Sinus/Headaches Issues?

Good evening mondayHappy Monday Y’all! I hope you had a nice start to your week! How do you see Monday’s? Do you think of Monday as just another painful start to a new week or is it a new start for change? My week did not start off the way I would have liked because the headache I had all weekend did not want to give me a break. I would have thought dealing with the constant back and leg pain would have been enough to cope with, but of course not instead my headaches have increased drastically! 

I have been trying to figure out what is really causing my terrible headaches. The only things I have been able to come with are the lesions that are living in my brain or badsinusitis-physiology sinus issues or maybe even a combination of the two. I do know that headaches are pretty common with MS, but I am wondering if sinus issues are as well. Is it possible MS lesions could actually be in my sinuses? Do any of you reading this experience sinus troubles and if so, what do you do to relieve the awful pain it causes? At one point, I had convinced myself that the Gilenya I take for the MS was the reason for my sinus troubles. I was so convinced, I decided to switch my MS medication to a different disease modifying medication back August 2017. This was not one of my best decisions because I had a horrible flare up due to my change and the stress leading up to my decision. Of course I am still dealing with some of the residual effects from that flare up, but I am staying strong and positive knowing I will get back to where I was before the flare up! 

Please let me ask y’all a question, do any of you deal with sinus headaches? There is definitely a difference between a sinus headache and other headaches; such as cluster, headaches1-798x418migraine and tension headaches. Personally I do deal with several different types of headaches, but it seems like nothing at all helps these damn sinus headaches! I was so miserable with this headache all weekend, I did not leave the house and it was still hanging over my head today causing me to miss work today! I do find that hot water helps my sinus pressure some, but you can not really stay in a hot shower all day long. 

Thank y’all for stopping by my site today! I know most of my post sounds like a bit of a rant complaint, but I am really just wanting to get some thoughts from y’all because I know you do understand me and what I live with daily! Please leave a comment for me and I will respond to you as quickly as I can! I do always appreciate your thoughts and your fabulous advice. The conversations I have been able to have with many of you have meant so much to me and I love getting to know you better! I hope y’all have a fantastic and relaxing evening! I am always sending you lots of love and comfort!!

Love 2

Always, Alyssa

Advertisements

Sunday 1Good Evening Y’all! I hope you had a fantastic weekend and enjoyed your 2 day break! I am never really ready for the week to start again because it is just 5 more long days of the daily grind. 

I am so truly thankful for the friends I have made through this blog! I have had an amazing time getting to know so many of you and look forward to learning more about each of you! My goal for my blog was to be able to inspire, give knowledge about differences in illnesses and to really portray much positivity in a world that has a little too much negativity in it! I strongly believe that being able to stay positive through the most difficult times will make a huge difference! Life can get difficult, but no matter what the struggle is it could always be so much worse! I want y’all to know that I am always here for you if you need a sound board for frustrations or even have any questions. Whether you comment on a post or email me directly, I will always respond to you and love the great communications we can have with one another!

I hope y’all enjoy the last few hours of your weekend and your new week starts of fabulous! Monday is never a day I look forward to, but it is the start of a brand new weekpain with many possibilities of great changes! I am still hoping that my high pain levels will start to decrease soon as it has been extremely frustrating. If y’all have any suggestions to help this happen, I am all ears! Even though I have been in a terrible amount of pain I will never surrender to it, but instead I will keep fighting through it all!

Please leave any comments you have and I look forward to hearing your responses. Remember to always try to hold onto your positive outlook on life and things will all fall into place! Sending you love and comfort always!

Love 2

Always, Alyssa

Snowflake Illness

snowflake illnessChronic Illnesses are like snowflakes because like all snowflakes are so different from the other and each person’s situation with illness is different from another. You will never see two snowflakes that look exactly the same, just as you will never find two people with any illness that experience the same exact issues. There might be some similarities, but there are also some strong differences.

Personally, over the almost 18 years I have been living with MS, I have not met anyone that is dealing with the exact same issues that I do each and every day. Again, there are always some similarities, but they are never identical. I have met in person and through this blog others that are battling the MS fight who have equivalent issues to what I live with, but sometimes what they are struggling with is vastly unique to my own experiences. Even though their trials are something I may have not dealt with, I can totally relate to the hassles that are caused by illnesses!

I believe having the ability to meet others that understand what your daily struggles are in life is so helpful. This gives you the opportunity to learn from someone else, so that if you ever experience something similar you have someone to chat with that truly understands! I strongly feel that there are SO many that do not understand what anyone with an invisible illness goes through on a daily basis. Considering these illnesses are so incredibly unpredictable those living with the illness does not even know what to expect day by day, or even hour by hour. Can this be frustrating? Absolutely! But all of us, no matter what battle we are fighting are winning because of how strong we each are!

snowflakesThink about what illness you are fighting and think about those you have met with the same ailment. Now, think about if anyone has ever had the exact same struggles that you do. Can you think of anyone that is a mirror image to you? I know that I can’t! Most of the issues I deal with every day without fail is pain and some numbness problems. After chatting with numerous people, a lot of them also have the same type of issues but their pain and numbness might be in different areas of their body. We all deal with the strains of our illness so differently and with SO much strength and courage! Y’all know I believe that staying positive is one of the most important ways to beat the trials that come my way! I might have my off days where I feel completely defeated, but that state of mind does not last long because it does not help me overcome the issues at hand!

I guess we are each our own unique and beautiful snowflake just floating through our lives. We do not have to worry about melting from our troubles, we just need to continue to stay flying high above the struggles and we will win!

Thank you so much for stopping by my site today! I hope you enjoyed my thoughts for Saturday and I really look forward to reading your responses! I do promise to respond to you as quickly as I can! I can not explain how much the communications I have had with so many of you mean to me! I hope you are enjoying your weekend and doing what makes you happy! As always, I am sending you all lots of love and comfort!

Love 2

Always, Alyssa

Time Away!

downloadIn today’s world it seems we are always rushing to get from one point to another without stopping to enjoy life. I think it is so important to take time to sit back and just try to relax. Planning time to have away from phones, tablets, computers, TV and any other electronic device can provide you with some peaceful quiet time that is much deserved. My job entails working on a computer all day long, so sometimes at the end of the day the last thing I want to do is continue looking at another computer. I always enjoy writing on my blog and reading other blogs, but I am trying to have a cut off time from electronics, really to give my eyes a break because the computer does cause my headaches to increase.

Everyone always says that life is so short, but in the big picture it really is not all that short! If we can make the most of everyday it really may not feel that short at times. There are people out there that live until they are in their 90’s or even until they are 100, but they lived the life they were meant to live as does everyone else. I think most people get so wrapped up in social media it completely consumes their lives and they end up sharing too much with people they do not really know. It is not safe putting your entire life out there on Facebook, Twitter, Instagram or any other social media sites.slowdown

What do you do to relax after a stressful day? Do you have certain routines that can to me a little mundane? Funny thing is, I do have those routines that may seem a little boring to some, but I enjoy the peacefulness it brings to my life. Considering I have been trying hard to increase my hours at work it is nice to come home to a tranquil setting! Work can cause stress so if you can eliminate any unnecessary stress at home it is best for your health!

It is really hard to believe we are already into February! It seems like January went by incredibly fast! How is 2018 coming along for y’all? Are you enjoying the year so far? My plans for the New Year were to get learn to reduce my stress levels so that hopefully my pain issues would decrease. I have been trying to not allow other people’s negative outlooks affect my life and quit trying to fix everyone’s problems. It is in my nature to always want to help others, especially those that are close to me, but I have been able to take a step back knowing I can not fix the world! I do wish I had a magic wand and could take the pain away from all that are in pain, cure-all illnesses, not allow anyone to go hungry or not have a roof over their heads and so much more, but all I am able to do is listen when I can and help when I am able.

Even trying to reduce stress from my life my pain issues are still as high as they were last year and I am really not sure why! I do realize that life with MS does come with pain and hne_pain_and_suffering_it will get better in time. It is so frustrating when an illness is so unpredictable and there are really no answers to how to decrease the pain! But even through all the horrible pain I do still try to see the positive because this could all be so much worse than it is! This illness may cause me so much pain but in the big picture it has not taken anything away from me because I am still able to do things I want to do, even if I have to tone it down a little! I find it helpful and SO important to always try to find the good in all situations because no matter what you are dealing with, it could always be so much worse!

I hope y’all are having a fabulous week so far! Looking on the bright side, it is almost Friday! I want to thank y’all for stopping by my site today. As always I do love to hear your comments and will respond to you as quickly as I can! I hope you have a nice relaxing evening! Sending you lots of love and comfort always!

Love 2

Always, Alyssa

 

 

 

Life’s Challenges

joycemeyer1No one has ever said life was easy and really truly mean it. Life comes with so many challenges along the way and many are unforeseen. There may even be times when things get so difficult you just want to give up and stay away from the outside world! It is so important that even during the most grueling times in life to stand up straight and strong, knowing you are fighting a true battle with nothing but courage!

I think sometimes facing our fears is the hardest thing to do. We all have something we are afraid of whether it be moving to a new city, changing career paths, progression of an illness or something as simple as riding a terrifying ride at the amusement park. No matter how minor or major  the fear is, it is real and frightens us. 

Most of the time life is really like riding a roller coaster without the option to slow down at all. There are so many upward hills that are followed by  steep downhill falls that can95263-Life-Is-Like-A-Roller-Coaster completely take your breath away. Then there are the twists and turns that you do not see coming until it is too late and all you can do is hold on tight and hope for the best outcome. 

It may be hard to believe sometimes, but life always has a way of working out the way it is meant to. I might have been dealt a bad hand with being forced to live with Multiple Sclerosis, but I have been blessed with so many other fantastic aspects of life. Even though I deal with a lot of pain everyday and there are somethings I have to sit out of my husband is always extremely understanding and supportive. 

I hope y’all are having an amazing and enjoyable weekend. Considering my pain levels have been very high recently, I am taking it very easy this weekend trying to rest up so that I feel better for next week. 

I want to thank y’all for visiting my site today. I always appreciate you reading my thoughts and I love being able to read your comments. If you have any questions about the different medications I have some experience with or the different things I have been through with MS, please let me a comment and I will be happy to answer in my next posts! Sending y’all lots of love and comfort always!

Love 2

Always, Alyssa

Amazing Realizations!

baddayI think it has taken me a while to realize that it is okay to have a bad day. It is okay to not be positive all day every day. Sometimes life might just not seem fair and putting on a happy face just does not work at that moment. It is okay to admit you do not have all the answers to everyone’s issues in life. Admitting and talking about what is on your mind is so important! Smiling through the pain can help some days, but other days it is even more important and helpful to just say “I can’t do it today.”

One day might be absolutely amazing and the next day you just wish you could go back to bed and start over again. The truth is all good days will always be followed by a bad yinday. It might not be the following day or even the same week, but it is the yin and yang to life. Rain comes with sunshine, warmth comes with cold, happiness comes with sadness, strength comes with weakness and good comes with bad, and there really is not a way around it. The only thing we can do is keep pushing forward to the next day!

No two days are the exact same for me. One day I might feel relatively normal and the next day hurt so much it is a struggle to move. I guess that is just the life I was meant to live. I do believe strongly that our lives are a gift and we are just supposed to live it the best way we can without too many regrets. On those days where my pain is at its highest, I do know in my heart a good day is just around the corner. I used to think the bad painful days were some kind of punishment and for what I never knew, but now I think those bad days are just building me as a person and giving me more strength for the next day in life.

Y’all know that I felt as though I was being negative yesterday, but so many of you graciously told me I was actually a pretty positive person. Through the comments I received you showed me how true my first statement was, that it is okay to have a bad day! Letting go of the troubles live like you were die tomorrowfrom yesterday will make way for a better tomorrow! I guess it is important to learn something from our struggles so that we know how to handle them better in the future because difficult times will always reappear. 

I hope y’all had a fantastic day and you are feeling well! Each of you have a strength that benefits someone else in your life and you may not even realize it. Thank you for stopping by to read my thoughts for the day, which let me say are much more positive! Please feel free to leave a comment and I will respond as quickly as I am able to! I hope y’all have a wonderful and relaxing evening. Sending y’all much love and comfort!!

Love 2

Always, Alyssa

A few days MIA

Bright weekI have not made a post in a few days because sometimes life just gets too chaotic and it is hard to do the things I want to do. Life’s obligations can get in the way of good and fun times. Now whether it be work or household chores they all get in the way of leisure times. I know once I get home from work I am exhausted and do not feel like doing much of anything. Granted my job does only consists of being at a desk and most people would think that is not very tiring, but staring at a computer screen all day is exhausting! When you are sitting all day, not being active it weakens your muscles to the point they do not want to do anything else. I almost feel that my muscles go to sleep and do not want to wake up for any such reason. Plus being at a computer all day causes me to feel so much pain in my back and that pain alone makes me fatigued. 

I have been doing my best to increase my hours at work and I have been able to do 7 hour days. I am thankful that my job has been understanding with slowly adding to how much I am able to handle. I have noticed that I feel so much better earlier in the day, but then about noon I start feeling like I have been hit by a ton of bricks. I do however keep pushing a few extra hours so I can hit my 7 hour goal! 

Y’all already know that living life with an illness can add some additional stress and challenges to your daily life. How do you fight through pain when there is not any kind of relief? Even though things have not been easy lately I do still believe everything157213-Fight-Through-The-Bad-Days happens for a reason and somehow everything works out the way they are meant to. I do realize how clique that sounds, but I do believe every word of it.  

The weather plays  huge part in the way I feel. Rain and cold cause my body to feel terrible. We had a few days of bitter cold and I felt like a truck had run me over and backed over me just for good measure. Then Mother Nature decides it needs to be warm, so my body adjusts to that only to have the weather get cold again! Then we have days of sunshine, followed by days of rain or the threat of rain and I feel horrible! If we could just have weeks or months of the same type of weather I could be adjusted and stable!

I hope y’all had a great Monday! I hope the rest of your week goes absolutely wonderful! Always remember how important it is to stay positive even when it is difficult. Strength comes from positivity! As always, I appreciate you stopping by site today and please leave comments as I will respond to you just as quickly as I can! Sending y’all lots of love and comfort always!

Love 2

Always, Alyssa

 

Real truth behind it

Good DaysIt really seems as though no day is exactly the same living with Multiple Sclerosis. I have good days, where the issues I deal with are there but tolerable. On these days I can pretty much just ignore the realities of this illness, which is fantastic! I do not like to dwell on the fact that there is no cure for MS, yet! I enjoy and appreciate my good days with bearable symptoms. On my good days I do my best to do things that I either want to do or need to do without having to push myself further.

Then there are the bad days, which take a little extra effort to do normal easy tasks. On bad days my pain levels will rise above the tolerable limits causing me to move a little slower and need a few extra breaks along the way. I try to not allow additional pain to affect my life too drastically but find ways to alleviate it some. I will utilize my heating pad more than normal and maybe take more Advil. I also try to stretch more to not allow my muscles to just stay tight. I will say that my mood is a little altered on these days but not too horrible.back on track 100

Unfortunately all my ideas for stopping the pain before it gets too far does not always work which turns my bad day into a terrible day! Today was one of those days. While at work I felt my back, neck, shoulders and legs gradually start increasing with pain. I did not panic and just tried alternating my heating pad from my back to my legs and stretching my back and neck muscles. I even tried getting up from my desk to move around a little hoping I would not start hurting even more. Regrettably nothing I did helped and I started feeling so much worse. I have been trying to increase my hours at work but I was not able to today. I ended up coming home to rest because I was in so much pain it was making me nauseous. Honestly, I was pretty disappointed because I did my best to keep pushing myself to make it through 7 hours at work. I did almost make it but could not handle it any longer. My mood is vastly different on terrible days because I am so irritated with the pain and it is hard to be around anyone. I prefer to just be at home in a nice comfortable and quiet atmosphere.

I do not understand why some days I can handle the pain issues but some days are SO completely unbearable. I thought that maybe it was related to the weather changes. It did go from freezing temperatures to relatively mild temperatures. Last week it was 17 degrees with snow/ice and this week it is 60 degrees with sun! I think that is a pretty Stars can't shinedrastic change and it has always taken my body time to adjust. How am I supposed to adjust to such rapid changes and be able to feel normal?

The truth is bad days come and go without any warning, they just need to be taken in stride! The bad and terrible days can be very discouraging but it is so important to not allow them to deter us from the good days that are ahead! I have honestly had a horrible day with pain but I am hoping tomorrow will be a better day. Thankfully I am home resting comfortably with my trusty ole heating pad, husband and loving cats! 

I hope y’all had a great day today and are feeling well. Thank you so much for stopping by my site today! Even though I have not had a good day, I am still trying to remain positive as I hope y’all are as well! Please leave comments below and I will respond to you just as quickly as I can! I hope y’all have a fantastic evening. 

Love 2

Always, Alyssa

Winter in the South!

closedHappy Wednesday Y’all! It has actually snowed in the south, which closes everything down! I am definitely not complaining since my office was closed today, but will it close again tomorrow due to the icy roads we will have? I do believe it would be the logical and safe thing to do, I just wonder if they will see things the way I do!

I am not a huge fan of the cold weather as it does cause me so much additional pain, but it was really pretty to wake up to see snow falling! The snow has blanketed the cars and ground which is a beautiful sight, as long as I do not have to go out in it or try driving in snowdayit! I am not saying I can not drive in the snow, but my car does not see things the same way I do. However, I do not believe anyone can drive in the ice, which is what things are going to result in tomorrow!

I do believe we have one good snow fall every year! Considering I did grow up in the north a couple of inches would really not mean too much but it does in the south! The south does not see much snow, so I do not believe we have the necessary equipment to handle much if any!

Yesterday I kept saying we were going to have snow today and I do not think anyone believed me! I even sang my made up snow song in hopes for the snow and it worked! Maybe I need to make up another song for my office to be closed tomorrow, so I do not have to try to drive with icy conditions!

Just to give y’all an update on how I have been feeling physically. I have noticed that I do seen better daysstart feeling much worse as the day progresses. My pain and headache issues will be fine in the morning until about 2:00 in the afternoon, but then everything starts to come back. I will slowly start to get a headache and my back and leg pain will hit me hard. This would be the reason why I am not back to my normal full-time hours at work yet, my body just can not handle it. I really am hoping that someday soon I will be back to as normal as I can be and work a full day. Prior to my most recent flare up I could easily work 8 or more hours a day and be fine, but now after 6 hours I am in bad shape. I have been trying to push myself a little further each week and now I am working 7 hours, which has been working fine. If I am able to come home and rest comfortably my pain will subside some! 

I hope y’all are having a good week so far! Thank you for stopping by today to read my thoughts for this fantastic Wednesday! As always your comments are very much appreciated and I will respond to you as quickly as I can! Remember to always do your best to stay positive because y’all know I believe it make dramatic difference in life! I hope y’all are feeling well today and stay feeling well! Sending much love and comfort to all of you!

Love 2

Always, Alyssa

Reflecting on 2017

dwell on the pastI know there is normally no use dwelling on the past because it is more important to look towards the future, but reading some of my previous posts got me thinking. There was a lot of talk about pain in 2017. Everyone probably already knows that Multiple Sclerosis does come with a fair amount of pain but does talking about it really help? I know that writing about the pain did not make the pain magically go away, but in a way it helps to get those negative feelings out. Sharing my story with many people I unfortunately have not met in person and hearing their stories made the situation a little less lonely.

Living with an invisible illness can make people feel a little isolated at times. Granted for the most part my family understands my illness and is understanding, but when I go to work not many if any of my co-workers really know what I live with. When I park in a handicap parking space at the grocery store, not because it is impossible for me to walkinvisible-illness but because it does cause unnecessary pain to walk far distances, people look at me like I am committing a crime because I look perfectly normal. I have learned to not allow the judgments of others to affect my life but sometimes the looks are a little disturbing. I will never take the last handicap parking space at any store because another person might have a more severe condition and need it a lot more than I do. I always try to be considerate of others even if it does in turn cause me a little extra pain.

I have had Multiple Sclerosis for almost 17 years, but in October I had a ferocious flare up that caused me immense troubles. I was out of work for over a month on short-term disability which caused me some emotional troubles as well. All I could think is why am I only 36 years old and already on short term disability? Is this only going to continue on this path and force me to be viewed as a disabled woman? As crazy as it might sound I strong enoughfelt a vast amount of shame with this. I did not want anyone besides my direct manager to know anything about this so I did not have to deal with any ignorant comments when I did returned to work. Thankfully the short-term disability did not extend and I am slowly getting back into the swing of things at work. I am not working a full 8 hour day yet because it is not worth pushing myself too hard just to have a setback. It is called prioritizing, I am learning to put my health first and put my job second.

Pain is inevitable and continuing to live life is not optional. I still battle pain each day, but I refuse to give up. I want to be able to live a normal life even if my normal is different from others. hne_pain_and_suffering_We are given a chance to enjoy our lives no matter what challenges are we encounter. I am trying to fight my pain and MS with a positive and optimistic mind-set, it might not work every day but I will not allow these issues to control me! 

I hope y’all are having a good weekend! Hopefully you are feeling well and staying warm! These crazy cold temperatures have made me want to stay inside with my blanket and heating pad. According to the weather channel the temperatures will be on the rise next week, but whose to say that will last or really even happen. 

Thank you for visiting and commenting on my thoughts of day! I always appreciate hearing what you have to say and do always respond as quickly as I can! I hope you have a great and relaxing evening!! Much love to y’all!

Love 2

Always, Alyssa