About Positively Alyssa

I was diagnosed 16 years ago, when I was only 19 years old, with Relapsing Remitting Multiple Sclerosis. I had gone to my eye doctor because I had lost vision in my left eye. Prior to my appointment, I had prepared myself to have the doctor confirm that I would be blind in my left eye and that was all. Never in a million years did I expect to hear the doctor tell me that after consulting with his colleagues, that I need to go for an MRI that day because they were thinking that with my symptoms that I had MS. Just a couple hours later I went to get the life altering MRI. I remember that phone call like it was yesterday. My eye doctor called me from his home at 9:30 at night to confirm what they suspected, I in fact had MS. He immediately referred me to a specialist he knew and I was able to get in to see him that same week. Luckily, after a round of steroids, my vision came back in my eye just leaving me with leg pain that would continue to be part of my life. Through the years I have tried numerous different medications that are meant to slow the progression of the disease down. I was never good at the injections and it wasn't because of the needle, it was because the medication burned like fire going in. Still after all these years I still go through my battles of denial, anger, frustration and sadness. However, I have always said that I would NEVER allow MS to control my life but I would control the disease. For the most part, I have been pretty successful with that. I mean we all have our bad days but it doesn't make the situation any better. With this blog I am hoping that with my experiences, endless amounts of research and a powerful fight i me that I can not only help others going through this but that I can learn from others as well. Living with the ups and downs of MS can be challenging but the power of the mind can beat anything that is thrown our way!

Hot Topics!

177073-Beautiful-SundayI hope y’all have had a wonderful weekend! It is always so amazing how fast it goes by and then we have another 5 very long days we have to be at work! I guess it is kind of a blessing in disguise because at least we have another chance to make our week great!

I am sure everyone already knows this, but there are some topics you should never talk with family or friends about! Most of us have our own very passionate beliefs regarding politics and religion that probably do not match up with everyone. It is okay that we all have our own thoughts about these topics, but arguing about them will never solve the issues and you will never be able to change someone else’s mind! Never in my life have I ever been a political person, but I do have my strong opinions on the topic that are not influenced by anyone but myself! 

Another hot topic that should be avoided with family and friends is same-sex marriage! I am one who believes very strongly that we are entitled to love whom ever we choose Love no boundariesand therefore should be able to marry whom ever we love! Same sex marriage does not harm anyone, but talking ill of this in a “free country” will ultimately harm others. Why does it seem that so many are only okay if you marry someone of the same color, religious following, same ethnicity, but it must be the opposite sex? Who has a right to say who you should or should not love?

As y’all can probably tell, there are some things I am extremely passionate about and feel very comfortable sharing my thoughts! I think we should all feel comfortable with who we are and never feel any shame about it! I believe very indomitably that we should feel free with our beliefs! I will not get into how I feel about politics though only because that is probably a more intense conversation!

I want to thank y’all for visiting my site today and reading my semi rant! I get so frustrated with the negative thoughts surrounding these topics and will never When-you-look-at-your-enemy-in-the-face-and-all-you-feel-is-love-then-you-have-achieved-acceptance.-Joan-Ambuunderstand the hostility with certain things! Sometimes facts are facts and can not be changed, no matter what you do or say. I really feel that if there was more love and acceptance around us, instead of hatred and judgement, the world would be so much happier! I did not mean to go all pageant queen with that statement wanting world peace, but it would be really nice if we could all just get along!

I hope you have  a wonderful evening! Remember to always stay positive because it will pay off! Please feel free to leave a comment and I will respond as quickly as I can! I would really love to hear your thoughts! Sending you love and comfort always!

Love 2

Always, Alyssa

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Heavenly Birthday Wish

Happy Birthday PoppyThis is a very special and heartfelt post for me. Today will always be a day that I hold very near and dear to my heart! This would have been my beloved Grandfather’s 82nd birthday. My amazing and strong Grandfather was taken from this world on September 9, 2013 after he lost his fight with cancer. I will never forget the phone call I received from my Uncle notifying me that my Grandfather had moved onto the next world. This was the most traumatizing and horrific phone calls I have ever had. I thought that nothing would ever take my sweet Grandfather from me.

I always called my Grandfather Poppy. I cannot remember where it came from, but it stuck. I was the first-born Grandchild, so all the other Grandchildren also called him Poppy. Poppy always offered a positive view on anything and everything. When I told him that I had been diagnosed with MS, he told me to never allow it to get me down because I was stronger than that. He always assured me that I could fight this disease and that I could win because of who I am, his strong Granddaughter.guardian angel

Poppy has been gone from this world for almost 5 years, but I still feel his presence with me everyday. I believe that he is always watching over me and keeping me as safe as possible. He really was a remarkable man and I can only hope that I am making him proud now. I fight this illness with courage and hope for better times. Like him, I think I have a very kind and understanding heart. I have a desire to help others that are in need and encourage them as well. I believe that I get my positive and passionate personality from him. He had never met a stranger in his life, but embraced everyone with nothing but kindness and non-judgmental thoughts! I will always do my best to live by this same standard.  

I do not only think of my Poppy on his birthday, but he is in my mind and heart every day of my life! I feel so proud and honored that I had him as a role model in my life birthday in heavenbecause I do feel like that has made me a better person. I saw how he loved his family and treated everyone around him with nothing but respect. He was the type of man who did not know hate or see people for the color of their skin or their choice of religion, but for the person they were on the inside. I learned through this truly exceptional man the true meaning of respect, love, values, honesty and how you should treat others.  

As y’all can clearly see I held my Grandfather up on a pedestal. I will always treasure every moment I spent with him whether it was on the phone or in person because all of these times were a blessing that I will never forget. As I write this, I cry tears of a mixture of sadness that I am not able to carry on a conversation with him any longer but also joy that I was fortunate enough to have this man in my life. When I close my eyes I can still hear his very unique loving voice and see his beautiful face.

In my heart I do truly believe that I will see my Poppy again someday. I have alwaystil we meet again believed that we will be reunited with our loved ones again when we make it to the pearly gates of Heaven. Until the day I see him again, I will do my best to live my life the way that would make him proud of me.

Thank y’all for visiting my site today and joining me to wish my Poppy a very Happy Birthday in Heaven. Throughout his life he was a pro-golfer, so I hope on this day he is playing golf on the best course available in Heaven!

Love 2

Always, Alyssa

Huge thank you!

Thank-You-So-MuchI am completely astonished by the amazing amount of support all of you have offered me since I start my blog in July 2017. I started this blog with only one follower initially, my husband. I made the decision to start this journey because of my passion for writing and my strong desire to help others that may be going through hard times. I felt that after living with a chronic illness for almost 18 years I could offer some hope, courage and strength for others. I am very proud to say that I am achieving my goal more and more each day due to the gratitude I have received from many of you. At this moment with each post I make over 600 individuals are reading what I write and so many make gracious comments to me that I am helping them through difficult times. I have heard so many times that my positive thoughts and encouraging words have inspired others, which really makes me incredibly happy. All I have ever wanted to do is help and motivate others that may have fallen on hard times or may possibly be struggling with illness.i-am-here-for-you

I want y’all to know how much I have enjoyed getting to know you and also learning so much from each of you! All of us deal with something that is not easy and we all have special and unique ways to cope our situations. I truly hope that y’all know that I am always here to help in any way I can. Our struggles are real, but they are always strengthening our abilities to handle the next day! Continue to stay positive and know that it is okay to lean on others. It is also okay to have a bad day and not feel very optimistic, we all have those days. However, it is important to not dwell on a bad day and remember that tomorrow is a new day with new opportunities for happiness!

I hope y’all have a great evening! Thank you so much for stopping by my site today. I look forward to hearing your thoughts in the comments and I do promise to respond to you as quickly as I can! I love the fabulous communications we have had! I am sending all of you lots of love and comfort!!

Love 2

Always, Alyssa

Valentine’s Day

Happy Valentines DayHappy Valentine’s Day to all! I might be wrong, but I do not believe we need a holiday to show our significant other that we love them. It seems like Valentine’s Day has become more of a consumerism day to buy cards, flowers, jewelry, balloons and candy when it was supposed to be all about love! My husband and I do not need a designated day to show how we feel about each other, we show our love and appreciation for one another every day of the year!

Valentine’s Day can also be a sad day for some. What about those who have lost a loved one recently? Or what about those whose relationship has come to a bitter end? Or those that are single and are not going home to a loved one? I am not saying we need to hide our love for our significant others to shelter those that are not enjoying Valentine’s Day, but we should not go to huge extremes on only one day to prove our love. images

I truly hope y’all have had a good day! I do not mean to sound so anti Valentine’s Day, I just feel pretty strong that love should be shown and felt everyday of the year! I do my best to always make sure my husband knows just how much he means to me and he does the same!

Thank you for stopping by my site today and reading my thoughts. Whether you agree or disagree with me, I would love to hear your own thoughts about Valentine’s Day. Is it a holiday that you love or hate? I am sending each and every one of you lots of love and comfort, everyday not just today!!

Love 2

Always, Alyssa

Sinus/Headaches Issues?

Good evening mondayHappy Monday Y’all! I hope you had a nice start to your week! How do you see Monday’s? Do you think of Monday as just another painful start to a new week or is it a new start for change? My week did not start off the way I would have liked because the headache I had all weekend did not want to give me a break. I would have thought dealing with the constant back and leg pain would have been enough to cope with, but of course not instead my headaches have increased drastically! 

I have been trying to figure out what is really causing my terrible headaches. The only things I have been able to come with are the lesions that are living in my brain or badsinusitis-physiology sinus issues or maybe even a combination of the two. I do know that headaches are pretty common with MS, but I am wondering if sinus issues are as well. Is it possible MS lesions could actually be in my sinuses? Do any of you reading this experience sinus troubles and if so, what do you do to relieve the awful pain it causes? At one point, I had convinced myself that the Gilenya I take for the MS was the reason for my sinus troubles. I was so convinced, I decided to switch my MS medication to a different disease modifying medication back August 2017. This was not one of my best decisions because I had a horrible flare up due to my change and the stress leading up to my decision. Of course I am still dealing with some of the residual effects from that flare up, but I am staying strong and positive knowing I will get back to where I was before the flare up! 

Please let me ask y’all a question, do any of you deal with sinus headaches? There is definitely a difference between a sinus headache and other headaches; such as cluster, headaches1-798x418migraine and tension headaches. Personally I do deal with several different types of headaches, but it seems like nothing at all helps these damn sinus headaches! I was so miserable with this headache all weekend, I did not leave the house and it was still hanging over my head today causing me to miss work today! I do find that hot water helps my sinus pressure some, but you can not really stay in a hot shower all day long. 

Thank y’all for stopping by my site today! I know most of my post sounds like a bit of a rant complaint, but I am really just wanting to get some thoughts from y’all because I know you do understand me and what I live with daily! Please leave a comment for me and I will respond to you as quickly as I can! I do always appreciate your thoughts and your fabulous advice. The conversations I have been able to have with many of you have meant so much to me and I love getting to know you better! I hope y’all have a fantastic and relaxing evening! I am always sending you lots of love and comfort!!

Love 2

Always, Alyssa

Sunday 1Good Evening Y’all! I hope you had a fantastic weekend and enjoyed your 2 day break! I am never really ready for the week to start again because it is just 5 more long days of the daily grind. 

I am so truly thankful for the friends I have made through this blog! I have had an amazing time getting to know so many of you and look forward to learning more about each of you! My goal for my blog was to be able to inspire, give knowledge about differences in illnesses and to really portray much positivity in a world that has a little too much negativity in it! I strongly believe that being able to stay positive through the most difficult times will make a huge difference! Life can get difficult, but no matter what the struggle is it could always be so much worse! I want y’all to know that I am always here for you if you need a sound board for frustrations or even have any questions. Whether you comment on a post or email me directly, I will always respond to you and love the great communications we can have with one another!

I hope y’all enjoy the last few hours of your weekend and your new week starts of fabulous! Monday is never a day I look forward to, but it is the start of a brand new weekpain with many possibilities of great changes! I am still hoping that my high pain levels will start to decrease soon as it has been extremely frustrating. If y’all have any suggestions to help this happen, I am all ears! Even though I have been in a terrible amount of pain I will never surrender to it, but instead I will keep fighting through it all!

Please leave any comments you have and I look forward to hearing your responses. Remember to always try to hold onto your positive outlook on life and things will all fall into place! Sending you love and comfort always!

Love 2

Always, Alyssa

Snowflake Illness

snowflake illnessChronic Illnesses are like snowflakes because like all snowflakes are so different from the other and each person’s situation with illness is different from another. You will never see two snowflakes that look exactly the same, just as you will never find two people with any illness that experience the same exact issues. There might be some similarities, but there are also some strong differences.

Personally, over the almost 18 years I have been living with MS, I have not met anyone that is dealing with the exact same issues that I do each and every day. Again, there are always some similarities, but they are never identical. I have met in person and through this blog others that are battling the MS fight who have equivalent issues to what I live with, but sometimes what they are struggling with is vastly unique to my own experiences. Even though their trials are something I may have not dealt with, I can totally relate to the hassles that are caused by illnesses!

I believe having the ability to meet others that understand what your daily struggles are in life is so helpful. This gives you the opportunity to learn from someone else, so that if you ever experience something similar you have someone to chat with that truly understands! I strongly feel that there are SO many that do not understand what anyone with an invisible illness goes through on a daily basis. Considering these illnesses are so incredibly unpredictable those living with the illness does not even know what to expect day by day, or even hour by hour. Can this be frustrating? Absolutely! But all of us, no matter what battle we are fighting are winning because of how strong we each are!

snowflakesThink about what illness you are fighting and think about those you have met with the same ailment. Now, think about if anyone has ever had the exact same struggles that you do. Can you think of anyone that is a mirror image to you? I know that I can’t! Most of the issues I deal with every day without fail is pain and some numbness problems. After chatting with numerous people, a lot of them also have the same type of issues but their pain and numbness might be in different areas of their body. We all deal with the strains of our illness so differently and with SO much strength and courage! Y’all know I believe that staying positive is one of the most important ways to beat the trials that come my way! I might have my off days where I feel completely defeated, but that state of mind does not last long because it does not help me overcome the issues at hand!

I guess we are each our own unique and beautiful snowflake just floating through our lives. We do not have to worry about melting from our troubles, we just need to continue to stay flying high above the struggles and we will win!

Thank you so much for stopping by my site today! I hope you enjoyed my thoughts for Saturday and I really look forward to reading your responses! I do promise to respond to you as quickly as I can! I can not explain how much the communications I have had with so many of you mean to me! I hope you are enjoying your weekend and doing what makes you happy! As always, I am sending you all lots of love and comfort!

Love 2

Always, Alyssa

Time Away!

downloadIn today’s world it seems we are always rushing to get from one point to another without stopping to enjoy life. I think it is so important to take time to sit back and just try to relax. Planning time to have away from phones, tablets, computers, TV and any other electronic device can provide you with some peaceful quiet time that is much deserved. My job entails working on a computer all day long, so sometimes at the end of the day the last thing I want to do is continue looking at another computer. I always enjoy writing on my blog and reading other blogs, but I am trying to have a cut off time from electronics, really to give my eyes a break because the computer does cause my headaches to increase.

Everyone always says that life is so short, but in the big picture it really is not all that short! If we can make the most of everyday it really may not feel that short at times. There are people out there that live until they are in their 90’s or even until they are 100, but they lived the life they were meant to live as does everyone else. I think most people get so wrapped up in social media it completely consumes their lives and they end up sharing too much with people they do not really know. It is not safe putting your entire life out there on Facebook, Twitter, Instagram or any other social media sites.slowdown

What do you do to relax after a stressful day? Do you have certain routines that can to me a little mundane? Funny thing is, I do have those routines that may seem a little boring to some, but I enjoy the peacefulness it brings to my life. Considering I have been trying hard to increase my hours at work it is nice to come home to a tranquil setting! Work can cause stress so if you can eliminate any unnecessary stress at home it is best for your health!

It is really hard to believe we are already into February! It seems like January went by incredibly fast! How is 2018 coming along for y’all? Are you enjoying the year so far? My plans for the New Year were to get learn to reduce my stress levels so that hopefully my pain issues would decrease. I have been trying to not allow other people’s negative outlooks affect my life and quit trying to fix everyone’s problems. It is in my nature to always want to help others, especially those that are close to me, but I have been able to take a step back knowing I can not fix the world! I do wish I had a magic wand and could take the pain away from all that are in pain, cure-all illnesses, not allow anyone to go hungry or not have a roof over their heads and so much more, but all I am able to do is listen when I can and help when I am able.

Even trying to reduce stress from my life my pain issues are still as high as they were last year and I am really not sure why! I do realize that life with MS does come with pain and hne_pain_and_suffering_it will get better in time. It is so frustrating when an illness is so unpredictable and there are really no answers to how to decrease the pain! But even through all the horrible pain I do still try to see the positive because this could all be so much worse than it is! This illness may cause me so much pain but in the big picture it has not taken anything away from me because I am still able to do things I want to do, even if I have to tone it down a little! I find it helpful and SO important to always try to find the good in all situations because no matter what you are dealing with, it could always be so much worse!

I hope y’all are having a fabulous week so far! Looking on the bright side, it is almost Friday! I want to thank y’all for stopping by my site today. As always I do love to hear your comments and will respond to you as quickly as I can! I hope you have a nice relaxing evening! Sending you lots of love and comfort always!

Love 2

Always, Alyssa

 

 

 

Life’s Challenges

joycemeyer1No one has ever said life was easy and really truly mean it. Life comes with so many challenges along the way and many are unforeseen. There may even be times when things get so difficult you just want to give up and stay away from the outside world! It is so important that even during the most grueling times in life to stand up straight and strong, knowing you are fighting a true battle with nothing but courage!

I think sometimes facing our fears is the hardest thing to do. We all have something we are afraid of whether it be moving to a new city, changing career paths, progression of an illness or something as simple as riding a terrifying ride at the amusement park. No matter how minor or major  the fear is, it is real and frightens us. 

Most of the time life is really like riding a roller coaster without the option to slow down at all. There are so many upward hills that are followed by  steep downhill falls that can95263-Life-Is-Like-A-Roller-Coaster completely take your breath away. Then there are the twists and turns that you do not see coming until it is too late and all you can do is hold on tight and hope for the best outcome. 

It may be hard to believe sometimes, but life always has a way of working out the way it is meant to. I might have been dealt a bad hand with being forced to live with Multiple Sclerosis, but I have been blessed with so many other fantastic aspects of life. Even though I deal with a lot of pain everyday and there are somethings I have to sit out of my husband is always extremely understanding and supportive. 

I hope y’all are having an amazing and enjoyable weekend. Considering my pain levels have been very high recently, I am taking it very easy this weekend trying to rest up so that I feel better for next week. 

I want to thank y’all for visiting my site today. I always appreciate you reading my thoughts and I love being able to read your comments. If you have any questions about the different medications I have some experience with or the different things I have been through with MS, please let me a comment and I will be happy to answer in my next posts! Sending y’all lots of love and comfort always!

Love 2

Always, Alyssa

Amazing Realizations!

baddayI think it has taken me a while to realize that it is okay to have a bad day. It is okay to not be positive all day every day. Sometimes life might just not seem fair and putting on a happy face just does not work at that moment. It is okay to admit you do not have all the answers to everyone’s issues in life. Admitting and talking about what is on your mind is so important! Smiling through the pain can help some days, but other days it is even more important and helpful to just say “I can’t do it today.”

One day might be absolutely amazing and the next day you just wish you could go back to bed and start over again. The truth is all good days will always be followed by a bad yinday. It might not be the following day or even the same week, but it is the yin and yang to life. Rain comes with sunshine, warmth comes with cold, happiness comes with sadness, strength comes with weakness and good comes with bad, and there really is not a way around it. The only thing we can do is keep pushing forward to the next day!

No two days are the exact same for me. One day I might feel relatively normal and the next day hurt so much it is a struggle to move. I guess that is just the life I was meant to live. I do believe strongly that our lives are a gift and we are just supposed to live it the best way we can without too many regrets. On those days where my pain is at its highest, I do know in my heart a good day is just around the corner. I used to think the bad painful days were some kind of punishment and for what I never knew, but now I think those bad days are just building me as a person and giving me more strength for the next day in life.

Y’all know that I felt as though I was being negative yesterday, but so many of you graciously told me I was actually a pretty positive person. Through the comments I received you showed me how true my first statement was, that it is okay to have a bad day! Letting go of the troubles live like you were die tomorrowfrom yesterday will make way for a better tomorrow! I guess it is important to learn something from our struggles so that we know how to handle them better in the future because difficult times will always reappear. 

I hope y’all had a fantastic day and you are feeling well! Each of you have a strength that benefits someone else in your life and you may not even realize it. Thank you for stopping by to read my thoughts for the day, which let me say are much more positive! Please feel free to leave a comment and I will respond as quickly as I am able to! I hope y’all have a wonderful and relaxing evening. Sending y’all much love and comfort!!

Love 2

Always, Alyssa