MS & Temperatures are difficult!

imagesIt is a nasty, rainy 🌧 and chilly day out today and I have no plans at all to leave the house! This kind of weather makes me feel pretty awful and honestly hurts too much to walk around. It is rather frustrating, but I guess we all deal with life’s obstacles the best we can. I do wish I could sent this rain to Australia where I know they are dealing with some struggles at the moment. 

Heat and high humidity can make Multiple Sclerosis symptoms worsen, even though it is only temporary, it feels like an eternity. Doctors believe that this is due to heat causing nerves, whose myelin cover was already destroyed by MS, toacupuncture-for-multiple-sclerosis-755x429 conduct electrical signals far less efficiently. Doctors have told me for years that hot baths and hot showers are terrible for me, but there are times this is the only thing that relieves some of my pain. Even though a hot bath is only a short-term relief, it is at least a half hour of comfort!

Crazy thing is, I have been told more times than I could count that cold temperature are actually good for me, but is this the truth? I do not think so! Extreme cold temperatures and season how-cold-affects-symptoms-of-multiple-sclerosis-2440834-6eb83234820b49a991e4f07ab6f872a1changes can also worsen MS symptoms. If I understand all of this correctly, hot temperatures can causes MS issues and so can the cold, so I am not sure where that really leaves us.

What to do to ease MS Symptoms:

  1. Avoid ALL extreme temperatures
  2. Avoid exercising on hot and humid days
  3. Utilize the beauty of the air conditioners and cooling vests. Home a/c’s may actually be tax deductible for some people with MS. I think it is definitely worth a chat with doctors! The link I shared regarding cooling vests is just one option, the MS Society has more and you might be able to get it for free!

Even though climate can worsen MS symptoms, climate changes do not create any additional nerve damage.

5 Tips for staying warm during the winter months:

  1. Try to get moving! Of course there are times when living with MS it isn’t as easy to move around the way you would like. However, on day it is easier to get up and moving, attempt to get some moderate physical activity in. This will actually help cold-feet-and-multiple-sclerosis-2440826_v2-1a595343ecfd4dbdaee165a88eab7c40you burn energy and moving around can keep you warm.
  2. Dress in layer. It is rather easy to remove clothing if you get too hot, so dressing in layers might help. When you know ahead of time it is going to be extremely cold, it will be wise to wear a hat, thick socksand or lined boots. Wearing a hat and thick socks will keep the heat from escaping through the head and feet.
  3. Keep your hands and feet warm. Doctors think that MS can cause the blood vessels in the hands and feet to overreact to cold temperatures. Those with MS may also be at risk for Raynaud’s phenomenon, which is a condition where your fingers and toes lose heat.Raynaud’s Phenomenon can not only cause the color of hands and feet to be white to blue, but also cause numbness, pain and or the feeling of pins and needles. In effort to protect the hands and feet, you could use hand warmers and a heating pad. The warming vest I shared is just an option and I am sure there are many others out there!
  4. Warm your insides. A few easy ways to heat your insides is eating a hot meal, hot soups and hot drinks, such as coffee, teas and hot chocolate.
  5. Get some sunshine! Go outside and soak up the sun 🌅! Even on a chilly day the sun will still work to heat you up. By getting outside in the sun 🌅, you are also gaining some much needed natural Vitamin D.thumb_to-danc-terties-msnubutterflies-multiple-sclerosis-blog-page-47269722

Thank y’all for visiting my site today. I hope where you living is bright and sunny 🌅 with NO chance of rain 🌧! If you have the time I do look forward to reading your comments. I promise I will respond as quickly as I can. I hope you are feeling well and your weekend has started off great! Please know I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

❤Always, Alyssa❤

 

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Pick Me Up Thursday!

you-say-thursday-i-say-friday-eve-have-a-tayzerific-10147394-e1554939166168Good morning y’all! I hope you have had a great week and the upcoming weekend will bring you LOTS of joy! This week has had some ups and downs mixed with many frustrations. What I can say though is, none of the downs and frustrations will keep me down long! I made the decision to look past negative and focus on the positives in my life.

Two days in a row of chilly and rainycat weather can be very melancholy. The rain and chill causes me to feel pain more. However, I think that is the same for many across the world. Good news is, I do not work this weekend and I think the rain will let up or at least that is what the weather man says, and we all know how accurate he is!

The quote I want to share with y’all today I find pretty amazing and I hope you will as well! No one is dealt the perfect hand in life, but we do have the ability to make the most of everyday! Let’s all continue to try making a masterpiece of the life we were given, no matter what struggles we tend to face!make-your-life-a-masterpiece-brian-tracy-motivational-quotes

I hope you have a wonderful day and you do not allow anyone to cause you sadness and or tears. Maybe I am wrong, but anyone that causes us to not feel like the truly amazing people we are, probably should not be part of our life anyway. A perfect stranger can say dont let it change your smilesomething ugly to us because they are being judgmental, but does what they think really matter or change anything at all? My answer is NO! My co-workers can think what they want of the amount of hours I am willing to work. I can say without doubt that even if some weeks I work fewer hours than they do, the hours I put in were far more successful than theirs because I am dedicated to my work, even if I don’t care much for the job! Yes, that sounds a little crazy!

Thank y’all for visiting my site today! I do appreciate you taking the time to read and really love reading your comments, which I will respond to as quickly as I can! Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

❤Always, Alyssa❤

With all the various doctors I have to see, this Echo is very helpful. This allows me to record before my appointments what I want to discuss with my doctor! I mean come on, we all have so much going on with our health and life in general, it is easy to forget some details and then you have to wait days or weeks before you can speak to the doctor again! This can solve that problem!! 

 

My Open Letter to Pain

pain go awayDear Pain,

Our relationship started so many years ago and let’s be honest it has never been a healthy relationship. I have tried to break free from you for years, but somehow you manage to always find a way to sneak back into my life.

At this point I do not even remember exactly

when all of this pain started. It is both sad and crazy it has been that log and I can’t pinpoint a day! It seems as though you just creeped on me until you pretty much consumed my days. You have always been an unwelcomed intruded who wanted to invade my life and almost control me. Unfortunately, the harder I fight you, the more persistent you are.download (5)

When I sit here thinking about our history I do know you slowly started causing me pain in my only my legs. While having consistent pain in both legs wasn’t easy, I felt like in a strange way a little more control of you. I don’t remember you causing me as many tears back then, but this was just the beginning of a long relationship.

download (7)As our very toxic relationship progressed, my pain travelled through more areas in my body. Let’s see, the next area you tried to take over was in my mid to lower back. This was still early on and was absolutely horrible. It seemed like no matter what I did, I was still in excruciating pain. Nothing was really helping this type of pain, but early on a heating pad did help some. Of course I still deal with this now, but it is SO much more intense. Yes, heat does still help some, but not as much as it used to. I do the best I can to ignore you, but you just never take a break!

In addition you are trying to make my massive headaches/migraines to take me out of commission because you know it is the only pain I can’t handle. These miserable 895ff6a44348f4a668000c879dd12480headaches/migraines have become more frequent and much more severe! The only thing that seems to help a  little is a dark, quite room with an ice pack on my head for hours. Unfortunately, I can’t really do this while at work and I have to go home early.

These days not only do I feel you in my legs, my mid to lower back and the head, but you are now trying to attack my neck, shoulders and arms. Did I just not pay you enough attention and that upset you? Do you just need me to acknowledge you and allow you to take the wheel of my life? Well this isn’t going to happen because I am not going to allow you the control me anymore.

Oh and I almost forgot the lovely MS hug! What is the point of this anyways? That originalhorrible feeling that the life is being squeezed out of you is so mean! You already know that nothing helps this at all, so why force me to deal with at various times?

All the years that have gone by, I need to break free from you. It is now time to separate and just END this relationship. I am sure you think I am going to give up, but I refuse to! Our relationship is OVER and you need to just walk away and accept it! Please leave me alone!

Goodbye pain, this is the end!

Alyssa

Thank y’all for visiting my site today and reading my letter to pain. I think I have lived with this pain long enough and it is time for it to stop. I have been reading more books about MS and even though I have lived with this illness for almost 2 decades, these books were helpful. I do believe they would be beneficial for anyone that either lives with this illness or has someone close them with MS. I think the books I have read give a pretty good explanation of this unpredictable illness. Please never forget that no matter what I am dealing with I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

❤Always, Alyssa❤

 

September, Pain Awareness Month

DmeoxF9XcAAnEI5I actually meant to complete this post earlier in the month because September is Pain Awareness Month and it is an important topic, but just was not able to because of too much fatigue and ironically enough pain. However, I do have a lot of information I want to share with y’all.

Pain is an awful thing many are forced to live with. Pain unfortunately affects way too many people’around the world. Speaking from my own personali-am-in-pain-you-just-dont-know-it-cause-i-smile-through-the-rain-and-refuse-to-show-it. experiences, I battle with pain every day and every minute of my life and it is anything but easy. Of course some days are worst that others, but even on a good day I still hurt more than anyone ever should have to. In all the years I have survived pain and Multiple Sclerosis, I have found that my pain increases drastically later in the day, like after about 2:00 PM. However even when I am in pain, I refuse to give in, but instead try my best to rise up again andpainhigh-res keep fighting the battle.

There are five types of pain a person can suffer from:

1.) Acute:

*Pain is felt short-term

*Pain will start suddenly

*The pain is related to soft tissue damageacutechronicpain.png

*Gradually will resolve on its own, when the injury heals.

2.) Chronic:

*This type of pain is felt over extended periods of time.

*Effected areas include back, neck, joints, mouth and face and muscles and bones.

*This type of pain is possibly caused by inflammation or dysfunctional nerves

*Diseases like Rheumatoid Arthritis, Osteoarthritis, Fibromyalgia, and ailments due to cancer, Multiple Sclerosis, Stomach Ulcers, AIDS and Gallbladder Disease.

3.) Neuropathic Pain-nerve-pain

*This type of pain and come and go.

*This is caused by damage or disease affecting the somatosensory nervous system. It is possible it could be associated with abnormal sensations called dysesthesia.

*There are many symptoms for this type of pain, which include: Sensation of pins and needles, uncomfortable tingling and burning, burning and tingly pain, uncomfortable and uncontrollable nerve pain. These symptoms can be felt during a certain time or day or felt the entire day without a break.

download (4)4.) Visceral Pain:

*Results from activation of nociceptors of the thoracic, pelvic or abdominal viscera (organs).

*Sensitive to stretching, ischemia and inflammation, but insensitive to small stimuli, like cutting or burning that typically cause pain

5.) Breakthrough Pain:

*Severe pain that rears its ugly head, when a person is already medicated with long-term pain killers.

*Very common in cancer patients.wp-1451082527281

*Felt in between regular and scheduled pain killers.

Lower back pain, migraines, facial pain, and neck pain are the four most common issues among those that suffer from chronic pain. Only 7% of men deal with chronic pain, where 18% of women deal with this nasty issue.

pain-awareness-monthAfter reviewing the statistics of people around the world that deal with chronic pain, the United States has the highest numbers.  For many reasons, I was not all that surprised that American’s rank highest in this category. I am going to list 6 major points of American’s and pain.

*50 million of the population live with chronic pain

*Between 560 and 630 million dollars is lost annually because of chronic pain

*Chronic pain is the leading cause of early long-term disabilityCrPnpZqUAAUwBhS

*Lower back pain affects 26 million people (which is 80%)

*Pain accounts for 78% of emergency room admissions (This is a huge number of people that are forced to go to an Emergency room,. knowing how awful insurance is and knowing the bill will be obscene.)

*Pain disrupts 42 million American’s sleep

download (5)Canada, having free health care also has many people that deal with pain. I have heard that the only thing that could be difficult is getting in with a doctor quickly, but at least they won’t go bankrupt dealing with their health issues. I am going to list a few stats from Canada.

*1 in 10 Canadian’s experience chronic pain

*9% of men and 12% of females experience chronic pain

*1.5 million of Canadian’s suffer pain issues

*34.6% of those deal with chronic pain, consider suicide

Considering that pain does affect so many around the world, I also wanted to share some random stats. The stats below are either worldwide or are to a specific area.

*20.5% or 1.5 billion people worldwide suffer with chronic pain

Pain management word cloud concept*20% of pain related suicides are a result of back pain

*30-50% of middle age people have neck episodes yearly

*Patients experience persistent pain after a routine surgery 50% of the time

*Back surgery fails up to 40% of the time. 2nd and 3rd interventions fail up to 70%

*Between 15% and 100% of patients with depression also battle with pain

*People with less education are 80% more likely to have chronic pain, than those with higher education

*500 million working days in Europe are lost to chronic pain

*20.2% of the Danish population suffers with chronic pain

CfIvOxFXEAA18E_I know many of you live with an illness that also causes a great deal of pain and I truly hate that for all of you. I stand by my beliefs that no one should ever have to suffer throughout their lives and there should be many more cures than there are. I guess there is a huge part of me that thinks, ‘It is 2019 and there are many brilliant minds out there. Why are these highly intelligent people not finding cures? Or why if these people have found the cures, why aren’t they shared?’

It takes a strong and determined person to work around the challenges that pain 49fa3f70b3c9ded5e0963d1328128554inflicts on our lives. I may have never met any of you in person, but through reading your posts and your comments on mine, I know you are one of these incredibly strong individuals ❤. With it being “Pain Awareness Month”, I wanted to share information that struck a nerve for me. Pain may be able to hide from others, but it is so real for many people. All I can say is a strong positive mind can do amazing things and even if it doesn’t take the pain away, it could carry you through to better times.

Thank you so much for visiting my site today. I always appreciate you taking the time to not only read what I share, but 3cf90d128f2321c4137a8be012ec0616--be-better-better-lifealso leaving amazing comments. I hope you have had a wonderful weekend and you are feeling the best you possibly can. I know it can seem difficult to remember, but y’all are very strong and have loving hearts. The amount of compassion y’all share is breathtaking! Please never forget that i am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

❤Always, Alyssa❤

 

Outlets are important!

environmental-writer-300x156Do you have an outlet from the pains that life hands us? I do believe having an outlet can be the most therapeutic thing for anyone, almost like a short escape from reality. It doesn’t matter if you write on a blog and share you deepest feelings with others or if you take time alone to write in a journal about your feelings, it is just important to get those emotions out. Releasing positive and or negative emotions can create so much true comfort!

Obviously y’all know I write on my blog as much as I can, but recently I have started download (5)writing in a journal as well. There might be times when I may not be ready or comfortable sharing how I am feeling with anyone yet and writing these feelings down in private offers me serenity. I find that writing down what is going through my mind at any given time allows me to reread what I am dealing with and gain some perspective. I think that by writing in a journal, I can just be honest with myself and not have to worry about what anyone else thinks or someone trying to tell me how I should feel or how I should cope with my struggles. There are many times that I just wanting to come up with solutions on my own, but then there of course times I do want advice.

I really do enjoy writing on my blog as well because this gives me a chance to not only outletshare with y’all, but also gain some amazing feedback from y’all!! I have told y’all many times before that I am very critical of my own writing, but reading your thoughts helps me in so many ways. I have always dreamed of being a writer and having freedom to write about whatever I want! My ultimate dream is to gain the confidence to write the book I have mulled over for many years. I do believe that if I continue writing on my blog, which I do intend to, I will gain a tremendous amount of knowledge from each of you and about my own skills.  I am very curious about what you consider an outlet. Is writing on your blog, writing in asunrise_music300[1] journal, or do you even consider writing to be an outlet at all?

I also consider music to be an outlet. It amazes me how much passion and meaning can be in just one simple song. I am sure what I take from any given song can be much different that it would anyone else and it might be a lot different than what the writer intended. I appreciate the creativity song writers hold and value what they are sharing with the world.

I am looking forward to reading what you consider an outlet to be and how it has helped you! I am so pleased to say that I do not have to work this weekend, which is allowing me to download (5)do things I really needed to do, like clean the house and rest. I know how crazy that just sounded, cleaning the house and resting seem like they are opposites, but for me being able to get the house nice and clean is a great feeling. Of course all the extra work did create a lot of pain for me, but now I am able to spend the remainder of the weekend resting and preparing myself for another LONG week at work and unfortunately I have to work next weekend!

Thank you for stopping by my site today! I hope you are enjoying your weekend and feeling well! Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

 

❤Always, Alyssa❤

Fight the battle & Win the war!

images (2)Living life with a chronic illness that brings on pain is not easy, but letting that pain win the battle should not ever be an option. Of course it is easier said than done, but isn’t it worth trying? There might be days that it hurts to even get out of bed, but just lying in the bed solves absolutely nothing because the pain will is still there later on.

There are things that can be done to fight against the pain we may feel. Now this is just howlove your life more than you hate your pain I think and what I have tried training my mind to think and believe. It is amazing what we can trick our minds into believing! The things that work for me might not work for anyone else, after all we are all different. Sometimes simply taking a nice hot bubble bath can make a HUGE difference! I think it is something about the calming feeling of the warmth that eases my aching body. Of course, my doctor has told me numerous times that hot water isn’t 579ef8182e48d1ac880303bd79cb9696good for me because it is not supposed to mesh well with Multiple Sclerosis, but it helps me. It is just like while at work my heating pad becomes my best friend!

For me, as crazy as this will sound, if I try to keep moving I feel that my pain actually lessens. It does not make a whole lot of sense to me because I would think when it pain resting would be way more beneficial. I often think when I stop doing something like cleaning, doing laundry or any other household chore, my pain settles in and I feel so much worse! 

I also find it helpful to keep my mind preoccupied, so I do not have time to even think about images (5)pain I am feeling. This could be reading a good book, writing either on my own blog or commenting on another’s, watching some mindless TV show (my favorite is General Hospital, which I know sounds insane) or even watching a good movie (my favorites are anything from the Fast & The Furious). Little things can create a distraction for the mind and possibly alleviate our pains, even if it is for a short time.

Anyone that lives with any type of chronic illness understands that it can and does create various challenges. I think it is extremely important to discover ways to deal with these challenges and never stop searching for new ways to manage difficult times. I know I have mentioned Web-Ad-3this before, but I strongly feel the only way to fail is to give up.

The promise I made to myself years ago when I was first diagnosed with Multiple Sclerosis was to never allow the illness defeat me. With a much more mature mindset now, I still value what my younger mind thought during one of the hardest times in my life. Nineteen years later, I will still keep this promise to myself.

Do y’all have any special ways you deal with your pain issues? All of us that struggle with this can understand one another and offer very valuable advice to each other. It does make me sad that anyone has to deal with constant pain, but at the same time it makes us so much dont-give-up-galaxy-hold-on-hope-Favim.com-1428490stronger! WE can fight this battle together and WE can win the war together!

Thank you so much for visiting my site today. I am sorry I missed my normal Motivational Monday quote, I was dealing with a massive migraine and wasn’t able to do it. I hope this will make up for that! Not only do I hope what I have shared beneficial for you, but also reassured you that you are not alone in the fight and we can win the war together. Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

love-2-e1526867753936

 

❤Always, Alyssa❤

Crazy day with falls!

images (1)Last Wednesday was a pretty crazy day for me. First, I left work early so I could be with my husband at our older cat Chloe’s doctor’s appointment.  Chloe is 14 years old and always been very healthy, but she has been losing a lot of weight lately and we knew it wasn’t normal. My poor baby was so scared in the short car ride and even more so waiting in the exam room.  Even though Chloe was getting her blood drawn and the doctor got a urine sample from her, she was surprisingly very well behaved. Chloe has a very unique little personality and does not put up with anything she doesn’t like, but she is also incredibly sweet and lovable.

The results from all of Chloe’s tests were not horrible, but they were not great either. My husband and I did some research prior to the appointment, so we would be prepared for the results. However, there is NO amount of 293research that could have prepared us for the results. Our 14 year old sweet baby girl has early stage kidney failure. We are trying to start the new food that will help her, but so far she doesn’t like it. This is just going to take a lot of patience and persistence to get her to eat the new food!

The evening part of Wednesday was not all that great either. Well it was more the late night download (5)part of Wednesday. For the first time in my life, I had two falls. The first fall happened around one in the morning and wasn’t that bad because I landed on my knees. The second fall happened shortly after the first around 1:30 am and it was horrible. I still do not know 100% what I hit my head on, the only thing I can think of is the window panel.

I immediately had a huge lump right above my left eye. My husband was so worried he took me to the emergency room. I was still pretty out of it when we were talking to the nurses and stayed that way when the doctor finally came in. The ER doctor had me wipe the sore that was showing, I guess so he could see if I needed stitches. Thankfully, I did not need stitches. After that, the doctor said we needed to do a CT to makeER sure there wasn’t a brain bleed. I am relieved the CT did not indicate a brain bleed or anything else that could be dangerous. I was released from the hospital with the directions to rest. It seems that the only thing that helps a concussion is rest!

I was having a lot dizzy spells before the fall, but now it is every time I stand up from the couch. I am not sure if the increased dizziness is from hitting my head or from the MS. I am also having some memory issues and tend to get confused easily.

In my 37 years, I have never had a black eye or a concussion. I hate how awful the nasty 17143.jpgblack eye looks and have not been able to cover it with make-up. I am going back to work on Monday, but will be sure to take it easy. Hopefully, the nasty eye will be better by then. Everyone knows my favorite color is purple, but I do not want my eye to be all dark purple! I am trying to listen to what the doctor said about reducing screen time, but I am still trying to do some in the blogging community. I of course will love reading your comments, but it may take me a little longer to respond.

I hope you are enjoying your weekend and of course feeling the best you can. Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

love-2-e1526867753936

 

❤Always, Alyssa❤