About Positively Alyssa

I was diagnosed 18 years ago, when I was only 19 years old, with Relapsing Remitting Multiple Sclerosis. I had gone to my eye doctor because I had lost vision in my left eye. Prior to my appointment, I had prepared myself to have the doctor confirm that I would be blind in my left eye and that was all. Never in a million years did I expect to hear the doctor tell me that after consulting with his colleagues, that I need to go for an MRI that day because they were thinking that with my symptoms that I had MS. Just a couple hours later I went to get the life altering MRI. I remember that phone call like it was yesterday. My eye doctor called me from his home at 9:30 at night to confirm what they suspected, I in fact had MS. He immediately referred me to a specialist he knew and I was able to get in to see him that same week. Luckily, after a round of steroids, my vision came back in my eye just leaving me with leg pain that would continue to be part of my life. Through the years I have tried numerous different medications that are meant to slow the progression of the disease down. I was never good at the injections and it wasn't because of the needle, it was because the medication burned like fire going in. Still after all these years I still go through my battles of denial, anger, frustration and sadness. However, I have always said that I would NEVER allow MS to control my life but I would control the disease. For the most part, I have been pretty successful with that. I mean we all have our bad days but it doesn't make the situation any better. With this blog I am hoping that with my experiences, endless amounts of research and a powerful fight i me that I can not only help others going through this but that I can learn from others as well. Living with the ups and downs of MS can be challenging but the power of the mind can beat anything that is thrown our way!

Motivational Monday!

Motivational Monday 2Good morning y’all! I hope you had a wonderful weekend and were able to do those things that bring you the most joy! My weekend was spent inside the house because of the absolutely nasty weather we had! Saturday was very cold and rainy, which turned into a wintry mix of snow and freezing rain. Thankfully we didn’t lose power as some people living close to us did. It seriously looks like a winter wonderland, but this is the south so this isn’t common!

Considering my weekend was pretty much held up inside due to weather, a motivational quote will be so helpful in getting my week started on the right foot. I hope you find this quote as meaningful as I do.failure builds character

I guess this kind of ties into my post from last week about the only true failure is giving up, which none of us will do! This nasty cold and wet weather makes me feel absolutely terrible with pain and fatigue! Hopefully the forecast will improve some and maybe we will see the sun! 

Thank you for visiting my site this morning. I am really looking forward to reading your comments as I know they will be just as amazing as you are! I hope you have a good day and you are feeling the best you can. Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

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Pick-Me-Up-Thursday!

happy-thursday-wishing-you-all-a-happy-friday-eve-x (1)Good morning y’all! I hope you have had a wonderful week and you are feeling the best you possibly can. How was your week? My week has actually been pretty good. I am still learning more about my new position and have even more tasks that are being assigned to me almost daily. It makes me feel rather good that my boss and co-workers have enough faith and trust in me to give me new more to do!

Even though I do love ❤ my new job, I am still so glad the weekend is almost here. I enjoy weekends where I do not have anything that HAS to be done and I do not have to get upcat-relax early! I honestly never really sleep late, but not being required to wake up is a great feeling! Do y’all have any weekend plans or are you just going to be spontaneous? Spontaneity is a glorious thing and can be very relaxing! I am glad that I will have a couple of days to work on the blanket I am crocheting and clean house! Who is ever happy to have time to clean? 

Even if you have had an amazing week, I do still think a little pick-me-up helps make it one more day! Do you find the pick-me-up’s helpful? I was just curious if the Motivational Monday and Pick-Me-Up Thursday’s was beneficial to you. Personally, I find the quote I am sharing with y’all today very true, but look forward to reading your thoughts, because your opinions are fantastic!quotes-about-rest-and-relaxation-life-is-like-a-roller-coaster-live-it-be-happy-enjoy-life-funny-quotes-rest-relaxation

The reason I find this so true is because living with any chronic illness almost feels like we are on a roller coaster ride and we just have find ways to handle it the best we can. I do believe all of us may have difficult times, but we manage to succeed because of our strength! 

Thank you so much for stopping by my site today! I hope you have a wonderful day and truly hope you are feeling well. I am looking forward to reading what you think of this quote and your thoughts about the quotes I share twice a week. Please never forget that I am always sending y’all LOTS love ❤, comfort and many positive vibes. 

My signature heart

❤Always, Alyssa ❤

Motivational Monday!

Monday corrects past weekGood morning y’all! I hope you had a wonderful weekend and I hope you are ready for the new week! Monday can be viewed as a chance to let go of anything and everything that might not have gone well last week and just try again for a better outcome this week. It is so important to acknowledge that ALL the choices we make in our lives can have a huge impact not only on our life, but on many others as well.

I am a FIRM believer that we should all NEVERBest Never give up quotes pics images (24) give up on our goals or dreams. There is no question about it life gets extremely difficult at times and we often wonder how we are going to make it through those hard times. It is so incredibly important to NEVER give up and always continue to try our best at everything in life because determination will win in time.

The quote that I am sharing with y’all today holds so much meaning to me. I really hope once you read it you will also find a lot of meaning and it will help you to never allow anything in life to defeat you, as you are SO much stronger than that.defeat

Of course I am looking forward to reading your thoughts on this quote, but I wanted to never_give_up_hope_5_multiple_sclerosis_postcard-red5159ed8abf436e96ddcf5b61308358_vgbaq_8byvr_307.jpgquickly share with y’all why this means so much to me. Many of us deal with chronic illnesses and or other struggles in life and I know how hard it can be. You might remember me saying this in one of my earlier posts, but I will remind you about it. When I was first diagnosed with Multiple Sclerosis almost 19 years ago I made a promise to myself that I would NEVER allow this illness to defeat me. It isn’t easy but I have bfa0ee13a5cbf740e7fe43df086ccd04held true to this promise. There have been many times when the MS became so frustrating and difficult, but I am still here to say it hasn’t taken as much from me as it could have if I didn’t so fight hard against it. The pain, headaches, fatigue, muscle spasms and neuropathy I battle daily hasn’t ended but I still won’t give up the hope I hold for a cure. 

hope_matters_butterfly_multiple_sclerosis_t_shirt-r85b9b6e27f814bc1a6f66dbe98037f7f_k2g1o_307Thank y’all for visiting my site this morning and I hope you have a great week! I promise you I will respond to all comments just as quickly as I can because I really love ❤ and value to relationships we have built. Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Pick-Me-Up-Thursday

friday eve 1Good morning y’all! I hope you have had a good week. My week has been pretty long and very busy, but thankfully it is almost over! I guess in all honesty I can’t complain because I have learned so much about my job duties. My job duties continue to expand, but at least I am helping others. 

On the last Thursday in the month of November, I think we could all use a little pick-me-up. I still can’t believe how fast 2018 has gone by, but there have been a lot of positive changes in my life during this year, so I am thankful for that. I hope you enjoy the quote I am sharing with y’all today and I hope you find LOTS of meaning in what it says!positive thoughts

I do believe that positive thoughts can change most situations. With all we deal with in our lives, if we only saw the negatives in everything, we would miss out on so much that can bring us joy. Of course life isn’t easy, but if we try to find the positive in most situations we will be much happier and in turn bring that happiness to so many others!

Thank you for visiting my site this morning. I hope you are feeling the best you can and I hope you have a wonderful day! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Motivational Monday!

motivational-monday.jpgGood morning y’all! I hope you had a nice long weekend! Four days off of work was definitely a really great opportunity to enjoy life. There was never any rushing around or having an annoying alarm wake me. Thankfully I was able to get up when I wanted to, which was still early, but not as early as I have to for work! I hope y’all enjoyed your long weekend and the holiday we just had!

Going back to work after being off four days isn’t easy, but we do what we have to do. I definitely feel like a little motivation would be beneficial for all of us. I hope you enjoy the quote I am sharing this morning and I hope you find meaning as you read it!17-best-ideas-about-power-of-positivity-on-pinterest-quotes-54947

I look forward to reading your comments, which I will respond to as quickly as I can. I have actually learned how to balance working full-time, still blogging and doing other things that make me happy in life. Over the weekend I started crocheting another blanket for our love seat in our living room. I wanted this blanket to match the other blanket we use for our couch, but just a little smaller! Crocheting is a fun and relaxing hobby! 

I do believe that Monday is the perfect day to make a fresh start. Everything that Monday corrects past weekhappened last week is in the past and it is incredibly important to forget about what went wrong and work to make this week better! We all make mistakes that we wish would could take back, but with those mistakes we normally learn many valuable lessons to make ourselves that much better!

Thank y’all for visiting my site this morning. I hope you have a great day and I really hope you are feeling the best you possibly can! Whatever you do, please remember nothing is worth getting stressed about and that includes work. You and your health are way more important than anything related to work. Things will get done, even if it isn’t today, tomorrow is another day! Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Crazy decisions and side effects!

side effectsI have always thought it was a little crazy and extremely frustrating that medications meant to slow the progression of illnesses down, are accompanied by a long list of possible side effects. I know that the Gilenya I take daily is supposed to slow the progression of my Multiple Sclerosis, but it has a really LONG list of potential side effects and at one point that was what pushed me to want to make a change in my treatment plan.

The middle of last year I was having so many issues with terrible sinus headaches and migraines that I wanted to find out what was causing them. After reviewing what side images (2)effects Gilenya posed, I saw somethings that were common was headaches and sinus troubles. I was not just looking the side effects up on Google, but I was on Gilenya’s actual website, so I took this very serious as I am sure most people would. I went to my doctor with these concerns and she pretty much dismissed my thoughts claiming that it was not all that common with this medication and that I shouldn’t be doing this kind of research because it was “false” information. I argued back asking how it could be false when it was on the manufactures real website!? Of course I was frustrated that my valid concerns regarding my health was being ignored and not even willing to discuss more at that oral_therapy02time, so I decided to ignore her medical advice and demanded that I try a new medication immediately. It wasn’t until I told her there was another oral medication I read about that I thought would be better for me she finally decided it was worth her precious time to have a conversation with me. She tried her darndest to use the fear tactic, which of course wasn’t working well with me and only caused me to question her logic further. I know it sounds crazy, but I was completely convinced that she was receiving kick-backs from the drug company and me not changing medications would continue to be financially beneficial to her.

In preparation to change my treatment plan from Gilenya to Tecfidera I discontinued the Gilenya last July. I was required to be off medication completely for 6 weeks, so all the 51WIQmA-fnL._SL1000_Gilenya I had taken needed be out of my system and allow the Tecfidera to be able get into my system. In early September I started on Tecfidera which again is an oral medication. During this time my MS did not get better, but much worse! I guess MAYBE the doctor was correct when she said Tecfidera wasn’t going to be strong enough for me or maybe I had the nasty relapse because of ALL the stress I was under. I was so worried about the headaches and the fact that Gilenya could have been the cause and then even more concerned that my MS was progressing way too soon in my life. Whatever the cause was the MRI I had in early October was HORRIBLE, landing me right back to the drug I was convinced was causing my headaches!

It still doesn’t seem fair to me that we have to make the decision if we would rather deal Gilenya+Fingolimidewith the side effects of these so-called helpful drugs or be disabled. As difficult as it is to deal with the massive headaches/migraines, I would much rather deal with them rather than lose my normal abilities, like walking without assistance. I still do not think it is right for anyone to have to make a decision like this, but I guess it is what it is!

I have been back on the Gilenya for a little over a year now and I do still deal with sinus trouble and migraines, but at least the MS hasn’t to have progressed. I do think that until there is a cure for MS, which I must believe will happen in my lifetime, I will not be changing medications! Now that my husband and I have completed our move, I am ms-research-2013-6-638searching for a new MS Specialist, who will hopefully be more knowledgeable and have much better bedside manner. I know I have already shared this with y’all, but I am NOT a fan of my previous specialist. As crazy as this may sound, I want a specialist that is an older gentlemen because I have found they are more understanding and considerate. Of course going with an older person, I run the risk of them retiring, like two of my previous specialist did and I absolutely ❤ LOVED❤ them! I am sure that with the determination I have, I will find one that is best for me and my personality. I guess it shouldn’t be as important to have the warm and fuzzy with a doctor as it is for the doctor to be knowledgeable, but I need to feel comfortable with them in order to trust the doctor.

I always appreciate you taking the time to stop by my site today and I always love reading your got-hope1comments! I hope y’all are having a nice weekend and you are feeling as good as you possibly can! I must say having a long weekend is absolutely wonderful and I have been able to rest, but still do things that needed to be done! Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Happy Thanksgiving!

Good evening my lovely friends! I wanted to wish y’all a very Happy Thanksgiving! I hope you were able to enjoy time with family and be able to give thanks to all those that you hold dear to you!!!happy thanksgiving

I meant to do a post each day this week with all I was thankful for, but with all the fatigue from work I wasn’t able to. I do plan to share my list with y’all in another post though! Not only do I hope you enjoyed your day, but I hope you are feeling the best you can! Please remember that I am always sending y’all LOTS of love ❤, comfort and sending you many positive vibes!

My signature heart

❤Always, Alyssa❤