Last Friday in October!

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butterfly weekendGood Evening, I hope y’all had a great Friday! Today was a beautiful day with the temperature being nothing short of perfect! The sun was shining and it was cool out! I love the weather in the fall!!

I ended up changing my follow-up appointment with the Nurse Practitioner at my doctor’s office, from Tuesday to today. The NP that I met with today was actually pretty fantastic. She listened to me and made good suggestions as to how to help my leg spasticity. She is also having the doctor extend my Short Term Disability until Wednesday. She does not want me to rush back to work after the flare up and also with starting back on the Gilenya on Monday. She told me that rest is very important right now. 

One thing the NP recommended to help with the leg spasticity is stretching exercises. She said it would be helpful to do stretches for 10 minutes in the morning and 10 minutes in the evenings. She shared with me that YouTube has a lot of stretching exercises, where you can watch videos and then try them. I have already found several, but I honestly do not know how to add a video to my blog. If any of you can tell me how to do this, I will be happy to do it in my next blog and really appreciate your assistance.  

As y’all know this flare up has taken a lot out of me, but I am still trying my hardest to stay positive. I told the NP that I saw today, how discouraging it was to be on Short Term Disability, when I am only 36 years old. She was very empathetic to my feelings and told me, it is nothing to be ashamed about. She understood that it can be a little discouraging to use those words, Short Term Disability, but said that I am doing what I need to do to take care of myself. I told her about a comment that was made by someone I had once Life Goes Onconsidered a friend, that I need to just quit my job and go on disability. I told her that comment really hit a sensitive part in my mine and had really hurt my feelings and kind of discouraged me. She reassured me that people say mean things like that because they really do not understand and because MS is like an invisible disease that only I feel, some might tend to make the assumption that it is all made up, but to just ignore comments like that. I do know she is right but it made me feel a lot better about things to have a medical professional not only acknowledge how I was feeling but also reassure me everything will be okay.

I hope y’all have a good evening and a fantastic weekend. Please let me know if you have any comments and I will be sure to respond as quickly as I can. Oh and please let me know if you know how to add videos to blogs. I am still relatively new at this, so I am learning as I go! Thank y’all for all you do not just for me, but for others that are on this blog and yourself. We have a very strong support system that really does blow me away! Take Care!!

Love 2

 

Always, Alyssa

 

13 thoughts on “Last Friday in October!”

  3. I’m glad to hear you had a good appointment with the NP! I hope the exercises help with the leg spasticity, and you’re able to enjoy your weekend 🙂

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    • Thank you so much! I am kind of surprised, I actually liked the NP. She was very sensitive, understanding and listened to me. For some reason my emotions are on overdrive tonight and I just can’t stop crying.

      But on the plus side, I hope that the exercises and altering the muscle relaxer helps this leg spasticity because it is almost worse than my back pain!!

      I really hope you have a great weekend as well and thank you so much for your kind comment!!!

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  6. Hi Alyssa, I’ve been without phone/internet at home since storm Ophelia (12 days), until yesterday but it’s great to hear the positive tone in your post despite the challenges you face!

    Words have power and can hurt us but the ultimate power is ours… to let those words or not let those words hurt us.

    It is not easy but it can help, to look at the issue only (and not the emotions they stir).

    Try to look behind the words, you may find the issue/problem is….

    The person is uninformed and possibly even unaware of how powerful and hurtful their words can be.

    They may be lacking in empathy/be self-absorbed.

    They may be struggling themselves and cope by being unkind to others.

    Don’t waste your time and energy…Look instead to the positive supports in your life!

    1. Share a youtube by clicking on the “share arrow/option” under the video
    2. A dropdown menu of options appear, click “copy link”. This will be copied to your clipboard.
    3. In your blog post, hold your finger down on your page and paste option will appear. Or right click on your mouse and click paste.
    Hope it makes sense…keep going at all costs! X

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    • WOW, I am so sorry about the storm you had to deal with. I am so glad you are okay! Hurricanes cause so much destruction. The one with had here a few weeks ago, Urma, was pretty bad.

      I am trying to stay positive because it really is the best option. I will never believe staying negative and giving up is an option!

      I know that most people that make rude and negative comments are uninformed, but the person that made the most hurtful comment I have heard in a while was a “friend” or so I thought, I had explained to her what MS was and even told her what my biggest fears were. She used those to hurt me.

      Thank you for sharing with me how to add a YouTube video. This made perfect sense!!!!

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      • I’m so sorry to hear how you were treated and hope you can put it behind you. Read back on some of your posts to observe the growth in positivity therein…I think you are learning lots from such challenging encounters!

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