Good morning Y’all! I hope you have an amazing day!! I wanted to take a moment to share what life is like living each day with Multiple Sclerosis. It obviously is not all sunshine and rainbows, there is so much more to it!
I have lived with Multiple Sclerosis for almost 18 very long years and this illness is still a mystery to me! I mean for some the cold makes them feel much better, whereas for others it makes them feel absolutely horrible. Some feel a little better with warmer temperatures and others it takes away all their energy and makes them feel terrible. There is no right or wrong, it is all based on each individual person!
My doctor always told me that the heat is the worst thing for me and that might be true in a sense, but the heat does not bother me near as much as extreme humidity!!! Of course the heat causes me a lot more fatigue, but it does not cause the increase pain that cold weather does. I actually swear by my friendly heating pad because it decreases my pain immensely! I might live in the city, but I am a beach girl at heart! I love the beautiful and relaxing sounds of the ocean waves. I think it is the only time that I am not full of stress and anxiety.
The cold weather on the other hand causes me nothing but extreme pain because I get so tense from being cold. Of course with cold weather you can put enough layers of clothing on to stay warm, but the chill that lingers in the air can be miserable. I did find an amazing solution for dealing with the frigged temperatures. They sell a heating pad that is mobile and no batteries needed. This fabulous product is called Thermacare Heat Wrap.
Living with Multiple Sclerosis comes along with a lot of decisions that need to be made and sometimes they need to be made immediately, which I am not all that great at. There are tons of diseases modifying medications available now and finding the right one can be quite challenging. Of course when I was first diagnosed there was a limited amount of choices, so I put ALL of my trust into my doctor. We soon found out that I am not one that can give myself shots. The funny thing is I do not have any fears of needles; it was the medication I was injecting myself with that I could not handle. The medication would cause me to feel like I had the flu and burned like fire going in. I did try everything possible to stay on the injection based medications, but I failed and just stopped without telling my doctor at first! After a few months, I did finally confess to my doctor and we had to figure out what I would be comfortable with and could tolerate. After several failed attempts, I did finally find the medication that worked best for my body chemistry. My goodness my doctor was a very kind a patient man, it really is too bad he had to retire! I do not think I will EVER find another doctor I will connect to as much as I did him.
Of course there are always more decisions that need to made because MS is a constant changing illness. Even after deciding on the disease modifying medication there seems to always be more medications that doctors think should be taken. I do believe that living with MS you have to be willing and able to alter your life when necessary. To me it does seem that the conditions with MS can change at any moment and without any kind of warning.
Over my years with MS, I have experienced vision loss (which I did gain back), intense legs pains, muscle spasms throughout my entire body, fierce back pain, persistent headaches and some memory loss at random times, which is a little unsettling. But through it all, I have never truly given up. Of course I have had some massive frustration issues, but I will NOT let this illness to defeat the strong person I know I am. I am very determined to remain as strong as I possibly can, but I also want to help others hold onto their optimism. Y’all know that I am a very strong believer in the fact that positive thoughts will bring positive results. I honestly believe that it takes a lot more energy to be negative than to just be as positive as you can!
Thank y’all for visiting my site today. I hope y’all enjoyed my thoughts on my life with MS so far and of course I will appreciate any comments you have. I do promise to respond to all comments just as soon as I possibly can. I hope y’all have a wonderful Wednesday! Thankfully we are half way through the week and the weekend is coming up soon. Please remember that I am always sending y’all LOTS of love and comfort!
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