What is an exacerbation?

downloadWhat is an exacerbation?

An exacerbation of Multiple Sclerosis can also be referred to as an attack, a relapse or an episode. All the terms all mean the same thing which is the occurrence of new symptoms or worsening of an old symptom. These range from mild to severe enough to interfere with a person’s ability to function in daily life. The exacerbation will follow the following criteria:

  • Previous symptoms become more severe or new symptoms have started to show.
  • Symptoms last longer than 24 hours, commonly lasting days or weeks.
  • A total of 30 days has passed since the start of the previous relapse.
  • Healthcare provider has ruled out all other possible causes for an exacerbation, including infection, heat, and stress.

It is critical to know when this is happening because early treatment can help reduce the4061413_0 impact on the person’s body. It must be known that no two exacerbations are alike and can change slightly.

The reason an exacerbation occurs is due to the immune system attack on the myelin sheath, which then causes slow or interrupted neuronal signals in the brain and spinal cord. An exacerbation can consist of balance problems, coordination, eyesight, bladder function, memory or concentration problems, mobility, fatigue, weakness, numbness or needle-link sensation.

Mild symptoms such as fatigue, numbness, and needle-link sensation could potentially improve on their own and not require treatment. More intense issues could be considered a severe exacerbation which could include vision loss, extreme weakness, and poor balance. During a severe exacerbation, a person’s daily activities could be a8da7fee83bb302fc12586a3f9ceba87affected and a short course of high-dose corticosteroids may be recommended by the specialist.

The high-dose of steroids helps reduce the severity and duration of the exacerbation. Even though steroids work well with the exacerbation, they can also have some rather unpleasant side effects including increased appetite, weight gain, fluid retention, high blood pressure, irritability, confusion or delirium, increased risk for infection, and easy bruising.

Symptoms for each person with Multiple Sclerosis are different. Being aware of common triggers for an exacerbation is vital for each person to know and even though symptoms can occur without any notice it is important to try avoiding certain things the best one possibly can.

4 Common Triggers for an Exacerbation:

  • Stress- Part of living with an illness like MS is emotional stress which can lead to other common MS symptoms such as depression. Stress does have the potential to lead to additional MS symptoms such as fatigue and confusion. It is a crucial part of MS treatment to have a good and solid support network of people that can help out both physically and emotionally.5b5818d351fd852135d701917fb6483c
  • Fatigue- Sleep is essential for those with Multiple Sclerosis. Small issues like lack of sleep can trigger MS symptoms. It is very important to have good healthy eating habits, sleep well, and getting exercise daily which will help combat MS fatigue.
  • Infection- Infections cause about one-third of all exacerbation. Urinary tract infections are very common because some people with MS have reduced bladder function. Any infection can weaken the immune system; even the simple ones like a cold or the flu and cause an exacerbation. It is extremely important to avoid being around sick people, but when it is unavoidable be sure to wash hands frequently.
  • Heat- Infections leading to fever can be something to worry about considering increased body temperature is a very common trigger. MS symptoms, especially tingling gets worse in the summer because of the heat. It is predominant to get into the air conditioning or take a cool shower to reduce heat symptoms from occurring.

multiple-sclerosis-awareness-month-tshirt-ms-orange-ribbon-noirty-designsThank y’all for visiting my site and reading about what an exacerbation is. Speaking from personal experience an exacerbation can be awful and also frustrating. Even though I do know that steroids help the episode duration be shorter, they cause my mood to change so much that I have a hard time with them. They cause my temper to come out much faster than it normally would and also cause me to feel edgy and unable to sleep.27b889827d7b041c766fd1b5e7ba47fa

For any of you that have experienced an exacerbation and were put on steroids, how did the steroids make you feel and did they help the episode not last too long? Also, if you have anything you would like to add to this, please let me know. I always want to spread the awareness as much as I can because I think it is important. Even in 2020 I do still think there are a lot of misconceptions about MS and people are very quick to judge, which can cause feelings to be hurt. Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

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❤Always, Alyssa❤

My Letter to Multiple Sclerosis

Good Morning

Good morning Y’all! I hope you are having a great weekend so far and you will be able to enjoy your Sunday! After all the topics I have been able to address, I managed to forget one of the most important topics. While reading several different blogging forums, I thought it would be a good idea to address the thing that brought me to blogging in the first place, my Multiple Sclerosis. So today I am going to share with you the letter I would love to send to this illness. This might be a little longer and full of emotions, but it is also very real! I hope you enjoy this! Maybe this could be something for you to try, write a letter to your illness!

Dear my not so loving friend Multiple Sclerosis,

You invaded my body about 18 years ago and just stuck with me without fail. We have been through many relapses together over the years; all the while you tried to defeat me. But let’s face it, I will not surrender to your persistent bad behaviors and will not allowms 3 you to keep me down for too long.  

In the beginning of our “so-called friendship”❤, you tried to take my vision from me, which let me just say was not a good way to become the lifelong friends we were forced to be!! Of course it took a little help from the not so exciting steroids, but my vision thankfully returned to normal! You have tried over and over again throughout the years to take control of my legs by causing me so much pain and numbness, but I am still able to walk without the assistance of what I think you were aiming for. You have caused me so much pain and suffering for way too many years, but I still continue to fight back with all my might because I never plan to give up and allow you to control my life! The truth is, you are the one losing our constant battle and I am shockingly enough the one winning the war!

Let us not forget the fact that you have chosen to take up to residence in my brain causing many other issues for me! There are the several times a week debiting only choice we haveheadaches which normally end to severe nausea. The headaches you decided to inflict me with make it nearly impossible to do anything at all! It was also decided by YOU to cause some brain fog and dizziness, making me feel confused and frustrated. The horrible back, neck and leg pain is more than enough for me to live with, don’t you think? Please get out of my brain because you are being EVICTED IMMEDIATELY!

I bet you thought you were being clever by giving me hugs every now and then! Well I do not like or appreciate your unwelcome hugs! So in the future, please do not do that! Just in case you did not already know, your hugs are very painful!

I guess during the 18 years we have spent together, you have become the ❤friend that I never asked for or wanted and you just will not go way to give me a break. You are pretty much worse than the most obnoxious uninvited guest that will NOT LEAVE no matter how many hints you are given! The only thing I can do now is just embrace the fact that you are just here for the long haul and will surface whenever you please without so much as a warning which let’s face it is really inconsiderate! 

Oh and what about all those different medications you want me to take? Do you not realize just how much some of these medications can and do affect a person’s body or do you just not care? Why must you be so complicated that the smartest minds of the world can’t seem to find a way to make you vanish? They sure can create so many drugs to “slow” the progression of the illness down but not make the illness stay in a remission Get MS montage plate picstate FOREVER! I am starting to think that you, the malicious drug companies and the not so compassionate greedy insurance companies are working closely together to do nothing more but make LOTS OF MONEY yourselves!

So my dear not so sweet friend MS, now that you have heard a little from me about how you make me feel, when are you going to move out of my body allowing me to be free of you? I think it is long since time to depart from each other!

Thank y’all for visiting my site today❤! I really hope you enjoyed reading the letter I would love❤ to be able to send off to Multiple Sclerosis. Of course I would love to read your thoughts on this, so please let a comment for me and I will respond as quickly as I can. I really hope you are feeling well today and can enjoy your Sunday! As always remember that I am sending you  LOTS of love💞 and comfort!

My signature heart

❤Always, Alyssa❤

 

Fight for your health!

fight for a cureI hope y’all have a lovely Monday! First day of a new week may bring some wonderful and positive changes to all of our lives! I really appreciate y’all visiting my site today and as always love to read your comments, which I do respond to as quickly as I can! Most of the time I like to write about the random things that are on my mind. This helps me to release all those emotions and then getting your feedback help tremendously, so thank you for all of your fantastic comments!

How do you fight for your health instead of fight against it? It is so important to be vocal with your doctor and never allow them to dismiss what you say or rush you out of the exam room. We all know our bodies and how we are feeling better than anyone, so that should be listened to. I think at times it is hard to admit what our body is telling us and our body feels as though it has to scream it at us, which may cause additional issues. I am one that will ignore issues that arise for as long as possible because I do not want to admit to the problems. Ignoring or neglecting our health will never result in anything beneficial. This is where fighting for our health becomes extremely important. If we ignore what our body is telling us we are actually fighting against our own health.

I am actually going to my MS Specialist on Thursday. I am going to my specialist partially because I am supposed to see her every 6 months and partially because I want to share with her my concerns. I already know going in that my issues with headaches will be dismissed because she seems to think that MS and headaches have no correlation, but I think it is still important to bring the topic up once again. I also want to discuss with her the fact that the issues that came with my relapse in October have not really gone away. I am fully aware that the body heals from each relapse differently, but I should have improved drastically by now and not continue to have pain that affects my ability to work full-time. I just really need answers to why I seem to be at a stand still in health. Do y’all have any suggestions to how to grab this doctor’s attention?

I hope y’all have a great and relaxing evening! As always I am sending y’all lots of love and comfort! Try to hold onto your positive thoughts because they will help in the long run and negative thoughts will only hold you back.

Love 2

Always, Alyssa

Hiding behind a mask

maskDo you ever try to hide behind a mask of what you think you should be? Or hide behind the mask of what other’s think you should be? Sometimes admitting how you truly feel can be terrifying and almost make you feel weak. Periodically I think most of us try to be strong and act like everything is fine when it really isn’t. Always trying to be strong by not allowing anyone to see your pain and struggles becomes a normal way of life, but is that really the best way to live life?

Do you ever feel that you need to disguise your feelings? I can fully admit that I try to not allow my feelings to  come to surface when I think they will cause others additional stress. If I am being honest, I do worry about my Multiple Sclerosis and if things are progressing too fast, but it is not good to over think situations you have absolutely no fake our smilecontrol over. Holding on tight to positive thoughts can be very difficult, but can really change your life, whereas allowing negative thoughts in your mind can be pretty destructive. If I allow my mind to think that my MS is progressing it makes it a real thought opening doors that I prefer not walk through. Building a barrier between our thoughts and reality is sometimes possible if we try!

Stress is a silent killer that can impact all of our lives. So how in the world do you avoid it? Some stress is actually avoidable, but then some stress is completely impossible to avoid because it will come at you with full force. The ways we handle stress are really important! I have tried doing some research about how to avoid stress and found some tips that might be helpful. Avoid caffeine, alcohol and nicotine. So many turn to alcohol when they become overwhelmed, but it is very well know that alcohol is a depressant so that will never be helpful in any way and could cause even more problems. Indulging in physical activity can be helpful for our health as well. Stressful situations increase the levels of stress hormones such as cortisol and adrenaline in the body. So we might be able to take some of the adrenaline from stress and turn it into something positive. Lack of sleep is a significant cause of stress. Stress can interrupt our sleep because our minds are in a constant whirlwind of thoughts which stops us from relaxing enough to even fall asleep. If we are having a hard time falling asleep there are things to try like taking a warm bath or reading a book because these will calm the mind! Starting a stress diary where you can write out your feelings and keep track of your thoughts can be very helpful! Writing out your feelings can help you find ways to solve your problems and not have to worry about judgement from others; your journal will not talk back! These were just a few MS Hopeideas that stuck out to me, but I know there are so many other ways to handle stress! 

I have been very worried about health care in the United States. There have been so many changes that are not really for the positive. I think doctor’s schedules are so full it makes it hard for them to give each patient the attention they deserve and they may even confuse patients. With the doctor’s schedules being so incredibly full, I think sometimes their notes can be misleading and incorrect. I actually know this to be true because I recently had my doctor’s office give me a copy of the notes for the last few years.  I have also been very concerned about my MS because things have not gotten much better since the relapse I had in October. I do not know if this means the MS has progressed or if the additional non-stop pain is just here for the long haul. All illnesses are like uninvited guests that just will not leave and make messes during their stay.

I know the weather has been a little crazy all over the world, but I hope y’all had a great weekend! The snowstorms that have occurred at the end of March have been pretty unusual, but I hope if y’all have experienced this you were able to stay warm. I am hoping that this upcoming week will bring us all some pretty spring temperatures. Y’all have already read before that I am never fully ready for the new week to start because I would prefer to have another day of rest. Hopefully this new week will give us some real joy and comfort! I really appreciate y’all visiting my site today and I do look forward to all of your comments! I hope the remaining part of your weekend is absolutely fantastic and restful! I am always sending y’all much love and comfort!!

Love 2

Always, Alyssa

Common Triggers for an MS Flare Ups

TriggersGood evening Y’all! I am carrying on with MS Awareness Month sharing more information with you about the illness. Have you even analyzed what was going on in your life when you had a MS Flare Up? In a way I guess I have, but still never made any changes to what was going on in my life. I know it will not be any fun and might be a little painful thinking back to your most recent flare up, but what was going on at that moment in your life? I will tell you that the major flare up I had this past October was completely and 100% due to stress. Below are some very common triggers for an MS flare up.

 1. Stress:

         a. Emotional stress can lead to a very common MS symptom, depression.

         b. Stress can lead to additional fatigue and confusion, probably from lack of sleep.

    2. Fatigue:

       a. Sleep is very important for everyone, but it is vital for those with MS.

       b. Most people with MS have a lower reserve for energy, so small tasks can be           exhausting.

    3. Infection:

        a. Infections cause about 1/3 of all flares up.

        b. Due to reduced bladder functions in some MS patients, Urinary Tract Infections are very common, which in turn can cause a flare up. 

        c. Even a slight cold or the flu can initiate a flare up. This makes it very important to seek medical attention at the first indicator of a cold or the flu so you can get in front of the ailment before things get worse. 

     4. Heat:

        a. Increased body temperatures, whether due to the weather or having a fever.

        b. Symptoms, like tingling and numbness tend to be more intense during the summer because of the outside temperatures. It is important to stay in the air conditioning as much as possible or try things like cooling vests.

Flare UpNot all MS flare ups are going to need to be treated with steroids. Lord knows, for any of you that have had to be on them they are miserable. Even though I know steroids help shorten the flare up, I will do just about anything to avoid them! Typically issues like tingling, fatigue and mental fogginess will go away on their own, especially once the trigger has been eliminated. Unfortunately there are more severe MS symptoms that can affect mobility and vision that will require a short course of steroids. Each person does need to learn what triggers the various symptoms that take place during a flare up. Sometimes it is easy to acknowledge what your triggers are, but an entirely different situation addressing those known triggers.

Do you know what triggers any flare ups you have had in the past? Do you think there was a way to avoid this flare up if any behaviors had been altered? I do believe if I could learn to manage my stress a little better, I could possibly avoid many flare ups in the future. I can acknowledge what my triggers are, but I have a problem making changes with the issue, which is normally stress. This is not a good excuse for not making changes, but it is in my nature to worry about people I care about and feel an overwhelming need to help them through their problem or problems. I always want to fix whatever issue or issues my loved one are experiencing. Even though logically I do know that I am not able to fix everyone mselse’s issues, but should really focus more on my own life I do still try. This does not fix whatever my loved one is going through, but just causes me so many more issues with my health and an increase in my pain. 

I want to thank y’all for visiting my site today. As always, your comments are very welcomed and I will respond to you as quickly as I possibly can. I know this information is probably well know already, but I hope that it reminded you to be mindful of your own health and try to know what could be possible triggers for you. This information about flares and triggers is not just isolated to MS, but can also carry onto other illnesses. All illnesses can have triggers that cause that illness to rear their ugly heads. I hope y’all have a nice and relaxing evening. As always, I am sending you lots of love and comfort!

Love 2

Always, Alyssa

 

Multiple Sclerosis Awareness

Awareness_buttonThe Multiple Sclerosis Association of America (MSAA) recognizes March as Multiple Sclerosis Awareness Month, so I would like to share some valuable information about this illness with y’all. Many of you already have a decent amount of knowledge on this illness because either you are living with it or know someone who is, so some of this information you are already aware of! Preliminary results from the National Multiple Sclerosis Society reported nearly 1 million people in the United States live with Multiple Sclerosis and 2.3 million worldwide. This seems like a massive amount of people living with this illness worldwide with no cure, yet. I would ask why, with so many fundraisers to find a cure for this illness, why there has not been one found yet, but I think it is pretty obvious what the reason is. You might disagree with me and that is okay, but the drug companies would lose so much money if a cure was released and the greed takes control with that!  I might be wrong about this and it is just hard to find a cure for a debilitating illness, but it would be really great if there could be as it would help so many worldwide.fight for a cure

Multiple Sclerosis is a very unpredictable and sometimes debilitating disease of the central nervous system. This disrupts the flow of information within the brain and between the brain and body. MS is typically diagnosed between the ages of 20-50 and diagnosed 2-3 times more often in women than men. Symptoms do range from numbness and tingling to blindness and paralysis and the severity of symptoms differs drastically between each person.MS Awareness

In 1868 the famous neurologist, Jean-Martin Charcot, lectured on features of Multiple Sclerosis and actually gave it the name. Jean-Martin Charcot was a French scientist, instructor and physician who was the claimed founder of modern neurology. Throughout the 1800’s and 1900’s many other therapists/physicians tried without any success in the treatment of MS. These therapists/physicians created and tested what to me sounds like some very dangerous treatments. One of these dangerous ideas was something called Deadly Nightshade. Deadly Nightshade was a plant with poisonous fruit, arsenic, mercury and injection of malaria parasites. This sounds more like a death sentence than a treatment for the illness. 

It was not until 1951 when steroids started being used to treat relapses in MS patients. Steroids are used to reduce the severity and duration of the relapse. They do not have long-term effects on the disease, but are just used as a short-term fix like a band-aid that just assists the issue. For those of you that have been on steroids, you already know they are not any fun at all. I know when I have been on steroids they make me extremely irritable, exhausted and I have literally no appetite. I think normally steroids increase appetites, but they do the exact opposite for me. I guess I am a little abnormal! Even though steroids have some horrible side effects, they do seem to make the relapse a little shorter.

The first drug that was proven to be effective for a long-term treatment of Multiple Sclerosis was approved in 1993. Since 1993, there have been 15 long-term treatments approved for MS. The 15 approved disease modifying medications include injection, infusion and oral. These disease modifying medications are meant to slow the March is MS Awareness monthprogression of the disease and delay any disability, but unfortunately is not a cure.

In all honesty, I had no idea that this illness had been around since the 1800’s. When I was first diagnosed, I knew hardly anything about the disease. I only knew one person that had MS and granted she was older than me, but she was disabled. I had this overwhelming fear that I would end up in a wheelchair like her. But, it has been almost 18 years and I am still walking just fine. I do experience terrible amounts of pain, numbness and tingling, but at least I have not lost my ability to walk and look like I am perfectly fine. During the times my pain is extremely high is when my motto is “Fake it til you make it!”

For those of you that have been following my blog, you already know I tried numerous different disease modifying medications until I found the one that has been working well for me. I guess back in 1993 when the medications were being released there were far fewer choices for a person to choose from, which must have made things a little easier. Now with so many to choose from you must do your research and test for yourself what works. It is okay to start a medication and find it does not work well with your body chemistry and switch to something else. It is however very important to find one that will work for you so you can have a little better control of the disease. There are a couple of websites that I would encourage y’all to check out as it has a lot of important information MS Warriorabout MS, https://www.nationalmssociety.org/ and https://mymsaa.org/ .

I hope y’all have had an amazing weekend. The weather sure has changed here in the south towards more of a spring like time. It is crazy considering it is technically still winter until March 20th, but I can not complain. It was so warm in February which does make me a little worry about what summer is going to be like. I mean seriously, it was 80 at the end of February, so what are the temperatures going to be in July? 

Thank y’all for stopping by my site today. I hope the information I have given was valuable and interesting. I spent a lot of time researching Multiple Sclerosis when I was first diagnosed, but over the past few days I did a little more reading and what I discovered was so interesting. I hope you enjoy the rest of your Sunday and I hope you are prepared for the new week to start. Truthfully, I am never completely prepared for a new week because the weekend is so short, I always feel like I did not get anything accomplished, if only the weekends were longer! I look forward to any comments you may have about this post today and I will respond to you as quickly as I can! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

 

 

Reflecting on 2017

dwell on the pastI know there is normally no use dwelling on the past because it is more important to look towards the future, but reading some of my previous posts got me thinking. There was a lot of talk about pain in 2017. Everyone probably already knows that Multiple Sclerosis does come with a fair amount of pain but does talking about it really help? I know that writing about the pain did not make the pain magically go away, but in a way it helps to get those negative feelings out. Sharing my story with many people I unfortunately have not met in person and hearing their stories made the situation a little less lonely.

Living with an invisible illness can make people feel a little isolated at times. Granted for the most part my family understands my illness and is understanding, but when I go to work not many if any of my co-workers really know what I live with. When I park in a handicap parking space at the grocery store, not because it is impossible for me to walkinvisible-illness but because it does cause unnecessary pain to walk far distances, people look at me like I am committing a crime because I look perfectly normal. I have learned to not allow the judgments of others to affect my life but sometimes the looks are a little disturbing. I will never take the last handicap parking space at any store because another person might have a more severe condition and need it a lot more than I do. I always try to be considerate of others even if it does in turn cause me a little extra pain.

I have had Multiple Sclerosis for almost 17 years, but in October I had a ferocious flare up that caused me immense troubles. I was out of work for over a month on short-term disability which caused me some emotional troubles as well. All I could think is why am I only 36 years old and already on short term disability? Is this only going to continue on this path and force me to be viewed as a disabled woman? As crazy as it might sound I strong enoughfelt a vast amount of shame with this. I did not want anyone besides my direct manager to know anything about this so I did not have to deal with any ignorant comments when I did returned to work. Thankfully the short-term disability did not extend and I am slowly getting back into the swing of things at work. I am not working a full 8 hour day yet because it is not worth pushing myself too hard just to have a setback. It is called prioritizing, I am learning to put my health first and put my job second.

Pain is inevitable and continuing to live life is not optional. I still battle pain each day, but I refuse to give up. I want to be able to live a normal life even if my normal is different from others. hne_pain_and_suffering_We are given a chance to enjoy our lives no matter what challenges are we encounter. I am trying to fight my pain and MS with a positive and optimistic mind-set, it might not work every day but I will not allow these issues to control me! 

I hope y’all are having a good weekend! Hopefully you are feeling well and staying warm! These crazy cold temperatures have made me want to stay inside with my blanket and heating pad. According to the weather channel the temperatures will be on the rise next week, but whose to say that will last or really even happen. 

Thank you for visiting and commenting on my thoughts of day! I always appreciate hearing what you have to say and do always respond as quickly as I can! I hope you have a great and relaxing evening!! Much love to y’all!

Love 2

Always, Alyssa

First time with Rebif

journey continuesAs promised, I am carrying on with my fun journey of being diagnosed with Multiple Sclerosis. Unfortunately, when I was first diagnosed in 2002, there had not been oral medication approved or probably even thought of yet, so I did not have many choices. Like I had said in one my previous posts,  my doctor strongly urged me to try Rebif because he had seen a lot of success with his other patients, so I did give him the benefit of the doubt.

I can remember the first time I gave myself the Rebif shot! It took me forever to get the needle into my skin only because I was so scared of what was going to happen and how it was going to feel. I remember I asking my mother to be at my apartment with me because I never thought I was not going to have the courage to do it by myself, especially the first time and I needed a little support. Shockingly enough I did manage to get the needle in but then had a hard time actually releasing the medicine because it was already burning like fire. All in all I think my first injection took me about 20 minutes to complete, but I was proud of myself when it was over because I actually did it myself! I can still remember how much the medicine burned as it was released from the syringe and told my mother I would never do it again because I hated every moment of it. ThatRef evening I woke up several times feeling like I had the flu because I was cold but sweating and my body ached all over. Even the next morning I felt like I was still sick so I called the doctor worried. My doctor told me it was very common to have flu-like symptoms with Rebif and before my next dose I should premedicate with Advil or Tylenol,  as they would combat those negative side effects. Of course me being the patient I think every doctor dreads having had a lot of questions! I could not understand why a medicine that was supposed to be helping me would cause me to be even sicker and require more medicine. My goal was to take as little medicine as possible and they were only increasing what I had to take.

The next time I had to do the Rebif, I asked my mother to come over to my apartment and do the injection for me. I just could not handle  pushing a needle into my skin knowing  exactly how bad the medicine would burn and how I would feel the following day. Thankfully my mother was able to help me and do the injection for me. Afterwards, I did manage to do the injections myself for the most part. My husband knew what days I was supposed to do the injections and would remind me and encourage me to do what was needed. 

Technically, I was prescribed Rebif for about two years but slowly stopped doing the injections on the days I was supposed to because I had too many bruises and ran out of injection sites that were the easiest for me to do. My doctor figured out that the medication was not working because I was having more issues arise but he did not know the real reason it was not working, so I finally told my doctor that I was not taking the medicine any longer and told him why. I explained to him that I was not good at doing an injection every other day, so he and I discussed different options. Unfortunately my options were limited to other injection based medications or IV medications and I was not comfortable with any of my options and needed time to think about what I would do next. 

From my own personal experiences I know just how important it is to find the right disease modifying medication that works best for you. Back then, the diagnosis was still new to me and I was still being stubborn not wanting to face the facts that I needed to do something to slow the progression of the disease. I made bad decisions solely based on not wanting the illness to have any effects on my daily life and not wanting to  admit that this illness was not going anywhere. It was a childlike mind thinking if I did not Unknownacknowledge it, there would not be any consequences. I went as far to tell my doctor he was wrong and I did not have MS and I was getting a second opinion. I did exactly what I said and got a second opinion from another specialist. Those were two bad decisions all in a matter of a few months. I stopped taking anything for the MS and went to another doctor that did not seem to have as much knowledge. I ended up having my first bad exacerbation which caused me a lot of weakness and dizziness and I ended up back with my first doctor. As terrified as I was about going back to the doctor I told was wrong, he was very understanding about my feelings. This was also the first time the exacerbation was bad enough to require IV steroids. There were a few other medications I tried before finding the one that was best for me, which I will get to in my next post. These posts are taking a little longer because they are all emotionally draining for me.

I do completely understand how hard it is when finding the right medication for MS, but it is really important to do your own research and give things a try with an open mind. I have tried a number of medications so please do not hesitate to reach out to me if there are any questions I can answer for you. Please keep in mind all my answers are only based on my own experiences as I do not have a medical degree. Considering I have gone without taking anything I do know it is not the best idea and I only want to help!

Thank you for visiting today and sharing any comments you may have. I will respond to all comments and emails as soon as I can! I hope y’all had a good Monday and I hope you are having a great evening! Much love and take care!!

Love 2

Always, Alyssa

Day 2 back at work

WednesdayYesterday, my second day back at work was not very successful. I had planned to be at work longer than I was on Monday, but after only 3 hours was starting to feel absolutely terrible. Last night, I could not sleep at all because my pain was so extreme. I ended up not going to work today because of not sleeping and being in too much pain. I am hoping tomorrow will be a better day!

Trying to heal from my most recent exacerbation has been pretty difficult and I do not really know why. I am trying to remain positive because I do believe that is the only way healingto deal with hard times. If you constantly stay in the negative mind-set, things will never improve. But honestly, I have been being positive and getting rest, but things are not getting any better. I guess it is possible that I am trying to rush myself to get well and I am being hard on myself if I can not do something, like going to work today. I know my manager is very understanding, but I just want things to be normal again. I could not even do my daily post yesterday because I felt so horrible. I guess tomorrow is always another day to try again!

I am planning to rest tonight and try turning my brain off for a little while. I will do my best to go back to work tomorrow with my adjusted hours, but if for some reason I can not do it, it is going to be okay. We can not rush the way our bodies feel because all that 6a0120a8df43e7970b01b7c8136efe970bwill do is push us in the wrong direction. It is frustrating to think in my mind that I can do everything I was able to do a few months ago but when I try, I can not do it. Pain is such a difficult thing to deal with. No one is able to see what you are going through and trying to explain it is almost impossible! My husband keeps trying to reassure me that my flare up issues will pass just as they have always done before, I am just having a hard time seeing the light at the end of this dark tunnel. I think it is harder for me this time because this is the worst flare up I have had in the 16 years I have had MS. 

Thank you for stopping by and reading my thoughts for the day. As always I truly love your comments and I do always respond as quickly as possible. Our communications really do make me so happy. I am planning to do a few posts explaining when I was first diagnosed and what I went through, I just have to wait until I am feeling a little better. I really hope y’all had a good day today and I hope you have a great evening!!

Love 2

 

Always, Alyssa

 

Minor Set Back

Hang In ThereGood afternoon Y’all! I hope you had a good Thursday! It is amazing, the weather is finally starting to stabilize and be cooler temperatures with no humidity! This summer was insanely hot every single day. High temperatures and humidity makes things miserable.

Today was a pretty bad day for me. As y’all know I went back to work yesterday, but only was able to work 5 hours and had to go home because of the intense pain I was having. I had so much additional pain in my back and so much leg spasticity, I could not even sleep last night, at all! Needless to say, I was not able to go work today. I think it is possible I tried to do too much yesterday and pushed myself further even when I felt the pain getting worse. It is okay though, a minor set back will only make me stronger and things will get better. I amMinor Set Bac hoping tonight I will be able to get some sleep and the spasticity will calm down so that I can go to work tomorrow. No promises as to hour many hours I will work, but I am going to give it an honest effort!

I do think it is best while healing I should not make any promises as to what I am going to do. I think it is best to just take things one day at time, or even sometimes an hour at a time. If I get too much on my mind of what I think I need to do, it will only cause me stress, which will only allow for negative things to come into my life. Even though this flare up has been the worst one I have experienced, I can honestly say that I feel truly lucky. I have had MS for 16 years and only had a couple of bad flare ups. I guess in my opinion that makes me blessed. Having a debilitating illness for this One Day At A Timemany years and still having the ability, most of the time, to do what I want to is purely luck! I can not say for sure though if it is really luck or just the fact that I will not give into anything, no matter how bad things get. Even though my legs and back are as bad as they are, I still want to do as much as I can for myself and only ask for help when I have to. Call it stubborn or headstrong, but it has worked for me. 

I hope y’all have a great and relaxing evening! I truly love all the comments y’all make because I love being able to communicate with others that understand the trials I go through. I hope that during our conversations, I am able to help you as much as you help me. I try to respond to all your comments as quickly as I can and when asked any questions, I do try to give the best advice I can based solely on my experiences. Take Care!!

Love 2

 

Always, Alyssa