Let It Go Friday!

337828-Have-A-Relaxing-Long-Weekend...happy-Labor-DayHappy Friday y’all! I hope your week has been fantastic and with it finally being the end of the week, you are feeling the best you possibly can. Words cannot even begin to describe how glad I am to have a three day weekend because it is needed for SO many reasons. I think I have already made it perfectly clear how I feel aboutScreen-shot-2013-11-11-at-10.04.50-PM my manager, which is not all that great, but I am learning how to deal with him in healthier ways. I am pleasant when I first arrive at work and then only deal with him when it is absolutely necessary. Most things I can actually handle on my own and in a way that makes our residents and prospects feel understood and respected.

When things become unbelievably frustrating, I try my best to laugh it off and talk about happier topics. Sometimes changing the subject will distract people on bad situations. I think having the ability to add optimism to a negative situation will only increase morale and lessen the negative emotions. The residents at the community I work at respect me and know that if they call, email or come into the office, I will take positiveas much time as required to help resolve their troubles. 

I have already told y’all that I am THRILLED to have a three-day weekend, but there are still many negative feelings I have bottled up over the past week that I need to let go of. Today is the perfect day for not only myself, but for all of us to start letting go of negative feelings. I honestly believe that holding onto those pessimistic and defeatist thoughts will  only hold us back from living that happy life we deserve. The quote I am sharing with y’all today is to help you let go of anything negative you might be feeling and I think it speaks volumes!let go 14

I want to thank you for stopping by my site today❤ and to let you know that I always appreciate your continued and valuable communications. Whether it is on the quotes I share three times a week or something else I write about because I believe your thoughts add so much additional meaning! images (1)

I hope you have an excellent day and your weekend is filled with whatever brings you the most joy because you deserve it. Do you have any plans or are you just going to be spontaneous? I think part of my much needed long weekend will be enjoying not being awoken with an evil alarm clock and other things that I want to do. Please know that I will always be sending y’all LOTS of love ❤, comfort, and many positive vibes!

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❤Always, Alyssa❤

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Things I didn’t know about Gluten Intolerance!

good-evening-images-63Good evening y’all! I hope you are having a good week so far and hope it stays pleasant! Just think, we already made it through two days of the week, so we are almost half way there!

Y’all already know I have been battling with what I thought was a nasty stomach bug, but after doing a little research I do not think that is the case anymore. Of course I haven’t seen a doctor about it because I do not have insurance, but I think I figured it out on my own. I am about 99.9% sure I have developed Gluten Intolerance. I guess that is actually a good thing because understanding what is images (1)going on and understanding how to handle it will provide me with some relief or at least I hope it will! Obviously I am not a doctor, but I think I am familiar enough with the body I have lived in for almost 38 years. I am going to share with y’all what I have learned and please if you have any other helpful tips or ideas, please let me know!

Wheat-Gluten-IntoleranceI first want to clarify a few important details I have learned! Gluten Intolerance is often confused with other issues, like Celiac Disease or food allergies, but there are some differences and similarities. Gluten is a protein found mainly in wheat, barley and rye. This protein can cause digestive problems like gassiness, abdominal pain or diarrhea. With food allergies, the immune system overreacts to a particular food causing various reactions and levels of severity. Celiac Disease is an inherited autoimmune disorder that can damage the small intestines, but Gluten Intolerance almost mimics this.

Signs & Symptoms of Gluten Intolerance:10-Signs-Youre-Gluten-Intolerant-

  1. Bloating: This is when the belly is swollen or full of gas after eating. This is very common and does occur in 87% of individuals with Gluten Intolerance.
  2. Diarrhea, constipation and smelly feces: About 50% of individuals with gluten intolerance deal with diarrhea and 25% experience constipation. This is when you would experience inflammation in the gut after eating gluten. This damages gut lining, leading to poor nutrient absorption.
  3. Abdominal Pain: This is something else that is very common with Gluten Intolerance. 83% of individuals living with this intolerance experience abdominal pain.
  4. Headaches:  About 10-12% of the Western population experiences migraines. People with Gluten Intolerance are prone to migraines. 
  5. Feeling Tired: This is also being very common, leading to 60-82% of individuals with Gluten Intolerance experience this. People with this condition are prone to Gluten-Intolerance-Symptoms-Do-You-Have-Themfatigue and tiredness, having very low energy. Gluten Intolerance can cause iron-deficiency anemia. This is a condition in which blood lacks adequate healthy red blood cells. Red blood cells carry oxygen to the body’s tissues
  6. Skin Problems: There is a blistering skin condition called Dermatitis Herpetiformis, which is a manifestation of gluten-sensitive enteropathy, commonly known as celiac disease. This is not as common and can improve once on a Gluten-Free Diet!
  7. Depression:  Depression is not as common and only affects 6% of those living with11246-health-1-1 this intolerance. People with digestive issues seem more prone to both anxiety and depression.-Even though depression is not too common, there are a few theories for how Gluten Intolerance can lead to depression.*Abnormal  serotonin levels. Serotonin is a neurotransmitter allowing cells to communicate and is commonly referred to as “Happiness” hormones.

    *Gluten Exorphines, these peptides are formed during digestion of the gluten proteins. The gluten proteins may interfere with the Central Nervous System, which may raise the risk of depression.

    *Changes in gut microbiota. This is increased harmful bacteria and decrease beneficial bacteria increasing the risk of depression.

  8. Unexplained Weight Loss
  9. Iron-Deficiency Anemia: This causes symptoms such as low blood volume, fatigue, 6-signs-of-gluten-intolerance-300x165shortness of breath, dizziness, headaches, pale skin and weakness.
  10. Anxiety: This can affect anywhere from 3% to 30% of people worldwide. Involves feelings of worry, nervousness, unease and agitation. People with gluten intolerance are more prone to anxiety and panic disorders.
  11.  Autoimmune Disorders: Even though Gluten Intolerance is a separate issue from Celiac Disorder, I thought it would be good to share this as well. Celiac Disease is an autoimmune disorder causing your immune system to attach the digestive tract after consuming gluten. Typically people with gluten intolerance also have another autoimmune diseases to cope with.Gluten-Intolerance-Symptoms
  12. Joint and Muscle Pain: There is a  theory that people with Celiac Disease have a genetically determined over-sensitive or over-excitable nervous system. Gluten exposure may cause inflammation in gluten sensitive people. This inflammation may result in wide-spread pain, including joints and muscles.
  13. Leg or Arm Numbness:  Neuropathy symptoms involving numbness and tingling in the arms and legs.
  14. Brain Fog: This issue affects up to 40% of those with Gluten Intolerance. Forgetful, difficulty thinking, feeling cloudy and mental fatigue.

After learning more about this the things I deal with almost make more sense in  a way. Battling with stomach issues for over on month, numerous headaches/migraines, ud6zQ3sJTmewbULOd0n7_Beyond-Gluten-Free-Article-2018-1280x720-1constant feeling of fatigue, obnoxious levels of anxiety, nervousness, worrying and quick agitation, dizziness at random times, weakness, joint and muscle pain, numbness and cloudiness in my mind. I always blamed so many of these symptoms on Multiple Sclerosis and maybe that is still the case, but maybe it is a Gluten Intolerance causing more of it. 

I am doing my best right now to change my diet, but it really isn’t easy. I bought several gluten-free products at the grocery store, clementines and carrots, but honestly have not seen much of a change. Logically, I have only been trying this for a couple of days and I know it takes time for this type of change, but at least I am trying! Do y’all have any advice you would be willing to share? I know you always have great ideas and fantastic suggestions that I do appreciate!download

Thank y’all for stopping by my site today and I am sorry this was a little longer than most of my posts, but there was so much information to share. I hope you have a lovely and relaxing evening and of course I hope you are feeling well! I know it often takes me longer to respond to your comments, but I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

Crazy decisions and side effects!

side effectsI have always thought it was a little crazy and extremely frustrating that medications meant to slow the progression of illnesses down, are accompanied by a long list of possible side effects. I know that the Gilenya I take daily is supposed to slow the progression of my Multiple Sclerosis, but it has a really LONG list of potential side effects and at one point that was what pushed me to want to make a change in my treatment plan.

The middle of last year I was having so many issues with terrible sinus headaches and migraines that I wanted to find out what was causing them. After reviewing what side images (2)effects Gilenya posed, I saw somethings that were common was headaches and sinus troubles. I was not just looking the side effects up on Google, but I was on Gilenya’s actual website, so I took this very serious as I am sure most people would. I went to my doctor with these concerns and she pretty much dismissed my thoughts claiming that it was not all that common with this medication and that I shouldn’t be doing this kind of research because it was “false” information. I argued back asking how it could be false when it was on the manufactures real website!? Of course I was frustrated that my valid concerns regarding my health was being ignored and not even willing to discuss more at that oral_therapy02time, so I decided to ignore her medical advice and demanded that I try a new medication immediately. It wasn’t until I told her there was another oral medication I read about that I thought would be better for me she finally decided it was worth her precious time to have a conversation with me. She tried her darndest to use the fear tactic, which of course wasn’t working well with me and only caused me to question her logic further. I know it sounds crazy, but I was completely convinced that she was receiving kick-backs from the drug company and me not changing medications would continue to be financially beneficial to her.

In preparation to change my treatment plan from Gilenya to Tecfidera I discontinued the Gilenya last July. I was required to be off medication completely for 6 weeks, so all the 51WIQmA-fnL._SL1000_Gilenya I had taken needed be out of my system and allow the Tecfidera to be able get into my system. In early September I started on Tecfidera which again is an oral medication. During this time my MS did not get better, but much worse! I guess MAYBE the doctor was correct when she said Tecfidera wasn’t going to be strong enough for me or maybe I had the nasty relapse because of ALL the stress I was under. I was so worried about the headaches and the fact that Gilenya could have been the cause and then even more concerned that my MS was progressing way too soon in my life. Whatever the cause was the MRI I had in early October was HORRIBLE, landing me right back to the drug I was convinced was causing my headaches!

It still doesn’t seem fair to me that we have to make the decision if we would rather deal Gilenya+Fingolimidewith the side effects of these so-called helpful drugs or be disabled. As difficult as it is to deal with the massive headaches/migraines, I would much rather deal with them rather than lose my normal abilities, like walking without assistance. I still do not think it is right for anyone to have to make a decision like this, but I guess it is what it is!

I have been back on the Gilenya for a little over a year now and I do still deal with sinus trouble and migraines, but at least the MS hasn’t to have progressed. I do think that until there is a cure for MS, which I must believe will happen in my lifetime, I will not be changing medications! Now that my husband and I have completed our move, I am ms-research-2013-6-638searching for a new MS Specialist, who will hopefully be more knowledgeable and have much better bedside manner. I know I have already shared this with y’all, but I am NOT a fan of my previous specialist. As crazy as this may sound, I want a specialist that is an older gentlemen because I have found they are more understanding and considerate. Of course going with an older person, I run the risk of them retiring, like two of my previous specialist did and I absolutely ❤ LOVED❤ them! I am sure that with the determination I have, I will find one that is best for me and my personality. I guess it shouldn’t be as important to have the warm and fuzzy with a doctor as it is for the doctor to be knowledgeable, but I need to feel comfortable with them in order to trust the doctor.

I always appreciate you taking the time to stop by my site today and I always love reading your got-hope1comments! I hope y’all are having a nice weekend and you are feeling as good as you possibly can! I must say having a long weekend is absolutely wonderful and I have been able to rest, but still do things that needed to be done! Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

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❤Always, Alyssa❤

Out Sick!

out sick todayGood morning y’all. I am so sorry I have not been able to respond to all of your great comments from yesterday and today. I started having a terrible migraine on Sunday afternoon, but thought it had eased up enough to go to work yesterday. I was very wrong about my migraine being better because while I did work yesterday, I started feeling the pain ease back in. Even one of my co-workers looked at me and said “Alyssa, you look terrible!” I did manage to work for six hours, but when I came home did not leave the bed. The massive migraine brought all of my pain to the extreme! Unfortunately, I am home from work today to try to get better. I will do my best to start responding to your comments, but please be patient with me I am still feeling pretty darn horrible!!

I certainly hope you are having a good day and I hope you are feeling okay. Thank you so much for taking the time to visit my site and leave me great comments. Even though I am feeling pretty bad I am still sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Never give up!

Have a peaceful dayGood evening y’all! I hope you have had a pleasant day and you are feeling well! I really appreciate you taking the time to visit my site and definitely do encourage your comments, I do promise to respond as quickly as I possibly can!

No matter the pain and/or discomfort I may feel, this pesky little thing called MS will never control my life! I will make small and simple adjustments to accommodate the MS to remain comfortable in my life, but I am still determined to live my life in ways that bring me the most joy!

This massive heat wave so many of us are experiencing is causing me to feel extremely fatigued, but letting that run my life is just not an option. Like I said, small andheat wave simple adjustments need to be made at times and to not be exposed to the heat too much is one adjustment that I am willing to make! I was able to adjust my hours at work so the initial part of my day isn’t in the extreme heat, well that was not really the reason for the adjustment of my hours, but it does help other issues as well. I get to work around 7 am which is early, but the sun has not been heating the world up quite yet! Usually I will leave work between 1 and 2 when it is pretty hot and my car feels like a mobile sauna, but I will sit for about 5 minutes with the windows down allowing for the a/c to start blowing cold air! I can not drive when it is too hot because I will feel very faint, which is pretty dangerous! If I have to go to the grocery store, I always try to go do not confuseeither early in the morning or later in the evenings when the sun has gone down. These slight adjustments to handle the heat work fairly well for me at least.

On a crazy plus side, my migraine has taken a short break to allow the other pains I feel play their part in my day-to-day life. Honestly I would much prefer my back and legs to hurt rather than having a massive migraine. The pain I feel constantly in my back and legs is aggravating and makes things a little difficult, but at least I can still function. Even though it is insanely hot outside I will still use my “friend” the heating pad when I am in my chilly work office or at my house. It seems a little strange that the heat outside makes me feel terrible, but my heating pad heals my pain! Maybe it is more the humidity outside making me feel all the darn fatigue. Who knows!?

I am truly happy to say that with the migraine taking a vacation I was able to work six and a half hours for the past two days! I have made a promise to myself to never give up dont give uppushing myself to work additional hours each week. Truthfully there might be times I do not have the strength to increase my hours, but that will never mean it isn’t possible.

I hope y’all have a peaceful and relaxing evening! I hope you are feeling well and taking the time to think about your own needs, which we often tend to neglect. Please never forget that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

How do you describe?

HOPE 2.0How do you describe the pain you are in when it can be SO indescribable at times? Living each day with an incredible amount of pain definitely gets a little old, but it also leaves no choice except to keep moving forward. Dwelling on the pain does not make it go away, but I do believe makes it SO much more intense. On my worse days, I do my very best to just keep my mind busy so I am not thinking about the pain I am feeling. It really seems like the moment I stop doing something all I can think about is how much I am hurting, whereas if I just stay busy I do not have time to allow myself to really feel it. I do understand that rest is important, especially when the pain levels are high, but at the same time rest makes me think too much and then I hurt more! I guess it can really be a no win battle between me and my pain, but I do not ever want it to defeat me entirely!

I think everyone that battles with pain issues handles them differently; we all just need a way to manage and escape at times! Do you struggle with pain and how do you handle it? Today for instances my pain is pretty darn high, so this morning I watched a little TV and then did laundry. I did not do anything too strenuous as that would probably cause painful daysme to hurt even more. Normally I would go grocery shopping, but thankfully NOT today!! When I am trying to keep my mind busy to avoid thinking about my pain I often will read a good book or write because both of those things keep me relaxed! I thought for a long time about what I wanted to write about and honestly had a little bit of writers block, but then decided I should write about what I was feeling. I am guessing that many of you can relate to this painful topic and I really wish none of us could!

So on top of dealing with my normal pain, I have been battling with terrible migraines that just will not let up! I went to bed last night with a migraine and woke up with it still with me. I guess I was hoping I could sleep it away, I hate to admit it but I was wrong! pain changes peopleThankfully right now it has finally started to ease up and now it is just a mild little headache that I can handle. I never thought I would say this but the pain I have daily is so much easier to live with than migraines I have been struggling with ALL week! Even though I know I can’t, but if I could choose I would much rather have my back and legs hurt a lot worse than to have a migraine.

Thank you so much for stopping by my site today. I really do appreciate you taking the time to read and do encourage you to leave a comment, which I promise to respond to as quickly as I can! I truly do love your comments and they are always very helpful! I hope your weekend is going well and you are feeling as great as you possibly can! We all deserve a restful and peaceful weekend! As always I am sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

Weather & Migraines

Friday CalledGood afternoon and Happy Friday Eve y’all! How are you feeling today? I really hope your week has been very pleasant and you are feeling as wonderful as you possibly can! Do any of you suffer from migraines and how do manage them? I have dealt with migraines/headaches since I was a child and still can not find a good way to control them.  I guess I think they are something that is completely uncontrollable! The migraines/headaches I get way too often make it impossible to do anything at all. The only thing I can do is lay down in a dark and quiet room with one ice pack on my head and another at the base of my neck. This is just a miserable time! 

There are several different types of weather related migraines, that you really can not control. Unfortunately we can not change the course of mother nature. 

  1. Temperature Changesmigraine triggers
  2. High Humidity
  3. High Winds
  4. Stormy Weather
  5. Extremely Dry Conditions
  6. Bright Lights and Sun Glares
  7. Barometric Pressure Changes

It has been painfully hot and humid where I live, which is only causing me LOTS of fatigue and terrible headaches/migraines. It is crazy how much barometric pressure impacts the way we feel. High or rising barometric pressure may indicate better weather Barometric-Pressure-Headacheand rising temperatures, but also increased humidity levels. High humidity is an extremely common trigger for a migraine to occur! Falling barometric pressure is a signal that storms are on their way. The more severe the storm is going to be, the more significant and rapid the changes will be. A complete change in pressure levels may only take a few minutes, but those that suffer with migraines/headaches will be among the first to know about the changes. Both high humidity and extremely dry conditions only exacerbate dehydration, which can and will cause additional migraines/headaches, which in only one reason why it is so important to drink plenty of water.  

Being exposed to both bright lights or sun glares can activate something known as photophobia. Photophobia is a painful sensitivity to light and can create some massive headaches/migraines. Personally I have found that the fluorescent lights at work tend tofluorescent-light-sensitivity-infographic be the main reason for many of my headaches. When I first got to work this morning all lights were turned off and I felt fine. About an hour later someone in my office decided we needed those horrible lights turn on and shortly after that my migraine started to ease into the place it felt it needed to be. I still do not believe the lights were necessary as we could see just fine with the nature light coming in through the windows! 

Thank y’all for visiting my site today! I am always so thankful and appreciative for your continued support and amazing comments that I do always respond to. I hope y’all have a nice peaceful evening and are as happy as I am that tomorrow is Friday! Fridays are so wonderful because then the much desired weekend follows! As always I am sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤