Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Since Friday afternoon I have been battling with a nasty headache, which I think was more an evil migraine. It started when I was still working and I had to force myself through the last part of the day, which even though I work at home was difficult to make it until 5:00. I know some would say the migraine and pain came from stress, but I actually disagree with this. Yes, I did get a little worked up about a loan I was working because I was a little confused about what I had to do next, but I did get everything figured out and was fine.
I have been working with my new company for three weeks and I still love my job. During the initial few weeks after training, we are all supposed to work on the loans that are assigned to us, and then the team lead would review our work before we could proceed with changing the status to “complete”. Well on Friday while I was dealing with the start of my nasty migraine, my team lead told me I did not need to have my work reviewed anymore and could proceed on my own. I am not sure why I was so shocked by this because I do understand the work, but to be told this during the end of my third week was a good feeling and made me feel confident. This is the same team lead that told me during my second week on the job I was going to be his “rock star”, so I guess I have a lot to live up to!
When I did finally make it through my horrible painful day on Friday, I laid down with an ice pack on my head around 11:00 PM and did not really get up until late Saturday. Not only am I dealing with a migraine from hell, but my entire body aches. I do not know where this is all coming from. It has been incredibly hot in the south, but I do not leave my house so I don’t know why the heat would be causing me so many issues.
As I am trying to write this I can feel the pain starting back up again, not that it actually stopped it just eased up some. Dealing with pain is not easy and can cause some stress. Trying to understand why the pain has to be this severe is something that can’t be understood. Normally, I can deal with pain, but I am not able to deal with head pain.
Headaches/migraines will have me in the bed with an ice pack and nothing helps. It has been a frustrating weekend that is almost over. I can only hope the headache/migraine will leave me alone as the week starts. I promise I have done everything I know to get rid of the pain, but at this point, nothing is working. I am staying hydrated and even trying to eat.
Do y’all ever get massive migraines or pain in general? How do y’all deal with this? I would like to believe I am a strong person, but I am losing that strength dealing with all this pain. Any advice y’all may have would be greatly appreciated.
Thank y’all for visiting my site today. I do hope your weekend has been lovely, you have been able to enjoy it, and you have stayed safe. Please know that even though I am struggling with pain issues right now, I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
June is National Migraine and Headache Awareness Month. For June, the goal is to raise awareness, further educate those unaware about migraines and headaches, and show support to those that deal with these issues. Due to the vast about of information and to try to maintain length, there will be other posts with even more information about migraines and headaches.
Migraines are the third most common disease globally estimating 14.77% of the world’s population suffers from migraines. Approximately 38 million United States citizens deal with this pain. Of the American’s that battle with migraines, about 85% are women. The vast majority of migraine sufferers experience an episode once or twice a month, more than 4 million others endures chronic daily migraines. It is an exceedingly debilitating condition causing not just a simple headache but can come along with nausea, vomiting, visual disturbances, utmost sensitivity to sound and, light and tingling or numbness in the face. Nearly 25% of migraine attacks may include an aura, which is a visual disturbance that lasts less than an hour.
Unfortunately, children can be affected by migraines. Of the children that experience migraines they typically have their first episode before age 12. Even though at younger ages boys suffer more from migraines than girls, once in the adolescent year’s girls end up dealing with migraines more than boys of the same age.
Migraines are a crucial public health concern, but they continue to be misunderstood, under-diagnosed, and under-treated. More than half of migraine suffers are never diagnosed properly. Many that suffer do not pursue medical attention for their pain because like individuals battling other chronic illnesses, there are extremely high costs for medical services, minuscule support, and restricted access to proper quality of care.
While we are in National Migraine and Headache Awareness Month it is important to recognize the International Classification of Headache Disorders, published by the International Headache Society, which used to classify more than 150 types of primary and secondary disorders.
I will begin with primary headache disorders which are divided into four groups:
1. Migraines- I briefly touched on this at the beginning of this post, but allow me to give a slightly deeper description. A migraine headache is distinguished by throbbing and pulsating pain caused by an activation of nerve fibers residing within the walls of the brain blood vessels that travel within the meninges. Just to quickly explain, meninges are the three membranes lining the skull and vertebral canal and encloses the brain and spinal cord.
Migraine headaches are repetitive episodes of throbbing pain ranging from moderate to severe in intensity. These typically affect one side of the head at a time. If an episode goes untreated it can potentially last anywhere from 4-72 hours.
Various factors can trigger the migraine cycle to begin and could differ from person to person, but may include sudden weather or environment changes, too much or not enough sleep, strong fragrances, emotion, stress, overexerting yourself, loud noises, motion sickness, low blood sugar, skipping meals, tobacco, depression, anxiety, head trauma, hangover, certain medications, hormonal changes, and bright or flashing lights. The cause in 50% of migraine sufferers were foods and ingredients. A few examples of the foods and ingredients that can trigger a migraine are aspartame, caffeine, or withdrawal from caffeine, alcohol, chocolate, aged cheeses, monosodium glutamate, numerous fruits and nuts, fermented or pickled goods, yeast, and cured or processed meats.
The four phases of a migraine, which all can be apparent during an episode, are:
1. Premonitory symptoms occurring up to 24 hours before developing a migraine. These symptoms can include food cravings, incomprehensible changes in moods, unmanageable yawning, fluid retention, and escalated urination.
2. Auras occur in some people causing them to immediately before and during the migraine see flashing or bright lights. Other people may experience muscle weakness or a feeling of being touched or grabbed.
3. Headaches can start and gradually build in severity, ultimately becoming a migraine. However, it is possible to suffer a migraine without a headache.
4. Postdrome can occur after a migraine, which is when someone feels exhausted or confused. This phase can potentially last up to 24 hours before the individual feels healthy again.
Besides the two main types of migraines, I will provide details on; there are eight others forms people may experience. I will share only the names of the additional types in this post but will do another post with the details in the next few days. The eight other types of migraines include Abdominal migraine, Basilar-type migraine, Hemiplegic migraine, menstrual-related migraine, Migraine without headache, Ophthalmologic migraine, Retinal migraine, and Status Migrainosus migraine. The following are the details regarding the two main migraine types.
1. Migraine with aura, also known as a classic migraine. Symptoms can show about 10-60 minutes before the headache begins and last no more than an hour. The symptoms may include visual disturbances, difficulty speaking, numbness, or muscle weakness on one side of the body, a sensation of tingling in the bands or face, nausea, loss of appetite, heightened sensitivity to light, sound, and smell.
2. Migraine without aura also knows as a common migraine. The symptoms with this type include headache pain that happens without warning and typically felt on one side of the head, nausea, confusion, fatigue, blurred vision, altered moods, and an intense sensitivity to light, sound, or noise.
The most common type of headache is a tension headache, which was previously known as a muscle-contraction headache. This type of headache suggests the role of stress and mental or emotional pain triggers pain and contracting muscles in the neck, face, scalp, and jaw, missed meals, depression, anxiety, not enough sleep, or sleep apnea.
The pain that accompanies tension headache can range anywhere from mild to moderate and anything in between. Typically this feels like constant pressure is being forced onto the front of the face or to the head or neck. It can also feel like something is being tightened around the head and is felt on both sides of the head. Those that suffer from tension headaches may become very sensitive to light and sound, but do not go through the pre-headache aura that comes along with migraines. Tension headaches will begin to fade once the period of stress or other related causes ends.
Tension headache tends to begin during adolescence and reach the utmost activity in the 30’s. These headaches do affect women somewhat more than men.
Tension headache has two different forms:
1.Episodic tension headaches happen between 10 and 15 days each month and can last anywhere between 30 minutes to several days. Even though the pain is not disabling, the intensity of pain tends to increase with the regularity of the episodes.
2.Chronic tension headaches often happens more than 15 days monthly over 3 months. The pain involved with this form of headache is consistent over days or even months, it is felt on both sides of the head and can become extreme and disabling.
Both depression and anxiety can be the source of tension headaches. These can occur in the early morning or evenings when conflicts at home or work are expected. The various other causes include posture that strains the head or neck muscles, degenerative arthritis in the neck, and temporomandibular joint dysfunction.
Cluster headaches are the most extreme form of primary headaches. This form of headache involves unforeseen, exceedingly painful headaches occurring in clusters. They typically occur at the same time of day and night for several weeks at a time. Cluster headaches affect one side of the head, frequently behind or around one eye, and may lead up to migraine-like aura and nausea. The pain involved peaks 5-10 minutes following the onset and persists at the same intensity up to 3 hours. Some will endure restlessness and agitation, changes in heart rate and blood pressure, and increased sensitivity to light, sound, or smell.
Cluster headaches can start at any age but typically begin between 20 and 50 years old. This form of headache commonly affects that smoke more than those that do not smoke and is seen more frequently in men than women. Cluster headache episodes do not last as long as migraines. Ordinarily, people will have 1-3 cluster headaches a day, with 2 cluster periods yearly, possibly separated by months free from any symptoms. Cluster periods are commonly inaccurately thought to be allergies because they do occur seasonally, normally in the spring or fall. It has been suggested that inconsistencies in the body’s sleep-wake cycle could be a cause of cluster headaches.
Thank you for visiting my site today. I am sorry this post was so incredibly long, but there is a lot of important information that needs to be shared. In my next few posts I will explain the miscellaneous primary headache forms, secondary headache disorders, treatments and diagnostics. I do hope the information in this post was helpful and offered some sort of comfort. Personally, I deal with migraines and tension headaches far too much and understand many others do as well. I want to encourage your comments because I know they will be amazing and even help others, including myself! Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!
I have lived with Multiple Sclerosis for almost 20 VERY long years. During this time I have experienced pain, numbness, dizziness, vision problems, the infamous MS hug, and so much more. The only thing that can really get me down and unable to do anything is the headaches or migraines whatever they may be.
Yesterday all I wanted to do was write, but I wasn’t able to due to a nasty and quite evil migraine. While we are going through this awful pandemic of the coronavirus, I have been told by two great women, my mother and mother- in-law, I should stay in the house because of my weak immune system. While I do understand that grocery stores and other places that have a lot of people aren’t a good idea for me, I hate knowing I can’t do anything. I guess it would be much easier if I was making this decision and it not be forced on me. Even the morons in the government are saying people with underlying issues should not go into public places. It is all I can do to not disobey the government idiots, but my health is more important than my distaste of them.
Thankfully, today my headache/migraine is much better and I am able to write again. I plan to write and read as much as I can while my headache/migraine is at bay. I only hope it stays this way because it is the only thing I can do that I enjoy.
I do want to share a little information about migraines with y’all. All the information I am providing is the information the Migraine Foundation had discovered.
Migraines are the 3rd most prevalent illness worldwide
1 in 4 households have someone with migraines
Migraine sufferers are 18% women, 6% men, and 10% children
Migraines are most common between the ages of 18 and 44
90% of migraine suffers have a family history
Migraines are more than just a bad headache and suffer from more symptoms including
Typically a severe throbbing recurring pain, usually on one side of the head, about 1/3 of attacks will be on both sides of the head
Attacks often have one or more of the following disabling symptoms: visual disturbances, nausea, vomiting, dizziness, extreme sensitivity to sound, light, touch, and smell, and tingling or numbness in facial extremities
About 25% of migraine sufferers also have a visual disturbance called an aura,
which usually lasts less than an hour
15-20% of attacks have other neurological symptoms before the actual head pain starts
Attacks usually last between 4 and 72 hours
Most people don’t understand how serious and incapacitating a migraine can be
6th most disabling illness worldwide
Every 10 seconds, someone in the United States goes to the emergency room with complaints of head pain, and approximately 1.2 million visits are for acute migraine attacks
Most sufferers experiences attacks one for twice monthly, more than 4 million people have chronic daily migraines, with at least 15 migraines a day each month
More than 90% of sufferers are unable to function during their migraines
Migraine is a chronic disease that significantly diminishes a person’s quality of life
More than 4 million adults experience chronic daily migraine
Medication overuse is the most common reason why episodic migraine turns chronic
Depression, anxiety, and sleep disturbances are common for migraines sufferers
Over 20% of chronic migraine sufferers are disabled
I do hope this information was helpful for you, but I also hope non of you ever have to experiences this miserable pain. This probably won’t sound great, but if I had a choice between the pain I was in yesterday and death, I think death would have won. Like I already said, I can deal with pain and keep going in life, but headaches/migraines will keep me in bed with an ice pack that melts too soon, unable to eat, and an irritability that makes me just as evil as the pain.
Thank you for visiting my site today. I appreciate you taking the time to read and will look forward to your comment. Please never forget that I am always sending y’all LOTS of love , comfort, and many positive vibes!
Happy Monday y’all! The alarm clock going off on Monday morning is never the most pleasant sound, but it is the start to a new week to do anything we might have missed out on last week. On another note, the weekend does seem to get shorter and shorter each week. Of course this past weekend I dealt with a massive migraine that I thought was literally trying to kill me! My guess is that my miserable migraine on Saturday evening into Sunday morning was all due to the rain we had, but I tend to always blame the rain for anything bad that happens. There was so much rain, my front yard looks like a small pond, but without the ducks! Last week, there was one day that included three season in a 24 hour period! I am not even joking it started off cold like winter is supposed to be, by noon it was more like spring and by 3:00 it was summer! In all my years I have never experienced weather that was so confused. I am starting to think that Mother Nature is going through something pretty serious and she needs help!
Today, many companies are closed due to it is Martin Luther King Jr. day and I fully support this holiday. Unfortunately, my company is not closed so I will be at work like normal. I think this man deserves to be remembered and respected for all the sacrifices he made and the determination he held onto!
Martin Luther King Jr. did some amazing things for humanity and equality and sadly it seems too many people have forgotten his work. There is far too much hatred and racial injustice going on and it is 2020. I feel that we need to evolve with the times and NOT continue to devolve. In my opinion, all the American’s that have decided it is okay to discriminate against someone that isn’t white, is disrespecting the great Martin Luther King Jr. and it just isn’t right. We all need to remember the words this man spoke and the fight he was so passionate about, not just today, but everyday! There is no one person of any race, sex, religious beliefs, sexual orientation and so on that is better than another! We are all human and we all have feelings!
My rant about Martin Luther King Jr. can stop now and I will carry on with my normal Motivational Monday quote, because I have a pretty amazing quote I want to share with y’all today! I believe this quote is extremely powerful and can serve to help us all remember that even the smallest steps we make in any direction, can have a huge impact on our lives. Each and everyone of us has great strength, after-all look what we have to live with! I do hope this quote will start your week off knowing how amazing you are and what you are capable of! I of course really look forward to reading what you thought about it and if it inspired you to keep moving!
Thank y’all for visiting my site today. I hope your weekend was amazing and you felt well enough to enjoy each moment of it! Hopefully your day goes great and there is not anything holding you back! Please never forget that I am always sending y’all LOTS of love , comfort, and many positive vibes!
It is the first Saturday of 2020 and I hope your weekend is starting off great. I have managed to start 2020 off with a migraine that just will not ease up. My migraine started while I was at work on Thursday and it was horrible. It wasn’t easy but I did get through the day. I spent Thursday evening miserable on the couch with an ice pack on my head only hoping the pain in my head would ease up. When I woke up Friday morning, I could still feel the pain in my head but forced myself to go to work. Considering I am still new at my job I couldn’t call out sick already, but did end up leaving early. I really hate that I had to leave work early and I have only been at my job 3 weeks, but it was something I couldn’t avoid. People always want to ask, “What do you think is causing your migraine?”That is one of the most irritating questions, especially when I am in that kind of pain. The only thing I can think of that could have caused the migraine is it was raining. I do tend to get more headaches/migraines when it rains. Unfortunately it looks like it is going to rain a lot over the next week.
I have been thinking a lot about what I want for 2020. One thing I am focused on is improving and building my writing skills. Y’all already know I want to get into freelance writing and even though it isn’t going to happen overnight, I will accomplish this goal. I am not rushing this goal because I want to be sure everything is done right. I need to go through the posts I have done over my years of blogging and pick a few of my best posts to add to my writing portfolio. Once I figure out which posts I think might be some of my best, I might ask y’all for your opinions because I do value what you think!
I recently received “365 Writing Prompts” from The Writer’s Digest. I want to try doing all 365 prompts because I think it will help build my writing skills. I hope that by continuing to blog as much as I can and completing the writing prompts I will be better equipped for a freelance career.
We only have one chance at our life and should always work towards making our dreams come true. Of course there are times when life will get difficult and we might want to give up, but we have to continue to fight for what we want! There will be many times we feel we have failed and just do not want to try anymore. I have said this before but I think it is worth saying again; the only time we truly fail is when we give up. I made a promise to my dear sweet Poppy a long time ago which was I will never surrender to Multiple Sclerosis and I will never give up on my dreams, I plan to keep that promise to him. We are the only one that can make our dreams come true, no one can do it for us.
This is my first post for 2020 and I plan to continue blogging. I am unfortunately starting 2020 off behind on reading your posts, but I will get caught up and hopefully not get behind again! Working full-time and then battling with migraines does make it hard, but I am determined to get better with it. I want to continue trying to spread positivity and share great content with y’all!
Thank you for stopping by my site today! I hope you are enjoying your weekend and you are able to do what brings you the most joy! Even though I know it isn’t easy, especially when you live with a chronic illness, I hope you hold on tight to your dreams because I know you have the power to make your dreams become your reality! Please never forget that I am always sending y’all LOTS of love , comfort and many positive vibes!
Our relationship started so many years ago and let’s be honest it has never been a healthy relationship. I have tried to break free from you for years, but somehow you manage to always find a way to sneak back into my life.
At this point I do not even remember exactly
when all of this pain started. It is both sad and crazy it has been that log and I can’t pinpoint a day! It seems as though you just creeped on me until you pretty much consumed my days. You have always been an unwelcomed intruded who wanted to invade my life and almost control me. Unfortunately, the harder I fight you, the more persistent you are.
When I sit here thinking about our history I do know you slowly started causing me pain in my only my legs. While having consistent pain in both legs wasn’t easy, I felt like in a strange way a little more control of you. I don’t remember you causing me as many tears back then, but this was just the beginning of a long relationship.
As our very toxic relationship progressed, my pain travelled through more areas in my body. Let’s see, the next area you tried to take over was in my mid to lower back. This was still early on and was absolutely horrible. It seemed like no matter what I did, I was still in excruciating pain. Nothing was really helping this type of pain, but early on a heating pad did help some. Of course I still deal with this now, but it is SO much more intense. Yes, heat does still help some, but not as much as it used to. I do the best I can to ignore you, but you just never take a break!
In addition you are trying to make my massive headaches/migraines to take me out of commission because you know it is the only pain I can’t handle. These miserable headaches/migraines have become more frequent and much more severe! The only thing that seems to help a little is a dark, quite room with an ice pack on my head for hours. Unfortunately, I can’t really do this while at work and I have to go home early.
These days not only do I feel you in my legs, my mid to lower back and the head, but you are now trying to attack my neck, shoulders and arms. Did I just not pay you enough attention and that upset you? Do you just need me to acknowledge you and allow you to take the wheel of my life? Well this isn’t going to happen because I am not going to allow you the control me anymore.
Oh and I almost forgot the lovely MS hug! What is the point of this anyways? That horrible feeling that the life is being squeezed out of you is so mean! You already know that nothing helps this at all, so why force me to deal with at various times?
All the years that have gone by, I need to break free from you. It is now time to separate and just END this relationship. I am sure you think I am going to give up, but I refuse to! Our relationship is OVER and you need to just walk away and accept it! Please leave me alone!
Goodbye pain, this is the end!
Thank y’all for visiting my site today and reading my letter to pain. I think I have lived with this pain long enough and it is time for it to stop. I have been reading more books about MS and even though I have lived with this illness for almost 2 decades, these books were helpful. I do believe they would be beneficial for anyone that either lives with this illness or has someone close them with MS. I think the books I have read give a pretty good explanation of this unpredictable illness. Please never forget that no matter what I am dealing with I am always sending y’all LOTS of love , comfort, and many positive vibes!
Good evening y’all! I hope you are having a good week so far and hope it stays pleasant! Just think, we already made it through two days of the week, so we are almost half way there!
Y’all already know I have been battling with what I thought was a nasty stomach bug, but after doing a little research I do not think that is the case anymore. Of course I haven’t seen a doctor about it because I do not have insurance, but I think I figured it out on my own. I am about 99.9% sure I have developed Gluten Intolerance. I guess that is actually a good thing because understanding what is going on and understanding how to handle it will provide me with some relief or at least I hope it will! Obviously I am not a doctor, but I think I am familiar enough with the body I have lived in for almost 38 years. I am going to share with y’all what I have learned and please if you have any other helpful tips or ideas, please let me know!
I first want to clarify a few important details I have learned! Gluten Intolerance is often confused with other issues, like Celiac Disease or food allergies, but there are some differences and similarities. Gluten is a protein found mainly in wheat, barley and rye. This protein can cause digestive problems like gassiness, abdominal pain or diarrhea. With food allergies, the immune system overreacts to a particular food causing various reactions and levels of severity. Celiac Disease is an inherited autoimmune disorder that can damage the small intestines, but Gluten Intolerance almost mimics this.
Signs & Symptoms of Gluten Intolerance:
Bloating: This is when the belly is swollen or full of gas after eating. This is very common and does occur in 87% of individuals with Gluten Intolerance.
Diarrhea, constipation and smelly feces: About 50% of individuals with gluten intolerance deal with diarrhea and 25% experience constipation. This is when you would experience inflammation in the gut after eating gluten. This damages gut lining, leading to poor nutrient absorption.
Abdominal Pain: This is something else that is very common with Gluten Intolerance. 83% of individuals living with this intolerance experience abdominal pain.
Headaches: About 10-12% of the Western population experiences migraines. People with Gluten Intolerance are prone to migraines.
Feeling Tired: This is also being very common, leading to 60-82% of individuals with Gluten Intolerance experience this. People with this condition are prone to fatigue and tiredness, having very low energy. Gluten Intolerance can cause iron-deficiency anemia. This is a condition in which blood lacks adequate healthy red blood cells. Red blood cells carry oxygen to the body’s tissues
Skin Problems: There is a blistering skin condition called Dermatitis Herpetiformis, which is a manifestation of gluten-sensitive enteropathy, commonly known as celiac disease. This is not as common and can improve once on a Gluten-Free Diet!
Depression: Depression is not as common and only affects 6% of those living with this intolerance. People with digestive issues seem more prone to both anxiety and depression.-Even though depression is not too common, there are a few theories for how Gluten Intolerance can lead to depression.*Abnormal serotonin levels. Serotonin is a neurotransmitter allowing cells to communicate and is commonly referred to as “Happiness” hormones.
*Gluten Exorphines, these peptides are formed during digestion of the gluten proteins. The gluten proteins may interfere with the Central Nervous System, which may raise the risk of depression.
*Changes in gut microbiota. This is increased harmful bacteria and decrease beneficial bacteria increasing the risk of depression.
Unexplained Weight Loss
Iron-Deficiency Anemia: This causes symptoms such as low blood volume, fatigue, shortness of breath, dizziness, headaches, pale skin and weakness.
Anxiety: This can affect anywhere from 3% to 30% of people worldwide. Involves feelings of worry, nervousness, unease and agitation. People with gluten intolerance are more prone to anxiety and panic disorders.
Autoimmune Disorders: Even though Gluten Intolerance is a separate issue from Celiac Disorder, I thought it would be good to share this as well. Celiac Disease is an autoimmune disorder causing your immune system to attach the digestive tract after consuming gluten. Typically people with gluten intolerance also have another autoimmune diseases to cope with.
Joint and Muscle Pain: There is a theory that people with Celiac Disease have a genetically determined over-sensitive or over-excitable nervous system. Gluten exposure may cause inflammation in gluten sensitive people. This inflammation may result in wide-spread pain, including joints and muscles.
Leg or Arm Numbness: Neuropathy symptoms involving numbness and tingling in the arms and legs.
Brain Fog: This issue affects up to 40% of those with Gluten Intolerance. Forgetful, difficulty thinking, feeling cloudy and mental fatigue.
After learning more about this the things I deal with almost make more sense in a way. Battling with stomach issues for over on month, numerous headaches/migraines, constant feeling of fatigue, obnoxious levels of anxiety, nervousness, worrying and quick agitation, dizziness at random times, weakness, joint and muscle pain, numbness and cloudiness in my mind. I always blamed so many of these symptoms on Multiple Sclerosis and maybe that is still the case, but maybe it is a Gluten Intolerance causing more of it.
I am doing my best right now to change my diet, but it really isn’t easy. I bought several gluten-free products at the grocery store, clementines and carrots, but honestly have not seen much of a change. Logically, I have only been trying this for a couple of days and I know it takes time for this type of change, but at least I am trying! Do y’all have any advice you would be willing to share? I know you always have great ideas and fantastic suggestions that I do appreciate!
Thank y’all for stopping by my site today and I am sorry this was a little longer than most of my posts, but there was so much information to share. I hope you have a lovely and relaxing evening and of course I hope you are feeling well! I know it often takes me longer to respond to your comments, but I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love , comfort and many positive vibes!
I have always thought it was a little crazy and extremely frustrating that medications meant to slow the progression of illnesses down, are accompanied by a long list of possible side effects. I know that the Gilenya I take daily is supposed to slow the progression of my Multiple Sclerosis, but it has a really LONG list of potential side effects and at one point that was what pushed me to want to make a change in my treatment plan.
The middle of last year I was having so many issues with terrible sinus headaches and migraines that I wanted to find out what was causing them. After reviewing what side effects Gilenya posed, I saw somethings that were common was headaches and sinus troubles. I was not just looking the side effects up on Google, but I was on Gilenya’s actual website, so I took this very serious as I am sure most people would. I went to my doctor with these concerns and she pretty much dismissed my thoughts claiming that it was not all that common with this medication and that I shouldn’t be doing this kind of research because it was “false” information. I argued back asking how it could be false when it was on the manufactures real website!? Of course I was frustrated that my valid concerns regarding my health was being ignored and not even willing to discuss more at that time, so I decided to ignore her medical advice and demanded that I try a new medication immediately. It wasn’t until I told her there was another oral medication I read about that I thought would be better for me she finally decided it was worth her precious time to have a conversation with me. She tried her darndest to use the fear tactic, which of course wasn’t working well with me and only caused me to question her logic further. I know it sounds crazy, but I was completely convinced that she was receiving kick-backs from the drug company and me not changing medications would continue to be financially beneficial to her.
In preparation to change my treatment plan from Gilenya to Tecfidera I discontinued the Gilenya last July. I was required to be off medication completely for 6 weeks, so all the Gilenya I had taken needed be out of my system and allow the Tecfidera to be able get into my system. In early September I started on Tecfidera which again is an oral medication. During this time my MS did not get better, but much worse! I guess MAYBE the doctor was correct when she said Tecfidera wasn’t going to be strong enough for me or maybe I had the nasty relapse because of ALL the stress I was under. I was so worried about the headaches and the fact that Gilenya could have been the cause and then even more concerned that my MS was progressing way too soon in my life. Whatever the cause was the MRI I had in early October was HORRIBLE, landing me right back to the drug I was convinced was causing my headaches!
It still doesn’t seem fair to me that we have to make the decision if we would rather deal with the side effects of these so-called helpful drugs or be disabled. As difficult as it is to deal with the massive headaches/migraines, I would much rather deal with them rather than lose my normal abilities, like walking without assistance. I still do not think it is right for anyone to have to make a decision like this, but I guess it is what it is!
I have been back on the Gilenya for a little over a year now and I do still deal with sinus trouble and migraines, but at least the MS hasn’t to have progressed. I do think that until there is a cure for MS, which I must believe will happen in my lifetime, I will not be changing medications! Now that my husband and I have completed our move, I am searching for a new MS Specialist, who will hopefully be more knowledgeable and have much better bedside manner. I know I have already shared this with y’all, but I am NOT a fan of my previous specialist. As crazy as this may sound, I want a specialist that is an older gentlemen because I have found they are more understanding and considerate. Of course going with an older person, I run the risk of them retiring, like two of my previous specialist did and I absolutely LOVED them! I am sure that with the determination I have, I will find one that is best for me and my personality. I guess it shouldn’t be as important to have the warm and fuzzy with a doctor as it is for the doctor to be knowledgeable, but I need to feel comfortable with them in order to trust the doctor.
I always appreciate you taking the time to stop by my site today and I always love reading your comments! I hope y’all are having a nice weekend and you are feeling as good as you possibly can! I must say having a long weekend is absolutely wonderful and I have been able to rest, but still do things that needed to be done! Please never forget that I am always sending y’all LOTS of love, comfort and many positive vibes!
The world seems to keep spinning around me so fast, but I feel like I standing still. I think it might be important to just accept the things in life that we have no control over and just embrace life for what it is. There really is so much about life that we might want to change, but I think whatever we might be living with or dealing with is in front of us for a reason. The reasons might be unknown, but there are reasons that we will discover someday!
If you sit down and really think about the way your life has played out, is there any outcome you would want to be different? All the struggles we might have encountered have not made us weak by any means, but they have all built our strength to continue on fighting a good fight! Sure none of us want to have a chronic illness or financial struggles or anything that might appear to be a negative aspect of life, but if we did not go through all the trials in life who would we be? I would like to think that everything we go through in life creates who we are and how we treat others, but maybe we would still be the same person if we did not go through any hard times. No one can say and be 100% sure!
Personally, I have always been very empathetic towards others and sympathetic to other’s needs. Everyone’s thoughts and emotions matter to me! I guess I am and probably always will be a very sentimental and sometimes overly emotional person. The way I am now has not changed since I was diagnosed with Multiple Sclerosis, I am just me!
There are so many people we all encounter that never learned how to be empathetic, which if you think about it is pretty sad for them. I guess for some people, especially in the world we live in today, if you have never experienced a life altering illness that causes many different issues, they are unable to understand. It is okay for people to not fully understand, but they should never judge another because how they say they are feeling. Pain is VERYREAL! Migraines are VERYREAL! Instability when walking is VERYREAL! Mood changes are also VERYREAL! Everything we deal with in life is VERYREAL! None of us asked to have a chronic illness and I am sure we all wished we didn’t. But considering we have one, we face the world with a different perspective that involves a lot of acceptance and willingness to make changes at a moment’s notice. Our days are typically never the same, but most of never complain about it, we just manage it the best we can.
Basically I have taught myself and I am still learning how to accept the fact that I have no control over many things in my life. I know I can control how I view situations and how I react to them, but that is all! As a person that might have some control issues, this isn’t easy for me. I have always had a strong desire to make the lives of those I care about better. Learning that I have NO control over how someone else’s life works out for them is hard! I have learned that there isn’t anything I can do to make life easy for anyone because I do not think life was meant to always be easy! We all just need to live our life to the fullest and never dwell on what we think or wish would happen!
Thank y’all for visiting my site today! I always appreciate you taking the time to read my sometimes random thoughts and really LOVE reading your comments! I hope y’all are having a wonderful weekend and I hope you are feeling well. Please always know that I am sending y’all LOTS of love and comfort!
Good morning y’all. I am so sorry I have not been able to respond to all of your great comments from yesterday and today. I started having a terrible migraine on Sunday afternoon, but thought it had eased up enough to go to work yesterday. I was very wrong about my migraine being better because while I did work yesterday, I started feeling the pain ease back in. Even one of my co-workers looked at me and said “Alyssa, you look terrible!” I did manage to work for six hours, but when I came home did not leave the bed. The massive migraine brought all of my pain to the extreme! Unfortunately, I am home from work today to try to get better. I will do my best to start responding to your comments, but please be patient with me I am still feeling pretty darn horrible!!
I certainly hope you are having a good day and I hope you are feeling okay. Thank you so much for taking the time to visit my site and leave me great comments. Even though I am feeling pretty bad I am still sending y’all LOTS of love and comfort!