Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
We managed to survive another Monday😊! I made it to my pain management appointment on time and of course, they had me wait 40 minutes before the Nurse Practitioner came in to see me. Big surprise, right!? I was getting frustrated, but when she came into the room, she apologized for making me reschedule my appointment two weeks ago and for the wait. She had a doctor’s appointment that she could not miss, which I can understand. I know that doctors are always running behind schedule and the only reason I can come up with is terrible time management. The hour and a half drive to my appointment were just like I had expected, miserable!
I did check the weather on Sunday night, and it was not calling for rain, but of course, as soon as I walked out the door to my house it started raining. I do not like driving in the rain, especially on the interstate. I have a fear of those big 18-wheeler trucks, so anytime I am near one I go much faster just to get past them. For some reason, the drive home was much faster than the drive to the appointment. The only time traffic came to a standstill was when I crossed the county line to where I live, which always seems to happen, and it does not matter the time of day.
How did your week start? I hope you had a wonderful and stress-free day yesterday and each day that goes by until Friday is fantastic😊! I think throughout our lives we learn many valuable lessons that might not seem that important at the moment, but years later make sense and you implement them into your daily life. We are always going to come across people that may seem unpleasant and even downright miserable, which they might say or do something that insults us or makes us feel disrespect. It is important to never go to their level and maintain your dignity and self-respect. I hope the quote I found will help to remind you to never allow anyone else to forget who you are and the manners you hold close!
Thank you for visiting my site today! I hope you enjoyed this post and the quote sparks something inside you mind and heart. When you have a kind, compassionate, loving, thoughtful, willing to help others way of thinking, it crucial to stand up for yourself in a firm but kind way. I am looking forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort support, and MANY positive vibes!
Just like that July is over and August is here. It always surprises me how fast time flies by. Tomorrow we will begin the 8th month of 2022. I guess the positive side is, that summer will end soon, and cooler days are near. Of course, August and September can still be hot in the south, but I am looking forward to days when the temperatures are not in the low 90’s at 10:00 at night. This heat has been awful this year and I do not expect next year to be any different☹. I am hopeful that next year we will have central air in our house, so we will not feel like we are living in a sauna even with window units.
Tomorrow, I have my follow-up doctor’s appointment with my pain doctor. You know the one that forced me to reschedule because I was a few minutes late and two minutes away after driving for an hour and a half a couple of weeks ago! It probably is not a good thing that I am still feeling a little sour about this and I already know they will have me wait for no less than 20 minutes tomorrow. Why is it okay for them to always run late, but when I do one time I have to reschedule, leave work early again, and drive that long drive for a second time within two weeks, especially when gas prices are out of control? This hardly seems fair to me, and it is going to be extremely hard to not let them know how I feel about this!
I think I have mentioned this to you before, but the Gilenya I take for the MS is a blessing and a curse. It is a blessing because it seems to be keeping the MS at bay and not letting it progress, which I appreciate. It is a curse because one of the main side effects is sinus issues and I have had an evil sinus headache for three days now. If you remember I did post several years ago about stopping the Gilenya and trying something different because I was sick of the sinus headaches. Honestly, there was no way to know that this medication was helping as much as it is. I knew years ago I would have to decide to either deal with the sinus headaches or risk my health, which logically seems like a no-brainer. I hate the constant headaches but would regret changing medications and end up in a terrible situation. This is a catch-22 situation, but I decided a long time ago that I would just endure the sinus headaches.
Thank you for visiting my site today. I hope your weekend has been full of relaxation and doing what you enjoy. Tomorrow is the start of a new week and a new month, which will hopefully include many amazing new opportunities. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
For the past several days I forced myself through my workday and the things that I had to do. Unfortunately, I was unable to do any posts, work on my essay for the writing competition, or read because I have been battling a headache that seemed to be never-ending. Anytime I thought it was improving, I was proven to be incorrect when the massive pounding in my head returned with a vengeance.
Many of you reading this post today and may have visited my site before are already aware that I have Multiple Sclerosis. Anyone new to my site, thank you for taking the time to visit and I hope you will return. I enjoy writing about various topics and hope you will enjoy what I write about as well.
I have lived with Multiple Sclerosis for over 20 years, so basically more than half of my life. Over all these years, I have had numerous challenges, setbacks, disappointments, frustrations which fueled stress, and enough tears to fill the ocean. The one thing I have not experienced is giving up and letting MS control my life.
One of the main reasons why I refuse to give up is I made a promise to my late grandfather shortly after my diagnosis that I would always continue to try to move forward, and I would never surrender to MS. Although he has been gone for almost 9 years, I will continue to keep the promise I made to him. It might help that I am also extremely stubborn and obviously a born fighter, just not the violent type of fighter😊!
During the 20-plus years of living with MS, I have dealt with vision impairments, numbness, various forms of pain, stress from the harshness of symptoms, fears from potential disease progression, changing and deciding the right medications, relapse, neuropathy, doctor’s appointments, dizziness, and much more. Most of my pain does not prevent me from living my life and I just push through it and try my best to ignore it. After all the years of experiencing head pain, I am still unable to tolerate it. Unfortunately, it does not matter how many headaches I have already had in my life or how often I battle with them in any given week, the headache always wins our war.
There once was a time when I had a headache, I could take Advil and lay down with an ice pack for an hour or so and the headache would be gone. I wish I could explain how much I miss those days! Unfortunately, over the past few years, nothing provides me with any relief. Although I had many reservations, I ended up trying everything my doctors recommended, but they were all a complete waste of time and money because they did not help. I have tried combinations of over-the-counter medications, such as Advil, Excedrin, and Sudafed, which have helped more than anything else.
Over the past several days, not only was I dealing with the headache straight from hell but the invasive tight band feeling also known as the “MS Hug” visited me. The only good thing about COVID was social distancing, but I guess the MS Hug did not get the memo. I am just speculating, but I think I am experiencing the tight band feeling because of stress, the insane heat, or a nasty combination of the two.
This outrageous and uncontrollable heat is my enemy because it always causes me to feel awful. Over the weekend, I had to run out to two different stores and when I finally made it back home, I told my husband I am not leaving the house again during the day until at least November. I am pretty sure if the temperatures get any hotter, it will be the death of me. I do understand that this massive heat is being felt all around the world, and I do not think anyone can say global warming is not real anymore.
How are y’all handling the incredibly dangerous heat? One thing that I believe helps is to stay hydrated. I have four different stainless steel insulated water bottles. I fill the bottles about a quarter of the way with water and put them in the freezer. This makes it so I always have ice-cold water handy! I strongly recommend them, especially during the summer months. These stainless-steel insulated water bottles are very affordable on Amazon and there are any colors you can think of😊!
Another thing I recommend during these HOT summer months is if you must leave the house, start your car, and let the A/C run for a few minutes. It is never a good idea to try driving when you are hot because you could get overheated, which can cause you to feel dizzy and faint. The heat can do some terrible things to our bodies and minds, so it is best to do everything we can to stay as cool as possible.
Thank you for visiting my site today. I hope what I have shared was helpful for you. If you have any other suggestions regarding staying cool with these drastic temperatures, please share. Also, if you have experienced the evil MS hug, is there anything you do that helps? I am looking forward to reading your comments and I will respond as soon as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Most of us dread Monday morning, but today is a VERY special day! I do not have the words to explain how happy I am that my mother is getting married tonight. After kissing many toads, she has finally found her prince charming and soul mate in this life. Love is not an easy thing to find and hold on to, but she is happily marrying a man that is kind, loyal, understanding, easy to talk to, giving, loving, loves her unconditionally, and everything else that is wonderful. In all my years, I have never seen her this happy and it is refreshing. Not everyone finds love in their lifetime, but she finally has and I could not be happier for the two of them!
Unfortunately, I am not going to be at this wedding in person as she lives in another state which is over which is over 1,100 miles away. However, we are doing the next best thing and I will be at this wedding via Zoom. I know it does not seem like an ordinary way to watch your mother get married and I can admit it is far from ordinary, but due to COVID still lingering and my weak immune system getting on an airplane was not safe. I am thankful for the man she is marrying, which I have known for over two decades. It is funny how life and love work out, but things like this always work out for the best for everyone!
This afternoon I have a follow-up appointment with my pain management doctor. These appointments always go the same way and are relatively pointless, but I jump through all their hoops and follow what they require. The worst thing about these appointments is driving there because there is WAY too much road construction and too many people cannot drive. Overall, I know my appointment will go well as the Nurse Practitioner listens to what I say and knows I will not be willing to try anything different. Why change something when it works?
Thank you for visiting my site today! I hope you enjoyed what I have shared and look forward to hearing from you. Considering I am leaving work early for my doctor’s appointment and I have my mother’s wedding tonight, it might take me longer to respond to comments, but I will as soon as possible. I hope you had a wonderful weekend and your week begins great. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I mentioned this morning that I had a follow-up appointment with my neurologist and that I would share how it went. The appointment was at 9:00 AM, so I was their first appointment of the day. I do prefer early morning appointments because we all know how doctors can fall behind in their schedules. The drive to the office was insane, but that is because people have seemed to forget how to drive. Honestly, part of this was my fault because I was trying to follow the GPS to get to the office, and guess I was paying closer attention to the GPS and did not realize the other car did not have a stop sign. I did not cause an accident because I saw they did not have a stop sign and even though I was inching my way through the stop sign, I did stop. With how much people love to lay on their horns, the car did not do so.
The appointment went just the way I thought it would and was easy. The Nurse Practitioner did try getting me to agree to another kind of medication for the neuropathy I told her was causing issues, but I quickly shot down the other medication because I have tried it before and did not like the way it made me feel. Thankfully, she did not press me on this and said if I change my mind to let her know. She asked if there had been any changes or concerns, which is why I mentioned the neuropathy, and other than that nothing has changed. I told her what medications I was going to need to be refilled, and she made sure to get them refilled for me.
I hate going to the doctor, but the one great thing about this office is they are very responsive when I send messages to their portal. As with many other doctors, I never have to wait for a response, and they handle everything quickly. Something I learned today about my neurologist is, she loves purple and butterflies, which both I love as well. I will always miss Dr. Kaufman and his Nurse Practitioner, but I guess this office is the next best thing!
I hope you had a great Monday, and your week gets better with each day that passes. Surviving Monday is great because that means the rest of the week will be a walk in the park. I know we all want COVID to end, but sadly, it has not yet, and we still need to be extremely cautious. It is sad and frustrating, but we will make it through this together. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Monday, y’all! I hope you had a nice and safe weekend. I guess, it is ready or not and it is Monday again. The crazy thing is since I have not been working and looking for a job, my days have been getting confused, and yet I tend to know when Monday returns. For the most part, Monday is just another day and can offer new opportunities. The start of the week allows us to make changes and anything we did not accomplish last week, we can try again. I think it is a positive way to view the dreaded Monday mornings.
The start of my week is going to a follow-up appointment with my neurologist. These appointments never make sense because nothing changes with how I handle Multiple Sclerosis. I am still going to take Gilenya to slow the progression, at least until there is a cure. I will continue to take the other medications I have been on for years and normally will not agree to take anything additional because I do not want to be on dozens of medications that may or may not have unpleasant side effects.
With these specialist appointments, I know I will not see the doctor and will see the Nurse Practitioner, which I like. The only reason I have the specialist I do is that she won me over by saying how much she loved and idolized my former Neurologist. It was refreshing to know how much she thought of the doctor that diagnosed with 22 years ago because I thought the world of him. Dr. Kaufman had patience that never ended and considering I was only 19 when he changed my life forever telling me I had MS, he understood why I was so resistant and fought him every step of the way. The poor guy had told me that I reminded him of his youngest daughter, so that meant he had to deal with someone extremely stubborn at work and at home.
I think it is crucial to be prepared for appointments with doctors, especially specialists because any questions we forget to ask during the appointment will take more effort than necessary to get answered later. I know there would be several things I forget to ask during an appointment because I am rushing to get out of the office. The following are what I do to make sure I do not forget anything during my appointment.
I take a small notebook to the appointment with me. In the notebook, I write down all medications I take along with the dosage of each, any questions I have for the Nurse Practitioner, and refills I will need to be refilled. Considering I know I will forget the answers to the questions I ask, I write down a summary of what was said. We all know how much doctors like to suggest new medications, and even though my answer is typically no, I write down the new medications suggested to me so I can look them up when I get home.
My appointment is at 9:00 AM, so I will be the first appointment of the day. I prefer this because hopefully I will not be there too long and can be back home. I will let y’all know how it goes and considering nothing changes, I will not have too much to report. Early Monday morning doctor’s appointments are not an exciting way to start the week, but it will be fine!
Thank you for visiting my site today. I hope your morning begins well and the day only gets better. If you have any other ways you prepare for doctor’s appointments, I would love to know how you do! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
It is always sad when the weekend ends, but it also means we will be getting another chance during the upcoming week. The weekends are meant to rejuvenate us and I hope y’all are feeling well-rested. Of course, not all of us can sleep in, or at least I never do, but I do hope some of you were able to. There are still a few more hours left of this weekend, so if there is anything you desired to do, there is still time.
Often life takes on different roads and accepting them is not always easy. However, we are all given chances in life. The chances and opportunities are not necessarily easy to see but they are there it just means taking a closer and deeper look. Our lives are complicated and it is easy to not be able to see things in an optimistic light. This is the reason I am sharing the quote I am today because I hope it will open your eyes to everything you do have in life! We must see all the great things we do have in life and STOP focusing on what we are missing out on. Even though so many pretend to have a perfect life, no one in this world actually does have a perfect life and we all face challenges.
Tomorrow is going to be a busy today for me. The appeal meeting with the unemployment office that was rescheduled is tomorrow morning. I still have no plans on letting them win because I have done everything right and NEVER refused work. I do not know where they are getting their misinformation from, but I will be making things right tomorrow morning. I also have a doctor’s appointment tomorrow afternoon with the pain doctor. This is one of those every three month kind of appointments and they are always good. Nothing ever changes and I do not see anything being different tomorrow. I will also “hopefully” hear back about one of the full-time jobs that I am waiting for an answer from. I will keep y’all updated!
Thank you for visiting my site today. I hope you have had a great and safe weekend. I am still planning on sharing the post about the omicron variant because I think it is very important. I might not understand why so many people are not worried about new variants being a possibility and refusing to get vaccinated, but I do know that is a fact. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We finally made it through this week y’all! Happy Friday and I hope you are looking forward to the weekend as much as I am. It has without a doubt been a long week, but it was not too terrible. It could always be worst. Right? This afternoon is my routine follow-up appointment with the pain management doctor, and they are always the same. Nothing changes with the appointment or my pain level, so I am just doing what the doctor orders.
Over the past week, there was a drastic change in the weather. I think y’all already know how much the insane heat bothers me, but the cold tends to have a negative effect as well, especially when it includes rain. I think it might be more to do with when the changes go from extreme heat to cold that my body does not react well to. Of course, the heat does cause my symptoms to be worse than normal. Then the cold forces me to tense up which in turn causes pain to escalate because of the tension throughout my body. I think it would be perfect if the temperatures could be in the low 70’s year-round, but I know that will never happen. A girl can dream though!
Do any of you have plans for the weekend? I know you will not be surprised that I do not really have anything planned. My husband works all weekend and I do not. I will hopefully sleep in past 6:30, but that is if the cats allow it. The little girl that sleeps with me thinks it is her job to wake me up early and has reinforcement from our older cat. They just want treats and to hopefully get comfortable on my lap.
I am not violent in any way shape or form, but there are a few good UFC fights this weekend that we will watch on Sunday morning. In two of the fights, I have my pick of who I want to win, but we will see what happens. I am a huge fan of one of the female fighters, Rose Namajunas. After listening to her story, I learned that we have a few things in common, and through her story she gives me hope to move past events from the past.
There are a few things I want to write about and have had in my mind this week, but I will not make any promises. I am going to try though. It is always challenging to do the posts I want to do during the week because of how exhausted I am after work. So, the weekends are the time I try, and I am not always successful and often fail with this.
I hope you had a good week, and you will be able to let go of anything that happened during the week that caused you to feel negative emotions. The weekends are too short to allow for those negative emotions to impact your weekend. Life and weekends are short, so we need to be able to do what brings us the most joy. I found a pretty quote that I wanted to share and hope it helps you to leave the week in the past and enjoy your weekend! I would love to know what you think of the quote I am sharing!
Thank you for taking the time to visit my site today. Whatever you have planned for the weekend, please do so in the safest way possible. I want to believe there will come a day when the virus is in the past and we can live our lives in a normal way again without fear of getting the virus because I know how hard this is. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
How has your week been so far? I mean, I know it was only one day, but Monday sure was a doozy. There were a few reasons why yesterday was not the best Monday, but it also was not the worse. It was my first day back in my old position at work, which I realized quickly how much I forgot in the two or so weeks I was away from it. The funny thing was, everything came back to me slowly or more like a nightmare. I am just kidding it was no where near as bad as a nightmare, but it was a little unpleasant for the first few hours. I think the biggest part of it was that I missed the team I was with for two weeks before, but more so the supervisor!
Another reason yesterday will NOT be on a list oft best Mondays was because it rained on and off all day. Rainy days always increase my pain levels, which was already high. I guess maybe my body was trying to warn me the rain was coming a few days in advance, but it would have been nice if it has waited a little while so I did not have to cope with a week of rain pain! I hate to admit this because it makes me feel weak, but the leg and back pain has been so out of control it hurts to walk.
The other reason yesterday was not great, but it was not awful is because I left work a little early to go to my lab appointment. Of course, the lab was behind and I had to wait nearly 45 minutes, but the rest of the appointment was fine. I might be unusual, but I enjoy getting blood drawn. I find watching the needle go into my vein and pulling out a few vials of blood interesting. The labs were just what is needed because of the MS medicine, but I was also having my antibodies tested for COVID. It is important I know if I am safe or not. I will let y’all know what the results are when I get them back!
Thank you for visiting my site today. I hope you have a great Tuesday and your week only gets better. Unfortunately, the numbers for new COVID cases is increasing, but that is due to those who are refusing to get the vaccine. I just ask y’all to continue doing what you can to stay safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Monday y’all! I hope you had a lovely and restful weekend. Of course, I did not do anything too exciting over the weekend, but it also was not restful. One of our sweet kittens decided it was a great idea to wake me up at 5:30 on Sunday morning. I am not going to lie even though she is absolutely adorable and full of love, being woken up by her playing with my hair and jumping on my head was SUPER annoying! I am not sure what even made her think it was a good time to wake up because I never get up that early. The three cats do get treats every morning, but not until between 7:00 and 7:30. I think most people would have just told me to take a nap, but I never take naps because it messes with sleep on a workday.
I think this week is going to be a little hectic. I have my first in-person appointment with my neurologist this morning. I am not really looking forward to this appointment and it is not because I am worried about the news she would have because I have not had any tests run lately. I am assuming we will just go over medications and she will probably draw blood considering I never went to get the tests done she wanted me to. Tomorrow, my supervisor will be in an early morning training class and I will be sending out the morning reports, which will not be bad. I also have four hours of training every day this week and I am not sure if it is necessary, but we will see. On Thursday, our kitten that woke me up early on Sunday morning has her follow up to see if the antibiotic she got helped much with her foul breath. Truthfully, I do not think it helped much and she is still sneezing, which means she will probably get another round of the antibiotic.
Considering I think my week will be a little insane, I do not know about you but I could use a little motivation to get this week started. It is never easy to begin another week and starting a week with my first in-person appointment with my neurologist is a little nerve-wrecking. I mean with COVID most doctor’s appointments have been virtual and this feels a little strange to me. I think everyone was sick of mask-wearing and being secluded to our homes, but what did we really miss about our “normal” ways of life? I cannot say I missed much because I prefer social distancing anyways. I do not like people getting too close to me because it is an uncomfortable feeling. This is the reason I chose this quote to share with y’all today and I hope it provided you a sense of motivation and optimism.
Thank you for visiting my site today! I hope you enjoyed what I have shared and look forward to reading your comments, which I will respond to as quickly as I can. I hope your week starts off great, but gets better with each day. Please remember to continue to stay safe, even if you have been vaccinated because we are still so uninformed about the Delta variant. I hope you always know that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!