Good evening y’all! I hope you have had a pleasant day and you are feeling well! I really appreciate you taking the time to visit my site and definitely do encourage your comments, I do promise to respond as quickly as I possibly can!
No matter the pain and/or discomfort I may feel, this pesky little thing called MS will never control my life! I will make small and simple adjustments to accommodate the MS to remain comfortable in my life, but I am still determined to live my life in ways that bring me the most joy!
This massive heat wave so many of us are experiencing is causing me to feel extremely fatigued, but letting that run my life is just not an option. Like I said, small and simple adjustments need to be made at times and to not be exposed to the heat too much is one adjustment that I am willing to make! I was able to adjust my hours at work so the initial part of my day isn’t in the extreme heat, well that was not really the reason for the adjustment of my hours, but it does help other issues as well. I get to work around 7 am which is early, but the sun has not been heating the world up quite yet! Usually I will leave work between 1 and 2 when it is pretty hot and my car feels like a mobile sauna, but I will sit for about 5 minutes with the windows down allowing for the a/c to start blowing cold air! I can not drive when it is too hot because I will feel very faint, which is pretty dangerous! If I have to go to the grocery store, I always try to go either early in the morning or later in the evenings when the sun has gone down. These slight adjustments to handle the heat work fairly well for me at least.
On a crazy plus side, my migraine has taken a short break to allow the other pains I feel play their part in my day-to-day life. Honestly I would much prefer my back and legs to hurt rather than having a massive migraine. The pain I feel constantly in my back and legs is aggravating and makes things a little difficult, but at least I can still function. Even though it is insanely hot outside I will still use my “friend” the heating pad when I am in my chilly work office or at my house. It seems a little strange that the heat outside makes me feel terrible, but my heating pad heals my pain! Maybe it is more the humidity outside making me feel all the darn fatigue. Who knows!?
I am truly happy to say that with the migraine taking a vacation I was able to work six and a half hours for the past two days! I have made a promise to myself to never give up pushing myself to work additional hours each week. Truthfully there might be times I do not have the strength to increase my hours, but that will never mean it isn’t possible.
I hope y’all have a peaceful and relaxing evening! I hope you are feeling well and taking the time to think about your own needs, which we often tend to neglect. Please never forget that I am always sending y’all LOTS of love and comfort!
I started my blog on July 17, 2017 to raise awareness about Multiple Sclerosis, but also to encourage and inspire those that suffer from any chronic illness or just difficulties life has to offer us that we really do not want. I was just learning about the blogging community and I had only 3 followers, my husband, mother and mother-in-law. Since that time my blog has grown to over 1,000 amazing followers! I have learned so much from each and every one of you and I really hope that I have been able to do some good for you as well. I am so very thankful for y’all!! I never thought that blogging would be so incredible but I am really glad I made the decision to start my blog!
I hope y’all are having a good week! I know you are probably happy that tomorrow is Friday and then we have the weekend to enjoy! I am definitely really glad the weekend is near considering I have not been feeling all that great. Y’all already know that I have been dealing with a lot of pain and headaches for weeks now without any help from my doctor! I reached out to my doctor on Monday to inform her about the fainting spells I was having, but there was NO response. Unfortunately the lack of caring from my doctor does not surprise me at all and it only makes me more excited to move soon and find a new doctor that will hopefully be more attentive!
I would really like to thank y’all for always being so amazing and caring! In our society today it is so hard to find people who really truly care about more than just themselves. It seems as though so many have adopted a selfish behavior, but none of you have gone that way in life! All of you are so caring, compassionate, sympathetic and empathetic for others and I appreciate this more than words can even begin to describe! Y’all have given me so much hope that love and kindness still exists in this world!
Thank you for stopping by my site today! I always appreciate you taking the time to read and make fabulous comments, which I will always respond to as quickly as I can. Again, thank you so much for your continued support. I value all the friendships I have been able to make through this blog! As always I am sending you LOTS of love and comfort!
Good afternoon y’all! I hope you are having a wonderful Wednesday! I am beyond excited that this week is almost over and next week is a four-day work week because of the holiday!
I have honestly had kind of difficult week dealing with pain issues! There is a certain amount of pain that I find tolerable, but then there is another kind that makes me feel absolutely miserable and incredibly fatigued! Even though I have been dealing with a terrible amount of pain that is mixed with headaches and muscle spasms, I have been able to go to work. I did not make it through six hours Monday and Tuesday, but I did today! Of course after whatever hours I do work, I come home and I am absolutely exhausted. But the simple achievements are better than none! There has been another issue I have experienced this week and I have no idea what is causing it. Both Monday and Tuesday while sitting at my desk at work, I had several what seemed to be fainting episodes. It was really scary, but I was thankful I was sitting down. I did call my doctor’s office to let them know about this, but not so surprising they did not call me back. Have any of you ever experienced this before?
I am a pretty resilient person and I never give up on the goals I have for myself!! A while back I had made the goal to work six hours each day, which honestly did not happen at first. However I did not allow that to keep me down for too long and tried to not view it as failure. I have always been very hard on myself, but seriously that does not help at all. Being too hard on ourselves only sets us up for hard times, which is never good. My goal now is to just continue to always be resilient and keep moving forward!
I have to say everyone on this blog helps me see the strength I have and keeps me focused on that strength! There are so many incredible people who I have had the pleasure to get to know and I am very thankful for this. There really seems to be so much ugliness in the world today, but y’all allow me to see the good in others!
I hope y’all had a great day and I hope you are feeling well. Thank you for stopping by my site today and I really do encourage your comments. Y’all already know that I do respond as quickly as I possibly can! I hope you have a lovely evening and do what helps you relax! As always I am sending y’all LOTS of love and comfort!
Good evening y’all! I got so caught up with my rant earlier, I completely forgot today is the first day of summer. Although I think down here in the south, summer had already started a month ago! When you have warm temperatures in February, which was supposed to be winter, what can summer possibly hold for us? For the foreseeable further temperatures are going to be in the 90’s! These temperatures are nice if you are at the beach or have swimming pool, but on a normal day they can be torture!!! I think it is safe to say we are in for one HOT summer!
When you live with an illness such as Multiple Sclerosis, it is extremely important to stay as cool as possible. I have heard from numerous people that cooling vests can be very beneficial, so this year I am thinking I might need to give them a chance. Also, staying hydrated is vital to everyone’s health. When you simply go outside to your car, which is normally a short walk, you can be drenched before the air conditioning has a chance to work! I am lucky that normally when I leave the house for work it is early, so typically the sun has not had a chance to heat things up much, but my goodness when I leave in the afternoon it is insanely HOT! I try to let the a/c start working before I start my drive home so I do not get overheated and then feel faint. When I have to do the one thing I already dread doing, grocery shopping, I try to either go earlier in the day or after the sun goes down to avoid too much of the heat. Do y’all have any certain things you do to avoid the nasty heat? Honestly with the way I have already been feeling, I might be a little worried about the summer heat!
I hope y’all have a nice, relaxing and cool evening! Thank goodness it is almost Friday, which leads us to a two-day weekend! Even though I missed two days of work this week, I am still looking forward to two days away from waking up way too early for work! As always your comments are encouraged and appreciated. I do plan to do more posts about ways to handle the heat, so hopefully they will be helpful for y’all! As always, I am always sending y’all LOTS of love and comfort!
Good afternoon y’all! For me today is just another day of resting trying to get past this incredible amount of pain I have been dealing with for WAY too long! This obnoxious pain is mixed with that burning sensation that will not cool down, tingling throughout my entire body, numbness which sounds like it would be better than pain, but it really isn’t it is almost worse and a headache that seems never-ending! The nurse practitioner I normally deal with is off today and the doctor that I do my best to avoid is in clinic today, which makes her pretty much unavailable. The only thing the nurse I spoke with was able to say is rest and staying hydrated is important until I can get the MRI, which I was still waiting to hear back from the assistance program. I did just email the Multiple Sclerosis Society of America, which is the company that will either approve or deny assistance for me to get MRI assistance. Now the response I got back from my email was quite upsetting, which is something I really did not need today. They stated the doctor did not provide an order for the MRI, which made no sense to me considering I did send them everything I was instructed to by the doctor’s office, imagine that another miscommunication from them! To hopefully make things actually work out for me, I emailed the nurse requesting the MRI order. Honestly the nurse has been the ONLY person at this office that has been at all helpful to me. Maybe I will get that back from them sometime this week!!
It is a little frustrating when you are doing everything you possibly can to get well, but it just isn’t working the way it should be! I am resting, staying hydrated and taking all the medications the doctor has prescribed, but there is still NO relief yet! My guess is the stress this issue is causing me is not helping me get better, but it is in fact making things so much worse! Isn’t it crazy when we know what is causing our problems to become worse, but yet we still change absolutely nothing with our thought process? Obviously I know exactly what is making all my pain more intense, but I am still getting myself worked up and upset about it anyways!
I think to help get my mind off of my many pain issues; I am going to work more on my bullet journal I am trying to put together. I do not want to start it at the end of the month because I do not think that makes sense, so I am planning this for July! My plan so far is to have a few trackers that will include: symptoms and food I eat in a day (this will be to see what foods could be causing more issues for me). I want to also include a Hopes & Dreams page, Positive thinking page to really keep my mind in a happy place and a Gratitude page. I might include a page of books that I want to read considering sometimes I think of a book I want to read, but then forget the title! Then lastly I want to include a page of ideas for my blog because I come up with random ideas, but then forget what I wanted to write about when I try to start! I guess I can contribute my forgetful mind to brain fog from the MS.
I really appreciate y’all visiting my site today! Your comments are always appreciate and encouraged because I do love hearing from y’all! I am doing my best to respond as quickly as I can, but with the way I am feeling there is a chance I might be a little delayed, but I will respond!! I hope y’all are having a good day and feeling well! As always no matter how I am feeling or what I am dealing with I am sending y’all LOTS of love and comfort!
For the past few weeks it seems that the issues I have had with my legs, arms and back has increased drastically! Now like most of us I was curious as to what could be causing this increase of pain, tingling, burning sensation and pins and needles, so I looked it up on Google. Oh my word looking things up online is almost worse than dealing with what the doctors have to say! Honestly the main reason why what I read online was disturbing is because it was pretty close to what I already suspected, but there really is something about reading it that makes it a little more upsetting.
It has been in my overworked and mildly stressed mind for weeks now that these issues are being caused from new lesions or those that were already present are active now. It does not seem to matter if I am resting or moving around, the pain does not just go away! This possible lesion party that is going on in my body needs to be shut down! This party is more like a hostile takeover of my ability to live pain-free rather than a happy time with friends having fun like most parties are!
With all of the different issues I have been fighting with for far too long and keeping it from my doctor, today I finally have had enough and sent a message to my doctor to see her recommendations would be. Y’all already know that I completed paperwork last week to hopefully receive MRI assistance, as I do realize that is what is going to be needed, but I am still waiting to hear back about that. Do you just wish these doctors could hear what we are going through, make a true educated assessment and not have to go through the MRI ordeals? I personally think what we are suffering with could be something a true and competent specialist could easily figure out what is causing it and diagnosis the issue.
With all the said, I ended up staying out of work today because of how I was feeling. Even though my legs did not feel stable enough, I did get up when my alarm went off this morning and made an attempt to try getting ready for work. However, when the short distance from our room to the bathroom felt like 10 miles, I knew anything more would be too hard on my broken body. Crazy thing is I did rest all weekend, but it did not help at all! It really seems like rest hurts, moving hurts and basically anything I do is painful so what do you do when that happens?
I certainly hope y’all had a good start to the week and I hope you are feeling well. I appreciate you taking the time to visit my site today and your comments are always appreciated and encouraged. It may take me a little longer to respond just because it is a difficult day, but I promise I will respond! As always, no matter what I am going through I am sending y’all LOTS of love and comfort!