First time for Everything!

be-thankful-to-your-bad-days_516Today was my appointment with my MS Specialist and it went very well! The Nurse Practitioner I saw actually took the time to listen to my concerns and did not dismiss any of my fears. To be perfectly honest, I went into this appointment with low expectations to protect myself from disappointment and frustration. I am so happy to say that even though this appointment lasted a longtime; I left the doctor’s office feeling much better about the issues I have been struggling with. The NP took time to actually talk to me about the headaches I have had for so long and come up with ideas to hopefully eliminate them. We talked about the pain issues that have increased over the past few months and she had some very valid thoughts about why that was happening. She helped relieve the stress I was putting on myself about my illness progressing by reassuring me I am doing everything I can and feels that I am controlling it the best I can. She told me to not over think what could happen and just live in the moment. I thought that was great advice because I do tend to think everything and go to worse case scenarios all the time, which really is not helpful to me or my mental state. Moving forward I am going to stay on the Gilenya because it is the best choice for me and did control my illness for 6 years before I decided to try something new. I was thinking the Gilenya was causing my headaches, but the NP today pointed out that I had headaches way before Gilenya was a factor.  My appointment today was by far the best and most enlightening appointment I expectationshave had in a long time and gave me a new perspective on things!

As I already said, I went into my appointment today with very low expectation, which was helpful overall! I have found over the years if you set your expectations for others too high there will always be a high probability of disappointment. Therefore, if you just keep your expectations lower you will never be disappointed because you are not presuming anything! This may seem like a pessimistic way to live, but it saves a lot of heartache and frustration. In our hearts we know who we can count on in life and who we question counting on. Others must prove to us that we can rely on them and live up to the standards we have. I do believe we all need at least one person that we can truly count on and that person will never let us down. There is always at least one person you confide in and know they will always be there to support you, no matter what! Trust is a very delicate thing that can be destroyed quickly and take a very long time to rebuild, if it is even possible.

Of course I am delighted my appointment went as well as it did today, but now I am hoping the appointment I have next Thursday will go just as well. I will go into the 2-quote-about-no-matter-how-impossible-unattainable-or-unim-image-background-imageappointment next week just as prepared as I was today, but also go in with no expectations at all. I believe that being prepared and having notes with you can be extremely beneficial because it is easy to forget important details. I think being in the exam room can be a little stressful which makes it easy to lose track of what you want to discuss. Doctors have busy schedules and have a limited amount of time allotted to each patient. So I found having set topics you need to talk about ready will make the appointment much more useful to you and not waste any time! I know that if I did not prepare last night for this appointment and have my topics written down, I would have missed a lot of important information. 

I hope y’all had a great Friday Eve and I hope y’all are feeling well! I really appreciate you taking the time to visit my site today and I look forward to reading your comments! All of your comments are very meaningful to me and I will respond as quickly as I can. I hope y’all have a lovely evening!! I am always sending each of you lots of love and comfort! 

Love 2

Always, Alyssa

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Fight for your health!

fight for a cureI hope y’all have a lovely Monday! First day of a new week may bring some wonderful and positive changes to all of our lives! I really appreciate y’all visiting my site today and as always love to read your comments, which I do respond to as quickly as I can! Most of the time I like to write about the random things that are on my mind. This helps me to release all those emotions and then getting your feedback help tremendously, so thank you for all of your fantastic comments!

How do you fight for your health instead of fight against it? It is so important to be vocal with your doctor and never allow them to dismiss what you say or rush you out of the exam room. We all know our bodies and how we are feeling better than anyone, so that should be listened to. I think at times it is hard to admit what our body is telling us and our body feels as though it has to scream it at us, which may cause additional issues. I am one that will ignore issues that arise for as long as possible because I do not want to admit to the problems. Ignoring or neglecting our health will never result in anything beneficial. This is where fighting for our health becomes extremely important. If we ignore what our body is telling us we are actually fighting against our own health.

I am actually going to my MS Specialist on Thursday. I am going to my specialist partially because I am supposed to see her every 6 months and partially because I want to share with her my concerns. I already know going in that my issues with headaches will be dismissed because she seems to think that MS and headaches have no correlation, but I think it is still important to bring the topic up once again. I also want to discuss with her the fact that the issues that came with my relapse in October have not really gone away. I am fully aware that the body heals from each relapse differently, but I should have improved drastically by now and not continue to have pain that affects my ability to work full-time. I just really need answers to why I seem to be at a stand still in health. Do y’all have any suggestions to how to grab this doctor’s attention?

I hope y’all have a great and relaxing evening! As always I am sending y’all lots of love and comfort! Try to hold onto your positive thoughts because they will help in the long run and negative thoughts will only hold you back.

Love 2

Always, Alyssa

Time Change Headaches!

edwardrmurrow1After we set the clocks ahead an hour on Sunday, my schedule seems drastically off kilter! Of course I did change all the clocks in the house ahead a hour, but at the same time I seem to have set my dates in my mind ahead an entire day! I thought Monday was Tuesday and I have thought all day that today was Wednesday! It is not a good feeling to realize what the day actually is and that there is still another day of the week. Hopefully my mind will adjust and actually know what day of the week it is! How are y’all adjusting to the time change? I hope y’all are adjusting better than I have so far! I think it is a little harder getting up in the morning and driving to work in the dark, but I guess on the plus side it does stay light out longer! It is always good to find the positive in every situation!

Crazy question for y’all! Those of you that have Multiple Sclerosis, has anyone ever told you that there is no correlation between MS and headaches? I ask because my current specialist has said just that. I had gone to her about the massive amount of headaches I suffer from and she said it does not have anything to do with my MS. I am sorry to say, but it is a quick and easy Google search to find out there is a relationship between the ms and headachestwo. It may not be an extremely common side effect, but Migraines are twice as common is those with MS that those without. Logically thinking if someone has a decent amount of lesions on their brain, how would that not contribute to headaches? I mean the brain has some intruders present that are not welcomed! Most people who I know that live with Multiple Sclerosis do battle with headaches of some sort. I think it is probably a good time to start looking for another specialist that I am a little more comfortable with. It is very important to have trust in your doctor and her comment made me lose trust in her!

The craziest thing happened to me today at work. One of my co-workers, that was not so pleasant while I was on medical leave, told me she was glad that I was back at work. All I could say was thank you and that I have been back working for a while now. She also decided to talk to me about an illness she was recently diagnosed with that make you lose your hair. As she spoke and told me about how depressed she had been, I did my best to try to motivate her to think positive. I told her that in a way she was lucky Kind wordbecause she has very thick hair and you were not able to see the bald spots she told me about. She even talked to me about the treatments she had to endure and at the same time praised me with how well I had the pain I deal with. It is crazy how it takes someone being diagnosed with an illness before they can have a heart for what another goes through. Even though I did have some ill feelings towards her because of how not compassionate she was towards me when I was struggling, I did feel it was best to try to be supportive and understanding of what she was going through. 

How are y’all feeling today? I hope your week is going well and you are staying as positive as you can. Y’all know that positive thoughts will in time bring positive things to your life! I sincerely appreciate you visiting my site today and I would love to hear your thoughts! I do respond to all comments as quickly as I can! I hope you have a nice and relaxing evening! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

 

Food For Thought!

foodforthoughtThis is just a little food for thought for everyone and I look forward to your responses! I know we all have our own conditions we are dealing with and they all cause various issues. We have learned to live with the pain, dizziness, numbness and numerous medications we are required to take, amongst many other difficulties. There are definitely days that are a lot more difficult to get through than others because we are frustrated with these troubles from our illness. I can only speak for myself, but when my multiple issues act up, I tend to take my frustrations out on my family members or really whoever is closest to me. Do y’all tend to lash out at those that are closest to you because you are aggravated with the medical issues?

One example I can speak to is, when my pain levels are through the roof I get a lot more irritated with the slightest of things. I will allow my pain to control my perception of what others are trying to do, even if they are just trying to help me or offer support. It can be so difficult to not allow for pain to control our emotions because sometimes you feel as though it will never go away!

I always wondered why we feel that it is okay to take our frustrations out on loved ones. I Frustrationguess maybe it is because most of our loved ones understand our struggles and therefore are more forgiving than others that do now know the circumstances would be. Or maybe I have it all wrong and not everyone takes their frustrations out on those closest to them and I am just mean when I am in pain. I do tend to have more of an attitude with my husband and my mother, but I never mean to be ugly to either of them. I also loss my temper a little more with my poor sweet and loving cats for reasons that are not at all logical. I may want them to just lie down and rest, but they have different ideas of what they want to do and I have learned controlling cat is almost impossible! In a logical frame of mind, I know that my husband, mother and cats are just acting out of love and they all want to make me feel better, so I truly feel bad for losing my temper with all of them from time to time!

So with all that said, please let me ask y’all a few quick questions! Do you find yourself taking your frustrations out on your loved ones? Does your significant other typically irritate you more when you are struggling with pain and or other issues? Do you tend to find parents more nagging or overbearing when you are suffering with your health issues? Or do you find it harder to be patient with your children and or pets when your health issues fare up? Oh and Heaven forbid you have to leave the house, do you find others a little Peacemore aggravating that you normally would?

I do try my best to remain quiet when I am dealing with pain, numbness and or headaches because I do not want to say something I know I will regret later. Again, maybe it is just me, but when I am suffering I would prefer to be left alone so that I can begin healing in my own ways. On normal days I do not like talking on the phone, so during these times I definitely have no interest in talking on the phone. I do not want to have to put on a  happy face or be polite and positive, I just want to be left in my own little negative bubble that will pop in time! My negative little bubble does not typically last an extended period of time, but it is my process of getting well! 

I want to thank y’all for visiting my site today and I really do look forward to reading your comments! I will respond to all comments as quickly as I possibly can! I hope y’all are enjoying this beautiful Saturday and doing what you want to do! The weather does not seem to corporate for long so we have to enjoy it when the sun is actually shinning down on us! Sending you love and comfort always!

Love 2

Always, Alyssa

Pain & Headaches Galore!

weekend1I hope y’all have had a great week and you are looking forward to a beautiful weekend! I have been a little absent for the past few days because I have been dealing with terrible headaches and pain. All these headaches and pain have caused me a lot of nausea and an inability to keep food down. This is the third day of these issues, but I am finally able to keep food down, well so far!

I think the most obnoxious question when I am suffering from a headache or pain is, “What do you think is causing this?” If I knew what was causing my headaches, I promise I would do anything to make them go away. The only thing I can say that helps my headaches is an ice pack and a dark quiet room. It sounds so crazy that I will use a heating pad for my back pain and an ice pack for my headaches, but it works for the most part. I know when people ask the question, “What do you think is causing this?”, they are trying to help and they mean well, but I am unfortunately never going to know what causes my headaches or pain, it is just the way things happen.

I do know that stress and weather can add to the headaches and pain. I do suffer from sinus-pressure-314x225sinus issues, but I take sinus medicine for that, it just does not seem to work as well as I would like it to. As for weather, it has been all over the place lately! It is February for God sakes and in the 80’s which is causing trees and flowers to bloom adding to the sinus troubles. It seems like we completely skipped over winter this year and just went straight from fall to spring. There was a few weeks that could be considered winter, but it came and went so fast it was hardly noticed. I mean, my body does not adjust well to temperature changes so I did notice it some. During the few weeks that were considered winter temperatures were low in the 30’s, but as soon as I adjusted to those temperatures it spiked back to the 60’s. There were days with low temperatures and then the next day would be much higher. How in the world can anyone be expected to adjust to the weather when it is constantly changing?

This is a bad time for me to be going through all these headaches and additional pain because my poor husband is dealing with some terrible tooth pain. I can not expect for him to take care of me right now when he is suffering so horribly, but he has been doing a pretty good job! Despite the pain he is going through, he is constantly making sure I have everything I need to be comfortable. We work pretty well together because we both understand pain and headaches way too much!

every-day-may-not-be-good-but-theres-something-good-in-every-day-8I can only hope that my pain and headaches will start to ease up soon so I can actually function right! I have not been able to work for the past three days because of all this, which is causing me even more stress as they are all unpaid days! After resting for the past few days and having the weekend, maybe things will improve and be much better next week. This is just an issue some of us run into and it is so important to just keep trying and hoping for better days ahead!

I hope y’all have a great weekend and enjoy every moment of it! Y’all know I love to see your comments and I do always respond to them as quickly as I can! Remember to always try to stay positive in life because no matter what is going on, there will be good days ahead! Also, I did a guest blog for a fantastic person this week. If you have not already been able to visit Grace’s blog, please check it out because she is pretty fantastic and you will also be able to see the post I did for the newly diagnosed. Her site is,  https://msgracefulnot.com/. Sending you lots of love and comfort!!

Love 2

Always, Alyssa

Sinus/Headaches Issues?

Good evening mondayHappy Monday Y’all! I hope you had a nice start to your week! How do you see Monday’s? Do you think of Monday as just another painful start to a new week or is it a new start for change? My week did not start off the way I would have liked because the headache I had all weekend did not want to give me a break. I would have thought dealing with the constant back and leg pain would have been enough to cope with, but of course not instead my headaches have increased drastically! 

I have been trying to figure out what is really causing my terrible headaches. The only things I have been able to come with are the lesions that are living in my brain or badsinusitis-physiology sinus issues or maybe even a combination of the two. I do know that headaches are pretty common with MS, but I am wondering if sinus issues are as well. Is it possible MS lesions could actually be in my sinuses? Do any of you reading this experience sinus troubles and if so, what do you do to relieve the awful pain it causes? At one point, I had convinced myself that the Gilenya I take for the MS was the reason for my sinus troubles. I was so convinced, I decided to switch my MS medication to a different disease modifying medication back August 2017. This was not one of my best decisions because I had a horrible flare up due to my change and the stress leading up to my decision. Of course I am still dealing with some of the residual effects from that flare up, but I am staying strong and positive knowing I will get back to where I was before the flare up! 

Please let me ask y’all a question, do any of you deal with sinus headaches? There is definitely a difference between a sinus headache and other headaches; such as cluster, headaches1-798x418migraine and tension headaches. Personally I do deal with several different types of headaches, but it seems like nothing at all helps these damn sinus headaches! I was so miserable with this headache all weekend, I did not leave the house and it was still hanging over my head today causing me to miss work today! I do find that hot water helps my sinus pressure some, but you can not really stay in a hot shower all day long. 

Thank y’all for stopping by my site today! I know most of my post sounds like a bit of a rant complaint, but I am really just wanting to get some thoughts from y’all because I know you do understand me and what I live with daily! Please leave a comment for me and I will respond to you as quickly as I can! I do always appreciate your thoughts and your fabulous advice. The conversations I have been able to have with many of you have meant so much to me and I love getting to know you better! I hope y’all have a fantastic and relaxing evening! I am always sending you lots of love and comfort!!

Love 2

Always, Alyssa

Headaches & MS

reasons

I have been battling horrible headaches with very little relief for days now, which is why I have not been posting anything. I know many people at some point in their lives have experienced a headache of some type with different severity levels. Nothing had been helping my headaches so I decided to look up the correlation between MS and headaches. I found a great article written by PhD Stachowiach, Julie “Headaches as a Symptom of Multiple Sclerosis”, written June 19, 2017. Those individuals that live with MS seem to be prone to the three types of headaches: migraines, cluster headaches and tension headaches. The following is the website where I found this article, https://www.verywell.com/headaches-as-a-symptom-of-multiple-sclerosis-2440798.

Three Known Types of Headaches:

  1. Migraines:
  • These can last anywhere from 4-72 hours
  • Can come along with blurry or distorted vision, followed by fatigue and anxiety
  • May feel a throbbing on one or both sides of the head
  • Sensitivity to light or sound
  • Nausea, vomiting or loss of appetiteheadaches 1
  1. Cluster Headaches:
  • Able to last 15 minutes to 3 hours long
  • Severe burning sensation on one side of the nose or deep in one eye
  • Occurs only on one side of the face
  • Tends to occur at same time every day, normally for a period of several weeks.
  1. Tension Headaches:
  • Most common in the general population of individuals
  • Comes on gradually and may last 30 minutes to all day or even up to a solid week
  • Feels like a constant band-like aching or squeezing sensation either right over the eyebrows or encircling the head
  • Able to occur at any time of day but typically the latter part of the day

There is an association between brain-stem lesions and an increased number of migraines and tension headaches. However, there is no link between the location or number of lesions and headaches of any type. There have been reports that headaches or migraines could be a symptom of an acute MS relapse, which I really hope is not what I am dealing with. Hopefully the week-long headache will soon end and I can enjoy the weekend before Christmas. Considering absolutely nothing has helped this headache, do y’all experience headaches and if so what do you do to treat them?

I hope you had a great week and are looking forward to your weekend! Remember, stay positive and do not stress over anything with preparing for Christmas, everything will work out as perfect as it can. The ability to be with loved ones is all that really matters this time of year! Take care and much love y’all!

Love 2

Always, Alyssa