Behind the scenes of life with Multiple Sclerosis!

My-life-with-Multiple-SclerosisGood morning Y’all🌼! I hope you have an amazing day!! I wanted to take a moment to share what life is like living each day with Multiple Sclerosis. It obviously is not all sunshine🌟 and rainbows🌈, there is so much more to it!

I have lived with Multiple Sclerosis for almost 18 very long years and this illness is still a mystery to me! I mean for some the cold makes them feel much better, whereas for others it makes them feel absolutely horrible. Some feel a little better with warmer temperatures and others it takes away all their energy and makes them feel terrible. ribbonThere is no right or wrong, it is all based on each individual person!

My doctor always told me that the heat is the worst thing for me and that might be true in a sense, but the heat does not bother me near as much as extreme humidity!!! Of multiple-sclerosis-quotes-3course the heat causes me a lot more fatigue, but it does not cause the increase pain that cold weather does. I actually swear by my friendly heating pad because it decreases my pain immensely! I might live in the city, but I am a beach girl at heart🏖! I love the beautiful and relaxing sounds of the ocean waves. I think it is the only time that I am not full of stress and anxiety.

The cold weather on the other hand causes me nothing but extreme pain because I get so tense from being cold. Of course with cold weather you can put enough layers of clothing on to stay warm, but the chill that lingers in the air can be miserable. I did find an thermacareamazing solution for dealing with the frigged temperatures. They sell a heating pad that is mobile and no batteries needed. This fabulous product is called Thermacare Heat Wrap.

Living with Multiple Sclerosis comes along with a lot of decisions that need to be made and sometimes they need to be made immediately, which I am not all that great at. There are tons of diseases modifying medications available now and finding the right one can be quite challenging. Of course when I was first diagnosed there was a limited amount of choices, so I put ALL of my trust into my doctor. We soon found out that I am not one that can give myself shots. The funny thing is I do not have any fears of needles; it was the only choice we havemedication I was injecting myself with that I could not handle. The medication would cause me to feel like I had the flu and burned like fire going in. I did try everything possible to stay on the injection based medications, but I failed and just stopped without telling my doctor at first! After a few months, I did finally confess to my doctor and we had to figure out what I would be comfortable with and could tolerate. After several failed attempts, I did finally find the medication that worked best for my body chemistry. My goodness my doctor was a very kind a patient man❤, it really is too bad he had to retire! I do not think I will EVER find another doctor I will connect to as much as I did him.

Of course there are always more decisions that need to made because MS is a constant changing illness. Even after deciding on the disease modifying medication there seems to always be more medications that doctors think should be taken. I do believe that living with MS you have to be willing and able to alter your life when necessary. To me it does seem that the conditions with MS can change at any moment and without any kind of warning.

positive over negativeOver my years with MS, I have experienced vision loss (which I did gain back), intense legs pains, muscle spasms throughout my entire body, fierce back pain, persistent headaches and some memory loss at random times, which is a little unsettling. But through it all, I have never truly given up. Of course I have had some massive frustration issues, but I will NOT let this illness to defeat the strong person I know I am. I am very determined to remain as strong as I possibly can, but I also want to help others hold onto their optimism. Y’all know that I am  a very strong believer in the fact that positive thoughts will bring positive results. I honestly believe that it takes a lot more energy to be negative than to just be as positive as you can!

Thank y’all for visiting my site today❤. I hope y’all enjoyed my thoughts on my life with MS so far and of course I will appreciate any comments you have. I do promise to respond to all comments just as soon as I possibly can. I hope y’all have a wonderful Wednesday! Thankfully we are half way through the week and the weekend is coming up soon. Please remember that I am always sending y’all LOTS of ❤love and comfort!

My signature heart

❤Always, Alyssa❤

 

 

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Who Am I?

Who am IHave you ever asked yourself this what should be a fairly easy question, “Who am I?” I sometimes am forced to ask myself this question a few times a day, especially when others challenge the person I know I am, by being disrespectful and even a little demeaning. I find that other people can cause a slight change in my views of myself and then I react unkind. For instances, there is a person I work with that seems to enjoy treating others as if they are beneath him, which creates a very hostile work environment, or at least it does for me! I do not need someone to blow smoke up my rear end, but I do demand and deserve to be respected. This negative treatment causes an excessive amount of anger and frustration in me, which then causes my attitude to be so NEGATIVE and this is not me! In your experiences and opinion, what is the best way to handle this extremely disturbing individual?

Underneath everyone is a person that is so much more than what can be viewed from their exterior appearance! Our exterior is just a visual image, but underneath that visual image is an entirely other person with emotions and passions. When I was first diagnosed with MS, I thought that people just viewed me as just my illness and not for underneath-copywho I was on the inside. Even now, almost 18 years later I feel that is all people see me as which could not be further from the truth, but I am learning that is their problem and not mine! Others view me from my outside as a vertically challenged (I am a little short) and petite person which makes people make annoying comments that I do not eat, which I do! The verbal attacks cause frustration to me and therefore make me very uncomfortable, but again I know this is those doing the talking problem not mine!

At 36 years old, I am still learning how to deal with other’s personalities and how to interact with them when it is the complete opposite of my own. When I ask myself, Who am I?, I typically answer it the same way every time! I pride myself on being ❤kind and understanding of everyone. I also have never been and never will be ❤judgmental towards anyone by judging on race, color, religion and or sexual preference. I always butterfly who am Iwant to help others get through hard times by offer support and encouragement to those! I will always be compassionate, loving❤, caring and giving to a fault despite how most around me are not. So, if I ask y’all the same question, “Who are you?” what would your answer be?

I really appreciate you visiting my site today and I really look forward to any comments you may have! I do promise you, I will respond as quickly as I can! I hope you have a wonderful rest of your weekend and I hope you are feeling the best you possibly can! Please never forget that I am always sending you LOTS of ❤love and comfort!

Love 2

❤Always, Alyssa❤

 

800 + Followers!

Sending best wishesSince starting my blog on July 17, 2017 with 3 fantastic supporters my husband, mother and mother in-law, I have had the opportunity to get to know so many incredible people all over the world❤. My goal for starting my blog was to raise the awareness about Multiple Sclerosis and I really wanted to help others battling Multiple Sclerosis and other chronic illnesses by offering support and endless encouragement. We all know that our daily lives are not easy with random symptoms that appear with and without warning, taking various medications, going to countless doctors’ appointments, being confronted with numerous challenges, being forced to accept innumerable changes to our lives daily, even hourly and so much more! It is never easy finding others that truly understand what our lives are like.💕 By creating this blog, I have been able to learn from so many others that live with Multiple Sclerosis and other chronic illnesses affecting their daily life how they find the strength and courage to keep moving forward!

In our society today, I think it can be really difficult to be “different” from everyone else. I do not believe being different should be frowned upon, but it should we should all be proud of our differences no matter what they may be💕. Whether our illness is visible by the way we walk or talk, or invisible it can be challenging. Some people have been forced to leave their career as it became too much to handle. Some people have even been forced out of their career because people have lost their ability to have compassion and empathy for others. That just is not right to cause anyone unnecessary stress and shame!

❤I am so excited and honored to be able to share this with you! As I said when I started my blog in July 2017, I had 3 followers and that was great. Now 10 months later I am 800+ Followersfortunate enough to have more than 800 amazing followers that I am able to get to know! ❤The individuals I have met through this blog have been absolutely amazing! I would say that starting my blog was one of the best decisions I have ever made as it has brought me so much joy! 🌷The numerous extraordinary people I have been able to make strong connections and friendships with has been beyond incredible! All of us know what it is like to live with a chronic and incurable illness so we are able to offer support and encouragement to each other! ❤Y’all have truly been a blessing in my life and I am thankful for each and every one of you!

💕I really want to thank all of you for continuing to follow my blog and making incredibly inspiring comments. Through the comments you make on my site and the communications we have on your own site, I feel like I have made so many lifelong 🌷friends! 💕Let me just say once again, thank y’all for your support, encouragement, great advice and never judging my crazy moments, because I do tend to have them! I hope y’all are having a fantastic week and I hope y’all are feeling well! As always, I am sending y’all LOTS of love and comfort!

Love 2

❤Always, Alyssa💕

Happy Friday!

GoodmorningwishesonFridaypictures3-compressedGood morning Y’all! I hope you had a wonderful week and you are looking forward to a beautiful weekend! It is amazing how fast the weather has changed from being pretty chilly, to sunshine and warmth! I am so thankful for the natural vitamin D the sunshine has to offer us all, I just hope y’all get to enjoy this as well!

I try to not make too many plans over the weekend and just use weekends as restful time. We spend the entire week dedicated to our jobs and often neglect ourselves, so the two days we get for the weekend should be spent doing what makes us happy❤! I also avoid making plans for the weekend because I never know how I am going to be feeling so instead of disappointing others, it is just best to play things by ear! If myself and my husband are both feeling well we can set up something that we want to do, but if one or both of us is not feeling our best we do not have to do anything at all! It works for us and most people do understand this! 

I made a decision today that I am going to try my best to increase the hours I work each failure not an optionday from 6 to 7 hours starting Monday. I am hopeful that I will be successful with this goal, but if for some reason I am not I will not be too hard on myself and just keep trying. I think it is extremely important to set goals and try your hardest to achieve those goals, but also not beat yourself up if it does not work out on the first try! Not achieving goals you set is not failure, giving up is the only way to really fail yourself! 

I hope y’all wake up and feel great today so you can enjoy your Friday! Maybe feeling well on Friday will pave the path for a fabulous weekend! I certainly hope y’all are feeling great today and I hope you have a wonderful day! Remember to be easy on yourself and take care of your needs everything else will just fall into place! I always appreciate you visiting my site and value your comments which I will always respond to as quickly as I can! Never forget that I am always sending y’all lots of love and comfort!

Love 2

Always, Alyssa❤

Positive thoughts for Monday!

Monday 1Good evening Y’all! I hope you had a great start to the week! Monday is never the most exciting day of the week, but they keep coming no matter if we are ready or not! I try to view Monday as a fresh start to a new week that holds many new opportunities. Any goals that may not have been accomplished last week, we can try again this week! I believe in never giving up on something we truly want! It is important to set goals, but also not stress much about them as that is not healthy. What ever is not accomplished today, try again tomorrow!

I strongly believe in staying positive as much as possible. A negative frame of mind will never help us achieve anything we strive towards. If we approach everything in life with an optimistic mind, we can conquer anything and everything we dream of. When you think about what your goals are for this week, what are they? These goals do not need to be anything huge, they can be as little as wanting to get a manicure and pedicure, which is what my minor goal for the week is! You might be the type of person that is always taking care of everyone else, but tend to neglect the simple pleasures in life you enjoy. Have you ever wondered why do 1-new-monday-new-week-new-goalswe do that? It is extremely important to take care of ourselves or we will never be well enough to do all the other things we do in life. 

We always hear how short life is, but sometimes it feels very long! It is so important to do the things that bring us joy and a lot of happiness. Have you ever really thought about what brings you the most happiness in life? I think we should all set a simple goal for ourselves this week and that is to do something that makes us truly happy! There is SO much negativity every time you turn on the news, so lets pretend for a moment it is not happening. Let’s not worry about all the bad that is going on and all the bad that could happen and just think happy thoughts! This is what I call my little bubble! 

Thank y’all for visiting my site today and I am looking forward to reading your comments. I always respond to all comments just as quickly as I can! I love the communications we all have! I hope y’all have a great and relaxing evening! I am always sending y’all lots of love and comfort!

Love 2

Always, Alyssa

Live and Love Life!

2-quote-about-no-matter-how-impossible-unattainable-or-unim-image-background-imageIt may seem that happiness is an unattainable goal in life and that it is only meant for the selected lucky few. Happiness is a state of mind that is not necessarily chosen or ignored, but is sought-after and fought for. When faced with an unbearable and powerless situation it is so much easier to just give up and suppress our desires to excel. It sometimes takes more energy to succeed and far less energy to fail ourselves. Life can be so darn complicated and it may become hard to see the bright side of any given situation, but there is one!

I have always held onto something my grandfather said to me a long time ago, “There is always someone going through something worse than you are in life.” I still do find this to be valuable and very wise information and would never really question anything he had said to me because of how much respect I had for him. But at the same time, how can you really judge what situation is worse in life for anyone? Everyone deals with their troubles in different ways and have their own views on the level of hardships. Is there any comparison in what I live with daily and what someone else with another chronic illness battles? Is my pain any less of a struggle than someone with other pain issues? I think itlife-is-short-time-is-fast-no-replay-no-rewind-25882738 is all in the perspective of the one living with that struggle. I mean think about a person that was just diagnosed with incurable cancer. They have to deal with chemotherapy and so many other decisions, but they do their best to handle that situation the best they possibly can. Or even someone who has already been dealing with Multiple Sclerosis goes to the doctor for an update and is told their illness has progressed from Relapsing-Remitting MS to Secondary-Progressive MS, they have to adjust their mindset in life. Of course these situations are never easy and anyone would go through a vast amount of different emotions, but they do it! Life does not end or allow you to pause it when you are faced with an illness of any kind, you just are required to continue living the best way you can.

We are all supposed to find ways to cope with the life we were given and there is not a rewind or reset button available. Mistakes are inevitable, but we all must learn from our mistakes and carry on with a new outlook on life! We acknowledge what mistakes have perfectly imperfectbeen made, grieve what has been done and lost, set a game plan for moving forward, learn from what has taken place and move on with strength and determination for our future. I believe all of our mistakes made empower us to become even better than we were before. They build our character to be more enlightened and be able to see the bigger picture. We are all just perfectly imperfect humans with the knowledge of what was learned throughout our lives! If we just give up because we failed once in life, we are missing out on all the great things life will offer us!

Our lives are sometimes like a dance. Sometimes we might have our toes stepped on, but dance in the rainsometimes it will be a beautiful piece of work. There may be new and difficult moves to conquer and perform, but over time we will learn to be graceful and almost flawless. It takes determination to learn all the different dances involved in life, but it will end up being something we are incredibly proud of! 

I hope y’all are having a nice and relaxing weekend! I know the weather where I am has been chilly and there is a constant threat of rain which is never very enjoyable, however I am doing what I can to just enjoy the days away from work! I even treated myself to getting my hair trimmed today. It had been a long time since taking care of my hair and it was a wonderful feeling! I am able to relate to my hairdresser’s thought process, which is always great! I like being around people who are down to earth and just very real with their thoughts. It is not so fun being around people that have a fake demeanor because you are always playing a guessing game about what is actually sincere or deceitful! I hope y’all are feeling well and getting the rest you deserve! I appreciate you stopping by my site today and really look forward to any comments you may have, I promise to respond as quickly as I can! As always I am sending y’all lots of love and comfort!!

Love 2

Always, Alyssa

 

Healthy Anger v.s Unhealthy Anger!

healthy-and-unhealthy-angerDid y’all know there is a difference between healthy anger and unhealthy anger? I honestly had no idea there was a difference. I do not like confrontation at all and I will try to avoid it at all costs. I guess you can say that I just bottle up my emotions even though I know that is not a good way to live.  I try so hard to ignore what I am really feeling, thinking that if I ignore it those emotions will just go away, but they do not! Avoiding confrontation has never been a successful method!

Anger alerts us that we need to protect ourselves. It is an alert that we are not being treated correctly and something in our life is not working out the best way it can and should! Anger is an awareness tool that shines light on an injustice and provides insight to make necessary changes. We should never dismiss the anger that we are feeling, but we should investigate our feelings and make imperative changes and then let it go. Adults-and-Anger-What-Causes-AngerLetting go is never easy, but if we are able to acknowledge and address the pain we are feeling, the next step is to just release those negative feelings and move on with our lives! If we continue to stifle our emotions we may miss an opportunity to make some real positive changes in life and that would be a disgrace to ourselves and we would probably regret not taking the chance we were given for a beneficial change!

Unhealthy anger does not do us any good either. This type of anger can cause emotional and physical issues, but can also have a terrible impact on those around us as well. Anger can suffocate a person that is only trying to avoid the initial confrontation, but the issues are still present until they are dealt with. Unhealthy anger is continuously fed, masks_of_anger_revisited and held onto, but the issue or issues are never addressed. This allows for anger to just pile up and you will feel like you are going to explode. I think the best way to explain it is, have you ever taken an unopened bottle of soda and shaken it vigorously? What happens when you open that bottle? Whatever type of soda you just shook up will explode all over the place.

My soda analogy is what can happen when someone allows for the anger to just stay inside their heart and mind, not address the problem and let it go! Whatever you are angry with will not just magically disappear and improve without talking about it. bottle-explosionCommunication is so incredibly important as it will allow us to learn from the mistakes made in life and make proper changes. Change can be scary, but it can be a good thing as well.

Anger can happen with anyone, not just a loved one or co-worker, it can occur when we drive to work and someone cuts us off. That one small incident with the bad drive sets presence to our mood for the day! With the situation with the bad driver, you are not really able to confront them and get the negative emotion out in the open, so what do you do? I guess you just have to expect for others on the road to not be as cautious and careful as you are and chalk it up to another day on the road! In situations like that I know the initial reaction might be to use some unpleasant sign language, but that does not fix the issue and will not teach anyone how to drive. I can honestly say that it is not easy to let things like this go, but at the same time is not worth our mental time and allowing it to ruin our day!

How many times has your significant other made you so angry that you wanted to angescream? Has anyone in your family ever done something so outrageous that it caused resentment and frustration to the point you were not able to speak to them for a little while?  It is perfectly normal to get angry, especially with family because you know more about them behind the scenes. I think family anger is a lot more painful than most anger because it is so much closer to your heart. I think anger with our family tends to be more intense because we normally have higher expectations for them than just the normal run of the mill person we communicate with. We hold our family to higher standards so we expect so much out of them. Sometimes I wonder if it is just better to keep our expectations low so we are never disappointed, but when something great happens we can savor that moment! 

Life can be extremely difficult and we are all going to face some kind of disagreement angry kittythroughout out lives. It is okay to be angry, but it is also very important to address what you are angry about. If you allow angry to fester and never address the problem, it will only hinder your own happiness. 

I hope y’all had a great Monday! As always I do appreciate you visiting my site today and your comments are very welcomed! I promise to respond to all comments as quickly as I can and look forward to the conversation! I hope y’all have a very relaxing and pleasant evening! Sending you lots of love and comfort!

Love 2

Always, Alyssa