Things I never wanted to know!

images (12)Sadly, struggles with healthcare in the United States are not only terrifying but also incredibly real. I am not trying to be negative but healthcare in the United States is a massive joke that is NOT at all funny! Recently I found out just how much insurance was going to cost me through my company and it is outrageous. This has caused my husband and I to start looking into buying our own insurance. This also raised my curiosity into what is really going on with health care within the country I am living in.

In 2018, the costs of health care in the United States skyrocketed drastically!  In an familynursing2018-1468analysis from the US Federal government, it was found that Americans would spend $3.65 trillion for health care. With this appalling amount for health care, it represents each person would spend $11,212. Breaking it down even further, 59% of the spending is going to hospitals, doctor’s appointments and clinical services. Even prescription costs have increased 3.3% over the years.  In my personal opinion, this is ridiculous and only shows sheer greed. According to data from the Organization for Economic Co-Operation and Development, spending on health care in the United States is by far the higher that any other developed country.

The GDP (Gross Domestic Products) in the United States is larger than countries like health costBrazil, the UK, Mexico, Spain, and Canada. Reports from the Journal Health Affairs have estimated an average annual growth rate of 5.5% just from 2018 to 2027. Now if things continue as they have been, health care will be 19.4% of the country’s entire GDP! Unfortunately, according to the Federal Reserve Bank of Atlanta, wage growth remains below 4% and yet insurance prices will only increase! This is wrong on so many levels and yet there is no one trying to fix this issue! Actually, there are a few people fighting hard to correct the madness and they are Bernie Sanders and Elizabeth Warren in the senate and a several other progressives in the house. 

Even Private Health Insurance is only going up in price! Spending per person rose 4.5% between 2017 and 2018, even though the individual was already in the exact same insurance policy.

To say this is ludicrous is a HUGE understatement! Health insurance should not be a CR-Money-Inlinehero-short-term-health-care-expense-0918privilege, but it should be a right! It is despicable the way this is being handled among pharmaceutical companies and our own government. There are so many people graphoid080818including myself that need insurance or we will never be able to afford the medications that the doctor prescribes for valid reasons. Many of the medications we get at the pharmacy are required so our illness does not progress at a rapid rate.

I think it is obvious I think it is a disgrace that all the pharmaceutical and insurance companies care about it how much money they can make and not about the well-being of others. What ever happened to humanity or did it ever really exist? Once upon a time, the United States was at the top for education and health care and now it is only at 27th in the entire world. It is pathetic that doctors do not care as much as they did years ago for their patients, but download (3)now it is all about their paycheck! They get patient after patient, rush them without listening to anything their patient is saying, which is terrible!  I am pretty sure that doctors completely forgot what the Hippocratic Oath says and might need a refresher!

I apologize that this post may have seemed negative, but I am very frustrated with how awful health care is in the country I live in. I am not sure if I was just extremely naive before best-health-insurance-in-usa-1and things have always been the way they are now or if something just went very wrong in the thinking of Americans! I guess I may never know.

Thank you so much for visiting my site today. I hope your weekend has been great and you are enjoying every moment of it. Even though this was kind of a rant of my feelings, I would love to read your thoughts on this topic. I promise to respond as quickly as I can! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

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Outraged!

IMG_0579I can’t believe it’s only Tuesday because it certainly feels we should be much closer to the weekend. It is crazy how fast the short weekends go by and then how LONG the work weeks are. I am thankful I found a job that is close to home and all, but strongly believe 40 hours a week is too much for anyone to dedicate to a job! I think it is even more outrageous that here in the United States we are often forced to wait 90 days before we can even get insurance, not to mention the fact it is INSANELY expensive! I mean, if I were to get insurance for myself and my husband the cost per pay check would be more than a quarter of my paycheck!

I know I have written about this before, but now it is getting painfully more real! The obamacare-pre-existing-conditionsnews I heard, after a long day at work, was so disturbing and caused me so much ANGER, as it would anyone with a heart and any empathy for others! For someone during their campaign they ran to become president, no names being mentioned of course, saying they wouldn’t do anything negative to those of us with pre-existing conditions, to now doing the EXACT OPPOSITE and trying to eliminate protection for pre-existing conditions! I know this person in the white house has some of-nonelderly-adults-with-a-pre-existing-condition-twitter-v1crazy issues with the former president,  but to banish the good things that were done is very wrong. How anyone could still support this person is beyond me because I sure as hell couldn’t and never would! There are millions of people in the United States that will be affected by this and many could even lose their lives if anything happens to their health insurance. 

I try my best to keep my blog encouraging and never talk politics because we are all understandingtheacaentitled to our opinions, but when something can change my own life for the negative, I can’t help but to share my thoughts on the matter! I have been trying to tell myself that no one would ever think about doing something so awful and ruin lives for so many, but it just may happen! Striking down the Affordable Care Act, as has been put on the table, is wrong on so many levels, no matter what your political views are! I wish there was something more I could do to stop anything like this from happening, but I do not even know what that would be! Of course I can write about it, but I don’t know how much that will really change the issues! I do understand there is a chance that nothing being proposed will pass, but what if it does? How can anyone afford the medications they need to live their lives? I know there is absolutely NO way I could ever afford the medications I take to slow the progression of my Multiple benefits-affordable-care-actSclerosis down without insurance. Where would this leave people battling with a chronic illness and does anyone in power really care??

I am sorry for my second rant in a matter of days, but I am hoping we could some how all join together and find a way to help make things better for millions of people! We all deserve WAY better than this and it is shameful we are facing this fear now! I have always heard that there is strength in numbers, so all I can do is hope for better times!

Thank you for visiting my site today and reading this rant! My frustrations are sky-high and the only thing I know to do is write about them! This helps me calm my nerves and ease my stress some! I hope y’all have a pleasant and relaxing evening. I always encourage your comments and I will respond as quickly as I can! Please know that even though I am a little high-strung right now about all this, I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

 

The rant about healthcare & insurance!

charlie-ergen-quote-to-use-a-poker-analogy-if-the-deck-is-a-bitHave y’all ever felt like the cards were stacked up against you? Living with a chronic illness already gives the house a much better hand, but I will always refuse to fold! We have all learned various ways to cope with what we live with and to keep up a good fight despite any additional struggles we are forced to face. I learned many years ago that the storms of life will only gain more strength, but weathering these storms can and will be done.

I do think the unexpected issues that arise can be the most problematic and perplexing ones. Losing my job for absolutely no reasonable or seasonable reason really did send my mind into a downward spiral. I have tried my best to stay positive dda6dd8c8211c5c345ce66f0f5558197--quotes-about-worrying-quotes-about-stressthrough the time I was without a job, but the continued nagging fear of being without insurance while living with a chronic illness is beyond terrifying. It almost feels like being on a roller coaster without a safety belt on and this feeling gets the best of me more than I like to admit. I know I have complained before, which isn’t helpful at all, about how crummy and expensive insurance is, but being without it with Multiple Sclerosis or any chronic illness is very unpleasant. Medications and doctor’s visit are expensive with insurance and I hate that I know how much these things are without insurance. Thankfully I have only been forced to go to one doctor’s visit without insurance which was very expensive and I found that GoodRx.com does help reduce the price of medications! Even though I have found ways around the doctor’s visits, I am still always in a constant fear of what will happen if I have a relapse or if these corrupt idiots corruption-power-quotes-01.jpgrunning this country mess with pre-existing conditions because this could happen. I do know that thinking about these things is nothing but stressful and will only create additional health issues, but it is impossible for me to let go of these thoughts and feelings.

Y’all already know that I have been battling with a crazy stomach issue for over a month and I am avoiding seeking medical attention until I have insurance again. I mean who stomach issuescan really afford these various appointments and all the tests doctors think they need to run on their patients? I am not, never have been and never will be in the tax bracket that can afford this. What kind of person can look at someone with an illness of any kind and only see dollar signs? To me, that is not a good or compassionate person, but they are the ones on top. It is really unfortunate that some can be as evil and corrupt as they possibly can be, but not ever face the consequences for their bad behaviors.

gilenyaThe Gilenya I take daily to keep my Multiple Sclerosis under some kind of control costs $8,500 per month without insurance. This is completely absurd and absolutely ludicrous! Unfortunately, GoodRx isn’t able to assist with this medication. I don’t know about you, but I sure as hell can’t afford these high costs. I have been going through an amazing program called Gilenya Go Program since being on this medication and my cost has always been $0. I don’t even want to think about what I would have gilenya-go-programdone if this program didn’t exist. Considering I do not have insurance at the moment and only have about one month left on hand of this medication, I did panic. I have spoken with an amazing representative for the Gilenya Go Program and she told me all I would need to do is call them when I am down to one week left and they will send this medication to me free of charge and can do this for about 2 months. By the time they aren’t able to assist me any longer, I will have insurance again, so thankfully I will not go without. This is just me, but Gilenya has been helping keep me semi free of relapse and further progression.

GLN01260I also take Neurontin, three times a day. This is another medication that is a little expensive, but nowhere near the crazy cost of Gilenya. A one month supply of Neurontin with insurance was only $10, which is very affordable. Now without insurance this will end up costing me close to $300 per month! If I do go through the GoodRx,com website, I might be able to get this medication for around $47 per month which is still high but a lot more feasible than $300!

Now there are a few other medications I do take daily that are rather expensive, but the GoodRx website has been very helpful with these. How is it that the United States of othercountrieshealthcarecs.jpgAmerica is the ONLY developed country that doesn’t offer free healthcare? An even better question is why are the American people so scared of having free healthcare? My guess is, these people are blindly listening to the ones in power that say this will never be a good option and much more negative lies about it. Free healthcare has been great for all the other developed countries with the citizens only saying great things about their free healthcare! In my personal opinion, those that say nothing good about free healthcare need to dig a little deeper and far beyond what American leaders say, until they can think for common sensethemselves with a clear mind and actual logic!

I want to thank you for visiting my site today and reading my rant about how awful healthcare is in the United States. In all honesty I do not like to complain because it doesn’t fix the issue, but I needed to get my thoughts out and really want to know your thoughts on this! I hope you have a lovely and peaceful Sunday. I feel that the weekend went by way too fast and I have to get up early again and back to work tomorrow. I mean seriously, where did the weekend go? Is it really too much to ask to have our weekends be a little longer? I promise to respond to all your comments as quickly as I can and considering it is Sunday, I should be able to do this! Please never forget that I am always sending y’all LOTS of love ❤, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

What do you do when…..

power-outage-generic-320Good afternoon y’all! I really hope your day is going much better than mine has. I already have to get up pretty early for work, but being woken at 3:00 am due to a power outage is a terrible way to wake up. It kind of sets how the day is going to go for you! Waiting patiently for the power to come back on so I could get ready to work was frustrating to say the least. I could not fall back asleep for a few reasons, it was a little hot without the air conditioner and sheer panic in thinking how I would wake up if I fall asleep without an alarm and get ready for my day. Thankfully the power company did work fairly fast and the power was restored by 6:45 am, but I am typically at work at 7:00 am. I guess you can say I was able to partially throw myself together and I was at work at 8:00 am. Even though my manager was fully aware of the situation, my day felt off due to being an hour behind my normal schedule. Thankfully it is over now and hopefully tomorrow will start off much better! 

Of course to add to my frustrations from the power outage this morning, I can not seem to get any responses from my doctor’s office. I am waiting for them to send the MRI order tofrustration the company that might approve for me to get assistance with the co-pay for the extremely expensive MRI. The nurse, that is normally helpful, sent me the paperwork I needed to fill out and then send to the company MSAA, but apparently failed to send me the MRI order that the company requires. After several phone calls and emails they still have not sent this in or responded to me! The doctor is the one that wanted me to get the MRI, but I guess it was not all that important to her after-all! Maybe I am wrong, but I am taking this to mean my health is NOT all that important to her and neither is the MRI she was forcing on me. Through the fatigue and frustration, I emailed the AVP of the practice and SURPRISE still NO response!!!! I mean who else do you go to when even the AVP does not respond?

Maybe this is my fault because I expected this new doctor to care and treat patients the way my previous doctor from this same office did. Nothing has been the same in this Expectation-withoutpractice since my first doctor retired. My first MS Specialist was caring , compassionate and knew how to communicate, but I guess this is a new day in age and doctors like him are scarce. Communication between doctors, nurses and the patient is vital to good health care, but apparently they see things differently. Every time I see this doctor I go into her office prepared with all my questions written out, just so I do not forget anything and considering I know when I leave the office I will never get a response to my questions. I am not sure what happened to doctors that actually care about their patients, I think they are extinct like the dinosaurs! It is really sad that we pay all this money for a few moments of the doctor’s time, but sometimes feel like we are a nuisance to them? Or maybe that is just me.

Thank y’all for visiting my site today and reading my small rant! I really hope you had a lovely day without any of the frustrations I have experienced today. Your comments are always encouraged and very much appreciated! I hope y’all have a great evening doing what makes you happy! As always I am sending y’all LOTS of ❤love and comfort!

My signature heart❤Always, Alyssa❤

Just Another Day

just-another-day.jpgGood afternoon y’all! For me today is just another day of resting trying to get past this incredible amount of pain I have been dealing with for WAY too long! This obnoxious pain is mixed with that burning sensation that will not cool down, tingling throughout my entire body, numbness which sounds like it would be better than pain, but it really isn’t it is almost worse and a headache that seems never-ending! The nurse practitioner I normally deal with is off today and the doctor that I do my best to avoid is in clinic today, which makes her pretty much unavailable. The only thing the nurse I spoke with was able to say is rest and staying hydrated is important until I can get the MRI, which I was still waiting to hear back from the assistance program. I did just email the Multiple Sclerosis Society of America, which is the company that will either approve or deny assistance for me to get MRI assistance. Now the response I got back from my email was quite upsetting, which is something I really did not need today. They stated the doctor did not provide an order for the MRI, which made no sense to me considering I did send them everything I was instructed to by the doctor’s office, imagine that another miscommunication from them! To hopefully make things actually work out for me, I emailed the nurse requesting the MRI order. Honestly the nurse has been the ONLY person at this office that has been at all helpful to me.  Maybe I will get that back from them sometime this week!!

It is a little frustrating when you are doing everything you possibly can to get well, but itbutterfly-3054736_960_720 just isn’t working the way it should be! I am resting, staying hydrated and taking all the medications the doctor has prescribed, but there is still NO relief yet! My guess is the stress this issue is causing me is not helping me get better, but it is in fact making things so much worse! Isn’t it crazy when we know what is causing our problems to become worse, but yet we still change absolutely nothing with our thought process? Obviously I know exactly what is making all my pain more intense, but I am still getting myself worked up and upset about it anyways!

I think to help get my mind off of my many pain issues; I am going to work more on my bullet journal I am trying to put together. I do not want to start it at the end of the month because I do not think that makes sense, so I am planning this for July! My plan so far is to have a few trackers that will include: symptoms and food I eat in a day (this will be to peace 1see what foods could be causing more issues for me). I want to also include a Hopes & Dreams page, Positive thinking page to really keep my mind in a happy place and a Gratitude page. I might include a page of books that I want to read considering sometimes I think of a book I want to read, but then forget the title! Then lastly I want to include a page of ideas for my blog because I come up with random ideas, but then forget what I wanted to write about when I try to start! I guess I can contribute my forgetful mind to brain fog from the MS.

I really appreciate y’all visiting my site today! Your comments are always appreciate and encouraged because I do love hearing from y’all! I am doing my best to respond as quickly as I can, but with the way I am feeling there is a chance I might be a little delayed, but I will respond!! I hope y’all are having a good day and feeling well! As always no matter how I am feeling or what I am dealing with I am sending y’all LOTS of ❤love and comfort!

My signature heart

❤Always, Alyssa❤

News from FMLA

1052674_good-evening-sunday-images-wallpapers-of-2015_1024x768_hGood evening y’all! I hope you had a great day and are feeling well. This will be a short post just to give you an update! I had shared with y’all on Friday about my FMLA drama, well I actually have some good news. I did of course have to make a few phone calls, but the end result was positive. Both parts of my FMLA request have been approved and will be good through the end of the year and part of January 2019!! So now if I have any relapses, I am covered by law and I was also approved to have my reduced hours, which of course I had already been doing since November of last year. Even though my nerves were completely shot late Friday afternoon, I guess I knew that things would work out the way they were supposed to. 

After that ordeal with FMLA was all taken care of I have moved onto another issue, dealing with the MRI assistance paperwork. I have completed the necessary paperwork and even typed up a letter addressing any financial questions they will probably have. I will get this paperwork emailed to the company tomorrow morning and then just hope for the best. I am going to look at this with an optimistic mind and believe that things will fall into place because I also know the MRI is needed. After the request is sent I willhope know I have done all I could do and hope they will approve my request for assistance. MRI’s  even with insurance in the United States are insanely expensive. I still wonder why in the world I pay so much for my medical insurance just to have to turn around any pay tons of money for doctor’s appointments and required procedures, it just really does not seem right to me! Maybe someday the US will follow suit with the other developed countries and offer “free” health insurance. I kind of think it would be insane to hold my breath because things have been this way for many years without anyone stepping in to make GOOD changes! 

Thank you so much for visiting my site this evening! I always appreciate you taking the time to read and love reading your comments. I hope y’all have a lovely and relaxing evening. Just think we are almost half way through the week! Remember I am always sending you LOTS❤ of love and comfort!

My signature heart

❤Always, Alyssa❤

Friday Sunshine!

struggleGood morning Y’all and a very happy Friday! Even though logically I know it is not possible, it feels like the weeks are getting longer. I had expectations for myself for this week, but those expectations were unfortunately not met. I told y’all in the beginning of the week I was going to try to increase my work hours from 6 hours daily to 7, but I was not able to. I also said I would not be hard on myself if I did not achieve this goal, which is a little untrue. As y’all know I have been struggling with a lot of spasticity in my legs, which is causing a massive amount of pain. I tried to push myself further so I could work 7 hours, but the most I was able to do was 6.5 hours. All I can say is, better luck next week because you know I will keep trying until I achieve my goal!

How was your week? Do you feel like the weeks are getting longer or is it all in my head? I think my week might have felt longer because I wanted so much to work longer hours and I was having so much pain! Frustration was definitely at a high! 

I am trying to make an important decision about whether I should or should not get another MRI. The only reason why my specialist sent the order in was because I haveMS Warrior been back on the Gilenya for 6 months and they want to see if it is helping my illness. Until I mentioned that I was on Gilenya for 6 years previously they did not seem to have any idea and now it might not even be necessary. It is a little disturbing to me that my specialist did not know or remember that I was on Gilenya for so many years prior to October. When she first told me I needed to have the MRI, I thought it was to see if the new active lesions from the October MRI had went into remission or if there were new lesions, I did not know she was ordering this because of the 6 month time line due to restarting the Gilenya! If I am being 100% honest, the only reason I would want this MRI done is to see if there are new active lesions causing all this spasticity and pain. But all the MRI will do is cause me a lot of unnecessary stress and in turn upset me way too much, which we all know the damage being upset will cause. I mean seriously, if all is well with the MRI the specialist mswill say I am doing well with the Gilenya but, if there is any activity on the scan she might say the Gilenya is not strong enough for me and I need to consider starting a different medication. The bottom line is I am NOT switching medications again until there is a cure because the Gilenya worked SO well for me for 6 long years and if the MS has progressed to Secondary, Gilenya is still used to treat the illness. Do you think I am being logical or irrational with my thought process?

I really appreciate you taking the time to visit my site today and I am really looking forward to your comments, which you know I will always respond to as soon as I possibly can! I hope y’all have a fantastic Friday and I also hope you are feeling well! Please never forget that I am always sending y’all positive vibes and lots of ❤love and comfort!

Love 2

Always, Alyssa