Helpful terms to know

~Terms to know when living with Multiple Sclerosis~

Whether you are newly diagnosed with Multiple Sclerosis or you have been living with MS for many years, you already know it is hard enough living with MS. Then adding learning and remembering an entirely new vocabulary makes things even more challenging, and confusing. I know there are times I still get a little flustered when talking to my neurologist or try explaining to someone the way I am feeling. I am going to share some useful terms to try to help make things somewhat easier to understand. Please keep in mind that I am not a doctor or medical professional, just a person that has lived with MS for more than twenty years.

Fatigue is one term we are probably all too aware of. This is one of the most common and important symptoms relating to MS. It has been suggested by the National Multiple Sclerosis Society, that this affects about 80% of all people living with MS.

Vision problems tend to be the first sign of MS for many people. This was the way the doctors discovered that I had MS. I think I have told y’all before, I had gone to the eye doctor thinking I was going blind in one eye, but the doctor said as gently as he could that he thought I had MS. I was terrified and only 19 years old, so I was still a child with a naïve mind. Inflammation of the optic nerves is knowns as optic neuritis. This can cause several problems, such as blurred vision, eye pain, and/or blind spots.

Brain fog is not a medical condition, but a term that is used to explain certain symptoms affecting the ability to think. Brain fog can make thoughts seem cloudy and you are not able to think clearly. This might cause you to feel confused, disorganized, and/or find it difficult to focus or put thoughts into words. This is also sometimes referred to as MS brain, cog fog, or cotton brain.

Slurred speech is often due to the loss of coordination of the tongue, lip, cheek, and mouth muscles. This loss of coordination may also result in trouble swallowing.

Loopy, which can be best described as feeling tired and/or almost like you are drunk.

Jelly leg, which may be referred to as jell0o legs or noodle legs. When experiencing jelly legs, you are legs will not work correctly.

Hallway pinball is when your walk is weaving from side to side. With MS, your legs may sometimes feel wobbling, weak, and tired. You might lose some control of your legs and when walking down a hallway, forcing you to bounce back and forth from side to side like something you would see on a pinball machine, hence the name.  

Wooden leg or legs is a phrase that is used to describe the stiffness in the legs.

Foot drop is a term used to explain weak muscles that make it difficult to lift the front part of your foot or feet as you walk.

One major symptom of MS is chronic or acute pain. Shooting pains are typically acute, which means they come on suddenly, intensely, and then disappear. Pain is something I have battled with for the past 20 years and it does not get easier with each year that passes. However, I will not allow the pain that my life is plagued with bring me down and will always try to continue pushing through it, no matter how awful it gets. Truthfully, the pain does get worse when it rains or I am stressed. Lhermitte’s sign is a type of shooting pain. This is a sudden sensation that mirrors an electric shock passing down the back and into the spine and might radiate out into your arms and legs. This is usually triggered by bending your head forward towards your chest.

MS hug is a type of hug I never want. This term describes a constricting pressure surrounding the chest or waist area. It feels like there is a snake around you and just continues to squeeze or at least that is how it feels to me. The pain involved with the MS hug can range anywhere from mildly annoying to extremely annoying and tends to come along with a burning sensation. An MS hug is caused by spasms of the muscles between the ribs.

Spasticity, also referred to as spazzy. This is a common symptom of MS and can occur in any area of the body, but most commonly is in the legs. With this, the muscles might feel simply tight or can be extremely painful. There are two types of spasticity:

1. Flexor affects the back of the leg and upper thigh.

2. Extensor which affects the front of the upper thigh and inside of the upper leg.

Twitchy means you are experiencing twitching from spasticity.

Considering MS affects the central nervous system, the pins and needles sensation is common and most often felt in the limbs. This has been something I have dealt with for years and it is not easy to deal with. Even though I am on a high amount of Gabapentin, I do still feel this every day of my life.

Thank you for visiting my site today. I hope you found this information helpful or at least made things a little clearer. Believe me when I say, I understand how hard it is to remember every term used in the medical field and I have learned more by sharing this information with y’all. I think we can all continue to learn more, and we can help one another with this learning curve. I would love to read your comments on this post, and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

~Let It Go Friday~

~We Finally Made It Through The Week!~

Happy Friday y’all! I hope y’all had a great and safe week. My week was, of course, busy but it does make the days go by so much faster. There are a few reasons I am excited for the weekend. It will be so nice to not have to wake up early and work for 8 to 9 hours. Then deal with staring at a computer screen and explaining to people what I need them to provide me with so their loans can be purchased. It is going to be amazing to have free time to work on cleaning, organizing, and anything else I want to do and make me happy!

Now that the weekend is finally here, what are your plans? Y’all already know that COVID is serious and the numbers are increasing steadily, so PLEASE stay safety! We all want to enjoy life, but to continue enjoying life we must practice all the safe precautions that experts have suggested!

The final day of the week before the weekend we all look forward to begins, is the perfect day to let go of all stress and negative feelings the week put on us! There is no reason to carry these emotions into the very short weekend that is meant to be enjoyed! I hope the quote I am sharing with y’all today will offer you the strength to let go of any unpleasant feelings you have from the week and you will be able to enjoy your weekend to the fullest!

Thank you for visiting my site today! I truly appreciate the time you take to read what I write and the quote I share. I love reading your comments and being able to discuss things when you need to. I hope you have a great day and you are feeling well. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Let It Go Friday

Let Go Of Negative Energy

Happy Friday y’all! I hope y’all had a wonderful week and you stayed safe from the virus. Do y’all have any plans for the weekend? I know no matter what you have planned you will stay safe and practice safety protocols! My plans are what some would call boring, but I consider to be both productive and satisfying. I will be cleaning, organizing, laundry, and maybe grocery shopping online again. Yes, I know I sound like an old lady, but I promise I am not all that old!

As we are at the end of the week and heading into the weekend, y’all know I think today is the perfect day to let go of any negative feelings the week has produced. There is no reason we should carry any negative emotions the week created into the weekend we are supposed to enjoy. I hope the quote I shared was helpful and encouraged you to let go of any negative energy! I do look forward to reading any comments you had for the quote and promise to respond as quickly as I can!

Thank you for visiting my site today! I hope y’all have a lovely, relaxing, and safe weekend! I do know how frustrating it is to wear a mask anytime you go out in public, but a little discomfort could possibly save your life! This is what I have to keep reminding myself because I do not enjoy the mask. It feels like it is suffocating me! Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa

Fanatic Organization

Good afternoon y’all! I hope you are having a great day and of course, you are staying safe! How many of you love spending time organizing? I have honestly been just a little obsessive about it, but I find it relaxing for some reason. I have tore one room apart, which includes the closet and have been reorganizing the entire area.

I have one pile of things that need to be thrown out and then the other piles I am putting like with like. At this moment, it looks like a tornado went through the room several times, but the end results will be great, clean, and extremely organized.

When y’all get the urge to organized and rearrange, do you have a process you use? It would be helpful to know what other’s do when they go through the insanity and desire to redo everything in one room, well for now it is just one room but that I am sure is going to change. I think it is possible I have had just way too much time feeling trapped in the house without being able to do much of anything. I guess the positive part of this is I will have everything look less cluttered. When things are cluttered and unorganized it makes me anxious, which is the last thing I need.

Even though I am taking at least half of the day organizing, I do still have a few posts that will be published soon. One is my second post about migraines and headaches, the other one is about how we need to just say “NO” to racism. I think that is a pretty good slogan to have, what do you think? Things have gotten a little out of control with so many people in 2020 still being racist. I strongly believe we should all be treated equally and with the respect we all deserve. I am not sure if this has gotten where it has because of some country leaders setting an example that it is okay or if it goes deeper than that. My opinion is and please forgive me our country leaders (President, Prime-ministers, Chancellors, and whatever else they are called) should set the example to treat others as they want to be treated. It seems many are followers and behave in the same manner they see powerful people behave and it is plain and simply WRONG!

I am sorry for my little rant, but this is something that bothers me greatly. I grew up in an area that wasn’t diverse at all, but after moving to a big city at 19 I learned a lot about people from different backgrounds and I am thankful for that! In my eyes, it doesn’t matter what people look like, who they love, who they worship, nothing matters but how they treat others.

Thank y’all for visiting my site and reading my half rant and other half about organization. I think the organizing part was a lot more positive, but everything matters! I hope you are having a good day and I look forward to reading about ways y’all organize rooms of your house. Please never forget that I am always sending y’all LOTS of love, comfort, and many positive vibes!

Always, Alyssa