Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Torrential downpour and non-driving people on the interstate drive me insane! I already hate driving but driving in the rain I despise more than I could ever explain. I left work early yesterday to go to my appointment with the pain management doctor, while the hour and a half drive there was fine besides the 18-wheeler trucks, the drive home was terrifying because the rain was so intense, I could not even see the front of my vehicle at times. There was a point that I almost pulled over to try waiting out the rain, but I really wanted to get home, so I continued driving very slowly, which is not like me.
I will never understand why doctors bother scheduling appointments because they are always running behind at least 45 minutes. My appointment yesterday was scheduled for 2:00, but the extremely sweet Nurse Practitioner did not come into the exam room until 2:40. Normally, I would have been frustrated, but like I said the NP is a sweet lady and I like her, so I remained patient and kept myself entertained shopping and writing a little.
These appointments are always so quick, well once the NP comes in the room, but it seems like a long drive. I am just glad she is allowing me to do these follow- up appointments every three months, instead of every other month. Overall, everything went just as well as it always does. She has even suggested a topical medication that might help with the neuropathy my legs and feet deal with daily, so I am happy about this. I do have to wait on the specialty pharmacy to call me back once they deal with the insurance company.
The hour and a half drive home felt like an eternity. Several times during the trip home, it was raining so hard that I could not even see the hood of my vehicle. I did stay in the slow lay, going no more than 40 mph. It was terrifying though because other cars were still speeding and that always frightens me, especially because I know they cannot drive when the sun is shining, and the ground is dry. There were a handful of times I considered pulling off at a rest stop to try waiting for the rain to stop, but I wanted to get home and work another hour to not have to use PTO. Even though it took me almost two hours to get home, I did make it without having an accident. Crazy times driving on an interstate in the south!
Thank you for visiting my site today. This was just giving an update on a doctor’s appointment, but I felt it was something good to write about. I hope you enjoyed it, and I would love the opportunity to read your comments, which I will respond to as quickly as I can. Please remember that I am always sending y’all LOTS of love, support, comfort, and MANY positive vibes!
It is one of last days of May and the summer heat is already extreme and dominating the south parts of the United States. For those of us living with Multiple Sclerosis, we all know that heat is one of our biggest enemies. Unfortunately, where I live in the United States, we are already fighting with temperatures in the 90’s, so I can only imagine how hot it will be in the dead of summer, but I am dreading it!
There are a lot of people that live with Multiple Sclerosis that experience temporary worsening of symptoms when the weather is exceedingly hot and or humid. Unfortunately, it only takes a quarter to a half-degree increase in the body’s core temperature for someone’s symptoms to worsen. The elevation in temperatures impairs the ability of a demyelinated nerve to conduct electrical impulses. Simple activities such as sunbathing, exercising, or taking a hot bath or shower all can have the same effects. Some have noticed their vision becoming blurred when they get overheated, which is a phenomenon known as Uhthoff’s sign.
Even though the heat can cause symptoms to worsen temporarily, it does not cause additional disease activity. The symptoms that worsen when overheated will improve once you cool down. May years ago, before there was better testing for MS, doctors used the “hot bath test” to diagnose MS. When a doctor suspected a person had MS, they would immerse the individual in a hot tub of water, and the appearance of or worsening of neurologic symptoms confirmed the person had MS.
While temperatures are increasingly warmer, it is crucial for those with MS and experiencing heat sensitivity to do what they can to combat these challenges. The following are the best ways to deal with the heat:
1. During extreme heat and humidity, stay inside in the air conditioning. There are specific times during the day when the heat is more intense, so it may be beneficial to pay close attention to the weather. Normally, the heat is not as bad during the early mornings, but as the day goes on it gets much hotter.
2. Utilize cooling produces, such as cooling vests, wraps, and bandanas. These products can be purchase online and be extremely helpful when you do need to be outside, even for short times. The following are a few vendors that offer these products:
5. If you exercise, do so either in a cool pool or in a cooler environment.
It has been a little while, but the National Multiple Sclerosis Society is where I was able to get mine from and they are helpful. If all else fails, you can always google these products and I am sure you will find something that will work for you. As you already know, everyone is different and has different challenges with MS, but if you are anything like I am the weather poses awful issues. It does not matter if it is hot or cold temperatures, they both cause me to experience issues. The cold causes me to tense up, which makes my pain much worse. The heat causes me to feel even more fatigue and does affect my vision.
I hope this information will help you while dealing with the extreme heat. I know a few of you might be in a country that is not dealing with the summer months right now, but for those of you that are do everything you can to stay inside or at least in the air conditioning. If I must leave the house now, I try doing so at night after the sun has gone down or in the morning before it gets too hot. Of course, for some doctor’s appointments, I cannot do anything about the times, but I do stay hydrated. I love Fiji water because I think it tastes much better than any other water. I also like Grape or Kiwi Strawberry Propel waters. I honestly cannot remember the last time I drank a caffeinated beverage and feel much better without them! If I drink any soda during the day, it is at night with dinner but only one.
Thank you for visiting my site today. I do look forward to reading any comments or additional advice you might have. I will respond to all comments as quickly as I can. I hope you are having a nice three-day weekend and hope you are staying safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I have been trying for several days to write a post, but I have not been able to. I have a few reasons why things have been so challenging, and I will try to explain. One issue is I have not been sleeping well due to awful tooth pain. I know my fear of the dentist is very irrational, but I have never been able to shake this fear in all my years. After several mornings waking up at 3:00 AM in excruciating pain and it takes me a while to fall back to sleep, I finally scheduled an appointment with a dentist. My husband and I are still relatively new to where we are living and I did not know any dentists, heck, I hardly knew of any doctors besides my neurologist, but I reached out to an extremely sweet couple that has lived in the city for years for a recommendation. This couple is kind, trustworthy, and I feel confident they would steer me in the right direction, the only problem is the dentist did not have any openings until April 19th, but I have dealt with it this long, what is a few more weeks?
The other issue I have been experiencing is my legs and feet are feeling the annoying tingling, pins, and needles sensation, and a great deal of spasticity. This seems to be getting increasing worst at night, which makes it hard to get comfortable and fall asleep. Even though it is known to those with MS that heat causes issues, previously a heating pad on my legs would help calm the problems down. Unfortunately, a heating pad or a warm bath is not helping at all and I am just having to be patient with my legs and feet, which I am not good at being patient at all!
As y’all know from things I have said in previous posts fatigue is a huge issue with people with Multiple Sclerosis, so not getting anywhere near enough sleep due to my tooth pain and twitchy legs is only producing more fatigue. I do not know about you, but when I get too overtired, I become very irritated with everything. It does not matter how small the issue is, it will make me want to scream and or cry. You can only imagine how I would feel if something huge happened.
I like to think that I am a patient and tolerant person, and always try being understanding because I do know everyone is going through something in their life. It takes a lot to push me to my breaking point, which is not always a good thing because that involves a lot of pent of frustrations. While it can be a good quality to be able to let go of things that are not crucial, the built-up of frustration can be like if a volcano, collided with a tornado, and an earthquake happened simultaneously. This is just me and I might be abnormal because I hold onto things for extended periods of time before anyone would ever know something was bothering me and I know this is something that needs to be worked on and improved.
I am not making any promises because I do not like breaking a promise, but I am going to try finishing the posts I had mentioned before. I know March and Multiple Sclerosis Awareness Month are over, but there are still a few things I want to mention. March being over does not mean that those of us living with Multiple Sclerosis get a break because unfortunately, we still have the same battle to fight.
I would like to thank you for taking the time to visit my site today. I still have so much that I would like to write about, and I am doing the best I can. I hope your week is going well and you are continuing to stay safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
As y’all already know March was Multiple Sclerosis Awareness Month. Even though March is almost over, MS for me and everyone else living with this illness will continue to battle with the challenges that come along with it. With that being said, I do want to share a few additional posts to further explain the struggles that Multiple Sclerosis creates.
One thing common with those with Multiple Sclerosis is heat intolerance. Simply taking a hot shower, spending too much time in the sun, or possibly making a hot meal because the stove and oven can make the kitchen extremely hot. The reason people with MS are sensitive to heat and temperature changes is that MS causes nerves to lose their conductive coating, which is referred to as a myelin-sheath.
Heat issues may cause a person with MS to have an escalation of symptoms such as dizziness and/or increased heart rate. I am going to share 6 tips that may help you to defeat the brutality of the heat enemy. Some of these tips might seem like common sense, but they are important to mention, or at least I think it is.
Logically, this makes perfect sense, but the warm summer months are closing in on us relatively fast and this needs to be very well understood. Staying inside with the air conditioner or at least fans may contain MS symptoms. Be sure to pay close attention to the forecast and avoid outdoor get-togethers when it is too hot. It will be much better for you and your health to stay inside when the temperatures and humidity increase because you do not want the symptoms to get too awful.
Utilize Cooling Products:
There are numerous cooling products available online and in stores. The MS Society has cooling vests, wrist, ankle, neck, and head cooling packs. These are fantastic cooling packs that can help you to tolerate the heat and even make picnics possible. Something as simple as a cloth dipped in cold water and applied to your head can make a remarkable difference in the way you feel.
Ice Cold Beverages:
On those insanely hot summer days, there is nothing better than ice-cold water with or without lemon. It is amazing what powers and benefits can be had with liquids. Aside from an ice-cold beverage, you may also experience relief from popsicles, ice cream, or frozen yogurt. To save time walking to the kitchen at night and searching for something cold to drink, try freezing a bottle of water and place it beside your bed. This will provide you the much needed cool down without leaving the comfort of your bed.
Cool Down in the Pool:
As the temperatures start increasing, spending time in a pool when possible can give you the cooldown needed. Not only will a pool help you cool down but provide you with some exercises that can be done easily and without high impact on your body that might cause you extra pain. For additional cooling powers, keeping your wet swimsuit on after leaving the pool can be wonderful because it will also keep you nice and cool!
Plug in a fan or fans:
The fan you use does not need to be high-tech or fancy to offer you cooling benefits. A simple oscillating fan that is easy to move to other rooms can provide you great and fast relief from the evil heat. A ceiling fan helps to circulate air, which can give useful relief from the heat as well.
Lighten Up Clothing:
It can be astounding how our choices of clothing can make a considerable difference. Thinking in layers of clothing when we get dressed might serve you as a benefit. Dressing in lightweight and easy to remove clothes allows you to remove layers, as necessary.
I hope the information provided in this post was helpful for you. In the southern state that I live in, I can speak from experience on how awful the heat makes me feel. It typically starts getting a little too hot for me in April and previously when I did leave the house, I would be overheated just walking to my car. A few years ago, I did reach out to the National Multiple Sclerosis Society and they sent me a few cooling products that are phenomenal, and I am thankful to have them. Of course, over the past year, I hardly leave the house, but hopefully, things will become safe again soon.
Thank you for visiting my site today. I know I have been a little off with my typical posts, but life and fatigue sometimes get in the way. I would love the opportunity to read what you thought about this information and will do my best to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Two weeks ago, today our lives were tragically changed when we lost our sweet little girl Chloe. It has not been easy adjusting to life without Chloe because she was a huge part of our family. We had that sweet baby girl for more than 15 years and now the house feels a little empty without her. It does provide some solace knowing that we gave her a wonderful and loving home, but the void in our hearts is deep. Although Chloe is not with us physically, this sweet cat will live on forever in our hearts. Not only are my husband and I feel the loss, but our younger cat misses Chloe as well. Thankfully, Sundance, our younger cat still has a personality that makes us smile.
A few things happened today, that made a mark. My grandmother, on my mother’s side of the family, passed away. Unfortunately, she and I did not have your typical grandmother/granddaughter relationship. The two of us were strong-willed and never backed down, even with each other. I am not sure if I would say we had a lot in common because I do believe we were vastly different, but she was still my grandmother. I will say I remember her as a child and do have a few good memories. I do wish there had been a way we could have made a mend before her passing, but we did not have any ill words with each other. Honestly, it might have been because we did not speak much. I hope her last days were peaceful and she was comfortable when she took her last breath.
Another interesting thing that happened today is, my father and I had a nice talk. I called him to tell him about my grandmother’s passing. They had not spoken in more than 30 years, but I guess I had to talk openly about it. One thing that my father said to me today meant more than I could ever explain was how proud my grandfather had always been of me. He told me that I could make my grandfather smile even if he was having a bad day and that means the world to me. I have told y’all before how much my grandfather meant to me and how much I admired him. Knowing that my grandfather was proud of me will stay with me and help me through challenging times.
During my conversation with my father, I mentioned to him that I was considering entering a writing contest. Of course, I always question my writing abilities, but he told me that he thought I should because he always enjoyed reading what I write about. He assured me that I shared something in common with my grandfather and that was how the way our writing showed deep emotions and our strong personality. It makes me feel good knowing that I have some of my grandfather’s devotion and strength because he was an amazing man that I will always hold close to my heart. Something that has always amazed me is, how one small thing another person says can have an enormous impact on another person life and typically in a good way!
I am taking into consideration everything my father told me when I talked about the writing contest, but now I need to decide what I will write about. I know it is important to take chances, but I also need to learn too not be so hard on myself. Over the past three years, I have had the chance to get to know all of you and it has been a great opportunity. With that said, have any of you entered any writing contests and if so, how did you decide what you would write about? I value your opinions and advice, so I look forward to reading your thoughts!
I am sure y’all have noticed that I have been a little absent from blogging. This week has been strange. Not only have I been dealing with the loss of Chloe, but I have felt very sluggish and had a lack of energy. There have been many times I wanted to sit down and write about something but could not get through it. I guess it might have something to do with the weather changes because it has not only been cold, but we have had an insane amount of rain. The colder weather always have a negative effect on how I feel, but then so does the rain. I guess the combination has been a double threat!
Thank you for visiting my site today. I hope you have enjoyed reading what I wrote about today. I also hope you had a nice and safe weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I am so glad that we finally made it through this week! I do not know about you, but I think this has been a painfully LONG week! Of course, work has been busy, which I like, but I can use a break from the insanity! I am not sure if it is stress-related or the colder weather, but my pain levels have increased drastically. Yes, I am going to be getting the first COVID vaccine tomorrow morning and if I am being completely honest, I am nervous about it. I am not nervous about getting a shot, however, I am nervous if this vaccine will have a negative interaction with the medication I take for the MS. At least I do not work the weekend and my husband will be sure nothing bad happens to me, and if all else fails the hospital is close to where I am going for the vaccine.
Our work week tends to be stressful and even cause some negative emotions to bubble up. Now that the weekend is so close, it is time to let go of all bad energy and feelings and just enjoy the short weekend. As I get older, I am understanding more and more, we have to do what brings us joy and care much less about what others think of us. As long as we are continuing to be kind, caring, understanding, and fair to others we are doing everything right. I am hoping the quote I am sharing with y’all will help remind you to live your life doing what you love and not trying to impress anyone else!
What do y’all have planned for your weekend? Y’all know I never do anything over the weekend, but you also know I am leaving the house tomorrow! Is it crazy that I am excited to leave the house but nervous about why I am leaving the house? Does anyone reading this post have Multiple Sclerosis, take Gilenya, and have received the COVID vaccine? I know that everyone experiences medication and side effects differently, but it might help relieve my anxiety to hear from someone that can give me a little information about the vaccine.
Thank you for visiting my site today! I really appreciate you continuing to visit and love reading your comments. It might sound silly to some, but I consider all my fellow bloggers friends. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
Happy Friday y’all! I hope y’all had a great week and you are looking forward to the weekend ahead of us! My week has not been awful, but I am looking forward to a quiet and relaxing weekend. This getting up early thing and working at least 9 hours each has been exhausting. It is not any different from normal, but I feeling overly tired this week, and maybe a little stressed. It is possible it has something to do with the weather being so chilly and there still being an obnoxious amount of political drama still. Who would have thought this many weeks after the election there would still be so much non-sense? I almost think it is a little sad that there are this many adult men acting like toddlers.
Life in general can stressful, but work can add more stress. I think there is already enough for us to tolerate and get through, but with COVID still spreading like wildfire and political craziness, we all need a break. Do you ever have days you just want to hide under the covers or bury you head in the sand? I have definitely felt like this lately. I think over this weekend, I am going to try to stay hidden under the covers and just relax quietly by myself!
Now that we made it through this week, it is time to try letting go of any negative emotions the week may have caused. The weekends are so short and it is best to enjoy it the best we can without having it hindered by unsettling feelings. The reason why I chose this quote for today is because we are always going to face the storms of life and all we can do is keep ourselves calm. I hope this quote will offer you some help to let go of things that are weighing on you, but I do look forward to reading your thoughts. I promise to respond as quickly as I can, even if it is over the weekend!
Thank you for visiting my site today! I hope you have a great Friday and a wonderful weekend! Whatever your plans are for the weekend, please just remember to stay safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Friday Eve y’all! How has your week been? As always, my week has been busy as ever, which I do enjoy. I never thought I would say this, but I do love my job. I don’t just love my job because I am working from home and the work itself can get frustrating, but for some reason, I enjoy it. I hardly ever take an official lunch break and instead work while I eat something. While there are some people I could do without, the majority of the people are pretty great. I guess it could be because I have not really met anyone I work with and only see them on the video meetings!
With the weather changing and is getting colder, the days might seem a little longer because they are! Hot weather is always very draining for me, but the cold temperatures increase the amount of pain I feel drastically. I am sure the reason for the increased pain in colder weather is because I tense up a lot more, but it is nothing that my small and great space heater can’t help! Considering my husband and I both work from home, and our joint home office is in the finished part of the basement, it gets cold. We purchased a few small space heaters that work brilliantly!
As our week is finally coming to an end, I think a little pick me up is just what we all need. Life in, general, can be stressful, but when you add work, fears of COVID, health, and everything else to the mix it can be overwhelming. I think days when I do not have something that makes me smile and or laugh the days are dreadful. The simplest things can bring a smile to our faces, like both of my cats are full of entertaining surprises, and the adorable groundhog that lives out back always makes my day much better. With that said, I hope the quote I am sharing will make you smile, even just a little!
Thank you for visiting my site today! I hope you have a great day and you stay as safe as you possibly can. Unfortunately, the COVID-19 numbers are increasing on a steady basis, so we need to be careful and take all precautions necessary. I am looking forward to reading your comments and promise to respond as quickly as I possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Let’s Begin This Week Off With A Positive Mindset!
Happy Monday y’all! How was your weekend? I hope your weekend was full of relaxation and happiness! Honestly, my weekend was fairly uneventful, and I enjoyed that. I feel sometimes we all need the entire weekend to recuperate from a long and busy week.
With all of the changes that have gone on with the weather, I have been dealing with my typical increased pain. Now, I do deal with this every time there is any changes in the weather, but for some reason Sunday was a lot worse. It is a good thing I didn’t have any plans and didn’t need to leave the house because my legs hurt so bad it was painful to even walk. No matter how high my pain is, I will never sit around and feel sorry for myself because it could always be worse and life if just too short I guess we all deal with health issues and we make the best of it.
Sadly, the weekend is over and we are at the beginning of a fresh new week. It isn’t even easy to say goodbye to the weekends, and my cats especially hate it because now Mommy will be in her home office locked away from them all day long the entire week. Yes, my cats are babies and demand a lot of attention! I almost feel a little guilty that I have to be locked away from them, but it would be nearly impossible because they would both be walking all over my desk, laptop, and the paperwork on my desk. They would amazing co-workers, if they would not try helping SO much!
Now that we are at the beginning of a new week, that is hopefully filled with fantastic opportunities I think we all could benefit from a little motivation! My hope is that the quote I am sharing with y’all will kick start your week with the right amount of motivation, optimism, and encouragement that is necessary to start a week off on the right track! I am looking forward to reading your thoughts on the quote and also how your weekend was!
Oh my goodness, almost forgot to tell you about something truly shocking and amazing happened at almost 5:00 PM on Friday. Y’all know that I had started a new job a few months ago and the work is similar I have done previously. The only issues have been the lack of training and the consistent changes that do not usually make sense. Anyways, the good news is I received an email from a team lead telling what a good job I was doing, and that she and others in management were very impressed with me. This made me feel pretty great and helped build my confidence.
Thank you for visiting my site today and I hope you have a splendid start to your week! I know I have been slower with my responses to your comments, but I promise I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
Happy Monday y’all! How was your weekend? Honestly, I had a lot of ideas of what I wanted to do over the weekend. Unfortunately, because of a nasty rainy weekend I did not feel well enough to do any of it. Rain makes me feel all my pain more and causes an extreme amount of fatigue. I do hope your weekend was spent better than mine and you are felt well all weekend.
Are you ready to begin another week? It isn’t ever easy to say goodbye to the weekend and begin another week that should be full of opportunities! Each week offers us opportunities for even more chances of success! I am wishing for y’all to have a nice and safe week! I am hoping the quote I am sharing with y’all today offers you the motivation you need to start your week with positivity and optimism!
I can tell you how some of my week is going to go. I have a doctor’s appointment on Thursday afternoon and unfortunately, I have to go to the office. I will be as careful as I possibly can be. I will wear my mask and sanitize as much as possible! I am not too concerned about safety with this office because they do not have people sit in the lobby. I will be immediately taken into the exam room, where I will sit and wait all by myself. The Nurse Practitioner will be quick and she is careful and understanding.
Thank you for visiting my site today! I hope you enjoyed the quote I shared and I am looking forward to reading your comments, and I promise to respond as quickly as I possibly can. I am sorry there are some comments I didn’t respond to yet over the weekend because I really wasn’t feeling well at all. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!