Good afternoon y’all! I hope your weekend is starting off wonderfully! Last night I was able to have my much-needed and dreaded brain MRI. Even though over my 18 years with Multiple Sclerosis I have had SO many MRI’s, I was still extremely nervous! However, if I am being 100% honest I am WAY more nervous about getting the results next week! The waiting period will be brutal because my mind will go in a million different directions and most of those directions lead to the negative thoughts. I am trying to be logical, which is not always easy for me because I know there is no amount of stress or worrying that will change what these results are going to show and all that worrying will just add stress to my life leading to even more PAIN!
With all the MRI’s I have had in my 18 years with Multiple Sclerosis, this one was just of the brain. It was not long at all and the two MRI techs were absolutely amazing. One of them was the same tech I have had several times before, so it was not scary at all. It was pretty funny because 
the one I have seen many time previously said to me, “Alyssa, do you have any questions before we get started?” Before I was even able to speak he said, “You know I can not tell you anything because this needs to be read by the Radiologist and I just do not have that type of knowledge. Now you also already know you can go online in a few days and read the full report.” I do tend to always ask at the end of the test if they saw anything like lesions. I hate waiting to see the doctor and I know the techs can see the images and probably have a somewhat educated guess on what they are looking at. My goodness they are so stubborn about sharing any news with me which I kind of think that is just mean, just kidding! He did make one funny remark by saying he was happy to announce that I do still have a brain!
For some reason today I am in so much pain, but I am doing my best to just rest. I do tend to use my Saturday’s as a day of rest and anything I think needs to be done waits until 
Sunday. More than likely the reason for my pain is due to stressing about the MRI and also the argument I had with my mother on the way to the MRI. Isn’t it funny how when you are stressed about something all it takes is one comment to make the calm barriers fall down hard? The smallest of disagreements can turn into a disaster! I am not proud of this, but I am very strong in my nature and can have a hot temper when provoked. Anything I am really passionate about causes me to protect and defend it to the fullest. I will say things I mean, but it will come out in a very hostile manner. I do also believe that anything that happened yesterday is in the past and can not be changed, so all you can do is move on with life and hopefully be less hostile, but we will see about that!
Thank you for visiting my site today and I hope y’all have a great and restful weekend! I
will do my best to stay calm and definitely not continue thinking about “what” the results are going to tell me on Thursday. I think the only thing I can do between now and Thursday is keep my mind busy by thinking about only the positives aspects of life! Even though those positives can be hard to find because of all the negative in life are still there! Please remember that I am always sending y’all LOTS of love and comfort!
Always, Alyssa
specialist who only sees me for 3-5 minutes every 2 months! Do you really think the pain doctor actually specialized in pain or they just could not hack it with being a real doctor? That might sound a little cruel as I am sure this “pain specialist” passed medical school, but seriously there are no medical schools out there that really specialize in pain!
therefore our conditions would worsen drastically over time! Do the insurance companies care? NOT AT ALL! I do believe that the insurance companies and government work together so they can be very well off in life without any regard for human life! Now with the talk among the government, some of us many worry that we will lose our expensive insurance in the near future. I do sincerely hope that I am wrong about this though, but that is honestly what I think is on the agenda!
judgments from co-workers! The comments that are made can be extremely frustrating and offensive, but we are doing all we can in life! I know that all of us would prefer to be able to tolerate full-time work, but when we are not able to we are doing the best we can and should not be looked down on! As you can probably tell I have heard the comments made about working ONLY 6 hour days, but I am pushing myself to do this!
ignorant comments about someone who looks completely normal parking in a handicap parking space. Rude comments have been made towards me and it did hurt my feeling terribly! But it has now been a few years since I was given the handicap parking, so I have had many experiences that I want to forget ever happened. Now days I do not allow negative comments to get to me as much and just feel sorry for the people making the ignorant comments and even worse for their children to grow up in that horrible environment because they may end up just as ignorant!
Fatigue on the other hand I struggle with daily! I normally begin feeling much fatigue around 1:00 every day which is why I get into work earlier. For some reason, I feel much better earlier in the day and worse as the day progresses. It does not matter what time I wake up, always around 1:00 I feel like I need a nap!
even give us the opportunity to meet others that understand our struggles and also offer support to others living with something similar! It may take work, but we are able to build strong networks with many others that can be very beneficial to all that is involved. Through the blogging community, I have been able to build powerful and valuable connections with SO many very incredible people who I have come to care so much for! I am truly thankful for all of my blogging friends and feel we might not have met if it were not for the chronic illness!
encouragement he shared with me through the years. In the times I am in a terrible amount of pain or feel a massive amount of stress, I hear his voice in my mind with all of his healing powers.
guess that is what makes him so special. You know that being diagnosed with a chronic illness is tragic and life altering, but losing him was twice as hard on me. I know it has almost been 5 years, but it feels like yesterday when I got the call from my Uncle to tell me Poppy had passed away. I honestly felt as though my world came to a complete halt! If I had just one wish, which I know most people would think I would wish the MS away, but I would wish I could have just one more day with my Poppy. I would rather live with the struggles of Multiple Sclerosis for the rest of my life, if I could just have him here with us again. I would love to be in the car with him listening to him sing “Seven Spanish Angels” by Willie Nelson & Ray 
anywhere. When I get extremely angry I tend to cry before I yell and I could not give him the satisfaction to see how much he was getting under my skin! I am not looking forward to going back to work tomorrow and hope that he will not continue on with his petty harassing ways!
unfortunately I do have to leave the comfort of my home to go to that place I work at, which as I already mentioned isn’t a pleasant place to be! When I add rainy weather and a semi-hostile work environment to my day, I often feel absolutely miserable!!! In these times I find it best to just stay very silent! Do y’all feel the rain in your bones, as I know many of you live with chronic illnesses? 
believe in EQUALITY and LOVE
constant state of fear that I am going to end up losing health insurance because I have a pre-existing condition that I never choose to live with. I do not feel that I should be punished for living with a chronic illness, as that alone is punishment enough, so for our government to decide I may not qualify for insurance is absurd! This has not happened yet, but I do think it is in the works! Hell I think I already pay WAY too much for insurance! But it is scary for me to think that Trump could easily have a bad day and have a temper tantrum that will eliminate healthcare for those with chronic illness! 
delighted that I after all this time waiting I can finally get my Cranial MRI and I will not have to pay a dime for it! I find it amazing that after living with MS for 18 very long years and having numerous MRI’s that cost a fortune, I was finally introduced to help! I know some of you do not live in the United States so this may not help you as much, but for those of you that do live in the states I am going to encourage you to visit MSAA’s website as they might be able to offer you some help 
causes my pain to be elevated tremendously, but the weekend so far has been dry and just terribly HOT!! Of course with the heat, I am just staying inside with the air conditioning as much as I possibly can! 
something needs to be done, I tend to think everything needs to be right away and never completely understand that somethings really can wait! I am trying to get better at this, but it isn’t easy because I have some control issues about tasks being completed immediately and the right way! The funny thing is when I say I have come control issues about tasks being done, I never want any help and just want to do everything on my own, so I guess just try controlling myself! I guess only controlling what I do is better than trying to control others because that is very impossible!
apparent reason and sadness in so many people! What is really causing these negative emotions among so many? I tend to blame the actions of those in charge of the country because they seem to be creating SO much negative energy which is why I do my best to avoid hearing anything they are talking (lying) about. I know there are many people who will agree with this statement and probably many who will disagree with me, which is okay because we are all entitled to our own opinions. If we all thoughts alike on everything there would be absolutely no dynamics and that might actually be a little boring! It is perfectly acceptable to have you own thoughts and opinions, but I do believe it is also extremely important to have an open mind as a close minded person never grows!