Things I didn’t know about Gluten Intolerance!

good-evening-images-63Good evening y’all! I hope you are having a good week so far and hope it stays pleasant! Just think, we already made it through two days of the week, so we are almost half way there!

Y’all already know I have been battling with what I thought was a nasty stomach bug, but after doing a little research I do not think that is the case anymore. Of course I haven’t seen a doctor about it because I do not have insurance, but I think I figured it out on my own. I am about 99.9% sure I have developed Gluten Intolerance. I guess that is actually a good thing because understanding what is images (1)going on and understanding how to handle it will provide me with some relief or at least I hope it will! Obviously I am not a doctor, but I think I am familiar enough with the body I have lived in for almost 38 years. I am going to share with y’all what I have learned and please if you have any other helpful tips or ideas, please let me know!

Wheat-Gluten-IntoleranceI first want to clarify a few important details I have learned! Gluten Intolerance is often confused with other issues, like Celiac Disease or food allergies, but there are some differences and similarities. Gluten is a protein found mainly in wheat, barley and rye. This protein can cause digestive problems like gassiness, abdominal pain or diarrhea. With food allergies, the immune system overreacts to a particular food causing various reactions and levels of severity. Celiac Disease is an inherited autoimmune disorder that can damage the small intestines, but Gluten Intolerance almost mimics this.

Signs & Symptoms of Gluten Intolerance:10-Signs-Youre-Gluten-Intolerant-

  1. Bloating: This is when the belly is swollen or full of gas after eating. This is very common and does occur in 87% of individuals with Gluten Intolerance.
  2. Diarrhea, constipation and smelly feces: About 50% of individuals with gluten intolerance deal with diarrhea and 25% experience constipation. This is when you would experience inflammation in the gut after eating gluten. This damages gut lining, leading to poor nutrient absorption.
  3. Abdominal Pain: This is something else that is very common with Gluten Intolerance. 83% of individuals living with this intolerance experience abdominal pain.
  4. Headaches:  About 10-12% of the Western population experiences migraines. People with Gluten Intolerance are prone to migraines. 
  5. Feeling Tired: This is also being very common, leading to 60-82% of individuals with Gluten Intolerance experience this. People with this condition are prone to Gluten-Intolerance-Symptoms-Do-You-Have-Themfatigue and tiredness, having very low energy. Gluten Intolerance can cause iron-deficiency anemia. This is a condition in which blood lacks adequate healthy red blood cells. Red blood cells carry oxygen to the body’s tissues
  6. Skin Problems: There is a blistering skin condition called Dermatitis Herpetiformis, which is a manifestation of gluten-sensitive enteropathy, commonly known as celiac disease. This is not as common and can improve once on a Gluten-Free Diet!
  7. Depression:  Depression is not as common and only affects 6% of those living with11246-health-1-1 this intolerance. People with digestive issues seem more prone to both anxiety and depression.-Even though depression is not too common, there are a few theories for how Gluten Intolerance can lead to depression.*Abnormal  serotonin levels. Serotonin is a neurotransmitter allowing cells to communicate and is commonly referred to as “Happiness” hormones.

    *Gluten Exorphines, these peptides are formed during digestion of the gluten proteins. The gluten proteins may interfere with the Central Nervous System, which may raise the risk of depression.

    *Changes in gut microbiota. This is increased harmful bacteria and decrease beneficial bacteria increasing the risk of depression.

  8. Unexplained Weight Loss
  9. Iron-Deficiency Anemia: This causes symptoms such as low blood volume, fatigue, 6-signs-of-gluten-intolerance-300x165shortness of breath, dizziness, headaches, pale skin and weakness.
  10. Anxiety: This can affect anywhere from 3% to 30% of people worldwide. Involves feelings of worry, nervousness, unease and agitation. People with gluten intolerance are more prone to anxiety and panic disorders.
  11.  Autoimmune Disorders: Even though Gluten Intolerance is a separate issue from Celiac Disorder, I thought it would be good to share this as well. Celiac Disease is an autoimmune disorder causing your immune system to attach the digestive tract after consuming gluten. Typically people with gluten intolerance also have another autoimmune diseases to cope with.Gluten-Intolerance-Symptoms
  12. Joint and Muscle Pain: There is a  theory that people with Celiac Disease have a genetically determined over-sensitive or over-excitable nervous system. Gluten exposure may cause inflammation in gluten sensitive people. This inflammation may result in wide-spread pain, including joints and muscles.
  13. Leg or Arm Numbness:  Neuropathy symptoms involving numbness and tingling in the arms and legs.
  14. Brain Fog: This issue affects up to 40% of those with Gluten Intolerance. Forgetful, difficulty thinking, feeling cloudy and mental fatigue.

After learning more about this the things I deal with almost make more sense in  a way. Battling with stomach issues for over on month, numerous headaches/migraines, ud6zQ3sJTmewbULOd0n7_Beyond-Gluten-Free-Article-2018-1280x720-1constant feeling of fatigue, obnoxious levels of anxiety, nervousness, worrying and quick agitation, dizziness at random times, weakness, joint and muscle pain, numbness and cloudiness in my mind. I always blamed so many of these symptoms on Multiple Sclerosis and maybe that is still the case, but maybe it is a Gluten Intolerance causing more of it. 

I am doing my best right now to change my diet, but it really isn’t easy. I bought several gluten-free products at the grocery store, clementines and carrots, but honestly have not seen much of a change. Logically, I have only been trying this for a couple of days and I know it takes time for this type of change, but at least I am trying! Do y’all have any advice you would be willing to share? I know you always have great ideas and fantastic suggestions that I do appreciate!download

Thank y’all for stopping by my site today and I am sorry this was a little longer than most of my posts, but there was so much information to share. I hope you have a lovely and relaxing evening and of course I hope you are feeling well! I know it often takes me longer to respond to your comments, but I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

Advertisements

Outraged!

IMG_0579I can’t believe it’s only Tuesday because it certainly feels we should be much closer to the weekend. It is crazy how fast the short weekends go by and then how LONG the work weeks are. I am thankful I found a job that is close to home and all, but strongly believe 40 hours a week is too much for anyone to dedicate to a job! I think it is even more outrageous that here in the United States we are often forced to wait 90 days before we can even get insurance, not to mention the fact it is INSANELY expensive! I mean, if I were to get insurance for myself and my husband the cost per pay check would be more than a quarter of my paycheck!

I know I have written about this before, but now it is getting painfully more real! The obamacare-pre-existing-conditionsnews I heard, after a long day at work, was so disturbing and caused me so much ANGER, as it would anyone with a heart and any empathy for others! For someone during their campaign they ran to become president, no names being mentioned of course, saying they wouldn’t do anything negative to those of us with pre-existing conditions, to now doing the EXACT OPPOSITE and trying to eliminate protection for pre-existing conditions! I know this person in the white house has some of-nonelderly-adults-with-a-pre-existing-condition-twitter-v1crazy issues with the former president,  but to banish the good things that were done is very wrong. How anyone could still support this person is beyond me because I sure as hell couldn’t and never would! There are millions of people in the United States that will be affected by this and many could even lose their lives if anything happens to their health insurance. 

I try my best to keep my blog encouraging and never talk politics because we are all understandingtheacaentitled to our opinions, but when something can change my own life for the negative, I can’t help but to share my thoughts on the matter! I have been trying to tell myself that no one would ever think about doing something so awful and ruin lives for so many, but it just may happen! Striking down the Affordable Care Act, as has been put on the table, is wrong on so many levels, no matter what your political views are! I wish there was something more I could do to stop anything like this from happening, but I do not even know what that would be! Of course I can write about it, but I don’t know how much that will really change the issues! I do understand there is a chance that nothing being proposed will pass, but what if it does? How can anyone afford the medications they need to live their lives? I know there is absolutely NO way I could ever afford the medications I take to slow the progression of my Multiple benefits-affordable-care-actSclerosis down without insurance. Where would this leave people battling with a chronic illness and does anyone in power really care??

I am sorry for my second rant in a matter of days, but I am hoping we could some how all join together and find a way to help make things better for millions of people! We all deserve WAY better than this and it is shameful we are facing this fear now! I have always heard that there is strength in numbers, so all I can do is hope for better times!

Thank you for visiting my site today and reading this rant! My frustrations are sky-high and the only thing I know to do is write about them! This helps me calm my nerves and ease my stress some! I hope y’all have a pleasant and relaxing evening. I always encourage your comments and I will respond as quickly as I can! Please know that even though I am a little high-strung right now about all this, I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

The rant about healthcare & insurance!

charlie-ergen-quote-to-use-a-poker-analogy-if-the-deck-is-a-bitHave y’all ever felt like the cards were stacked up against you? Living with a chronic illness already gives the house a much better hand, but I will always refuse to fold! We have all learned various ways to cope with what we live with and to keep up a good fight despite any additional struggles we are forced to face. I learned many years ago that the storms of life will only gain more strength, but weathering these storms can and will be done.

I do think the unexpected issues that arise can be the most problematic and perplexing ones. Losing my job for absolutely no reasonable or seasonable reason really did send my mind into a downward spiral. I have tried my best to stay positive dda6dd8c8211c5c345ce66f0f5558197--quotes-about-worrying-quotes-about-stressthrough the time I was without a job, but the continued nagging fear of being without insurance while living with a chronic illness is beyond terrifying. It almost feels like being on a roller coaster without a safety belt on and this feeling gets the best of me more than I like to admit. I know I have complained before, which isn’t helpful at all, about how crummy and expensive insurance is, but being without it with Multiple Sclerosis or any chronic illness is very unpleasant. Medications and doctor’s visit are expensive with insurance and I hate that I know how much these things are without insurance. Thankfully I have only been forced to go to one doctor’s visit without insurance which was very expensive and I found that GoodRx.com does help reduce the price of medications! Even though I have found ways around the doctor’s visits, I am still always in a constant fear of what will happen if I have a relapse or if these corrupt idiots corruption-power-quotes-01.jpgrunning this country mess with pre-existing conditions because this could happen. I do know that thinking about these things is nothing but stressful and will only create additional health issues, but it is impossible for me to let go of these thoughts and feelings.

Y’all already know that I have been battling with a crazy stomach issue for over a month and I am avoiding seeking medical attention until I have insurance again. I mean who stomach issuescan really afford these various appointments and all the tests doctors think they need to run on their patients? I am not, never have been and never will be in the tax bracket that can afford this. What kind of person can look at someone with an illness of any kind and only see dollar signs? To me, that is not a good or compassionate person, but they are the ones on top. It is really unfortunate that some can be as evil and corrupt as they possibly can be, but not ever face the consequences for their bad behaviors.

gilenyaThe Gilenya I take daily to keep my Multiple Sclerosis under some kind of control costs $8,500 per month without insurance. This is completely absurd and absolutely ludicrous! Unfortunately, GoodRx isn’t able to assist with this medication. I don’t know about you, but I sure as hell can’t afford these high costs. I have been going through an amazing program called Gilenya Go Program since being on this medication and my cost has always been $0. I don’t even want to think about what I would have gilenya-go-programdone if this program didn’t exist. Considering I do not have insurance at the moment and only have about one month left on hand of this medication, I did panic. I have spoken with an amazing representative for the Gilenya Go Program and she told me all I would need to do is call them when I am down to one week left and they will send this medication to me free of charge and can do this for about 2 months. By the time they aren’t able to assist me any longer, I will have insurance again, so thankfully I will not go without. This is just me, but Gilenya has been helping keep me semi free of relapse and further progression.

GLN01260I also take Neurontin, three times a day. This is another medication that is a little expensive, but nowhere near the crazy cost of Gilenya. A one month supply of Neurontin with insurance was only $10, which is very affordable. Now without insurance this will end up costing me close to $300 per month! If I do go through the GoodRx,com website, I might be able to get this medication for around $47 per month which is still high but a lot more feasible than $300!

Now there are a few other medications I do take daily that are rather expensive, but the GoodRx website has been very helpful with these. How is it that the United States of othercountrieshealthcarecs.jpgAmerica is the ONLY developed country that doesn’t offer free healthcare? An even better question is why are the American people so scared of having free healthcare? My guess is, these people are blindly listening to the ones in power that say this will never be a good option and much more negative lies about it. Free healthcare has been great for all the other developed countries with the citizens only saying great things about their free healthcare! In my personal opinion, those that say nothing good about free healthcare need to dig a little deeper and far beyond what American leaders say, until they can think for common sensethemselves with a clear mind and actual logic!

I want to thank you for visiting my site today and reading my rant about how awful healthcare is in the United States. In all honesty I do not like to complain because it doesn’t fix the issue, but I needed to get my thoughts out and really want to know your thoughts on this! I hope you have a lovely and peaceful Sunday. I feel that the weekend went by way too fast and I have to get up early again and back to work tomorrow. I mean seriously, where did the weekend go? Is it really too much to ask to have our weekends be a little longer? I promise to respond to all your comments as quickly as I can and considering it is Sunday, I should be able to do this! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Week with a cough isn’t easy

away-from-the-blogI never meant to be away from blogging for the entire week, but this unrelenting cough has been torture! Coughing all day, everyday, plus working full-time, has caused me more fatigue than normal, so I have not had the energy to write at all. Besides dealing with this nasty and evil cough, last week was extremely busy for me.

As I already mentioned, I have been dealing with a cough for well over a week, hell it has been well over a month now! I already know that it takes my body FOREVER  to get over a simple cold, but honestly I haven’t even been to a doctor. Healthy ingredients for strengthening immunityMy reasons for not going to the doctor might be silly, but in my opinion they are valid. One reason is I am in a new city and haven’t established an actual doctor yet. I know this is something I should have already taken care of, but it just isn’t easy. Hell I know there are not many MS Specialists where I am living, which is frustrating! Another reason I haven’t gone to just some random doctor is because they ALWAYS try prescribing an antibiotic and ALWAYS ignore the bright red warning sign that shows up due to the Gilenya. Gilenya interacts with many medications and it can be very dangerous. I just do not want to deal with all the ignorance that comes along with healthcare in the United States. 

home-selling-6Another major thing that happened last week was we closed on the sale of our townhouse! I had mixed emotions about this because it was the first home my husband and I bought together. There are many memories within the walls of that home, some are great and others are horrible, but it was our home. I am beyond happy the townhouse sold in only 3 days, but it is still bittersweet! The  great thing about this is, we are down to only one mortgage payment!

With so much going on, good and bad, I am thrilled we have a three-day weekend! I am hoping that having these days off without any “must do’s” I will get over this pain in the 1264359-georgia-may-jagger-quote-drink-lots-of-water-get-lots-of-sleep-andass cold and start feeling human again! I never would have thought a simple cold could take this much out of me. I mean I haven’t even had the energy to do much of anything, which is very unlike me. For the past two days I basically get out of bed and move to the other side of the house to the couch, where I typically fall back to sleep while watching TV. 

I am making an effort to get over this cold, but my goodness it is taking way too long! I already take a Vitamin C supplement everyday, so I am not sure what more to do. All the congestion that has come along with this cold has completely killed my appetite, but I am staying hydrated, so I guess that is a plus. Let me ask y’all a question, when you get what should be a simple cold, does it take a long time to go away?

I hope y’all are having a nice and restful weekend! I am working on getting through emails, comments and your posts, which hopefully I will be caught up by the end of the long weekend! Playing catch up while my head is feeling very foggy isn’t easy, but I am trying! ❤As always I do appreciate you stopping by my site and your patience with my catch up time. No matter what I might be dealing with, I am always sending y’all LOTS of love ❤, comfort and positive vibes!

My signature heart

❤Always, Alyssa❤

Calming Sunday!

happy sundayGood evening y’all! I hope your weekend has been very pleasant and enjoyable! Considering I am still feeling so much pain and fatigue, I literally have done NOTHING today! Doing absolutely nothing for one entire day has been both calming to my out of control nerves and peaceful! I can not believe I have missed out on this feeling for so many years! I am always one who wants to be on the constant move no matter how I am feeling, partially because when I am still, I feel pain a lot more!. Doing things around the house, organizing my week ahead and ensuring that everything that needs to be completed is done by the end of the day on Sunday has always been the way my weekends flow. It sounds SO crazy when I think about that a little deeper because things will always get taken care of when they are meant to, so why rush things along?

I think everyone is already very well aware that I am very disturbed by how the United States has been behaving lately. I feel strongly that the behavior of those in charge is setting a very BAD impression and example for all Americans, as some of us do still struggles and frustrationsbelieve in EQUALITY and LOVE❤! Of course there are still some Americans that blindly follow those in charge, which is sad and unfortunate! I find it extremely hard to relate to anyone that does not see what is really happening in this country! I am sorry if anyone finds this statement offensive, but it is how I feel everyday of my life. I have and always will see everyone as just human with no other judgement! I do not appreciate being constantly lied to from those in power of the country I live in because I feel that honesty is the best and only way to live!

I want to apologize for the slight tangent I went off on. I try to stay hopeful that things are going to get better and not any worse, but there is no guarantees with those making the decisions that inflict damage on our lives daily! Currently I feel that I am living in a your patienceconstant state of fear that I am going to end up losing health insurance because I have a pre-existing condition that I never choose to live with. I do not feel that I should be punished for living with a chronic illness, as that alone is punishment enough, so for our government to decide I may not qualify for insurance is absurd! This has not happened yet, but I do think it is in the works! Hell I think I already pay WAY too much for insurance! But it is scary for me  to think that Trump could easily have a bad day and have a temper tantrum that will eliminate healthcare for those with chronic illness! 

I want to thank you from the bottom of my heart for visiting my site today! I do encourage your amazing comments and promise I will response as quickly as I possibly can! I know some of what I have written is a lot different that what I normally write about, but my frustrations have been elevating drastically each day and every day I hear of what is going on in the United States. Trying to find the positive in what is going on is difficult, but I am sure it is there somewhere! I hope you have a lovely and relaxing evening! Please never forget that I am always sending you LOTS of love❤ and comfort!

** I forgot to ask y’all! Do any of you have Facebook as well? As of August 1st, all my blog post do not link to Facebook any longer and I kind of want them to still link to Facebook. Do you by chance know what I need to do, so I do not have to continue posting to Facebook manually?**

My signature heart

❤Always, Alyssa❤

 

Finally received GOOD news!

relax-quote-mind-quotes-imagesGood afternoon y’all! I hope you are having an amazing weekend so far and feeling the best you possibly can. After a really LONG week all I wanted to have was a peaceful weekend, which so far is what I am enjoying! Rest is so important for everyone and some of us are a little more stubborn about resting when we should. I am definitely the type of person that is stubborn about everything so it takes me feeling terrible to actually rest! I have vowed to myself that I will spend the weekend resting and taking care of myself so that I will feel refreshed for the upcoming week! 

I know I mentioned to y’all a few weeks ago that I had applied for co-pay assistance with the Multiple Sclerosis Association of America (MSAA) for a much needed MRI. I had been in communication with someone with this company throughout the weeks and she even told me that I was “going” to be approved, but she did not know when it would actually take place. I finally received the APPROVAL letter in the mail today! I am so incredibly MSAA_Logo_2017delighted that I after all this time waiting I can finally get my Cranial MRI and I will not have to pay a dime for it! I find it amazing that after living with MS for 18 very long years and having numerous MRI’s that cost a fortune, I was finally introduced to help! I know some of you do not live in the United States so this may not help you as much, but for those of you that do live in the states I am going to encourage you to visit MSAA’s website as they might be able to offer you some help https://mymsaa.org/. Now for those of you that do not live in the states you probably have free healthcare, which is really how the states should treat the people living here! 

So how is your weekend going? I really hope your weekend is very enjoyable for you so far and continues to be wonderful! The week was so full of constant rain☔ which always HOTcauses my pain to be elevated tremendously, but the weekend so far has been dry and just terribly HOT!!  Of course with the heat, I am just staying inside with the air conditioning as much as I possibly can! 

I always appreciate y’all visiting my site and I love reading your comments, which I do respond to just as quickly as I can! I hope the rest of your Saturday is spent only doing what makes you happy because that is what you deserve! Please never forget that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Unanswered Questions!

drowningI sometimes feel like I am drowning in all the unanswered questions in my mind. Life works in such mysterious and unexpected ways which at times cause a whirlwind of various emotions to run through me! My unanswered questions typically lead to overwhelming frustration because life makes absolutely NO sense. For starters one question I have had since I was 19 years old is what causes all these incurable illnesses? In a world that has many brilliant minds why have more cures been not discovered yet? Or have many cures actually been discovered but not released because the greedy people with Big Pharma do not want to lose massive amounts of money from less prescriptions being written? Big Pharma makes a living from all of us that need prescription medications, so without us they would see what it is like to struggle to scrap by pay check to pay check.

Another question that plagues my mind is why is there always so much hate and terribly unfair treatment for SO many? Why can people not all be treated with nothing but love and respect? I do not think it is at all right to judge someone for how they choose to live love and respecttheir life, especially when it does not cause any harm to anyone! I am a firm believer that we should ALL be treated equally because no matter what choices are made, we are all human-beings with feelings that can and do get hurt. For those of us that fight through life with a chronic illness, we often get judged by those that just do not understand! Many of us have a family to support, so we are forced to go to a job we may not enjoy just for a paycheck. When you struggle through a day of work in pain and then have altered hours, our co-workers tend to make ignorant comments that are hard to hear! One comment that just irritates me to the core is, “I wish I had your hours! It must be nice to be able to leave early daily.” Every time I hear this comment my response is ALWAYS, “Well I wish I had your hours because working fewer hours kind of hurts the paycheck!”  I guess life was never meant to be a walk in the park, but sometimes it seems incredibly unfair!

helping othersIn the city I live in you can not make the short drive to the grocery store and not see a homeless person holding a sign asking for money for food, which is terribly sad for me. Why do those that are in power chose to invade other countries wanting to make changes that are unwelcome, when the country they “stand” to protect needs our help? If our so-called help for other countries is not wanted, I think we should focus on the problems right here in front of us every day! I guess I believe our tax dollars should be spent on making changes to the education system, road conditions, homeless, healthcare and helping other countries when they WANT it, not when we think it is necessary!

Another question that I find extremely troubling is why do we pay massive amounts of money for health insurance, but then still get terrible coverage and pay extremely high co-pays? I am supposed to have an MRI once a year, but the co-pay is absolutelyhealthcare is a right ridiculous and completely not affordable to do once a year! Every other developed country offers FREE healthcare for all and that works for them, so why does the United States not try something that actually helps the citizens instead of keeping us in mounds of medical debt?

There are times when these unanswered questions cause me so much anger, but I do not help otherswant to focus my entire life on what will never be answered! I do not have the ability or the power to change other people, but I will always stand up for what my beliefs! I will continue for the rest of my life wishing for cures we all need and I will never treat anyone in a bad nature because of how they live their life!

Thank y’all for visiting my site today! I know this might seem like a bit of a rant, but I feel like certain issues need to be voiced! I really hope y’all are having a nice weekend and feeling well! I definitely encourage your amazing comments and I do promise to respond just as quickly as I can! Please remember that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤