Anyone who knows me or has followed my blog for any length of time knows that I have lived with Multiple Sclerosis for more than half of my life. I know how ludicrous that sounds because it sounds like a very long time, which it has been. When you are diagnosed with an illness that does not have a cure when you are only 19 years old, it feels like a lifelong and evil punishment. Of course, I behaved like a typical, stubborn, hardheaded, and immature child and refused to accept what the doctors were saying about my reality and future. Unfortunately, I learned quickly that ignoring and avoiding the facts was not going to change what my life was going to include, and I had to deal with this diagnosis.
Over 20 years have passed since I was diagnosed with Multiple Sclerosis, and the one thing that has not changed is how defiant this disease can appear. Most days, the level of defiance can be ignored, but on other days, it is impossible to ignore. I used to think MS was as defiant as a toddler with terrible manners, of someone else who will throw a massive temper tantrum when things do not go their way. I understand this disease cannot think or be empathetic as it is just a disease. I know it does not behave with revenge, but it seems like it on the bad days. I will explain a few reasons why I used to believe all of this to be true.
First, one of the most frustrating issues is this disease is unpredictable. Issues like this can be exceptionally frustrating for anyone who prefers to have plans or make plans. It can help to understand the unpredictability and to plan accordingly. With this fact, it is always wise to have a backup plan, and even a backup plan for your backup plan. I realize how insane that might sound, but when I do not have things planned out, it causes me anxiety. Even though I might not always know when this disease will misbehave, I try to make sure that I have a plan, even when there must be multiple plans just in case!
Another part of living with this unpredictable and annoying disease is it does not matter what the season is, it takes my body too much time to adjust. With that said, anytime the seasons change from Spring to Summer, or Summer to Autumn, or Autumn to Winter, or Winter to Spring, I feel awful for at least a week, and sometimes longer. The season I tend to dread the most is Summer, but that is because I live in the south, and it gets way too HOT. Multiple Sclerosis and heat are not friends, but more like enemies.
One part of this disease that appears to be relentless is the pain I feel 24 hours a day. Some of this pain would be like a defiant toddler with no manners and can easily be ignored. Unfortunately, another type of pain I experience at least once a week is migraines. I am unable to ignore this type of pain. Migraines remind me of a defiant person that cannot be ignored because they will have a temper tantrum when you try. Anytime pain evades my head, I cannot deal with it, and make the other pain seem like a walk in the park.
Since being diagnosed with Multiple Sclerosis over 20 years ago, there have been a few things that cause me anxiety and fear. I realize that some of my fears are pointless to think about and not dwell on because I have made it this far without anything too awful happening. I have always been independent and do not want to rely on anyone to help me with simple things. As crazy as it sounds, I enjoy laundry and handling other household things. I remember hearing the doctor saying those words to me that I had Multiple Sclerosis, and my automatic fear was I would be in a wheelchair. I know that would not be the end of the world if it came to that, but I need to be free to take care of myself and go up and down the stairs.
I am sure there are some other things I forgot to mention in this post, but this is a lot to deal with. The weather is starting to make small changes to cooler weather, even in the south, so I am trying to be patient as my body adjusts. I might not be good at it, but I am trying my best to rest and relax before the week starts tomorrow. This weekend has been a blur because I have felt achy and exhausted all weekend. Of course, I rarely sleep in or take naps, but I am resting. It is nice to watch TV with the cats, and I have painted my nails😊!
Thank you for stopping by my site today. I hope you have enjoyed the weekend, and you were able to do something joyful. Although, I do not want anyone to suffer from any illness in life, if this post resonated with you, I would love to read what you have to say. I will respond to all comments as quickly as possible. As the weekend comes to an end, and there are only hours left, I hope you enjoy as much as you can. Please never forget I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Always, Alyssa