Appointment Update

I mentioned this morning that I had a follow-up appointment with my neurologist and that I would share how it went. The appointment was at 9:00 AM, so I was their first appointment of the day. I do prefer early morning appointments because we all know how doctors can fall behind in their schedules. The drive to the office was insane, but that is because people have seemed to forget how to drive. Honestly, part of this was my fault because I was trying to follow the GPS to get to the office, and guess I was paying closer attention to the GPS and did not realize the other car did not have a stop sign. I did not cause an accident because I saw they did not have a stop sign and even though I was inching my way through the stop sign, I did stop. With how much people love to lay on their horns, the car did not do so.

The appointment went just the way I thought it would and was easy. The Nurse Practitioner did try getting me to agree to another kind of medication for the neuropathy I told her was causing issues, but I quickly shot down the other medication because I have tried it before and did not like the way it made me feel. Thankfully, she did not press me on this and said if I change my mind to let her know. She asked if there had been any changes or concerns, which is why I mentioned the neuropathy, and other than that nothing has changed. I told her what medications I was going to need to be refilled, and she made sure to get them refilled for me.

I hate going to the doctor, but the one great thing about this office is they are very responsive when I send messages to their portal. As with many other doctors, I never have to wait for a response, and they handle everything quickly. Something I learned today about my neurologist is, she loves purple and butterflies, which both I love as well. I will always miss Dr. Kaufman and his Nurse Practitioner, but I guess this office is the next best thing!

I hope you had a great Monday, and your week gets better with each day that passes. Surviving Monday is great because that means the rest of the week will be a walk in the park. I know we all want COVID to end, but sadly, it has not yet, and we still need to be extremely cautious. It is sad and frustrating, but we will make it through this together. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Monday morning Specialists appointment

Happy Monday, y’all! I hope you had a nice and safe weekend. I guess, it is ready or not and it is Monday again. The crazy thing is since I have not been working and looking for a job, my days have been getting confused, and yet I tend to know when Monday returns. For the most part, Monday is just another day and can offer new opportunities. The start of the week allows us to make changes and anything we did not accomplish last week, we can try again. I think it is a positive way to view the dreaded Monday mornings.

The start of my week is going to a follow-up appointment with my neurologist. These appointments never make sense because nothing changes with how I handle Multiple Sclerosis. I am still going to take Gilenya to slow the progression, at least until there is a cure. I will continue to take the other medications I have been on for years and normally will not agree to take anything additional because I do not want to be on dozens of medications that may or may not have unpleasant side effects.

With these specialist appointments, I know I will not see the doctor and will see the Nurse Practitioner, which I like. The only reason I have the specialist I do is that she won me over by saying how much she loved and idolized my former Neurologist. It was refreshing to know how much she thought of the doctor that diagnosed with 22 years ago because I thought the world of him. Dr. Kaufman had patience that never ended and considering I was only 19 when he changed my life forever telling me I had MS, he understood why I was so resistant and fought him every step of the way. The poor guy had told me that I reminded him of his youngest daughter, so that meant he had to deal with someone extremely stubborn at work and at home.

I think it is crucial to be prepared for appointments with doctors, especially specialists because any questions we forget to ask during the appointment will take more effort than necessary to get answered later. I know there would be several things I forget to ask during an appointment because I am rushing to get out of the office. The following are what I do to make sure I do not forget anything during my appointment.

I take a small notebook to the appointment with me. In the notebook, I write down all medications I take along with the dosage of each, any questions I have for the Nurse Practitioner, and refills I will need to be refilled. Considering I know I will forget the answers to the questions I ask, I write down a summary of what was said. We all know how much doctors like to suggest new medications, and even though my answer is typically no, I write down the new medications suggested to me so I can look them up when I get home.

My appointment is at 9:00 AM, so I will be the first appointment of the day. I prefer this because hopefully I will not be there too long and can be back home. I will let y’all know how it goes and considering nothing changes, I will not have too much to report. Early Monday morning doctor’s appointments are not an exciting way to start the week, but it will be fine!

Thank you for visiting my site today. I hope your morning begins well and the day only gets better. If you have any other ways you prepare for doctor’s appointments, I would love to know how you do! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

The End of the Weekend

It is always sad when the weekend ends, but it also means we will be getting another chance during the upcoming week. The weekends are meant to rejuvenate us and I hope y’all are feeling well-rested. Of course, not all of us can sleep in, or at least I never do, but I do hope some of you were able to. There are still a few more hours left of this weekend, so if there is anything you desired to do, there is still time.

Often life takes on different roads and accepting them is not always easy. However, we are all given chances in life. The chances and opportunities are not necessarily easy to see but they are there it just means taking a closer and deeper look. Our lives are complicated and it is easy to not be able to see things in an optimistic light. This is the reason I am sharing the quote I am today because I hope it will open your eyes to everything you do have in life! We must see all the great things we do have in life and STOP focusing on what we are missing out on. Even though so many pretend to have a perfect life, no one in this world actually does have a perfect life and we all face challenges.

Tomorrow is going to be a busy today for me. The appeal meeting with the unemployment office that was rescheduled is tomorrow morning. I still have no plans on letting them win because I have done everything right and NEVER refused work. I do not know where they are getting their misinformation from, but I will be making things right tomorrow morning. I also have a doctor’s appointment tomorrow afternoon with the pain doctor. This is one of those every three month kind of appointments and they are always good. Nothing ever changes and I do not see anything being different tomorrow. I will also “hopefully” hear back about one of the full-time jobs that I am waiting for an answer from. I will keep y’all updated!

Thank you for visiting my site today. I hope you have had a great and safe weekend. I am still planning on sharing the post about the omicron variant because I think it is very important. I might not understand why so many people are not worried about new variants being a possibility and refusing to get vaccinated, but I do know that is a fact. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

It is finally Friday

We finally made it through this week y’all! Happy Friday and I hope you are looking forward to the weekend as much as I am. It has without a doubt been a long week, but it was not too terrible. It could always be worst. Right? This afternoon is my routine follow-up appointment with the pain management doctor, and they are always the same. Nothing changes with the appointment or my pain level, so I am just doing what the doctor orders.

Over the past week, there was a drastic change in the weather. I think y’all already know how much the insane heat bothers me, but the cold tends to have a negative effect as well, especially when it includes rain. I think it might be more to do with when the changes go from extreme heat to cold that my body does not react well to. Of course, the heat does cause my symptoms to be worse than normal. Then the cold forces me to tense up which in turn causes pain to escalate because of the tension throughout my body. I think it would be perfect if the temperatures could be in the low 70’s year-round, but I know that will never happen. A girl can dream though!

Do any of you have plans for the weekend? I know you will not be surprised that I do not really have anything planned. My husband works all weekend and I do not. I will hopefully sleep in past 6:30, but that is if the cats allow it. The little girl that sleeps with me thinks it is her job to wake me up early and has reinforcement from our older cat. They just want treats and to hopefully get comfortable on my lap.

I am not violent in any way shape or form, but there are a few good UFC fights this weekend that we will watch on Sunday morning. In two of the fights, I have my pick of who I want to win, but we will see what happens. I am a huge fan of one of the female fighters, Rose Namajunas. After listening to her story, I learned that we have a few things in common, and through her story she gives me hope to move past events from the past.

There are a few things I want to write about and have had in my mind this week, but I will not make any promises. I am going to try though. It is always challenging to do the posts I want to do during the week because of how exhausted I am after work. So, the weekends are the time I try, and I am not always successful and often fail with this.

I hope you had a good week, and you will be able to let go of anything that happened during the week that caused you to feel negative emotions. The weekends are too short to allow for those negative emotions to impact your weekend. Life and weekends are short, so we need to be able to do what brings us the most joy. I found a pretty quote that I wanted to share and hope it helps you to leave the week in the past and enjoy your weekend! I would love to know what you think of the quote I am sharing!

Thank you for taking the time to visit my site today. Whatever you have planned for the weekend, please do so in the safest way possible. I want to believe there will come a day when the virus is in the past and we can live our lives in a normal way again without fear of getting the virus because I know how hard this is. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Happy Tuesday

~One Day Down, Four To Go~

How has your week been so far? I mean, I know it was only one day, but Monday sure was a doozy. There were a few reasons why yesterday was not the best Monday, but it also was not the worse. It was my first day back in my old position at work, which I realized quickly how much I forgot in the two or so weeks I was away from it. The funny thing was, everything came back to me slowly or more like a nightmare. I am just kidding it was no where near as bad as a nightmare, but it was a little unpleasant for the first few hours. I think the biggest part of it was that I missed the team I was with for two weeks before, but more so the supervisor!

Another reason yesterday will NOT be on a list oft best Mondays was because it rained on and off all day. Rainy days always increase my pain levels, which was already high. I guess maybe my body was trying to warn me the rain was coming a few days in advance, but it would have been nice if it has waited a little while so I did not have to cope with a week of rain pain! I hate to admit this because it makes me feel weak, but the leg and back pain has been so out of control it hurts to walk.

The other reason yesterday was not great, but it was not awful is because I left work a little early to go to my lab appointment. Of course, the lab was behind and I had to wait nearly 45 minutes, but the rest of the appointment was fine. I might be unusual, but I enjoy getting blood drawn. I find watching the needle go into my vein and pulling out a few vials of blood interesting. The labs were just what is needed because of the MS medicine, but I was also having my antibodies tested for COVID. It is important I know if I am safe or not. I will let y’all know what the results are when I get them back!

Thank you for visiting my site today. I hope you have a great Tuesday and your week only gets better. Unfortunately, the numbers for new COVID cases is increasing, but that is due to those who are refusing to get the vaccine. I just ask y’all to continue doing what you can to stay safe. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Motivational Monday

Happy Monday y’all! I hope you had a lovely and restful weekend. Of course, I did not do anything too exciting over the weekend, but it also was not restful. One of our sweet kittens decided it was a great idea to wake me up at 5:30 on Sunday morning. I am not going to lie even though she is absolutely adorable and full of love, being woken up by her playing with my hair and jumping on my head was SUPER annoying! I am not sure what even made her think it was a good time to wake up because I never get up that early. The three cats do get treats every morning, but not until between 7:00 and 7:30. I think most people would have just told me to take a nap, but I never take naps because it messes with sleep on a workday.

I think this week is going to be a little hectic. I have my first in-person appointment with my neurologist this morning. I am not really looking forward to this appointment and it is not because I am worried about the news she would have because I have not had any tests run lately. I am assuming we will just go over medications and she will probably draw blood considering I never went to get the tests done she wanted me to. Tomorrow, my supervisor will be in an early morning training class and I will be sending out the morning reports, which will not be bad. I also have four hours of training every day this week and I am not sure if it is necessary, but we will see. On Thursday, our kitten that woke me up early on Sunday morning has her follow up to see if the antibiotic she got helped much with her foul breath. Truthfully, I do not think it helped much and she is still sneezing, which means she will probably get another round of the antibiotic.

Considering I think my week will be a little insane, I do not know about you but I could use a little motivation to get this week started. It is never easy to begin another week and starting a week with my first in-person appointment with my neurologist is a little nerve-wrecking. I mean with COVID most doctor’s appointments have been virtual and this feels a little strange to me. I think everyone was sick of mask-wearing and being secluded to our homes, but what did we really miss about our “normal” ways of life? I cannot say I missed much because I prefer social distancing anyways. I do not like people getting too close to me because it is an uncomfortable feeling. This is the reason I chose this quote to share with y’all today and I hope it provided you a sense of motivation and optimism.

Thank you for visiting my site today! I hope you enjoyed what I have shared and look forward to reading your comments, which I will respond to as quickly as I can. I hope your week starts off great, but gets better with each day. Please remember to continue to stay safe, even if you have been vaccinated because we are still so uninformed about the Delta variant. I hope you always know that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Doctor’s Appointment & Nasty Rainy Day

Torrential downpour and non-driving people on the interstate drive me insane! I already hate driving but driving in the rain I despise more than I could ever explain. I left work early yesterday to go to my appointment with the pain management doctor, while the hour and a half drive there was fine besides the 18-wheeler trucks, the drive home was terrifying because the rain was so intense, I could not even see the front of my vehicle at times. There was a point that I almost pulled over to try waiting out the rain, but I really wanted to get home, so I continued driving very slowly, which is not like me.

I will never understand why doctors bother scheduling appointments because they are always running behind at least 45 minutes. My appointment yesterday was scheduled for 2:00, but the extremely sweet Nurse Practitioner did not come into the exam room until 2:40. Normally, I would have been frustrated, but like I said the NP is a sweet lady and I like her, so I remained patient and kept myself entertained shopping and writing a little.

These appointments are always so quick, well once the NP comes in the room, but it seems like a long drive. I am just glad she is allowing me to do these follow- up appointments every three months, instead of every other month. Overall, everything went just as well as it always does. She has even suggested a topical medication that might help with the neuropathy my legs and feet deal with daily, so I am happy about this. I do have to wait on the specialty pharmacy to call me back once they deal with the insurance company.

The hour and a half drive home felt like an eternity. Several times during the trip home, it was raining so hard that I could not even see the hood of my vehicle. I did stay in the slow lay, going no more than 40 mph. It was terrifying though because other cars were still speeding and that always frightens me, especially because I know they cannot drive when the sun is shining, and the ground is dry. There were a handful of times I considered pulling off at a rest stop to try waiting for the rain to stop, but I wanted to get home and work another hour to not have to use PTO. Even though it took me almost two hours to get home, I did make it without having an accident. Crazy times driving on an interstate in the south!

Thank you for visiting my site today. This was just giving an update on a doctor’s appointment, but I felt it was something good to write about. I hope you enjoyed it, and I would love the opportunity to read your comments, which I will respond to as quickly as I can. Please remember that I am always sending y’all LOTS of love, support, comfort, and MANY positive vibes!

Always, Alyssa

Motivational Monday

~Let Us Begin This Week With All Positive Thoughts~

Happy Monday y’all! I hope you had a nice, relaxing, and safe weekend, and you are ready to begin this new week. My weekend was uneventful which is a great way to spend the weekend or at least it is for me. The only bad part of the weekend was I could hardly sleep but 2 hours on Friday night, so Saturday I was exhausted. The crazier thing was, there was no reason for me not to sleep Friday night. Normally, when I have sleepless nights I am worried about something or stressed and I do not think I was, at least not consciously.

As our week begins and the weekend has ended I always feel we might need a little motivation to get us started in the best way possible. I try to share quotes that I enjoy, but do hope the one I am sharing today will serve you with the motivation and inspiration you need. Most of us think of Jim Carey as a comedian, but he can be insightful like this quote indicates. Of course, I hope your week begins well and continues to improve with each day that passes. I am looking forward to reading your comments and promise to respond as quickly as I can, which will probably be when I am out of work.

As y’all know March is Multiple Sclerosis Awareness Month and I am planning to do a few more posts about MS. I have my virtual appointment with my neurologist tomorrow afternoon and I am hoping we will be discussing the MRI I had several weeks ago. In the past, I was always nervous about hearing the results, but I did read the report and it looked to me as a good report with no terrible changes. I guess I will hear what the neurologist says and I will keep y’all informed.

Thank you for visiting my site today! I hope you have a great and safe day will very little unnecessary stress. I have learned over the years that most things I stress over are not as important as I think they are and should just let go of these things. I cannot say I always let go of things, but I am trying. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Finally, some good news!

Good afternoon y’all! I was not able to do my normal Let It Go Friday post, but do have an even better one to share with y’all! I hope you had a good week, and you are ready to enjoy your weekend safely! Do y’all have any plans for the weekend? We were thinking about going to look at kittens, but I think we are putting this on hold for a little while. We might hold off for summertime because there is a ragdoll mama that will be having kittens and they will be available!

There is always so much bad news we hear about daily, so when we finally get good news it is something to celebrate and share! I believe I told y’all that I was waiting for my reapproval for my Gilenya copay assistance. This medication had worked very well keeping my Multiple Sclerosis at bay, which is wonderful. The only problem with this medication is the cost. With insurance, but without copay assistance, this medication would cost $8,000 per month. Logically, who can afford something this outrageous?

I had mailed the application to the Gilenya Go Program about 2 weeks ago because I do not have a fax machine at home, we all know how slow mail is! Anyways, last week I received a request for additional information from the Gilenya Go Program. Thankfully, while I was at my doctor’s appointment last week, the nice ladies there faxed the paperwork that was requested for me. Today, I heard the BEST news I have heard all month, and my application was approved. Instead of paying $8,000 per month for this medication, I will pay nothing!

Of course, I have not had an appointment with my Neurologist to go over the results from my MRI, but I did read the report. From what I read and not having a medical license, it appeared that the results were stable, and nothing had changed from the previous MRI I had a few years ago. In my naïve and not professional thoughts, no change is much better than changes for the worst! This is all thanks to the Gilenya that I take daily for my MS. Previously, after I had an MRI, I dreaded the results because there were normally negative results. 

I have an appointment on March 23rd to hear my neurologist talk about the results in medical terms. I am not dreading this appointment because from what I read, my results are not awful and remaining better than they were in the past! I am just extremely relieved that my application with the Gilenya Go Program was approved and I will be able to get the medication every month, without any delays or problems!

Thank you for stopping by my site today! I know we are all busy and I appreciate you taking the time to read what I wrong, and share your amazing comments. I hope you have a great Friday and a fantastic, and safe weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Headache & MRI

After work yesterday I went to have my dreaded MRI. I have been dreading getting another MRI for about three years, but finally did not have a choice and had to get it. I already mentioned that the MRI is insanely expensive because of our ridiculous healthcare in the United States. I think I have had an issue with the healthcare issue for a long time because we are the ONLY developed country that does not have “free healthcare”. It seems that many Americans believe that free healthcare is wrong, and I cannot understand their logic. I have heard from many people living in countries that do have free healthcare and they love it.

The complaint I have heard about free healthcare is you have to wait a long time before seeing a specialist or having a procedure, such as an MRI. The thought process is ludicrous and typically the thoughts of someone that believes what the politicians are saying, which is mostly lies.

Anyways, my MRI was not that bad. It was EXCEPTIONALLY long and LOUD. One of the images felt more like a small earthquake because it felt like the entire machine was shaking vigorously. The other images had annoying sounds that were way too loud. I can say the two radiology techs were nice and told me how long each image would take. Midway through the MRI, they pulled me out to add the contrast, and at that time, I told them that one of my hands and both feet and my back were numb. They laughed and said it was probably because I was trying too hard to stay still, which was true, but I did not want to be there any longer than I had to for images to be taken again. I did ask one of the techs if anyone had ever told him that he caused headaches with all the loud noises, he just laughed and said he had heard that a few times before!

I am sure many of you have had an MRI before and know how not comfortable it is. Did you ever notice the moment you are in the machine and told to stay still, everything itches! My hair kept blowing in my face and making my nose itch, and almost every part of my body itched as well. I think it is just because I was told to stay still, and I am not good at being still for long periods. The good news is, I was told I did well, and all images were taken the way they needed to be.

I do know that I am not excited about hearing the results and would prefer my specialist just tell my husband. I figure he would be able to give me the news better if it is not good than the doctor could. I tend to think that most neurologists have the personality of a fly if that! I did have a neurologist previously that was amazing and truly kind, but he understood me and my personality because I reminded him of his daughter. I cannot begin to say how much I miss him! I think I like the Nurse Practitioner at my new specialist office better than the actual doctor, but that is how I normally am.

I am glad the MRI is over and hopefully will not need to do it again for many years! I went about three years before this last one and hopefully can do that again! When I do know what the results of the MRI are, I will do a post about it and share the news, whether it is good or bad news. Let us just hope for the best!

Thank you for visiting my site today. I know I normally do “Tranquil Tuesday”, but felt it was better to tell you about the MRI experience. Overall, the MRI was not as awful as I was making it out to be, but it did cause a mild headache. I hope you are having a good week and staying as safe as you possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa