I am so frequently hearing about invisible illnesses now. What does that really mean? Fibromyalgia, Multiple Sclerosis, Rheumatoid Arthritis, Chronic Fatigue Syndrome, Depression, Diabetes and Digestive Disorders are just a few illnesses that have been labeled as invisible illnesses. I have Multiple Sclerosis and yes, for the most part it is invisible because no one can see the pain or any other issues that I am dealing with. I do think the most frustrating things I hear are: “You do not look sick”, “Have you tried vitamins?” and the classic “There must be a cure for it.” I want to believe these comments and questions are not from ill intent, but from those that just do not understand.
Honestly, I think the reason why the label of “Invisible Illness” brings many questions to my mind is because most illnesses are invisible. Why does someone need to have skin rashes, walk with assistance of a cane or walker, require a wheelchair or be attached to an IV to be sick? There are many people out there that may be battling cancer, well that is not really seen. Or what about those that deal with Chronic Sinus problems which is also not seen. They may have a running nose or watery eyes, but no one pays attention to that.
We can even take this a step further! What about people who are HIV positive or even have AIDS? These illnesses are not normally seen unless there has been extensive progression, which may cause rashes, sores and or lesions. You could be walking through the mall and pass several people who suffer from HIV or AIDS and you would not know it because at that moment, it is invisible.
What about people who suffer from Migraines or Chronic neck and shoulder pain? Now for the most part this person may look and act completely normal, like they do not suffer from extricating pain several other days of the week, but the fact is they do suffer in pain! During the times when this person does not have a Migraine or shoulder and neck pain, this would in my opinion be an invisible illness, but please tell me if I am wrong.
I do not mean for anything I said to not show credence for our issues, but I would like to be able to acknowledge all the other illnesses that are not visible to the naked eye. I guess I just do not believe those that are dealing with Migraines or other pains should not be included into an invisible label. Statistics state that 2-3 million adults in the United States suffer from Chronic Migraines and 90% of them are forced to miss work because of this issue. As far as I know, Migraines are not in the invisible illness bubble but really should be. Migraines can be completely debilitating and just miserable!
I believe that there is a huge difference between sympathy and empathy. We never really know what another person is going through in their lives, so the best thing to do is always be kind to everyone! We may meet someone who has just been diagnosed with a chronic illness and they are completely devastated, so something we say to them can either make their day a little better or even worse! Kind words can go along way in another person’s life. I always ask myself when I am talking to a new person, do I want to be a positive in their lives and make them smile or do I just not care enough to make a difference? I always choose to try to make a positive difference in everyone life because everyone’s feelings matter to me!
I appreciate you taking the time to visit my site on this rainy Sunday! I hope y’all had an amazing weekend and I hope you are ready for the new week to start tomorrow. I really do treasure the comments you make and I do always try to respond as quickly as I possibly can. I hope you are able to spend the rest of your weekend comfortable and relaxed. I did not want to forget to mention, the picture at the top, “I Don’t Look Sick? You Don’t Look Stupid. Looks Can Be Deceiving!”, is on a t-shirt that I actually have! I think it is a pretty great shirt, but some would probably disagree! Sometimes you have to add a little bit of humor to a bad situation! As always I am sending you lots of love and comfort!
Always, Alyssa
Great post! Thanks for the reminder that there are people who have invisible illnesses that aren’t ms.
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Thank you! I am glad you liked this post! I feel it’s important to raise awareness for all illnesses because they are all hard to deal with. I hope you are doing well and had a nice weekend!
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It’s easy to be too focused with MS. It seems to suck the color out and dimension out of life at times.
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I agree with you 100%! Living with MS, it is so easy to focus mainly on it. I am just trying to broaden my thoughts to take some attention off the MS!
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Reblogged this on Survivors Blog Here.
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Love reading your posts!
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Thank you so much! You have no idea how much that means to me!!
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You’re welcome! Keep it up! It will get me motivated also 😉
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I really hope that I am able to help you at least a little. I do understand it is hard to get motivated when we struggle with MS issues, but things will get better someday! Please let me know if there is anything I can do to help you!!
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It’s mutual! I’ve had RRMS since 01 and SPMS last year. Mentally still ahead a little but physically challenging especially since I’m not ready to give up walking yet.
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Honestly I never knew that RRMS could progress to SPMS until recently. Are you on medication for the MS? It is so incredibly important to never give up because I do believe positivity is powerful!!
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I got RRMS in 01 and SPMS last year. I’m a little ahead mentally but physically challenging and I refuse to give up walking till I have no other option. Will get over the hump soon.
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Continue to hold onto your positive attitude, it will help!! Please know I am here if there is anything I can do for you!!
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Thanks for your post.
I faced this a lot when I first got my service dog, Henry in 2008. Everybody wanted to know what was wrong with me. I thought for so long that my CVID, colitis and depression were invisible, because I tried so hard to hide the fact that I was sick. I was afraid of being rejected or fired from my job at the time. I didn’t realize that people knew something was wrong because my weight was very low and I had a gastrostomy tube that connected me to a portable backpack. I wasn’t fooling anyone, but they still didn’t know what was really wrong with me. When they asked about Henry, I just said, “He helps me.”
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You are very welcome!
That God for Henry! Service animals are so incredible! I think that animals can be very helpful and therapeutic. It always amazes me how people can be so nosey about something, but then in turn they do not try to be caring. I am SO glad you have Henry!!
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Great post!
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Thank you so much!
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Truthful post! If only everyone would remember that we all have invisible trials at one time or another.
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Thank you for this fabulous comment!!! I was honestly worried this post was going to come across wrong, but it seems to have registered with everyone and I am so happy for that!!!
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You make a really point about the extent of the invisible illness bubble. Thanks!
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Thank you, I am glad you liked this post!
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