Lesion Party

discouraging.jpgFor the past few weeks it seems that the issues I have had with my legs, arms and back has increased drastically! Now like most of us I was curious as to what could be causing this increase of pain, tingling, burning sensation and pins and needles, so I looked it up on Google. Oh my word looking things up online is almost worse than dealing with what the doctors have to say! Honestly the main reason why what I read online was disturbing is because it was pretty close to what I already suspected, but there really is something about reading it that makes it a little more upsetting.

It has been in my overworked and mildly stressed mind for weeks now that these issues are being caused from new lesions or those that were already present are active now. It shut down the partydoes not seem to matter if I am resting or moving around, the pain does not just go away! This possible lesion party that is going on in my body needs to be shut down! This party is more like a hostile takeover of my ability to live pain-free rather than a happy time with friends having fun like most parties are!

With all of the different issues I have been fighting with for far too long and keeping it from my doctor, today I finally have had enough and sent a message to my doctor to see her recommendations would be. Y’all already know that I completed paperwork last week to hopefully receive MRI assistance, as I do realize that is what is going to be needed, but I am still waiting to hear back about that. Do you just wish these doctors could hear what we are going through, make a true educated assessment and not have to go through the MRI ordeals? I personally think what we are suffering with could be something a true and competent specialist could easily figure out what is causing it and diagnosis the issue.

With all the said, I ended up staying out of work today because of how I was feeling. Even though my legs did not feel stable enough, I did get up when my alarm went off this morning  and made an attempt to try getting ready for work. However, when the short distance from ribbon-e1528247275292.jpgour room to the bathroom felt like 10 miles, I knew anything more would be too hard on my broken body. Crazy thing is I did rest all weekend, but it did not help at all! It really seems like rest hurts, moving hurts and basically anything I do is painful so what do you do when that happens?

I certainly hope y’all had a good start to the week and I hope you are feeling well. I appreciate you taking the time to visit my site today and your comments are always appreciated and encouraged. It may take me a little longer to respond just because it is a difficult day, but I promise I will respond! As always, no matter what I am going through I am sending y’all LOTS of love and comfort!

Love

❤Always, Alyssa❤

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Does pain cause you to be angry?

Good morningGood morning y’all and happy Wednesday! Thank goodness we are half way until the weekend is back! Are you having a good short week? When my office is closed on Monday, don’t get me wrong I love the day off, but I end up confusing the rest of the days of the week and being a day behind! Heck Tuesday morning I thought it was Monday, but I was thrilled to find out when I got to work it was Tuesday! I guess that is one of lives many pleasures! During a normal week, my mind is always a day ahead of time, so usually disappointed! 

Anger, pain and depression are three negative experiences that are bonded so closely together it can almost be impossible to know when one of these feelings ends and another begins. Pain can impact our emotions so deeply, producing a wide range of emotions from sadness, to anger to possibly rage! The feelings of anger are so often anger and painmisinterpreted as hostility because others may not understand what we are dealing with at any given time.

Anger can actually be a motivating force to put things into action, instead of just being all talk and complaints. For instances, when we are dealing with an insurance company and all the many hurdles to get through, just to get a needed procedure. Or even when trying to get our doctor to listen to our requests and not just pushing our needs to the side so they can move onto their next patient.

There are numerous physiological effects we can have from anger. Anger can be felt in our chest, head and the entire body! This could mean that the anger we feel increases the pain already felt, which makes so much sense to me. I started writing this because I have been dealing with SO much pain lately in my EmilysQuotes.Com-anger-pain-negative-sad-Eckhart-Tollelegs, back, arms and head and that pain is causing me so much frustration which quickly changes to ANGER! Logically, I know that being angry with my pain is not going to solve anything, but it just keeps happening without fail! I am typically a very calm and ❤caring person, but lately I feel like I am losing my temper so much faster and a lot easier! Today I had a co-worker, who let me just say has already made some really negative comments about me in the past, stop me to ask if I was okay because I seemed to not be walking as she thought would be “normal”. Considering my legs have been in a lot of pain lately, I do walk a little slower and refrain from using my right leg when I can, but pointing that out was not necessary. Could she have been being caring? Probably not! But I was hateful with my response when I said “I am fine!”! She had to push the issue a little further causing me to say once again, “I am FINE”, with a lot more force before walking away. Was I wrong in my reaction? Or was it the pain and frustration talking? Who can really say? But I do not feel like I was wrong and I do think it was the pain and frustration talking!

Do you personally find when you are in pain you have less patience for dealing with pain and angerothers? If so, how do you control your emotions and remain pleasant to others? I know I sometimes am shorter with my poor husband❤ and he  does not deserves that at all, but he also knows that is not me and I do not mean to be short with him. However, I still will feel bad about my less than ❤sweet attitude! I guess the vows are hold true, but maybe we should have added, with attitude and not as well!

Thank y’all for taking the time to visit my site today! I always appreciate you taking the time to read my posts and I really love to read your comments, which I will always respond to as quickly as I can! I hope you have a great day pain-free day! Please never forget that I am sending y’all LOTS of ❤love and comfort always!

My signature heart

❤Always, Alyssa❤

 

My Letter to Multiple Sclerosis

Good Morning

Good morning Y’all! I hope you are having a great weekend so far and you will be able to enjoy your Sunday! After all the topics I have been able to address, I managed to forget one of the most important topics. While reading several different blogging forums, I thought it would be a good idea to address the thing that brought me to blogging in the first place, my Multiple Sclerosis. So today I am going to share with you the letter I would love to send to this illness. This might be a little longer and full of emotions, but it is also very real! I hope you enjoy this! Maybe this could be something for you to try, write a letter to your illness!

Dear my not so loving friend Multiple Sclerosis,

You invaded my body about 18 years ago and just stuck with me without fail. We have been through many relapses together over the years; all the while you tried to defeat me. But let’s face it, I will not surrender to your persistent bad behaviors and will not allowms 3 you to keep me down for too long.  

In the beginning of our “so-called friendship”❤, you tried to take my vision from me, which let me just say was not a good way to become the lifelong friends we were forced to be!! Of course it took a little help from the not so exciting steroids, but my vision thankfully returned to normal! You have tried over and over again throughout the years to take control of my legs by causing me so much pain and numbness, but I am still able to walk without the assistance of what I think you were aiming for. You have caused me so much pain and suffering for way too many years, but I still continue to fight back with all my might because I never plan to give up and allow you to control my life! The truth is, you are the one losing our constant battle and I am shockingly enough the one winning the war!

Let us not forget the fact that you have chosen to take up to residence in my brain causing many other issues for me! There are the several times a week debiting only choice we haveheadaches which normally end to severe nausea. The headaches you decided to inflict me with make it nearly impossible to do anything at all! It was also decided by YOU to cause some brain fog and dizziness, making me feel confused and frustrated. The horrible back, neck and leg pain is more than enough for me to live with, don’t you think? Please get out of my brain because you are being EVICTED IMMEDIATELY!

I bet you thought you were being clever by giving me hugs every now and then! Well I do not like or appreciate your unwelcome hugs! So in the future, please do not do that! Just in case you did not already know, your hugs are very painful!

I guess during the 18 years we have spent together, you have become the ❤friend that I never asked for or wanted and you just will not go way to give me a break. You are pretty much worse than the most obnoxious uninvited guest that will NOT LEAVE no matter how many hints you are given! The only thing I can do now is just embrace the fact that you are just here for the long haul and will surface whenever you please without so much as a warning which let’s face it is really inconsiderate! 

Oh and what about all those different medications you want me to take? Do you not realize just how much some of these medications can and do affect a person’s body or do you just not care? Why must you be so complicated that the smartest minds of the world can’t seem to find a way to make you vanish? They sure can create so many drugs to “slow” the progression of the illness down but not make the illness stay in a remission Get MS montage plate picstate FOREVER! I am starting to think that you, the malicious drug companies and the not so compassionate greedy insurance companies are working closely together to do nothing more but make LOTS OF MONEY yourselves!

So my dear not so sweet friend MS, now that you have heard a little from me about how you make me feel, when are you going to move out of my body allowing me to be free of you? I think it is long since time to depart from each other!

Thank y’all for visiting my site today❤! I really hope you enjoyed reading the letter I would love❤ to be able to send off to Multiple Sclerosis. Of course I would love to read your thoughts on this, so please let a comment for me and I will respond as quickly as I can. I really hope you are feeling well today and can enjoy your Sunday! As always remember that I am sending you  LOTS of love💞 and comfort!

My signature heart

❤Always, Alyssa❤

 

Disability or NOT?

Disability-bannerThere are many people out there that qualify and truly need to be put on disability and there is absolutely nothing wrong with that. When someone makes the decision that they are not able to work any longer and their doctor agrees with them, then you just know it is the right time for taking that route in life. Do some people actually take advantage of this? Absolutely and that is just really sad and an insult to those that do need disability! No one can really be pushed or forced to file for disability as it is a very involved process and does require a lot!

Disability does not have to be permanent, but you must be totally disabled as is defined by the Social Security Administration. The Social Security Administration (SSR) actually anticipates that the condition can improve at any point in time! Aren’t they thoughtful and optimistic? Therefore this requires those that were awarded benefits to participate in a process called Continuing Disability Review (CDR). The reason for CDR is to determine if there have been any improvements in the claimant’s medical or financial circumstances. All approved claims are subject to “diary review dates” after one, three and seven years. Now this does depend on the condition the disability was awarded for and the probability for improvement. All that is required to avoid interruption in disabilitydisability benefits is medical documentation that the claimant still suffers from the impairment the disability was originally awarded for and that there have not been any improvements.

The SSR tries to make this process a little easier for those filing, so their list of impairments are broken down by bodily systems or functions:

  • Musculoskeletal Problems:
    • Back conditions and other dysfunctions of the joints and bones
  • Senses and Speech Issues:
    • Vision and hearing loss
  • Cardiovascular Conditions:
    • Chronic Heart Failure
    • Coronary Artery Disease
  • Digestive Trace Problems:
    • Liver Disease
    • Inflammatory Bowel Disease (IBS)
  • Neurological Disorders:
    • Multiple Sclerosis
    • Cerebral Palsy
    • Parkinson’s Disease
    • Epilepsy
  • Blood Disorders:
    • Sickle Cell Disease
    • Hemophilia
  • Mental Disorders:
    • Depression
    • Anxiety
    • Schizophrenia
    • Autism
    • Intellectual Disability

The medical evidence that needs to be shown must be recent and encompass the time period when the disability started to present is:

  • Physical Examination
  • Treatment notes or reports
  • MRI (depending on illness)
  • CAT Scan (depending on illness)
  • X-ray (depending on illness)
  • Mental Health Notes
  • Blood work notes

 

If I am being realistic and logical, I know that living with a chronic illness disability may be involved in my life at some point. I mean heck, I know the Multiple Sclerosis is not Montelgoing to magically disappear😿, but I do not have to own this until it is absolutely necessary, which is not right now❤!! I believe if I continue living my life in the best way possible, control my stress (which we all know I am really bad at), and take the medication that is best for my body chemistry, I am doing all I am able to control the progression of this illness💞! I am only 36 years old and have been living with this illness for almost 18 years, besides the constant pain I deal with; I think I am doing rather well! As you can probably tell it really bothers😿 me when people make the suggestion I go on disability. It has happened way too many times just because people know what I live with, but they really do not know how it affects me. I do my very best to hide my feelings of pain, however people make assumptions! I do not disagree with anyone that is on disability, but I am so darn stubborn and even if my body might be ready, I am not emotionally😿 ready to take that step.

I really want to thank y’all for reading my rant today❤! This was suggested to me today and as you can tell it did not sit well with me😿! I am not going to say that I will not ever file for disability, but at this point in my life I am not ready as I feel I am still able to disability_is_not_inabilitywork, even if I am not working full-time right now. My working pretty much part-time hours is just the right now, in a few more weeks or months even I might be fully capable of doing those long full-time hours again. 

I hope y’all had a good day! Thank goodness we are half way through the week and the weekend is coming!! Of course I appreciate and even encourage your comments as I promise to respond as quickly as I can! I hope y’all have a wonderful and relaxing evening. As always I am sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

How does humidity affect Multiple Sclerosis?

Have a wonderful dayGood morning Y’all! We thankfully made it through another Monday and now we are on to having a happy Tuesday! I hope your week is going well so far and you are feeling as good as you possibly can!

As y’all can probably tell, I live in the south and down here I swear we only have two maybe two and a half season, all of which are pretty warm! Now that it is “spring”, but really the weather feels more like ☀summer, it is always either HOT ☀or HOT and RAINY🌧! I know all the doctors say that heat is the worst thing for those with MS, but honestly I use a heating pad for the majority of the day and do perfectly fine for the most part when I get to go to my happiest place the beach🏖! I feel strongly that the brutal humidity is WAY worse for me than any hot temperatures I have experienced! Not only does the nasty humid air cause my hair to do wild things, it trump-bad-hair-day-e1436799992357also makes me feel absolutely terrible including SO much additional fatigue! This picture is how I feel like my hair looks on the humid days! Pretty tragic, isn’t it??! I am sorry to bring him into this, but it seemed to fit perfectly when talking about hair doing crazy things!

Many people with Multiple Sclerosis do experience a worsening of their symptoms when the weather is either hot or humid. The elevated ms and humiditytemperatures impairs the ability of the demyelinated nerves to conduct electrical impulses. The good thing is though, the adverse effects of temperatures and humidity are typically a temporary issue and will get better once you are cooler off. However, the bad news is it can and does take longer to recover from these issues if your body gets overheated. There is always that annoying good news bad news scenario! This time of year, that lasts about 10 months is really quite frustrating for me, but I always make it through!!

How do y’all deal with humidity and heat? Does it have an adverse affect on your health? Do you have any good tips that work well for you? I have heard the normal tips, like avoid extreme temperatures, which is pretty impossible when living in the🌻 south. But, I have also heard about cooling vests, which I honestly have not tried yet. Also the obvious, stay inside with air conditioning but staying hydrated is extremely important as well! This actually helps me drink more water, as normally I really do not. I know that is not a good thing, but I have never been the best at drinking water. 

Thank y’all for visiting my site! I always appreciate you taking the time to read and I LOVE your comments as well, which I will definitely respond to as quickly as I can! Please always remember that I am sending y’all LOTS of ❤love & comfort! 

My signature heart

❤Always, Alyssa❤

Friday Sunshine!

struggleGood morning Y’all and a very happy Friday! Even though logically I know it is not possible, it feels like the weeks are getting longer. I had expectations for myself for this week, but those expectations were unfortunately not met. I told y’all in the beginning of the week I was going to try to increase my work hours from 6 hours daily to 7, but I was not able to. I also said I would not be hard on myself if I did not achieve this goal, which is a little untrue. As y’all know I have been struggling with a lot of spasticity in my legs, which is causing a massive amount of pain. I tried to push myself further so I could work 7 hours, but the most I was able to do was 6.5 hours. All I can say is, better luck next week because you know I will keep trying until I achieve my goal!

How was your week? Do you feel like the weeks are getting longer or is it all in my head? I think my week might have felt longer because I wanted so much to work longer hours and I was having so much pain! Frustration was definitely at a high! 

I am trying to make an important decision about whether I should or should not get another MRI. The only reason why my specialist sent the order in was because I haveMS Warrior been back on the Gilenya for 6 months and they want to see if it is helping my illness. Until I mentioned that I was on Gilenya for 6 years previously they did not seem to have any idea and now it might not even be necessary. It is a little disturbing to me that my specialist did not know or remember that I was on Gilenya for so many years prior to October. When she first told me I needed to have the MRI, I thought it was to see if the new active lesions from the October MRI had went into remission or if there were new lesions, I did not know she was ordering this because of the 6 month time line due to restarting the Gilenya! If I am being 100% honest, the only reason I would want this MRI done is to see if there are new active lesions causing all this spasticity and pain. But all the MRI will do is cause me a lot of unnecessary stress and in turn upset me way too much, which we all know the damage being upset will cause. I mean seriously, if all is well with the MRI the specialist mswill say I am doing well with the Gilenya but, if there is any activity on the scan she might say the Gilenya is not strong enough for me and I need to consider starting a different medication. The bottom line is I am NOT switching medications again until there is a cure because the Gilenya worked SO well for me for 6 long years and if the MS has progressed to Secondary, Gilenya is still used to treat the illness. Do you think I am being logical or irrational with my thought process?

I really appreciate you taking the time to visit my site today and I am really looking forward to your comments, which you know I will always respond to as soon as I possibly can! I hope y’all have a fantastic Friday and I also hope you are feeling well! Please never forget that I am always sending y’all positive vibes and lots of ❤love and comfort!

Love 2

Always, Alyssa

Intense Spasticity

Definition+of+spasticityFor the past few days I have been dealing with a lot of pain and discomfort in my legs and even in my arms. I have experienced this sensation many times over the years, so I was almost immune to it and did not allow it to alarm me too much. In all honesty though, as the days and feeling continued it just started to become quite annoying and incredibly uncomfortable. Nothing but my trusty heating pad ❤ seems to alleviate this feeling of pain, which is just VERY frustrating. So I decided to share a little information with y’all about spasticity, which I am sure most of you already know about!

Spasticity is feelings of stiffness and various ranges of involuntary muscle spasms. This is extremely common with those living with Multiple Sclerosis. Spasticity could be as mild as feelings of tightness of the muscles or so severe that it causes painful, uncontrollable spasms of the extremities, most commonly in the legs. Spasticity can cause pain and tightness in and around the joints and cause intense lower back pain, which is horrible to manage! Spasticity can be triggered by a number of things like sudden movement or position changes, extremes in temperatures, humidity or infection, but can also be ms spasticityaggravated by tight clothing!

There are different types of Spasticity are:

Flexor Spasticity involving the hamstrings which are the muscles on back of the upper leg and hip flexor which are the muscles at the top of the upper thigh. The hips and knees are bent and difficult to straighten.

Extensor Spasticity involving the quadriceps and adductors which are the muscles on the front and inside of the upper leg. The hips and knees remain straight with legs very close together or crossed over at the ankles.

There are treatments available for this possibly painful situation. Treatments are on an individual basis, but for any treatment it is important to work closely with a specialist. Some treatments may include certain exercises recommended by the specialist, changes in daily activities, medication or a combination of all three of these options. The two most common antispasticity medications are Baclofen and Tizanidine. Baclofen is a muscle relaxant that works on nerves in the spinal cord. Tizanidine works quickly to calm spasms and to relax tightened muscles. All medications that can be used, can and will work differently with each individual person, which is why it is SO IMPORTANT to always consult with a specialist and report all side effect experienced.

**Important Disclaimer** I am not a physician nor am I in the medical field, all information I am sharing is based completely on my own research and personal experiences, so please if you are experiencing anything to do with spasticity consult with your physician.

Thank y’all for visiting my site today! I hope this information was interesting to you and if you have any comments, please do not hesitate to leave them. I love❤ being able to read your comments and I do always respond as quickly as I can. If any of you have experienced this feeling and have found a good way to relieve the pain and discomfort, please let me know!! I hope y’all have a great day and are feeling well. As always remember I am sending y’all lots of 💕love and comfort!

Love 2

 

Always, Alyssa