Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Thank goodness the weekend is here 😊! Last week felt extremely LONG with starting a new job after being unemployed for three months, learning something new, and struggling with increased pain. I am not sure if the reason for the increased pain is strictly due to lifting something a little too heavy for me or if there is another reason. I am sure the awful back pain is from that, but not the leg pain, or maybe they are linked somehow.
It is strange because I missed working so much and now after one week, I am exhausted. I meant to “try” sleeping in this morning, but I woke up at the same time I would during the week. I do set an alarm, but I am always awake before it goes off. I think I have an internal clock that never changes. It is okay though because I am going to try relaxing some today and hopefully that will help my back feel a little better. I mean my back does hurt all the time, it is just slightly more intense right now.
Everyone was talking about their weekend plans yesterday at work, which I of course, do not have anything exciting going on 😊. I want to catch up on writing posts I have planned, reading my book, cleaning the house, and deciding what we can donate. I enjoy donating to others because it may help them. We should all want to help others that are in need because it can help ease any stress they are going through.
Thank you for visiting my site today. I hope your weekend has started well and you are staying safe. The weekend is here, and I hope whatever you do, you will stay as safe as you can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Congratulations y’all, we survived another week! How was your week? The weeks can feel long, draining, and exhausting so I am ready for the weekend. This was my first week back working after being unemployed for three months and I am glad that I am working, but I am worn out. I knew my last job very well because I had been in that industry for six years and I know I will learn this new job and be good at it as well. Good things take time and patience, which I lack patience, and am trying to learn that as well😊!
Friday is a good day to let go of anything negative that occurred during the week, so we can enjoy the short weekend ahead. We have to deal with the stress from the week for five LONG days and only have two short days to relax and do what makes us happy. We should never hold onto things from the week that brings us down or make us feel sad. I hope the quote I am sharing with y’all today will help you learn to let things go and be free from the negative things in life. I think we would all be surprised to see how freeing it is to let go of what brings us down and causes negative emotions.
Now that the weekend is almost here, do you have any plans? I am sure you will not be surprised to know that I do not have anything exciting planned. I want to go through my closet and decide what to donate. I also plan to go through the house to see if there is anything not in use that can be donated. I guess I think if it is not in use and has not been for a while, we are not using it and someone else might benefit from it. I also want to clean the house because I think it looks like a mess. Of course, I will also not be getting up to an alarm clock and hopefully, I will be able to sleep in a little. Another thing I have to do is let my back heal because I lifted something a little too heavy the other day and it has been hurting worse than normal since.
Thank you for visiting my site today. I hope you enjoyed what I have shared and the quote helps you let go of any negative feelings caused by the past week. Anything that you do have planned for the weekend, I hope it brings you a lot of joy and you do so safely. I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Unfortunately, most of us have been profoundly hurt and disappointed by someone we trusted and cared about. Forgiveness can be extremely challenging because the emotions involved can be intense. Understanding that forgiveness is not for the other person, but for our peace and happiness does not make it easier. How can you forgive someone that caused you so much pain, whether they apologize or not? I have always thought the words “I am sorry”, are just empty words and even more so when the same situation happens repeatedly.
Before I continue, it is important to understand forgiveness does not mean we are excusing the other person’s behavior, or we are forgetting what occurred. We can forgive, but the mind is not able to forget the pain we felt. Forgiveness can release us from the control of the person that harmed us and offer peace to move on.
When someone we trust causes us pain, we often want retaliation and revenge. We desire to hurt that other person as deeply as we were hurt. This does not do any good for anyone involved and allows for a negative and endless cycle to continue that pain.c
The benefits of forgiveness are infinite. Letting go and releasing the anger and pain can improve our health and enable peace into our hearts and mind. Forgiveness can lead to healthier relationships, improved mental health, less anxiety and stress, fewer depression issues, a stronger immune system, and an improvement in our heart health and self-esteem.
The bigger question is, how do we forgive. This is a process that cannot be rushed. It takes time because the pain feels so raw. You first need to be able to talk through your feelings. Before we can forgive someone, we need to embrace the feelings and put them into words, so we understand them clearly and the person that caused the pain understands what the damage was done.
Finding the bright side of the painful situation will not be easy, especially at first. Once you have had space from the issue, you may be able to see what was gained from this experience. You may never find the benefit to the cruel and emotional situation, but chances are you will feel like a better person for the compassion and understanding you embraced.
The bigger hurts can take a lot to forgive. Instead of seeing every detail and every hurtful moment, try to start small and forgive the small issues first. It is natural to struggle with forgiveness, but we can become better and learn more by practicing forgiveness daily.
We must also decide if we want to forgive or not. This decision should be thought about clearly and not taken lightly. Will forgiveness strengthen the relationship, or will it destroy the relationship are just a few things to think about before you decide.
One thing I always do when I have been hurt is, I never go to bed angry. Anytime I tried to sleep when I was upset and hurt, I cannot sleep. I think we should never go to bed angry or leave the house angry because bad things happen when we least expect them.
Overall, I am decent with forgiveness. I will be honest with you, there are a few people in life that I struggle to forgive because of how awful and painful the experience was. There is one person I will never forgive because the situation went on for a long time and did immense damage to my life, but that person is no longer alive. I guess when someone is not alive, there is not a need to forgive is there? Other people in my life have done some detrimental things and I know holding onto the hurt is only doing further harm, but some things are impossible to let go of. I am working on this and know there will come a day I can forgive these people but will never forget the hurt.
Thank you for visiting my site today and reading this post about forgiveness. When you have been hurt in the past, how did you get through the pain and forgive, or did you not decide to forgive? I am looking forward to reading your thoughts on this post and will respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
There have been many challenges we have faced during the past few years. All of this takes a lot of courage, perseverance, dedication, determination, and a great amount of internal strength. I completely understand how this can feel overwhelming and we might want to throw our hands up and give up on what we need and want. Sometimes it might feel like the battle within is too demanding, but if we do everything we possibly can and continue fighting we will eventually win the war.
For all of us that are living with a chronic and incurable illness, the obstacles may seem like they are endless and maybe they are. However, if we do not keep pushing through with all we can, we will never know what we are capable of. I have always believed that behind every door we close, something better is waiting around the next corner. We will not be able to know our full potential if we do not at least try.
All the small or large issues we deal with in life provide us with an opportunity and a learning experience. It might never seem like it at the time, but surviving these issues makes us the strong people we are today. It is crucial to view the struggles we face in life as a building block to the incredibly strong people we were meant to be instead of as an inconvenience.
If you take a few minutes to think about your life, would you be who you are today if it were not for what you have been through? Honestly, I do not know who I would be if I did not have the experiences I did have. Of course, not all our experiences have been pleasant and sometimes we do not want to remember them because they may have been awful. The hardest things we have gone through gave us the most valuable lessons.
You do not have to answer this question but at least think about these questions. What were a few of the most hellacious, painful, and complicated things you have gone through in life, and what did you learn from those experiences? I am not going to go into detail about one of my experiences that was like this, but I will tell you this ordeal taught me to be strong and to never allow anyone to mistreat me. For the most part, we can decide who we allow in our life.
It is extremely important to understand that trust is something that is earned and not given immediately. It is not easy, but we should try to at least give others the benefit of the doubt, but without putting too much trust into that person. The hard part about this is, we are all human and sometimes people will do something to betray our trust. Once trust is lost, it is not easy to get back because it takes a lot of work and healing from whatever hurt the betrayal caused. There is not a timeline to when we “should” heal from times when another’s deception because we are all different and heal in various ways.
It is a little ironic that I started a post about headaches and have been dealing with one ever since. I am hoping for the headache I have had for several days will get better soon, so I can finish the post to share with y’all. I think the information that I have so far will be beneficial to anyone that experiences headaches more than just occasionally. Considering I have been dealing with headaches most of my life, I would have thought I would be used to them by now, but unfortunately, I am not. Even though I deal with pain 24/7 the pain does not stop me from doing what I want in life, but a headache will stop me completely. I guess no one has or could get used to them though.
Thank you for visiting my site today. I am sorry that I have been a little absent lately, but hopefully that will change soon, and this headache will go away. I am looking forward to reading your comments, which I will respond to as quickly as I possibly can. Even though I know the COVID cases as decreased greatly, I hope you are all continuing to stay as safe as you can. Please remember that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I hope y’all are having a good weekend and you are staying safe. I know we all look forward to the weekend because it gives us time to rest and recuperate from a long week. How is your weekend going so far? Did you have a good week? I do hope last week went well for you and your weekend is everything you want it to be. Last week was a mixture of stress and more stress for me, but at least that is in the past now!
My day on Thursday was a little stressful because it started at a consult with the endodontist that will be doing my root canal next week. I did not like this doctor right away because he was a little rude and extremely offensive. His assistant was sweet and told me that doctor was a straight shooter, but there is a fine line between being honest and rude. I told him right away that I knew my mouth was a mess because of all the medications I have been on due to my MS, mainly steroids when I had a relapse, and I was only concerned with the two teeth that were in pain. Instead of addressing my reason for being there, he went onto telling me I needed a good dentist that was not going to be terrified when they looked in my mouth. For someone that has HIGH anxiety with the dentist, this was not a good start.
My weekend did not start in the best way because our older cat, Sundance was not acting right on Saturday morning. I think it is safe to say that y’all know how much I love my cats and that I would do anything in the world for any of them, so seeing him being lethargic was extremely. Every morning Sundance gets two medications for his asthma and he takes them in a pill pocket, which he never has a problem with because he thinks they are treats. He would not eat the pill pockets and would not even purr like he always does. While in complete panic, I called his doctor’s office. The veterinarian called me back about 15 minutes later and said there was a cancellation and to bring him in. Typically, Sundance fights me when I try getting him in the carrier, but he did not fight me at all. His doctor’s office is only 1-2 miles from our house, so it does not take but a few minutes to get there, but he cries the entire way. Today, he did not make a peep, but I made it in record time because I might have been speeding.
With COVID, owners are not able to go into the office. So, I texted the number when we got there and waited. The vet tech, Sarah, is one of the nicest people I have ever met, and she was there last week when Sundance had to go for his yearly check-up. She came out and with her kind and understanding personality said to him, “Sundance, you were just here baby, what is going on?” Through my tears and hysteria, I filled her in on what was going on. She told me they would take good care of him and that I did the right thing to bring him in. She told me that she understands worrying about my baby because she is the same way and that she has an older cat that is going through chemo. I cannot even imagine how stressful that must be, but I appreciated her kindness and empathy.
After waiting about 15 minutes, but it felt more like an hour, Sarah came back out to explain what was going on with Sundance. She said his heart and lungs sounded great, but he had an exceedingly high temperature of 104.9. Sundance has a UTI, which could have been caused either by the stress of the two new kittens or the car ride last week to get to the doctor’s office. As I said, he hates being in the car and hates going to the doctor and he is a baby about things, especially when I cannot be with him. They gave him an antibiotic by injection, so I would not have to give him more pills. The antibiotic will work for 2 weeks and he should start feeling better soon. They also gave him pain medication, just to keep him comfortable. The vet tech and doctor said he will be sluggish from the pain medication, especially because this is the first time, he has had one.
Once I got Sundance home, he just laid around and looked very confused. He still would not eat or drink, but just wanted to sleep and rest. The new kittens, Willow and Penelope tried getting close to him because they seemed concerned, which was sweet to see. I have tried leaving him alone because I did not want to upset him, but I did put his water dish close to him so he could drink when he wanted to.
I have always taken great care of our cats and it was torture seeing him not feel well. I hated not being able to help him feel better. I have never felt so helpless because there is nothing, I can do to speed up Sundance’s healing. I am glad we never had two leg children because I think I would be in the ER every other day. Of course, Sundance is not able to tell me how he is feeling, but I can tell from the look out of his eyes that he does not feel well.
Thank you for visiting my site today and reading what I have written. Please keep Sundance in your thoughts and hope he feels better soon. I will keep an eye on him throughout the night and hope he is back to his normal self in the morning. Sundance has a huge personality and even though he is 10 years old, he still plays like a kitten. I think because of what we went through with Chloe in early February, I am overly cautious and on top of things. I have always been the type that worries, but our cats are like our children, so I worry even more. I will keep y’all updated on Sundance’s healing from his UTI and pray he gets better soon!
I hope the rest of your weekend goes well and you stay safe! I would love to know what you thought about this post and I will respond as quickly as I can. Considering I have been a ball of stress because of Sundance, the only way I can stay calm is to write about it. We all need an outlet in life, and this is mine! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes.
Multiple Sclerosis can be a challenging illness to live with, but there are often ways to manage the difficulties. Many things can trigger symptoms, but there are also ways to avoid many of these triggers. It takes time to understand what exactly triggers your symptoms and then to discover the best way to avoid them. Just like each person experiences MS differently, each person will have different triggers and ways to combat those triggers. Of course, please remember that I am not a doctor or medical professional, I am just another person living with MS, and have researched the topic. Today, I am going to share 10 triggers and ways to avoid these triggers.
1. Stress: We all experience stress in our life but having a chronic condition like Multiple Sclerosis can create an entirely new source of stress. Other types of stress can be a result of work, personal relationships, or financial struggles. Too much stress for anyone can cause difficult times, but too much stress for someone with MS can contribute to the worsening of symptoms.
Ways to avoid stress might include finding a relaxing, stress-reducing activity that takes your mind off stress. This activity is anything you find enjoyable because this is for YOU and YOUR health. A few things that may appeal to you are yoga, meditation, and breathing exercises. These practices can help you to relax and obliterate risks for causing symptoms to worsen.
2. Heat: Any form of heat whether it be from the sun, sauna or, a hot tub can be too extreme for people with Multiple Sclerosis. This can often time lead to an exacerbation of symptoms. From my own experience, heat is the enemy which is difficult because I love the beach. I think my saving grace at the beach is the ocean breeze!
It is not always easy to avoid the heat, especially where I live in the south. The best way to avoid this is to keep your house cool and purchase extra fans. Also, on days when there is extreme heat avoid direct sunlight, wear light loose clothing, and stay in the shade as much as possible. Steer clear of saunas, hot tubs, and those hot yoga studios.
3. Childbirth: Many women with MS experience a relapse after giving birth. As a matter of fact, 20-40% of women endure a relapse in the period of time after giving birth. Thankfully, my husband and I do not have children, so I have not experienced this issue. Of course, no one can prevent a relapse after childbirth, but this would be a time to take some steps to reduce how severe the impact is. During the immediate days after childbirth, lean on family and friends to assist with your new bundle of joy so you may get rest and take care of yourself. This can help your body recover more effectively.
4. Becoming Sick: Certain types of infection can cause a relapse and MS can create certain types of other infections. Infection such as the flu or even something as simple as the common cold may cause MS symptoms to worsen.
Avoiding sickness can be challenging, especially with COVID spreading like wildfire. Even with the numerous challenges involved with avoiding getting sick, living a healthy lifestyle can help with preventing infections and other illnesses. It is also helpful to wash your hands for at least 20 seconds multiple times a day and distance yourself from anyone that is sick, especially if you are experiencing a relapse.
5. Some Vaccines: While most vaccines are safe and recommended for those with Multiple Sclerosis, certain vaccines contain live pathogens, which can create the risk of exacerbating symptoms. If you are experiencing a relapse or taking certain medications, consult with your neurologist before getting any vaccines because it might be in your best interest to postpone the vaccine. Your doctor will know the best way to handle this and will advise you regarding vaccines.
I will be completely honest with y’all with the medication I take for MS, Gilenya, I was advised years ago to not get vaccines. Of course, that was 20 years ago and so many changes with medications with additional research. I had always been leery of getting anything and it was not due to the needles, I just feared for negative interactions. However, my current neurologist told me things with the Gilenya had changed over the years and the only vaccines that were not safe were the ones that were live vaccines, and I was able to get the COVID vaccine and I can get the flu vaccine if I decide I want it. My neurologist did highly recommend I get the flu vaccine, but I am not in any rush to do this!
6. Vitamin D Deficiency: At least one study discovered that people with lower vitamin D levels have an increased risk of relapse than someone with adequate vitamin D levels. It has been suggested that Vitamin D can protect against developing MS, but even more research that revealed Vitamin D affects the disease as it is needed.
The best way to prevent the issue of Vitamin D deficiency is to make sure your doctor regularly checking your Vitamin D levels. There are supplements available, some foods have high amounts of Vitamin D, and safe sun exposure can help increase and maintain your levels. However, while supplements may seem safe and legit, it is best to discuss any supplements with your doctor before beginning them to ensure there are not any negative interactions and they will provide suitable results.
7. Inadequate Amount of Sleep: Sleep has an important role in our overall health. The body utilizes sleep to repair the brain and restore other areas that have been damaged. When we do not get sufficient sleep, our body does not get the necessary time to rest and rejuvenate. Too much fatigue can trigger symptoms and/or make symptoms worsen. With muscle spasms, pain, and tingling, MS can make sleep rather troublesome.
Considering how vital sleep is for our health, it is crucial to discuss sleep issues with your doctor. Bring the issue to your doctor’s attention can help determine if any other conditions causing the sleep struggles.
8. Poor Diet: A well-balanced and healthy diet, along with regular exercise can be beneficial for avoiding relapses and/or reduces Multiple Sclerosis symptoms. A diet considering of processed foods will not supply your body with the nutrition that is required.
To avoid developing a poor diet habit, working with a dietitian to discover the best healthy eating plan you can carry on with could be extremely helpful. Although, research is not clear as to the best diet is for people with MS, eating healthy foods can have a positive impact on everyone’s health. Concentrate on good sources of protein, healthy fats, and carbohydrates is one of the best ideas.
9. Certain Medications & Stopping Medications Too Soon: The truth is some medications that can make symptoms worse. Your neurologist will need to monitor all medications you are taking to ensure there are no interactions that can trigger symptoms to worsen. Even though some medications can have negative side effects, this does not mean you should stop any abruptly. You should always consult with your neurologist before starting or stopping all medications as to not increase your risk of a relapse.
The 10th Trigger Can Be Pushing Yourself Too Far & Too Hard: As already stated, fatigue is a common symptom for those living with Multiple Sclerosis. With that said, if you have MS and continuously push yourself to go with too little sleep and/or overwork yourself physically and/or emotionally, you might face ramifications. The combination of overexertion and fatigue can trigger a relapse or make a relapse last longer.
The best way to avoid a relapse due to pushing yourself too hard is, be easier on yourself or at least listen to the cues your body is telling you. Start slowing down when you become tired. Rest as much as possible when you can. Understand that pushing yourself to exhaustion, the recovery will take that much longer. It is important to know that our body does know when it has had enough and when it needs to rest and take a break!
I hope the information provided in this post will be beneficial whether you have MS or another chronic condition. Living with any chronic condition can be complex and I am only way too familiar with Multiple Sclerosis, and with March being Multiple Sclerosis Awareness Month, I wanted to be able to share as much useful information as I could.
Thank you for visiting my site today! I hope you have a nice and safe weekend! I am looking forward to reading your comments and I promise to respond as quickly as I possibly can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
In previous posts, I have explained that Multiple Sclerosis is an autoimmune and neurologist illness. What this means is MS affects the nerves, but also the body’s defenses to fight disease fails and begins to attack the cells. The immune system attacks the body’s myelin when you have MS. Myelin is a protective substance covering the nerves, so when this happens it leaves the nerves unprotected. The nerves being unprotected makes them vulnerable to damage, which causes them to not function as they would if there was healthy myelin. The damaged nerves create a wide range of symptoms that vary in seriousness.
A few additional facts regarding MS to understand are:
1.Multiple Sclerosis is a chronic condition, which means it is a lifelong condition and it does not currently have a cure. It is important to understand that even though there is not a cure, it is not fatal. There are 2.3 million people worldwide living with MS and they all have the standard life expectancy. It is only in rare cases there might be complications severe enough to shorten the life of a person. Overall, with MS most symptoms can be regulated with medication, adjustment to lifestyle, or both.
2. Multiple Sclerosis affects younger adults, and often women. Although MS can be diagnosed in children and older adults, people are mainly diagnosed between the ages of 20 and 50. Women are two to three times more likely to develop MS than men. If the person is diagnosed is over the age of 50, this is normally called late-onset MS. It can be challenging for older adults to find a diagnosis of MS due to other age-related conditions having similar symptoms.
3. Multiple Sclerosis can be arduous to diagnose. Often symptoms and single tests are not enough to be able to make an accurate MS diagnosis. The challenges are due to the symptoms mirroring the symptoms of other conditions. Numerous tests that can be used to rule out other potential causes of the symptoms a person is experiencing, which include:
A. Blood tests to rule out Lyme disease, which can trigger the same symptoms of MS.
B Neurologist Exam
C. Magnetic resonance imaging (MRI)
D. Visual evoked potential (VEP) test, which looks for impaired transmission present along the optic nerve pathways.
E. Cerebral Spinal Fluid (CSF) Analysis is a way to look for conditions affecting the brain and spine. The CSF analysis is a series of laboratory tests performed on a sample of the CSF, which is a clear fluid that cushions and delivers nutrients to the CNS.
F. Optical coherence tomography (OCT)
4. The symptoms involved with Multiple Sclerosis vary and the list is long. The truth is, there is no such thing as typical symptoms because everyone that lives with this illness experiences it differently. Some symptoms may simply come and go, or some may regain a lost function, such as bladder control. A few possible symptoms include numbness and tingling, vision problems, balance and mobility issues, and slurred speech. The unforeseeable pattern of symptoms is due to whatever nerves are being attacked by the immune system at any given time. Most things are just unpredictable, and we must deal with the issues as they come up.
5. Multiple Sclerosis is comprised of relapses and remissions. Remission is the period of time when the symptoms have improved. Remission does not indicate the MS is gone, but these periods may last days, weeks, months, or in some cases years. Relapse or exacerbation is the incidence of a new symptom or worsening of an old symptom. This occurrence can be mild or severe enough to interfere with the ability to function. No two exacerbations are the same, so it is important to consult with your neurologist when you deal with one.
6. There is a cognitive part to Multiple Sclerosis. All the damage MS causes to the nerves can also impact critical thinking and other cognitive (mental) skills. It is not unheard of or abnormal for people with MS to have issues with memory and or finding the right words to convey what they are thinking. A few other cognitive effects may include:
*An inability to concentrate or pay attention
*Decreased problem-solving skills
*Difficulty with spatial relations, which means the ability to perceive two or more objects positioned in space relative to oneself and in relation to each other.
*It is normal for cognitive problems to create frustration, depression, and/or anger, but these are issues your doctor can help monitor and manage.
7. Multiple Sclerosis has been labeled as an “invisible illness” or “silent disease”, which makes sense because at face value people with MS look no different than those without MS. Symptoms such as blurred vision, sensory problems, and chronic pain cannot be seen by anyone else. However, some people that do require special accommodations, even though they do not have mobility issues and appear to be fine. One reason why MS has been labeled a “silent disease” is that even during remission, the disease is still, unfortunately, progressing, which has been referred to as “silent progression” of MS.
8. Staying cool whenever possible is greatly beneficial. Heat intolerance is another common issue that can cause an exacerbation of symptoms. People with MS may experience an increase of symptoms from hot weather or sun exposure, fever or illness, hot baths, or showers, and overheating from exercise.
It might be helpful to use fans and air conditioning, cool drinks, and/or icy compresses to stay cool. Wearing layers of lightweight clothing that is easy to remove may serve as a benefit as well. Also, utilizing a cooling vest that can be purchased online. Although people might experience a heat-related relapse, it is important to understand that heat does not cause MS to progress any faster.
9. Vitamin D plays a vital role in Multiple Sclerosis. Research has indicated a link between Vitamin D and MS, which showed the nutrient can function as a protector against MS and possibly lead to fewer relapses. Sunlight triggers the production of Vitamin D in the body, but that sun exposure can also lead to heat-induced symptoms. There are plenty of ways to increase Vitamin D without sun exposure which include fortified milk, orange juice, cod liver oil, salmon, tuna, and eggs or there are also Vitamin D supplements available.
I hope you found this information useful for yourself or someone you know. Please just keep in mind that I am not a doctor or medical professional, I am just someone that has lived with MS for over 20 years. I have experienced most of what is in this post, but that one thing I did not do when I was diagnosed was have the CSF Analysis. I have heard it is not pleasant, but people do live through it. There are still a few days left in the month of March and I do plan on doing a few more posts for Multiple Sclerosis Awareness. I do feel like there is a lot of information available and it needs to be shared with as many people as possible!
Thank you for visiting my site today. I always appreciate your continued support and truly love reading your comments. I hope you are having a good week and you are staying safe because COVID is still a threat. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Hello Tuesday, my friends! I was not able to do my typical Motivational Monday post because I have been dealing with a nasty migraine for over two days now. The worst of this evil migraine was Sunday evening into Monday, but it is trying to let up a little now. Work yesterday was awful because looking at a computer screen only increased the pain I was having in my head, but I still did the best I could. I was supposed to have a meeting yesterday afternoon, but thankfully the meeting was postponed until this afternoon, I am not sure how well I could have dealt with a meeting with the migraine.
Of course, I endure pain every day of my life and the only pain I am not able to handle well is head pain. My husband was SO attentive and kept getting me fresh ice packs to put on my head and was willing to do anything else I needed. An ice pack typically helps relieve my head pain, but it was hardly touching the pain. When I say nothing provided any relief from the pain, I really do mean NOTHING at all even lessened the pain!
Considering it is still Multiple Sclerosis Awareness month and I have lived with this illness for over 20 years, I am planning to do a few more posts about MS. I know I have mentioned my first neurologist to y’all before. Dr. Kaufman was the first doctor I saw for this unpredictable and irritating disease. No matter how much I fought him and/or gave him a hard time, he never gave up on me. The man had the patience of steel and a heart of gold. His Nurse Practitioner was also a gem and was very compassionate. The two of them as a team were one of a kind and I will never forget either of them.
I did learn some sad news about my previous neurologist over the weekend. Overall, he is fine and healthy but lost his wife to cancer. This nice, loving, compassionate, trustworthy, and amazing man is one of the BEST and I hate to know he has gone through another tragedy in his life. It does not seem like the man cannot catch a break. I sent him a message with my condolences on Facebook, not that he checks those messages, but I did ask the former NP that does stay in touch with him to let him know he is in my thoughts and that I miss him. Then to give him a laugh, I asked the NP to tell him if he moves to the city I live in I will pay for his house, if he will treat me!
Once my evil migraine finally started to settle down and I thought I would be able to finish the post I was working on, my legs, feet, and hands started to misbehave! They decided to work together to create the annoying tingling feeling, with a touch of pain! When this happens, there does not seem to be anything that will relieve the problems. I guess I should be used to this by now, but unfortunately, I am not!
Yesterday was busy at work, which must have been a fluke because today is not at all busy. I am going to try finishing one of the posts about Multiple Sclerosis that I started and will hopefully finish it today, but we will see! To be honest with y’all, I do have a slight and manageable headache, which I think is a result of stress. My legs, feet, and hands are still misbehaving, but it is not as bad as it was last night, and I think is because of the rain we are having today.
Thank you so much for visiting my site today. I hope you are having a good week, feeling the best you can, and staying safe! I do look forward to reading your comments and will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
As you read this post, please be advised that I am not a medical professional. The information in this post is based on the research I have done since being diagnosed with this disease 20 years ago. The one thing about this disease that is important to understand is, it is extremely unpredictable and everyone, no matter what type of MS they have experiences it different. It does not matter if two people have the same type of MS, everyone experiences and deals with it differently.
Multiple Sclerosis (MS) is an autoimmune disease that means that the body’s immune system attacks its tissues. This is a very unpredictable disease, and everyone experiences it differently. In this post, I am going to explain the four different types of MS and the distinctive characteristics of each type.
Radiologically Isolated Syndrome (RIS), is not considered part of the MS path, but has been utilized to categorize those with abnormalities on the brain and/or spinal cord that are consistent with a lesion of MS, and do not have any current or previous neurological symptoms or abnormalities discovered on a neurological exam. Many individuals had an MRI due to symptoms, such as headache, and revealed lesions appearing similar to those found in MS. During a study in 2020, it was uncovered that more than half of individuals with RIS will develop MS within 10 years.
Clinically Isolated Syndrome (CIS) is a path of MS. CIS is referred to as the first occurrence of neurologic symptoms, which last at least 24 hours. This occurrence is caused by inflammation OR demyelination in the Central Nervous System (CNS). CIS can be classified as monofocal OR multifocal. Monofocal is when a person experiences a single neurologic sign or symptom that is caused by a single lesion. An example of this is an optic neuritis attack. Multifocal occurs when a person endures more than one sign or symptom caused by lesions in more than one area. An example of this is an optic neuritis attack and tingling in the feet. An important thing to be aware of is, just because an individual experiences CIS, it does not mean they will develop MS. The healthcare provider faces two challenges with diagnosing CIS:
1. Determining if the person is experiencing a neurologic episode caused by damage to the CNS.
2. Determine the chance from the damage the person is experiencing is a form of demyelination that will develop into MS.
Relapsing-remitting MS (RRMS) is the most common and the type I was diagnosed with 20 years ago. Approximately, 85% of individuals with MS are originally diagnosed with RRMS. This type of MS has evidently defined the attack of new or increasing neurologic symptoms. The attacks are also referred to as relapse or exacerbations and are followed by periods of partial or complete recovery, which is also known as remissions. While there is not any obvious progression of the disease during a remission, symptoms may disappear or some of the symptoms may continue and become permanent.
RRMS can be further described by inflammatory attacks on myelin, which is the layers insulating membranes surrounding nerve fibers in the central nervous system (CNS) and the nerve fibers. Throughout the inflammatory attacks, activated immune cells cause small, restricted areas of damage that create the symptoms of MS. Considering the areas of the damage varies, no two people will experience the same symptoms at any given time.
Those who have RRMS tend to have more brain lesions and more inflammatory lesions that appear on the MRI scans. Individuals are often diagnosed with RRMS in their 20’s and 30’s but can also occur in both childhood and later adulthood. Women are diagnosed 2-3 times more often than men.
The symptoms of RRMS can and normally are different for each person, but there are some common issues. The most common symptoms for RRMS are fatigue, numbness, vision problems, spasticity or stiffness, bowel and bladder problems, and issues with cognition. It has been suggested that a transition from RRMS to years SPMS typically will take place in people who have lived with RRMS for at least 10, but this does not always happen.
Secondary Progressive MS (SPMS) is another type of MS. This type of MS usually follows a period of the relapsing-remitting disease, the levels of disability gradually increase with or without evidence of disease activity.
SPMS is basically a second phase of the disease. Individuals with this type of MS may or may not ensure relapses caused by inflammation. However, the disease slowly changes from the inflammatory process like seen with RRMS to a consistent phase classified by nerve damage or loss.
Before the availability of disease-modifying therapies, some studies suggested that 50% of those diagnosed with RRMS would shift to SPMS within 10 years, and 90% would change within 25 years. The many different medications that are available in 2021 have provided a positive impact on disease progression. However, experts say it is still too soon to know the extent to which these disease-modifying treatments will change or slow the transition to SPMS.
Considering the transition from RRMS to SPMS is a gradual process, the healthcare provider will not know when exactly it occurs. The challenges the healthcare provider faces is establishing if:
1. The worsening is permanent, but some damage remains after the inflammatory attack ended, meaning the individual is experiencing an RRMS disease course.
2. OR the disease continues to get worse, but the individual is no longer enduring an inflammatory relapse, which would indicate the person has transitioned to an SPMS disease course.
The fourth type of Multiple Sclerosis is Primary Progressive MS (PPMS). This type is classified by worsening neurologic function from the onset of symptoms without early relapses or remissions.
Each person that lives with PPMS will experience this disease differently. Commonly, PPMS may have short intervals when the disease is stable, with or without a relapse or any MRI activity, as well as duration when there is increasing disability occurring with or without new relapses or lesions on an MRI.
PPMS is different from RRMS and SPMS because it does not include the same issues with inflammation. Although people with PPMS have fewer brain lesions than those with RRMS and SPMS, they do tend to have more lesions on their spinal cord. Typically, people with PPMS experience more problems with walking and may require more assistance with everyday activities.
From my own experience with Multiple Sclerosis, I was a terrified child when I was diagnosed. I was only 18 years old and did not know much about the disease. In my naïve childlike mind, I was going from being diagnosed to a wheelchair and then death. Yes, I was diagnosed, but did not end up in a wheelchair yet. I think it is extremely important for anyone newly diagnosed to do research, build a strong and honest relationship with a neurologist, and have a strong support system. It can be a scary and terrifying diagnosis, but a normal life can still be lived, especially one the right disease-modifying treatment is found!
Thank you for visiting my site today. This is my first post about Multiple Sclerosis for MS Awareness Month. There is so much information out there about this disease and I only wish I had this when I was diagnosed all those years ago. I can remember how I felt because I was alone in the exam room when I heard the news and it felt like the room was spinning out of control. I did not want anyone to know I had MS, but that was rather silly. Now days, I am open about it and want to help others that are dealing with this disease. I want y’all to know, no matter how alone you feel, you are never alone! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes! I also want you to feel free reaching out to me any time if you ever need any extra support and help!
You may or may not remember that I did already get my first COVID vaccine and had my 2nd one scheduled for this past Saturday. Although last week was painfully difficult and I considered rescheduling, I did not want to risk missing my chance of completing the COVID series and be a little safer with this virus. My husband went with me to complete the 2nd COVID vaccine and after that, we went to pick up the remains of our sweet Chloe that had passed away the previous Sunday. I do not know if I would have had the strength to pick Chloe up if I did not have my husband with me, so I am glad we were able to do this together.
I will say there was a mixture of emotions with picking up Chloe’s remains, one part of me was incredibly sad and the other felt a sense of comfort to have her back home with us. I know some people that cannot understand having a cat cremated, but I prefer this to bury her. I already had mentioned in a previous post we lost another cat to cancer and had her cremated as well, so now they are both on our mantel in the living room. It has taken time, but I think we are both slowly healing from the loss of Chloe. Neither of us is ready to take in another cat, but we do know we will in time, so our other cat is not lonely. Our other cat does show signs that he misses Chloe and is acting out a little, but it is probably to get attention. Or maybe he is doing these things because he is just being a little boy! Who knows, but we are giving him a little slack right now!
If you read the post I did after I got the first COVID vaccine, you might remember that I was extremely nervous. When I did the 2nd COVID vaccine, I was not as nervous. I did hear there was a greater chance of side effects after the 2nd vaccine, but I did not really have any. I will admit, my arm hurt a lot for a few days and the pain did go up into my shoulder and neck, but I am used to pain. I did have a slight cough and headache, but again, I am used to things like that. Even after the two weeks or so after the 2nd vaccine, we are supposed to be protected more, I still intend to behave like I did not get the vaccine and continue wearing a mask the rare times I leave my house. I guess I look at things like it is better to be safe than sorry!
As y’all already know, I did take a break from blogging last week. I was too emotional and heartbroken to do much of anything but did try to stay busy at work. I did not have any extra energy when I was done at work to write, look at another computer screen, and was not even able to do much with crocheting the blanket I had started for my mother and her boyfriend. I am happy to say though, I have finished their blanket and will be sending it to them this week! I have always found crocheting to be relaxing and it is not all that difficult. I am happy that I can send them an extremely late housewarming gift to use in their home! They both know that even though I have known him for a lot of my life, I took a while to warm up to my mother’s boyfriend. I think I have grown a lot over this past year and gotten to know him better and think he is a decent person. I also think they are good for one another and he has helped her overcome some demons she carried with her for too long.
In life, things can get challenging and unique situations can arise. These are just a couple of the reasons why forgiveness and acceptance are so crucial. Until we walk in another person’s shoes, we will not know what they have been through in life. I think all the trials and tribulations we experience in life will either make us or break us. Everything we encounter in our life can make us even stronger than we were yesterday, and we must take all these learning experiences as opportunities for improvement!
On another note, today would have been my Poppy’s birthday! I know I have written about this amazing man before and I explained how hard I took it when he passed away back in 2013. There has not been one day I have not thought about him or wondered if he would be proud of the woman I have become. I would like to think that there are at least parts of me that stem from him. I know he was a kind, accepting, and reasonable man. He never judged someone because of the color of their skin or who they loved. These are a few things that I am deeply passionate about because the color of someone’s skin does not matter and who they love does not either. What truly matters is the way we treat other human beings, and everyone deserves respect!
Thank you for visiting my site today! Previously, I was doing Tranquil Tuesday, and sharing a quote, but today I wanted to do something a little different. Honestly, in a sense thought of my late Poppy does give me feelings of tranquility! Today’s post was a combination of a few things to get a little caught up! As always, I look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!