Amazing benefits of Yoga!

good morning butterflyGood morning y’all! I hope your week has started your week off on a good note and you are feeling well today! I hope y’all have a lovely day and continue feeling the best you possibly can!

This past Sunday I received an amazing yoga tip that can be done at my desk at work from a fabulous fellow blogger! ❤Heather & Dizzy from https://dinosaursdonkeysandms.com/ sent me a YouTube link for a short yoga option that can be done easily at work! It is easy and incredibly helpful. Not only do I encourage you to check out Heather & Dizzy’s site, but please check out this short yoga video. I tried it at work on Monday and was shocked on how much it helped! https://www.youtube.com/watch?v=tAUf7aajBWE

Both Heather & Dizzy have been doing yoga for some time now and knew how much Itransform your health really wanted to give this a try! The two of them share great videos showing just how easy yoga can be. Dizzy ❤is adorable with all her honest efforts and I know that Heather ❤will give Dizzy her favorite treats, ginger cookies!

So not just those of us living with a chronic illness, but everyone could benefit from practicing yoga. There are so many positives to trying this, with no negatives that follow! I think the improvements practicing yoga can provide us can and will be a benefit to our health!

5b25d83cf185a54b8dbe00c0871a5ae2The video I did while at work on Monday (the same one I shared with y’all) was relaxing and allowed the pain in my body to ease up some, which was wonderful! As I discover more easy-to-do yoga videos, I will continue to share them with y’all and if you know of any, please share them with me. I am really trying to find more ways to help me relax and therefore reduce the levels of stress I tend to feel daily!

Thank you so much for stopping by my site today and I do look forward to reading your comments! I do promise to respond to all comments as quickly as I can! Again, please if you have not already viewed💞 Heather & Dizzy’s site, stop by their amazing site as I am more than certain you will find Heather’s personality and humor very encouraging and contagious! Thank you again Heather💞 for all of your kind & encouraging comments & your amazing advice about yoga!  Always remember that I am always sending y’all LOTS of love ❤and comfort! 

My signature heart

❤Always, Alyssa❤

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1,000+ Amazing Supporters!

1000 followersI started my blog on July 17, 2017 to raise awareness about Multiple Sclerosis, but also to encourage and inspire those that suffer from any chronic illness or just difficulties life has to offer us that we really do not want. I was just learning about the blogging community and I had only 3 followers, my husband, mother and mother-in-law. Since that time my blog has grown to over 1,000 amazing followers❤! I have learned so much from each and every one of you and I really hope that I have been able to do some good for you as well. I am so very thankful for y’all!!  I never thought that blogging would be so incredible but I am really glad I made the decision to start my blog!

I hope y’all are having a good week! I know you are probably happy that tomorrow is kindnessFriday and then we have the weekend to enjoy! I am definitely really glad the weekend is near considering I have not been feeling all that great. Y’all already know that I have been dealing with a lot of pain and headaches for weeks now without any help from my doctor! I reached out to my doctor on Monday to inform her about the fainting spells I was having, but there was NO response. Unfortunately the lack of caring from my doctor does not surprise me at all and it only makes me more excited to move soon and find a new doctor that will hopefully be more attentive!

I would really like to thank y’all for always being so amazing and caring! In our society kindtoday it is so hard to find people who really truly care about more than just themselves. It seems as though so many have adopted a selfish behavior, but none of you have gone that way in life! All of you are so caring, compassionate, sympathetic and empathetic for others and I appreciate this more than words can even begin to describe! Y’all have given me so much hope that love❤ and kindness still exists in this world!

Thank you for stopping by my site today! I always appreciate you taking the time to read and make fabulous comments, which I will always respond to as quickly as I can. Again, thank you so much for your continued support. I value all the friendships I have been able to make through this blog! As always I am sending you LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

Behind the scenes of life with Multiple Sclerosis!

My-life-with-Multiple-SclerosisGood morning Y’all🌼! I hope you have an amazing day!! I wanted to take a moment to share what life is like living each day with Multiple Sclerosis. It obviously is not all sunshine🌟 and rainbows🌈, there is so much more to it!

I have lived with Multiple Sclerosis for almost 18 very long years and this illness is still a mystery to me! I mean for some the cold makes them feel much better, whereas for others it makes them feel absolutely horrible. Some feel a little better with warmer temperatures and others it takes away all their energy and makes them feel terrible. ribbonThere is no right or wrong, it is all based on each individual person!

My doctor always told me that the heat is the worst thing for me and that might be true in a sense, but the heat does not bother me near as much as extreme humidity!!! Of multiple-sclerosis-quotes-3course the heat causes me a lot more fatigue, but it does not cause the increase pain that cold weather does. I actually swear by my friendly heating pad because it decreases my pain immensely! I might live in the city, but I am a beach girl at heart🏖! I love the beautiful and relaxing sounds of the ocean waves. I think it is the only time that I am not full of stress and anxiety.

The cold weather on the other hand causes me nothing but extreme pain because I get so tense from being cold. Of course with cold weather you can put enough layers of clothing on to stay warm, but the chill that lingers in the air can be miserable. I did find an thermacareamazing solution for dealing with the frigged temperatures. They sell a heating pad that is mobile and no batteries needed. This fabulous product is called Thermacare Heat Wrap.

Living with Multiple Sclerosis comes along with a lot of decisions that need to be made and sometimes they need to be made immediately, which I am not all that great at. There are tons of diseases modifying medications available now and finding the right one can be quite challenging. Of course when I was first diagnosed there was a limited amount of choices, so I put ALL of my trust into my doctor. We soon found out that I am not one that can give myself shots. The funny thing is I do not have any fears of needles; it was the only choice we havemedication I was injecting myself with that I could not handle. The medication would cause me to feel like I had the flu and burned like fire going in. I did try everything possible to stay on the injection based medications, but I failed and just stopped without telling my doctor at first! After a few months, I did finally confess to my doctor and we had to figure out what I would be comfortable with and could tolerate. After several failed attempts, I did finally find the medication that worked best for my body chemistry. My goodness my doctor was a very kind a patient man❤, it really is too bad he had to retire! I do not think I will EVER find another doctor I will connect to as much as I did him.

Of course there are always more decisions that need to made because MS is a constant changing illness. Even after deciding on the disease modifying medication there seems to always be more medications that doctors think should be taken. I do believe that living with MS you have to be willing and able to alter your life when necessary. To me it does seem that the conditions with MS can change at any moment and without any kind of warning.

positive over negativeOver my years with MS, I have experienced vision loss (which I did gain back), intense legs pains, muscle spasms throughout my entire body, fierce back pain, persistent headaches and some memory loss at random times, which is a little unsettling. But through it all, I have never truly given up. Of course I have had some massive frustration issues, but I will NOT let this illness to defeat the strong person I know I am. I am very determined to remain as strong as I possibly can, but I also want to help others hold onto their optimism. Y’all know that I am  a very strong believer in the fact that positive thoughts will bring positive results. I honestly believe that it takes a lot more energy to be negative than to just be as positive as you can!

Thank y’all for visiting my site today❤. I hope y’all enjoyed my thoughts on my life with MS so far and of course I will appreciate any comments you have. I do promise to respond to all comments just as soon as I possibly can. I hope y’all have a wonderful Wednesday! Thankfully we are half way through the week and the weekend is coming up soon. Please remember that I am always sending y’all LOTS of ❤love and comfort!

My signature heart

❤Always, Alyssa❤

 

 

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What I have overcome that has made me stronger!

happy tuesdayGood morning Y’all! I hope your long weekend was full of nothing but happiness and you are feeling great starting this short week at work! I can say that the majority of my weekend was dedicated to resting to get myself feeling better and hopefully making my pain issues just go away! I guess we will see now that the week has started!

When I was first diagnosed with Multiple Sclerosis almost 18 years ago, I honestly viewed this as a punishment of something I must have done wrong during my life. I could not for the life of me understand what I could have done so wrong to deserve a battle like this to live with. It took me so many years to accept the diagnosis and findHope ways to live a❤ happy life not allowing an illness to EVER alter or control my life in any way! I wanted to be the one to continue controlling my life because I did not feel it was fair for an illness to be in control of MY life!

The sad truth is we are not able to choose the way our life is going to play out before we are here to actually live it. Once we are born we just need to live the life we were given the best way we can and not ever give up when things get too difficult. Life is not all about ☀sunshine, butterflies, rainbows and waltzing through the days easily, hard times fall on every one of us and we must learn to alter life when it is required.

I am a firm believer that everything happens for a reason and even if we do not like it or 11324-Everything-Happens-For-A-Reason..agree with what is happening, it is just the way it is! Any obstacles that we are given are not intended to be a punishment in any way, it is just what was meant for our life and all of these obstacles make us even stronger than we were before! All the hurdles along our journeys are put in place so we can just learn to sore over them with grace and strength! These frustrating impediments are all a learning experience for us to grow further!

Let me just say that I think overcoming the complete shock of my diagnosis in some crazy ways made me a stronger person. Yes, I have my bad days when I feel absolutely terrible, but in time I get back to my “normal” self or maybe it is better to say my “new normal” self. It sounds so crazy to say that an incurable and sometimes debilitating present situationillness made me stronger, but it really has! This illness gave me so many reasons to keep fighting for my own health and it has empowered me with determination that does not waver.

Thank you so much for visiting my site today! I always appreciate you taking the time to read my thoughts and ❤LOVE to read your fantastic comments. I hope you have a great day and I really hope you are feeling well. Please always remember that I am sending you LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤

Disability or NOT?

Disability-bannerThere are many people out there that qualify and truly need to be put on disability and there is absolutely nothing wrong with that. When someone makes the decision that they are not able to work any longer and their doctor agrees with them, then you just know it is the right time for taking that route in life. Do some people actually take advantage of this? Absolutely and that is just really sad and an insult to those that do need disability! No one can really be pushed or forced to file for disability as it is a very involved process and does require a lot!

Disability does not have to be permanent, but you must be totally disabled as is defined by the Social Security Administration. The Social Security Administration (SSR) actually anticipates that the condition can improve at any point in time! Aren’t they thoughtful and optimistic? Therefore this requires those that were awarded benefits to participate in a process called Continuing Disability Review (CDR). The reason for CDR is to determine if there have been any improvements in the claimant’s medical or financial circumstances. All approved claims are subject to “diary review dates” after one, three and seven years. Now this does depend on the condition the disability was awarded for and the probability for improvement. All that is required to avoid interruption in disabilitydisability benefits is medical documentation that the claimant still suffers from the impairment the disability was originally awarded for and that there have not been any improvements.

The SSR tries to make this process a little easier for those filing, so their list of impairments are broken down by bodily systems or functions:

  • Musculoskeletal Problems:
    • Back conditions and other dysfunctions of the joints and bones
  • Senses and Speech Issues:
    • Vision and hearing loss
  • Cardiovascular Conditions:
    • Chronic Heart Failure
    • Coronary Artery Disease
  • Digestive Trace Problems:
    • Liver Disease
    • Inflammatory Bowel Disease (IBS)
  • Neurological Disorders:
    • Multiple Sclerosis
    • Cerebral Palsy
    • Parkinson’s Disease
    • Epilepsy
  • Blood Disorders:
    • Sickle Cell Disease
    • Hemophilia
  • Mental Disorders:
    • Depression
    • Anxiety
    • Schizophrenia
    • Autism
    • Intellectual Disability

The medical evidence that needs to be shown must be recent and encompass the time period when the disability started to present is:

  • Physical Examination
  • Treatment notes or reports
  • MRI (depending on illness)
  • CAT Scan (depending on illness)
  • X-ray (depending on illness)
  • Mental Health Notes
  • Blood work notes

 

If I am being realistic and logical, I know that living with a chronic illness disability may be involved in my life at some point. I mean heck, I know the Multiple Sclerosis is not Montelgoing to magically disappear😿, but I do not have to own this until it is absolutely necessary, which is not right now❤!! I believe if I continue living my life in the best way possible, control my stress (which we all know I am really bad at), and take the medication that is best for my body chemistry, I am doing all I am able to control the progression of this illness💞! I am only 36 years old and have been living with this illness for almost 18 years, besides the constant pain I deal with; I think I am doing rather well! As you can probably tell it really bothers😿 me when people make the suggestion I go on disability. It has happened way too many times just because people know what I live with, but they really do not know how it affects me. I do my very best to hide my feelings of pain, however people make assumptions! I do not disagree with anyone that is on disability, but I am so darn stubborn and even if my body might be ready, I am not emotionally😿 ready to take that step.

I really want to thank y’all for reading my rant today❤! This was suggested to me today and as you can tell it did not sit well with me😿! I am not going to say that I will not ever file for disability, but at this point in my life I am not ready as I feel I am still able to disability_is_not_inabilitywork, even if I am not working full-time right now. My working pretty much part-time hours is just the right now, in a few more weeks or months even I might be fully capable of doing those long full-time hours again. 

I hope y’all had a good day! Thank goodness we are half way through the week and the weekend is coming!! Of course I appreciate and even encourage your comments as I promise to respond as quickly as I can! I hope y’all have a wonderful and relaxing evening. As always I am sending y’all LOTS of❤ love and comfort!

My signature heart

❤Always, Alyssa❤

800 + Followers!

Sending best wishesSince starting my blog on July 17, 2017 with 3 fantastic supporters my husband, mother and mother in-law, I have had the opportunity to get to know so many incredible people all over the world❤. My goal for starting my blog was to raise the awareness about Multiple Sclerosis and I really wanted to help others battling Multiple Sclerosis and other chronic illnesses by offering support and endless encouragement. We all know that our daily lives are not easy with random symptoms that appear with and without warning, taking various medications, going to countless doctors’ appointments, being confronted with numerous challenges, being forced to accept innumerable changes to our lives daily, even hourly and so much more! It is never easy finding others that truly understand what our lives are like.💕 By creating this blog, I have been able to learn from so many others that live with Multiple Sclerosis and other chronic illnesses affecting their daily life how they find the strength and courage to keep moving forward!

In our society today, I think it can be really difficult to be “different” from everyone else. I do not believe being different should be frowned upon, but it should we should all be proud of our differences no matter what they may be💕. Whether our illness is visible by the way we walk or talk, or invisible it can be challenging. Some people have been forced to leave their career as it became too much to handle. Some people have even been forced out of their career because people have lost their ability to have compassion and empathy for others. That just is not right to cause anyone unnecessary stress and shame!

❤I am so excited and honored to be able to share this with you! As I said when I started my blog in July 2017, I had 3 followers and that was great. Now 10 months later I am 800+ Followersfortunate enough to have more than 800 amazing followers that I am able to get to know! ❤The individuals I have met through this blog have been absolutely amazing! I would say that starting my blog was one of the best decisions I have ever made as it has brought me so much joy! 🌷The numerous extraordinary people I have been able to make strong connections and friendships with has been beyond incredible! All of us know what it is like to live with a chronic and incurable illness so we are able to offer support and encouragement to each other! ❤Y’all have truly been a blessing in my life and I am thankful for each and every one of you!

💕I really want to thank all of you for continuing to follow my blog and making incredibly inspiring comments. Through the comments you make on my site and the communications we have on your own site, I feel like I have made so many lifelong 🌷friends! 💕Let me just say once again, thank y’all for your support, encouragement, great advice and never judging my crazy moments, because I do tend to have them! I hope y’all are having a fantastic week and I hope y’all are feeling well! As always, I am sending y’all LOTS of love and comfort!

Love 2

❤Always, Alyssa💕

It is okay to not be okay all the time

okayIt has taken me a really long time to realize that it is okay and perfectly normal to admit to not being okay all of the time! We are all just human and we all have times when we do not feel like our normal selves, as I said this is normal and there is not anything wrong with it! For some of us, including myself, it is not easy to admit to ourselves let alone anyone else that we are really not okay, but possibly struggling to keep pushing forward. Pain inflicts so many hardships to our lives and that pain can and does cause much sadness, fatigue, irritation and even bitterness.

As y’all already know, I have been dealing with a lot pain and muscle spasms, which you also know is extremely frustrating! Last week I had planned to increase my work hours, but unfortunately was not able to do this because of the intense pain I was experiencing. Trying to remain positive I thought, “It is okay, I will just try again next week.” Well that would be this week and so far it is not happening again. I did work 6 hours yesterday, but I was not able to go to work today.

dont-give-up-galaxy-hold-on-hope-Favim.com-1428490I will continue to refuse to give up and I also refuse being too hard on myself because at least I am trying! I want to be able to work “normal” hours, but more than that I want all this pain to give me a break even for one day! As crazy as this may sound, I am standing by my decision to not share this information with my specialist. Do I think she could give me any additional information that I do not already know after living with this illness for almost 18 years? My answer to this question is a FIRM NO! I will not struggle 1subject my body to even more steroids than I have already dealt with and I do not want to switch medications again! Prior to June 2017, I was on Gilenya for 6 years and it seemed to have worked well for me. My reasons for changing the medication was because I was dealing with horrible sinus issues and I thought it was due to the Gileyna, but now I see things differently!

With this horrible leg pain, which is also causing much additional back pain, I want to find some leg stretches that may help me even just a little! Do any of you do any leg stretches that you find beneficial and if so what are they? I know many of you know and understand what I am going through and I value your advice and opinions so much more than I can even explain❤!

❤ I hope y’all have had a great day and I appreciate you visiting my site today. I hope your evening is filled with much happiness and relaxation! I am really looking forward to reading your amazing comments! As always I am sending y’all LOTS of ❤love and comfort!

Love 2

❤Always, Alyssa❤