Multiple Sclerosis is a very complex and frustrating battle to face. Unfortunately, this illness does impact everyone’s life in so many different ways and to the point it’s almost hard to pinpoint what is what! There have been various names people choose to use when referring to MS; such as the snowflake disease or invisible illness. I think these terms can also be used in many other chronic illnesses as well because they are fitting. I mean if you think about it, there are no two snowflakes that are exactly the alike, just like no illnesses experiences the exact same symptoms. Also, there are so many of these illnesses that are completely naked to the eye, so they are pretty much invisible in the bigger picture.
Let me ask my wonderful fellow bloggers, whether you live with MS or know someone else that does, what do you already know about this not so fun illness? Honestly,I think the only thing everyone knows to be 100% true is this illness can vastly differ for each individual! There might be times throughout the years each person with MS will unfortunately have a new symptom emerge and they need to learn to cope with this. While no one wants to deal with anything additional and all symptoms can be daunting, there really are always ways to carry on with life!
I know there may be countless responses to this, but what are your top 5 most challenging issues you have been forced to accept during your journey? One thing I find very challenging and the most aggravating is how completely unpredictable this illness is. I have and probably always will be an obsessive planner! It drives me crazy for any unplanned issues to appear without any warning! Over the years, I have learned to expect the unexpected and be willing to rearrange my plans.
Another part of my MS life I find challenging, but am learning to accept is there are NEVER any real answers for the numerous questions I ask my doctor. I would have never thought my questions were so difficult that my specialist can’t answer them. I mean these doctors go through enough schooling they should have a wealth of knowledge to match this. I am sure the schooling for many years is very expensive and probably more money than I will make in MANY years! Maybe while in school they should have a class in good bedside manner because most neurologist have a terrible personality. I think they have a godlike and ego maniac demeanor.
The third challenging aspect of this life that I have almost accepted is, the complete ignorance and total lack of empathy most people have for others. The ugly glances and degrading comments I have seen and heard over my years, especially when I park in a handicap parking space are nothing short of hurtful! Even though I have lived with this for many years, these glances and comments still can bring me to tears. This really doesn’t have anything to do with me, but is all on them! These people probably believe that misery loves company and try to bring me down to their level, which I try to avoid!
It doesn’t matter how long I have struggled with this illness, fatigue still tries to kick my butt daily! It was always complicated for me when I was working full-time because it never failed at about 1:00 or 2:00 if I am lucky I was exhausted! I have accepted this issue and try my best to conserve my energy so I am not ready for a nap at lunch time!
Lastly and to keep this from being too terribly long, the final challenging thing for me to accept is the constant pain I feel. It often seems like I am going to always to battle with pain and with little to no relief. I do know that dwelling on this pain only causes the pain to worsen instead of lesson and this just isn’t an option for me! I do try focusing on the positive in my life instead of the negative hoping these thoughts will trick my body into healing! I also believe acceptance is half the battle and can help keep my stress in check which will in-turn lessen the pain.
I would like to thank y’all for stopping by my site today. I told y’all on March 1st that for MS Awareness month I wanted to shed more light on this illness because knowledge is power! I am looking forward to reading your comments and do hope this was helpful for you!
I hope you have had a good week and of course hope you are feeling well. The weekend is finally here and I hope you enjoy every moment of it! Please never forget that I am always sending y’all LOTS of love , comfort and many positive vibes!