More talk about MS!

ms march awarenessMultiple Sclerosis is a very complex and frustrating battle to face. Unfortunately, this illness does impact everyone’s life in  so many different ways and to the point it’s almost hard to pinpoint what is what! There have been various names people choose to use when referring to  MS; such as the snowflake disease or invisible illness. I think these terms can also be used in many other chronic illnesses as well because they are fitting. I mean if you think about it, there are no two snowflakes that are exactly the alike,  just like no illnesses experiences the exact same symptoms. Also, there are so many of these illnesses that are completely naked to the eye, so they are pretty much invisible in the bigger picture. 51209211_2039825619447292_5206443739896197656_n

Let me ask my wonderful fellow bloggers, whether you live with MS or know someone else that does, what do you already know about this not so fun illness? Honestly,I think the only thing everyone knows to be 100% true is this illness can vastly differ for each individual! There might be times throughout the years each person with MS will unfortunately have a new symptom emerge and they need to learn to cope with this. While no one wants to deal with anything additional and all symptoms can be daunting, there  really are always ways to carry on with life!

symptomsI know there may be countless responses to this, but what are your top 5 most challenging issues you have been forced to accept during your journey? One thing I find very challenging and the most aggravating is how completely unpredictable this illness is. I have and probably always will be an obsessive planner! It drives me crazy for any unplanned issues to appear without any warning! Over the years, I have learned to expect the unexpected and be willing to rearrange my plans.

Another part of my MS life I find challenging, but am learning to accept is there are th-26-300x111NEVER any real answers for the numerous questions I ask my doctor. I would have never thought my questions were so difficult that my specialist can’t answer them. I mean these doctors go through enough schooling they should have a wealth of knowledge to match this. I am sure the schooling for many years is very expensive and probably more money than I will make in MANY years! Maybe while in school they should have a class in good bedside manner because most neurologist have a terrible personality. I think they have a godlike and ego maniac demeanor. 

flat,550x550,075,f.u4The third challenging aspect of this life that I have almost accepted is, the complete ignorance and total lack of empathy most people have for others. The ugly glances and degrading comments I have seen and heard over my years, especially when I park in a handicap parking space are nothing short of hurtful! Even though I have lived with this for many years, these glances and comments still can bring me to tears. This really doesn’t have anything to do with me, but is all on them! These people probably believe that misery loves company and try to bring me down to their level, which I try to avoid!

It doesn’t matter how long I have struggled with this illness, fatigue still tries to kick my Worst-MS-symptombutt daily! It was always complicated for me when I was working full-time because it never failed at about 1:00 or 2:00 if I am lucky I was exhausted! I have accepted this issue and try my best to conserve my energy so I am not ready for a nap at lunch time!

Lastly and to keep this from being too terribly long, the final challenging thing for me to accept is the constant pain I feel. It often seems like I am going to always to battle with pain and with little to no relief. I do know that dwelling on this pain only causes the pain to worsen instead of lesson and this just  isn’t an option for me! I do try focusing on the positive in my life instead of the negative hoping these thoughts will trick my body into healing! I also believe acceptance is half the battle and laughcan help keep my stress in check which will in-turn lessen the pain.

I would like to thank y’all for stopping by my site today. I told y’all on March 1st that for MS Awareness month I wanted to shed more light on this illness because knowledge is power! I am looking forward to reading your comments and do hope this was helpful for you!

I hope you have had a good week and of course hope you are feeling well. The weekend is finally here and  I hope you enjoy every moment of it! Please never forget that I am always sending y’all LOTS of love ❤, comfort and  many positive vibes!

My signature heart

❤Always, Alyssa❤

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Week with a cough isn’t easy

away-from-the-blogI never meant to be away from blogging for the entire week, but this unrelenting cough has been torture! Coughing all day, everyday, plus working full-time, has caused me more fatigue than normal, so I have not had the energy to write at all. Besides dealing with this nasty and evil cough, last week was extremely busy for me.

As I already mentioned, I have been dealing with a cough for well over a week, hell it has been well over a month now! I already know that it takes my body FOREVER  to get over a simple cold, but honestly I haven’t even been to a doctor. Healthy ingredients for strengthening immunityMy reasons for not going to the doctor might be silly, but in my opinion they are valid. One reason is I am in a new city and haven’t established an actual doctor yet. I know this is something I should have already taken care of, but it just isn’t easy. Hell I know there are not many MS Specialists where I am living, which is frustrating! Another reason I haven’t gone to just some random doctor is because they ALWAYS try prescribing an antibiotic and ALWAYS ignore the bright red warning sign that shows up due to the Gilenya. Gilenya interacts with many medications and it can be very dangerous. I just do not want to deal with all the ignorance that comes along with healthcare in the United States. 

home-selling-6Another major thing that happened last week was we closed on the sale of our townhouse! I had mixed emotions about this because it was the first home my husband and I bought together. There are many memories within the walls of that home, some are great and others are horrible, but it was our home. I am beyond happy the townhouse sold in only 3 days, but it is still bittersweet! The  great thing about this is, we are down to only one mortgage payment!

With so much going on, good and bad, I am thrilled we have a three-day weekend! I am hoping that having these days off without any “must do’s” I will get over this pain in the 1264359-georgia-may-jagger-quote-drink-lots-of-water-get-lots-of-sleep-andass cold and start feeling human again! I never would have thought a simple cold could take this much out of me. I mean I haven’t even had the energy to do much of anything, which is very unlike me. For the past two days I basically get out of bed and move to the other side of the house to the couch, where I typically fall back to sleep while watching TV. 

I am making an effort to get over this cold, but my goodness it is taking way too long! I already take a Vitamin C supplement everyday, so I am not sure what more to do. All the congestion that has come along with this cold has completely killed my appetite, but I am staying hydrated, so I guess that is a plus. Let me ask y’all a question, when you get what should be a simple cold, does it take a long time to go away?

I hope y’all are having a nice and restful weekend! I am working on getting through emails, comments and your posts, which hopefully I will be caught up by the end of the long weekend! Playing catch up while my head is feeling very foggy isn’t easy, but I am trying! ❤As always I do appreciate you stopping by my site and your patience with my catch up time. No matter what I might be dealing with, I am always sending y’all LOTS of love ❤, comfort and positive vibes!

My signature heart

❤Always, Alyssa❤

Never Giving Up!

When Life Gets BusyTo simply say that my life has been busy lately and it has very hard to make the necessary time to do what I enjoy is a poor excuse and a HUGE  understatement! Moving to a new city and starting a new job has been exciting, but also VERY overwhelming. I honestly haven’t worked a full-time job in a while because of the constant pain and other issues I struggle with daily, but I have been doing just that for one month now! Yes, the pain has been difficult to deal with, but at the same time I am actually enjoying the job so I just accept the pain for what it is and I don’t dwell over it. I feel that my job helps those that are struggle with making ends means, but they want to improve their lives. In my personal opinion, people who struggle with life but do what is necessary to provide for themselves and their families are pretty amazing and admirable. There are so many that just give up because they feel helpless and feel as there isn’t anything they can do to improve their lives, which this just isn’t true! It may not dc-may18-600seem like it, but I do believe that we can all accomplish ANYTHING we set our minds to!

Like I have said already, I am pushing myself to work a full-time job and lately with the weather change hasn’t been easy at all! Even though my body is on overdrive and going a little haywire, I know things will improve in time it just takes patients, which I tend to lack. It doesn’t matter if the temperature changes from hot to cold or cold to hot, I still react the same way, NOT WELL! It still seems a little crazy to me that I feel horrible when anything goes on with the weather, even just rain. For the first few weeks of every season, I just feel like I was hit by a truck and the mean driver backed over me just for some added fun! You would think that after living with Multiple Sclerosis for almost 19 years I would be immune to these issues or at least be able to tolerate them better, but honestly it is always produces the same troubles!

878da42dde1a95a17c88e6759c5fbcf1I hate that I have been a little MIA for weeks now, but the life changes has been a struggle for me. I still need to find a MS Specialist near me, so when I do have issues, which hopefully I won’t, I will have a doctor to contact. It would be terrible to drive 2 hours back to the doctor I couldn’t care less for, but that might be my only choice for short-term, we will see. We did find a vet for our cats to go to that is really close to our house. Only one of our cats really needs a vet due to his asthma. A lady I work with said she has a great dentist, so I might need to check them out. It isn’t any fun starting all over again with doctors, but maybe it is actually a good thing and I will find better doctors that I mesh well with. I don’t think I am a difficult patient, but I need to feel like the doctor I see, no matter what type they are have required knowledge and the MS Specialist needs to be compassionate. Do you think I am asking too much and I am a little difficult? Of course I want the MS doctor to be honest, but not too harsh like my current one. All doctors should have good side manner, which seems to be hard to find!

daily-fitness-motivation-keep-pushing-your-limits-when-you-accomplish-your-goals-set-new-onesIt feels like it has been WAY too long since I have actually been able to write a post from the ❤ heart ❤ when I wasn’t too exhausted. It is really shocking how difficult it is to work full-time. It seems like there are too many hours away from home relaxing and enjoying life by working, but I guess we all make sacrifices and at least I like what I am doing! I am still continuing to learn and have more responsibilities, which I ❤ LOVE! If I am forced to work, I much prefer to stay busy and be challenged!

I hope y’all are having a great weekend! It is sunny, windy and a little chilly where I am, but it isn’t as bad as yesterday. It really seems that the seasons changed over night. We went from the high 80’s to low 50’s in just a few hours, that might be exaggerating a little, but that is how it seemed! I hope y’all are able to do anything and everything that brings you joy this weekend! Thank you so much for visiting my site today. I will respond to any comments as quickly as I can!! I promise I am working on getting back into blogging again, it is just taking longer than I would have expected. Please remember that I am always sending y’all LOTS of love ❤ and comfort!

My signature heart

❤Always, Alyssa❤

 

Two weeks has past!

Time-for-an-UpdateGood evening y’all! It is incredibly hard to believe that it has already been two weeks since my husband and I uprooted our lives by moving to a new state and city! Two weeks ago when we made this change I was terrified about the decision we had made, but now I couldn’t be happier we made this fabulous move! I think the new city and my new job have done so much for the sanity I still had left and my massive stress-levels. The new city is a little smaller than where we were living and so far the people are a lot nicer.

My new job has so far been absolutely amazing and the people are SO very kind, which is a huge change for me. I mean don’t get me wrong, there were a few people at the old job that were great, but the bad definitely out-weighed the good there. My new boss is an older man who stays very busy with good things comenumerous meetings and tasks, but when he is in the office he is super kind and willing to answer any questions I might have. So far, my job has been very interesting! I have been learning about what my job entails and how to maintain a schedule for the VP of Finance. There is so much more to this job that I am very excited to learn. I am thrilled that I am going to be traveling with a co-worker for a week of training out of the state. This training will make me become a Certified Housing Counselor. I am looking forward to the chance to build relationships with the home buyers and feel that I will be able to offer a lot of compassion and understanding during a stressful time for them.

I work with so many incredibly nice and understanding people. Of course they only have one name to remember, where I have about 20. Thankfully, everyone is extremely understanding when I have to ask their name again, which has really only happened once or twice. empathy

The moving process was stressful and a lot of hard work, which caused me a great deal of fatigue and pain. I wasn’t the best with resting because I just wanted everything done and organized immediately, which is impossible. It has only been recently I decided that we have plenty of time to get things situated in the new home. There doesn’t need to be a rush on things because thankfully time is on our side with the new house. The only thing that is important  and time sensitive is we MUST get our old home ready to be sold and hopefully sold sooner than later! I look forward to the day we get a phone call saying we have an offer on the house! I am logical enough to understand it will take time before the townhouse actually sells.

As y’all already know, I am trying to find my way to continue blogging because I really do love it, while working a full-time job, which I haven’t done in a long time. This process is afinding-my-way-text-893x1024 trial and error situation, but I am determined to make this happen! I know many people probably will never not fully understand this, but I find writing and blogging a great way to reduce any stress I am feeling. I think most of y’all already know that I battle with stress issues, but I am working to improve this. I think being a walking/talking stress case for 37 years is long enough and now it is time to change my ways.

I do believe that my new job is improving my stress because it is a wonderful place to work. Please know, I am working on getting caught up with reading and commenting on your posts, while also working on my own blogging thoughts. I appreciate all the encouraging words y’all have shared with me over the past weeks and I am looking 6a014e601f2a5b970c014e887a4cfb970d-600wiforward to getting back to a semi-schedule with my site.

I hope y’all have had a great day and I really hope you are feeling well. I am honestly struggling with some pain issues at the moment, but it is possible it is due to the rainy weather☔. I know it is going to be rainy for a few days with the hurricane heading towards Florida and even though I am a few states away from Florida, we are still expecting a lot of rain🌧. My body doesn’t appreciate or tolerate rain very well, but I am going to keep a strong hold on positive thoughts because I think that is important. In a matter of days the rain will pass and hopefully the weather will be calm!

I want to thank you for visiting my site this evening and I do hope you have a lovely evening! I will do my very best to respond to any of your comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love ❤ and comfort!

My signature heart

❤Always, Alyssa ❤

As Friday comes to an end!

happy friday have a great weekend

We finally made it through the week! Now it is time to just let go of what was during the week and enjoy what is ahead for the weekend!

Considering I am pretty exhausted, I just wanted to share some positive vibes with y’all with hopes it starts your weekend off with some joy! Always remember to take care of yourself as YOU❤ are very important!

I hope y’all have a restful and lovely weekend! Please always remember that I am always sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

Truly A Painfully Long Week!

Good-Night-Quotes-20Good evening y’all! I hope you had a nice day today! I am so beyond happy that tomorrow is Friday because it has been a painfully long week! When I say painfully long, I really mean it has been incredibly painful for me!

Earlier this week I mentioned a goal I had for myself, but did not want to share it because I was honestly afraid I would not achieve my goal. Well now that tomorrow is Friday, I am perfectly at ease to share that goal with y’all! I desperately wanted to be able to increase my hours at work slightly, but it seems that every time I fear of goalssaid it in the past I was not able to succeed. This week I have been pushing myself a little harder to work six and a half hours each day instead of just the six hours daily and not miss one day, I have done this so far and I do not see tomorrow being any different!! Sure pushing myself just 30 minutes probably does not seem like a lot, but my goodness it really has been! I have been so completely worn out every day, I was not even able to do a post. Now on Thursday evening, even being extremely tired and in a terrible amount of pain, I was also very proud of the success I have made and wanted to share it with you! I figured I did give that cliff hanger earlier in the week about a “goal” and I know y’all must have been a little curious and deserved to know more about the goal!

I am not sure what next week will hold, but I do fully plan to keep trying my very best. I really am so glad tomorrow is Friday, so I will have the weekend to recuperate from this past week and only hope I have not caused too much damage to my already hurt body! I falling down is how we growknow I have put myself through a lot of pain and stress which may not have been a good decision, but what is done is done and I made it! I will continue to set achievable goals for myself because I do think it is so important to keep trying, which in turn means trying harder every week!

I want to thank y’all for taking the time to visit my site today and really do love to read your comments, which I always will respond to. The blogging community really has been a wonderful and amazing experience for me. I was completely shocked that a fellow blogger that read about me having a difficult day on Tuesday emailed me to see if I was okay. Let me just say that❤❤ Angela Gagliardi is an amazing woman and I am truly thankful for her! Angela also has a blog and if you have not already seen her site, I strongly encourage you to do so, https://fuckms.ca/! Angela has a ❤heart of gold and even when she is struggling herself, still takes the time to care for others. Thank you so much Angela for being a wonderful friend! I hope y’all have a nice relaxing evening and a fantastic Friday. Please know that no matter what I might be dealing with, I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Bad night turns to a bad day!

stressOverwhelming stress will only cause literally nothing but a terrible amount of pain! For reasons I can completely acknowledge, I was in so much pain last night and could not turn my brain off long enough to get any sleep. I would just lay in bed worrying about every little thing in life and then look over at the clock and just think, “Well if I fall asleep now, I will get 4 hours asleep”. Then an hour later still be awake and see the time and once again think to myself, “ If I could just fall asleep now, I will get 3 hours of sleep.” This went on all night and in turn I was not able to go to work today. Truthfully I am really disappointed in myself because I had been doing so well this week working six and a half hours, so to turn around and miss an entire day is just discouraging! I did think about just trying to push myself to go into work on ZERO hours of sleep, but I also knew that would not do my health any good and getting that run down would cause my health to deteriorate even more.

I can not say and be 100% sure if my increased amount of pain is due to the crazy stress 1weather or to the unrelenting stress life continues to throw at me! I never was good at dodge ball, so the stress just keeps hitting me hard! I often wonder if I am causing the stress I feel to take control of my life and I am actually the one that is responsible for making it worse. I know that allowing stress to bombard my thoughts is NOT any good for my friend “MS”, but I also do not seem to have the strength to avoid it and let it just roll of my back. It never fails, instead of when I am faced with anything I know will be stressful, I am not able to just fight to find something a little more peaceful to focus on, but I focus completely on what is causing my stressful thoughts! I can give advice all day long to others on how to handle stressful times, but I NEVER take my own advice!

Now that I am home for the day to allow my terribly achy and fatigued body to rest, all I can do is be hard on myself for breaking the success I did make by working more hours Monday-Thursday! How is it possible that I had such a successful week and now I am in so much pain it hurts to move? Did I push myself too hard in the beginning of the week by trying my hardest to work more hours because of how busy it is right now? I do not feel like I i will breatham capable of not being hard on myself because just last year I was working many more hours and I was fine! Why since October am I not able to do more like I use to be able to? Is it possible that I am now just allowing the MS to win the battle and control my life? That is not me and is just not the way I ever planned for my life to be. I had always planned to control this illness as much as I could, but seem to be failing miserably at that lately! I guess the truth is control is really just an illusion and what is going to happen, it just going to happen! We are not able to control things that are really uncontrollable, in all reality we are only able to control how we handle the difficult times in life.

In all honesty, the only thing I can do right now is rest in order to get better before the new week starts again. I will not give up on the progress I was making earlier this week, I will try again next week and just hope for a better outcome! I really need to learn how to handle my stress levels A LOT better than I have been because really all I am doing by allowing the stress to consume me is destroying my own body and my health! I can dont-lose-hope-everything-happens-for-a-reason-you-never-6877637promise myself all day long that I will make the necessary changes, but I do not know how to. Writing is definitely a great way for me to get my thoughts out which does help some, but I need to find even more ways to cut the stress out completely and for good! Do y’all have any suggestions on how to do this?

I hope y’all had a pleasant Friday the 13th and I hope you are looking forward to your weekend! I do really appreciate you stopping by my site today and look forward to reading your fantastic comments, which I promise I will respond to as quickly as  I possibly can! Please remember that no matter what I may be dealing with in life, I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤