Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
How has your week been so far? My week has been an emotional roller-coaster. I told you earlier in the week that our older cat, Chloe, had been diagnosed with early-stage kidney failure a few years ago and seemed to not be doing so well in the past few days. Initially, her doctor’s appointment was scheduled for today, but on Tuesday night I noticed what looked to be blood in the litter box, so I called the vet frantic and requested her an earlier appointment. My husband and I took her to the vet yesterday morning to have her checked out. They drew blood, sent the blood for testing, and gave her fluids, and sent her home with us. I am supposed to hear from the doctor today before noon and if I do not, believe me, I will call them! The one thing the doctor said is that Chloe is getting older and with her kidney failure, she might also have a thyroid issue, which is treatable. Waiting for answers is torture, but hopefully, we will not get awful news.
Considering, this week has been difficult for me at least, I think we could use a little pick me up to get us through one final day before the weekend begins! I am hopeful that the quote I am sharing with y’all today, will provide you with the energy and optimism to get you through to the weekend. We all go through challenging and even tragic times in our lives, but I have confidence that we can make it through just about anything. I do believe that the combination of love and peace provides us with strength.
None of you are going to be surprised, but I do not have any plans for the weekend. Do any of you have anything planned? Whatever you decide to do this weekend, please make sure you stay as safe as you possibly can! I am looking forward to a quiet and peaceful weekend giving me the time to give Chloe LOTS of love. I will also plan on trying to help my mother through the difficult news she received on Wednesday. Once we got home from Chloe’s appointment, my mother called to tell me her mother’s doctor gave her a month to live. I feel for my mother, but her mother (yes, my grandmother) and I are not and have never been close.
Thank you for visiting my site today. I hope you enjoyed the quote I shared and I look forward to reading your comments. I do promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!!
Happy Friday Eve y’all! It has been a crazy and long week, but we have almost made it to the weekend! I was supposed to have my virtual appointment today with my neurologist, but she rescheduled it because I did not get my MRI. The reason I did not get the MRI done is because of COVID-19 and I was not ready to take any unnecessary chances. I am not going to lie to y’all I was and still am a little frustrated with her about this because she “should” understand that with my weak immune system, I am HIGH risk. Even though my doctor pretty much failed me, my husband came through for me. He went to get his second COVID vaccine shot on Wednesday and told the right person about my situation. This lady is an angel and sent me an invite for the vaccine, which I will be getting my first shot on Saturday! It is amazing how kind some people can be, this person does not know either one of us and has done something very remarkable. Even though there is a lot of hate in the world, people like this one person has restored my faith in humanity!
We only have one day left of this week and I don’t know about y’all, but I could use a little pick me up. Of course, part of the reason I say this is because I am disappointed with the neurologist, but I am also ready to be able to sleep in. I hope the quote that I am sharing with y’all today will be the pick me up you might need! No matter what we have seen go on in the world, please know even though they are rare, there are still some good, caring, and compassionate people that exist! Also, please remember that hope is something that is powerful and makes a huge difference in our lives!
How have y’all been feeling lately? And, how has your week been? My plans for the weekend are to get the first COVID vaccine on Saturday morning and have groceries delivered at some point, but other than that just relaxing and recuperating from this past week. We have all seen the news and the terrible things that have taken place, but we are all better than to get caught up in the massive levels of hate. Now more than ever, it is crucial to spread as much love, understanding, compassion, and kindness to as many as we can. Whatever your plans are for the weekend, please just remember to stay safe!
Thank you for visiting my site today! We all deserve a break from the craziness and to be able to enjoy our lives. I hope y’all already know this, but if you did not know how much I appreciate your continued support and kindness. I love reading your comments and even though I might not respond quickly, I can promise I will as soon as I can. Please never forget that I am always sending y’all LOTS of love, compassion, support, and MANY positive vibes!
Happy Friday y’all! I hope you had a great week and you are looking forward to enjoying your weekend, safely of course! Do you have anything planned for the weekend? No surprise to anyone, I have no plans at all. Truthfully, I really like a weekend with no plans involved and not just because I need a break after the long week, but also because it is SO much safer! I do want to try writing a post about the doctor’s appointment I had yesterday and about celebrating holidays during a pandemic.
Now that we are at the end of this week, some of us may have some pent up frustrations from the week to let go of. Y’all already know that I do not think we should ever cloud our very short weekends with the dark feelings we had during the week. With the massive amount of negativity that is bleeding through the states, oceans, and countries, we need to try our best to distance ourselves from the negative people and things! I hope the quote I am sharing today will help you let go of the problems, avoid overly negative people, and enjoy your weekend with a positive outlook on life! Negative emotions are contagious, but so are positive emotions!
Thank you for visiting my site today! I hope you have good day and a great, and safe weekend! I would love to know how your week was and also what you thought about the quote I shared today! Now, I did say I do not have any plans for the weekend, especially out of the house, but I would love to continue crocheting the blanket I am making for my mother and her boyfriend and write a few posts. I do want to ask y’all to please stay safe this weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We have almost made it through another week y’all! How has your week been? Against my good judgement, I have to go to a doctor’s appointment today. I have tried for 2 weeks to get this appointment to be virtual, but they just would not give into my request. My reason for being so against this is because of how awful COVID numbers are in the state I live in. Considering I hardly have an immune system, I am pretty upset and nervous about this appointment, but as always I will be very careful. It really doesn’t make sense to me because when this pandemic first started and cases were not very high, this doctor did do virtual appointments and now that numbers are escalating they refuse.
The good new is, we only have one more day of the week and we will have made it to the weekend! I don’t know about y’all, but I definitely could use a little Pick Me Up. I do hope the quote I am sharing with y’all today will provide you with the pick me up you need to get through the final day of the week! I would love to read your thoughts though because I know they will be great and insightful!
I hope you have a lovely and safe day! I will try tonight to do a post about how my doctor’s appointment went today, but it will depend on how I feel when I get home. This doctor is about an hour and a half away from my house and I really do not like driving. What makes this drive even worse is the fact that people can’t drive and there is SO much road construction. Even though I do not feel comfortable going to the office and dread driving, it still might be nice to get out of the house for a little while. I have felt very isolated and frustrated being home ALL the time.
Thank you for visiting my site today! Try to not stress too much about anything too much today because nothing is worth that much of your time. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Many of you already know that I have battled my fight with Multiple Sclerosis for going on 20 years now. Most days I can’t even believe it has been that long and yet I still remember the day I heard the doctor say the words to me “Alyssa, you have Multiple Sclerosis.”I was a 19- year- old girl, alone in the exam room, and was in complete shock. At the time of my diagnosis, I was naïve, scared, and did not know what my life was going to be like. I only knew one person that had MS and she was in a wheelchair. Being so young and clueless I thought I was going to be diagnosed, and then bound to a wheelchair, and then death. I know how ridiculous that sounds now because I have a better understanding of this disease.
Of course, the past 20 years have come with many ups and downs, but not only am I still here to talk about it and hopefully help others living with chronic illnesses. Yes, I do live with various issues, but I have learned to live a fairly normal and full life with all of it. I think it is important to understand that no matter what our struggles are in life, we can learn to make the most of it. Life is short and no one ever said it was going to be easy. I think the more struggles we overcome, the stronger we are.
It has been a while since I have written about Multiple Sclerosis and considering I had an appointment a little more than a week ago with my new neurologist; it might be a good time to write a little about what I deal with day in and day out with Multiple Sclerosis. The real reason I do not write much about it anymore is I do not think it is good to dwell on things we have no control over, but it is important to help others that do not have MS understand what it is all about and others that live with this unpredictable disease to know they are not alone. I say this because I remember when I was first diagnosed, I felt so incredibly and painfully alone.
One of the most important things when living with any chronic illness is finding a specialist that you trust and can work well with. Over my years with Multiple Sclerosis, I have had my fair share of specialists that I respected and trusted, but then there were those I would do anything just to avoid them. The only reason those I trusted, respected, and admired are not my specialist anymore is that they retired. I have only met my new specialist was virtually, but she said one thing that won me over, she knew, admired, respected, and loved my first neurologist. As simple as this may sound, I have been missing my first neurologist since the day he retired. It did take me time to be accepting of him because he was the one that confirmed I had Multiple Sclerosis. The only reason I left the practice he was at is because the neurologist that was taking his place insulted him when speaking with me and this was a HUGE no, no!
During my two decades of living with Multiple Sclerosis, (WOW that sounds like a LONG time), I have faced and dealt with various issues. Of course, some of what I have struggled with have ranged anywhere between being a minor inconvenience to almost unbearable, and everything in between. Symptoms involved with Multiple Sclerosis and any other chronic illness can be different for each individual because we are all unique.
I am sure that most of you know about Multiple Sclerosis because you or someone you know has it, but I am going to take this time to provide you a brief overview, and then I will describe the issues I battle with every day of my life. I will begin by explaining what Multiple Sclerosis is.
What is Multiple Sclerosis?
Multiple Sclerosis is a disease that may become disabling of both the brain and spinal cord. With MS, the immune system attacks the myelin, which is the protective sheath covering nerve fibers and creates communication issues between the brain and the rest of the body.
What are the types of Multiple Sclerosis?
Unfortunately, in 2020 there is still not a way to foresee with absolute certainty how a person’s disease will advance and or how fast this will happen. The four main types of MS have been established by the: International Advisory Committee on Clinical Trials of MS and were defined as the following explanations.
Clinically Isolated Syndrome (CIS):
This is the first occurrence of neurological symptoms that are caused by inflammation and demyelination in the central nervous system. Although the occurrence must last for at least 24-hours to be considered a characteristic of MS, it still doesn’t meet the specifications for an MS diagnosis because those that experience CIS may or may not have MS.
It is when CIS comes along with lesion on a brain MRI, which is typically seen in MS, that the probability of the person having a 2nd MRI is high, and being diagnosed with RRMS is very common.
Relapsing-Remitting Multiple Sclerosis (RRMS):
This is the most common form of MS with 85% of people being diagnosed originally with it. RRMS is distinguished by undeniably defined attacks of new or increasing neurological symptoms, which are known as relapse or exacerbation and are typically followed with partial or complete times of partial or complete remission. While in remission, all symptoms may disappear or the symptoms may continue and be permanent, but during this time there isn’t any progression seen. RRMS can be further described as either active, which is with relapse and or confirmation of new MRI activity in a specific time frame, or NOT active, as well as worsening or not worsening.
Secondary Progressive Multiple Sclerosis (SPMS):
Secondary Progressive Multiple Sclerosis is a type when one was initially diagnosed with RRMS and progressed into SPMS. The progression from RRMS to SPMS is due to the increasing worsening of neurological function over time. SPMS can also e distinguished as either active, not active, as well as progression indicating disability accrual over time.
Primary Progressive Multiple Sclerosis (PPMS):
Primary Progressive Multiple Sclerosis is classified by increased deteriorating neurological function from the onset of this disease and without early relapse or remissions. Just like the first few types of MS, PPMS can also be distinguished as active, not active, progression, and without progression. Only about 15% of people with MS are diagnosed with PPMS.
The symptoms for each person living with Multiple Sclerosis might be very different, slightly different, similar, but they will never be exactly the same because we are all very different. I really did not mean for this post to get so long, so I will briefly share with you the symptoms I deal with both daily and or randomly.
The way I discovered that I had MS all those years ago, is because I lost vision in my left eye and went to the eye doctor. Never in a million years did I expect that this vision loss was the start of my journey with Multiple Sclerosis. After going through the MRI to confirm the doctor’s suspicions, I was put on an insane amount of steroids, which even though I completely and utterly detest steroids; they did help restore my vision. One would think I would have been relieved to learn I wasn’t going blind, but I often think the diagnosis was worse than the diagnosis.
Through the years, I have experienced a wide range of symptoms that have varied from mild and tolerable to awful and intolerable. A few things that have been a constant are pain, numbness and tingling, and spasticity. Sometimes I think that if I had one day without any pain, numbness and tingling life wouldn’t seem as normal. My legs always have that numbness and tingling sensation from my knees to the tips of my toes. It can make walking be challenging depending on how bad it is, but normally I am fine with walking. My back hurts every minute of every day from the middle to lower back, but I try not to let that get me down too much. There are times when the mixture of pain, numbness, and tingling can contribute to muscle weakness. I also experience a lot of fatigue and then have a hard time falling asleep. It is an annoying cycle!
Another symptom I have dealt with over the past two decades that is not very often is vertigo. There was a time several years ago when I was having vertigo very bad, but had a doctor’s appointment with my neurologist and drove myself to the appointment. I did well driving when a little dizzy because I managed to keep between the lines. It is insane that I hardly could walk a straight line, but drove perfectly fine! I have also dealt with the MS hug, which is not a huge anyone ever wants. The MS hug feels like there is a huge snake around you and just keeps squeezing. Another issue I deal with at least three times a week is headaches/migraines. Headaches/migraines are a form of pain that I can’t deal with.
Thank you for visiting my site today and reading about my LONG journey of living with Multiple Sclerosis. It has been a long journey and one I never wanted, but one I wanted to give up on 20 years ago. I am thankful that I did not give up and followed advice from my dear Poppy. When I was diagnosed, my Poppy told me that I was strong enough to handle this disease and to always remember that no matter what I am going through, someone else is going through something a lot worse. I have held onto his words all these years and hope that I can inspire y’all to never give up because you are far stronger than you ever knew.
I know this post got a little long and longer than I anticipated, but there is so much involved when living with Multiple Sclerosis. All the challenges you experience throughout your life are making you stronger and therefore you can inspire someone else to never give up! I am looking forward to reading your comments and I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
We have finally almost made it through this week! How has your week been? This week has been a long one, but it is almost over. Today is the day of my first virtual appointment with my new neurologist, I am hoping it goes well. I will do a post about how my appointment well, but I do appreciate all of your kind and encouraging comments!
Now that we only have one day left of this week, I think we could all use a little pick me up. I am hoping the quote I am sharing with y’all, will serve you with the right amount of encouragement and lift you need to make it just one last day! With all that is going on with COVID and the stress it is causing, we all need to stay together and help one another get through all this stress!
Thank you for visiting my site today! I hope your Friday Eve goes well and you are staying as safe as you possibly can. Please always remember I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Tuesday y’all! How has your week started off? My week has actually started pretty great, except for the ridiculous pain in my legs. I am thankful that I do not need to leave the house and do not have to walk much, but it still hard to deal with. Honestly, if I did have to leave the house and go to an office, I might not be able to because the pain in my legs is just that awful. Anyways, enough of that negativity and onto more positive news! Things with my job are going very well and I have even been requested from at least one of our lenders. I have made nice with them and really enjoy working with the lender!
We have made it through one day of this week and have four to go! From how the week started, I am thinking it is going to be a good week! I have my first appointment with my new neurologist on Thursday and thankfully it is virtual! I have heard nothing but great things about the new neurologist, so I am actually a little excited about it. I do not want to get my hopes up too high because I do not want to set myself up for disappointment, but we will see how it goes! From my own personal experience I know the typical personality of neurologists, but hopefully this one will be different.
To try to maintain the much needed tranquility we all need during these very challenging times, I have found what I think is a great quote. I do look forward to reading what you think about it though because your opinions matter so much to me! I find your comments truly amazing and insightful! I will do my best to respond to all your comments as quickly as I can, which might not be until I get off work.
Thank you for visiting my site today! I hope you are having a good week and of course, you are staying safe. Times with COVID are unfortunately getting even more scary, but as long as we are following what the experts are suggesting we should be okay! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We are finally almost at the end of this extremely long week! How has your week been? I hope your week has been great and you are staying as safe as you possibly can. I am working the morning, well until noon and then going to a doctor’s appointment. Unfortunately, this is one of those appointments I have to go to the office for, but I am always safe! I definitely I wish I could have done it virtually, but some doctor’s are not very cooperative.
With only one day of the week left before the weekend that we are all always looking forward to, we might be needing just a little pick me up! I am truly hoping the quote I am sharing with y’all today will give you the lift you need to get through one more day! I am looking forward to reading what you thought about the quote I shared today and will respond as soon as I can, which hasn’t seemed to be very fast lately. In my defense, these headaches I keep having are miserable and it isn’t easy to look at the computer screen.
Do you remember the weekends before the pandemic? I remember days in the past when I would have ideas of what I wanted to do over the weekend, but since the pandemic invaded our lives my plans are to stay in the house and safe. Even though I am thankful to be able to work from home, it sometimes seems like I am always at work because I hardly ever leave the house anymore. Although I am not excited about driving to my doctor’s appointment, I am thrilled to be leaving the house for a few hours today!!!
I want to thank y’all for visiting my site today! Your continued support and amazing comments are very appreciated. I hope your week has gone great and you are looking forward to a safe, and relaxing weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
Happy Monday y’all! How was your weekend? Honestly, I had a lot of ideas of what I wanted to do over the weekend. Unfortunately, because of a nasty rainy weekend I did not feel well enough to do any of it. Rain makes me feel all my pain more and causes an extreme amount of fatigue. I do hope your weekend was spent better than mine and you are felt well all weekend.
Are you ready to begin another week? It isn’t ever easy to say goodbye to the weekend and begin another week that should be full of opportunities! Each week offers us opportunities for even more chances of success! I am wishing for y’all to have a nice and safe week! I am hoping the quote I am sharing with y’all today offers you the motivation you need to start your week with positivity and optimism!
I can tell you how some of my week is going to go. I have a doctor’s appointment on Thursday afternoon and unfortunately, I have to go to the office. I will be as careful as I possibly can be. I will wear my mask and sanitize as much as possible! I am not too concerned about safety with this office because they do not have people sit in the lobby. I will be immediately taken into the exam room, where I will sit and wait all by myself. The Nurse Practitioner will be quick and she is careful and understanding.
Thank you for visiting my site today! I hope you enjoyed the quote I shared and I am looking forward to reading your comments, and I promise to respond as quickly as I possibly can. I am sorry there are some comments I didn’t respond to yet over the weekend because I really wasn’t feeling well at all. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
I hope y’all had a lovely and safe weekend! Honestly, I did not do much of anything over the weekend and stayed safe. I did not really feel all that great, but I do think it had something to do with the weather. It kept raining on and off, which tends to cause pain and headaches for me. As we are entering a new week, that is a full week, hopefully, it will not feel as long as last week felt.
Unfortunately, I have to go get blood work done today because the unpleasant nurse at my specialist’s office has been on my case. I do not mind blood work and actually enjoy watching it, but with COVID being uncontrollable, I am not thrilled about going to the office. I will, of course, remain safe and wear my mask. Plus, I can check-in from my car and go in when they are ready.
As always, I think a motivating quote is helpful when starting a new week. I think a positive and motivating quote can set the tone for the week and hopefully the week will only get better each day! I do hope you will find the quote motivating and you enjoy it! I do look forward to reading your fabulous comments, which I will respond to as soon as I possibly can!
Thank you for visiting my site today! I hope you have a wonderful week and of course, please stay as safe as you possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!