Successful appointments can happen!

Friday EveHappy Friday Eve Y’all! I hope you have had a fantastic day! I was having so much anxiety over my doctor’s appointment today because I had been given a run around with this doctor. I went into this appointment very prepared with pages of notes so I would not miss a thing and also had no expectations at all! To my surprise, everything went the right and ethical way!

It was not until recently that I have started going into my appointments with notes because I tend to forget at least one thing because I often feel rushed knowing the doctor has other patients waiting. I have learned that it is very important to take control of the appointment and be very prepared so no time is wasted. By taking control and knowing exactly what you want out of the appointment it shows the doctor that you have expectations of the appointment and demand quality care! These doctors see so many patients each day that they probably feel overwhelmed, even if they do not say those words out loud. I will admit I have learned that if I keep my expectations of my determinedappointments relatively low, I will not be frustrated and disappointed. Today’s appointment went very well and my doctor even apologized to me for all that I have gone through these past couple of weeks!

I think it is extremely important that even when things seem like they are all going wrong, to find it within yourself to never give up! In my opinion, giving up is the only way to truly fail! I have spent a few weeks now fighting for my rights to live a life as pain-free as possible and all my fighting has paid off! I have fought for myself with two different doctors and things are all going right for me now. Sometimes you have to fight in a pleasant way, if that makes any sense. It is so true that you get more flies with honey, so handling all situations in a positive and since way works for the best!

Thank you for visiting my site today and I look forward to reading your comments. I promise you that I will respond to all of your comments just as quickly as I can! I hope you have an amazing and relaxing evening! On an extremely positive note, tomorrow is Friday and then we have the weekend to enjoy ourselves! As always, I am sending y’all lots of love and comfort!!

Love 2

Always, Alyssa

Advertisements

Stages of Parkinson’s Disease

april parkinsonApril is Parkinson’s Awareness Month, so I really want to write a little about this disease. I am doing this not just because it is Parkinson’s Awareness Month, but also because someone very close to me is suffering with this disease. My step father is battling Parkinson’s with as much strength as he has and will not let it defeat him! Parkinson’s disease is a neurodegenerative disorder that can lead to progressive deterioration of motor function due to loss of dopamine-producing brain cells.

We all learned many years ago about Michael J Fox announcing his personal battle with this disease at the young age of 29, but so many others are fighting this disease! Parkinson’s affects 1 million people just in the United States, but also affects more than 10 million worldwide. Typically the onset of Parkinson’s is at the age of 60 and it affects men 50% more than that of women. According to the Parkinson’s Foundation there will michael j foxbe 60,000 each year diagnosed with Parkinson’s. That sounds like an astonishing number of people who have to deal with this disease and there is still not a cure as of yet.

There are five stages that take place with Parkinson’s disease.

Stage 1: Symptoms are mild and do not interfere with quality of life.

Stage 2: Symptoms will worsen and daily activities become more difficult and take additional time to complete.

Stage 3: This is the mid-stage of the disease. Symptoms may be loss of balance, move slower and falls are common. During this stage, symptoms impair daily activities more so than before.

Stage 4: Symptoms become more severe and assistance walking and performing daily activities is needed.

Stage 5: This is the most advanced stage of this disease. The individual is unable to walk and will need full-time assistance living.

Now despite these various stages with the proper treatment people can live a full and productive life. The life expectancy for those battling Parkinson’s is no different from someone without the disease. Of course things can happen, but as long as the person living with Parkinson’s is following the doctor’s recommendations and has a strong support system, they will survive another day!

This was just my introductory post about Parkinson’s. In the next posts, I will talk about the various symptoms and treatments available. Like I already said, there is not a cure for Parkinson’s available yet, but there are things that can be done to slow the progression down. I know that every chance I get, I try to stay on my step father to hope and cure parkinsonensure he is taking his medicine as directed. I know it is not easy for him to get the exercise that he should, but I feel he does what he can. Now that spring is here he is able to do yard work and make his lawn look beautiful. For him having a nice looking yard makes him very proud! 

I hope y’all had a nice Wednesday and your week has been great! Thankfully the weekend is right around the corner and we can do what makes us happy! As y’all know I have another doctor’s appointment tomorrow where I will be fighting for my rights to have a life as pain-free as possible. We will see how that goes!

I hope y’all have a great and relaxing evening! I always appreciate you taking the time to visit my site and I love to read your comments! I will respond to all of your comments as soon as I can! Sending y’all lots of love and comfort!

Love 2

Always, Alyssa

Last day of March!

MS AwarenessAs you already know today is the last day of March and Multiple Sclerosis Awareness Month. Has it been a pretty good month for y’all or have things been like a carbon copy of February? I feel like things are about the same with most things in life. The political world seems like it is still a bit of a mess with a little too much drama for me! Too many grown men acting like children in a playground! We can continue to hope for better times though and even if everyone around us continues to act the same, we can all just stay optimistic and happy with what we have been blessed with in life!

I can say that I have learned so much about how to handle doctor’s appointments better! I use to go into the appointments with many things I wanted to discuss, but then always would get distracted and feel rushed normally by the doctors actions. It never failed, I would leave the appointment and remember things I needed to get answers to and be angry with myself for forgetting. This last appointment I had everything I had questions about written down, which was wonderful because at the end of the appointment I looked at my notes and almost forgot one important question! As y’all know I have another appointment on Thursday and I know already I need to be very prepared and honestly keep my expectations low just so I will not be upset afterwards. I feel my upcoming appointment is pretty important because I am going in fighting for myself and my well-being!

At the end of MS Awareness month, I want to say I hope those that were not familiar with MS learned a lot and those battling MS gained even more knowledge. MS is definitely not the easiest illness to live with, not that any really are easy, but at the same time we all handle it as well as we can! It is a very unpredictable and at times extremely painful illness to live with, but MS Warrior 2there is no use dwelling on that. Dwelling on what we have to live with only causes more issues in the long run. It is extremely important to do our best to remain positive and stand strong to how we manage our illness. Giving up on our hopes for a cure will not make it happen any faster and will not help us living today! I feel very strongly that we all, no matter what our struggles are must live in the now. Living in the past will not change anything, but it might hinder our present times! We all should have already learned from our past experiences and therefore let it all go and moved on!

I hope y’all are enjoying your weekend! Hopefully the weather is beautiful for you and you are able to get a little sunshine! A little bit of sunshine can do wonders for our mind and spirit! I hope y’all are feeling well and of course staying as positive as you can. I appreciate you stopping by my site today and I will of course respond to any comments you might have as quickly as I can! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

First time for Everything!

be-thankful-to-your-bad-days_516Today was my appointment with my MS Specialist and it went very well! The Nurse Practitioner I saw actually took the time to listen to my concerns and did not dismiss any of my fears. To be perfectly honest, I went into this appointment with low expectations to protect myself from disappointment and frustration. I am so happy to say that even though this appointment lasted a longtime; I left the doctor’s office feeling much better about the issues I have been struggling with. The NP took time to actually talk to me about the headaches I have had for so long and come up with ideas to hopefully eliminate them. We talked about the pain issues that have increased over the past few months and she had some very valid thoughts about why that was happening. She helped relieve the stress I was putting on myself about my illness progressing by reassuring me I am doing everything I can and feels that I am controlling it the best I can. She told me to not over think what could happen and just live in the moment. I thought that was great advice because I do tend to think everything and go to worse case scenarios all the time, which really is not helpful to me or my mental state. Moving forward I am going to stay on the Gilenya because it is the best choice for me and did control my illness for 6 years before I decided to try something new. I was thinking the Gilenya was causing my headaches, but the NP today pointed out that I had headaches way before Gilenya was a factor.  My appointment today was by far the best and most enlightening appointment I expectationshave had in a long time and gave me a new perspective on things!

As I already said, I went into my appointment today with very low expectation, which was helpful overall! I have found over the years if you set your expectations for others too high there will always be a high probability of disappointment. Therefore, if you just keep your expectations lower you will never be disappointed because you are not presuming anything! This may seem like a pessimistic way to live, but it saves a lot of heartache and frustration. In our hearts we know who we can count on in life and who we question counting on. Others must prove to us that we can rely on them and live up to the standards we have. I do believe we all need at least one person that we can truly count on and that person will never let us down. There is always at least one person you confide in and know they will always be there to support you, no matter what! Trust is a very delicate thing that can be destroyed quickly and take a very long time to rebuild, if it is even possible.

Of course I am delighted my appointment went as well as it did today, but now I am hoping the appointment I have next Thursday will go just as well. I will go into the 2-quote-about-no-matter-how-impossible-unattainable-or-unim-image-background-imageappointment next week just as prepared as I was today, but also go in with no expectations at all. I believe that being prepared and having notes with you can be extremely beneficial because it is easy to forget important details. I think being in the exam room can be a little stressful which makes it easy to lose track of what you want to discuss. Doctors have busy schedules and have a limited amount of time allotted to each patient. So I found having set topics you need to talk about ready will make the appointment much more useful to you and not waste any time! I know that if I did not prepare last night for this appointment and have my topics written down, I would have missed a lot of important information. 

I hope y’all had a great Friday Eve and I hope y’all are feeling well! I really appreciate you taking the time to visit my site today and I look forward to reading your comments! All of your comments are very meaningful to me and I will respond as quickly as I can. I hope y’all have a lovely evening!! I am always sending each of you lots of love and comfort! 

Love 2

Always, Alyssa

Purpose of Pain Management Doctors?

Pain management**Full disclosure, this gets a little political!**

I am starting to wonder why there are pain management doctors around and what good they actually do! Are these doctors supposed to be helping those who suffer with chronic pain or is there some other reasons for them I am not aware of? Why are patients that deal with a chronic illness that causes an incredible amount of pain expected to see the doctor that treats their illness, but also have to go to another doctor that is there to treat the pain caused from their illness? Why is the original specialist not capable enough to not just treat the illness, but also treat the pain symptoms that come along with it?

In the recent few months my pain management specialist has done absolutely nothing but give me the run around. This doctor that claims he wants to help him patients, has not only changed his story so many times, but also lied about what was said. What he has said to me during the appointments, verbally of course, were mildly different from what he put into his notes that I had never received until I finally demanded them. It does not seem to matter if you follow the directions of the doctor verbatim; they still find ways around doing what they took an oath for when they became a doctor. All physicians take what is called “Hippocratic Oath”, which forces them to uphold specific ethical standards, including medical confidentiality and Non-Maleficence, which means do no harm.

It is all over the news about what is called the “Opioid Epidemic” spreading around the country and also how the president says he wants to end the so-called “war on drugs”.  The president has claimed he wants to reduce opioid prescriptions by 1/3 of three years and the doctors are supposed to just fall in line with this insanity! The last time I DYrqFg6VwAAE4WPchecked, the president did not go to medical school and therefore does not know anything about medications and or illnesses that affect the people of the country he is supposed to care for! I do not think the doctors are going to fight for their patient’s well-being against the government and risk losing their medical licenses.

I can completely understand that there are people out there that abuse drugs of all different types. I do not think that those that need pain relief should be punished for another person’s abuse because the fault does not lie on the one in need; it lies on the one who has abused the drugs in the first place! If there is someone who has a true and well-documented reason from a medical professional for needing pain relief, they should not ever be scrutinized about this! Those living in pain never asked for this to happen to them and we all wish there was a different option, but we do what we have to do to continue living as normal of a life as we can. When a doctor tells a patient what is needed to continue care, the doctor should not change their minds multiple times and force the patient to go to other doctors and spend money they do not have, just to have the doctor say it isn’t good enough! In my opinion, they are failing drastically is the oath they took!

Looking at the big picture, I know that I really cannot blame the doctors completely because they are doing what they have to do in order to protect their jobs. They are following the laws that are put in place by the people who have absolutely no idea how to treat people! Doctors are listening to those in Washington DC that are on some kind of hne_pain_and_suffering_power trip, trying to fight a war that was created by the government! Logically, how else would all these drugs get onto the streets causing deaths across the nation? The people in this world who suffer are not being taken care of, but they are being mistreated and forced to handle the pain that is ruining their lives daily! A person that suffers from terrible pain has a hard enough time getting out of bed every day, so how can they be expected to do the normal daily things many can do without having any kind of relief from the pain they are inflicted with?

Thinking back about 10 years ago, my specialist who fully knew what I was dealing with was full capable to deal with my pain issues as well without sending me to another expensive doctor. What has changed and why did it change? It was not until recently, those at the top felt it was necessary to crack down on everyone. Pain apparently does not matter if a person is battling cancer, which is slowly killing them each day; they are going to have their pain medicine taken from them. Or what about those dealing with a chronic illness that is slowly taking away their mobility and affecting their day-to-day lives. Why should anyone that does not understand be able to be the judge on what is necessary for that person? Why should anyone be able to make a law that will take away a one-third of people’s rights to a pain-free life? How would the people making the laws, feel if they or someone they loved had to live in pain or would that just be different because it is closer to home for them?

As y’all can tell by this post, I have had a difficult couple days and I am beyond frustrated. My pain is at a high right now and is only getting higher when I have to deal with the doctors! Nothing is making sense to me right now, but I do see the changes being made at the top are doing nothing good for the country! It really makes me sad to see how only one single man can take a country to an extreme low!  I know some are going to disagree with me and that is okay, we are all entitled to our own opinions and I hope nothing I have said offended anyone.

I do really appreciate you taking the time to read this post and I look forward to your comments. I hope y’all have had a great week and the good news is it is almost Friday!  I hope y’all have a nice and relaxing evening. As always, I am sending all of you lots of love and comfort!!

Love 2

Always, Alyssa

Control?

Happy Friday EveIt can be a long road to hope and recovery. There is no denying the fact that life gets hard sometimes and it is crucial to find the best path possible. Sharp turns and bumpy roads are inevitable during the course of our lives and we get to choose how we survive the journey. Every choice we make in life can change the sequence of events moving forward and we just have to be able to adapt to the new route. It can be as simple as going a different way to work in the morning that can affect the way day plays out. There are things we can control in life, like our behaviors and things we cannot control like, traffic and the weather.

Accepting what we do and do not have control over can be very challenging. I want to be able to make the struggles of those close to me easier to handle, but I can only do so much! I understand that I am not able to eliminate the situation, but I can listen and try to come up with solutions. I completely understand that I have absolutely NO control over how others behave and treat others as everyone will do as they please, even if it is causing harm on another. It is very unfortunate that some will actually plan to go out to intentionally cause harm and damage.

Sadly, I know I have no control over the way pharmaceutical companies handle their business practices. These companies release new medications that are meant to be thebig pharma best of the best, but then when you inquire about them, the price is way too high! In addition, months later it comes out that those amazing medications are not as magical as they wanted us to believe. They end up causing more problems which forces you into taking just one more medication to help the side effects. That has never and will never make sense to me, you start a new medication that it designed to help your condition but then the medicine that is helping one problem creates another. What a way to build a business to be in high demand and make everyone with the pharmaceutical companies a lot of our hard-earned money? With all the advancements in the medical field, why are there cures for illnesses? Why can doctors not give reasons for what causes certain illnesses?

The one thing I know beyond a shadow of doubt that I do have control over is my own attitude and behaviors. Through my own choices in life, I am the one that decides if I am going to view things in a positive manner or a negative manner. Why would anyone make the conscious decision to have a negative mindset? I guess for some people it is just easier to not put that effort into letting go of the negative. I do believe it takes way more of our energy to remain in pessimistic thoughts and less energy to just look to the positive. Making the choice to stay strong in life, even when you are dealt a bad hand, is so important because in time things will get much better! 

I appreciate y’all reading and commenting on my thoughts for the day. Through your gracious comments and the great conversations we have I have made countless friends all over the world. I have learned so much from each and every one of you and I can not say how much I appreciate it! I hope y’all have a great evening and you have a great Friday! As always stay strong and positive! Much Love!

Love 2

Always, Alyssa