Never give up!

Have a peaceful dayGood evening y’all! I hope you have had a pleasant day and you are feeling well! I really appreciate you taking the time to visit my site and definitely do encourage your comments, I do promise to respond as quickly as I possibly can!

No matter the pain and/or discomfort I may feel, this pesky little thing called MS will never control my life! I will make small and simple adjustments to accommodate the MS to remain comfortable in my life, but I am still determined to live my life in ways that bring me the most joy!

This massive heat wave so many of us are experiencing is causing me to feel extremely fatigued, but letting that run my life is just not an option. Like I said, small andheat wave simple adjustments need to be made at times and to not be exposed to the heat too much is one adjustment that I am willing to make! I was able to adjust my hours at work so the initial part of my day isn’t in the extreme heat, well that was not really the reason for the adjustment of my hours, but it does help other issues as well. I get to work around 7 am which is early, but the sun has not been heating the world up quite yet! Usually I will leave work between 1 and 2 when it is pretty hot and my car feels like a mobile sauna, but I will sit for about 5 minutes with the windows down allowing for the a/c to start blowing cold air! I can not drive when it is too hot because I will feel very faint, which is pretty dangerous! If I have to go to the grocery store, I always try to go do not confuseeither early in the morning or later in the evenings when the sun has gone down. These slight adjustments to handle the heat work fairly well for me at least.

On a crazy plus side, my migraine has taken a short break to allow the other pains I feel play their part in my day-to-day life. Honestly I would much prefer my back and legs to hurt rather than having a massive migraine. The pain I feel constantly in my back and legs is aggravating and makes things a little difficult, but at least I can still function. Even though it is insanely hot outside I will still use my “friend” the heating pad when I am in my chilly work office or at my house. It seems a little strange that the heat outside makes me feel terrible, but my heating pad heals my pain! Maybe it is more the humidity outside making me feel all the darn fatigue. Who knows!?

I am truly happy to say that with the migraine taking a vacation I was able to work six and a half hours for the past two days! I have made a promise to myself to never give up dont give uppushing myself to work additional hours each week. Truthfully there might be times I do not have the strength to increase my hours, but that will never mean it isn’t possible.

I hope y’all have a peaceful and relaxing evening! I hope you are feeling well and taking the time to think about your own needs, which we often tend to neglect. Please never forget that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

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How do you describe?

HOPE 2.0How do you describe the pain you are in when it can be SO indescribable at times? Living each day with an incredible amount of pain definitely gets a little old, but it also leaves no choice except to keep moving forward. Dwelling on the pain does not make it go away, but I do believe makes it SO much more intense. On my worse days, I do my very best to just keep my mind busy so I am not thinking about the pain I am feeling. It really seems like the moment I stop doing something all I can think about is how much I am hurting, whereas if I just stay busy I do not have time to allow myself to really feel it. I do understand that rest is important, especially when the pain levels are high, but at the same time rest makes me think too much and then I hurt more! I guess it can really be a no win battle between me and my pain, but I do not ever want it to defeat me entirely!

I think everyone that battles with pain issues handles them differently; we all just need a way to manage and escape at times! Do you struggle with pain and how do you handle it? Today for instances my pain is pretty darn high, so this morning I watched a little TV and then did laundry. I did not do anything too strenuous as that would probably cause painful daysme to hurt even more. Normally I would go grocery shopping, but thankfully NOT today!! When I am trying to keep my mind busy to avoid thinking about my pain I often will read a good book or write because both of those things keep me relaxed! I thought for a long time about what I wanted to write about and honestly had a little bit of writers block, but then decided I should write about what I was feeling. I am guessing that many of you can relate to this painful topic and I really wish none of us could!

So on top of dealing with my normal pain, I have been battling with terrible migraines that just will not let up! I went to bed last night with a migraine and woke up with it still with me. I guess I was hoping I could sleep it away, I hate to admit it but I was wrong! pain changes peopleThankfully right now it has finally started to ease up and now it is just a mild little headache that I can handle. I never thought I would say this but the pain I have daily is so much easier to live with than migraines I have been struggling with ALL week! Even though I know I can’t, but if I could choose I would much rather have my back and legs hurt a lot worse than to have a migraine.

Thank you so much for stopping by my site today. I really do appreciate you taking the time to read and do encourage you to leave a comment, which I promise to respond to as quickly as I can! I truly do love your comments and they are always very helpful! I hope your weekend is going well and you are feeling as great as you possibly can! We all deserve a restful and peaceful weekend! As always I am sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

Weather & Migraines

Friday CalledGood afternoon and Happy Friday Eve y’all! How are you feeling today? I really hope your week has been very pleasant and you are feeling as wonderful as you possibly can! Do any of you suffer from migraines and how do manage them? I have dealt with migraines/headaches since I was a child and still can not find a good way to control them.  I guess I think they are something that is completely uncontrollable! The migraines/headaches I get way too often make it impossible to do anything at all. The only thing I can do is lay down in a dark and quiet room with one ice pack on my head and another at the base of my neck. This is just a miserable time! 

There are several different types of weather related migraines, that you really can not control. Unfortunately we can not change the course of mother nature. 

  1. Temperature Changesmigraine triggers
  2. High Humidity
  3. High Winds
  4. Stormy Weather
  5. Extremely Dry Conditions
  6. Bright Lights and Sun Glares
  7. Barometric Pressure Changes

It has been painfully hot and humid where I live, which is only causing me LOTS of fatigue and terrible headaches/migraines. It is crazy how much barometric pressure impacts the way we feel. High or rising barometric pressure may indicate better weather Barometric-Pressure-Headacheand rising temperatures, but also increased humidity levels. High humidity is an extremely common trigger for a migraine to occur! Falling barometric pressure is a signal that storms are on their way. The more severe the storm is going to be, the more significant and rapid the changes will be. A complete change in pressure levels may only take a few minutes, but those that suffer with migraines/headaches will be among the first to know about the changes. Both high humidity and extremely dry conditions only exacerbate dehydration, which can and will cause additional migraines/headaches, which in only one reason why it is so important to drink plenty of water.  

Being exposed to both bright lights or sun glares can activate something known as photophobia. Photophobia is a painful sensitivity to light and can create some massive headaches/migraines. Personally I have found that the fluorescent lights at work tend tofluorescent-light-sensitivity-infographic be the main reason for many of my headaches. When I first got to work this morning all lights were turned off and I felt fine. About an hour later someone in my office decided we needed those horrible lights turn on and shortly after that my migraine started to ease into the place it felt it needed to be. I still do not believe the lights were necessary as we could see just fine with the nature light coming in through the windows! 

Thank y’all for visiting my site today! I am always so thankful and appreciative for your continued support and amazing comments that I do always respond to. I hope y’all have a nice peaceful evening and are as happy as I am that tomorrow is Friday! Fridays are so wonderful because then the much desired weekend follows! As always I am sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Half way there!

wednesday.jpgGood afternoon y’all!  I hope you are having a wonderful Wednesday! I am beyond excited that this week is almost over and next week is a four-day work week because of the holiday! 

I have honestly had kind of difficult week dealing with pain issues! There is a certain amount of pain that I find tolerable, but then there is another kind that makes me feel absolutely miserable and incredibly fatigued! Even though I have been dealing with a terrible amount of pain that is mixed with headaches and muscle spasms, I have been able to go to work. I did not make it through six hours Monday and Tuesday, but I did today! Of course after whatever hours I do work, I come home and I am absolutely exhausted. But the simple achievements are better than none! There has been another issue I have experienced this week and I have no idea what is causing it. Both Monday and Tuesday while sitting at my desk at work, I had several what seemed to be fainting episodes. It was really scary, but I was thankful I was sitting down. I did call my doctor’s office to let them know about this, but not so surprising they did not call me back. Have any of you ever experienced this before?

I am a pretty resilient person and I never give up on the goals I have for myself!! A while back I had made the goal to work six hours each day, which honestly did not happen at first. However I did not allow that to keep me down for too long  and tried to not view it as failure. I have always been veryresilience1 hard on myself, but seriously that does not help at all. Being too hard on ourselves only sets us up for hard times, which is never good. My goal now is to just continue to always be resilient and keep moving forward! 

I have to say everyone on this blog helps me see the strength I have and keeps me focused on that strength! There are so many incredible people who I have had the pleasure to get to know and I am very thankful for this. There really seems to be so much ugliness in the world today, but y’all allow me to see the good in others!

I hope y’all had a great day and I hope you are feeling well. Thank you for stopping by my site today and I really do encourage your comments. Y’all already know that I do respond as quickly as I possibly can! I hope you have a lovely evening and do what helps you relax! As always I am sending y’all LOTS of ❤love and comfort!

My signature heart

❤Always, Alyssa❤

 

Just Another Day

just-another-day.jpgGood afternoon y’all! For me today is just another day of resting trying to get past this incredible amount of pain I have been dealing with for WAY too long! This obnoxious pain is mixed with that burning sensation that will not cool down, tingling throughout my entire body, numbness which sounds like it would be better than pain, but it really isn’t it is almost worse and a headache that seems never-ending! The nurse practitioner I normally deal with is off today and the doctor that I do my best to avoid is in clinic today, which makes her pretty much unavailable. The only thing the nurse I spoke with was able to say is rest and staying hydrated is important until I can get the MRI, which I was still waiting to hear back from the assistance program. I did just email the Multiple Sclerosis Society of America, which is the company that will either approve or deny assistance for me to get MRI assistance. Now the response I got back from my email was quite upsetting, which is something I really did not need today. They stated the doctor did not provide an order for the MRI, which made no sense to me considering I did send them everything I was instructed to by the doctor’s office, imagine that another miscommunication from them! To hopefully make things actually work out for me, I emailed the nurse requesting the MRI order. Honestly the nurse has been the ONLY person at this office that has been at all helpful to me.  Maybe I will get that back from them sometime this week!!

It is a little frustrating when you are doing everything you possibly can to get well, but itbutterfly-3054736_960_720 just isn’t working the way it should be! I am resting, staying hydrated and taking all the medications the doctor has prescribed, but there is still NO relief yet! My guess is the stress this issue is causing me is not helping me get better, but it is in fact making things so much worse! Isn’t it crazy when we know what is causing our problems to become worse, but yet we still change absolutely nothing with our thought process? Obviously I know exactly what is making all my pain more intense, but I am still getting myself worked up and upset about it anyways!

I think to help get my mind off of my many pain issues; I am going to work more on my bullet journal I am trying to put together. I do not want to start it at the end of the month because I do not think that makes sense, so I am planning this for July! My plan so far is to have a few trackers that will include: symptoms and food I eat in a day (this will be to peace 1see what foods could be causing more issues for me). I want to also include a Hopes & Dreams page, Positive thinking page to really keep my mind in a happy place and a Gratitude page. I might include a page of books that I want to read considering sometimes I think of a book I want to read, but then forget the title! Then lastly I want to include a page of ideas for my blog because I come up with random ideas, but then forget what I wanted to write about when I try to start! I guess I can contribute my forgetful mind to brain fog from the MS.

I really appreciate y’all visiting my site today! Your comments are always appreciate and encouraged because I do love hearing from y’all! I am doing my best to respond as quickly as I can, but with the way I am feeling there is a chance I might be a little delayed, but I will respond!! I hope y’all are having a good day and feeling well! As always no matter how I am feeling or what I am dealing with I am sending y’all LOTS of ❤love and comfort!

My signature heart

❤Always, Alyssa❤

My Letter to Multiple Sclerosis

Good Morning

Good morning Y’all! I hope you are having a great weekend so far and you will be able to enjoy your Sunday! After all the topics I have been able to address, I managed to forget one of the most important topics. While reading several different blogging forums, I thought it would be a good idea to address the thing that brought me to blogging in the first place, my Multiple Sclerosis. So today I am going to share with you the letter I would love to send to this illness. This might be a little longer and full of emotions, but it is also very real! I hope you enjoy this! Maybe this could be something for you to try, write a letter to your illness!

Dear my not so loving friend Multiple Sclerosis,

You invaded my body about 18 years ago and just stuck with me without fail. We have been through many relapses together over the years; all the while you tried to defeat me. But let’s face it, I will not surrender to your persistent bad behaviors and will not allowms 3 you to keep me down for too long.  

In the beginning of our “so-called friendship”❤, you tried to take my vision from me, which let me just say was not a good way to become the lifelong friends we were forced to be!! Of course it took a little help from the not so exciting steroids, but my vision thankfully returned to normal! You have tried over and over again throughout the years to take control of my legs by causing me so much pain and numbness, but I am still able to walk without the assistance of what I think you were aiming for. You have caused me so much pain and suffering for way too many years, but I still continue to fight back with all my might because I never plan to give up and allow you to control my life! The truth is, you are the one losing our constant battle and I am shockingly enough the one winning the war!

Let us not forget the fact that you have chosen to take up to residence in my brain causing many other issues for me! There are the several times a week debiting only choice we haveheadaches which normally end to severe nausea. The headaches you decided to inflict me with make it nearly impossible to do anything at all! It was also decided by YOU to cause some brain fog and dizziness, making me feel confused and frustrated. The horrible back, neck and leg pain is more than enough for me to live with, don’t you think? Please get out of my brain because you are being EVICTED IMMEDIATELY!

I bet you thought you were being clever by giving me hugs every now and then! Well I do not like or appreciate your unwelcome hugs! So in the future, please do not do that! Just in case you did not already know, your hugs are very painful!

I guess during the 18 years we have spent together, you have become the ❤friend that I never asked for or wanted and you just will not go way to give me a break. You are pretty much worse than the most obnoxious uninvited guest that will NOT LEAVE no matter how many hints you are given! The only thing I can do now is just embrace the fact that you are just here for the long haul and will surface whenever you please without so much as a warning which let’s face it is really inconsiderate! 

Oh and what about all those different medications you want me to take? Do you not realize just how much some of these medications can and do affect a person’s body or do you just not care? Why must you be so complicated that the smartest minds of the world can’t seem to find a way to make you vanish? They sure can create so many drugs to “slow” the progression of the illness down but not make the illness stay in a remission Get MS montage plate picstate FOREVER! I am starting to think that you, the malicious drug companies and the not so compassionate greedy insurance companies are working closely together to do nothing more but make LOTS OF MONEY yourselves!

So my dear not so sweet friend MS, now that you have heard a little from me about how you make me feel, when are you going to move out of my body allowing me to be free of you? I think it is long since time to depart from each other!

Thank y’all for visiting my site today❤! I really hope you enjoyed reading the letter I would love❤ to be able to send off to Multiple Sclerosis. Of course I would love to read your thoughts on this, so please let a comment for me and I will respond as quickly as I can. I really hope you are feeling well today and can enjoy your Sunday! As always remember that I am sending you  LOTS of love💞 and comfort!

My signature heart

❤Always, Alyssa❤

 

First time for Everything!

be-thankful-to-your-bad-days_516Today was my appointment with my MS Specialist and it went very well! The Nurse Practitioner I saw actually took the time to listen to my concerns and did not dismiss any of my fears. To be perfectly honest, I went into this appointment with low expectations to protect myself from disappointment and frustration. I am so happy to say that even though this appointment lasted a longtime; I left the doctor’s office feeling much better about the issues I have been struggling with. The NP took time to actually talk to me about the headaches I have had for so long and come up with ideas to hopefully eliminate them. We talked about the pain issues that have increased over the past few months and she had some very valid thoughts about why that was happening. She helped relieve the stress I was putting on myself about my illness progressing by reassuring me I am doing everything I can and feels that I am controlling it the best I can. She told me to not over think what could happen and just live in the moment. I thought that was great advice because I do tend to think everything and go to worse case scenarios all the time, which really is not helpful to me or my mental state. Moving forward I am going to stay on the Gilenya because it is the best choice for me and did control my illness for 6 years before I decided to try something new. I was thinking the Gilenya was causing my headaches, but the NP today pointed out that I had headaches way before Gilenya was a factor.  My appointment today was by far the best and most enlightening appointment I expectationshave had in a long time and gave me a new perspective on things!

As I already said, I went into my appointment today with very low expectation, which was helpful overall! I have found over the years if you set your expectations for others too high there will always be a high probability of disappointment. Therefore, if you just keep your expectations lower you will never be disappointed because you are not presuming anything! This may seem like a pessimistic way to live, but it saves a lot of heartache and frustration. In our hearts we know who we can count on in life and who we question counting on. Others must prove to us that we can rely on them and live up to the standards we have. I do believe we all need at least one person that we can truly count on and that person will never let us down. There is always at least one person you confide in and know they will always be there to support you, no matter what! Trust is a very delicate thing that can be destroyed quickly and take a very long time to rebuild, if it is even possible.

Of course I am delighted my appointment went as well as it did today, but now I am hoping the appointment I have next Thursday will go just as well. I will go into the 2-quote-about-no-matter-how-impossible-unattainable-or-unim-image-background-imageappointment next week just as prepared as I was today, but also go in with no expectations at all. I believe that being prepared and having notes with you can be extremely beneficial because it is easy to forget important details. I think being in the exam room can be a little stressful which makes it easy to lose track of what you want to discuss. Doctors have busy schedules and have a limited amount of time allotted to each patient. So I found having set topics you need to talk about ready will make the appointment much more useful to you and not waste any time! I know that if I did not prepare last night for this appointment and have my topics written down, I would have missed a lot of important information. 

I hope y’all had a great Friday Eve and I hope y’all are feeling well! I really appreciate you taking the time to visit my site today and I look forward to reading your comments! All of your comments are very meaningful to me and I will respond as quickly as I can. I hope y’all have a lovely evening!! I am always sending each of you lots of love and comfort! 

Love 2

Always, Alyssa