Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Hello again, Monday! It is crazy how quickly the weekends fly by because it feels like it was just Friday not too long ago. I guess this is just something that happens every week, and we should consider ourselves lucky to have another opportunity with a new week. I hope this week holds many wonderful opportunities for all of you and you will not let anyone or anything get in your way of achieving greatness! Even though the weekend did seem short, I hope you were able to enjoy it and do something for yourself. My weekend was relaxing and quiet until Sunday when I woke up with a terrible migraine that would not go away. Unfortunately, this is something I endure too much and it never gets any easier.
As we begin a new week, I feel it is important to try to do so with a motivated and good mindset. If we do not try to start the week in the best frame of mind, we cannot expect the rest of the week to be as great as it should be. Each of us has faced countless battles and various struggles, but we are still here to live another day. Our journeys will always take strength and courage we never knew we had, but one day we will realize how incredibly strong and powerful we are. We can use these qualities to keep up a good fight and this will show others what they are capable of. Each storm we survived during this life, gives us the courage we need to face all the other challenges that life has in store for us!
I know most people are not ready for another Monday, but they never fail to return and it is another chance to do great things. I tried telling my cats this😊, but they did not think it was a good idea for their Mommy to have to be glued to her work laptop and not with them. I guess it is a good thing that they sleep around 20 hours a day and when they are not sleeping, they are enjoying playing with one another. I would give anything to live the life of our cats because they have everything and more they could ever want, plus everything is handed to them and they do not have to work😊! Our cats do not understand how lucky they are because not everyone treats their pets like family!
Thank you for visiting my site today. I hope you enjoyed what I have shared and the quote provided you the motivation necessary to begin another week. If there is such a thing as being reincarnated, I hope I will be lucky enough to come back as a cat who has a life as mine do! Those precious little fur balls have it made😊, but I still love them more than I could ever explain! I am looking forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I honestly do not know how I managed to get through Monday because I started having this massive and miserable migraine on Sunday night, which never let up until late yesterday. Even though it did let up some last night, it was still extremely uncomfortable. I was not even able to do my normal “Motivational Monday” post because I could not think or see clearly. I hope your week started better than mine did. Somehow, I managed to work a full day yesterday. Mondays are typically busy, but thankfully, it was a pretty slow and easy day! If it had been busy, I highly doubt I would have made it through the entire day.
We all did make it through the first day of the week, which I know most of us dread. I do hope today will be another easy day, but I do not think I am that lucky of a person! Regardless, we all need something that offers us a sense of peace and calmness. I hope the quote I am sharing today provides you with a calm and peaceful feeling because even though we made it through Monday, we do have a few days of the week left. I am the type of person that tries to avoid confrontation as much as possible and would prefer to walk away from disagreements. I think arguments and or disagreements cause us too much unnecessary stress and I know what it can do to the body. Stress is the “silent” killer and makes my illness (Multiple Sclerosis) much worst!
Considering I was unable to do a post yesterday, I was not able to say that I hope you had a nice weekend! Did you do anything exciting? I did not do anything too exciting and Sunday was an evil migraine day. One of the most amazing things that happened on Sunday was our cat that NEVER gets up on the bed, did get on the bed and snuggled with me. I think she was trying to help my headache with her gentle purr. This is a picture of our cat, Willow on the day I was out of work sick with pain. She remained on my lap most of the day in a similar position! She is a sweet and precious little girl with a loving heart!
Thank you for visiting my site today. I hope you enjoyed what I have shared and you loved the quote as much as I do. I would love to read your comments and I will respond as quickly as I possibly can. I hope you have a nice and calm day, and you remember there is not amount of stress you can experience that is going to fix the situation and it will only make things worst. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Sunday is “supposed” to be a day to relax and get ready for the week ahead of us, right? Unfortunately, I woke up early this morning with a killer headache/migraine. I am not sure what caused this to happen, but it has left me thinking the “daith” piercing might not help these. I do tend to get sick with a cold or something like that every time there is a weather change, which could explain the body aches and head pain. Needless to say, it was not a good Sunday for me at least.
It did not help that my pain doctor screwed up and NEVER called my refill in for today like she was “supposed” to. I called the pharmacy on Friday afternoon to follow up and ensure the Nurse Practitioner did what she was supposed to. When I learned the Nurse Practitioner did not call this in, I did call the office and was told they were taking care of it. They did NOT! Sadly, we need to make sure our doctors do what they are supposed to, especially with our medications, but I guess it is what it is! I am unsure if this is just an issue with medical professionals in the United States or if it is worldwide!
I hope you have had a nice and relaxing weekend. Do you have issues with your doctors or Nurse Practitioners not doing what they are supposed to do? How do you handle these issues? I already left a voicemail for my doctor’s office to let them know their so-called care is unacceptable. I am not sure they fully understand what it is like to live life in constant pain because if they did I am sure they would not be so incompetent and inconsiderate.
Thank you for visiting my site today. I am looking forward to reading your comments and I will respond as quickly as I can. I feel confident that most of you understand my frustration with my doctor’s office, so I would love to know how you would handle things. I try to always be polite, but I think that seems to make them think I am a pushover and they can screw up. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy halfway through the week😊! How has your week been going? I do hope your week is going well! Yesterday was my first day back at work after being off for just two days. It was insanely busy and playing catch up was slightly miserable. I am thankful that I did have someone covering my orders while I was out, but for some reason, no one took care of my follow-ups, and some things were missed. I am hoping that today will be a little less crazy!
On Monday afternoon, I finally got my daith piercing! I was so excited and a little nervous because I had been told this piercing was very painful. Of course, pain is something I can tolerate and deal with daily anyways. To be completely honest, with this piercing there was a lot more pressure than pain. I am glad that my husband was with me because after the piercing I was a little lightheaded and I am not sure if it was caused by the adrenaline or because I had not eaten much earlier in the day. I am glad I got this done and I love the jewelry I went with because I think it is very pretty. It has my favorite colors, purple and teal😊! After I have had this for a while, I will let y’all know if it helps with all the headaches I endure!
It is not proven, but many people have said that the daith piercing can help with headaches/migraines. This piercing can be done on one or both ears, but if you are like me and deal with headaches/migraines a lot, advocates suggest getting this piercing on the side where your headaches are most frequent. Of course, there is no scientific proof this helps, but I was willing to try and hope for the best. I do like the way they look and like I said, I love the jewelry I found because it is beautiful!
I had planned to get the daith and the helix piercing on the same day, but the place I went to said they would only do one because I needed to have a side of my head to sleep on. Truthfully, I think I would have been fine, and I would have been able to still sleep. The good thing is, this left me something else to look forward to😊! When I go back in a few months to do the helix, I plan to have the jewelry be like what I have in the daith, but maybe have a little more teal in it. I got the daith in my right ear, so I plan to get helix in the left ear! I know it sounds strange to be so excited about something that I know will cause pain, but I do not think it is too much to handle😊!
Do you have any piercings or tattoos? I always wanted to get a tattoo of a butterfly on my wrist, but never have because of how permanent they are. Please do not think I am talking down about tattoos because I do think they can be really pretty, I just have never dared to do one and also I cannot think of anything I would want forever! After my grandfather had passed away, I wanted to do a butterfly with his name under it, but then I would feel I had to get another one for each person I care about that passed away and I do not think that would be a good plan, at least for me. I think both tattoos and piercings is an art and it only matters what you like best because it is your body!
Thank you for visiting my site today. I hope you enjoyed what I have shared, and I look forward to reading your comments, which I will respond to as quickly as I can. I hope you have a wonderful day, and the rest of the week goes by as fast as possible! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Friday Eve y’all! We have almost made it through this week and the weekend will be here shortly! This week has been a little challenging because of the nasty migraine I had for more than two days. I hated having to call out of work on Tuesday, but the head pain was unbearable and I was miserable. I am not sure why these keep happening. I mean it could be heat, stress, fatigue, or who knows what else? I keep hearing that the daith ear piercing helps migraines, but my husband keeps telling me it will not. Does anyone reading this have this piercing and if so, does it help migraines?
At this point in the week, we have made it through three full days and only have a couple left. Even though the week is nearly over, we could all use some positivity to pick us up, right? I have seen so many times when people are unhappy and miserable, they want to criticize others. Why do people think that misery loves company? That is so awful because why do people think that making others feel bad will make them feel happier? Seems a little sick and twisted to me. That is why I decided the quote I am sharing today would be a good pick-me-up. I think it is better to live our lives in a way that makes us happy and not care what others think. We do not owe anyone an explanation, as long as we are not causing harm to anyone else!
Do you have any plans for the weekend? I know how boring I must sound, but after a long and exhausting week, I enjoy having no plans! Why make any firm plans when your work week is already planned out for you? We are forced to work five days a week, that is 40 hours each week dedicated to working for someone else. There is always someone else telling you what you MUST do and I prefer not being told what to do on the only two days I have away from work. I think it is inhumane to work more days than we get off to enjoy this short life! Would it not be amazing to work three days and have four off? Or even work four and have three off?
Thank you for visiting my site today! I hope you have had a great week and your weekend is filled with everything that brings you the most joy in life. I am looking forward to reading your comments and I will respond as quickly as I can. I apologize for any comments I have not responded to yet, but I will play catch up this weekend. The first two day this week, I was battling a mean migraine, so I fell behind. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy mid-week. I barely survived the first two days of this week because I had another one of my awful MS migraines. I ended up leaving work two hours early on Monday and called out yesterday. I do not like calling out of work, especially since I work from home, but there was no way I would have been able to handle looking at a computer screen all day. I was miserable all day and was only able to sit on the couch with my cats and watch repeats of Law & Order Special Victims Unit, which is one of my favorite shows and have seen every episode at least three times, so it did not matter if I fell asleep and missed anything.
Considering I do experience migraines so often, I wish my doctor could find something that eliminated them. Unfortunately, there has been no such luck yet. The only thing I found the helps a little is a mixture of Advil, Excedrin, and Sudafed, but I cannot take two of the three more than once a day because of the caffeine they contain. I do know that staying hydrated is important, which is why I drink water all day and rarely drink soda, but never drink any soda with caffeine.
Now that we are at the halfway point in our week and have two more days until we reach the weekend again, I think we could all benefit from some inspiration. Anytime I start to get down and discouraged because of what I am going through in life, I always remember something a wise old man told me years ago, “Now matter how bad things may seem in life, remember that someone else is going through something much worse.” That was what my late grandfather told me when I found out I had Multiple Sclerosis and I thought my life was over.
Thank you for visiting my site today. I hope you have had a better week than I have so far. Even though the beginning of my week was terrible because of the evil migraine, I am hoping the rest of the week will be much better! I know I have mentioned this before, but I think one of the things I hate most about living with Multiple Sclerosis is the migraines. I look forward to reading your comments and hope the quote I shared helps you through the rest of this week. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Half-Way through the week! I was, unfortunately, unable to work on Monday because of an awful migraine that was making me extremely nauseous. I get migraines too much and I would rank this one of the worst I have had in a long time. I thought I was going to be able to work, but after twenty minutes decided there was no way I could make it through the day. I was miserable with pain that went into my neck and shoulders. I could hardly see straight much less do anything else. I am used to dealing with pain, but it was so bad nothing helped. I ended up being on the couch with my cats and an ice pack all day with NO relief. Thankfully, I was able to work yesterday, but still had a slight headache throughout the day.
Talking about headaches/migraines, do you get these frequently? I would not have wished the one I had on Monday on my worst enemy because no one should have to deal with that. I can normally use an ice pack to help the pain in my head subside, but nothing was helping me at all. My poor cats did not leave my side and I mean that literally. When you get a nightmare headache/migraine, what do you do about it? I feel bad because I think I probably neglected the cats on Monday, but I could hardly take care of myself, so they were lucky to have been fed.
Enough about migraines/headaches, how has your week been? Thankfully, we are closer to the weekend than we were on Monday, so it will be here soon! Of course, we do still have two more days to make it through and I think we could all use something to make us smile and give us some kind of hope! We have a choice to be happy with the life we were given and if there is something we are unhappy with, we need to find a way to change it. I understand change can be scary, but life is short and we need to make the most of what we were given!
Thank you for visiting my site today! I hope you found what I have shared interesting and you might even be able to relate. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Sunday to y’all! I hope you are enjoying your weekend and of course, staying safe. I found out some slightly upsetting information the other day. The mother of a friend of mine from high school has COVID. Unfortunately, so many people are under the impression that COVID is something from the past and is long gone now, but the hard truth is, that COVID is still lingering around and invading the lives of too many. My husband and I have done everything possible to stay safe and I think we are the only two people in our circle of friends and family that have not gotten COVID.
I have been unable to do a post for several days now because I have been battling with an evil headache/migraine/sinuses. Over the past several days, this pain has eased up and came back full force numerous times. Considering I have been used to pain for over 20 years, I can normally ignore the pain, but head pain is something I have not learned to ignore. This typically puts me in the bed or on the couch with the cats in misery. If I had to guess, I think this is coming from the weather changes and stress. We are just now in June and the temperatures where I live have already been too close to 100 degrees. I am dreading the next several months of summertime heat!!!!
Regardless of any stress or pain, I cannot even begin to explain how excited I am for June 10th when I get to meet my literary idol, James Patterson. I know this meet and greet will only be a few minutes to tell him how honored I am to meet him, shake his hand, and hopefully get a picture with him, but those few minutes will be amazing! Many people dream to meet a celebrity or rock star, but this man is a rock star in my eyes. I am in complete awe of his writing abilities and only wish I had his talent. I do not think I have ever looked forward to something so much in my life. I am excited and a little nervous because I do not want to become tongue tide and not be able to tell him how much I appreciate his work and enjoyable books!
Thank you for visiting my site today. I hope you enjoyed what I have shared today and that you might have some advice for when you meet your idol! Today is the last day of the weekend, so I hope you enjoy it to the fullest. Tomorrow is another Monday when the new week starts, so rest up and get prepared. I am only working four days because I am off on Friday to go meet James Patterson. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Each person that lives with Multiple Sclerosis will have a unique journey, as this illness impacts everyone differently. I believe this is one reason why it is often referred to as the “snowflake” disease. The symptoms are vastly different from person to person, and we all handle the symptoms in our way. Of course, each symptom is frustrating, but some can be much easier to tolerate or even get used to.
For over twenty years, I have battled with Multiple Sclerosis. When I was diagnosed, I was young and did not have extensive knowledge regarding the disease I would be forced to live with for the rest of my life. I was terrified, angry, sad, confused, and everything in between with the diagnosis because of what I did know about MS. I knew MS did not have a cure and it could be extremely unpredictable and there was a possibility to become disabled. Given my age, I was naïve and could not see any hope for my future, which made acceptance almost impossible.
Over the last two decades, I have experienced many different symptoms that had a variety of challenges. For instance, the first and only symptom I had was optic neuritis. This is commonly one of the first symptoms of MS. Optic Neuritis is a temporary problem. When the optic nerve is inflamed it can cause pain and partial or complete vision loss. Typically, this issue gets better on its own, but some cases require steroid medication to reduce the inflammation.
During the early years after being diagnosed, I went through several frustrating days. Accepting the doctor’s diagnosis was painful and emotionally draining. Every appointment would start with me being argumentative and dismissive of anything the doctor said but would then end in tears. I could not fathom why I had this condition or why my life had to be altered so drastically and at a very young age. The truth is, I have always been a strong-willed person who could take care of herself without any help! I’ve never wanted to rely on anyone for help and was scared I would have to at some point in my life.
The other frustrating part was deciding on a medication to slow down the progression of the disease. Back then my choices were limited to injections. I have never had an issue with needles but did not think there would be a way to give myself a shot. Even though I hated the options offered, I decided to try one that was three times a day. Unfortunately, after successfully giving myself a shot Monday, Wednesday, and Friday for a few months, the miserable side effects became too much for me to handle and I started slacking the medication, which made things worst. My first Neurologist was a sweet elderly man who has patience for days. He knew my fears, so to convince me to decide on another medication, he used my fears against me. It was a ruthless way of forcing someone to decide, but it did work.
Of the various symptoms involved with MS, I did not suffer from pain in my early years. Unfortunately, during the past ten or so years, my pain issues have become increasingly more problematic. There has not been even a second, I have not experienced at least one form of pain. Considering it has been going on for so many years, there is a HUGE part of me that expects it and I can manage. Before I had MS, there were many types of pain I did not know existed.
Through the rest of this post I am going to explain the different types of pain I deal with 24 hours a day, 7 days a week without a break in between. The reason I am doing this today is that my pain levels have become more intense and now in addition to all the other pains, my right shoulder and arm hurt so bad I can barely move my arm. I know my pain has become worst because of the incredible amount of stress I am under, which I am assuming is why my right shoulder hurts too.
Although everyone has a different experience with MS, pain is a common symptom. Pain affects approximately two-thirds of people with MS worldwide and can impact their daily activities such as work and recreation, moods, and the ability to enjoy life. Most pain is a direct result of MS and is caused by damage to the nerves in the central nervous system. There are other forms of pain due to changes in the body due to MS, which could include experiencing weakness in your arms and legs, which forces you to walk differently causing pain in the back and hips.
Neuropathic pain stems directly from damage to the nerves in MS. Pain from weakness, stiffness, or other mobility challenges is thought to be Musculoskeletal pain. Neuropathic and musculoskeletal pain can be acute with a rapid onset and short duration or chronic, which starts gradually and stays persistent.
Neuropathic pain is miserable and, in my experience, not much helps ease the pain. This occurs due to “short-circuiting” of the nerves which carry signals from the brain to the body because of damage from MS. The pain sensation feels like burning, stabbing, sharp, and squeezing. The best way for me to describe this is, that it feels like spiders are having a constant dance party on my legs and feet. Neuropathic pain can be acute and chronic.
FOUR TYPES OF ACUTE NEUROPATHIC PAIN
Trigeminal Neuralgia- stabbing pain in the face or jaw area. This can be misinterpreted as dental pain. Most often it is unpredictable, so we do not know when it will occur, but it does come and go.
Lhermitte’s Sign- is a brief stabling, electric-shock sensation that runs from the back of the head down the spine and possibly into the arms and legs. This can manifest by bending the neck forward. It typically means there is or has been damaged to the cervical spine from MS.
MS Hug- is a squeezing sensation around the torse. This feels like a snake is wrapped around your body and refuses to let go until it takes the breath out of you. An MS hug is the kind of hug no one wants and is an invasion of personal space!
Paroxysmal Spasms- is a periodic and painful tightening of muscles. For instance, this can happen in your arm or leg several times throughout the day and night.
Chronic neuropathic pain is normally the continuance of acute pain. This is unpredictable and may be experienced daily. Several issues can increase the likelihood to experience this pain, such as stress, fatigue, illnesses, and becoming overheated.
Musculoskeletal pain with MS occurs because of weakness, stiffness or coordination struggles that change your walking or other mobility. This is often seen in the hips, legs, arms, and normally when muscles, tendons, and ligaments are immobile for a long period of time.
Headaches and migraines are other common symptoms of MS. Although I deal with numerous other forms of pain daily, I am unable to tolerate migraines. These put me in the bed with an ice pack for hours and often even when I try to sleep them away, they are still present when I wake up. I have dealt with pain for many years and it never gets easier, but I also know crying or giving up does not fix the issues. I just try to keep pushing forward the best I can.
Thank you for visiting my site today. I hope you found what I have shared interesting and that it helps you with anything you are experiencing. I hope you have had a safe and relaxing weekend. I am looking forward to reading your comments, which I will respond to as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Today we welcome Monday’s return and find the strength to tackle another week. As always the weekend went by in the blink of an eye and we are left with the short-lived memories, which I hope were wonderful and joyful. We need to view the week as a week filled with many amazing opportunities because that is what all weeks should provide. Sometimes, we need to create and go after the opportunities because they are not always clear.
Staying motivated on a Monday can be challenging, but we are all strong enough to do so. While finding the ability to stay motivated, we all need to remain and understand what it means to be humble. I believe the more we can be humble and understanding of others, the more motivated we will feel! I hope the quote I shared today offered you strength, motivation, and encouragement. I understand not looking forward to Monday and another long week of work can be, but the weekend will return soon!
Unfortunately, nothing much has changed with my constant migraines. They never get any easier, but I try to not let them control my life. Yesterday I woke up with a nasty migraine and it never got less intense all day. Of course, my sweet cats tried to help me feel better because that is just what they do. All animals, no matter how needy they are or how aggravating they can be are all just innocent little creatures filled with nothing but love!
Thank you for visiting my site today. I hope you had a nice weekend and you are prepared for the week ahead of us. It might seem like it is a lot time before the weekend returns, but we need to stay focused and time will pass quickly! I look forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!