Frustrating Friday!

Welcome Weekend 3Happy Friday Y’all! I hope everyone had a good week and is ready for the weekend! I have had a pretty difficult couple of weeks, so I am ready for the weekend! Now the truth is, my weekend started early as I did not go to work today. It is not all that exciting starting your weekend early, because you wake up in  extreme pain, feeling like you have been hit by a truck. I did not even get to sleep in because I felt so awful. But, I have been resting on the couch with my cats all day.

I am not so patiently waiting to hear about my test results from yesterday. The lab techPain that did the tests said, preliminary results would show today by 3pm. I really just want to know if all the increased pain I am dealing with is due to a simple infection or not. Infections are easily treated, whereas if this is something worse, I would like to know so I can deal with it! I for the life of me can not see an infection of any kind adding this much pain to my body. I think it is just mean to make someone wait so long for answers!

I think at some point in everyone’s life, they experience some kind of pain. Everyone deals with pain in different ways. Some people can just keep moving and not let it get them down. But other people, their pains are a little more difficult to handle and keep them in bed all day. My husband deals with severe neck pain, along with Migraines. I know from personal experience, pain that is closer to your head is unbearable. When there is pain in your neck and head, it can cause focus and vision issues. I truly hate Pain go awayseeing my husband, who I love dearly, in any kind of pain. I wish that I could take his pain away, so he can be comfortable. Literally, all you can do when you have neck pain that causes a Migraine, is lay down in a dark, quite room with an ice pack on your head. But who are fooling, even that can only do so much. I know that for me, laying flat can ease some of my back pain, but I can still feel that sharp feeling. Any kind of chronic pain is aggravating and you can start to lose hope that it is ever going to go away.

Considering both myself and my husband suffer with pain issues, I think we understand each other better. I can empathize with him when he is in excruciating pain, and he can empathize with me  with all I deal with. It is kind of ironic that two people who live with pain meet each other, and then get married. Talk about a match made in Heaven! As Compassion 2difficult as it can be when we are both in a lot of pain, it is good at the same time, because we can be compassionate for one another. I am not going to lie, I hate living in pain, but this is my life and I have to make the most of it. Even though I live in constant pain, I am blessed and thankful that I married an amazing man who understands me more than anyone else! Is it crazy to say that I both love my life and hate it at the same time? I love my life because I have wonderful family, that is so understanding. But, I hate my life because I can not eliminate pain from our lives.

I have a flame burning strong inside me, to never allow anything to control my life. I can not and will not ever allow Multiple Sclerosis to own me. I have the strength to live with MS because of the love I have from my family and the words echoing in my head from my Grandfather, “No matter what you are dealing with, someone else is always going Bad dreamthrough something worse.” His words resonate in my head when I feel like I can not handle this anymore. Yes, I wish I did not have to deal with this disease, but it is the hand I was dealt in life. Just because you were dealt a bad hand, does not mean you should fold. I will keep fighting through this life, until I can not fight anymore, which will be a really long time! Giving up and surrendering to MS, will never be an option for me!

I absolutely love doing this blog. It has relieved so much stress from my mind. Writing has and will always be my way of dealing with life. As you probably have noticed, I love adding pictures as well. This has not only been a huge stress relief for me, but it has been so much fun. I have made incredible connections with people, not just all over the United States, but all around the world. It is amazing to hear from people in other countries, with how they live. I feel like I have learned so much, which is absolutely fantastic! I have been able to get to know so many people on a personal level and been able to keep in touch with them. I think it is so important to be able to help others by using my own experiences, but also learn from theirs. My goal has always been to be able to not just encourage others, but inspire them with my positive and honest posts. I know sometimes they many not be very encourage 1enthusiastic, but I am being very real! I do not posses the ability to sugar coat anything, so everything I write it straight from my heart. I do not hide my feelings well.

I sincerely hope that my posts have been helpful for y’all. Please do not hesitate to reach out to me anytime if you need someone to vent to or even just ask questions. I appreciate all of your continued support and very kind comments. I hope you all have a great weekend and do something that makes you smile!!

Love 2

 

Always, Alyssa

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10 thoughts on “Frustrating Friday!

  1. While not an MS patient myself, there is an MS patient in in the same Pain Management programne I am a patient at. Like you, she is working hard to keep her life as valuable as she possibly can. I think she is also waiting to see if she has develooed more lesions. I am not sure what meds she is on.

    Best wishes in your battle.

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    • It seems like all chronic illnesses are very frustrating! Pain management can be helpful, but goodness it can only help so much. I have to go every 2 months to the pain management center just so they can keep me on my same medicine. It is a little frustrating because they do try to dictate what other medicines I can take. Like there are two given by my primary and they are saying I can’t take them. I sincerely appreciate your comment. I am looking forward to reading more of your posts. I hope that you find my blog a good read and helpful. Take care!!!!

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      • I think our Pain Management is different. We don’t use and pain medications at all. We have meds for our conditions, I have DMARDs for the RA, but the whole concept of our program is to get off and stay off pain meds and be self-sufficient once we leave the training.
        Yes, both my MS fellow student and I with RA are aware our conditions are different from the classic chronic pain model as we have ongoing progression. That provides additional challenges the patients with chronic pain remaining after an injury has healed don’t have.
        Your comment has made me realise overseas people may not understand what I mean when I talk about pain management in my terms. 😊 I may be confusing people!
        I can imagine your shock at your diagnosis. I know I was shocked but I think my condition can be controlled more easily than yours. I feel for you so much, Alyssa. None of these conditions are good, are they? I like your positive attitude! 😊

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      • Yes, my diagnosis was a shock. The states have good things about medicine and a lot of negative. Being self sufficient without pain meds is a lot better way to handle things.

        Thank you, I really try to maintain my positive attitude because negativity doesn’t fix issues.

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  2. Good afternoon Alyssa. Difficult couple of weks? Talk to me about it girl!Today I put a post up about misogyny at the workplace. Please read it and give us your enlightened opinion.
    Un baccione. Arrivederci!

    Like

    • I would love to talk to you about some of these things, but I do not really want some people to see it. It might have something to do with those that read my posts! I will check it out and let you know what I think!!

      Like

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