For many years now, one of the most consistent parts of my life has been the pain issues. Living with pain 24/7 is not easy but most pain I can deal with. I suppose I have learned how to continue living my life, despite the pain because I have realized it was not going anywhere. Over the years, there have been several frustrating things I have encountered when I would say, “If you can’t beat them, join them.” There are no ways to join the pain, so acceptance is the next best thing to do.
Regardless of how I have learned to live with pain, there is one type I am unable to tolerate. Everyone handles pain differently, but for me, head pain is the most unbearable. Unfortunately, headaches are something I have endured long before I was diagnosed with Multiple Sclerosis. One of my first memories of having a headache was as a child. A little girl in kindergarten getting off the school busy with so much head pain I was on the couch all night unable to move.
The painful truth about headaches is, they seem impossible to get used to. All I can do is lay down in a dark and quiet room with an ice pack on my head waiting for the pain to lessen. Every headache I get is a miserable experience that I would not wish on anyone, even my worst enemy.
Since Friday evening, I have been battling with a sinus/migraine. A normal sinus headache or migraine are bad enough on their own, but to gang up on me was just evil. Nothing was helping to ease my pain. I tried an ice pack on my head, but it continued to get too warm. I took Excedrin, Advil, and Sudafed, but it refused to ease up. This double hit of head pain caused me to feel nauseous and dizzy. After staying on the couch with my cats trying their best to make me feel better all day yesterday, I am finally somewhat better today. As I write this post, I am still dealing with the head pain, but I can tolerate it much better now.
Several years ago, when I was getting these nasty migraine/sinus headaches on a regular, I tried going off the Gilenya that I take for Multiple Sclerosis. I had known that sinus issues were a side effect of Gilenya and thought if I went off the source, the sinus headaches would stop. Of course, my doctor advised against this, but I was so sick and tired of the sinus pain, I was willing to do anything to put a stop to it. Unfortunately, going off the Gilenya for a short amount of time caused the MS to get worse and I ended up with additional lesions.
I made the decision years ago that I would rather endure the head pain rather than allow the MS to get worst. Gilenya has been a saving grace because it has slowed the progression of the MS and that means more to me than not having head pain. Yes, I do get sinus and or migraines weekly, but at least my MS is not progressing and putting me in a wheelchair. NO, being in a wheelchair is not the worst thing that could happen, but it is something that I have been terrified of since being diagnosed with MS when I was 19 years old. I will continue to fight the MS with everything I have and if that means dealing with the head pain, so be it!
Thank you for visiting my site today. I hope you are having a great and safe weekend. I am sure y’all have heard that COVID numbers are increasing again, so I hope you are either already vaccinated or plan to do so soon! I would love to read your comments on what I have shared today and promise to respond to all comments as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Reblogged this on Survivors Blog Here Mental Health Collaborative .
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Gosh so much pain you have to deal with. You are so strong.
Belated Happy New year.
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I agree that headaches are the worst!! I also deal with pain on a daily basis; it is kind of a background thing for me now and I rarely focus on it. Headaches are so bad there is no way to not focus on them. I also have ended up on the couch unable to move, but luckily not recently. Hugs!
I have a humidifier in the bedroom to help with my sinuses; is that something that might help you? I also waterpic with warm saline solution to help control my trigeminal neuralgia – is there an equivalent treatment for sinuses? I completely understand how desperate you must feel to get this under control. I am so sorry that you have to deal with the balancing act of debilitating symptoms vs. life altering medications. Ugh. No one deserves this!
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