More talk about MS!

ms march awarenessMultiple Sclerosis is a very complex and frustrating battle to face. Unfortunately, this illness does impact everyone’s life in  so many different ways and to the point it’s almost hard to pinpoint what is what! There have been various names people choose to use when referring to  MS; such as the snowflake disease or invisible illness. I think these terms can also be used in many other chronic illnesses as well because they are fitting. I mean if you think about it, there are no two snowflakes that are exactly the alike,  just like no illnesses experiences the exact same symptoms. Also, there are so many of these illnesses that are completely naked to the eye, so they are pretty much invisible in the bigger picture. 51209211_2039825619447292_5206443739896197656_n

Let me ask my wonderful fellow bloggers, whether you live with MS or know someone else that does, what do you already know about this not so fun illness? Honestly,I think the only thing everyone knows to be 100% true is this illness can vastly differ for each individual! There might be times throughout the years each person with MS will unfortunately have a new symptom emerge and they need to learn to cope with this. While no one wants to deal with anything additional and all symptoms can be daunting, there  really are always ways to carry on with life!

symptomsI know there may be countless responses to this, but what are your top 5 most challenging issues you have been forced to accept during your journey? One thing I find very challenging and the most aggravating is how completely unpredictable this illness is. I have and probably always will be an obsessive planner! It drives me crazy for any unplanned issues to appear without any warning! Over the years, I have learned to expect the unexpected and be willing to rearrange my plans.

Another part of my MS life I find challenging, but am learning to accept is there are th-26-300x111NEVER any real answers for the numerous questions I ask my doctor. I would have never thought my questions were so difficult that my specialist can’t answer them. I mean these doctors go through enough schooling they should have a wealth of knowledge to match this. I am sure the schooling for many years is very expensive and probably more money than I will make in MANY years! Maybe while in school they should have a class in good bedside manner because most neurologist have a terrible personality. I think they have a godlike and ego maniac demeanor. 

flat,550x550,075,f.u4The third challenging aspect of this life that I have almost accepted is, the complete ignorance and total lack of empathy most people have for others. The ugly glances and degrading comments I have seen and heard over my years, especially when I park in a handicap parking space are nothing short of hurtful! Even though I have lived with this for many years, these glances and comments still can bring me to tears. This really doesn’t have anything to do with me, but is all on them! These people probably believe that misery loves company and try to bring me down to their level, which I try to avoid!

It doesn’t matter how long I have struggled with this illness, fatigue still tries to kick my Worst-MS-symptombutt daily! It was always complicated for me when I was working full-time because it never failed at about 1:00 or 2:00 if I am lucky I was exhausted! I have accepted this issue and try my best to conserve my energy so I am not ready for a nap at lunch time!

Lastly and to keep this from being too terribly long, the final challenging thing for me to accept is the constant pain I feel. It often seems like I am going to always to battle with pain and with little to no relief. I do know that dwelling on this pain only causes the pain to worsen instead of lesson and this just  isn’t an option for me! I do try focusing on the positive in my life instead of the negative hoping these thoughts will trick my body into healing! I also believe acceptance is half the battle and laughcan help keep my stress in check which will in-turn lessen the pain.

I would like to thank y’all for stopping by my site today. I told y’all on March 1st that for MS Awareness month I wanted to shed more light on this illness because knowledge is power! I am looking forward to reading your comments and do hope this was helpful for you!

I hope you have had a good week and of course hope you are feeling well. The weekend is finally here and  I hope you enjoy every moment of it! Please never forget that I am always sending y’all LOTS of love ❤, comfort and  many positive vibes!

My signature heart

❤Always, Alyssa❤

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Pain gets in the way!

tuesdayGood morning y’all! I hope you are doing well today. I am terribly sorry for missing my traditional “Motivational Monday”. I  don’t think I have ever missed this and my reasons for missing this yesterday is because I was feeling horrible and in a lot of severe pain. We all know that pain comes with the territory of many if not most chronic illnesses and I normally fight beyond this issue, but it was just wasn’t possible yesterday. 

Y’all already know that my husband’s birthday was on Saturday and thankfully we werebirthday success able to celebrate his day! I was so happy to be able to make my husband’s birthday special and ensure he had a beautiful cake!! I was so worried about this cake situation because I was use to getting his cake at the local store near are old house, but thank goodness this new grocery store did a fabulous job!

I honestly have absolutely NO idea what in the world could be causing the increase in pain is weakness leaving the bodymy pain, but I am hoping it will end soon and not be a dreaded relapse. The last massive relapse I had was last year and probably due to changing medication and the stress that followed that decision. I am probably going to just blame the weather for my pain and cough issues because that is just easier and offers more hope! Yes, weeks later I still have a nagging cough that will not go away!

Is there anything that helps you when your pain gets out of control? I tend to take kindly to bfa0ee13a5cbf740e7fe43df086ccd04my trusty heating pain because that does help some, but still doesn’t completely eliminate the pain. I know I have mentioned previously that I get pain in my back and legs, but normally one is worse than the other. Right now, I couldn’t possibly say which one is hurting me worse. What I can say for certain is the leg pain is making it hard to walk far, but I am doing what I can and still refuse to allow this illness to defeat me!

Thank y’all for visiting my site this morning. I appreciate all of your support more than I can even explain. I am truly sorry for missing Motivational Monday, but I promise I will not miss Pick-Me-Up Thursday! I look forward to reading your comments and I will respond as quickly as I can! Please never forget that I am always sending y’all LOTS of ❤love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Finally Friday

happy-friday-good-morning.jpgHappy Friday y’all! I hope you had a nice week and you are looking forward to a wonderful weekend! I hate to complain about all the rain we have had every day this week, when California has been suffering with fires, but the rain really does make me feel awful. I really wish there was a way I send a few days of rain out west because they could really benefit from it!

The rain has really caused me to struggle with pain. I guess knowing you don’t have a choice but to pull it together and go to work is what has kept 6491bb982234ffe30ffc89efb56cc1bdme going. Plus, even in pain I do enjoy ❤ my job. I feel like I am doing something good for those that want to improve their lives and are doing what is necessary to make it happen. I have so much respect for people who even when they struggle, never give up hope and set goals they work SO hard to achieve. It is really admirable!

There have been many times recently that I have come so close to giving up hope and faith in humanity, but then I meet someone who just radiates with so much strength and courage. People like this really restore the faith in good people again.21-Best-Famous-Quotations-About-Pain-Pain-Quotes-Pain-Sayings-2

It still makes me so incredible sad to see hate and judgement in this world. I know I have made several comments recently that scream hatred towards the government, but that is really just my frustration venting. I want more than anything else for everyone, no matter race, color, sexual preference, religious beliefs, etc to be treated equally and with respect. I mean no matter how a person lives their life, as long as they aren’t causing harm to another, we are all human beings with a beating heart, right? The reason I am sharing this is because I want y’all to know that no matter how angry I might get with politics or corruption, I do strongly believe that love ❤ will guide the way to better lovesee-730x688.jpgtimes moving forward.

Thank y’all for visiting my site today and I hope your week has been a good one. The weekend is finally here with us and we can do what we please! I am pretty excited for the weekend so I can catch up on y’all amazing blogs. I have been a little slack because I am balancing blogging and work, but I am getting better with it!! Please always remember that I am sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

Two weeks has past!

Time-for-an-UpdateGood evening y’all! It is incredibly hard to believe that it has already been two weeks since my husband and I uprooted our lives by moving to a new state and city! Two weeks ago when we made this change I was terrified about the decision we had made, but now I couldn’t be happier we made this fabulous move! I think the new city and my new job have done so much for the sanity I still had left and my massive stress-levels. The new city is a little smaller than where we were living and so far the people are a lot nicer.

My new job has so far been absolutely amazing and the people are SO very kind, which is a huge change for me. I mean don’t get me wrong, there were a few people at the old job that were great, but the bad definitely out-weighed the good there. My new boss is an older man who stays very busy with good things comenumerous meetings and tasks, but when he is in the office he is super kind and willing to answer any questions I might have. So far, my job has been very interesting! I have been learning about what my job entails and how to maintain a schedule for the VP of Finance. There is so much more to this job that I am very excited to learn. I am thrilled that I am going to be traveling with a co-worker for a week of training out of the state. This training will make me become a Certified Housing Counselor. I am looking forward to the chance to build relationships with the home buyers and feel that I will be able to offer a lot of compassion and understanding during a stressful time for them.

I work with so many incredibly nice and understanding people. Of course they only have one name to remember, where I have about 20. Thankfully, everyone is extremely understanding when I have to ask their name again, which has really only happened once or twice. empathy

The moving process was stressful and a lot of hard work, which caused me a great deal of fatigue and pain. I wasn’t the best with resting because I just wanted everything done and organized immediately, which is impossible. It has only been recently I decided that we have plenty of time to get things situated in the new home. There doesn’t need to be a rush on things because thankfully time is on our side with the new house. The only thing that is important  and time sensitive is we MUST get our old home ready to be sold and hopefully sold sooner than later! I look forward to the day we get a phone call saying we have an offer on the house! I am logical enough to understand it will take time before the townhouse actually sells.

As y’all already know, I am trying to find my way to continue blogging because I really do love it, while working a full-time job, which I haven’t done in a long time. This process is afinding-my-way-text-893x1024 trial and error situation, but I am determined to make this happen! I know many people probably will never not fully understand this, but I find writing and blogging a great way to reduce any stress I am feeling. I think most of y’all already know that I battle with stress issues, but I am working to improve this. I think being a walking/talking stress case for 37 years is long enough and now it is time to change my ways.

I do believe that my new job is improving my stress because it is a wonderful place to work. Please know, I am working on getting caught up with reading and commenting on your posts, while also working on my own blogging thoughts. I appreciate all the encouraging words y’all have shared with me over the past weeks and I am looking 6a014e601f2a5b970c014e887a4cfb970d-600wiforward to getting back to a semi-schedule with my site.

I hope y’all have had a great day and I really hope you are feeling well. I am honestly struggling with some pain issues at the moment, but it is possible it is due to the rainy weather☔. I know it is going to be rainy for a few days with the hurricane heading towards Florida and even though I am a few states away from Florida, we are still expecting a lot of rain🌧. My body doesn’t appreciate or tolerate rain very well, but I am going to keep a strong hold on positive thoughts because I think that is important. In a matter of days the rain will pass and hopefully the weather will be calm!

I want to thank you for visiting my site this evening and I do hope you have a lovely evening! I will do my very best to respond to any of your comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love ❤ and comfort!

My signature heart

❤Always, Alyssa ❤

Never stop believing in hope!

hope-quotes-wallpaperI think in the world today, it can be very easy to give up hope. There does seem to be so much negativity and hatred surfacing daily, but not allowing these thoughts into our lives is possible! As long as we keep only those around us who offer happiness and nothing but optimism, we all could spread those emotions instead of negativity. If enough believe in love❤ and hope, we could out power the hate.

It could be easy for me or anyone else that lives with a chronic illness to want to give up any hope for a cure. Living with any illness that causes daily pain is without a doubt frustrating, hope-quotes-about-life-09especially when it seems to be never-ending. Being required to take numerous medications several times a day to slow any progression down, is not any fun! Making decisions of what the right medications are is like playing a game of Russian Roulette, you never know what the outcome is going to be. All of this takes determination to beat the odds and hopefully win the game of life!

Making decisions on what the right medications will be for yourself is extremely difficult. This takes having a lot of confidence in your choices. It also takes doing a lot of research on the medications to choose from. Since being diagnosed with Multiple hope seeing brightSclerosis 18 years ago, I have been on numerous different types of medications that are meant to slow the progression down. The first several were not right for me and I was able to move onto something different. The great thing is, none of the medications need to be permanent if they do not work well with your body chemistry, you are able to keep moving on with something else. This process was frustrating for me, but I never gave up hope that something would work well for me. Thankfully, I had a very understanding and tolerant doctor during this time which helped me make the best decisions!

I want to share a blog post from a fabulous fellow blogger❤ with y’all. Jenny at https://trippingthroughtreacle.com has lived with Multiple Sclerosis for many years and still keeps up her fight! I always find everything Jenny shares to be beyond amazing and she continues to give me hope for better times. I want to share with you her recent post because it was so brilliant and very informative https://trippingthroughtreacle.com/2018/09/07/multiple-sclerosis-and-its-symptoms/#comment-1981. This post alone will make you want to read even more of 2-19-life-1024x792Jenny’s posts!

As difficult as life gets, we all have the choice to hold onto HOPE! If we continue believing, HOPE will never die! We have a choice to challenge the potential for continuing to better ourselves and even all around us. 

Thank y’all for visiting my site this morning. I always appreciate your support and love to read your comments! I hope you have a wonderful Tuesday and you are feeling well! Please never forget that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

 

 

Prisoner of my own body

prison bodyIn a previous post I shared with y’all that my recent MRI results showed improvement and there were NO new lesions, which is great news! I felt so incredibly relieved with these wonderful results, but for some reason which I am sure is probably stress related, I still feel an incredible amount of pain and burning in my legs/feet. This pain and burning sensation is constant and unrelenting, which is nothing more than frustrating.

Trying to continue doing all that I want and need to do become trying because it seems like not much really help the issues I continue to struggle with. I feel that my body is trying to hold me as a prisoner from my own illness. Isn’t there normally parole from prison? Unfortunately parole has not been offered to me, so maybe that means I have not stay in painshowed good behavior! I know I do not listen well to my doctor (whom I do my best to avoid to at all costs), but I also continue to ignore the advice from the Nurse Practitioner (NP) that I actually like and respect, considering she worked closely with my first specialist that I just loved! During the MRI results reading with the NP, she encouraged me once again to try things to reduce my stress, considering she seems to believe that is where my pain is stemming from. I am do not agree with her completely on this, but maybe she is right.

Avoiding stress in the world we live in seems completely impossible to me, but maybe and not very likely I am wrong. I mean you are not able to turn the TV on without interruptions from the government, spewing nothing but lies! It is impossible to be out stress everywhereamong people without one them mentioning some lie they heard on the news that they of course believe. Avoiding stressors that I have been aware of for a long time is possible, but then through no fault of my own they seep through and then cause me nothing but frustrating feelings. I have even tried to ignore the stress-factors, but all that does is bottle up hostile feelings which tend to come out in rather terrible and unhealthy ways!

Now considering my MRI results indicated improvement, I am left to wonder if the pain and burning sensation that will not let up is just my life. This is what makes me feel that I am nothing more than a prisoner in my own body. How do you break-free when nothing seems to help? All that seems to be happening is the walls are growing taller and more impossible to escape from.light

Even though the issues I continue to face are frustrating, I will continue searching for the light I know is there somewhere. There must be an end to the pain and burning sensation and in time I am sure I will figure it out. However, by the time I figure out ways to end the pain and burning I am probably going to be very elderly and in an assistant living home, in which they will have to deal with me! I definitely feel bad for those individuals! 

I would like to thank y’all for stopping by my site today. I always appreciate you reading my thoughts for the day and leaving your amazing comments! I hope y’all have had a nice day and I hope you are feeling well. Please remember that I will respond to all comments as quickly as I can, as I really do enjoy the open communication we have. As always I am sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

What are the joys of a long weekend?

happy-long-weekendGood morning y’all! I hope you have had a delightful week and you are looking forward not to the typical weekend, but a LONG weekend! Even though I personally do not have any extravagant plans for my three-day weekend, I am so happy to have one! Between dealing with my typical MS pain, daily to-do’s and horrible negativity at work, my week has been extremely long and aggravating! I am thrilled to have three days away from work!

What do you look forward to when you have a long weekend? I know this will sound crazy and very simple, but I look forward to not having a schedule to follow! I do not have to get up at a certain time, be on the drive to work by a specific time, perform the same tasks during work hours, be in bed by a certain time to get a decent amount of longweekendsleep and so on. When I do not have to be at work I am not woken by an annoying alarm clock and can sleep in, not that I sleep long anyways, but still I do not have to be up at 5:15 am! The alarm clock becomes my enemy during the week because it never misses a beat and goes off at the same damn time every day, which I know that is what it is supposed to do, but it is still annoying! On weekends I can wake up and even fall back asleep or take naps if I find myself too tired. If only we could take naps at work, the days would be SO much happier!

I mentioned earlier that I have a difficult week and part of it was due to dealing with SO much negativity at work. How do y’all deal with negativity in the work place? I did my very best to ignore it and just walk away, but honestly things were wearing on me to a 291c5c14c410d5c8f270226eba5e2182horrible point. I allowed for one person’s personality/bad attitude to cause me way too much stress. Logically I know that the way this person acts is his problem not mine, but he manages to wear his feelings on his sleeve and facial expression. His behaviors have brought me to tears way too many times before and I know he isn’t worth it, but the comments still bother me to an extreme. It gets difficult to walk away from someone with negative energy when that person is your direct supervisor, but I have been trying to keep my distance the best I can! If y’all have any other advice on how to handle this, I am open for suggestions. 

Thank y’all so much for stopping by my site this morning. I always appreciate you taking the time to read what I write about and love❤ reading your comments. I find all of your comments very enlightening and they open my mind to other ways of thinking. I hope you have a wonderful Friday and I hope your weekend is fabulous! Please remember that I am always sending y’all LOTS of love ❤and comfort!

My signature heart

❤Always, Alyssa❤