My Letter to Multiple Sclerosis

Good Morning

Good morning Y’all! I hope you are having a great weekend so far and you will be able to enjoy your Sunday! After all the topics I have been able to address, I managed to forget one of the most important topics. While reading several different blogging forums, I thought it would be a good idea to address the thing that brought me to blogging in the first place, my Multiple Sclerosis. So today I am going to share with you the letter I would love to send to this illness. This might be a little longer and full of emotions, but it is also very real! I hope you enjoy this! Maybe this could be something for you to try, write a letter to your illness!

Dear my not so loving friend Multiple Sclerosis,

You invaded my body about 18 years ago and just stuck with me without fail. We have been through many relapses together over the years; all the while you tried to defeat me. But let’s face it, I will not surrender to your persistent bad behaviors and will not allowms 3 you to keep me down for too long.  

In the beginning of our “so-called friendship”❤, you tried to take my vision from me, which let me just say was not a good way to become the lifelong friends we were forced to be!! Of course it took a little help from the not so exciting steroids, but my vision thankfully returned to normal! You have tried over and over again throughout the years to take control of my legs by causing me so much pain and numbness, but I am still able to walk without the assistance of what I think you were aiming for. You have caused me so much pain and suffering for way too many years, but I still continue to fight back with all my might because I never plan to give up and allow you to control my life! The truth is, you are the one losing our constant battle and I am shockingly enough the one winning the war!

Let us not forget the fact that you have chosen to take up to residence in my brain causing many other issues for me! There are the several times a week debiting only choice we haveheadaches which normally end to severe nausea. The headaches you decided to inflict me with make it nearly impossible to do anything at all! It was also decided by YOU to cause some brain fog and dizziness, making me feel confused and frustrated. The horrible back, neck and leg pain is more than enough for me to live with, don’t you think? Please get out of my brain because you are being EVICTED IMMEDIATELY!

I bet you thought you were being clever by giving me hugs every now and then! Well I do not like or appreciate your unwelcome hugs! So in the future, please do not do that! Just in case you did not already know, your hugs are very painful!

I guess during the 18 years we have spent together, you have become the ❤friend that I never asked for or wanted and you just will not go way to give me a break. You are pretty much worse than the most obnoxious uninvited guest that will NOT LEAVE no matter how many hints you are given! The only thing I can do now is just embrace the fact that you are just here for the long haul and will surface whenever you please without so much as a warning which let’s face it is really inconsiderate! 

Oh and what about all those different medications you want me to take? Do you not realize just how much some of these medications can and do affect a person’s body or do you just not care? Why must you be so complicated that the smartest minds of the world can’t seem to find a way to make you vanish? They sure can create so many drugs to “slow” the progression of the illness down but not make the illness stay in a remission Get MS montage plate picstate FOREVER! I am starting to think that you, the malicious drug companies and the not so compassionate greedy insurance companies are working closely together to do nothing more but make LOTS OF MONEY yourselves!

So my dear not so sweet friend MS, now that you have heard a little from me about how you make me feel, when are you going to move out of my body allowing me to be free of you? I think it is long since time to depart from each other!

Thank y’all for visiting my site today❤! I really hope you enjoyed reading the letter I would love❤ to be able to send off to Multiple Sclerosis. Of course I would love to read your thoughts on this, so please let a comment for me and I will respond as quickly as I can. I really hope you are feeling well today and can enjoy your Sunday! As always remember that I am sending you  LOTS of love💞 and comfort!

My signature heart

❤Always, Alyssa❤

 

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MS Hug

MS Hug 1Do y’all know what the worst and most unwelcoming hug ever is? The MS Hug is definitely the type of hug none of us really want! It is anything but loving and comforting causing a lot of discomfort and possible pain. The MS Hug is a collection of symptoms that is caused by spasms in the intercostal muscles. The muscles that are involved are located between the ribs. The MS Hug got its “nickname”, so to speak, from the way the pain wraps around the body basically like a hug or a girdle. The involuntary muscle spasms are also referred to as girdling or MS girdling. This not so exciting hug can last anywhere from a few seconds to hours at a time! The good news is the MS Hug does not mean the MS has progressed; it is just having what I refer to as a temper tantrum and will go away!

What exactly does the MS Hug feel like? Like Multiple Sclerosis itself, the MS Hug is very unpredictable and experienced differently by each person. Some that have experienced the MS Hug have pressure around the waist, torso or neck instead of pain. Some people encounter a band of tingling in the waist, torso or neck. Others that experience the MS Hug have a sharp, stabbing pain or a dull widespread aching feeling. During the MS Hug some may also experience a sensation of squeezing, crushing, MS Hugcrawling feelings under the skin, hot or cold burning or even pin and needles.

How is the MS Hug treated? Considering the MS Hug is a result of muscle spasms, the pain that is felt is neurologic in nature. This basically means this is nerve pain which can be difficult to resolve. Believe me I know how frustrating that is to hear, but sadly it is true! I have dealt with the wonderful MS Hug many times and it is never a pleasant hug! Over-the-counter pain relievers such as Ibuprofen or Acetaminophen are not likely to bring any true relief. According to the National MS Society the drug classes approved to treat the nerve pain from the MS Hug are: antispasticity medications (ex. diazepam), anticonvulsants medications (ex. gabapentin) and antidepressants (ex. amitriptyline). Please remember that I am not a medical professional, I just have personal experience with the MS Hug and this is what was recommended to me previously. 

What are possible triggers of the MS Hug? As with everything else involved with Multiple Sclerosis, triggers vary from person to person. However the most common triggers are: heat, stress and fatigue, all times when the body is not running at 100%. This could be an indication that rest needs to increase, take time to cool off from the heat properly and find ways to de-stress. We all know that excessive heat is very unhealthy and that too much stress is detrimental to all of us!

Ms Hug Information - Updated 4/2/13 : General Discussion - Page 2

Ms Hug Information – Updated 4/2/13 : General Discussion – Page 2 – Top Master Data

My personal experiences with the infamous MS Hug have been limited, but they have happened WAY more than I would have liked! I have actually been dealing with this hug on and off for a few days now, but of course was trying to just ignore it as I always do. I have not done the appropriate things to help heal, like finding ways to de-stress. Of course I know better, but I continue to take on more stress instead of brushing it off! It is so important to know there are somethings in life we have NO control over, so why bother allowing that into our lives? I ask myself that question daily, but yet I do always try to help others that do not seem to appreciate or even really want my help! I guess I will learn my lesson someday! 

Just out of curiosity, have any of you experienced the MS Hug? The name makes it sound so sweet and wonderful, but my goodness it has never been welcomed or enjoyed! I am hoping that considering I am doing what is necessary this hug will go away soon and NOT come back anytime soon. I feel like MS does not understand personal boundaries. Unwelcome and unwanted hugs definitely invades my personal space! 

I sincerely appreciate you visiting my site today! I look forward to any comments you may have and I do promise to respond as quickly as I can. Thank goodness we are half way through the week and the weekend will be here soon! I hope y’all have a great and relaxing evening!

Love 2

Always, Alyssa