Good morning Y’all and happy Friday Eve!! Just one last day until the much desired weekend is here! I hope y’all have a wonderful day!
I do not think anyone that lives with a chronic illness has ever said, “This is so easy to deal with.” Living with any type of chronic illness, no matter what it is, takes the willingness to adjust to a life you never dreamt of living and never giving up the fight against the illness itself! It means taking on tasks, that before the diagnosis would have been so simple to handle, but after the diagnosis adds some new challenges you never even knew existed. It means learning about new medications, that still may seem foreign to you, but you understand them enough to know the benefits to your health. It means relying on doctors to give you accurate and detailed information, but also having the strength and courage to question everything they say to you. It is all about knowing your own body and learning what your “new norms” are and knowing when something is not right! It does not matter how long the doctor went to school for or how many awards he or she has received or even how many of their patients sing their praises, they will never know your body better than you do. They are there for us, as the patient to feed us the knowledge about our illness and the various medications approved to manage said illness, not to tell us what to do because that is not their choice!
There are so many things I would have done differently when I was first diagnosed with Multiple Sclerosis, if I had not been SO shell-shocked by the news! I do not think I was ever fully prepared when I went into my doctor’s appointments; I just went because it was required of me. I was so young when I was diagnosed, so I was not mature or logical enough to think things through first, I just acted solely based on impulse and impulse control when we are young is pretty much non-existent.
I have thought a lot about what advice I would give the young me that would be helpful. I would tell the younger me to always keep a notebook of questions and or concerns for the doctor, so that I did not forget them as I so often did. I would also strongly advise the young me to get all doctors’ notes printed out and keep them with the notebook. It is amazing how many inconsistencies there can potentially be between what the doctor puts in his notes, that we do not see and what was actually said in the office. Unless the doctor’s notes are specifically requested, they will never volunteer them to you and those notes are your business to protect!
How long have you been living with a chronic illness? Do you remember how you handled it in the beginning and would you have done anything different, if anything? Knowing everything you know now, is there anything you would have changed or did you handle everything well and you do not have any regrets? I think most of us have defensive mechanisms that help us with dealing with tragic events in our lives and that is okay, as long as we handle the issue or issues at hand. Some people deal with the difficult events life throws their way in very negative ways that only causes additional issues. I think some of the most troublesome events from life have a way of teaching us valuable lessons and they are not punishments in the least bit!
I want to thank you, from the bottom of my heart for visiting my site today. I am looking forward to reading your comments as you know they are always encouraged and I will respond as quickly as I possibly can! As always I am sending y’all LOTS of love and comfort!