is not very often is vertigo. There was a time several years ago when I was having vertigo very bad, but had a doctor’s appointment with my neurologist and drove myself to the appointment. I did well driving when a little dizzy because I managed to keep between the lines. It is insane that I hardly could walk a straight line, but drove perfectly fine! I have also dealt with the MS hug, which is not a huge anyone ever wants. The MS hug feels like there is a huge snake around you and just keeps squeezing. Another issue I deal with at least three times a week is headaches/migraines. Headaches/migraines are a form of pain that I can’t deal with.
Thank you for visiting my site today and reading about my LONG journey of living with Multiple Sclerosis. It has been a long journey and one I never wanted, but one I wanted to give up on 20 years ago. I am thankful that I did not give up and followed advice from my dear Poppy. When I was diagnosed, my Poppy told me that I was strong enough to handle this disease and to always remember that no matter what I am going through, someone else is going through something a lot worse. I have held onto his words all these years and hope that I can inspire y’all to never give up because you are far stronger than you ever knew.
I know this post got a little long and longer than I anticipated, but there is so much involved when living with Multiple Sclerosis. All the challenges you experience throughout your life are making you stronger and therefore you can inspire someone else to never give up! I am looking forward to reading your comments and I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
Happy Tuesday y’all! I hope your week is starting happy and pleasant! The good thing is we have made it through one day and only have a few days left. Well, we have four days left until the weekend technically, but I think we can handle it. Even during these extremely challenging times, we all find a bright light that carries us through. Our strength, courage, and, pure determination is endless, which are all great qualities to have!
As we enter the second day of this week, we all could use some tranquil and calming thoughts! I hope the quote I am sharing with y’all today will serve a purpose for you and be beneficial as well! Once you read the quote and the rest of this post, I would really love to read your fabulous comments. All of you have such great insight on everything and I truly value your opinions!
I do not know about you, but this year is going by so fast. In a sense, it is great that the year is flying by, but the reason for why the year is going by so fast is pretty sad. Y’all know it is time to change the clocks this weekend, right? Fall back, which if I am not mistaken we actually again an hour sleep! Fall/Autumn is my favorite season because it is not too hot or too cold, the weather is just right!
We have been dealing with this pandemic all year and the end seems so far away. I think it is challenging to keep up a positive out look when so many are losing their lives or someone they love, or becoming very ill, or losing their jobs because of COVID-19. I still feel that if we all can continue following the very brilliant advice from top professionals, like Dr. Fauci, the Centers for Disease Control, and World Health Organization,we may have some hope to see the end of this pandemic and get back to our true normal!
Thank you for visiting my site today. I hope you enjoyed the quote I shared with y’all, and also hope you are having a great week so far. I promise that I will respond to all your comments as quickly as I can, but it might be after work. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! How has your week started off? My week has actually started pretty great, except for the ridiculous pain in my legs. I am thankful that I do not need to leave the house and do not have to walk much, but it still hard to deal with. Honestly, if I did have to leave the house and go to an office, I might not be able to because the pain in my legs is just that awful. Anyways, enough of that negativity and onto more positive news! Things with my job are going very well and I have even been requested from at least one of our lenders. I have made nice with them and really enjoy working with the lender!
We have made it through one day of this week and have four to go! From how the week started, I am thinking it is going to be a good week! I have my first appointment with my new neurologist on Thursday and thankfully it is virtual! I have heard nothing but great things about the new neurologist, so I am actually a little excited about it. I do not want to get my hopes up too high because I do not want to set myself up for disappointment, but we will see how it goes! From my own personal experience I know the typical personality of neurologists, but hopefully this one will be different.
To try to maintain the much needed tranquility we all need during these very challenging times, I have found what I think is a great quote. I do look forward to reading what you think about it though because your opinions matter so much to me! I find your comments truly amazing and insightful! I will do my best to respond to all your comments as quickly as I can, which might not be until I get off work.
Thank you for visiting my site today! I hope you are having a good week and of course, you are staying safe. Times with COVID are unfortunately getting even more scary, but as long as we are following what the experts are suggesting we should be okay! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!