Dreary Sunday

Well spent SundayGood afternoon Y’all! I hope you have had an incredible weekend! I do believe it is important to live each moment to the fullest, as we do not know what tomorrow may hold for us. I am not saying to dwell on what could happen, but love others and life-like tomorrow does not exist, so there is not anything to regret! No one wants to live with the feeling of regret!

Do y’all do anything special on Sunday in preparation for the week ahead? Is Sunday your day to catch up on rest or get everything done you are not able to do during the week? In the past, I made Sunday my day to get all the cleaning, grocery shopping and laundry done, but now I am making Sunday a day to do things I want, no matter what that is. It may be resting or it may be cleaning, but regardless of what I do, it is not planned like the rest of my week! I think we all need a day that is completely unplanned and definitely not full of chaos. 

Lately I have been once again dealing with some extreme pain and as difficult as it is I am trying to not allow this pain to consume me! It is not easy to fight against the pain, but it does not help matters to give up and sit around crying about it. Tears may fall, but there is no amount of tears that will stop the pain I feel. 

Currently, I have been experiencing something new and I am not sure if it is related to Thoughts arrive like butterfliesthe MS or not. I have lost some of my abilities to taste, which seems a little odd. I did read about this and it can occur due to lesions on the brain. Considering I do not want to think there are new or active lesions, I am choosing to ignore this very mild issue. I am not one that enjoys food, so it does not matter that much! I am just accepting it and moving on!

I have heard from so many people who there must be some kind of special diet I can do for the MS to avoid any new issues. I have to say that is a pretty obnoxious thing to hear so often. In all honesty, there is no special diet that is going to cure MS or prevent further issues from happening. It is very clear for everyone that a well-balanced diet is healthy, but it does not offer a cure for anything! Everyone should already understand that over-eating is not a wise thing to do and will cause weight problems. We can all figure out if anything we eat causes us to feel worse and then we can avoid those specific foods. I am pretty stubborn, so when people are constantly talking to me about what I should eat I do the opposite. My doctors have been on my case for years about what I should weigh, but I hover around the same no matter what I do. I do not normally gain any weight and depending on what I am going through lose weight. Even if according to BMI calculators I am under weight, I feel like I am fine! 

Throughout life we are confronted with so many decisions we have to make. Sometimes we might make the wrong decisions, but that does not mean we have to stop living. I believe that the decisions we make that were not the best choice actually makes us Whispers of your heartstronger. Most of us learn from the bad decisions and hopefully do not make them again. I am a pretty emotional person so most of my decisions come from the heart. However, the bad decisions I make come from  negative feelings and maybe some angry feelings I have! Previously all my decisions surrounding the MS were solely based on fear, but now I am able to make rational and logical decisions about my health care because I educate myself on everything the doctors suggest. I do believe that if we listen more to what our heart is telling us, we will feel happier and more satisfied with life! Our heart knows what is right and wrong! 

Thank you for visiting my site today and I would love to read your thoughts! I learn so much from y’all because you are all so insightful! Most of us are battling with an illness, but we handle it with nothing but grace and strength! Who would have ever thought we had resilience and strength to continue fighting even when we are in so much pain? Not allowing an illness to take control of our daily lives is not easy, but we are all doing it every day and for that we should all be extremely proud! I know this post was a little all over the place, but I had a lot on my mind! I hope the rest of your Sunday is spent doing what makes you smile! A smile can make a big difference in everyone’s life! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

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Successful appointments can happen!

Friday EveHappy Friday Eve Y’all! I hope you have had a fantastic day! I was having so much anxiety over my doctor’s appointment today because I had been given a run around with this doctor. I went into this appointment very prepared with pages of notes so I would not miss a thing and also had no expectations at all! To my surprise, everything went the right and ethical way!

It was not until recently that I have started going into my appointments with notes because I tend to forget at least one thing because I often feel rushed knowing the doctor has other patients waiting. I have learned that it is very important to take control of the appointment and be very prepared so no time is wasted. By taking control and knowing exactly what you want out of the appointment it shows the doctor that you have expectations of the appointment and demand quality care! These doctors see so many patients each day that they probably feel overwhelmed, even if they do not say those words out loud. I will admit I have learned that if I keep my expectations of my determinedappointments relatively low, I will not be frustrated and disappointed. Today’s appointment went very well and my doctor even apologized to me for all that I have gone through these past couple of weeks!

I think it is extremely important that even when things seem like they are all going wrong, to find it within yourself to never give up! In my opinion, giving up is the only way to truly fail! I have spent a few weeks now fighting for my rights to live a life as pain-free as possible and all my fighting has paid off! I have fought for myself with two different doctors and things are all going right for me now. Sometimes you have to fight in a pleasant way, if that makes any sense. It is so true that you get more flies with honey, so handling all situations in a positive and since way works for the best!

Thank you for visiting my site today and I look forward to reading your comments. I promise you that I will respond to all of your comments just as quickly as I can! I hope you have an amazing and relaxing evening! On an extremely positive note, tomorrow is Friday and then we have the weekend to enjoy ourselves! As always, I am sending y’all lots of love and comfort!!

Love 2

Always, Alyssa

Time Change Headaches!

edwardrmurrow1After we set the clocks ahead an hour on Sunday, my schedule seems drastically off kilter! Of course I did change all the clocks in the house ahead a hour, but at the same time I seem to have set my dates in my mind ahead an entire day! I thought Monday was Tuesday and I have thought all day that today was Wednesday! It is not a good feeling to realize what the day actually is and that there is still another day of the week. Hopefully my mind will adjust and actually know what day of the week it is! How are y’all adjusting to the time change? I hope y’all are adjusting better than I have so far! I think it is a little harder getting up in the morning and driving to work in the dark, but I guess on the plus side it does stay light out longer! It is always good to find the positive in every situation!

Crazy question for y’all! Those of you that have Multiple Sclerosis, has anyone ever told you that there is no correlation between MS and headaches? I ask because my current specialist has said just that. I had gone to her about the massive amount of headaches I suffer from and she said it does not have anything to do with my MS. I am sorry to say, but it is a quick and easy Google search to find out there is a relationship between the ms and headachestwo. It may not be an extremely common side effect, but Migraines are twice as common is those with MS that those without. Logically thinking if someone has a decent amount of lesions on their brain, how would that not contribute to headaches? I mean the brain has some intruders present that are not welcomed! Most people who I know that live with Multiple Sclerosis do battle with headaches of some sort. I think it is probably a good time to start looking for another specialist that I am a little more comfortable with. It is very important to have trust in your doctor and her comment made me lose trust in her!

The craziest thing happened to me today at work. One of my co-workers, that was not so pleasant while I was on medical leave, told me she was glad that I was back at work. All I could say was thank you and that I have been back working for a while now. She also decided to talk to me about an illness she was recently diagnosed with that make you lose your hair. As she spoke and told me about how depressed she had been, I did my best to try to motivate her to think positive. I told her that in a way she was lucky Kind wordbecause she has very thick hair and you were not able to see the bald spots she told me about. She even talked to me about the treatments she had to endure and at the same time praised me with how well I had the pain I deal with. It is crazy how it takes someone being diagnosed with an illness before they can have a heart for what another goes through. Even though I did have some ill feelings towards her because of how not compassionate she was towards me when I was struggling, I did feel it was best to try to be supportive and understanding of what she was going through. 

How are y’all feeling today? I hope your week is going well and you are staying as positive as you can. Y’all know that positive thoughts will in time bring positive things to your life! I sincerely appreciate you visiting my site today and I would love to hear your thoughts! I do respond to all comments as quickly as I can! I hope you have a nice and relaxing evening! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

 

What is right for YOU?!

nobody walks in your shoesThere can be so much confusion, frustration and sadness when you are first diagnosed will any illness. The doctor’s want to talk about medications “they” think you should take and sometimes they want to rush you to make the decision that affects your body. I think it is obviously important to listen to what they have to say; after all they are the “experts” so they should know what is best for medicine, right? But they maybe the expert with medications and illness but you are always going to be the expert in your own body!

I can remember when I was first diagnosed with Multiple Sclerosis my doctor wanted me to start something immediately. He had it in his own mind what was going to work best for me. Considering I was young and in complete shock I did not question him too much and just went along with his suggestion. Of course 17 years ago there were not as many disease modifying medications as there are today, so my choices would have been limited anyways. The disease modifying medication he suggested did not work for long because I was not capable of doing my own shots, but we live and learn through events like this!whats right

My best suggestion for anyone that has been diagnosed with any illness is, do as much research as you possibly can! Research the illness you have been diagnosed with, so you have a better understanding of what you are dealing with. Then research the medications available for your specific illness. The decision on medications is very important because it can slow the progression down of your illness. You need to feel comfortable with you decision because you are the one in control of your health!

Dealing with any illness is very difficult so it is extremely important to have a very strong support system! There might be times you need to vent out your frustrations! It can be vital to have at least one person that will be understanding, encouraging and listen patiently! During times when your illness causes you to feel worse than normal having someone there to help with daily tasks is fantastic. Of course I am not one that is good at asking for help, but if my pain issues get bad enough I will eventually ask for some minor help.  

Acceptance is probably one of the hardest things. But, once you know what you are battling, have done your own research and made an initial plan for how you want to manage your health, you are off to a good start! As time passes your plans may change and that is okay. You have to learn to be flexible because life is always changing! I have also found it very helpful to find a hobby that is almost an escape from whatever you have been exposed to. It is mentally helpful to have something that helps you relax and do whats right for youhide away from reality in short-term! 

I hope y’all have had a nice weekend! Are you ready for another Monday and start to a new week? I can honestly say that I am never ready for Monday because it is just a rude awakening to another long work week! On a positive note at least we are still here living our lives! I have been working 6 hours days so I may try to increase my hours for this week but we will see how the days go! 

Thank you for visiting my site today and making comments! I always love to read what you have to say. Y’all have the ability to open my eyes to new views which is so amazing!! I hope you have a great and relaxing evening! Much love to y’all!

Love 2

Always, Alyssa