Most likely many of you are aware that March is Multiple Sclerosis Awareness month. There are only 31 days to raise awareness of a disease that impacts and changes the lives of those living with the disease for the rest of their lives. Although I am sure there are more, I am going to share with you 31 reasons why I detest MS. Of course, I do not mean to sound negative, but this disease is anything but pleasant or easy to deal with. Please know these reasons are not in any specific order.
1. This disease is incurable and a lifelong condition.
2. Multiple Sclerosis is unpredictable and can strike at any time without any notice.
3. Neuropathy is something that can cause issues such as pain, numbness, tingling, weakness, and a pins and needles sensation.
4. Random and frequent headaches, which no one could ever get used to.
5. Numerous appointments with different doctors.
6. The expenses of medication are higher than they should be in the United States where free healthcare is not an option.
7. Vision changes can happen to anyone but seem more common with MS.
8. Multiple Sclerosis can be hard to control considering there are no answers to the causes.
9. Never-ending fears of losing mobility.
10. Constant daily changes.
11. Back Pain, which I have lived with for years in my lower to mid back.
12. Leg pain, mostly neuropathy. This can make walking challenging.
13. Heat intolerance, which living in the south can be miserable.
14. Weight gain due to the inability to exercise much because of the pain.
15. Sleeping troubles due to waking up with pain and not being able to fall back to sleep.
16. Frustrations! You can do everything the doctors recommend, but it does not appear to make a difference.
17. Memory issues.
18. Missing the feeling of being normal.
19. Adjusting to weather changes can be challenging. Too hot creates issues, but too cold can cause me to tense and cause even more pain.
20. Dealing with doctors that do not always listen or understand. Doctors may understand the disease as much as they can, but they have no idea what it is like to live with it. Studying and reading can only do so much.
21. Understanding what creates additional issues, such as food, lack of sleep, stress, etc.
22. Worrying about the possibility of progression. This has always been a huge concern for me.
23. No answers regarding the causes of the disease.
24. With the unpredictability, one needs to always have a backup plan. This may be easy, but it is not easy explaining to friends and family.
25. Trying to stay positive without any changes in medical progress.
26. Knowing the best medication for the disease can be different for each person.
27. MS Hug. This is a painful hug that no one would ever want!
28. Dizziness
29. Flareups and steroids can weaken teeth causing them to break easily.
30. Fatigue. It is difficult to always feel tired because you are unable to get enough sleep.
31. Trying to explain to others how one can appear normal but are always in pain.
I have always known that this disease can take away my mobility and it has terrified me since I was diagnosed. Of course, I am always aware that it could be worse because my form of the disease is minor in comparison. I used to believe this disease was a punishment for something I did wrong in life, but logically know that it is not. We all have negative moments in life and trying to push past those thoughts can be challenging, but also necessary. This disease does not discriminate and can happen to anyone.
It is always important to remember that no matter what we are dealing with in life, someone else is dealing with something worse. While I do detest MS, I do know that no of us will have to endure something that we cannot handle. Whether this is true or not, it does help me to keep moving forward. Plus, I did make my late grandfather a promise that I will never all this disease to get and keep me down.
Thank you for visiting my site today. I hope you have a wonderful weekend and you are able to recuperate from last week because I know it was a long week. I hope you found what I have shared today interesting and I look forward to reading your comments. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Always, Alyssa
Fightmsdaily 
Reblogged this on Survivors Blog Here Mental Health Collaborative .
LikeLike
Three of my friends have had it….two in their 70’s and was diagnosed in their 30’s. One is doing great and bikes 3 miles a day. The other has had health issues not related to the disease. My third friend is in her 40’s has three children and it is off and on for her. But do remember, you did not get it for anything you did! They felt that way too.
LikeLiked by 1 person
I had no idea that MS has so many awful symptoms, Alyssa. I feel for you so much in having to deal with all these complications of your disease. I can totally understand about your fear of losing your mobility. As you may know, I am a wheelchair user, and although I can get about indoors with the aid of a trolley or walking frame, I can’t walk any distance, nor outside at all. I’ve sort of got used to it now, so I just don’t let it get me down too much. However, your disease is much more complicated that my condition with so much more pain and side-effects from this illness. It must be very scary not knowing if your disease is going to worsen in time or not. I do hope it doesn’t get any worse. I can deal with my condition because I get little pain and it rarely changes from one day to the next, unlike you illness being so unpredictable. I hope, one day, they will discover a cure for MS. Do take care of yourself, dear Alyssa. Xx 💐💞
LikeLiked by 1 person
Thank you so much for your kind words, Ellie. I am one that can be overly emotional, but your comment brought tears to my eyes. Yes, MS is no fun, but it could be worse. In my mind, they already have a cure, but the pharmaceutical companies make too much money off the medicine to give it to anyone. Plus, the United States is very selfish. Again, I really appreciate your kind words and support!!!
LikeLiked by 1 person
HI, Alyssa. Getting emotional is perfectly normal, especially under circumstances such as yours. It’s not at all surprising and more than understandable. That’s dreadful that they already have a cure but won’t give it to sufferers because of financial gain – that’s truly shocking! I’ve heard that the US’s medical system is unfair and only available if you have money. It’s appalling. I know that MS doesn’t just get better on its own, but I wish you so well, or as well as you can be with this horrible disease. Do take good care of yourself, my friend. Xx 💐💕
LikeLiked by 1 person