Different types of Multiple Sclerosis

types_of_ms_chart_largeAs y’all already know, Multiple Sclerosis is a very unpredictable and for some debilitating illness of the Central Nervous System. With MS, the immune system eats away at the protective covering of the nerves. MS disrupts the flow of information within the brain and between the brain and body. Multiple Sclerosis does not discriminate and can attack anyone no matter race or gender, but it is diagnosed 2 to 3 times more often in women than men. Multiple Sclerosis does affect each person differently, so no single person even if they have the same type of MS will experience the same exact symptoms. With that said I would like to take this moment to give a description of the four different types of Multiple Sclerosis.

Relapsing-Remitting Multiple Sclerosis, (RRMS) is by far the most common form. This type is 80-85% the initial diagnosis of MS cases.  RRMS involves clear episodes of inflammatory activity and well-defined attacks of new or recurrent symptoms. The patient will typically experience partial or even full recovery between the episodes. Symptoms do vary between each individual, but some well know traits are: tingling and numbness, visual loss or changes in one or both eyes, fatigue, weakness and balance problems. It is important to know what your baseline is on all these issues so you can communicate any changes with your specialist.

Primary-Progressive Multiple Sclerosis, (PPMS) is another type that is less common. Ms_progression_types.svgThis type is composed of only 10-15% of all MS cases.  With PPMS neurological functions are impaired and become more significant as the disease progresses. Patients will experience occasional plateaus in the progression, but symptoms can also worsen with no relapse between them. There is less damage done to the brain with PPMS, but more damage done to the spinal cord. Symptoms that can come along with PPMS are problems walking, stiff legs and trouble with balance. Like I have already said, it is so important to know what your baseline is with anything to do with your health, so when there are changes you are able to communicate those changes with your specialist.

Secondary-Progressive Multiple Sclerosis, (SPMS) is actually the next stage of Multiple Sclerosis. I have already shared with y’all that I was diagnosed with Multiple Sclerosis when I was only 19 years old, so this year will make 19 years for me. Time flies because it feels like it was just yesterday when my specialist flipped my world upside down telling me I had this illness. Reports indicate that 50% of those with RRMS will develop SPMS within 10 years and 90% will develop in 25 years. SPMS is similar to RRMS, but may or may not involve the occasional relapse. Symptoms with this progressively worsen and may include bowel and bladder problems, weakness and coordination issues, stiff and tightness in legs, fatigue, depression and problems thinking.

MS SymptomsProgressive-Relapsing Multiple Sclerosis, (PRMS) is progressive from the beginning.  With PRMS there will be clear and acute relapses with and without recovery from the damages. The illness will continue to progress between relapses. Symptoms that are associated with PRMS are muscle spasm, weak muscles, chronic pain, vision changes, dizziness and decreased bladder functions.

All those years ago when I was first diagnosed I did a lot of research on Multiple Sclerosis. Now it was a long time ago, but I do not remember reading that RRMS can possibly progress into SPMS in a matter of time. Sadly it was not until recently I learned that I did not know everything I should have. It was not completely my doctor’s fault for not sharing this with me, it was mine for not learning and or remembering this information. Talk about being a little shocked when I found out it does not necessarily matter if I take the medication I am supposed to in order to slow the progression down. This illness has a mind of its own and can progress no matter how hard you fight it. Maybe that sounds a little negative, but I guess the truth is reality is not always positive. 

I know many of you already have a lot of knowledge regarding Multiple Sclerosis, but I have a goal to raise awareness for everyone! This is an illness that crept its way into so many lives, completely uninvited and just will not go away. I want to believe that fight for a curesomeday there will be a cure and our lives will improve drastically. I look forward to the day that I am not dealing with massive amounts of pain, headaches, numbness, that annoying tingling feeling and vision issues. Until that day comes though, I will continue to live my life and enjoy it as much as possible. I will continue to do my best to help and motivate others that are struggling with illnesses and other issues in life. I want to be able to bring positivity into the lives of others to combat the world of so much negativity. I would love to believe it only takes one person to change another person’s  life!

I hope y’all are enjoying your weekend and feeling well! Again the weekend went by pretty fast, but I was able to get my hair done and some cleaning done in my house, which was a fantastic feeling! It is so helpful being able to take short breaks in between cleaning the house because if I didn’t, it would make me feel absolutely horrible with additional pain!

Thank you for visiting my site today! As always I would love to hear your comments on what I have shared. Being able to read your comments and respond builds a great and supportive network that we all need. I hope the rest of your Sunday goes very well and you are able to rest up for the week ahead! Sending y’all much love and comfort!!

Love 2


Always, Alyssa


Winter in the South!

closedHappy Wednesday Y’all! It has actually snowed in the south, which closes everything down! I am definitely not complaining since my office was closed today, but will it close again tomorrow due to the icy roads we will have? I do believe it would be the logical and safe thing to do, I just wonder if they will see things the way I do!

I am not a huge fan of the cold weather as it does cause me so much additional pain, but it was really pretty to wake up to see snow falling! The snow has blanketed the cars and ground which is a beautiful sight, as long as I do not have to go out in it or try driving in snowdayit! I am not saying I can not drive in the snow, but my car does not see things the same way I do. However, I do not believe anyone can drive in the ice, which is what things are going to result in tomorrow!

I do believe we have one good snow fall every year! Considering I did grow up in the north a couple of inches would really not mean too much but it does in the south! The south does not see much snow, so I do not believe we have the necessary equipment to handle much if any!

Yesterday I kept saying we were going to have snow today and I do not think anyone believed me! I even sang my made up snow song in hopes for the snow and it worked! Maybe I need to make up another song for my office to be closed tomorrow, so I do not have to try to drive with icy conditions!

Just to give y’all an update on how I have been feeling physically. I have noticed that I do seen better daysstart feeling much worse as the day progresses. My pain and headache issues will be fine in the morning until about 2:00 in the afternoon, but then everything starts to come back. I will slowly start to get a headache and my back and leg pain will hit me hard. This would be the reason why I am not back to my normal full-time hours at work yet, my body just can not handle it. I really am hoping that someday soon I will be back to as normal as I can be and work a full day. Prior to my most recent flare up I could easily work 8 or more hours a day and be fine, but now after 6 hours I am in bad shape. I have been trying to push myself a little further each week and now I am working 7 hours, which has been working fine. If I am able to come home and rest comfortably my pain will subside some! 

I hope y’all are having a good week so far! Thank you for stopping by today to read my thoughts for this fantastic Wednesday! As always your comments are very much appreciated and I will respond to you as quickly as I can! Remember to always do your best to stay positive because y’all know I believe it make dramatic difference in life! I hope y’all are feeling well today and stay feeling well! Sending much love and comfort to all of you!

Love 2

Always, Alyssa

Last Friday in October!

butterfly weekendGood Evening, I hope y’all had a great Friday! Today was a beautiful day with the temperature being nothing short of perfect! The sun was shining and it was cool out! I love the weather in the fall!!

I ended up changing my follow-up appointment with the Nurse Practitioner at my doctor’s office, from Tuesday to today. The NP that I met with today was actually pretty fantastic. She listened to me and made good suggestions as to how to help my leg spasticity. She is also having the doctor extend my Short Term Disability until Wednesday. She does not want me to rush back to work after the flare up and also with starting back on the Gilenya on Monday. She told me that rest is very important right now. 

One thing the NP recommended to help with the leg spasticity is stretching exercises. She said it would be helpful to do stretches for 10 minutes in the morning and 10 minutes in the evenings. She shared with me that YouTube has a lot of stretching exercises, where you can watch videos and then try them. I have already found several, but I honestly do not know how to add a video to my blog. If any of you can tell me how to do this, I will be happy to do it in my next blog and really appreciate your assistance.  

As y’all know this flare up has taken a lot out of me, but I am still trying my hardest to stay positive. I told the NP that I saw today, how discouraging it was to be on Short Term Disability, when I am only 36 years old. She was very empathetic to my feelings and told me, it is nothing to be ashamed about. She understood that it can be a little discouraging to use those words, Short Term Disability, but said that I am doing what I need to do to take care of myself. I told her about a comment that was made by someone I had once Life Goes Onconsidered a friend, that I need to just quit my job and go on disability. I told her that comment really hit a sensitive part in my mine and had really hurt my feelings and kind of discouraged me. She reassured me that people say mean things like that because they really do not understand and because MS is like an invisible disease that only I feel, some might tend to make the assumption that it is all made up, but to just ignore comments like that. I do know she is right but it made me feel a lot better about things to have a medical professional not only acknowledge how I was feeling but also reassure me everything will be okay.

I hope y’all have a good evening and a fantastic weekend. Please let me know if you have any comments and I will be sure to respond as quickly as I can. Oh and please let me know if you know how to add videos to blogs. I am still relatively new at this, so I am learning as I go! Thank y’all for all you do not just for me, but for others that are on this blog and yourself. We have a very strong support system that really does blow me away! Take Care!!

Love 2


Always, Alyssa


First Day Back!

Back at workI hope y’all had a good day! Today was my first day back at work. I was actually welcomed when I walked in with hugs by a few amazing co-workers. I will be honest, I was supposed to work 8 hours but after 5 hours, I was in too much pain to keep going, so I went home early. I guess we will see if I can make it a little longer tomorrow. It was a good first step and I tried which is really all I can do.

When healing from a terrible flare up, it really is best to walk before you run. Pushing too far while healing,  will only set the healing process back several steps. Luckily, my doctor and manager agree with me on this. My doctor has actually written me a note for work indicating that my hours will need to be adjusted as needed until the flare up symptoms are gone, which will hopefully happen soon. 

Even though I only worked 5 hours, I am exhausted. It was really difficult having to sit inBack to work one of those uncomfortable work chairs, when I am used to being able to sit on my comfortable couch. Work would be so much easier, if only I could just work from home. I would be able to get twice as much accomplished in half the time, while actually not being in excruciating pain.

Monday, as I already told y’all I will be starting the Gilenya again. I also have a follow-up appointment with a Nurse Practitioner at my Neurologists office on Tuesday morning. I guess they wanting to see how much progress I am making after the flare up. I am honestly glad that I do not have to see my actual doctor, I tend to feel more at ease with the NPs. 

Tomorrow is a new day for me to try again at work! I am not going to be too hard on myself, so if I am not able to make it 8 hours, that is okay. Of course my mind says I can do it, but my body keeps screaming at me saying “NO MORE”. I have to be patient and relax butterfly 2listen to what my body tells me, it is the only way to get back to normal.

I hope y’all have a nice and relaxing evening! I know I always say this, but if you have any comments please feel free to leave them and I will respond as quickly as I can! Thank you for y’all for all the positive vibes you sent my way for today!!!

Love 2


Always, Alyssa


Plan of Action!

Happy Tuesday 2I hope y’all are having a good evening! I did not return to work today as I thought I would, but I do have a new plan. I discussed my plan with my boss this morning and he agreed to allow me to adjust my work hours for the rest of this week, I will be working 10-6. Mornings have been significantly harder for me, which is crazy because I have always been a morning person. Hopefully this mild adjustment will help gradually get back into the flow of work. I do not plan to over do anything because I will then be back in a bad situation.

No one can say for sure if this flare up happened because I decided to switch my medication from Gilenya to Tecfidera or if there was another reason for it. However, my doctor did tell me several times that Tecfidera was not strong enough to keep my MS under control, which maybe she is right. I am going back on Gilenya starting Monday October 30th. I do need to go through the 6 hours of observation again, but a doctor is being sent to my house to do this, which makes things a little easier. Last time I had to sit in a room with several other people for 6 very long hours and it was not very comfortable. Hopefully once back on the Gilenya my MS will be under a little more control. Besides going back on Gilenya, I am learning to keep my stress under control. Stress can cause so many issues for everyone, not just those with MS.Butterfly hope 

I am not really sure why but I have had a headache for days now. It will ease up for a short amount of time, but then it gets so bad I can not even see straight. I am wondering if these headaches have something to do with the steroids I was on. Hopefully my body will continue adjusting and these headaches will stop. I do unfortunately still have a lot of pain in my mid to lower back and I have numbness in my legs. But, like the headaches hopefully this will end as well.

I hope you have a great evening! I will let y’all know how my first day back at work goes tomorrow. I am so glad I was able to adjust my hours and do not have to be there until 10:00! As always if you have any comments please feel free to leave them and I will respond as quickly as I can! 

Love 2


Always, Alyssa


First time trying Yoga

yogaHappy Tuesday Y’all! I have been thinking about doing Yoga for a long time but never knew where to start. Well after receiving several suggestions from my fellow bloggers and a slight kick in the butt from another blogger, she knows who she is, I did my first 20 minutes today. I first watch two videos by Rodney Lee then did them along with him. It is definitely going to take some getting use to, but I think this was a step in the right direction. 

yoga catTo start with I am planning to do Yoga three times a week. I am going to try some of Rodney Lee’s other videos. Considering I do have a lot of back and leg pain I think it is smart to start off slowly so I don’t burn myself out or cause more pain, but I am going to continue with this journey. I really need to get my body used to doing these moves as I think it might have been a shock to my system. I am fairly active in the winter months as I am a decent snowboarder. I am by no means a pro but I can hold my own out there!

yoga cat 2I want to thank all of you that gave me the great suggestions and those who gave me the push I needed to actually stop thinking about it and just do it! I am sure it will get easier each time I do my exercises. If anyone has watched any other Yoga YouTube videos that you found to be a good experience, please let me know. Again, thank you all for all your great comments! I hope the rest of your week is great!


Always, AlyssaHope for cure