Good afternoon y’all! I hope you are having a good day. I did not do any posts yesterday because I was processing the update I did finally receive from my Neurologist. Although I did not expect good news, I do not think I was prepared for what I heard.
Thankfully, my husband did come to my appointment with me to the Neurologist yesterday. The doctor went over my MRI results, from Saturday’s MRI. There was not any good news during this appointment. The doctor explained, that there is a tremendous amount of new and active activity on my brain and a large lesion on my spinal cord. She actually told us, that my MRI was one of the worse she has ever seen. Talk about making a patient feel better in any way, this was not a good way to do it! She then carried on about how the Tecfidera, that I decided to changed to about a month and a half ago, was not strong enough to control my disease. She went on to explain things she thought I need to switch to. One of which is completely out of the question, considering it was just released and I am not comfortable with this. I made the decision to go back on Gilenya. Moving forward, she has ordered an incredibly high dose of steroids, to get my inflammation under control and adjusted some of the other medications I was prescribed. She has also written me out of work for the next week, so that I can get plenty of rest and heal. I still do not understand fully how I can have this much activity, in such a short amount of time and she could not explain any of it.
As I said, I did expect to hear that the MS was active, but I did not think it had gotten that bad. Of course, I am scared about what the future holds now and honestly, it is so hard to be positive right now. Even though I do know steroids help the healing, I really hate how awful they make me feel. Steroids make me anxious, nauseous and really moody. Luckily, I am out of work so I do not have to be in contact with people, which is probably the best idea the doctor had.
Now, do not get me wrong, I am glad I have answers, I just wish there was better news somewhere in the mix. I will continue to keep you posted as to what is going on and when I am feeling better. I am hoping the healing process will be a quick one. If you have any comments, please feel free to leave them and I will respond as quickly as I can. There is a chance that I will do another post later with explanations on healing from a flare up, but it depends on how I am feeling. I hope you have a good day!!