Multiple Sclerosis Triggers and Ways To Avoid Them

Multiple Sclerosis can be a challenging illness to live with, but there are often ways to manage the difficulties. Many things can trigger symptoms, but there are also ways to avoid many of these triggers. It takes time to understand what exactly triggers your symptoms and then to discover the best way to avoid them. Just like each person experiences MS differently, each person will have different triggers and ways to combat those triggers. Of course, please remember that I am not a doctor or medical professional, I am just another person living with MS, and have researched the topic. Today, I am going to share 10 triggers and ways to avoid these triggers.

1. Stress: We all experience stress in our life but having a chronic condition like Multiple Sclerosis can create an entirely new source of stress. Other types of stress can be a result of work, personal relationships, or financial struggles. Too much stress for anyone can cause difficult times, but too much stress for someone with MS can contribute to the worsening of symptoms.

Ways to avoid stress might include finding a relaxing, stress-reducing activity that takes your mind off stress. This activity is anything you find enjoyable because this is for YOU and YOUR health. A few things that may appeal to you are yoga, meditation, and breathing exercises. These practices can help you to relax and obliterate risks for causing symptoms to worsen.

2. Heat: Any form of heat whether it be from the sun, sauna or, a hot tub can be too extreme for people with Multiple Sclerosis. This can often time lead to an exacerbation of symptoms. From my own experience, heat is the enemy which is difficult because I love the beach. I think my saving grace at the beach is the ocean breeze!

It is not always easy to avoid the heat, especially where I live in the south. The best way to avoid this is to keep your house cool and purchase extra fans. Also, on days when there is extreme heat avoid direct sunlight, wear light loose clothing, and stay in the shade as much as possible. Steer clear of saunas, hot tubs, and those hot yoga studios.

3. Childbirth: Many women with MS experience a relapse after giving birth. As a matter of fact, 20-40% of women endure a relapse in the period of time after giving birth. Thankfully, my husband and I do not have children, so I have not experienced this issue. Of course, no one can prevent a relapse after childbirth, but this would be a time to take some steps to reduce how severe the impact is. During the immediate days after childbirth, lean on family and friends to assist with your new bundle of joy so you may get rest and take care of yourself. This can help your body recover more effectively.

4. Becoming Sick: Certain types of infection can cause a relapse and MS can create certain types of other infections. Infection such as the flu or even something as simple as the common cold may cause MS symptoms to worsen.

Avoiding sickness can be challenging, especially with COVID spreading like wildfire. Even with the numerous challenges involved with avoiding getting sick, living a healthy lifestyle can help with preventing infections and other illnesses. It is also helpful to wash your hands for at least 20 seconds multiple times a day and distance yourself from anyone that is sick, especially if you are experiencing a relapse.

5. Some Vaccines: While most vaccines are safe and recommended for those with Multiple Sclerosis, certain vaccines contain live pathogens, which can create the risk of exacerbating symptoms. If you are experiencing a relapse or taking certain medications, consult with your neurologist before getting any vaccines because it might be in your best interest to postpone the vaccine. Your doctor will know the best way to handle this and will advise you regarding vaccines.

I will be completely honest with y’all with the medication I take for MS, Gilenya, I was advised years ago to not get vaccines. Of course, that was 20 years ago and so many changes with medications with additional research. I had always been leery of getting anything and it was not due to the needles, I just feared for negative interactions. However, my current neurologist told me things with the Gilenya had changed over the years and the only vaccines that were not safe were the ones that were live vaccines, and I was able to get the COVID vaccine and I can get the flu vaccine if I decide I want it. My neurologist did highly recommend I get the flu vaccine, but I am not in any rush to do this!

6. Vitamin D Deficiency: At least one study discovered that people with lower vitamin D levels have an increased risk of relapse than someone with adequate vitamin D levels. It has been suggested that Vitamin D can protect against developing MS, but even more research that revealed Vitamin D affects the disease as it is needed.

The best way to prevent the issue of Vitamin D deficiency is to make sure your doctor regularly checking your Vitamin D levels. There are supplements available, some foods have high amounts of Vitamin D, and safe sun exposure can help increase and maintain your levels. However, while supplements may seem safe and legit, it is best to discuss any supplements with your doctor before beginning them to ensure there are not any negative interactions and they will provide suitable results.

7. Inadequate Amount of Sleep: Sleep has an important role in our overall health. The body utilizes sleep to repair the brain and restore other areas that have been damaged. When we do not get sufficient sleep, our body does not get the necessary time to rest and rejuvenate. Too much fatigue can trigger symptoms and/or make symptoms worsen. With muscle spasms, pain, and tingling, MS can make sleep rather troublesome.

Considering how vital sleep is for our health, it is crucial to discuss sleep issues with your doctor. Bring the issue to your doctor’s attention can help determine if any other conditions causing the sleep struggles.

8. Poor Diet: A well-balanced and healthy diet, along with regular exercise can be beneficial for avoiding relapses and/or reduces Multiple Sclerosis symptoms. A diet considering of processed foods will not supply your body with the nutrition that is required.

To avoid developing a poor diet habit, working with a dietitian to discover the best healthy eating plan you can carry on with could be extremely helpful. Although, research is not clear as to the best diet is for people with MS, eating healthy foods can have a positive impact on everyone’s health. Concentrate on good sources of protein, healthy fats, and carbohydrates is one of the best ideas.

9. Certain Medications & Stopping Medications Too Soon: The truth is some medications that can make symptoms worse. Your neurologist will need to monitor all medications you are taking to ensure there are no interactions that can trigger symptoms to worsen. Even though some medications can have negative side effects, this does not mean you should stop any abruptly. You should always consult with your neurologist before starting or stopping all medications as to not increase your risk of a relapse.

The 10th Trigger Can Be Pushing Yourself Too Far & Too Hard: As already stated, fatigue is a common symptom for those living with Multiple Sclerosis. With that said, if you have MS and continuously push yourself to go with too little sleep and/or overwork yourself physically and/or emotionally, you might face ramifications. The combination of overexertion and fatigue can trigger a relapse or make a relapse last longer.

The best way to avoid a relapse due to pushing yourself too hard is, be easier on yourself or at least listen to the cues your body is telling you. Start slowing down when you become tired. Rest as much as possible when you can. Understand that pushing yourself to exhaustion, the recovery will take that much longer. It is important to know that our body does know when it has had enough and when it needs to rest and take a break!

I hope the information provided in this post will be beneficial whether you have MS or another chronic condition. Living with any chronic condition can be complex and I am only way too familiar with Multiple Sclerosis, and with March being Multiple Sclerosis Awareness Month, I wanted to be able to share as much useful information as I could.

Thank you for visiting my site today! I hope you have a nice and safe weekend! I am looking forward to reading your comments and I promise to respond as quickly as I possibly can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

9 Multiple Sclerosis Facts

In previous posts, I have explained that Multiple Sclerosis is an autoimmune and neurologist illness. What this means is MS affects the nerves, but also the body’s defenses to fight disease fails and begins to attack the cells. The immune system attacks the body’s myelin when you have MS. Myelin is a protective substance covering the nerves, so when this happens it leaves the nerves unprotected. The nerves being unprotected makes them vulnerable to damage, which causes them to not function as they would if there was healthy myelin. The damaged nerves create a wide range of symptoms that vary in seriousness.

A few additional facts regarding MS to understand are:

1.Multiple Sclerosis is a chronic condition, which means it is a lifelong condition and it does not currently have a cure. It is important to understand that even though there is not a cure, it is not fatal. There are 2.3 million people worldwide living with MS and they all have the standard life expectancy. It is only in rare cases there might be complications severe enough to shorten the life of a person. Overall, with MS most symptoms can be regulated with medication, adjustment to lifestyle, or both.

2. Multiple Sclerosis affects younger adults, and often women. Although MS can be diagnosed in children and older adults, people are mainly diagnosed between the ages of 20 and 50. Women are two to three times more likely to develop MS than men. If the person is diagnosed is over the age of 50, this is normally called late-onset MS. It can be challenging for older adults to find a diagnosis of MS due to other age-related conditions having similar symptoms.

3. Multiple Sclerosis can be arduous to diagnose. Often symptoms and single tests are not enough to be able to make an accurate MS diagnosis. The challenges are due to the symptoms mirroring the symptoms of other conditions. Numerous tests that can be used to rule out other potential causes of the symptoms a person is experiencing, which include:

A. Blood tests to rule out Lyme disease, which can trigger the same symptoms of MS.

B Neurologist Exam

C. Magnetic resonance imaging (MRI)

D. Visual evoked potential (VEP) test, which looks for impaired transmission present along the optic nerve pathways.

E. Cerebral Spinal Fluid (CSF) Analysis is a way to look for conditions affecting the brain and spine. The CSF analysis is a series of laboratory tests performed on a sample of the CSF, which is a clear fluid that cushions and delivers nutrients to the CNS.

F. Optical coherence tomography (OCT)

4. The symptoms involved with Multiple Sclerosis vary and the list is long. The truth is, there is no such thing as typical symptoms because everyone that lives with this illness experiences it differently. Some symptoms may simply come and go, or some may regain a lost function, such as bladder control. A few possible symptoms include numbness and tingling, vision problems, balance and mobility issues, and slurred speech. The unforeseeable pattern of symptoms is due to whatever nerves are being attacked by the immune system at any given time. Most things are just unpredictable, and we must deal with the issues as they come up.

5. Multiple Sclerosis is comprised of relapses and remissions. Remission is the period of time when the symptoms have improved. Remission does not indicate the MS is gone, but these periods may last days, weeks, months, or in some cases years. Relapse or exacerbation is the incidence of a new symptom or worsening of an old symptom. This occurrence can be mild or severe enough to interfere with the ability to function. No two exacerbations are the same, so it is important to consult with your neurologist when you deal with one.

6. There is a cognitive part to Multiple Sclerosis. All the damage MS causes to the nerves can also impact critical thinking and other cognitive (mental) skills. It is not unheard of or abnormal for people with MS to have issues with memory and or finding the right words to convey what they are thinking. A few other cognitive effects may include:

*An inability to concentrate or pay attention

*Decreased problem-solving skills

*Difficulty with spatial relations, which means the ability to perceive two or more objects positioned in space relative to oneself and in relation to each other.

*It is normal for cognitive problems to create frustration, depression, and/or anger, but these are issues your doctor can help monitor and manage.

7. Multiple Sclerosis has been labeled as an “invisible illness” or “silent disease”, which makes sense because at face value people with MS look no different than those without MS. Symptoms such as blurred vision, sensory problems, and chronic pain cannot be seen by anyone else. However, some people that do require special accommodations, even though they do not have mobility issues and appear to be fine. One reason why MS has been labeled a “silent disease” is that even during remission, the disease is still, unfortunately, progressing, which has been referred to as “silent progression” of MS.

8. Staying cool whenever possible is greatly beneficial. Heat intolerance is another common issue that can cause an exacerbation of symptoms. People with MS may experience an increase of symptoms from hot weather or sun exposure, fever or illness, hot baths, or showers, and overheating from exercise.

It might be helpful to use fans and air conditioning, cool drinks, and/or icy compresses to stay cool. Wearing layers of lightweight clothing that is easy to remove may serve as a benefit as well. Also, utilizing a cooling vest that can be purchased online. Although people might experience a heat-related relapse, it is important to understand that heat does not cause MS to progress any faster.

9. Vitamin D plays a vital role in Multiple Sclerosis. Research has indicated a link between Vitamin D and MS, which showed the nutrient can function as a protector against MS and possibly lead to fewer relapses. Sunlight triggers the production of Vitamin D in the body, but that sun exposure can also lead to heat-induced symptoms. There are plenty of ways to increase Vitamin D without sun exposure which include fortified milk, orange juice, cod liver oil, salmon, tuna, and eggs or there are also Vitamin D supplements available.

I hope you found this information useful for yourself or someone you know. Please just keep in mind that I am not a doctor or medical professional, I am just someone that has lived with MS for over 20 years. I have experienced most of what is in this post, but that one thing I did not do when I was diagnosed was have the CSF Analysis. I have heard it is not pleasant, but people do live through it. There are still a few days left in the month of March and I do plan on doing a few more posts for Multiple Sclerosis Awareness. I do feel like there is a lot of information available and it needs to be shared with as many people as possible!

Thank you for visiting my site today. I always appreciate your continued support and truly love reading your comments. I hope you are having a good week and you are staying safe because COVID is still a threat. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Helpful terms to know

~Terms to know when living with Multiple Sclerosis~

Whether you are newly diagnosed with Multiple Sclerosis or you have been living with MS for many years, you already know it is hard enough living with MS. Then adding learning and remembering an entirely new vocabulary makes things even more challenging, and confusing. I know there are times I still get a little flustered when talking to my neurologist or try explaining to someone the way I am feeling. I am going to share some useful terms to try to help make things somewhat easier to understand. Please keep in mind that I am not a doctor or medical professional, just a person that has lived with MS for more than twenty years.

Fatigue is one term we are probably all too aware of. This is one of the most common and important symptoms relating to MS. It has been suggested by the National Multiple Sclerosis Society, that this affects about 80% of all people living with MS.

Vision problems tend to be the first sign of MS for many people. This was the way the doctors discovered that I had MS. I think I have told y’all before, I had gone to the eye doctor thinking I was going blind in one eye, but the doctor said as gently as he could that he thought I had MS. I was terrified and only 19 years old, so I was still a child with a naïve mind. Inflammation of the optic nerves is knowns as optic neuritis. This can cause several problems, such as blurred vision, eye pain, and/or blind spots.

Brain fog is not a medical condition, but a term that is used to explain certain symptoms affecting the ability to think. Brain fog can make thoughts seem cloudy and you are not able to think clearly. This might cause you to feel confused, disorganized, and/or find it difficult to focus or put thoughts into words. This is also sometimes referred to as MS brain, cog fog, or cotton brain.

Slurred speech is often due to the loss of coordination of the tongue, lip, cheek, and mouth muscles. This loss of coordination may also result in trouble swallowing.

Loopy, which can be best described as feeling tired and/or almost like you are drunk.

Jelly leg, which may be referred to as jell0o legs or noodle legs. When experiencing jelly legs, you are legs will not work correctly.

Hallway pinball is when your walk is weaving from side to side. With MS, your legs may sometimes feel wobbling, weak, and tired. You might lose some control of your legs and when walking down a hallway, forcing you to bounce back and forth from side to side like something you would see on a pinball machine, hence the name.  

Wooden leg or legs is a phrase that is used to describe the stiffness in the legs.

Foot drop is a term used to explain weak muscles that make it difficult to lift the front part of your foot or feet as you walk.

One major symptom of MS is chronic or acute pain. Shooting pains are typically acute, which means they come on suddenly, intensely, and then disappear. Pain is something I have battled with for the past 20 years and it does not get easier with each year that passes. However, I will not allow the pain that my life is plagued with bring me down and will always try to continue pushing through it, no matter how awful it gets. Truthfully, the pain does get worse when it rains or I am stressed. Lhermitte’s sign is a type of shooting pain. This is a sudden sensation that mirrors an electric shock passing down the back and into the spine and might radiate out into your arms and legs. This is usually triggered by bending your head forward towards your chest.

MS hug is a type of hug I never want. This term describes a constricting pressure surrounding the chest or waist area. It feels like there is a snake around you and just continues to squeeze or at least that is how it feels to me. The pain involved with the MS hug can range anywhere from mildly annoying to extremely annoying and tends to come along with a burning sensation. An MS hug is caused by spasms of the muscles between the ribs.

Spasticity, also referred to as spazzy. This is a common symptom of MS and can occur in any area of the body, but most commonly is in the legs. With this, the muscles might feel simply tight or can be extremely painful. There are two types of spasticity:

1. Flexor affects the back of the leg and upper thigh.

2. Extensor which affects the front of the upper thigh and inside of the upper leg.

Twitchy means you are experiencing twitching from spasticity.

Considering MS affects the central nervous system, the pins and needles sensation is common and most often felt in the limbs. This has been something I have dealt with for years and it is not easy to deal with. Even though I am on a high amount of Gabapentin, I do still feel this every day of my life.

Thank you for visiting my site today. I hope you found this information helpful or at least made things a little clearer. Believe me when I say, I understand how hard it is to remember every term used in the medical field and I have learned more by sharing this information with y’all. I think we can all continue to learn more, and we can help one another with this learning curve. I would love to read your comments on this post, and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Brain Health with Multiple Sclerosis

~Ways To Keep Your Brain Healthy~

Living with Multiple Sclerosis over the past twenty years has taught me a lot about strength, determination, and the power of the mind. Of course, I am always wanting to learn more about different ways to beat this unpredictable illness and I would like to share with y’all something that I learned with research. I have said this in previous posts, but feel it is important to say again, I am not a doctor or a medical professional and what I write about when discussing anything related to the medical field is based on my research.

It is common knowledge that Multiple Sclerosis is a neurological condition that affects the brain and nervous system. With that said, I am going to explain 5 approaches that can help protect our brain health.

1. See a neurologist:

A neurologist is a doctor that specializes in the nervous system, which includes the brain. There are several ways a neurologist can be helpful that include, but not limited to:

A . Monitor any progression of the condition we are dealing with.

B. Evaluate the treatment plan to ensure it is providing the best prevention of progression and or disability.

C. When necessary, recommend changes to the current treatment plan

D. Disclose information regarding any new and/or experimental treatment options.

I think it is crucial to have a neurologist you trust and are comfortable with because they are the ones helping prevent the progression of the specific disease. This type of specialist tends to have a personality of a gnat, but there is one out there for all of us. Over my 20 year stretch with Multiple Sclerosis, I have seen around 5 or 6 and at least 3 of them did not work because I did not trust their abilities, nor did I feel comfortable with them. You must feel comfortable and trust the specialist you see because your health is basically in their hands.

2. Discover the disease-modifying treatment (DMT) that works best for you:

Disease-modifying treatments are a class of medications that were designed to slow the progression of MS. These medications can help in several ways which include, but not limited to:

A. Ward off the growth of lesions on the brain and/or spinal cord

B. Decrease the frequency and seriousness of relapses.

C. Diminish the risk of disability.

The specialist you see should be able to explain the various types of DMT’s, which include explaining the potential benefits and risks of each. During my MS journey, I have tried several and found some that worked well for other people but did not work for me. I think it can be one of those trial-and-error situations. I learned quickly that I cannot do shots and it has nothing to do with the needle, as I do not have a fear of needles, but everything to do with the side effects I could not handle.

3. Be involved with Cognitive Rehabilitation:

Cognitive rehabilitation entails utilizing memory or learning exercises to improve cognitive functioning. These exercises have the potential to help many things which include the following: Memory, learning, and attention.

4. Find time for mentally stimulation activities:

If we try taking part in mentally stimulating activities daily, it can increase brain volume and expand our cognitive reserves. By doing these activities daily or at least every other day, they can help protect us from memory loss and other cognitive changes. Simply giving our brain a good workout with thought-provoking activities could prove to be fun and keep our brain healthy. It may be beneficial to make time in our schedule for something such as:

A. Complete a crossword puzzle, Sudoku puzzle, or any other word or numbers game. I love Sudoku puzzles but have never been good with crossword puzzles, but then again, I have not actually tried.

B. Read books, magazines, or other types of materials.

C. Write diary/journal entries, short stories, or poetry (all for your eyes only if you choose)

D. Paint, sculpt, or other types of work of art.

5. Try getting some exercise:

Getting a little regular physical activity is vital for our overall health. This does not mean we must join a gym and go every day; it can be something simple and easy to do at home. Exercise can possibly help with various things, such as:

A. Preserve OR increase brain volume.

B. Improve cognitive processing speed

C. Boost memory

D. Lessen fatigue.

E. Decrease the risk of depression.

I hope the information provided in this post was helpful for you or someone you know. It is important we do all we can to protect our brain health, which can help to prevent any additional challenges with Multiple Sclerosis. I decided 20 years ago when I was first diagnosed with this disease and promised my late Grandfather, I was not going to allow it to defeat me, and I would continue to fight until I lost the ability to do so which has not happened yet!

Thank you for visiting my site today! I always appreciate your continued support and enjoy reading your comments, which I do my best to respond as quickly as I can. I hope your week is going well and you are looking forward to the upcoming weekend, which is finally almost here! I do hope any plans you have for the weekend you will remain safe!! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Multiple Sclerosis Awareness Month

As you read this post, please be advised that I am not a medical professional. The information in this post is based on the research I have done since being diagnosed with this disease 20 years ago. The one thing about this disease that is important to understand is, it is extremely unpredictable and everyone, no matter what type of MS they have experiences it different. It does not matter if two people have the same type of MS, everyone experiences and deals with it differently.

Multiple Sclerosis (MS) is an autoimmune disease that means that the body’s immune system attacks its tissues. This is a very unpredictable disease, and everyone experiences it differently. In this post, I am going to explain the four different types of MS and the distinctive characteristics of each type.

Radiologically Isolated Syndrome (RIS), is not considered part of the MS path, but has been utilized to categorize those with abnormalities on the brain and/or spinal cord that are consistent with a lesion of MS, and do not have any current or previous neurological symptoms or abnormalities discovered on a neurological exam. Many individuals had an MRI due to symptoms, such as headache, and revealed lesions appearing similar to those found in MS. During a study in 2020, it was uncovered that more than half of individuals with RIS will develop MS within 10 years.

Clinically Isolated Syndrome (CIS) is a path of MS. CIS is referred to as the first occurrence of neurologic symptoms, which last at least 24 hours. This occurrence is caused by inflammation OR demyelination in the Central Nervous System (CNS). CIS can be classified as monofocal OR multifocal. Monofocal is when a person experiences a single neurologic sign or symptom that is caused by a single lesion. An example of this is an optic neuritis attack. Multifocal occurs when a person endures more than one sign or symptom caused by lesions in more than one area. An example of this is an optic neuritis attack and tingling in the feet. An important thing to be aware of is, just because an individual experiences CIS, it does not mean they will develop MS. The healthcare provider faces two challenges with diagnosing CIS:

1. Determining if the person is experiencing a neurologic episode caused by damage to the CNS.

2. Determine the chance from the damage the person is experiencing is a form of demyelination that will develop into MS.

Relapsing-remitting MS (RRMS) is the most common and the type I was diagnosed with 20 years ago. Approximately, 85% of individuals with MS are originally diagnosed with RRMS. This type of MS has evidently defined the attack of new or increasing neurologic symptoms. The attacks are also referred to as relapse or exacerbations and are followed by periods of partial or complete recovery, which is also known as remissions. While there is not any obvious progression of the disease during a remission, symptoms may disappear or some of the symptoms may continue and become permanent.

RRMS can be further described by inflammatory attacks on myelin, which is the layers insulating membranes surrounding nerve fibers in the central nervous system (CNS) and the nerve fibers. Throughout the inflammatory attacks, activated immune cells cause small, restricted areas of damage that create the symptoms of MS. Considering the areas of the damage varies, no two people will experience the same symptoms at any given time.

Those who have RRMS tend to have more brain lesions and more inflammatory lesions that appear on the MRI scans. Individuals are often diagnosed with RRMS in their 20’s and 30’s but can also occur in both childhood and later adulthood. Women are diagnosed 2-3 times more often than men.

The symptoms of RRMS can and normally are different for each person, but there are some common issues. The most common symptoms for RRMS are fatigue, numbness, vision problems, spasticity or stiffness, bowel and bladder problems, and issues with cognition. It has been suggested that a transition from RRMS to years SPMS typically will take place in people who have lived with RRMS for at least 10, but this does not always happen.

Secondary Progressive MS (SPMS) is another type of MS. This type of MS usually follows a period of the relapsing-remitting disease, the levels of disability gradually increase with or without evidence of disease activity.

SPMS is basically a second phase of the disease. Individuals with this type of MS may or may not ensure relapses caused by inflammation. However, the disease slowly changes from the inflammatory process like seen with RRMS to a consistent phase classified by nerve damage or loss.

Before the availability of disease-modifying therapies, some studies suggested that 50% of those diagnosed with RRMS would shift to SPMS within 10 years, and 90% would change within 25 years. The many different medications that are available in 2021 have provided a positive impact on disease progression. However, experts say it is still too soon to know the extent to which these disease-modifying treatments will change or slow the transition to SPMS.

Considering the transition from RRMS to SPMS is a gradual process, the healthcare provider will not know when exactly it occurs. The challenges the healthcare provider faces is establishing if:

1. The worsening is permanent, but some damage remains after the inflammatory attack ended, meaning the individual is experiencing an RRMS disease course.

2. OR the disease continues to get worse, but the individual is no longer enduring an inflammatory relapse, which would indicate the person has transitioned to an SPMS disease course.

The fourth type of Multiple Sclerosis is Primary Progressive MS (PPMS). This type is classified by worsening neurologic function from the onset of symptoms without early relapses or remissions.

Each person that lives with PPMS will experience this disease differently. Commonly, PPMS may have short intervals when the disease is stable, with or without a relapse or any MRI activity, as well as duration when there is increasing disability occurring with or without new relapses or lesions on an MRI.

PPMS is different from RRMS and SPMS because it does not include the same issues with inflammation. Although people with PPMS have fewer brain lesions than those with RRMS and SPMS, they do tend to have more lesions on their spinal cord. Typically, people with PPMS experience more problems with walking and may require more assistance with everyday activities.

From my own experience with Multiple Sclerosis, I was a terrified child when I was diagnosed. I was only 18 years old and did not know much about the disease. In my naïve childlike mind, I was going from being diagnosed to a wheelchair and then death. Yes, I was diagnosed, but did not end up in a wheelchair yet. I think it is extremely important for anyone newly diagnosed to do research, build a strong and honest relationship with a neurologist, and have a strong support system. It can be a scary and terrifying diagnosis, but a normal life can still be lived, especially one the right disease-modifying treatment is found!

Thank you for visiting my site today. This is my first post about Multiple Sclerosis for MS Awareness Month. There is so much information out there about this disease and I only wish I had this when I was diagnosed all those years ago. I can remember how I felt because I was alone in the exam room when I heard the news and it felt like the room was spinning out of control. I did not want anyone to know I had MS, but that was rather silly. Now days, I am open about it and want to help others that are dealing with this disease. I want y’all to know, no matter how alone you feel, you are never alone! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes! I also want you to feel free reaching out to me any time if you ever need any extra support and help!

Always, Alyssa

My COVID Vaccine Experience

~To Get The Vaccine OR To Not Get The Vaccine~

On Saturday morning, with an incredibly special thank you to my wonderful husband, I was finally able to get the COVID vaccine. If I had waited for either my specialist or the governor of the state, I live in to get this vaccine, I am sure I would have been waiting until at least summer. I do understand the need for front line workers and elderly individuals to be among the first to get the vaccine. However, I also think people with a weak immune system should be able to get the vaccine as well. Truthfully, it is not just because I have a weak immune system but those with a weak immune system can become deathly ill with this virus. I guess in a sense it is a blessing this vaccine was created so quickly, but it is also awful there are so many people that will have to wait to get the vaccine because not enough were rolled out.

It typically takes 5-10 years to create a vaccine and yet the COVID vaccine was done in less than one year. I know I did just get the vaccine, but one of many reasons why I was so hesitant about getting the COVID vaccine was because it so fast. I was obviously concerned about the side effects it might have that they were unaware of. I do not think there were enough tests completed, but during this pandemic with so many people dying each day, I guess there were not many options.

We have all been living in fear for so many months and most of us have been staying at home to be safe. This past year has created the feeling of isolation, which can feel very lonely. Many of us missed out on celebrating the holidays with our family because of this virus. I do still believe that if everyone had followed the advice from experts in the beginning, things might have been better. There was a lot of misinformation being released from the government, which as y’all already know had me feeling terribly angry. It will not be a surprise to any of you that have been reading my posts during the Trump administration, but I think the way the pandemic was handled or rather not handled was all wrong.

I do passionately believe that if there had been someone else in charge in the beginning of the pandemic, things would have been handled faster and more efficiently. We were all told so many lies about the virus either not being that serious or that the virus was a hoax. Many people never thought anyone could put the lives of other human beings in danger, but that was not the situation. Unfortunately, the former president of the United States did not have any concerns about anyone but his own safely.

I know y’all are not reading this to hear about what I think of the former president or the ways this virus got so out of control, but I do want to let y’all know how my experience was getting the COVID vaccine. I am not going to lie to y’all I was very nervous. As I already said one of my biggest concerns was the possible side effects of a new vaccine. Another concern I had was any potential interactions with my MS medications. The Nurse Practitioner at my specialist’s office told me some of the other patients on Gilenya did already get the vaccine and did not have any side effects. I also called the manufacturer of Gilenya to find out if they heard of anyone taking this medication getting the vaccine and having a bad interaction, but with the vaccine being so new they did not have any information. I am also very aware that no two people will probably experience the medication, the vaccine or the two together the same way, but I had to cover all basis before I got the vaccine.

Before I even got the vaccine, I was already dealing with a nasty headache, but I think it may have been caused by stress and lack of sleep. After I got the vaccine on Saturday morning, my husband and I stopped to get some breakfast because I was so hungry. We just went through the drive-thru and took the food home to eat. My headache did not ease up and I was exhausted, but again, the night before I hardly slept at all. Overall, besides the fatigue and headache, I did experience body aches all weekend. To be completely transparent, I could not tell if the body aches were from the vaccine or the rainy weather we were expecting. On most days I do ache from head to toe, but the aches seemed much more intense.

Much to my surprise, I did not have any severe side effects from the vaccine and even have the second one scheduled for February 13 at 9:00 AM. I prefer to do things like this early in the day and when I have a day or so without having to work just in case, I end up not feeling well. I think another reason I was so terrified of the vaccine is because I never even got the normal flu shot because of possible negative interactions with my MS medicine.

My husband has already had his 2nd COVID vaccine and even after I do as well, we will continue to behave as if we did not get it. We will both continue to wear masks, social distance, and sanitize everything because we both feel that you can never be too safe. It is awful that thousands of people are still dying daily because of this virus and upsetting how many others still refuse to wear a mask. I will never understand why people cannot see the increased numbers of new cases and deaths, and still think a mask is too uncomfortable to wear. In my eyes, a little discomfort for a short amount of time is worth it if it will save lives!

I am not going to be one of those people that says you must get the vaccine because I think you need to be comfortable with this. Nothing I have said in this post is meant to be medical advice and I would still advise you to consult your physician before getting the vaccine. Yes, I think it will keep you safer, but even after getting the vaccine you can still get COVID. I was told if you have had the vaccine and get the virus, symptoms might not be as severe. Unfortunately, with this virus and the vaccine still being new, I do not think anyone really knows answers to be 100% true, but they are working with the information they do have.

I would like to thank you for taking the time to read my post today! I guess this topic can be controversial, but I did want to share my vaccine experience with y’all. I hope you enjoyed what I have shared and hope it will help you to make your own decision to get the vaccine or to not get the vaccine. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

© 2021 Copyright https://fightmsdaily.com/

Inspirational Wednesday

~We Are Halfway Through The Week~

Happy Wednesday y’all! I hope you are all having a great week! The world has all been living in the midst of a crisis with COVID-19. I do know it isn’t easy to deal with the stress of this, especially with the vaccine being difficult to get. The good news is, we today, in the United States, we are saying “goodbye” to a failed administration and will be welcoming a new administration. I know there are some that are not very welcoming to the new administration, but it is a possible a fresh set of eyes will find a better way to handle this awful situation.

Now that we have made it halfway through this week, we are so much closer to the weekend we all look forward to! During these trying times, it is extremely important to hold on tight to hope, because without hope, we do not have anything to keep us feeling optimistic. I think hope offers a sense of comfort and peace. My wish for y’all is, the quote that I am sharing will offer you the desire to push through the next couple of days to make it to a restful and peaceful weekend! It seems there is a lot of anger and hate in the world today, so to try discovering the light in the mix can be beneficial. If we are all able to see a little light through all the darkness, we might be able to light up the world we are in together. What do you think about this quote I have shared?

Yesterday, while I was at work, one of my co-workers called me to tell me her COVID test came back positive. This lady was very upset, which I cannot blame her. She told me that not only does she have diabetes and obesity, but she has a few other health issues. I tried comforting her, by telling her as long as she did not have any breathing troubles, she just needed to let her primary care physician know just in case he wanted to see her or offer any other suggestions. We work from home, so if she is feeling okay and did not have to miss work , I do not think she would have to notify the HR department, but I did suggest she let our team lead know and go from there. As far as I know, she ended up clocking out so she could get a better and calmer handle on things. Hearing the fear in her voice broke my heart. I will check up on her later today and hope she is feeling well and resting!

Thank you for visiting my site today! I hope you have a great day and, as always, please continue to stay as safe as you can. I hope you never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

© 2021 Copyright https://fightmsdaily.com/

~Motivational Monday~

~A New Week, Gives Us A Fresh Start~

Happy Monday y’all! Did y’all have a nice, safe, and relaxing weekend? Weekends are a great day to recuperate from our long work week. This was the first weekend in a while that I didn’t work overtime, and it was great! Don’t get me wrong, I love the overtime pay, but I was also a little worn out from the long hours I have been working. I have learned that working seven days a week is not the best plan, especially when dealing with a chronic illness. We all need to learn to put our health above things like work!

Now that we are beginning a new week and leaving the restful weekend behind, I think we all need a little motivation to get us started! Weeks are long, and weekends are short which can be exhausting, and a little frustrating. During these difficult and challenging times of COVID, it is important to find at least one positive thing each day. This isn’t always easy, but we must believe there is something great in everyday of our life! This is my goal for the week in front of us and hope you will do that same!

The holidays are coming up on us so fast and I don’t know about you, but I am not ready for them. I guess this is partially due to my intense fears of COVID and the fact that I do not have an immune system, but they are coming whether we are ready or not. I am planning to do a post soon about the safest way to be able to celebrate the holidays and not put ourselves in any harm. There must be a way, right? Of course, there is, but these ways might not keep everyone in our family happy. I do think Christmas and New Year’s will be a lot different than all previous years, but that is where we are all at right now in life and we need to make the most of it.

Thank you for visiting my site today! I always appreciate the time you take to read what I have shared and love reading your comments, which I promise to respond to as quickly as I can. I am also planning to do my typical posts all week and not allow work to intrude on what brings me happiness! Please just remember to stay as safe as you possibly can this week! I hope y’all never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

~Pick Me Up Thursday~

**We Are Finally Almost To The Weekend**

Happy Friday Eve y’all! How has your week been? As always, my week has been busy as ever, which I do enjoy. I never thought I would say this, but I do love my job. I don’t just love my job because I am working from home and the work itself can get frustrating, but for some reason, I enjoy it. I hardly ever take an official lunch break and instead work while I eat something. While there are some people I could do without, the majority of the people are pretty great. I guess it could be because I have not really met anyone I work with and only see them on the video meetings!

With the weather changing and is getting colder, the days might seem a little longer because they are! Hot weather is always very draining for me, but the cold temperatures increase the amount of pain I feel drastically. I am sure the reason for the increased pain in colder weather is because I tense up a lot more, but it is nothing that my small and great space heater can’t help! Considering my husband and I both work from home, and our joint home office is in the finished part of the basement, it gets cold. We purchased a few small space heaters that work brilliantly!

As our week is finally coming to an end, I think a little pick me up is just what we all need. Life in, general, can be stressful, but when you add work, fears of COVID, health, and everything else to the mix it can be overwhelming. I think days when I do not have something that makes me smile and or laugh the days are dreadful. The simplest things can bring a smile to our faces, like both of my cats are full of entertaining surprises, and the adorable groundhog that lives out back always makes my day much better. With that said, I hope the quote I am sharing will make you smile, even just a little!

Thank you for visiting my site today! I hope you have a great day and you stay as safe as you possibly can. Unfortunately, the COVID-19 numbers are increasing on a steady basis, so we need to be careful and take all precautions necessary. I am looking forward to reading your comments and promise to respond as quickly as I possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa

Been on my mind

~Living Life With An Unpredictable Illness~

I have decided to write about a few things that have been weighing on my mind lately. Lately, I have been feeling overwhelmed with life, work, and health concerns. There always seems to be something going on in the world from the political insanity to COVID-19 to mass levels of hatred that is being spread even fast than the virus.

I think after everyone that wanted to vote did so and the counting was finished, there should not be any more talk about it. The voices of SO many American people spoke out and there is going to be a new president starting in January 2021! There is a chance we may have hope now because we are not going to have an immature person that is unable to take accountability for what has happened with this pandemic and is definitely not a leader in the White House.

As for COVID-19, if people would just follow the advice we have all been told for months now, MAYBE there would be more control over the virus by now. Unfortunately, the few times I actually leave my house hardly anyone is wearing a mask. I just do not understand why because I know they must have seen the news and see the numbers on the consistent rise. The virus is NOT a joke. This virus is killing thousands of people every day and it needs to stop.

The hatred that is being spread will never make sense to me. I have said this to y’all multiple times, but I have to say it again, everyone should be treated equally and with respect. A person’s race, color, sex, national origin, sexual orientation, religious following, and anything else should not matter because we ALL have a beating heart and feelings. No one should ever feel shame for who they are, but instead should be proud. The rage and hate that is filling the United States must end because the death, injuries, and fear are things that never should happen.

I will end my little rant now, but I do want to share with y’all a little about what my life has been like living with an unpredictable illness, especially during the pandemic. Most of you, if not all of you are already aware that this is definitely not easy. Of course, there are good days along the way, but then there are also those days that are more grueling than any others. The truth is there are some days it is challenging for me to even get down the stairs to the home office and begin my workday because my legs hurt terribly and they are extremely weak, but I do manage to get there.

Besides the continuous pain I have from my knees down to my toes, I have massive amounts of pain issues from the middle to the lower area of my back. Considering I have been living with Multiple Sclerosis for two decades, I have learned to live with the pain. I guess it is safe to say that I have learned to not just live with the pain, but also accept it as part of my life. I mean there really isn’t another way because I am not going to allow for Multiple Sclerosis to dictate my life as I want to control my own life. Unfortunately, there is not a cure for Multiple Sclerosis yet and I want to live my life to the fullest I possibly can. After all, I did make my late Poppy a promise 20 years ago that I would NEVER give up and I refuse to disappoint him by not keeping that promise!

Another difficult symptom I have been dealing with more lately is dizziness. Previously, the dizzy spells were random and only a few times a year, but recently they have been awful. Last week, I had two dizzy spells within a few days of each other. The second one happened after my husband and I finished dinner, and I told him before I tried to start cleaning that I didn’t feel right. When I tried standing up and I told my husband I was very dizzy, so he started cleaning up for me. I still attempted to try helping and when I thought I had control of the dizziness, I fell in the kitchen. Of course, my husband came running to my side to make sure I was not hurt. The only injuries were a few bruises to my knees and thankfully did not hit my head. Even after sitting on the floor with my husband for a few minutes, I still didn’t feel like I could stand without falling, so my sweet and caring husband carried me into our room.

I want to thank y’all for visiting my site today and reading this post. Even though I know some of you can relate to this, I wish you didn’t have to because I know it isn’t all that fun. On my worst days something that helps me get through them is I can hear my Poppy’s voice saying “No matter what you are going through in life, someone else is always going through something worse. “ He always told me he believed in me and that I was strong enough to get through anything thrown at me and I know he was right!

I would love to read your comments and promise to respond as quickly as I can. I know sometimes it takes me longer to respond, but that is because I have been working no less than 45 hours a week and sometimes more. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!

Always, Alyssa