Tranquil Tuesday

I must say that surviving the most dreaded day of the week deserves praise and congratulations😊! Monday is never very exciting, but I do hope it was not too bad for y’all! Yesterday was not all bad for me, it was of course, a little busy but nothing that I cannot handle. I think it is just difficult to let go of the weekend when we can relax and not wake up to an alarm clock. Anything we were not able to get done yesterday, we have another chance today! Unfortunately, today I get to drive on the worst road in the world to go to my routine follow-up appointment. These appointments are useless because nothing ever changes!

Moving into the second day of the week is a good thing because it means we are one day closer to the weekend. Yes, I am already ready for the weekend😊! Regardless of how many days are left in the week, we need to try to remain calm and handle things as they come, instead of thinking about what might happen! I really enjoyed the quote that I am sharing with y’all today and hope you will as well, and that it offers you a sense of calmness and strength! I think it is easy to forget how incredibly strong we all are because life gets chaotic. No matter what occurs in our lives, never doubt yourself because YOU can handle anything! NEVER let anyone ever tell you that you cannot do something because you can do anything!

I know many of us must deal with various different doctor’s appointments, right? Today the appointment is just with my pain doctor and I like her because she is kind and easy to talk to. I think it is important to always be prepared for appointments, which means having notes for what you need to talk about, prescriptions that need to be filled, and any other concerns you might have. It is so easy to forget to mention things when in the exam room, so it is best to be ready and prepared because getting in touch with a doctor after the appointment seems nearly impossible!

Thank you for visiting my site today. I appreciate you taking the time to read what I share and hope you enjoyed. I hope you found the quote calming and it helps you survive another day. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Inspirational Wednesday

We have successfully made it through the first part of this week, so we just have the other half left until the weekend returns. How has your week been so far? The way I view things is, if we survived the first part of the week, the second half should be a breeze😊! My week has not been too terrible, and work has been a little slow. The good thing about my job must be the great people I work with. Of course, I have never met any of them in person, but I have made some good friends by getting to know them through email and chats. Most of the people that I work with, I would have loved to work within an office setting!

This morning I must go to my dreaded appointment with my neurologist. I know the Nurse Practitioner means well and so does the doctor, but they never offer good news and I tend to leave the office feeling discouraged. I think it must be because I am overly sensitive when it comes to Multiple Sclerosis issues☹. You would think after dealing with this for over 20 years I would be more accustomed to the random issues, and nothing would bother me, but it still does rub me the wrong way every time. I have tough skin for most things, but still have very thin skin when it comes to this. I feel like I need to go into these appointments with low expectations and expect the worst so that I am not disappointed and upset the rest of the day.

Considering we do have a few days left this week, I think we all need to find ways to remain happy and feel the inspiration to keep going. I hope you will find the quote I am sharing with y’all today as inspiring as I did when I saw it. We all deal with many challenges in life, but it is so important to find ways to be happy, no matter what! I am holding this quote close to my mind today as I am not looking forward to my appointment this morning. I do not like dealing with Multiple Sclerosis or doctor’s appointments, but there is a part of it that has given me the strength I never knew I had!

Thank you for visiting my site today. I hope you enjoyed the quote I shared, and it provided you with inspiring thoughts for the day! I look forward to reading your comments and I will respond as quickly as I can. Hopefully, I will do a post tonight about how the appointment went and hopefully the Nurse Practitioner will not have awful and discouraging news for me. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Sunday Thoughts

Hello Sunday! I hope you have been enjoying the weekend and you are feeling well. Even though I knew we were supposed to turn the clocks back an hour before we went to bed last night, I completely forgot to do so. Of course, for some reason that is unknown to me, I did wake up every hour on the hour since 3 AM. Needless to say, I did not sleep well last night. Honestly, I think one reason I did not sleep well is that I was ridiculously HOT. It is early November and I do not think we should be experiencing warm temperatures, but it appears that until Tuesday it is going to be a little too warm. Tomorrow the high is going to be 80 degrees and then it will begin to get cooler again.

What do you think about the time changes? We do have to do this twice a year and I look forward to a day when we do not have to do this because it throws me off each time. I have never understood why most states in the US this does because there are a couple that does not participate in the time change. If I am not mistaken, most other countries do not participate in time change, which makes sense to me. I have heard this is going to be the last year of time change in the United States, but I guess we will see because things are always changing!

I had a doctor’s appointment last week with my pain management doctor, which always goes the same way. I did explain to the Nurse Practitioner something new that I have been feeling for the past few weeks because I wanted to know her opinion as to what could be going on. Every morning, for the past several weeks my feet and ankles have been so painful that it is hard to stand up. I did not want to let my MS specialist know about this issue because she would more than likely want me to have an MRI and she never has any good news. The Nurse Practitioner said that it sounded like arthritis, so that was not the best news, but she might not be correct, and it could be worst if I had told my specialist.

Thank you for visiting my site today and reading my Sunday thoughts. Anyone reading this that has MS, have you ever heard about a connection between MS and arthritis? If you have, what treatments have you read or heard will help this pain? I am looking forward to reading your comments and I will respond to all comments as quickly as possible. I hope you have a nice day, and you are preparing for the new week that will begin tomorrow. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Survived Monday!

We managed to survive another Monday😊! I made it to my pain management appointment on time and of course, they had me wait 40 minutes before the Nurse Practitioner came in to see me. Big surprise, right!? I was getting frustrated, but when she came into the room, she apologized for making me reschedule my appointment two weeks ago and for the wait. She had a doctor’s appointment that she could not miss, which I can understand. I know that doctors are always running behind schedule and the only reason I can come up with is terrible time management. The hour and a half drive to my appointment were just like I had expected, miserable!

I did check the weather on Sunday night, and it was not calling for rain, but of course, as soon as I walked out the door to my house it started raining. I do not like driving in the rain, especially on the interstate. I have a fear of those big 18-wheeler trucks, so anytime I am near one I go much faster just to get past them. For some reason, the drive home was much faster than the drive to the appointment. The only time traffic came to a standstill was when I crossed the county line to where I live, which always seems to happen, and it does not matter the time of day.

How did your week start? I hope you had a wonderful and stress-free day yesterday and each day that goes by until Friday is fantastic😊! I think throughout our lives we learn many valuable lessons that might not seem that important at the moment, but years later make sense and you implement them into your daily life. We are always going to come across people that may seem unpleasant and even downright miserable, which they might say or do something that insults us or makes us feel disrespect. It is important to never go to their level and maintain your dignity and self-respect. I hope the quote I found will help to remind you to never allow anyone else to forget who you are and the manners you hold close!

Thank you for visiting my site today! I hope you enjoyed this post and the quote sparks something inside you mind and heart. When you have a kind, compassionate, loving, thoughtful, willing to help others way of thinking, it crucial to stand up for yourself in a firm but kind way. I am looking forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort support, and MANY positive vibes!

Always, Alyssa

Sunday thoughts

Just like that July is over and August is here. It always surprises me how fast time flies by. Tomorrow we will begin the 8th month of 2022. I guess the positive side is, that summer will end soon, and cooler days are near. Of course, August and September can still be hot in the south, but I am looking forward to days when the temperatures are not in the low 90’s at 10:00 at night. This heat has been awful this year and I do not expect next year to be any different☹. I am hopeful that next year we will have central air in our house, so we will not feel like we are living in a sauna even with window units.

Tomorrow, I have my follow-up doctor’s appointment with my pain doctor. You know the one that forced me to reschedule because I was a few minutes late and two minutes away after driving for an hour and a half a couple of weeks ago! It probably is not a good thing that I am still feeling a little sour about this and I already know they will have me wait for no less than 20 minutes tomorrow. Why is it okay for them to always run late, but when I do one time I have to reschedule, leave work early again, and drive that long drive for a second time within two weeks, especially when gas prices are out of control? This hardly seems fair to me, and it is going to be extremely hard to not let them know how I feel about this!

I think I have mentioned this to you before, but the Gilenya I take for the MS is a blessing and a curse. It is a blessing because it seems to be keeping the MS at bay and not letting it progress, which I appreciate. It is a curse because one of the main side effects is sinus issues and I have had an evil sinus headache for three days now. If you remember I did post several years ago about stopping the Gilenya and trying something different because I was sick of the sinus headaches. Honestly, there was no way to know that this medication was helping as much as it is. I knew years ago I would have to decide to either deal with the sinus headaches or risk my health, which logically seems like a no-brainer. I hate the constant headaches but would regret changing medications and end up in a terrible situation. This is a catch-22 situation, but I decided a long time ago that I would just endure the sinus headaches.

Thank you for visiting my site today. I hope your weekend has been full of relaxation and doing what you enjoy. Tomorrow is the start of a new week and a new month, which will hopefully include many amazing new opportunities. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Heat, Headaches, and MS Hug

For the past several days I forced myself through my workday and the things that I had to do. Unfortunately, I was unable to do any posts, work on my essay for the writing competition, or read because I have been battling a headache that seemed to be never-ending. Anytime I thought it was improving, I was proven to be incorrect when the massive pounding in my head returned with a vengeance.

Many of you reading this post today and may have visited my site before are already aware that I have Multiple Sclerosis. Anyone new to my site, thank you for taking the time to visit and I hope you will return. I enjoy writing about various topics and hope you will enjoy what I write about as well.

I have lived with Multiple Sclerosis for over 20 years, so basically more than half of my life. Over all these years, I have had numerous challenges, setbacks, disappointments, frustrations which fueled stress, and enough tears to fill the ocean. The one thing I have not experienced is giving up and letting MS control my life.

One of the main reasons why I refuse to give up is I made a promise to my late grandfather shortly after my diagnosis that I would always continue to try to move forward, and I would never surrender to MS. Although he has been gone for almost 9 years, I will continue to keep the promise I made to him. It might help that I am also extremely stubborn and obviously a born fighter, just not the violent type of fighter😊!

During the 20-plus years of living with MS, I have dealt with vision impairments, numbness, various forms of pain, stress from the harshness of symptoms, fears from potential disease progression, changing and deciding the right medications, relapse, neuropathy, doctor’s appointments, dizziness, and much more. Most of my pain does not prevent me from living my life and I just push through it and try my best to ignore it. After all the years of experiencing head pain, I am still unable to tolerate it. Unfortunately, it does not matter how many headaches I have already had in my life or how often I battle with them in any given week, the headache always wins our war.

There once was a time when I had a headache, I could take Advil and lay down with an ice pack for an hour or so and the headache would be gone. I wish I could explain how much I miss those days! Unfortunately, over the past few years, nothing provides me with any relief. Although I had many reservations, I ended up trying everything my doctors recommended, but they were all a complete waste of time and money because they did not help. I have tried combinations of over-the-counter medications, such as Advil, Excedrin, and Sudafed, which have helped more than anything else.

Over the past several days, not only was I dealing with the headache straight from hell but the invasive tight band feeling also known as the “MS Hug” visited me. The only good thing about COVID was social distancing, but I guess the MS Hug did not get the memo. I am just speculating, but I think I am experiencing the tight band feeling because of stress, the insane heat, or a nasty combination of the two.

This outrageous and uncontrollable heat is my enemy because it always causes me to feel awful. Over the weekend, I had to run out to two different stores and when I finally made it back home, I told my husband I am not leaving the house again during the day until at least November. I am pretty sure if the temperatures get any hotter, it will be the death of me. I do understand that this massive heat is being felt all around the world, and I do not think anyone can say global warming is not real anymore.

How are y’all handling the incredibly dangerous heat? One thing that I believe helps is to stay hydrated. I have four different stainless steel insulated water bottles. I fill the bottles about a quarter of the way with water and put them in the freezer. This makes it so I always have ice-cold water handy! I strongly recommend them, especially during the summer months. These stainless-steel insulated water bottles are very affordable on Amazon and there are any colors you can think of😊!

Another thing I recommend during these HOT summer months is if you must leave the house, start your car, and let the A/C run for a few minutes. It is never a good idea to try driving when you are hot because you could get overheated, which can cause you to feel dizzy and faint. The heat can do some terrible things to our bodies and minds, so it is best to do everything we can to stay as cool as possible.

Thank you for visiting my site today. I hope what I have shared was helpful for you. If you have any other suggestions regarding staying cool with these drastic temperatures, please share. Also, if you have experienced the evil MS hug, is there anything you do that helps? I am looking forward to reading your comments and I will respond as soon as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Not just any kind of Monday

Most of us dread Monday morning, but today is a VERY special day! I do not have the words to explain how happy I am that my mother is getting married tonight. After kissing many toads, she has finally found her prince charming and soul mate in this life. Love is not an easy thing to find and hold on to, but she is happily marrying a man that is kind, loyal, understanding, easy to talk to, giving, loving, loves her unconditionally, and everything else that is wonderful. In all my years, I have never seen her this happy and it is refreshing. Not everyone finds love in their lifetime, but she finally has and I could not be happier for the two of them!

Unfortunately, I am not going to be at this wedding in person as she lives in another state which is over which is over 1,100 miles away. However, we are doing the next best thing and I will be at this wedding via Zoom. I know it does not seem like an ordinary way to watch your mother get married and I can admit it is far from ordinary, but due to COVID still lingering and my weak immune system getting on an airplane was not safe. I am thankful for the man she is marrying, which I have known for over two decades. It is funny how life and love work out, but things like this always work out for the best for everyone!

This afternoon I have a follow-up appointment with my pain management doctor. These appointments always go the same way and are relatively pointless, but I jump through all their hoops and follow what they require. The worst thing about these appointments is driving there because there is WAY too much road construction and too many people cannot drive. Overall, I know my appointment will go well as the Nurse Practitioner listens to what I say and knows I will not be willing to try anything different. Why change something when it works?

Thank you for visiting my site today! I hope you enjoyed what I have shared and look forward to hearing from you. Considering I am leaving work early for my doctor’s appointment and I have my mother’s wedding tonight, it might take me longer to respond to comments, but I will as soon as possible. I hope you had a wonderful weekend and your week begins great. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Appointment Update

I mentioned this morning that I had a follow-up appointment with my neurologist and that I would share how it went. The appointment was at 9:00 AM, so I was their first appointment of the day. I do prefer early morning appointments because we all know how doctors can fall behind in their schedules. The drive to the office was insane, but that is because people have seemed to forget how to drive. Honestly, part of this was my fault because I was trying to follow the GPS to get to the office, and guess I was paying closer attention to the GPS and did not realize the other car did not have a stop sign. I did not cause an accident because I saw they did not have a stop sign and even though I was inching my way through the stop sign, I did stop. With how much people love to lay on their horns, the car did not do so.

The appointment went just the way I thought it would and was easy. The Nurse Practitioner did try getting me to agree to another kind of medication for the neuropathy I told her was causing issues, but I quickly shot down the other medication because I have tried it before and did not like the way it made me feel. Thankfully, she did not press me on this and said if I change my mind to let her know. She asked if there had been any changes or concerns, which is why I mentioned the neuropathy, and other than that nothing has changed. I told her what medications I was going to need to be refilled, and she made sure to get them refilled for me.

I hate going to the doctor, but the one great thing about this office is they are very responsive when I send messages to their portal. As with many other doctors, I never have to wait for a response, and they handle everything quickly. Something I learned today about my neurologist is, she loves purple and butterflies, which both I love as well. I will always miss Dr. Kaufman and his Nurse Practitioner, but I guess this office is the next best thing!

I hope you had a great Monday, and your week gets better with each day that passes. Surviving Monday is great because that means the rest of the week will be a walk in the park. I know we all want COVID to end, but sadly, it has not yet, and we still need to be extremely cautious. It is sad and frustrating, but we will make it through this together. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Monday morning Specialists appointment

Happy Monday, y’all! I hope you had a nice and safe weekend. I guess, it is ready or not and it is Monday again. The crazy thing is since I have not been working and looking for a job, my days have been getting confused, and yet I tend to know when Monday returns. For the most part, Monday is just another day and can offer new opportunities. The start of the week allows us to make changes and anything we did not accomplish last week, we can try again. I think it is a positive way to view the dreaded Monday mornings.

The start of my week is going to a follow-up appointment with my neurologist. These appointments never make sense because nothing changes with how I handle Multiple Sclerosis. I am still going to take Gilenya to slow the progression, at least until there is a cure. I will continue to take the other medications I have been on for years and normally will not agree to take anything additional because I do not want to be on dozens of medications that may or may not have unpleasant side effects.

With these specialist appointments, I know I will not see the doctor and will see the Nurse Practitioner, which I like. The only reason I have the specialist I do is that she won me over by saying how much she loved and idolized my former Neurologist. It was refreshing to know how much she thought of the doctor that diagnosed with 22 years ago because I thought the world of him. Dr. Kaufman had patience that never ended and considering I was only 19 when he changed my life forever telling me I had MS, he understood why I was so resistant and fought him every step of the way. The poor guy had told me that I reminded him of his youngest daughter, so that meant he had to deal with someone extremely stubborn at work and at home.

I think it is crucial to be prepared for appointments with doctors, especially specialists because any questions we forget to ask during the appointment will take more effort than necessary to get answered later. I know there would be several things I forget to ask during an appointment because I am rushing to get out of the office. The following are what I do to make sure I do not forget anything during my appointment.

I take a small notebook to the appointment with me. In the notebook, I write down all medications I take along with the dosage of each, any questions I have for the Nurse Practitioner, and refills I will need to be refilled. Considering I know I will forget the answers to the questions I ask, I write down a summary of what was said. We all know how much doctors like to suggest new medications, and even though my answer is typically no, I write down the new medications suggested to me so I can look them up when I get home.

My appointment is at 9:00 AM, so I will be the first appointment of the day. I prefer this because hopefully I will not be there too long and can be back home. I will let y’all know how it goes and considering nothing changes, I will not have too much to report. Early Monday morning doctor’s appointments are not an exciting way to start the week, but it will be fine!

Thank you for visiting my site today. I hope your morning begins well and the day only gets better. If you have any other ways you prepare for doctor’s appointments, I would love to know how you do! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

The End of the Weekend

It is always sad when the weekend ends, but it also means we will be getting another chance during the upcoming week. The weekends are meant to rejuvenate us and I hope y’all are feeling well-rested. Of course, not all of us can sleep in, or at least I never do, but I do hope some of you were able to. There are still a few more hours left of this weekend, so if there is anything you desired to do, there is still time.

Often life takes on different roads and accepting them is not always easy. However, we are all given chances in life. The chances and opportunities are not necessarily easy to see but they are there it just means taking a closer and deeper look. Our lives are complicated and it is easy to not be able to see things in an optimistic light. This is the reason I am sharing the quote I am today because I hope it will open your eyes to everything you do have in life! We must see all the great things we do have in life and STOP focusing on what we are missing out on. Even though so many pretend to have a perfect life, no one in this world actually does have a perfect life and we all face challenges.

Tomorrow is going to be a busy today for me. The appeal meeting with the unemployment office that was rescheduled is tomorrow morning. I still have no plans on letting them win because I have done everything right and NEVER refused work. I do not know where they are getting their misinformation from, but I will be making things right tomorrow morning. I also have a doctor’s appointment tomorrow afternoon with the pain doctor. This is one of those every three month kind of appointments and they are always good. Nothing ever changes and I do not see anything being different tomorrow. I will also “hopefully” hear back about one of the full-time jobs that I am waiting for an answer from. I will keep y’all updated!

Thank you for visiting my site today. I hope you have had a great and safe weekend. I am still planning on sharing the post about the omicron variant because I think it is very important. I might not understand why so many people are not worried about new variants being a possibility and refusing to get vaccinated, but I do know that is a fact. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa