Tranquil Tuesday

I think that a congratulations is in order because we made it through the least favorite day of the week yesterday😊. Monday is typically a day we all dread because it means the workweek began. The weekend seems so far away, but in all honesty, the days do go by rather fast. Of course, we do have to get through five grueling days just to make it to a weekend with two of the shortest days ever, but it will all be worth it. It does appear that as I get older, the days, weeks, and years go much faster!

How was your Monday? Mine was not bad at all and in fact was better than my weekend. I had almost forgotten about a one-on-one meeting with my supervisor in the morning and for some reason, I always get nervous about meetings like these. I must say, I have one of the most amazing supervisors and the best one I have had in a long time😊! This was our first one-on-one meeting and it was wonderful. I seriously wish there were more people like her because she truly cares! Not only is she easy to talk to, she listens, which is not as common as it should be!

There is one day completed this week and four left, but I think the days will pass with ease. Considering we survived Monday😊, I do not think the rest of these days will be too bad. I am hoping the quote I am sharing with y’all today will provide you with a sense of peace and calmness. Life can be stressful and we often need a reminder of how to live a calm and peaceful life. One thing that always brings me peace is the sound of the ocean. The sounds of the waves rolling in and back out are glorious and extremely peaceful.

Thank you for visiting my site today. I hope you enjoyed the quote and it brings you the same peace it has given to me. The good thing about Tuesday is, we survived Monday and we are well on our way to the weekend again😊! I would love to know what you thought about what I shared today and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Irritating Sounds!

Each person has unique qualities that set them apart from everyone else. These qualities are not something negative or to be ashamed of, but they can create challenges for the person to handle. Since I was a young child there have been certain sounds that I found extremely irritating, which I thought made me strange. It is not loud noises, but small noises such as people chewing gum, chips, popcorn, ice, or anything else that crunches. I remember a time being in the car with my mother or anywhere else when people were chewing gum and it caused an intense feeling of pure and utter irritation. Are there any sounds that you find irritating?

There is a rare disorder known as misophonia that affects about 20% of the population. Scientists suggest that one in five people suffer from this disorder to some degree and less than 1% experience extreme symptoms. This disorder can trigger emotional or physiological reactions to sounds. Of course, those that do not suffer from this view the reactions as an unreasonable and illogical response to sounds that can range from anger and annoyance to panic with a need to flee.

Those that live with misophonia have explained they are triggered by oral sounds, such as the noise a person makes when they eat, breathe, or chew anything. Other sounds people have found to be irritating can include the tapping on a keyboard, table, or steering wheel, or the sound of windshield wipers or blinkers. Some have said small repetitive motions are the cause, such as someone fidgeting or wiggling their foot.

Those with misophonia have said they respond to visual stimuli accompanied by sounds and have an intense reaction to repetitive motions. It has been suggested by researchers that those with this disorder have issues with the way their brains filter sounds and one feature of “misophonia sounds” would be their repetitive noises, which exacerbates other auditory processing issues.

Misophonia appears to range from mild to severe. Many have reported various physiologic and emotional responses. Mild responses can cause people to feel anxious, uncomfortable, disgusted, or have the desire to flee the situation. The more severe response may include rage, anger, hatred, panic, fear, and or emotional distress. 

Doctors are unsure what causes this condition but have stated it is not an issue with the person’s ears. They do believe it may be related to the way sounds affect the brain and trigger an automatic response in the body. The onset is not known, but symptoms have been reported to begin between the age of 9 and 13 and last a lifetime. This is more common in girls and comes on quickly and does not appear to be related to any specific event.

A recent breakthrough study discovered that misophonia is a brain-based disorder. Researchers have referred to a disruption in the connectivity in parts of the brain that processes both sound stimulation and the fight/flight response. This is said to involve parts of the brain that code the importance of sound. 

If this is something any of you deal with, I am sorry because I know how incredibly frustrating it can be. There have been times I had to cover my ears to avoid the annoying sounds because it causes me massive amounts of frustration and anger. It was so hard to deal with when I worked in an office setting because many people loved chewing gum and that is one of the most annoying sounds in the world. Thankfully, I am not working in an office setting, so I do not deal with this anymore, but my husband does love chewing ice and tries to say it is soft ice. It is NOT soft ice! If this is something you must live with, how do you handle it without losing your mind?

Thank you for visiting my site today. I hope what I have shared is something you do not live with, but if you do, please know you are not alone. I am looking forward to reading your comments and I will respond as quickly as I can. I hope your weekend has started pleasantly and you enjoy these two days! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Sunday Thoughts

It is hard to believe that we have so few hours left of the weekend, but at least we are alive and were able to have a weekend. As y’all already know, I have been battling with a massive headache for far too many days. I can only speculate what the cause is because I have lived with them for many years. I have discussed the headaches with doctors before, which includes my MS specialist, and they were not successful in an adequate or effective treatment option. Even though I have been advised that it is not normal to have a constant headache for 7 days and that I “should” go back to a doctor, I do not see a point and feel like going back to a doctor about these headaches would be a waste of time and money.

I have never claimed to be a genius, but I am smart enough to know that having a constant terrible headache for as of now is 7 days, is not normal. I do know that Multiple Sclerosis has been one part of the headache issues before, but during the present time, I think stress might be a key factor. Yes, I know there are many things in life we have no control over, and therefore we should not stress over them. I also believe that everything in life happens for a reason and things have a way of working out for the best. Of course, knowing this and not allowing myself to be engulfed in worrying about things in life are challenging. 

There are things in our lives that do not discriminate, stress is one of them. It does not matter who you are, where you are from or anything else, stress can invade your life and try to take control. How do you handle stress in your life? I know the things in my life that cause me the most stress and some of them can be eliminated. Unfortunately, most of us must work and pay bills, so those are two that cannot be ignored or removed. During this weekend, I have been thinking about what causes me the most stress and what I can eliminate from my life. To make things easier for myself, I might start with removing one thing at a time and see if the headaches subside! I am willing to try just about anything at this point because I am in desperate need of a break from headaches!

I would like to believe that I am strong, and I refuse to let stress or these headaches dominate or control my life. I might be a little like my cats, we do not like being told what to do and in turn will do the opposite of what we are told😊! I am hoping by eliminating things gradually from my life that I know cause me stress will help to eradicate my headaches or at least reduce the frequency and severity of them!

Thank you for visiting my site today! I hope you had a lovely, relaxing, and safe weekend😊! I know our weekends are never long enough, but I guess it could be worse and we are not able to have a weekend at all. Monday mornings are always a little daunting, but the new week might hold what we have been needing😊! I am looking forward to reading your comments and will respond as quickly as possible. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Headache Day # 6

We are finally able to enjoy the weekend😊! My goodness was it a long week for me! Unfortunately, today is day # 6 of a headache that I do not think is ever going to go away. I am not sure why this headache has been here so long, but I do know I am ready for a break from it. Honestly, headaches are very common for me but, they do not normally stay around for this long. The issue making it slightly abnormal is, that it is creepy down into my neck and shoulder. I have no intentions of letting my MS specialist know about this because I feel she is on a need-to-know basis, and she does not need to know this!

Another issue that started yesterday is my big toe on both feet is completely numb. The numbness is trying to move up into the rest of my foot. I am sure it will stop and not get any worse. Of course, I am not a medical professional, but I do have a few years of knowledge of living with Multiple Sclerosis and I am assuming the issues I am dealing with have a lot to do with heat and stress. At least I have the weekend to rest and recuperate before another week begins😊!

Thank you for visiting my site today. I hope you have a great, relaxing, and safe weekend. We all know how short the weekends are, so I hope you make the most of it. This is going to be a short post because of my non-stop headache, but hopefully, it will improve soon, and I can do another tomorrow. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Let It Go Friday

I have always known that weather conditions, extreme temperatures, and stress can create issues with how Multiple Sclerosis behaves. If I am being honest, Multiple Sclerosis tends to misbehave frequently and have crazy toddler-like temper tantrums. I am not sure which issue causes more issues but do know that combination causes massive and miserable pain. I do not enjoy complaining about the pain and know that tears do not fix a thing, but yesterday my pain was at a high that makes me wonder how I managed to make it through my workday.

Of course, it has been rainy a lot lately with some wild storms. The power did go out while I was working yesterday, but only for about fifteen minutes. There was a part of me that hoped it did not come back on so fast because of how awful I was feeling. My poor cats hate when it storms because they seem to think the thunder is going to kill them and they all hide under the bed. I swear I often think where I am living is trying to be like Seattle where it rains most days☹.

What can you do when you are in so much pain and nothing helps? Right, there is nothing that you can do. I have heard so many times that stress is the silent killer, and I could not agree more with this. Stress can cause additional pain, headaches, loss of appetite, sleep disturbances, and invade your mind. Unfortunately, I have always worried about those I care about and worry about what they may be going through in life. The world is such a mess right now. We already went through years of COVID fears and now we need to worry about Monkeypox. I mean, when is it ever going to end? Right, no one knows, so all we can do is follow the experts’ advice.

We have finally made it to the end of this week and my goodness has it been a long week! The weekend is going to begin soon, and we need to let go of all the never emotions the week has caused. The weekends are so short, so we do not need to carry the negativity from the long week into the weekend! Friday is the perfect day to just let go and I hope the quote I am sharing with you today will help you do so. I hope your week went well and you did not have to endure any unnecessary stress and hardships.

Thank you for visiting my site today. I hope the quote I shared helps you to learn to let go of negativity and enjoy your weekend. I know I have asked y’all before to stay safe and do what is necessary with vaccines, but it is looking like Monkeypox can be extremely dangerous. I am looking forward to reading your comments and I promise to respond as quickly as I can. I will be playing catch up this weekend with comments as I do not have anything else planned. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Heat, Headaches, and MS Hug

For the past several days I forced myself through my workday and the things that I had to do. Unfortunately, I was unable to do any posts, work on my essay for the writing competition, or read because I have been battling a headache that seemed to be never-ending. Anytime I thought it was improving, I was proven to be incorrect when the massive pounding in my head returned with a vengeance.

Many of you reading this post today and may have visited my site before are already aware that I have Multiple Sclerosis. Anyone new to my site, thank you for taking the time to visit and I hope you will return. I enjoy writing about various topics and hope you will enjoy what I write about as well.

I have lived with Multiple Sclerosis for over 20 years, so basically more than half of my life. Over all these years, I have had numerous challenges, setbacks, disappointments, frustrations which fueled stress, and enough tears to fill the ocean. The one thing I have not experienced is giving up and letting MS control my life.

One of the main reasons why I refuse to give up is I made a promise to my late grandfather shortly after my diagnosis that I would always continue to try to move forward, and I would never surrender to MS. Although he has been gone for almost 9 years, I will continue to keep the promise I made to him. It might help that I am also extremely stubborn and obviously a born fighter, just not the violent type of fighter😊!

During the 20-plus years of living with MS, I have dealt with vision impairments, numbness, various forms of pain, stress from the harshness of symptoms, fears from potential disease progression, changing and deciding the right medications, relapse, neuropathy, doctor’s appointments, dizziness, and much more. Most of my pain does not prevent me from living my life and I just push through it and try my best to ignore it. After all the years of experiencing head pain, I am still unable to tolerate it. Unfortunately, it does not matter how many headaches I have already had in my life or how often I battle with them in any given week, the headache always wins our war.

There once was a time when I had a headache, I could take Advil and lay down with an ice pack for an hour or so and the headache would be gone. I wish I could explain how much I miss those days! Unfortunately, over the past few years, nothing provides me with any relief. Although I had many reservations, I ended up trying everything my doctors recommended, but they were all a complete waste of time and money because they did not help. I have tried combinations of over-the-counter medications, such as Advil, Excedrin, and Sudafed, which have helped more than anything else.

Over the past several days, not only was I dealing with the headache straight from hell but the invasive tight band feeling also known as the “MS Hug” visited me. The only good thing about COVID was social distancing, but I guess the MS Hug did not get the memo. I am just speculating, but I think I am experiencing the tight band feeling because of stress, the insane heat, or a nasty combination of the two.

This outrageous and uncontrollable heat is my enemy because it always causes me to feel awful. Over the weekend, I had to run out to two different stores and when I finally made it back home, I told my husband I am not leaving the house again during the day until at least November. I am pretty sure if the temperatures get any hotter, it will be the death of me. I do understand that this massive heat is being felt all around the world, and I do not think anyone can say global warming is not real anymore.

How are y’all handling the incredibly dangerous heat? One thing that I believe helps is to stay hydrated. I have four different stainless steel insulated water bottles. I fill the bottles about a quarter of the way with water and put them in the freezer. This makes it so I always have ice-cold water handy! I strongly recommend them, especially during the summer months. These stainless-steel insulated water bottles are very affordable on Amazon and there are any colors you can think of😊!

Another thing I recommend during these HOT summer months is if you must leave the house, start your car, and let the A/C run for a few minutes. It is never a good idea to try driving when you are hot because you could get overheated, which can cause you to feel dizzy and faint. The heat can do some terrible things to our bodies and minds, so it is best to do everything we can to stay as cool as possible.

Thank you for visiting my site today. I hope what I have shared was helpful for you. If you have any other suggestions regarding staying cool with these drastic temperatures, please share. Also, if you have experienced the evil MS hug, is there anything you do that helps? I am looking forward to reading your comments and I will respond as soon as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

~Inspirational Wednesday~

Most of us had Monday off from work, which made Tuesday feel like Monday on steroids! I do hope y’all enjoyed the long weekend and yesterday was not too crazy busy! For some reason, for me at least the short weeks always feel much longer. Yesterday was a crazy busy day at work, which I do like because it makes the day go by faster. Something good that happened yesterday for me was, that I received my 5th shout-out for doing a great job at work. I am sure we can all admit this, but praise does not happen often because people complain more than appreciate.

I think during the week we need to stay inspired. If we could learn to be inspired by our life and those around us, we could spread this to others to make the world a better place. I found the quote I am sharing with y’all amazing and inspirational because life does seem like a river. A river continues to flow and it never goes in reverse. Forgetting the past is important and focusing more on the future is crucial. We must learn from the past, but never stay stagnant in the past so we can move forward to a future filled with many opportunities. There is a lady I work with that has an amazing outlook on life and she always tries to spread this to all of us, which I appreciate.

During the week we must stay focused on our goals. We are the only ones that can achieve what we aspire to do, no one can do it for us. Do you think about your goals at the beginning of the week and plan things out or do you just fly by the seat of your pants? I always have a plan for things and a backup plan, but then also a backup plan for my backup plan. Things can always go wrong, so I think it is better to stay prepared!

Thank you for visiting my site today! I hope you enjoyed what I have shared and you found the quote meaningful. I hope your week is going well and you are staying stress-free. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Just another day in paradise

Despite having lived with Multiple Sclerosis for 20-plus years and understanding it more than I wished, there are still times I get discouraged and frustrated. Of course, I understand that most of the symptoms that make me feel this way will subsite in time, they can be difficult to tolerate. Something worse than normal, and I have been forced to endure for the past several days is the neuropathy in my legs. I should be used to dealing with this because it is not new, but it does not get easier. Lately, it has been painful to walk and even sit down the sensation of tingly, pain, and the “spider dance party” on my legs have been almost unbearable. Considering I have been dealing with this for years, I can almost guarantee the reason for the increased issues is due to heat and stress.

Another issue that is not new but has been returning frequently is dizziness. It used to happen more later at night, but for the past few days it comes on suddenly at random times throughout the day. The only way I learned how to deal with this is to sit down immediately (to avoid falling), never lay my head backward, and or force on a still object. I already know I will get extremely dizzy if I lay my head backward, so I try to never do this. Heck, I also know when I go to the neurologist, they always have me do this, even though I explain what happens. It seems many doctors do not listen to their patients; you know the one that knows more about their body than any medical school can teach?

Many things can make Multiple Sclerosis symptoms flare up and we need to learn how to avoid these issues as much as possible. Summer in the south makes avoiding the heat pretty much impossible. Anytime I must leave my house and get in the car, I make sure to never drive until the air conditioning has been on long enough for it to not be too hot. How do you avoid heat when there are more hot months than cool months?

Stress is also a HUGE factor. Stress can make old symptoms return and create new evil symptoms. I am still learning how to avoid stress, but for me it is impossible. Everyone already knows that stress is a silent killer, but what it can do to Multiple Sclerosis is miserable. I know many of the reasons I have had awful relapses previously were because I was stressed about work, life, medication, money, and many other issues we all face.

Something else I have always had a hard time with is fatigue. It is hard for me to sleep most of the time and even more so during the insanely HOT summer months. I do try getting enough sleep, but it hardly ever happens, which more than likely has something to do with the inability to turn my mind off. Unfortunately, my mind is always racing, and I have not figured out how to stop this. It does not matter what day it is or what time I go to bed, I am awake at the same time every single day. If I am not awake at a certain time, the cats will play their part and force me to wake up. The truth is, I tend to wake up early anyway because of the pain I experience.

Finally, pain is a major burden in my life. I deal with pain in multiple parts of my body 24 hours a day, 7 days a week, and with no breaks. The crazy thing is, that I would not feel normal if I did not have pain. Of course, I would love to have one day or even one hour when I was not in pain, but it is not in the cards for me. I try to embrace the pain and just ignore it the best I can. My logic is, why focus my attention on something that is not going to change and use up the energy I do not have I have for something cannot control when many other things need my energy and focus? Great way to think, right?

Thank you for visiting my site today. I hope you are having a wonderful and safe long weekend, so far. I would love to read your comments and any advice you have regarding what I have shared today. I promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

What do you do after a bad week?

The truth is, we all have bad days that can turn into a bad week. Unfortunately, last week was one of the worst weeks I have had in a long time. I was thankful for the week to end, but I am still struggling to forget and let go of all that happened. It is not easy to let go of things, even after you take full responsibility for your actions. Guilt and frustration can be consuming and almost make you feel like you are drowning.

After my fall on Tuesday evening, the week seemed to spiral out of control into nothing positive. The fall was terrifying and I should have done things differently than I did. I knew I was having dizzy spells and should have gone to bed instead of trying to do anything else. I know from past experiences what can happen if I continue to push myself when I feel dizzy and yet, I did not do what would have been logical. I have lived with Multiple Sclerosis and the issues that come along with it for over 20 years, so I know better than to keep pushing when things such as dizziness arise.

Another issue I should have recognized is that I was not allowing myself to get enough sleep. When we are sleep-deprived, things never go well. Our behaviors and way of thinking are compromised, which causes other awful things to occur. I had been pushing myself so much with my new job and allowing myself to be drained by stress and for what? I know that I am still new with this job and learning more daily, so allowing myself to be swallowed up with stress only creates more issues and my health to deteriorate.

Thank you for visiting my site today. I hope you are enjoying your weekend, relaxing, and doing what brings you joy. I am using this weekend as a time-out to recuperate and refocus because I know that is what I need. Life is too short to spend it stressed, especially because of a job. I am looking forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Sunday, preparing for next week

Many people do not understand how changes in the weather affect others because it might not have any negative effects on them. During the winter months, the cold weather causes me to tense my muscles more, which causes additional pain. Then during the warmer months, the heat causes several other problems that are uncomfortable to deal with. It never fails when the weather changes with the seasons my body takes time to adjust. It does not just take a few hours to adjust, it can take weeks to adjust until I begin to feel semi-normal.

Currently, the temperatures change daily, and this is not easy for me. Last week there were a few days when the temperatures were mild but rainy. Rain causes increased pain issues, but I can deal with them for the most part. On other days the temperatures were extremely uncomfortable because it was too hot. Unfortunately, next week several days the temperature is going to be pushing 90 degrees, which is far too hot for April.

I have learned how to tolerate different weather better since being diagnosed with Multiple Sclerosis over 20 years ago. I will not say it is easy but decided to not let the weather and the MS control my life. I know life is short and feel strongly we must learn to adjust when things get difficult so we can enjoy life to the fullest.

Do you begin to feel different during the different seasons? If you do, how do you manage? Unfortunately, it is only April and we have not entered summer yet. There is no preparing for the ridiculously hot weather, but I will do my best to not be outside in the hot weather. Like I have done previously when I need to leave the house, I will start my vehicle ahead of time, so it has time to cool down before I drive. I already have dizzy spells randomly, but when I am overheated the dizziness is much more intense.

This weekend I have tried to rest and recuperate from last week as much as possible. I can admit that I have not gotten as much sleep as I would have liked, but I did try. Next week is going to be busy and possibly more exhausting than last week was. I have a doctor’s appointment tomorrow afternoon and will need to miss a few hours of work but will be making the time up. I am also planning to work two hours of overtime each day.

Thank you for visiting my site today. I hope you were able to enjoy your weekend. Thankfully, the weekend is not over yet and we have a few hours left to rest or do anything else we desire. I look forward to reading your comments and will respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa