Rainy Sunday

have-a-peaceful-good-evening-52650-14376Good Evening and Happy Sunday❤!  I hope y’all have had a nice and pleasant weekend. It always amazes me how fast the weekend flies by! I hope y’all were able to rest up and are prepared for a new and hopefully amazing new week!

Do you notice increased pain when it 🌧rains? Have you ever wondered why the rain can be so soothing to hear, but yet cause all you SO much additional pain at the same time? Well, I of course became so curious to get some real true answers considering all Mother Nature wants to do right now is rain I had to do a little of my own research.

After reading on several different websites including https://www.medicinenet.com/script/main/art.asp?articlekey=52133, I have found it is all pretty much due to barometric pressure. When the pressure in the atmosphere is low, rainy days are painful daysclouds and rain is much more likely. Dampness has a tendency to increase our pain and stiffness because of the reduction of pressure in the atmosphere which allows the bodily fluids to move from blood vessels to tissues and in turn causes swelling and pressure on the nerves in those tissues.🌧 Also it causes an increase in fluids on the affected joints. Pressure on the nerves and joints will naturally cause an increase in pain and stiffness

Let me just ask, how do you handle these 🌧rainy and painful days? Does the rain🌧 cause you more pain and stiffness? I try to stay inside, but what about tomorrow when it is going to be raining once again and I have to leave the house for work? I just tend to keep my trusty heating pad with me at all times and it helps some, but it is not as magical as I would like it to be!

I want to thank y’all for visiting my site today. ❤I appreciate all of your support more than words can even begin to say! I hope you had a great weekend and I hope you have a great start to your week. I am looking forward to reading your comments and I will respond as quickly as I can! Remember, I am always sending you LOTS of ❤love, support and comfort!

Love 2

❤Always, Alyssa❤

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It is okay to not be okay all the time

okayIt has taken me a really long time to realize that it is okay and perfectly normal to admit to not being okay all of the time! We are all just human and we all have times when we do not feel like our normal selves, as I said this is normal and there is not anything wrong with it! For some of us, including myself, it is not easy to admit to ourselves let alone anyone else that we are really not okay, but possibly struggling to keep pushing forward. Pain inflicts so many hardships to our lives and that pain can and does cause much sadness, fatigue, irritation and even bitterness.

As y’all already know, I have been dealing with a lot pain and muscle spasms, which you also know is extremely frustrating! Last week I had planned to increase my work hours, but unfortunately was not able to do this because of the intense pain I was experiencing. Trying to remain positive I thought, “It is okay, I will just try again next week.” Well that would be this week and so far it is not happening again. I did work 6 hours yesterday, but I was not able to go to work today.

dont-give-up-galaxy-hold-on-hope-Favim.com-1428490I will continue to refuse to give up and I also refuse being too hard on myself because at least I am trying! I want to be able to work “normal” hours, but more than that I want all this pain to give me a break even for one day! As crazy as this may sound, I am standing by my decision to not share this information with my specialist. Do I think she could give me any additional information that I do not already know after living with this illness for almost 18 years? My answer to this question is a FIRM NO! I will not struggle 1subject my body to even more steroids than I have already dealt with and I do not want to switch medications again! Prior to June 2017, I was on Gilenya for 6 years and it seemed to have worked well for me. My reasons for changing the medication was because I was dealing with horrible sinus issues and I thought it was due to the Gileyna, but now I see things differently!

With this horrible leg pain, which is also causing much additional back pain, I want to find some leg stretches that may help me even just a little! Do any of you do any leg stretches that you find beneficial and if so what are they? I know many of you know and understand what I am going through and I value your advice and opinions so much more than I can even explain❤!

❤ I hope y’all have had a great day and I appreciate you visiting my site today. I hope your evening is filled with much happiness and relaxation! I am really looking forward to reading your amazing comments! As always I am sending y’all LOTS of ❤love and comfort!

Love 2

❤Always, Alyssa❤

Fading Hope

Hope lostI feel as though I am slowly starting to lose hope that my leg issues are NOT going to come to a much deserved end! I have been dealing the pain and spasms at their worse for well over a week now and I am just really ready for a break! I know that may sound like I am just giving up and letting these issues win, but I am really not, I am just way beyond FRUSTRATED! It seems that in the past when I had these issues they subsided much faster than they are now. All I can think is, I am getting older so my body is going to take a lot longer to heal. I do not know if this is a real thing or not, but it is all I have to go on right now!

Just walking around our house feels like I am running a marathon and our house is not that big! When I am doing laundry, I have to carry the clothes down stairs to where the washing machine is and then carrying the clothes back up the stairs once they are dry to put them away. Logically that might wear anyone out, but right now for me it is tormenting my legs and in turn my back as well! Besides doing my normal things like laundry, grocery shopping, taking care of my sweet cats I am trying to rest, but the spasms and pain are still here with what seems like NO end in sight! I highly doubt my aggravation is helping at all, but I just really can not help it!

Let me also be completely honest with y’all, I have not informed my doctor of these issues because I do not want to hear what she might say! At that point with these issues that will not vanish she may insist even stronger I get an MRI, which will probably shed light on news I do not want to hear! Sometimes being a little ignorant to the truth infertility-card-losing-hope-not-optionhelps me not think about the troubles right in front of me. Considering I have had MS just shy of 18 years, I know in my heart and mind what is happening, but having a doctor that I do not care much for or ever agree with confirm my suspicions is  just not something I am ready for. Call that childish behavior or just being too stubborn for my own good or whatever else this might be, but I do not deal well with the constant disappointment of this illness. I always do my very best to just turn a blind eye to things I wish were not happening and hope they will just go away when they are ready! I think that MS sort of has a mind of its own and will do what it wants whenever it wants to without consulting me ever, which is just a little rude and mean!

I know how crucial it is to never give up hope❤ as it is something that is vital to our lives, but right now it is a little hard for me. I often feel like I have been fighting a battle that losing-hope-quote-1-picture-quote-1does not end and it is not ever easy! I also know how much staying positive can change our lives, but that positive attitude when it comes to all the pain and spasms I deal with is fading relatively  fast. I guess the reality is the pain and spasms are either permanent and I will learn to cope with them or some magical day it will ease up allowing me to feel as “normal” as I can! The real truth is what I am going through right now could be so much worse and other people are dealing with way more than I am so I really do not have much to complain about! This is all just frustration and wanting more than ever to not have this pain anymore because it is effecting my life, daily!

❤Thank you so much for visiting my site today. I am terribly sorry that this post might have been a little more negative than I normally am, but I guess we all have those days and it is okay because things will get better in time! I encourage your amazing comments and I promise to respond just as quickly as I can, your thoughts are so important to me. I hope you had a lovely weekend and I hope your Mother’s Day was very special! Never forget that no matter what I am dealing with, I am always sending you lots of ❤love and comfort!

Love 2

Always, Alyssa

Friday Sunshine!

struggleGood morning Y’all and a very happy Friday! Even though logically I know it is not possible, it feels like the weeks are getting longer. I had expectations for myself for this week, but those expectations were unfortunately not met. I told y’all in the beginning of the week I was going to try to increase my work hours from 6 hours daily to 7, but I was not able to. I also said I would not be hard on myself if I did not achieve this goal, which is a little untrue. As y’all know I have been struggling with a lot of spasticity in my legs, which is causing a massive amount of pain. I tried to push myself further so I could work 7 hours, but the most I was able to do was 6.5 hours. All I can say is, better luck next week because you know I will keep trying until I achieve my goal!

How was your week? Do you feel like the weeks are getting longer or is it all in my head? I think my week might have felt longer because I wanted so much to work longer hours and I was having so much pain! Frustration was definitely at a high! 

I am trying to make an important decision about whether I should or should not get another MRI. The only reason why my specialist sent the order in was because I haveMS Warrior been back on the Gilenya for 6 months and they want to see if it is helping my illness. Until I mentioned that I was on Gilenya for 6 years previously they did not seem to have any idea and now it might not even be necessary. It is a little disturbing to me that my specialist did not know or remember that I was on Gilenya for so many years prior to October. When she first told me I needed to have the MRI, I thought it was to see if the new active lesions from the October MRI had went into remission or if there were new lesions, I did not know she was ordering this because of the 6 month time line due to restarting the Gilenya! If I am being 100% honest, the only reason I would want this MRI done is to see if there are new active lesions causing all this spasticity and pain. But all the MRI will do is cause me a lot of unnecessary stress and in turn upset me way too much, which we all know the damage being upset will cause. I mean seriously, if all is well with the MRI the specialist mswill say I am doing well with the Gilenya but, if there is any activity on the scan she might say the Gilenya is not strong enough for me and I need to consider starting a different medication. The bottom line is I am NOT switching medications again until there is a cure because the Gilenya worked SO well for me for 6 long years and if the MS has progressed to Secondary, Gilenya is still used to treat the illness. Do you think I am being logical or irrational with my thought process?

I really appreciate you taking the time to visit my site today and I am really looking forward to your comments, which you know I will always respond to as soon as I possibly can! I hope y’all have a fantastic Friday and I also hope you are feeling well! Please never forget that I am always sending y’all positive vibes and lots of ❤love and comfort!

Love 2

Always, Alyssa

Top 50 Multiple Sclerosis Blogs

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Top 50 Multiple Sclerosis Blog

Good morning y’all! I want to wish you a great day and I hope you are feeling well! I actually received an email on Tuesday from Anuj Agarwal, the founder of Feedspot notifying me that my blog had been selected by the panelist as one of the top 50 Multiple Sclerosis blogs on the internet. I do want to share the link with you as well https://blog.feedspot.com/multiple_sclerosis_blogs/.

I am still at almost at a complete loss for words have found this out, but also so incredible thankful! It is an honor to be associated with blogs created by Jen with trippingthroughtreacle.wordpress.com, Heather and Dizzy at dinosaursdonkeysandms.com, Angela at fuckms.ca, Megan with bbhwithms.com, Ashleyslifewithms.wordpress.com and many others. These ladies are absolutely breathtaking and so full of inspiration; I only hope that I can live up to their standards with as much grace as they have!

I started my blog in July of 2017 with the intentions to not only raise awareness about Multiple Sclerosis, but also to inspire and encourage others battling this illness to keep moving forward and never give up! I have always believed that giving up is never an option no matter how difficult the journey becomes. I have wanted to share the experiences I have dealt with over the almost 18 years I have lived with Multiple Sclerosis to shine light on what you can and will overcome! I find it extremely important to always do our own research on ALL medications that may be suggested from the specialists because it is our body that will be dealing with the possible side effects and we all know our body’s way better than any doctor ever will!

Since starting my blog, I have had the opportunity to communicate with SO many people all over the world that are either living with Multiple Sclerosis or another chronic illness. All these of people have taught me so much about their illness and how they manage their illness, which has been very enlightening for me! Those that I have been able toMS Warrior have continued communication with about Multiple Sclerosis have also taught me a great deal about things I honestly did not know about or possibly was told but I ignored completely! When I was first diagnosed, I did not want to hear or believe ANYTHING my ❤sweet and patient doctor had to say, so it went in one ear and out the other. Sadly, most of what he said back then was actually true, who knew?

I feel privileged to have built so many ❤friendships with people in other states and countries because we have so much in common due to the struggles we face daily! This is a network of others that truly understand what it is like to live with an illness that does not yet have a cure, but hold onto the hopes a cure will be found sooner than later!

I would like to sincerely thank all of my followers for your continued support over the past 10 months❤! I appreciate everyone that takes the time to read my posts and make fabulous comments; this has enabled us to build great friendships even if we have not actually met in person! The support we are able to offer each other online is fantastic and incredibly helpful! For anyone that has not been able to visit Jen, Heather & Dizzy, Angela, Megan or Ashley’s site, they all provide great information and are truly lovely ladies, you will never regret checking out their sites💕! Always remember that I am sending y’all lots of love and comfort daily!

Love 2

Always, Alyssa

Intense Spasticity

Definition+of+spasticityFor the past few days I have been dealing with a lot of pain and discomfort in my legs and even in my arms. I have experienced this sensation many times over the years, so I was almost immune to it and did not allow it to alarm me too much. In all honesty though, as the days and feeling continued it just started to become quite annoying and incredibly uncomfortable. Nothing but my trusty heating pad ❤ seems to alleviate this feeling of pain, which is just VERY frustrating. So I decided to share a little information with y’all about spasticity, which I am sure most of you already know about!

Spasticity is feelings of stiffness and various ranges of involuntary muscle spasms. This is extremely common with those living with Multiple Sclerosis. Spasticity could be as mild as feelings of tightness of the muscles or so severe that it causes painful, uncontrollable spasms of the extremities, most commonly in the legs. Spasticity can cause pain and tightness in and around the joints and cause intense lower back pain, which is horrible to manage! Spasticity can be triggered by a number of things like sudden movement or position changes, extremes in temperatures, humidity or infection, but can also be ms spasticityaggravated by tight clothing!

There are different types of Spasticity are:

Flexor Spasticity involving the hamstrings which are the muscles on back of the upper leg and hip flexor which are the muscles at the top of the upper thigh. The hips and knees are bent and difficult to straighten.

Extensor Spasticity involving the quadriceps and adductors which are the muscles on the front and inside of the upper leg. The hips and knees remain straight with legs very close together or crossed over at the ankles.

There are treatments available for this possibly painful situation. Treatments are on an individual basis, but for any treatment it is important to work closely with a specialist. Some treatments may include certain exercises recommended by the specialist, changes in daily activities, medication or a combination of all three of these options. The two most common antispasticity medications are Baclofen and Tizanidine. Baclofen is a muscle relaxant that works on nerves in the spinal cord. Tizanidine works quickly to calm spasms and to relax tightened muscles. All medications that can be used, can and will work differently with each individual person, which is why it is SO IMPORTANT to always consult with a specialist and report all side effect experienced.

**Important Disclaimer** I am not a physician nor am I in the medical field, all information I am sharing is based completely on my own research and personal experiences, so please if you are experiencing anything to do with spasticity consult with your physician.

Thank y’all for visiting my site today! I hope this information was interesting to you and if you have any comments, please do not hesitate to leave them. I love❤ being able to read your comments and I do always respond as quickly as I can. If any of you have experienced this feeling and have found a good way to relieve the pain and discomfort, please let me know!! I hope y’all have a great day and are feeling well. As always remember I am sending y’all lots of 💕love and comfort!

Love 2

 

Always, Alyssa

Push through the pain!

it-takes-a-strong-heart-to-push-past-the-pain-and-go-dancing-in-the-rainPushing through my daily pain becomes more of a habit that I have learned to perfect over the years! No matter how high my pain levels are, I do my best to never give up and never allow anyone to see the weakness that comes along with the intense pain. I feel as if anyone sees how pain affects me, their views of me would change drastically and I would prefer to just be viewed as who I am beyond the pain I experience. Who needs pity from others, especially when they just do not understand the real difficulties involved? Those that are closest to me and really know me can always see in my face how I truly feel; there is no hiding how I am feeling from them. Even though those closest to me know about the pain I feel, I still try to push myself further so that we can enjoy our time together.

Up until a few months ago, even though I had pain issues then, I was working 40+ hours a week. After the relapse I had in October I had to reduce my hours because I was having a difficult time making it through a full day because my pain was so intense. It was not easy for me to admit because I am pretty stubborn and did not want to allow the MS or pain to control my life. I do believe there will be a day in the future, I will be able to go back to working full-time not because of my stubborn tendencies, but because I want to. I want to live a normal life and believe that I can accomplish this goal! I have found that I do much better earlier in the day and the longer I am sitting at a desk, staring at a computer and typing, my pain increases drastically! I feel confident that I will be able to find a way to arrange my desk to make it easier for me to type and sit all day long. Most people can not seem to understand how sitting a desk could cause pain, but it does. I almost think it is because my muscles need to move some so they do not get stiff. I do realize I could get up and take a walk around the office, but that just feels uncomfortable. There are also times that my legs hurt a little too much to actually do juusg51this!

In my personal opinion if I allow for this illness to dictate how I live my life, I am not being the strong person I am. I will never be one to give up and allow this illness to win the battle we have been going through for almost 17 years. In all honesty, I do see and feel a huge change in how my body has felt over the past few years. Are those aches from the MS or is it age, now I am only 36 years old, but I do feel like I am 56 some days!

I feel that it is so important to always keep fighting against the illness/illnesses we are battling. It is not easy, but who ever said life was easy? Sometimes we have to fight in order to succeed! When dealing with doctors, we need to fight for our rights to live as comfortable of a life as possible. So many people we come in contact we do not understand whatever illness we have. What do you do in those situations? You can try to educate them on what you live with or you can just ignore the ignorance they have. I have tried so many times to educate those around me, but they do not seem to absorb what I explain. Instead they say how lucky I am to be able to work less hours and be at home where it is comfortable. I think they really do believe that it is a positive thing that I get to go home earlier than them. But what they will never understand is, I would rather be at work than at home struggling with pain.

EmilysQuotes.Com-strong-smile-pain-cry-silent-sad-unknownI know many of you live with pain, so y’all know how difficult it is! How do you manage the pain you live with? Do you feel there are certain things that trigger the pain to intensify? I know stress is a huge trigger for my pain, but I do sometimes find it hard to avoid. 

Thank you for visiting my site today! I look forward to reading your comments and I will respond as quickly as I can! I hope you had a great day and I hope you are feeling well! Thank goodness it is almost Friday!!! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa