Just another painful Monday!

Monday 5Happy Monday! I hope y’all had a good start to the week. It is kind of funny saying, “Happy Monday”, when I know there is not one person out there that likes Monday. It is kind of a rude awakening that the weekend is over, and it is time to get back to the reality of our normal workdays. But, we survived it and hopefully will be home relaxing soon!

As y’all are aware, I have been battling a lot of pain for it seems like weeks now. I sent a message to the Nurse Practitioner today, regarding the medication she has me on that is supposed to help with neuropathy pain. Well, that medicine doesn’t help with anything but put me to sleep! I informed her that my pain is only escalating instead of decreasing. Of course, I didn’t hear back from her today. I am going to let her know ms 6whenever she does call me back, that I am starting to wein myself off of this medicine, as it isn’t helping. I do not want to be on so many medications, that I feel like an old lady in the mornings and evenings taking ALL my medicines. I would like to be on little as possible, and only those that are beneficial to me. We all have to be our own advocates with our healthcare, because doctors have so many patients, they do not seem to care as much as they really should. I am sure she will try to think of something to replace the one she has me on, but she better have a good reason, and I better feel comfortable with it or it isn’t going to happen. I will get through this pain, it is just going to take time and patience!

No one can see Multiple Sclerosis, we can only feel it. I mean, they can see lesions on an MRI scan, but you can not see it just by looking at someone. It was a struggle to get up this morning and get ready, because I could already feel that the pain was coming on fast. I only worked for five hours today, because I could not sit at my desk all day in pain. I know the people I work with do not understand what I am dealing with, and some just talk about why they think I left early. Pain 2Even when they do ask me questions, they can not understand the amount of pain I am in, and how much worse it is when I am at my desk all day long typing. I decided today, that it does not really matter what people think, or what they are going to say when I only work for five hours, it is more important to take care of myself. I am not going to push myself too far just to satisfy others. My work gets done, so I am not making anyone else work harder. All that really matters at work is, my manager understands and knows how hard I do work. 

In life, it is so important to surround yourself with positive and supportive people. The world has become so full of quick judgments, hatred, negativity and rude behaviors, that you can hardly go anywhere without experiencing at least one of these things. I remember not too long ago when I went to a store and parked in a handicap parking space, because I do have the permit, people walked by me making very hateful remarks. Just because I look perfectly normal to the naked eye, doesn’t mean that I do not suffer. It took every part of me to just walk away and not come back with an equally as hateful remark. But really surround-yourself-with-those-who-make-you-happy-quote-1what is that going to do, beside bring me down to their level. Instead, I walk away teary eyed and left the store shortly afterward. We can not let other people’s ignorance dictate what we do and when we do it. I do my best to only surround myself with people who bring positivity into my life. For those people that know me, I am a kind, compassionate and emphatic person, which I will continue to be so I do not become one of the hateful individuals in this world. I really want to always make a positive difference and encourage others to do the same. I know I can not change the world, but I can always be kind to people, especially those that need it. We do not know what hardships others are going through in their lives, and it is amazing what a smile or kind words can do for someone!

Here is a challenge for all of you and I really would love to hear how you feel afterwards. Next time you see someone out that looks as though they are having a really bad day, just simply smile and say to them “I hope you have a good day!” Or, when you are out at the mall and the person near you sneezes, say “Bless you.” People are really amazed at the kindness you have offered them. heart

Thank you for always reading my posts and making comments! I have really enjoyed the connections and communications I have had with so many wonderful people. I do always respond to your comments just as quickly as I can. I hope you have a great and restful evening! Y’all continue to remain strong and positive, as it will have a good impact on your life!

Love 2

Always, Alyssa

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10 thoughts on “Just another painful Monday!

  1. I believe people like you can in fact change the world by bringing positivity to others. A smile is contagious but so is kindness. Your small actions or even simply not feeding into those trolls giving you trouble for handicap parking, those things do change the world. ❤

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  2. As you know, I also have an invisible condition and I have spent most of my life worried that if I try to do something – a little light weeding in the garden, for example – people will think me a fake or that I am recovered and so will expect me to do more and more. Also, people think because I look well, I *am* well. On the other hand, there are people who judge me if I attempt to do things they think might make me worse, so I reined myself in. I changed my mind set and now choose to do whatever I feel like doing. My life has previously been controlled not only by my body but also by external forces. A powerful combination, but I fought back! 😊

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    • I am glad to hear you fought back! It is sad how judgmental people can be. People do not understand something that they do not have to deal with. It is really best to do what you can and love, not caring what anyone else thinks! Some people can just be so mean, or maybe it is just that they are ignorant. Either way, they should not matter one bit to us! It really is refreshing to hear of someone else that has fought back! I hope you have a great evening!! Keep fighting the difficult fight!

      Liked by 1 person

  3. I would like to understand this pain you keep mentioning. Pain from what?

    I appreciate your thoughts about MS as I to have the disease and have had it for nearly 30 years now.

    In regards to the “morons” out there, I don’t agree with that comment. In fact, I don’t agree with the overall outlook that people are “morons”. If you want to spread positive thoughts, then you need to think positive thoughts! Don’t think of people as dumb or unfeeling or all the other adverbs you have used in many of your posts. What these people are is uneducated. They know little if anything about the disease and so react in kind. This doesn’t make them any less a person than one who does have MS.

    If you want to change the world around you and do something positive for all MS people, start at work. Sit down with them and educate them about MS and the silent symptoms we all suffer through. Explain to them what your symptoms are and how difficult it is to actually still be out there working in spite of the fact that you have a disabling disease. Allow them to see that you are to be commended and not regarded as someone who is faking it or whatever they think you do.

    You set out a challenge in one of your posts about how to react to people who look at you with disdain. My challenge to you is to read what you write and then put it into action. It’s one thing to write “words” but it’s another to act those “words”.

    I am not in any way putting you down, however; I have read many blogs that are similar to yours and find myself turned off by them. You, I feel, have a good heart and want to do the right thing. It would be a simple matter for you not to judge people because they are uneducated about our disease. Instead, realize that they simply don’t understand and yes, perhaps they are too quick to judge, but I feel that you are judging as well.

    Keep writing. Writing brings out your subliminal thoughts and it’s a good read a day or two later. I often look back at what I’ve written and learn from what I wrote. That’s the magic of writing.

    Surround yourself with the magic of who you are. No need to enforce positivity. Being yourself is good enough and is a very positive thing. This is the gift you have to offer to everyone around you. Be the bright shining star despite what you’re going through and help lead the way for others.

    You can do it.

    Sincerely and respectfully submitted.

    Magdalena

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    • I understand what you are saying. I have taken the time to educate the people I work with about this disease but it honestly fell on deaf ears. I know I have been frustrated lately as I am sure you can understand, but I have also said that people are ignorant to this disease which is not meant to be an insult, they just do not understand. I can say I am ignorant to things like crime and hate, because I do not understand it.

      I do appreciate your words as I do understand you are trying to help me. I have wanted to be a positive influence on others and have received so many comments saying that I was. I am very real and honest about things. The people at work that I have explained things to and were friends, chose to not listen to anything I really explained. Instead, they have suggested I just quit my job and become disabled. For a 36 year old woman going through a hard time that was just hard to take it and respond the right way.I do not judge people who are no educated and I am not really judging those who I have educated, I am just really frustrated with the hateful words of people.

      Sincerely,
      Alyssa

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