Week with a cough isn’t easy

away-from-the-blogI never meant to be away from blogging for the entire week, but this unrelenting cough has been torture! Coughing all day, everyday, plus working full-time, has caused me more fatigue than normal, so I have not had the energy to write at all. Besides dealing with this nasty and evil cough, last week was extremely busy for me.

As I already mentioned, I have been dealing with a cough for well over a week, hell it has been well over a month now! I already know that it takes my body FOREVER  to get over a simple cold, but honestly I haven’t even been to a doctor. Healthy ingredients for strengthening immunityMy reasons for not going to the doctor might be silly, but in my opinion they are valid. One reason is I am in a new city and haven’t established an actual doctor yet. I know this is something I should have already taken care of, but it just isn’t easy. Hell I know there are not many MS Specialists where I am living, which is frustrating! Another reason I haven’t gone to just some random doctor is because they ALWAYS try prescribing an antibiotic and ALWAYS ignore the bright red warning sign that shows up due to the Gilenya. Gilenya interacts with many medications and it can be very dangerous. I just do not want to deal with all the ignorance that comes along with healthcare in the United States. 

home-selling-6Another major thing that happened last week was we closed on the sale of our townhouse! I had mixed emotions about this because it was the first home my husband and I bought together. There are many memories within the walls of that home, some are great and others are horrible, but it was our home. I am beyond happy the townhouse sold in only 3 days, but it is still bittersweet! The  great thing about this is, we are down to only one mortgage payment!

With so much going on, good and bad, I am thrilled we have a three-day weekend! I am hoping that having these days off without any “must do’s” I will get over this pain in the 1264359-georgia-may-jagger-quote-drink-lots-of-water-get-lots-of-sleep-andass cold and start feeling human again! I never would have thought a simple cold could take this much out of me. I mean I haven’t even had the energy to do much of anything, which is very unlike me. For the past two days I basically get out of bed and move to the other side of the house to the couch, where I typically fall back to sleep while watching TV. 

I am making an effort to get over this cold, but my goodness it is taking way too long! I already take a Vitamin C supplement everyday, so I am not sure what more to do. All the congestion that has come along with this cold has completely killed my appetite, but I am staying hydrated, so I guess that is a plus. Let me ask y’all a question, when you get what should be a simple cold, does it take a long time to go away?

I hope y’all are having a nice and restful weekend! I am working on getting through emails, comments and your posts, which hopefully I will be caught up by the end of the long weekend! Playing catch up while my head is feeling very foggy isn’t easy, but I am trying! ❤As always I do appreciate you stopping by my site and your patience with my catch up time. No matter what I might be dealing with, I am always sending y’all LOTS of love ❤, comfort and positive vibes!

My signature heart

❤Always, Alyssa❤

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Pain gets in the way!

tuesdayGood morning y’all! I hope you are doing well today. I am terribly sorry for missing my traditional “Motivational Monday”. I  don’t think I have ever missed this and my reasons for missing this yesterday is because I was feeling horrible and in a lot of severe pain. We all know that pain comes with the territory of many if not most chronic illnesses and I normally fight beyond this issue, but it was just wasn’t possible yesterday. 

Y’all already know that my husband’s birthday was on Saturday and thankfully we werebirthday success able to celebrate his day! I was so happy to be able to make my husband’s birthday special and ensure he had a beautiful cake!! I was so worried about this cake situation because I was use to getting his cake at the local store near are old house, but thank goodness this new grocery store did a fabulous job!

I honestly have absolutely NO idea what in the world could be causing the increase in pain is weakness leaving the bodymy pain, but I am hoping it will end soon and not be a dreaded relapse. The last massive relapse I had was last year and probably due to changing medication and the stress that followed that decision. I am probably going to just blame the weather for my pain and cough issues because that is just easier and offers more hope! Yes, weeks later I still have a nagging cough that will not go away!

Is there anything that helps you when your pain gets out of control? I tend to take kindly to bfa0ee13a5cbf740e7fe43df086ccd04my trusty heating pain because that does help some, but still doesn’t completely eliminate the pain. I know I have mentioned previously that I get pain in my back and legs, but normally one is worse than the other. Right now, I couldn’t possibly say which one is hurting me worse. What I can say for certain is the leg pain is making it hard to walk far, but I am doing what I can and still refuse to allow this illness to defeat me!

Thank y’all for visiting my site this morning. I appreciate all of your support more than I can even explain. I am truly sorry for missing Motivational Monday, but I promise I will not miss Pick-Me-Up Thursday! I look forward to reading your comments and I will respond as quickly as I can! Please never forget that I am always sending y’all LOTS of ❤love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Crazy decisions and side effects!

side effectsI have always thought it was a little crazy and extremely frustrating that medications meant to slow the progression of illnesses down, are accompanied by a long list of possible side effects. I know that the Gilenya I take daily is supposed to slow the progression of my Multiple Sclerosis, but it has a really LONG list of potential side effects and at one point that was what pushed me to want to make a change in my treatment plan.

The middle of last year I was having so many issues with terrible sinus headaches and migraines that I wanted to find out what was causing them. After reviewing what side images (2)effects Gilenya posed, I saw somethings that were common was headaches and sinus troubles. I was not just looking the side effects up on Google, but I was on Gilenya’s actual website, so I took this very serious as I am sure most people would. I went to my doctor with these concerns and she pretty much dismissed my thoughts claiming that it was not all that common with this medication and that I shouldn’t be doing this kind of research because it was “false” information. I argued back asking how it could be false when it was on the manufactures real website!? Of course I was frustrated that my valid concerns regarding my health was being ignored and not even willing to discuss more at that oral_therapy02time, so I decided to ignore her medical advice and demanded that I try a new medication immediately. It wasn’t until I told her there was another oral medication I read about that I thought would be better for me she finally decided it was worth her precious time to have a conversation with me. She tried her darndest to use the fear tactic, which of course wasn’t working well with me and only caused me to question her logic further. I know it sounds crazy, but I was completely convinced that she was receiving kick-backs from the drug company and me not changing medications would continue to be financially beneficial to her.

In preparation to change my treatment plan from Gilenya to Tecfidera I discontinued the Gilenya last July. I was required to be off medication completely for 6 weeks, so all the 51WIQmA-fnL._SL1000_Gilenya I had taken needed be out of my system and allow the Tecfidera to be able get into my system. In early September I started on Tecfidera which again is an oral medication. During this time my MS did not get better, but much worse! I guess MAYBE the doctor was correct when she said Tecfidera wasn’t going to be strong enough for me or maybe I had the nasty relapse because of ALL the stress I was under. I was so worried about the headaches and the fact that Gilenya could have been the cause and then even more concerned that my MS was progressing way too soon in my life. Whatever the cause was the MRI I had in early October was HORRIBLE, landing me right back to the drug I was convinced was causing my headaches!

It still doesn’t seem fair to me that we have to make the decision if we would rather deal Gilenya+Fingolimidewith the side effects of these so-called helpful drugs or be disabled. As difficult as it is to deal with the massive headaches/migraines, I would much rather deal with them rather than lose my normal abilities, like walking without assistance. I still do not think it is right for anyone to have to make a decision like this, but I guess it is what it is!

I have been back on the Gilenya for a little over a year now and I do still deal with sinus trouble and migraines, but at least the MS hasn’t to have progressed. I do think that until there is a cure for MS, which I must believe will happen in my lifetime, I will not be changing medications! Now that my husband and I have completed our move, I am ms-research-2013-6-638searching for a new MS Specialist, who will hopefully be more knowledgeable and have much better bedside manner. I know I have already shared this with y’all, but I am NOT a fan of my previous specialist. As crazy as this may sound, I want a specialist that is an older gentlemen because I have found they are more understanding and considerate. Of course going with an older person, I run the risk of them retiring, like two of my previous specialist did and I absolutely ❤ LOVED❤ them! I am sure that with the determination I have, I will find one that is best for me and my personality. I guess it shouldn’t be as important to have the warm and fuzzy with a doctor as it is for the doctor to be knowledgeable, but I need to feel comfortable with them in order to trust the doctor.

I always appreciate you taking the time to stop by my site today and I always love reading your got-hope1comments! I hope y’all are having a nice weekend and you are feeling as good as you possibly can! I must say having a long weekend is absolutely wonderful and I have been able to rest, but still do things that needed to be done! Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Always continue living!

nobodysaidNo one has ever said that living with a chronic illness was easy, but so many of us do. Some of us find ways to live through the pain caused from our illness with dignity, grace and determination. After all many illnesses do not YET have a cure, so it is just best to push through the best we can.

If we allow ourselves to remain focused on whatever illness or illnesses we struggle with, I believe we would miss out on all the good things life has towhen-life-gives-you-reason-to-cry-smile-stars offer us. It isn’t worth losing the happiness our life can hold by dwelling on the struggles we face. It is difficult and yet possible to turn all the pain and hardships we wrestle with into something beneficial, I know how crazy that might sound but it is true. Some of the ways we battle through life can be very inspiring and encouraging for SO many others.

Y’all already know that I have lived with Multiple Sclerosis for 19 very long and painful years, which is more than half of my life! If I had just given up all hope when I was first never-give-up2diagnosed, I would never be where I am today. Yes, life gets really complicated and frustrating, but overall I am in a very good place. My husband and I have moved to a new city, as y’all already know. We are living in a great home that is where my husband’s amazing grandparents raised their family. There is so much love ❤ built into the walls of our home and I swear you can still feel his grandparent’s spirit in every inch of this house❤! This is a very comforting and reassuring feeling that I am thankful for.

I am pretty sure y’all already know this about me by now, but just in case you ever questioned it, I believe holding on tight to positivity ❤ can go a long way. If you are constantly in a negative frame of mindimages (2) nothing good will ever really happen in your life, which could just be because you aren’t able to see something great that is right in front of you or you aren’t allowing yourself to feel it. Staying negative all of the time just creates a dark cloud over your head that follows you everywhere you go and there is no way to hide from it. Negativity can create a blind spot to anything and anyone that could actually be wonderful.

I know that it is completely impossible to be positive 24/7 365 days of the year, but it isn’t healthy to remain negative all those days either. There is always a manageable balance 26550426-balance-bad-or-good-scales-on-white-isolated-background-3dbetween the good and the bad; we just need to acknowledge the differences and keeping moving forward!

I hope y’all have had a lovely weekend and you are feeling well today! It has been a sunny and chilly weekend, which is MUCH better than chilly and rainy. Thank you so much for stopping  by my site today and I do really look forward to reading your comments. I promise y’all that I will respond as quickly as I can, I am getting better at balancing work and life again! Enjoy the rest of what is left of your weekend. Please never forget that I am always sending y’all LOTS of ❤ love, comfort and many positive vibes!

My signature heart

❤Always, Alyssa❤

Never Giving Up!

When Life Gets BusyTo simply say that my life has been busy lately and it has very hard to make the necessary time to do what I enjoy is a poor excuse and a HUGE  understatement! Moving to a new city and starting a new job has been exciting, but also VERY overwhelming. I honestly haven’t worked a full-time job in a while because of the constant pain and other issues I struggle with daily, but I have been doing just that for one month now! Yes, the pain has been difficult to deal with, but at the same time I am actually enjoying the job so I just accept the pain for what it is and I don’t dwell over it. I feel that my job helps those that are struggle with making ends means, but they want to improve their lives. In my personal opinion, people who struggle with life but do what is necessary to provide for themselves and their families are pretty amazing and admirable. There are so many that just give up because they feel helpless and feel as there isn’t anything they can do to improve their lives, which this just isn’t true! It may not dc-may18-600seem like it, but I do believe that we can all accomplish ANYTHING we set our minds to!

Like I have said already, I am pushing myself to work a full-time job and lately with the weather change hasn’t been easy at all! Even though my body is on overdrive and going a little haywire, I know things will improve in time it just takes patients, which I tend to lack. It doesn’t matter if the temperature changes from hot to cold or cold to hot, I still react the same way, NOT WELL! It still seems a little crazy to me that I feel horrible when anything goes on with the weather, even just rain. For the first few weeks of every season, I just feel like I was hit by a truck and the mean driver backed over me just for some added fun! You would think that after living with Multiple Sclerosis for almost 19 years I would be immune to these issues or at least be able to tolerate them better, but honestly it is always produces the same troubles!

878da42dde1a95a17c88e6759c5fbcf1I hate that I have been a little MIA for weeks now, but the life changes has been a struggle for me. I still need to find a MS Specialist near me, so when I do have issues, which hopefully I won’t, I will have a doctor to contact. It would be terrible to drive 2 hours back to the doctor I couldn’t care less for, but that might be my only choice for short-term, we will see. We did find a vet for our cats to go to that is really close to our house. Only one of our cats really needs a vet due to his asthma. A lady I work with said she has a great dentist, so I might need to check them out. It isn’t any fun starting all over again with doctors, but maybe it is actually a good thing and I will find better doctors that I mesh well with. I don’t think I am a difficult patient, but I need to feel like the doctor I see, no matter what type they are have required knowledge and the MS Specialist needs to be compassionate. Do you think I am asking too much and I am a little difficult? Of course I want the MS doctor to be honest, but not too harsh like my current one. All doctors should have good side manner, which seems to be hard to find!

daily-fitness-motivation-keep-pushing-your-limits-when-you-accomplish-your-goals-set-new-onesIt feels like it has been WAY too long since I have actually been able to write a post from the ❤ heart ❤ when I wasn’t too exhausted. It is really shocking how difficult it is to work full-time. It seems like there are too many hours away from home relaxing and enjoying life by working, but I guess we all make sacrifices and at least I like what I am doing! I am still continuing to learn and have more responsibilities, which I ❤ LOVE! If I am forced to work, I much prefer to stay busy and be challenged!

I hope y’all are having a great weekend! It is sunny, windy and a little chilly where I am, but it isn’t as bad as yesterday. It really seems that the seasons changed over night. We went from the high 80’s to low 50’s in just a few hours, that might be exaggerating a little, but that is how it seemed! I hope y’all are able to do anything and everything that brings you joy this weekend! Thank you so much for visiting my site today. I will respond to any comments as quickly as I can!! I promise I am working on getting back into blogging again, it is just taking longer than I would have expected. Please remember that I am always sending y’all LOTS of love ❤ and comfort!

My signature heart

❤Always, Alyssa❤

 

Two weeks has past!

Time-for-an-UpdateGood evening y’all! It is incredibly hard to believe that it has already been two weeks since my husband and I uprooted our lives by moving to a new state and city! Two weeks ago when we made this change I was terrified about the decision we had made, but now I couldn’t be happier we made this fabulous move! I think the new city and my new job have done so much for the sanity I still had left and my massive stress-levels. The new city is a little smaller than where we were living and so far the people are a lot nicer.

My new job has so far been absolutely amazing and the people are SO very kind, which is a huge change for me. I mean don’t get me wrong, there were a few people at the old job that were great, but the bad definitely out-weighed the good there. My new boss is an older man who stays very busy with good things comenumerous meetings and tasks, but when he is in the office he is super kind and willing to answer any questions I might have. So far, my job has been very interesting! I have been learning about what my job entails and how to maintain a schedule for the VP of Finance. There is so much more to this job that I am very excited to learn. I am thrilled that I am going to be traveling with a co-worker for a week of training out of the state. This training will make me become a Certified Housing Counselor. I am looking forward to the chance to build relationships with the home buyers and feel that I will be able to offer a lot of compassion and understanding during a stressful time for them.

I work with so many incredibly nice and understanding people. Of course they only have one name to remember, where I have about 20. Thankfully, everyone is extremely understanding when I have to ask their name again, which has really only happened once or twice. empathy

The moving process was stressful and a lot of hard work, which caused me a great deal of fatigue and pain. I wasn’t the best with resting because I just wanted everything done and organized immediately, which is impossible. It has only been recently I decided that we have plenty of time to get things situated in the new home. There doesn’t need to be a rush on things because thankfully time is on our side with the new house. The only thing that is important  and time sensitive is we MUST get our old home ready to be sold and hopefully sold sooner than later! I look forward to the day we get a phone call saying we have an offer on the house! I am logical enough to understand it will take time before the townhouse actually sells.

As y’all already know, I am trying to find my way to continue blogging because I really do love it, while working a full-time job, which I haven’t done in a long time. This process is afinding-my-way-text-893x1024 trial and error situation, but I am determined to make this happen! I know many people probably will never not fully understand this, but I find writing and blogging a great way to reduce any stress I am feeling. I think most of y’all already know that I battle with stress issues, but I am working to improve this. I think being a walking/talking stress case for 37 years is long enough and now it is time to change my ways.

I do believe that my new job is improving my stress because it is a wonderful place to work. Please know, I am working on getting caught up with reading and commenting on your posts, while also working on my own blogging thoughts. I appreciate all the encouraging words y’all have shared with me over the past weeks and I am looking 6a014e601f2a5b970c014e887a4cfb970d-600wiforward to getting back to a semi-schedule with my site.

I hope y’all have had a great day and I really hope you are feeling well. I am honestly struggling with some pain issues at the moment, but it is possible it is due to the rainy weather☔. I know it is going to be rainy for a few days with the hurricane heading towards Florida and even though I am a few states away from Florida, we are still expecting a lot of rain🌧. My body doesn’t appreciate or tolerate rain very well, but I am going to keep a strong hold on positive thoughts because I think that is important. In a matter of days the rain will pass and hopefully the weather will be calm!

I want to thank you for visiting my site this evening and I do hope you have a lovely evening! I will do my very best to respond to any of your comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love ❤ and comfort!

My signature heart

❤Always, Alyssa ❤

Never stop believing in hope!

hope-quotes-wallpaperI think in the world today, it can be very easy to give up hope. There does seem to be so much negativity and hatred surfacing daily, but not allowing these thoughts into our lives is possible! As long as we keep only those around us who offer happiness and nothing but optimism, we all could spread those emotions instead of negativity. If enough believe in love❤ and hope, we could out power the hate.

It could be easy for me or anyone else that lives with a chronic illness to want to give up any hope for a cure. Living with any illness that causes daily pain is without a doubt frustrating, hope-quotes-about-life-09especially when it seems to be never-ending. Being required to take numerous medications several times a day to slow any progression down, is not any fun! Making decisions of what the right medications are is like playing a game of Russian Roulette, you never know what the outcome is going to be. All of this takes determination to beat the odds and hopefully win the game of life!

Making decisions on what the right medications will be for yourself is extremely difficult. This takes having a lot of confidence in your choices. It also takes doing a lot of research on the medications to choose from. Since being diagnosed with Multiple hope seeing brightSclerosis 18 years ago, I have been on numerous different types of medications that are meant to slow the progression down. The first several were not right for me and I was able to move onto something different. The great thing is, none of the medications need to be permanent if they do not work well with your body chemistry, you are able to keep moving on with something else. This process was frustrating for me, but I never gave up hope that something would work well for me. Thankfully, I had a very understanding and tolerant doctor during this time which helped me make the best decisions!

I want to share a blog post from a fabulous fellow blogger❤ with y’all. Jenny at https://trippingthroughtreacle.com has lived with Multiple Sclerosis for many years and still keeps up her fight! I always find everything Jenny shares to be beyond amazing and she continues to give me hope for better times. I want to share with you her recent post because it was so brilliant and very informative https://trippingthroughtreacle.com/2018/09/07/multiple-sclerosis-and-its-symptoms/#comment-1981. This post alone will make you want to read even more of 2-19-life-1024x792Jenny’s posts!

As difficult as life gets, we all have the choice to hold onto HOPE! If we continue believing, HOPE will never die! We have a choice to challenge the potential for continuing to better ourselves and even all around us. 

Thank y’all for visiting my site this morning. I always appreciate your support and love to read your comments! I hope you have a wonderful Tuesday and you are feeling well! Please never forget that I am always sending y’all LOTS of love❤ and comfort!

My signature heart

❤Always, Alyssa❤