Well, today is day 2 of the high dose of steroids. It has been a long time since I have had to take such a ridiculous amount, but I am doing my best! I remembered from the last time I was on steroids how horrible they make me feel, and my goodness my memories were so correct! I literally feel so irritable, can not sleep, can not taste anything and have NO appetite at all. I really am doing my best to rest and stay positive, despite all the negative feelings I am really having. The negative attitude must be coming from the steroids, because I am normally a positive and happy person!
So far, I have not noticed a dramatic change in my pain levels, but I am sure it will happen. I know the steroids are meant to reduce the inflammation I am dealing with, it is just going to take time to run its course and I need to be patient. It really is amazing, I do not know if it is the steroids or the new lesions on my brain, but I am having the hardest time focusing.
I am going to be really honest, this flare up has been really hard on me and heartbreaking at the same time. But truthfully as hard as it has been, I am never going giving up. I believe that no matter how difficult of a time you are going through, you have to try to think positive. The more negative you think, you will never get well! I know it is so hard to think positive when you are struggling, but it is so important to find something easy to do that makes you happy! For me, writing helps bring positive to my life. I am so hopeful that what I write helps someone who is dealing with something similar.
Thank you for reading my post for today and I really appreciate any comments you may have, I do always respond as quickly as possible. Also, please feel free to email directly, as I love the communications we have. I really want to help as many people as possible and learn from y’all as well. I hope you have a good evening!!