I recently had to deal with my specialist’s office, in regards to the medication I take to limit the progression of my Multiple Sclerosis. Since the doctor that diagnosed my condition retired, the office he was at has been on a downward spiral. The amount of incompetence and lack of compassion are the only things that are steadily increasing, which is terrible.
Whether it be a nurse, nurse practitioner, or physician, they all should know how awful stress is for someone with Multiple Sclerosis. Being forced to battle with a nurse with a terrible attitude to get a refill for my medication caused me nothing but massive stress and frustration. This would have been difficult regardless, but when the nurse decided to be ugly the situation escalated unnecessarily. All I am trying to do is anything necessary so I do not have a nasty relapse, especially without insurance.
I know I mentioned in a post I did a few days ago, the flaws within healthcare in the United States, but with what I just experienced trying to talk to my doctor’s office makes it even more frustrating! For a country that has insanely high costs for health insurance, you would think patient care would be top-notch, but it is the direct opposite.
The medication I take to slow my progression down is Gilenya. I have been on this same medication for a long time, so I know the processes and the ridiculous out of pocket with NO insurance. Honestly, I do not believe any normal person could afford this medication and I definitely can’t.
Basically, I guess I am not in the right tax bracket to be able to have insurance that I can afford or at least affordable medication to keep my condition at bay. Maybe I also missed the tax bracket where kindness, respect, understanding, and empathy exist. I feel strongly that health insurance should be a RIGHT, NOT a PRIVILEGE, but surprise the powers that be don’t agree with me. I do not think anyone should have to worry about how they are going to survive without insurance and without access to life-altering medication.
First, thank you for taking the time to read this post. Second, I hope none of you ever have to go through anything like this. Third, I hope your weekend has started off great and continues to bring you happiness. I do want to encourage you to leave a comment; I definitely need advice on how to deal with the ignorant people at my specialist’s office. Lord knows I can’t take too much more, especially if it is just going to be a bunch of bull shit!
I hope you enjoy every moment of your weekend and hope you feel great! Please never forget that I am always sending y’all LOTS of love , comfort, and many positive vibes!