Evil headache/migraine

07182018_phases_of_migraine_Flickr.2e16d0ba.fill-735x490I have lived with Multiple Sclerosis for almost 20 VERY long years. During this time I have experienced pain, numbness, dizziness, vision problems, the infamous MS hug, and so much more. The only thing that can really get me down and unable to do anything is the headaches or migraines whatever they may be.

Yesterday all I wanted to do was write, but I wasn’t able to due to a nasty and quite evil migraine. While we are going through this awful pandemic of the coronavirus, I have been told by two great women, my mother and mother- in-law, I should stay in the house because of my weak immune system. While I do understand that grocery stores and other places that have a lot of migraine-headachespeople aren’t a good idea for me, I hate knowing I can’t do anything. I guess it would be much easier if I was making this decision and it not be forced on me. Even the morons in the government are saying people with underlying issues should not go into public places. It is all I can do to not disobey the government idiots, but my health is more important than my distaste of them.

Thankfully, today my headache/migraine is much better and I am able to write again. I plan to write and read as much as I can while my headache/migraine is at bay. I only hope it stays this way because it is the only thing I can do that I enjoy.

5 Fascinating Facts About MigrainesI do want to share a little information about migraines with y’all. All the information I am providing is the information the Migraine Foundation had discovered.

  • Migraines are the 3rd most prevalent illness worldwide
  • 1 in 4 households have someone with migraines
  • Migraine sufferers are 18% women, 6% men, and 10% children
  • Migraines are most common between the ages of 18 and 44
  • 90% of migraine suffers have a family history

Migraines are more than just a bad headache and suffer from more symptoms including

  • Typically a severe throbbing recurring pain, usually on one side of the head, about 1/3 of attacks will be on both sides of the head
  • Attacks often have one or more of the following disabling symptoms: visual disturbances, nausea, vomiting, dizziness, extreme sensitivity to sound, light, touch, and smell, and tingling or numbness in facial extremities
  • About 25% of migraine sufferers also have a visual disturbance called an aura,aura
  • which usually lasts less than an hour
  • 15-20% of attacks have other neurological symptoms before the actual head pain starts
  • Attacks usually last between 4 and 72 hours

Most people don’t understand how serious and incapacitating a migraine can be

  • 6th most disabling illness worldwide
  • Every 10 seconds, someone in the United States goes to the emergency room with complaints of head pain, and approximately 1.2 million visits are for acute migraine attacks
  • Most sufferers experiences attacks one for twice monthly, more than 4 million people have chronic daily migraines, with at least 15 migraines a day each month
  • More than 90% of sufferers are unable to function during their migrainesMigraine-Triggers

Migraine is a chronic disease that significantly diminishes a person’s quality of life

  • More than 4 million adults experience chronic daily migraine
  • Medication overuse is the most common reason why episodic migraine turns chronic
  • Depression, anxiety, and sleep disturbances are common for migraines sufferers
  • Over 20% of chronic migraine sufferers are disabled

I do hope this information was helpful for you, but I also hope non of you ever have to experiences this miserable pain. This probably won’t sound great, but if I had a choice between the pain I was in yesterday and death, I think death would have won. Like IArticle_migraines-impact already said, I can deal with pain and keep going in life, but headaches/migraines will keep  me in bed with an ice pack that melts too soon, unable to eat, and an irritability that makes me just as evil as the pain.

Thank you for visiting my site today. I appreciate you taking the time to read and will look forward to your comment. Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes!

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❤Always, Alyssa❤

 

 

What is Multiple Sclerosis?

27b889827d7b041c766fd1b5e7ba47faWhat is Multiple Sclerosis?

March is Multiple Sclerosis (MS) Awareness Month. Multiple Sclerosis is an incurable neurological condition that affects the brain, spinal cord, and optic nerves.  The body’s immune system attacks the protective myelin sheaths that cover the nerve fibers which cause areas of scarring, known as sclerosis. The immune system also attacks and destroys the fatty myelin coating that surrounds and insulates nerve cells which is a process 348sknown as demyelination.

Experts suggest there being 250,000-350,000 people in the United States currently living with this illness. There is an indication the rate of the disease is increasing regularly in the 20th century with approximately 200 new cases each week. Those of Northern European descent have a higher risk for the disease, but Native Americans of North and South America and Asian Americans are at a lower risk. The disease is much more common in colder climates.

There are four types of Multiple Sclerosis, all having different characteristics.

  1. Relapsing-Remitting Multiple Sclerosis (RRMS). This is the most common form, RRMSbeing that 85% of those with MS are initially diagnosed with. Patients with this form will have relapses and periods of stability in between the relapses. Relapses are the episodes when new or worsening symptoms that are not caused by fever or infection appear. These episodes typically lase more than 48-hours. Between relapses are periods of remission where there is no clinical evidence of disease progression. Periods of remission can last for years, but this can range from person to person.
  2. Secondary-Progressive Multiple Sclerosis (SPMS) can basically be considered the SPMSsecond phase of the disease. Most people that are initially diagnosed with RRMS will transition to this form at some point. Symptoms with SPMS will worsen steadily over time with or without occurrences of relapses or remission. There may or may not be times of relapses caused by inflammation, but will continue towards the progressive phase indicating nerve damage or loss. With this form of MS, the disability only continues to get worse.
  3. Primary-Progressive Multiple Sclerosis (PPMS) is less common than the ms_disease-course_PPMSother forms and only affects 10-15% of those with MS. On average people with PPMS start having symptoms between 35-39 years old. There is a slowly worsening of symptoms from the beginning with no relapses or remissions. With this type of MS there can be times of short-term, but temporary, minor improvements, however the decline of neurologic progression is constant. Symptoms of PPMS include pain, electric-shock-sensation running down the back and limbs when the neck is bent, trouble walking, vision problems, muscle weakness, trouble balancing, paralysis, numbness, prickling feeling, dizziness, shakiness, trouble thinking clearly, mood changes, depression, sexual problems, and trouble with bowel and bladder control.
  4. Progressive-Relapsing Multiple Sclerosis (PRMS) is a rare form of MS. There will PRMSbe a steadily worsening of the state of the disease from the beginning with acute relapses, but no remission will occur. The symptoms of this form are the same as those with PPMS.

The first neurologic event suggesting MS is known as Clinically Isolated Syndrome (CIS), which usually lasts at least 24-hours. The symptoms will indicate a single lesion (Monofocal) or more than one lesion (Multi-focal) in the central nervous system (CNS). There are many symptoms involved with Multiple Sclerosis some being common and others being less common.

Common Symptoms Associated with Multiple Sclerosis86665331_3276961818997285_6990907139438936064_n

  • Fatigue (Mental and Physical)
  • Pain
  • Tingling or burning sensation in the arms, legs, trunk of body or face
  • Vision issues (blurred or loss of vision)
  • Stiff muscles
  • Attention and memory issues
  • Dizziness, vertigo, and clumsiness
  • Trouble walking

Less Common Symptoms Associated with Multiple Sclerosis

  • Migraines
  • Speech problems
  • Body tremors
  • Seizures
  • Hearing loss
  • Itching for no reason
  • Mood changes such as depression or euphoria
  • Ability to concentrate or multi-task effectively
  • Difficulty making decisions, planning or prioritizing

Secondary Symptoms that can develop

  • Bladder and bowel problems
  • Difficulty breathing
  • Osteoporosis
  • Muscle weakness
  • Difficulty swallowing
  • Sexual health issues

ms awareness marchWith all the possible symptoms one can experience, there are ways to manage most of them. Bladder control can be something one can experience and this can be rather embarrassing if it happens out in public, but there some suggested strategies to manage this.

  • Drink enough fluids. The kidneys need at least 2 liters of water daily in order to flush waste products. Do not try rationing intake because this could increase the risk of infection.
  • Time your drinks. Try to spread fluid intake evenly throughout the day.
  • Limited caffeine and alcohol intake. Both of these can increase the amount of MS Painurination.
  • Special exercises such as exercises that strengthen the pelvic floor.
  • Continence aids such as disposable pad can be beneficial.
  • Medication can be provided to reduce the urgency to urinate and help the bladder empty itself.

Pain with MS can be primarily due to the neurologic condition. Pain could also be due to secondary conditions, such as musculoskeletal issues as a result of altered posture or spasticity. The weakening of leg muscles tends to trigger aches and pain in the back or knees. The unfortunate truth is, people with Multiple Sclerosis can feel pain anywhere, but there are ways to help manage the pain which includes medication, physical therapy, and relaxation techniques.27b889827d7b041c766fd1b5e7ba47fa

Every person that lives with Multiple Sclerosis is different and deals with this illness in a way that serves them best. A person can experience similar issues as another but at the end of the day, we all handle it differently. Each symptom, relapse, remission, and medication affects each person vastly different but yet can understand what another person is going through. It is vital that no matter what stage the illness is, there needs to be an understanding of what our limitations are and to never push beyond that.

Thank you for visiting my site laughtoday! I hope the information I provided to you was helpful. There is a chance I have stated the same thing in previous years, but I do feel it is important for us to spread as much awareness as we can because it does not seem like this illness is going away anytime soon. I do want to believe that someday in our life time there will be a cure, but until then we must continue to live our lives the best we can. I hope you are having  a great day and feeling the best you can. Please never forget that I am always sending y’all LOTS of love ❤, comfort, and many positive vibes! 

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❤Always, Alyssa❤

 

P.S I will be doing additional posts about MS during the month, but felt they needed to be separate posts because there is SO much information available. The crazy thing is, no matter how many years I have lived with MS, reading about it is a little upsetting.  

 

 

 

The Disability Award

disability awardI was at a complete loss for words when I learned that Melinda at https://lookingforthelight.blog/, choose to nominated me for this award because there are so many others with amazing stories of their own. I never in a million years would have thought that I would have such an honor to be nominated for The Disability Award, in part because I hate admitting to having a disability. I will admit that when I read this, it did bring on many emotions and tears, but I then was delighted to be part of this award. Melinda has an amazing site of her own with fabulous knowledge she continues to share. She is dedicated to helping others with disabilities, chronic illnesses and all that comes along with those struggles. Melinda has also gone above and beyond with helping me reblog my posts when I am not able to. Thank you so much Melinda for this amazing opportunity and please anyone that hasn’t viewed her site, check her out and I know you will be happy you did so!cf036bb83ac63b40077ff3367aa06717

To my Nominees: Please answer the questions, choose your own nominees, and develop your own set of questions. Honestly, Melinda’s questions were so amazing that I wanted to use the same questions, but y’all are of course can choose your own questions if you want. Please display the award badge on your blog. I also do not want to add any pressure onto your already busy life, so if you choose to not participate in this award, I completely understand! I will of course LOVE reading your answers and seeing who you decide to nominate for this award!

My amazing nominees are:

https://msmommy.blog/ 

invisiblyme.com

https://reclaiminghope.blog/

https://funshinesunshineblog.wordpress.com/

https://mymsrollercoasterride.wordpress.com/

https://makingitthroughtherain.com/

https://brokenlifesite.wordpress.com/

My questions from Melinda are:

download (6)What was the first sign of your illness?

The first sign I encountered to this not so fun illness was I lost vision in my left eye. I had absolutely NO idea what was going on and went to my eye doctor. Not only was I in complete and total shock, but I was horrified when of all people an eye doctor told me he suspected MS.

What is your worst symptom and how do you cope with it?images (2)

It is a little difficult to say which of the various symptoms I live with being worst because none of them is at all easy. However, the constant pain can be quite trying and cause me to not do as much as before. I feel that due to pain I end up being forced to limit time on my feet and take breaks more than before.

What one thing about you has changed, as a result of your struggles?

I think the only thing about me that has changed since I was diagnosed with Multiple ms awareness marchSclerosis is I have learned to push past pain. I was always strong with this type of issue, but now that I have pain every minute of every day the strength has only grown.

What words of advice or encouragement would you give to someone else suffering?

The advice and words of encouragement I would offer is, let everyone know they are not allow and never will be. This is something I wish I was told all those years ago because being diagnosed with a chronic illness can be a very lonely feeling.

Name one good thing that has come out of having a chronic illness.never ending nightmare

It seems crazy to say something good that has come out of this chronic illness, but I would say it has taught me to never give up and to always know others struggle in life and need someone to understand. I have made some amazing friends through the blogging community that live with something similar and we are there for one another.

What one thing do you disagree with that is widely accepted as true about your condition?

download (8)There are a few things that I strongly disagree with regarding my condition, but I am only going to share two of them. One is that heat is bad for me and cold is better. The thing is a heating pad gives me a lot of relief. Cold weather causes me to tense up and hurt WAY more. I do think being in the heat too long is not good, but also being cold too long is not good either. I also think with it being 2019 there must be a cure, but the pharmaceutical companies do not want it released because they would not make as much money off ALL of our MANY prescriptions.

If you could change only one aspect of your illness, what would it be?strength

There are many things I wish I could change about this illness, but the main one is that I wish it did not happen to anyone! No one deserves to face the difficulties any chronic illness imposes on their life, well unless they want to mess with the  abilities of insurance we should have!

Name the one thing that works best for you for symptom relief.

The funny this is, even though all doctors tell me heat is horrible for me a heating pad on breathmy legs or back eases the pain for a short amount of time. Of course, pain medication does help the pain, but I refuse to allow myself to be another statistic and become addicted.

Based on your experience, what is one thing that you would tell someone newly diagnosed with chronic illness?

The one thing I would tell someone that was newly diagnosed is something I wish I haddo-your-own-research-ask-questions-discover-your-own-truth-11298906.png been told is, do your own research and learn as much as you can about whatever illness you were diagnosed with. The truth is we are the only one that knows our body better than anyone ever could because no amount of schooling could teach that!

Why did you start blogging?

Be-An-AdvocateThere were several reasons why I wanted to start blogging. One reason was to be an advocate to illnesses and spread the awareness that is needed. Another reason is because of the pure love I have for writing and I also want to be able to help as many people as I can to know they are not alone in this battle.

Thank y’all for stopping by my site today and thank you to my nominees for being thank-you-volunteersthe incredible people you are! Life isn’t easy and living with a chronic illness tries to make things even more difficult, but together we prove these illnesses wrong! I hope if y’all have some free time you will check out my nominees sites and definitely view Melinda’s! I know you will never be disappointment you did so and will feel a sense of encouragement by reading what these individuals share! Thank you once again Melinda for all you do for everyone and the added help you have offered me!

download (6)I hope your weekend has started off great and only continues to get better. I do always appreciate the support you offer by reading and commenting on my posts. Never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Accepting realities!

acceptanceSomething that I have had a really hard time admitting and accepting is that Multiple Sclerosis is a disability. Whenever I have applied for a job, there is always that annoying question “Do have or have you had a disability.” I mean what kind of BS question is that to ask someone? Of course I want to say “NO”, but Multiple Sclerosis is listed as a disability on the darn application and I can’t falsify anything on an application because that could result in me being disqualified for a position I applied for and want. I think this is so invasive and completely ridiculous, but I guess it is what it is in life!

For some strange reason the words disabled and disability shatter my heart into aimages million pieces and cause me to feel like a useless failure . I do realize how irrational this may sound, but that is how I have been feeling. It made me incredibly sad when I had a difficult time walking through a store last weekend because my legs and feet were experiencing SO much pain and weakness. All
hashtag person not disabilityI wanted to do was cry, but I couldn’t because I view that as letting this illness win the never-ending battle we have been in for years and that will NEVER be an option for me!!

I know I already shared with y’all that I figured out I am gluten-intolerant without the expensive tests a doctor would want to run. It seems like a punishment to have to deal withlife isn't fair the issues Multiple Sclerosis comes along with and then add gluten-intolerant to the mix seems quite unfair. I know we all deal with random issues and keep on moving forward because we do not have a choice. I am also very aware that many others deal with SO many other struggles that are far worse than what I am, so I am really not complaining. I am going to share more about this gluten-intolerant situation in a later post.

tired.jpgThe truth is, because I am always so exhausted during the week after working 8 hours every day of the week, I often don’t have the energy to write as much as I would like to. I end up with so many random thoughts running around like crazy in my mind; it gets so hard to keep track of them all and have those thoughts come together for a good read and one that I am proud of.

For the past week or so, I have been experiencing an increase in the number of horrible do not confuse bad days as weaknessdizzy/black-out spells. I have had these issues happen before, but never so many in just one day. At least 2 days last week, there were several moments when the room went completely dark and there NO were sounds at all, which under other circumstances would be great. There was one time I was talking with a co-worker at her desk about work and all of sudden I felt weak, light-headed, hot as hell and dizzy. Luckily I was standing very close to the wall, which kept me standing upright. It might have been pretty embarrassing if I all of sudden fell to the floor at this new job.

I am not really sure which of these issues are more images (3)terrifying; dizzy spells, black-out moments or the combination of the two. Of course I would say the combination of dizziness and black-out would the most terrifying because you are dealing two different disturbing issues at the same time. I have dealt with dizzy spells for so many years now, but I have found ways that help me limit the duration of my dizziness, most of the time at least.

Truthfully my experiences with black-out spells aren’t plentiful in comparison to dizziness, but I have enough sense and knowledge to download (6)understand how horribly upsetting they can be. I remember a few years ago there was a period of time when I had a several short black-outs throughout the week, but they weren’t anywhere near as severe as they are now. I am not sure if its stress, lack of sleep, weather changes or something else. The list of possible reasons really could go on and on and on, but I really just wish they were STOP!

Thank you so much for stopping by my site today. I will never pressure you to leave a download (7)comment, but I do encourage your comments if that makes any sense, but I know your thoughts will be amazing. I promise to respond to your comments as quickly as I can! I hope you are feeling well and enjoying your weekend! Sometimes I think the best part of a weekend isn’t getting out and staying busy, but not having any plans at all so there aren’t any time requirements. My days are set in stone during the week with work, which I tend to strongly dislike, but I guess it is just the life of adulthood. I enjoy spending my 2 very short weekend days living in the moment and not doing anything that might cause unnecessary stress. Please remember that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

What are the struggles & benefits of living with a chronic illness?

Struggles and benefitsThe struggles of living with any chronic illness are numerous and endless. So many chronic illnesses come with various issues that might be difficult to treat, which can and does lead to SO much frustration. Through many visits to several different doctors, we are caught up in SO much medical debt, because the United States does not offer free healthcare like ALL other developed countries offer! For instance, I am required to see my MS Specialist to try slowing the progression of my illness down, but have to see another specialist to treat the pain issues! It does not make any sense to me because the pain is a direct result of the MS, so why it is my MS specialist can not treat the pain as well? Oh that’s right, because there is an opioid epidemic so anything related to pain needs to be monitored by a painchronic-pain-chain-diagram specialist who only sees me for 3-5 minutes every 2 months! Do you really think the pain doctor actually specialized in pain or they just could not hack it with being a real doctor? That might sound a little cruel as I am sure this “pain specialist” passed medical school, but seriously there are no medical schools out there that really specialize in pain!

Another struggle those of us that are living with a chronic illness faces is dealing with the dreaded insurance companies! We all know these insurance companies only see $$ dollar signs when they see our information come through! They know our medications cost a small fortune, so therefore we pad their paychecks with the many medications we are required to take. I know that my Gilenya alone without assistance would cost around $1500 a month and that is with insurance! Who can afford that on the wages we make? That’s right NO ONE can and quotes-to-inspire-people-with-chronic-illness-RM-alt-722x406therefore our conditions would worsen drastically over time! Do the insurance companies care? NOT AT ALL! I do believe that the insurance companies and government work together so they can be very well off in life without any regard for human life! Now with the talk among the government, some of us many worry that we will lose our expensive insurance in the near future. I do sincerely hope that I am wrong about this though, but that is honestly what I think is on the agenda!

Some of us may worry about the struggles of working a full-time job, as many of us probably can not afford to work part-time hours! Even if we are able to work a schedule with reduced hours this can not only be a financial burden, but also causes nonsenseYou-Dont-Look-Sick-722x406 judgments from co-workers! The comments that are made can be extremely frustrating and offensive, but we are doing all we can in life! I know that all of us would prefer to be able to tolerate full-time work, but when we are not able to we are doing the best we can and should not be looked down on! As you can probably tell I have heard the comments made about working ONLY 6 hour days, but I am pushing myself to do this!

Another struggle some of us may face is fun times with parking! Some of us may have handicap parking, which should be making our lives easier! However, some may look perfectly normal to the naked eye. We may suffer from something know as an “Invisible Illness”, which of course we feel but NO ONE sees our struggles! They may make butterflies-cant-see-their-wingsignorant comments about someone who looks completely normal parking in a handicap parking space. Rude comments have been made towards me and it did hurt my feeling terribly! But it has now been a few years since I was given the handicap parking, so I have had many experiences that I want to forget ever happened. Now days I do not allow negative comments to get to me as much and just feel sorry for the people making the ignorant comments and even worse for their children to grow up in that horrible environment because they may end up just as ignorant!

Fatigue and migraines are somethings I know many of us deal with almost daily! Both of these can be relatively difficult, but we handle them the best we can! Now I do not get migraines daily, but I get them enough to understand how hard they are to cope with.Background concept wordcloud illustration of fatigue Fatigue on the other hand I struggle with daily! I normally begin feeling much fatigue around 1:00 every day which is why I get into work earlier. For some reason, I feel much better earlier in the day and worse as the day progresses. It does not matter what time I wake up, always around 1:00 I feel like I need a nap!

OH WOW I almost forgot, I did say there were benefits to living with a chronic illness! The benefits are often very difficult to find, but they are there somewhere deep down. When living with an illness has NO cure it can make us more sympathetic, empathetic, and compassionate to what others might be dealing with at any moment in life. It may falling down is how we groweven give us the opportunity to meet others that understand our struggles and also offer support to others living with something similar! It may take work, but we are able to build strong networks with many others that can be very beneficial to all that is involved. Through the blogging community, I have been able to build powerful and valuable connections with SO many very incredible people who I have come to care so much for! I am truly thankful for all of my blogging friends and feel we might not have met if it were not for the chronic illness!

I sincerely appreciate you visiting my site today and always encourage your comments as they are fantastic! I hope y’all have a lovely day and you are feeling the best you can! Please remember that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

My Letter to Multiple Sclerosis

Good Morning

Good morning Y’all! I hope you are having a great weekend so far and you will be able to enjoy your Sunday! After all the topics I have been able to address, I managed to forget one of the most important topics. While reading several different blogging forums, I thought it would be a good idea to address the thing that brought me to blogging in the first place, my Multiple Sclerosis. So today I am going to share with you the letter I would love to send to this illness. This might be a little longer and full of emotions, but it is also very real! I hope you enjoy this! Maybe this could be something for you to try, write a letter to your illness!

Dear my not so loving friend Multiple Sclerosis,

You invaded my body about 18 years ago and just stuck with me without fail. We have been through many relapses together over the years; all the while you tried to defeat me. But let’s face it, I will not surrender to your persistent bad behaviors and will not allowms 3 you to keep me down for too long.  

In the beginning of our “so-called friendship”❤, you tried to take my vision from me, which let me just say was not a good way to become the lifelong friends we were forced to be!! Of course it took a little help from the not so exciting steroids, but my vision thankfully returned to normal! You have tried over and over again throughout the years to take control of my legs by causing me so much pain and numbness, but I am still able to walk without the assistance of what I think you were aiming for. You have caused me so much pain and suffering for way too many years, but I still continue to fight back with all my might because I never plan to give up and allow you to control my life! The truth is, you are the one losing our constant battle and I am shockingly enough the one winning the war!

Let us not forget the fact that you have chosen to take up to residence in my brain causing many other issues for me! There are the several times a week debiting only choice we haveheadaches which normally end to severe nausea. The headaches you decided to inflict me with make it nearly impossible to do anything at all! It was also decided by YOU to cause some brain fog and dizziness, making me feel confused and frustrated. The horrible back, neck and leg pain is more than enough for me to live with, don’t you think? Please get out of my brain because you are being EVICTED IMMEDIATELY!

I bet you thought you were being clever by giving me hugs every now and then! Well I do not like or appreciate your unwelcome hugs! So in the future, please do not do that! Just in case you did not already know, your hugs are very painful!

I guess during the 18 years we have spent together, you have become the ❤friend that I never asked for or wanted and you just will not go way to give me a break. You are pretty much worse than the most obnoxious uninvited guest that will NOT LEAVE no matter how many hints you are given! The only thing I can do now is just embrace the fact that you are just here for the long haul and will surface whenever you please without so much as a warning which let’s face it is really inconsiderate! 

Oh and what about all those different medications you want me to take? Do you not realize just how much some of these medications can and do affect a person’s body or do you just not care? Why must you be so complicated that the smartest minds of the world can’t seem to find a way to make you vanish? They sure can create so many drugs to “slow” the progression of the illness down but not make the illness stay in a remission Get MS montage plate picstate FOREVER! I am starting to think that you, the malicious drug companies and the not so compassionate greedy insurance companies are working closely together to do nothing more but make LOTS OF MONEY yourselves!

So my dear not so sweet friend MS, now that you have heard a little from me about how you make me feel, when are you going to move out of my body allowing me to be free of you? I think it is long since time to depart from each other!

Thank y’all for visiting my site today❤! I really hope you enjoyed reading the letter I would love❤ to be able to send off to Multiple Sclerosis. Of course I would love to read your thoughts on this, so please let a comment for me and I will respond as quickly as I can. I really hope you are feeling well today and can enjoy your Sunday! As always remember that I am sending you  LOTS of love💞 and comfort!

My signature heart

❤Always, Alyssa❤

 

Disability or NOT?

Disability-bannerThere are many people out there that qualify and truly need to be put on disability and there is absolutely nothing wrong with that. When someone makes the decision that they are not able to work any longer and their doctor agrees with them, then you just know it is the right time for taking that route in life. Do some people actually take advantage of this? Absolutely and that is just really sad and an insult to those that do need disability! No one can really be pushed or forced to file for disability as it is a very involved process and does require a lot!

Disability does not have to be permanent, but you must be totally disabled as is defined by the Social Security Administration. The Social Security Administration (SSR) actually anticipates that the condition can improve at any point in time! Aren’t they thoughtful and optimistic? Therefore this requires those that were awarded benefits to participate in a process called Continuing Disability Review (CDR). The reason for CDR is to determine if there have been any improvements in the claimant’s medical or financial circumstances. All approved claims are subject to “diary review dates” after one, three and seven years. Now this does depend on the condition the disability was awarded for and the probability for improvement. All that is required to avoid interruption in disabilitydisability benefits is medical documentation that the claimant still suffers from the impairment the disability was originally awarded for and that there have not been any improvements.

The SSR tries to make this process a little easier for those filing, so their list of impairments are broken down by bodily systems or functions:

  • Musculoskeletal Problems:
    • Back conditions and other dysfunctions of the joints and bones
  • Senses and Speech Issues:
    • Vision and hearing loss
  • Cardiovascular Conditions:
    • Chronic Heart Failure
    • Coronary Artery Disease
  • Digestive Trace Problems:
    • Liver Disease
    • Inflammatory Bowel Disease (IBS)
  • Neurological Disorders:
    • Multiple Sclerosis
    • Cerebral Palsy
    • Parkinson’s Disease
    • Epilepsy
  • Blood Disorders:
    • Sickle Cell Disease
    • Hemophilia
  • Mental Disorders:
    • Depression
    • Anxiety
    • Schizophrenia
    • Autism
    • Intellectual Disability

The medical evidence that needs to be shown must be recent and encompass the time period when the disability started to present is:

  • Physical Examination
  • Treatment notes or reports
  • MRI (depending on illness)
  • CAT Scan (depending on illness)
  • X-ray (depending on illness)
  • Mental Health Notes
  • Blood work notes

 

If I am being realistic and logical, I know that living with a chronic illness disability may be involved in my life at some point. I mean heck, I know the Multiple Sclerosis is not Montelgoing to magically disappear😿, but I do not have to own this until it is absolutely necessary, which is not right now❤!! I believe if I continue living my life in the best way possible, control my stress (which we all know I am really bad at), and take the medication that is best for my body chemistry, I am doing all I am able to control the progression of this illness💞! I am only 36 years old and have been living with this illness for almost 18 years, besides the constant pain I deal with; I think I am doing rather well! As you can probably tell it really bothers😿 me when people make the suggestion I go on disability. It has happened way too many times just because people know what I live with, but they really do not know how it affects me. I do my very best to hide my feelings of pain, however people make assumptions! I do not disagree with anyone that is on disability, but I am so darn stubborn and even if my body might be ready, I am not emotionally😿 ready to take that step.

I really want to thank y’all for reading my rant today❤! This was suggested to me today and as you can tell it did not sit well with me😿! I am not going to say that I will not ever file for disability, but at this point in my life I am not ready as I feel I am still able to disability_is_not_inabilitywork, even if I am not working full-time right now. My working pretty much part-time hours is just the right now, in a few more weeks or months even I might be fully capable of doing those long full-time hours again. 

I hope y’all had a good day! Thank goodness we are half way through the week and the weekend is coming!! Of course I appreciate and even encourage your comments as I promise to respond as quickly as I can! I hope y’all have a wonderful and relaxing evening. As always I am sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤