I hope y’all had a good Monday! I just want to take a moment to explain what it means when a MS patient says they are having an exacerbation, also known as a flare up. An exacerbation is caused by inflammation in the central nervous system. This inflammation can cause damages to the myelin, which slows or disrupts the transmission of nerve impulses.
Over my 16 years of dealing with MS, I have had a several flare ups that have lasted anywhere from a few days to a few weeks. Some of these have definitely been worse than others, whereas some have been very mild. My experiences with symptoms have been: loss of vision in one eye, numbness and or tingling in my legs, feet and or hands, horrible pains throughout my body, dizziness and stumbling at times when I try to walk. Yes, all these issues can be frustrating and terrifying, but they are normally not permanent.
When a MS patient explains to their doctor what they are dealing with, the doctor may schedule a MRI to see if there is any new and or active lesions. Once the results are read, if there are new and or active lesions, in my experience, the doctor will typically order steroids, either oral or by infusion. Steroids are meant to decrease the inflammation that the patient is experiencing, therefore speeding the duration of the flare up. Now, for me steroids may help my inflammation but they also cause me to feel irritable and loss of appetite, which is not what most experience.
After the doctor reviewed my most recent MRI, that was on Saturday, unfortunately, I am having a flare up right now. Even though I did expect this, it is still hard to hear those words. It sounds crazy to be disappointed when you are right about something, but I really am and realized that sometimes, I really hate being right. I had just about convinced myself that my back was hurting because I have been sitting too long, trying rest and that my legs were feeling like they do, because of a limited amount of activity, but was declared wrong today. I do have an appointment with the Neurologist tomorrow to discuss my results in more detail, and to discuss a treatment plan. My husband is going to be coming with me so he can be there not only to hear first hand what the doctor says, but also because I will need moral support. Yes, this appointment is with the doctor that on Friday did not have any appointments available until December. Considering she has created an appointment with me, scares me into thinking this is more serious than I am thinking, but we will see.
I hope you have a great evening and thank you for reading my post! I hope this was informational and I will continue to give more information about what I am dealing with through this week! Please feel free to leave comments and I will respond as quickly as I can, I do enjoy the communications!