Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!
Happy Wednesday! We have already made it halfway through this week, making us so much closer to the weekend! I don’t know about y’all, but I am looking forward to the weekend. Getting up early and working many hours a day has been exhausting, and I am looking forward to a couple of days with nothing that I have to do. Hopefully, a couple of short days of rest will help get me feeling a little better. I am not sure if it is the weather being pretty cold or lack of sleep, but my pain level has been pretty high. Yesterday, my legs and back were in so much pain, it actually hurt to walk, but I still pushed through because I refuse to give up and surrender to the pain!
We have all seen the awful things occurring in the United States, and it is easy to become discouraged, but the best thing we can do for ourselves and those around us is to stay optimistic and inspired. There are always steps we can take, to help others become and stay inspired, and even if this is just encouraging others. Of course, there is not much we can do to change what is happening, but we can hope for some truly positive changed to happen. I do believe we are all in dire need of positive changes, and some of these changes must happen with the way people are thinking, and behaving.
How have you been doing and feeling? I am not sure where you live or if the weather has any effect on how you feel, but I would love to know how you are doing. I am asking because I can about y’all and I want nothing but the best for all of you. Times are difficult for everyone right now and I have a deep desire to help others as much as I possibly can. Currently, I am putting together some items that will be beneficial to those in need. I feel truly blessed because for the most part, I have everything I want and need, so I want to help as many people as I can! With COVID being as bad as it is right now, I do not feel comfortable volunteering anywhere, but I will do what I can to help.
Thank you for visiting my site today. I hope your week is going well and you are doing what you can to stay safe. I think we can help one another by being supportive and encouraging one another. I hope you will never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Monday y’all! Did y’all have a nice, safe, and relaxing weekend? Weekends are a great day to recuperate from our long work week. This was the first weekend in a while that I didn’t work overtime, and it was great! Don’t get me wrong, I love the overtime pay, but I was also a little worn out from the long hours I have been working. I have learned that working seven days a week is not the best plan, especially when dealing with a chronic illness. We all need to learn to put our health above things like work!
Now that we are beginning a new week and leaving the restful weekend behind, I think we all need a little motivation to get us started! Weeks are long, and weekends are short which can be exhausting, and a little frustrating. During these difficult and challenging times of COVID, it is important to find at least one positive thing each day. This isn’t always easy, but we must believe there is something great in everyday of our life! This is my goal for the week in front of us and hope you will do that same!
The holidays are coming up on us so fast and I don’t know about you, but I am not ready for them. I guess this is partially due to my intense fears of COVID and the fact that I do not have an immune system, but they are coming whether we are ready or not. I am planning to do a post soon about the safest way to be able to celebrate the holidays and not put ourselves in any harm. There must be a way, right? Of course, there is, but these ways might not keep everyone in our family happy. I do think Christmas and New Year’s will be a lot different than all previous years, but that is where we are all at right now in life and we need to make the most of it.
Thank you for visiting my site today! I always appreciate the time you take to read what I have shared and love reading your comments, which I promise to respond to as quickly as I can. I am also planning to do my typical posts all week and not allow work to intrude on what brings me happiness! Please just remember to stay as safe as you possibly can this week! I hope y’all never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
We have made it through one day of the week already, so happy Tuesday y’all! How is your “short” week going? Unlike the past few days when I worked, where I worked at least 10 hours a day, yesterday I only worked 9 hours! I think that is progress to slowing down a little, what do you think? The truth is, I do not know how to go slow when I work because I am focused on getting as much done as I can.
I told y’all that everyday this week instead of doing my normal posts with quotes, I was going to tell you two more things I am thankful for and why I am thankful for them. Before I share two more things I am thankful for, I want to thank y’all for sharing what you are thankful for. All of you are amazing and strong people, and I feel honored to have you as friends!
Another thing I am thankful for is something I don’t think about often, probably because I avoid thinking about the past, but I am thankful for the amazing neurologist that caught my Multiple Sclerosis early. My first neurologist was a patient and kind man, and I miss him more than I can even explain. I was determined to prove he was wrong about my diagnosis, but he stood by me and did everything he could to find the right medication for me. Without him and his early diagnosis, who knows where I would be now. For those of you that do not know, Dr. Kaufman was my first neurologist and he retired several years ago. He is irreplaceable.
Something else I am very thankful for daily is my two amazing and loving cats. Our oldest is Chloe, who is 15 years old and still so strong. Our poor baby girl was diagnosed a few years ago with early-stage kidney disease. Even though I can see she has lost weight and sometimes shows she is not feeling well, but that is just because I know her so well and she still beats up on her younger brother! Our youngest is our 10-year-old little boy Sundance. Sundance is a loving little boy with a fun personality, who really isn’t all that little because he is about 3 times the size of Chloe. Sundance has asthma and needs medicine twice a day. These two sweet creatures show so much love for one another and, me and my husband!
I hope you are looking forward to Thanksgiving on Thursday. I know holidays this year are going to be a little different from what we are used to, but we must continue doing what we can to stay safe! My husband works on Thanksgiving, so we will of course, we safe at home with each other and our sweet furbabies, and I am thankful for the safety of our home. We are able to keep each other and those beautiful cats safe and happy!
Thank you for visiting my site today. I hope you have a great and safe day. I am looking forward to reading two more things y’all are thankful for and promise to respond as fast as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Friday Eve y’all! How has your week been? As always, my week has been busy as ever, which I do enjoy. I never thought I would say this, but I do love my job. I don’t just love my job because I am working from home and the work itself can get frustrating, but for some reason, I enjoy it. I hardly ever take an official lunch break and instead work while I eat something. While there are some people I could do without, the majority of the people are pretty great. I guess it could be because I have not really met anyone I work with and only see them on the video meetings!
With the weather changing and is getting colder, the days might seem a little longer because they are! Hot weather is always very draining for me, but the cold temperatures increase the amount of pain I feel drastically. I am sure the reason for the increased pain in colder weather is because I tense up a lot more, but it is nothing that my small and great space heater can’t help! Considering my husband and I both work from home, and our joint home office is in the finished part of the basement, it gets cold. We purchased a few small space heaters that work brilliantly!
As our week is finally coming to an end, I think a little pick me up is just what we all need. Life in, general, can be stressful, but when you add work, fears of COVID, health, and everything else to the mix it can be overwhelming. I think days when I do not have something that makes me smile and or laugh the days are dreadful. The simplest things can bring a smile to our faces, like both of my cats are full of entertaining surprises, and the adorable groundhog that lives out back always makes my day much better. With that said, I hope the quote I am sharing will make you smile, even just a little!
Thank you for visiting my site today! I hope you have a great day and you stay as safe as you possibly can. Unfortunately, the COVID-19 numbers are increasing on a steady basis, so we need to be careful and take all precautions necessary. I am looking forward to reading your comments and promise to respond as quickly as I possibly can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
I have decided to write about a few things that have been weighing on my mind lately. Lately, I have been feeling overwhelmed with life, work, and health concerns. There always seems to be something going on in the world from the political insanity to COVID-19 to mass levels of hatred that is being spread even fast than the virus.
I think after everyone that wanted to vote did so and the counting was finished, there should not be any more talk about it. The voices of SO many American people spoke out and there is going to be a new president starting in January 2021! There is a chance we may have hope now because we are not going to have an immature person that is unable to take accountability for what has happened with this pandemic and is definitely not a leader in the White House.
As for COVID-19, if people would just follow the advice we have all been told for months now, MAYBE there would be more control over the virus by now. Unfortunately, the few times I actually leave my house hardly anyone is wearing a mask. I just do not understand why because I know they must have seen the news and see the numbers on the consistent rise. The virus is NOT a joke. This virus is killing thousands of people every day and it needs to stop.
The hatred that is being spread will never make sense to me. I have said this to y’all multiple times, but I have to say it again, everyone should be treated equally and with respect. A person’s race, color, sex, national origin, sexual orientation, religious following, and anything else should not matter because we ALL have a beating heart and feelings. No one should ever feel shame for who they are, but instead should be proud. The rage and hate that is filling the United States must end because the death, injuries, and fear are things that never should happen.
I will end my little rant now, but I do want to share with y’all a little about what my life has been like living with an unpredictable illness, especially during the pandemic. Most of you, if not all of you are already aware that this is definitely not easy. Of course, there are good days along the way, but then there are also those days that are more grueling than any others. The truth is there are some days it is challenging for me to even get down the stairs to the home office and begin my workday because my legs hurt terribly and they are extremely weak, but I do manage to get there.
Besides the continuous pain I have from my knees down to my toes, I have massive amounts of pain issues from the middle to the lower area of my back. Considering I have been living with Multiple Sclerosis for two decades, I have learned to live with the pain. I guess it is safe to say that I have learned to not just live with the pain, but also accept it as part of my life. I mean there really isn’t another way because I am not going to allow for Multiple Sclerosis to dictate my life as I want to control my own life. Unfortunately, there is not a cure for Multiple Sclerosis yet and I want to live my life to the fullest I possibly can. After all, I did make my late Poppy a promise 20 years ago that I would NEVER give up and I refuse to disappoint him by not keeping that promise!
Another difficult symptom I have been dealing with more lately is dizziness. Previously, the dizzy spells were random and only a few times a year, but recently they have been awful. Last week, I had two dizzy spells within a few days of each other. The second one happened after my husband and I finished dinner, and I told him before I tried to start cleaning that I didn’t feel right. When I tried standing up and I told my husband I was very dizzy, so he started cleaning up for me. I still attempted to try helping and when I thought I had control of the dizziness, I fell in the kitchen. Of course, my husband came running to my side to make sure I was not hurt. The only injuries were a few bruises to my knees and thankfully did not hit my head. Even after sitting on the floor with my husband for a few minutes, I still didn’t feel like I could stand without falling, so my sweet and caring husband carried me into our room.
I want to thank y’all for visiting my site today and reading this post. Even though I know some of you can relate to this, I wish you didn’t have to because I know it isn’t all that fun. On my worst days something that helps me get through them is I can hear my Poppy’s voice saying “No matter what you are going through in life, someone else is always going through something worse. “ He always told me he believed in me and that I was strong enough to get through anything thrown at me and I know he was right!
I would love to read your comments and promise to respond as quickly as I can. I know sometimes it takes me longer to respond, but that is because I have been working no less than 45 hours a week and sometimes more. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Happy Friday eve y’all! I really prefer saying happy Friday eve because Thursday makes it sound like the weekend is far away! How has your week treated you? Of course, my week has been crazy busy and I have been working at least 9 hours each day. The good thing is, busy days go by a lot faster than slow days. I was told today by four different lenders tell me they have requested to work with mainly me. This was a nice confidence boost for me because it make shows that I am doing a good job!
Now that we have almost made it through four days of this week and still have one to go, I think we need a little pick me up! On the bright side, the hard part of the week is over and I think we can handle one little day! I hope you will find the quote I am sharing as a nice pick me up and it can carry you through today and tomorrow, and then it is time for a weekend of relaxation! I would love the chance to read you what you thought about the quote I shared with y’all and I promise to respond to all comments as quickly as I can!
So what does your weekend have in store for you? My husband is working this weekend, so I have again nothing exciting planned. Actually that is really true because what I do have planned is organizing and cleaning, which I do love doing. Organizing things is one of my favorite things to do and I have no idea why. The good thing is, it is safe and of course, at home! This might sound boring to some people, but that is okay because we all have those silly little things we enjoy doing.
Thank you for visiting my site today! I hope your week has been great so far and you have a lovely, and safe day! Whatever your plans are for the weekend, please do what is best to stay safe. I also think it is safer to just stay home, but if you must go out just please follow the advice we have all heard from the experts! Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Many of you already know that I have battled my fight with Multiple Sclerosis for going on 20 years now. Most days I can’t even believe it has been that long and yet I still remember the day I heard the doctor say the words to me “Alyssa, you have Multiple Sclerosis.”I was a 19- year- old girl, alone in the exam room, and was in complete shock. At the time of my diagnosis, I was naïve, scared, and did not know what my life was going to be like. I only knew one person that had MS and she was in a wheelchair. Being so young and clueless I thought I was going to be diagnosed, and then bound to a wheelchair, and then death. I know how ridiculous that sounds now because I have a better understanding of this disease.
Of course, the past 20 years have come with many ups and downs, but not only am I still here to talk about it and hopefully help others living with chronic illnesses. Yes, I do live with various issues, but I have learned to live a fairly normal and full life with all of it. I think it is important to understand that no matter what our struggles are in life, we can learn to make the most of it. Life is short and no one ever said it was going to be easy. I think the more struggles we overcome, the stronger we are.
It has been a while since I have written about Multiple Sclerosis and considering I had an appointment a little more than a week ago with my new neurologist; it might be a good time to write a little about what I deal with day in and day out with Multiple Sclerosis. The real reason I do not write much about it anymore is I do not think it is good to dwell on things we have no control over, but it is important to help others that do not have MS understand what it is all about and others that live with this unpredictable disease to know they are not alone. I say this because I remember when I was first diagnosed, I felt so incredibly and painfully alone.
One of the most important things when living with any chronic illness is finding a specialist that you trust and can work well with. Over my years with Multiple Sclerosis, I have had my fair share of specialists that I respected and trusted, but then there were those I would do anything just to avoid them. The only reason those I trusted, respected, and admired are not my specialist anymore is that they retired. I have only met my new specialist was virtually, but she said one thing that won me over, she knew, admired, respected, and loved my first neurologist. As simple as this may sound, I have been missing my first neurologist since the day he retired. It did take me time to be accepting of him because he was the one that confirmed I had Multiple Sclerosis. The only reason I left the practice he was at is because the neurologist that was taking his place insulted him when speaking with me and this was a HUGE no, no!
During my two decades of living with Multiple Sclerosis, (WOW that sounds like a LONG time), I have faced and dealt with various issues. Of course, some of what I have struggled with have ranged anywhere between being a minor inconvenience to almost unbearable, and everything in between. Symptoms involved with Multiple Sclerosis and any other chronic illness can be different for each individual because we are all unique.
I am sure that most of you know about Multiple Sclerosis because you or someone you know has it, but I am going to take this time to provide you a brief overview, and then I will describe the issues I battle with every day of my life. I will begin by explaining what Multiple Sclerosis is.
What is Multiple Sclerosis?
Multiple Sclerosis is a disease that may become disabling of both the brain and spinal cord. With MS, the immune system attacks the myelin, which is the protective sheath covering nerve fibers and creates communication issues between the brain and the rest of the body.
What are the types of Multiple Sclerosis?
Unfortunately, in 2020 there is still not a way to foresee with absolute certainty how a person’s disease will advance and or how fast this will happen. The four main types of MS have been established by the: International Advisory Committee on Clinical Trials of MS and were defined as the following explanations.
Clinically Isolated Syndrome (CIS):
This is the first occurrence of neurological symptoms that are caused by inflammation and demyelination in the central nervous system. Although the occurrence must last for at least 24-hours to be considered a characteristic of MS, it still doesn’t meet the specifications for an MS diagnosis because those that experience CIS may or may not have MS.
It is when CIS comes along with lesion on a brain MRI, which is typically seen in MS, that the probability of the person having a 2nd MRI is high, and being diagnosed with RRMS is very common.
Relapsing-Remitting Multiple Sclerosis (RRMS):
This is the most common form of MS with 85% of people being diagnosed originally with it. RRMS is distinguished by undeniably defined attacks of new or increasing neurological symptoms, which are known as relapse or exacerbation and are typically followed with partial or complete times of partial or complete remission. While in remission, all symptoms may disappear or the symptoms may continue and be permanent, but during this time there isn’t any progression seen. RRMS can be further described as either active, which is with relapse and or confirmation of new MRI activity in a specific time frame, or NOT active, as well as worsening or not worsening.
Secondary Progressive Multiple Sclerosis (SPMS):
Secondary Progressive Multiple Sclerosis is a type when one was initially diagnosed with RRMS and progressed into SPMS. The progression from RRMS to SPMS is due to the increasing worsening of neurological function over time. SPMS can also e distinguished as either active, not active, as well as progression indicating disability accrual over time.
Primary Progressive Multiple Sclerosis (PPMS):
Primary Progressive Multiple Sclerosis is classified by increased deteriorating neurological function from the onset of this disease and without early relapse or remissions. Just like the first few types of MS, PPMS can also be distinguished as active, not active, progression, and without progression. Only about 15% of people with MS are diagnosed with PPMS.
The symptoms for each person living with Multiple Sclerosis might be very different, slightly different, similar, but they will never be exactly the same because we are all very different. I really did not mean for this post to get so long, so I will briefly share with you the symptoms I deal with both daily and or randomly.
The way I discovered that I had MS all those years ago, is because I lost vision in my left eye and went to the eye doctor. Never in a million years did I expect that this vision loss was the start of my journey with Multiple Sclerosis. After going through the MRI to confirm the doctor’s suspicions, I was put on an insane amount of steroids, which even though I completely and utterly detest steroids; they did help restore my vision. One would think I would have been relieved to learn I wasn’t going blind, but I often think the diagnosis was worse than the diagnosis.
Through the years, I have experienced a wide range of symptoms that have varied from mild and tolerable to awful and intolerable. A few things that have been a constant are pain, numbness and tingling, and spasticity. Sometimes I think that if I had one day without any pain, numbness and tingling life wouldn’t seem as normal. My legs always have that numbness and tingling sensation from my knees to the tips of my toes. It can make walking be challenging depending on how bad it is, but normally I am fine with walking. My back hurts every minute of every day from the middle to lower back, but I try not to let that get me down too much. There are times when the mixture of pain, numbness, and tingling can contribute to muscle weakness. I also experience a lot of fatigue and then have a hard time falling asleep. It is an annoying cycle!
Another symptom I have dealt with over the past two decades that is not very often is vertigo. There was a time several years ago when I was having vertigo very bad, but had a doctor’s appointment with my neurologist and drove myself to the appointment. I did well driving when a little dizzy because I managed to keep between the lines. It is insane that I hardly could walk a straight line, but drove perfectly fine! I have also dealt with the MS hug, which is not a huge anyone ever wants. The MS hug feels like there is a huge snake around you and just keeps squeezing. Another issue I deal with at least three times a week is headaches/migraines. Headaches/migraines are a form of pain that I can’t deal with.
Thank you for visiting my site today and reading about my LONG journey of living with Multiple Sclerosis. It has been a long journey and one I never wanted, but one I wanted to give up on 20 years ago. I am thankful that I did not give up and followed advice from my dear Poppy. When I was diagnosed, my Poppy told me that I was strong enough to handle this disease and to always remember that no matter what I am going through, someone else is going through something a lot worse. I have held onto his words all these years and hope that I can inspire y’all to never give up because you are far stronger than you ever knew.
I know this post got a little long and longer than I anticipated, but there is so much involved when living with Multiple Sclerosis. All the challenges you experience throughout your life are making you stronger and therefore you can inspire someone else to never give up! I am looking forward to reading your comments and I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
Happy Tuesday y’all! I hope your week is starting happy and pleasant! The good thing is we have made it through one day and only have a few days left. Well, we have four days left until the weekend technically, but I think we can handle it. Even during these extremely challenging times, we all find a bright light that carries us through. Our strength, courage, and, pure determination is endless, which are all great qualities to have!
As we enter the second day of this week, we all could use some tranquil and calming thoughts! I hope the quote I am sharing with y’all today will serve a purpose for you and be beneficial as well! Once you read the quote and the rest of this post, I would really love to read your fabulous comments. All of you have such great insight on everything and I truly value your opinions!
I do not know about you, but this year is going by so fast. In a sense, it is great that the year is flying by, but the reason for why the year is going by so fast is pretty sad. Y’all know it is time to change the clocks this weekend, right? Fall back, which if I am not mistaken we actually again an hour sleep! Fall/Autumn is my favorite season because it is not too hot or too cold, the weather is just right!
We have been dealing with this pandemic all year and the end seems so far away. I think it is challenging to keep up a positive out look when so many are losing their lives or someone they love, or becoming very ill, or losing their jobs because of COVID-19. I still feel that if we all can continue following the very brilliant advice from top professionals, like Dr. Fauci, the Centers for Disease Control, and World Health Organization,we may have some hope to see the end of this pandemic and get back to our true normal!
Thank you for visiting my site today. I hope you enjoyed the quote I shared with y’all, and also hope you are having a great week so far. I promise that I will respond to all your comments as quickly as I can, but it might be after work. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Let’s Begin This Week Off With A Positive Mindset!
Happy Monday y’all! How was your weekend? I hope your weekend was full of relaxation and happiness! Honestly, my weekend was fairly uneventful, and I enjoyed that. I feel sometimes we all need the entire weekend to recuperate from a long and busy week.
With all of the changes that have gone on with the weather, I have been dealing with my typical increased pain. Now, I do deal with this every time there is any changes in the weather, but for some reason Sunday was a lot worse. It is a good thing I didn’t have any plans and didn’t need to leave the house because my legs hurt so bad it was painful to even walk. No matter how high my pain is, I will never sit around and feel sorry for myself because it could always be worse and life if just too short I guess we all deal with health issues and we make the best of it.
Sadly, the weekend is over and we are at the beginning of a fresh new week. It isn’t even easy to say goodbye to the weekends, and my cats especially hate it because now Mommy will be in her home office locked away from them all day long the entire week. Yes, my cats are babies and demand a lot of attention! I almost feel a little guilty that I have to be locked away from them, but it would be nearly impossible because they would both be walking all over my desk, laptop, and the paperwork on my desk. They would amazing co-workers, if they would not try helping SO much!
Now that we are at the beginning of a new week, that is hopefully filled with fantastic opportunities I think we all could benefit from a little motivation! My hope is that the quote I am sharing with y’all will kick start your week with the right amount of motivation, optimism, and encouragement that is necessary to start a week off on the right track! I am looking forward to reading your thoughts on the quote and also how your weekend was!
Oh my goodness, almost forgot to tell you about something truly shocking and amazing happened at almost 5:00 PM on Friday. Y’all know that I had started a new job a few months ago and the work is similar I have done previously. The only issues have been the lack of training and the consistent changes that do not usually make sense. Anyways, the good news is I received an email from a team lead telling what a good job I was doing, and that she and others in management were very impressed with me. This made me feel pretty great and helped build my confidence.
Thank you for visiting my site today and I hope you have a splendid start to your week! I know I have been slower with my responses to your comments, but I promise I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!
We are finally almost at the end of this extremely long week! How has your week been? I hope your week has been great and you are staying as safe as you possibly can. I am working the morning, well until noon and then going to a doctor’s appointment. Unfortunately, this is one of those appointments I have to go to the office for, but I am always safe! I definitely I wish I could have done it virtually, but some doctor’s are not very cooperative.
With only one day of the week left before the weekend that we are all always looking forward to, we might be needing just a little pick me up! I am truly hoping the quote I am sharing with y’all today will give you the lift you need to get through one more day! I am looking forward to reading what you thought about the quote I shared today and will respond as soon as I can, which hasn’t seemed to be very fast lately. In my defense, these headaches I keep having are miserable and it isn’t easy to look at the computer screen.
Do you remember the weekends before the pandemic? I remember days in the past when I would have ideas of what I wanted to do over the weekend, but since the pandemic invaded our lives my plans are to stay in the house and safe. Even though I am thankful to be able to work from home, it sometimes seems like I am always at work because I hardly ever leave the house anymore. Although I am not excited about driving to my doctor’s appointment, I am thrilled to be leaving the house for a few hours today!!!
I want to thank y’all for visiting my site today! Your continued support and amazing comments are very appreciated. I hope your week has gone great and you are looking forward to a safe, and relaxing weekend! Please never forget that I am always sending y’all LOTS of love, comfort, support, and many positive vibes!