Fatigue & MS

F_MSI do not know about y’all, but I definitely find myself feeling a lot more fatigue daily! Of course I do get up extremely early for work and I also tend to get up way too early on the weekends as well, but I just can not seem to help it! About noon each day I find I am struggling to keep my eyes open and stay focused on my work, but it does tend to lessen if I take a break and rest. Of course on the weekends I can take a nap if I need to, but unfortunately I think my boss would frown on that if I took a nap at my desk! I guess it is a good thing that I am not working a full day right now and it seems like 6 hours is long enough for me currently. I am sure over time, I will increase my hours again!

Fatigue is one of the most common MS symptoms and occurs in 80% of MS fighters. There have been studies suggesting that changes in the brain caused by MS may require patients to use five times more effort to complete simple tasks than those without MS. MS FatigueFatigue can significantly interfere with the ability to function both at work and home and is one of the primary causes of early departure from the work place.

There are numerous things that can cause sleep disturbances. Bladder dysfunction may result in nighttime awakening, which of course affects our sleep. Nocturnal muscle spasms also can contribute to sleep deprivation. Muscle Spasms are so incredibly infuriating  and in my experience nothing seems to help them! There is another type of fatigue known as lassitude which is unique to those living with MS. Isn’t that nice that researchers are coming up with additional special treatments for us?! Lassitude is a state of physical or mental weariness; lack of energy. Researchers are beginning to outline the characteristics of lassitude or “MS Fatigue” to make it different from fatigue that is experienced by those without MS.

  • Typically occurs on a daily basis
  • May occur in the early morning, despite having a restful night’s sleepFatigue & MS
  • Normally worsens as day progresses
  • Aggravated more by heat and humidity
  • Comes on easily and suddenly
  • Generally more intense that normal fatigue
  • Tends to interfere with daily responsibilities

 

What are some ways to manage fatigue?

  • Occupational Therapy can assist to simplify tasks at home and at work
  • Physical Therapy can help learn energy-saving ways of walking and performing daily tasks. Physical therapy can also help develop a regular exercise program
  • Psychological Interventions include stress management, relaxation training and even support groups
  • Heat Management to develop strategies to avoid overheating and to cool down. With summer right around the corner, this is extremely important as all heat does is destroy any energy we may have!

MS Fatigue 2So let me ask y’all a question about fatigue. If you experience this, does it happen daily or sporadically and what do you do about it? Of course I love to write and read, but sometimes I find it hard to stay focused when reading because I get this sudden feeling of horrible fatigue. I am too stubborn though to know it is probably time to close the book and just rest!!

Y’all probably already know I normally do not do two posts a day, but the first one was for the fun challenge and this one is because I had already started it and wanted to be able to read your comments about fatigue. I always appreciate you taking the time to visit my site and I really enjoy reading your thoughts on specific topics. Also, I always respond to all comments as quickly as I can! I hope you had a great day and I hope your evening is nice and relaxing! Sending y’all lots of love and comfort!

Love 2

Always, Alyssa

 

Advertisements

Dreary Sunday

Well spent SundayGood afternoon Y’all! I hope you have had an incredible weekend! I do believe it is important to live each moment to the fullest, as we do not know what tomorrow may hold for us. I am not saying to dwell on what could happen, but love others and life-like tomorrow does not exist, so there is not anything to regret! No one wants to live with the feeling of regret!

Do y’all do anything special on Sunday in preparation for the week ahead? Is Sunday your day to catch up on rest or get everything done you are not able to do during the week? In the past, I made Sunday my day to get all the cleaning, grocery shopping and laundry done, but now I am making Sunday a day to do things I want, no matter what that is. It may be resting or it may be cleaning, but regardless of what I do, it is not planned like the rest of my week! I think we all need a day that is completely unplanned and definitely not full of chaos. 

Lately I have been once again dealing with some extreme pain and as difficult as it is I am trying to not allow this pain to consume me! It is not easy to fight against the pain, but it does not help matters to give up and sit around crying about it. Tears may fall, but there is no amount of tears that will stop the pain I feel. 

Currently, I have been experiencing something new and I am not sure if it is related to Thoughts arrive like butterfliesthe MS or not. I have lost some of my abilities to taste, which seems a little odd. I did read about this and it can occur due to lesions on the brain. Considering I do not want to think there are new or active lesions, I am choosing to ignore this very mild issue. I am not one that enjoys food, so it does not matter that much! I am just accepting it and moving on!

I have heard from so many people who there must be some kind of special diet I can do for the MS to avoid any new issues. I have to say that is a pretty obnoxious thing to hear so often. In all honesty, there is no special diet that is going to cure MS or prevent further issues from happening. It is very clear for everyone that a well-balanced diet is healthy, but it does not offer a cure for anything! Everyone should already understand that over-eating is not a wise thing to do and will cause weight problems. We can all figure out if anything we eat causes us to feel worse and then we can avoid those specific foods. I am pretty stubborn, so when people are constantly talking to me about what I should eat I do the opposite. My doctors have been on my case for years about what I should weigh, but I hover around the same no matter what I do. I do not normally gain any weight and depending on what I am going through lose weight. Even if according to BMI calculators I am under weight, I feel like I am fine! 

Throughout life we are confronted with so many decisions we have to make. Sometimes we might make the wrong decisions, but that does not mean we have to stop living. I believe that the decisions we make that were not the best choice actually makes us Whispers of your heartstronger. Most of us learn from the bad decisions and hopefully do not make them again. I am a pretty emotional person so most of my decisions come from the heart. However, the bad decisions I make come from  negative feelings and maybe some angry feelings I have! Previously all my decisions surrounding the MS were solely based on fear, but now I am able to make rational and logical decisions about my health care because I educate myself on everything the doctors suggest. I do believe that if we listen more to what our heart is telling us, we will feel happier and more satisfied with life! Our heart knows what is right and wrong! 

Thank you for visiting my site today and I would love to read your thoughts! I learn so much from y’all because you are all so insightful! Most of us are battling with an illness, but we handle it with nothing but grace and strength! Who would have ever thought we had resilience and strength to continue fighting even when we are in so much pain? Not allowing an illness to take control of our daily lives is not easy, but we are all doing it every day and for that we should all be extremely proud! I know this post was a little all over the place, but I had a lot on my mind! I hope the rest of your Sunday is spent doing what makes you smile! A smile can make a big difference in everyone’s life! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

MS Hug

MS Hug 1Do y’all know what the worst and most unwelcoming hug ever is? The MS Hug is definitely the type of hug none of us really want! It is anything but loving and comforting causing a lot of discomfort and possible pain. The MS Hug is a collection of symptoms that is caused by spasms in the intercostal muscles. The muscles that are involved are located between the ribs. The MS Hug got its “nickname”, so to speak, from the way the pain wraps around the body basically like a hug or a girdle. The involuntary muscle spasms are also referred to as girdling or MS girdling. This not so exciting hug can last anywhere from a few seconds to hours at a time! The good news is the MS Hug does not mean the MS has progressed; it is just having what I refer to as a temper tantrum and will go away!

What exactly does the MS Hug feel like? Like Multiple Sclerosis itself, the MS Hug is very unpredictable and experienced differently by each person. Some that have experienced the MS Hug have pressure around the waist, torso or neck instead of pain. Some people encounter a band of tingling in the waist, torso or neck. Others that experience the MS Hug have a sharp, stabbing pain or a dull widespread aching feeling. During the MS Hug some may also experience a sensation of squeezing, crushing, MS Hugcrawling feelings under the skin, hot or cold burning or even pin and needles.

How is the MS Hug treated? Considering the MS Hug is a result of muscle spasms, the pain that is felt is neurologic in nature. This basically means this is nerve pain which can be difficult to resolve. Believe me I know how frustrating that is to hear, but sadly it is true! I have dealt with the wonderful MS Hug many times and it is never a pleasant hug! Over-the-counter pain relievers such as Ibuprofen or Acetaminophen are not likely to bring any true relief. According to the National MS Society the drug classes approved to treat the nerve pain from the MS Hug are: antispasticity medications (ex. diazepam), anticonvulsants medications (ex. gabapentin) and antidepressants (ex. amitriptyline). Please remember that I am not a medical professional, I just have personal experience with the MS Hug and this is what was recommended to me previously. 

What are possible triggers of the MS Hug? As with everything else involved with Multiple Sclerosis, triggers vary from person to person. However the most common triggers are: heat, stress and fatigue, all times when the body is not running at 100%. This could be an indication that rest needs to increase, take time to cool off from the heat properly and find ways to de-stress. We all know that excessive heat is very unhealthy and that too much stress is detrimental to all of us!

Ms Hug Information - Updated 4/2/13 : General Discussion - Page 2

Ms Hug Information – Updated 4/2/13 : General Discussion – Page 2 – Top Master Data

My personal experiences with the infamous MS Hug have been limited, but they have happened WAY more than I would have liked! I have actually been dealing with this hug on and off for a few days now, but of course was trying to just ignore it as I always do. I have not done the appropriate things to help heal, like finding ways to de-stress. Of course I know better, but I continue to take on more stress instead of brushing it off! It is so important to know there are somethings in life we have NO control over, so why bother allowing that into our lives? I ask myself that question daily, but yet I do always try to help others that do not seem to appreciate or even really want my help! I guess I will learn my lesson someday! 

Just out of curiosity, have any of you experienced the MS Hug? The name makes it sound so sweet and wonderful, but my goodness it has never been welcomed or enjoyed! I am hoping that considering I am doing what is necessary this hug will go away soon and NOT come back anytime soon. I feel like MS does not understand personal boundaries. Unwelcome and unwanted hugs definitely invades my personal space! 

I sincerely appreciate you visiting my site today! I look forward to any comments you may have and I do promise to respond as quickly as I can. Thank goodness we are half way through the week and the weekend will be here soon! I hope y’all have a great and relaxing evening!

Love 2

Always, Alyssa

Successful appointments can happen!

Friday EveHappy Friday Eve Y’all! I hope you have had a fantastic day! I was having so much anxiety over my doctor’s appointment today because I had been given a run around with this doctor. I went into this appointment very prepared with pages of notes so I would not miss a thing and also had no expectations at all! To my surprise, everything went the right and ethical way!

It was not until recently that I have started going into my appointments with notes because I tend to forget at least one thing because I often feel rushed knowing the doctor has other patients waiting. I have learned that it is very important to take control of the appointment and be very prepared so no time is wasted. By taking control and knowing exactly what you want out of the appointment it shows the doctor that you have expectations of the appointment and demand quality care! These doctors see so many patients each day that they probably feel overwhelmed, even if they do not say those words out loud. I will admit I have learned that if I keep my expectations of my determinedappointments relatively low, I will not be frustrated and disappointed. Today’s appointment went very well and my doctor even apologized to me for all that I have gone through these past couple of weeks!

I think it is extremely important that even when things seem like they are all going wrong, to find it within yourself to never give up! In my opinion, giving up is the only way to truly fail! I have spent a few weeks now fighting for my rights to live a life as pain-free as possible and all my fighting has paid off! I have fought for myself with two different doctors and things are all going right for me now. Sometimes you have to fight in a pleasant way, if that makes any sense. It is so true that you get more flies with honey, so handling all situations in a positive and since way works for the best!

Thank you for visiting my site today and I look forward to reading your comments. I promise you that I will respond to all of your comments just as quickly as I can! I hope you have an amazing and relaxing evening! On an extremely positive note, tomorrow is Friday and then we have the weekend to enjoy ourselves! As always, I am sending y’all lots of love and comfort!!

Love 2

Always, Alyssa

Last day of March!

MS AwarenessAs you already know today is the last day of March and Multiple Sclerosis Awareness Month. Has it been a pretty good month for y’all or have things been like a carbon copy of February? I feel like things are about the same with most things in life. The political world seems like it is still a bit of a mess with a little too much drama for me! Too many grown men acting like children in a playground! We can continue to hope for better times though and even if everyone around us continues to act the same, we can all just stay optimistic and happy with what we have been blessed with in life!

I can say that I have learned so much about how to handle doctor’s appointments better! I use to go into the appointments with many things I wanted to discuss, but then always would get distracted and feel rushed normally by the doctors actions. It never failed, I would leave the appointment and remember things I needed to get answers to and be angry with myself for forgetting. This last appointment I had everything I had questions about written down, which was wonderful because at the end of the appointment I looked at my notes and almost forgot one important question! As y’all know I have another appointment on Thursday and I know already I need to be very prepared and honestly keep my expectations low just so I will not be upset afterwards. I feel my upcoming appointment is pretty important because I am going in fighting for myself and my well-being!

At the end of MS Awareness month, I want to say I hope those that were not familiar with MS learned a lot and those battling MS gained even more knowledge. MS is definitely not the easiest illness to live with, not that any really are easy, but at the same time we all handle it as well as we can! It is a very unpredictable and at times extremely painful illness to live with, but MS Warrior 2there is no use dwelling on that. Dwelling on what we have to live with only causes more issues in the long run. It is extremely important to do our best to remain positive and stand strong to how we manage our illness. Giving up on our hopes for a cure will not make it happen any faster and will not help us living today! I feel very strongly that we all, no matter what our struggles are must live in the now. Living in the past will not change anything, but it might hinder our present times! We all should have already learned from our past experiences and therefore let it all go and moved on!

I hope y’all are enjoying your weekend! Hopefully the weather is beautiful for you and you are able to get a little sunshine! A little bit of sunshine can do wonders for our mind and spirit! I hope y’all are feeling well and of course staying as positive as you can. I appreciate you stopping by my site today and I will of course respond to any comments you might have as quickly as I can! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa

First time for Everything!

be-thankful-to-your-bad-days_516Today was my appointment with my MS Specialist and it went very well! The Nurse Practitioner I saw actually took the time to listen to my concerns and did not dismiss any of my fears. To be perfectly honest, I went into this appointment with low expectations to protect myself from disappointment and frustration. I am so happy to say that even though this appointment lasted a longtime; I left the doctor’s office feeling much better about the issues I have been struggling with. The NP took time to actually talk to me about the headaches I have had for so long and come up with ideas to hopefully eliminate them. We talked about the pain issues that have increased over the past few months and she had some very valid thoughts about why that was happening. She helped relieve the stress I was putting on myself about my illness progressing by reassuring me I am doing everything I can and feels that I am controlling it the best I can. She told me to not over think what could happen and just live in the moment. I thought that was great advice because I do tend to think everything and go to worse case scenarios all the time, which really is not helpful to me or my mental state. Moving forward I am going to stay on the Gilenya because it is the best choice for me and did control my illness for 6 years before I decided to try something new. I was thinking the Gilenya was causing my headaches, but the NP today pointed out that I had headaches way before Gilenya was a factor.  My appointment today was by far the best and most enlightening appointment I expectationshave had in a long time and gave me a new perspective on things!

As I already said, I went into my appointment today with very low expectation, which was helpful overall! I have found over the years if you set your expectations for others too high there will always be a high probability of disappointment. Therefore, if you just keep your expectations lower you will never be disappointed because you are not presuming anything! This may seem like a pessimistic way to live, but it saves a lot of heartache and frustration. In our hearts we know who we can count on in life and who we question counting on. Others must prove to us that we can rely on them and live up to the standards we have. I do believe we all need at least one person that we can truly count on and that person will never let us down. There is always at least one person you confide in and know they will always be there to support you, no matter what! Trust is a very delicate thing that can be destroyed quickly and take a very long time to rebuild, if it is even possible.

Of course I am delighted my appointment went as well as it did today, but now I am hoping the appointment I have next Thursday will go just as well. I will go into the 2-quote-about-no-matter-how-impossible-unattainable-or-unim-image-background-imageappointment next week just as prepared as I was today, but also go in with no expectations at all. I believe that being prepared and having notes with you can be extremely beneficial because it is easy to forget important details. I think being in the exam room can be a little stressful which makes it easy to lose track of what you want to discuss. Doctors have busy schedules and have a limited amount of time allotted to each patient. So I found having set topics you need to talk about ready will make the appointment much more useful to you and not waste any time! I know that if I did not prepare last night for this appointment and have my topics written down, I would have missed a lot of important information. 

I hope y’all had a great Friday Eve and I hope y’all are feeling well! I really appreciate you taking the time to visit my site today and I look forward to reading your comments! All of your comments are very meaningful to me and I will respond as quickly as I can. I hope y’all have a lovely evening!! I am always sending each of you lots of love and comfort! 

Love 2

Always, Alyssa

Fight for your health!

fight for a cureI hope y’all have a lovely Monday! First day of a new week may bring some wonderful and positive changes to all of our lives! I really appreciate y’all visiting my site today and as always love to read your comments, which I do respond to as quickly as I can! Most of the time I like to write about the random things that are on my mind. This helps me to release all those emotions and then getting your feedback help tremendously, so thank you for all of your fantastic comments!

How do you fight for your health instead of fight against it? It is so important to be vocal with your doctor and never allow them to dismiss what you say or rush you out of the exam room. We all know our bodies and how we are feeling better than anyone, so that should be listened to. I think at times it is hard to admit what our body is telling us and our body feels as though it has to scream it at us, which may cause additional issues. I am one that will ignore issues that arise for as long as possible because I do not want to admit to the problems. Ignoring or neglecting our health will never result in anything beneficial. This is where fighting for our health becomes extremely important. If we ignore what our body is telling us we are actually fighting against our own health.

I am actually going to my MS Specialist on Thursday. I am going to my specialist partially because I am supposed to see her every 6 months and partially because I want to share with her my concerns. I already know going in that my issues with headaches will be dismissed because she seems to think that MS and headaches have no correlation, but I think it is still important to bring the topic up once again. I also want to discuss with her the fact that the issues that came with my relapse in October have not really gone away. I am fully aware that the body heals from each relapse differently, but I should have improved drastically by now and not continue to have pain that affects my ability to work full-time. I just really need answers to why I seem to be at a stand still in health. Do y’all have any suggestions to how to grab this doctor’s attention?

I hope y’all have a great and relaxing evening! As always I am sending y’all lots of love and comfort! Try to hold onto your positive thoughts because they will help in the long run and negative thoughts will only hold you back.

Love 2

Always, Alyssa

Hiding behind a mask

maskDo you ever try to hide behind a mask of what you think you should be? Or hide behind the mask of what other’s think you should be? Sometimes admitting how you truly feel can be terrifying and almost make you feel weak. Periodically I think most of us try to be strong and act like everything is fine when it really isn’t. Always trying to be strong by not allowing anyone to see your pain and struggles becomes a normal way of life, but is that really the best way to live life?

Do you ever feel that you need to disguise your feelings? I can fully admit that I try to not allow my feelings to  come to surface when I think they will cause others additional stress. If I am being honest, I do worry about my Multiple Sclerosis and if things are progressing too fast, but it is not good to over think situations you have absolutely no fake our smilecontrol over. Holding on tight to positive thoughts can be very difficult, but can really change your life, whereas allowing negative thoughts in your mind can be pretty destructive. If I allow my mind to think that my MS is progressing it makes it a real thought opening doors that I prefer not walk through. Building a barrier between our thoughts and reality is sometimes possible if we try!

Stress is a silent killer that can impact all of our lives. So how in the world do you avoid it? Some stress is actually avoidable, but then some stress is completely impossible to avoid because it will come at you with full force. The ways we handle stress are really important! I have tried doing some research about how to avoid stress and found some tips that might be helpful. Avoid caffeine, alcohol and nicotine. So many turn to alcohol when they become overwhelmed, but it is very well know that alcohol is a depressant so that will never be helpful in any way and could cause even more problems. Indulging in physical activity can be helpful for our health as well. Stressful situations increase the levels of stress hormones such as cortisol and adrenaline in the body. So we might be able to take some of the adrenaline from stress and turn it into something positive. Lack of sleep is a significant cause of stress. Stress can interrupt our sleep because our minds are in a constant whirlwind of thoughts which stops us from relaxing enough to even fall asleep. If we are having a hard time falling asleep there are things to try like taking a warm bath or reading a book because these will calm the mind! Starting a stress diary where you can write out your feelings and keep track of your thoughts can be very helpful! Writing out your feelings can help you find ways to solve your problems and not have to worry about judgement from others; your journal will not talk back! These were just a few MS Hopeideas that stuck out to me, but I know there are so many other ways to handle stress! 

I have been very worried about health care in the United States. There have been so many changes that are not really for the positive. I think doctor’s schedules are so full it makes it hard for them to give each patient the attention they deserve and they may even confuse patients. With the doctor’s schedules being so incredibly full, I think sometimes their notes can be misleading and incorrect. I actually know this to be true because I recently had my doctor’s office give me a copy of the notes for the last few years.  I have also been very concerned about my MS because things have not gotten much better since the relapse I had in October. I do not know if this means the MS has progressed or if the additional non-stop pain is just here for the long haul. All illnesses are like uninvited guests that just will not leave and make messes during their stay.

I know the weather has been a little crazy all over the world, but I hope y’all had a great weekend! The snowstorms that have occurred at the end of March have been pretty unusual, but I hope if y’all have experienced this you were able to stay warm. I am hoping that this upcoming week will bring us all some pretty spring temperatures. Y’all have already read before that I am never fully ready for the new week to start because I would prefer to have another day of rest. Hopefully this new week will give us some real joy and comfort! I really appreciate y’all visiting my site today and I do look forward to all of your comments! I hope the remaining part of your weekend is absolutely fantastic and restful! I am always sending y’all much love and comfort!!

Love 2

Always, Alyssa

Where is Spring?

where-is-springOn March 20th, we should have been graced with spring weather, but it seems Mother Nature had a difference of opinion! The first day of spring was rather warm, but then the days that followed were very chilly and some even had snow! Spring time snow just does not seem right to me, but I guess we will never understand how nature works. Spring is “supposed” to bring on the blooming of the trees and blossoming of the flowers adding so much beauty to the world! New life is given to nature and new beginnings are created all around us. The amazing and various colors of flowers give an incredibly artistic sight for us to see. Even the trees, which most think are just green, have a variety of different greens brightening up our surroundings! Of course the days delay the darkness of night by having a few hours longer of daylight and sunshine!

The days ahead are finally showing some signs of spring like weather. I really do hope that spring will stick around a while before we are bombarded with the summer heat! Summer is great for going to the beach, but when you live hours from the beach it is not always so fantastic! When it is 100 degrees out with high humidity, you literally can not walk from an air conditioned building to your car without being drenched in sweat! With the way Mother Nature has been acting, it is hard to say what summer is going to be like. There were a few days in February when the temperatures were in the upper spring_flowers_2015_longwood_cr_LongwoodGardensLAlbee70’s, which is highly abnormal! I do not think it is healthy for temperatures to go from nearly 80 degrees to the next day being in the upper 40’s that is too drastic of a change.

How is your spring going so far? Are y’all having spring like weather or are you experiencing the tail end of winter still? I know I have said this before, but my body does not respond well to dramatic weather changes. I definitely do not handle chilly rainy days well at all. Do you feel like cold rainy days worsen how you feel? But in all honesty, we can not control the weather and just need to do what we can to keep living! Never allowing an illness that is strongly affected by weather is hard, but we are all so much stronger than that!

I recently did a post about pain management doctors and how I feel about them. I do understand there is a huge issue right now with people abusing pain medications and doctors do not seem to have the man power to know which of their patients are not just after some type of high, but actually just want to live a normal life without pain. I feel like there is a lot of judging going on right now with people who live in pain and go to pain management. These patients should not be labeled as an addict or anything else that is humble-and-kinddemeaning. No one in their right mind wants to go to the doctor for anything, but they surely do not want to sit in a doctor’s office while they are in pain and wait to be seen. These people would much rather be at home where they are comfortable. So those that go through the struggles of getting to the doctor’s office and wait are suffering and in need of relief. I do not want it to sound like I am placing all the blame for the opioid crisis on the doctors and government, but they both have a lot to do with the issues at hand. I will never think that those that have a legitimate reason for going to pain management because of an accident or illness should be punished further. It does not seem fair to add more pain and suffering to those already under much stress from the pains they go through every day! 

I always appreciate you stopping by my site and I love reading your comments, which I will respond to as quickly as I can. We are all entitled to our own opinions and they all matter! I hope your weekend is going well and you are able to enjoy every moment of it! Sending y’all lots of love and comfort!

Love 2

Always, Alyssa

 

Purpose of Pain Management Doctors?

Pain management**Full disclosure, this gets a little political!**

I am starting to wonder why there are pain management doctors around and what good they actually do! Are these doctors supposed to be helping those who suffer with chronic pain or is there some other reasons for them I am not aware of? Why are patients that deal with a chronic illness that causes an incredible amount of pain expected to see the doctor that treats their illness, but also have to go to another doctor that is there to treat the pain caused from their illness? Why is the original specialist not capable enough to not just treat the illness, but also treat the pain symptoms that come along with it?

In the recent few months my pain management specialist has done absolutely nothing but give me the run around. This doctor that claims he wants to help him patients, has not only changed his story so many times, but also lied about what was said. What he has said to me during the appointments, verbally of course, were mildly different from what he put into his notes that I had never received until I finally demanded them. It does not seem to matter if you follow the directions of the doctor verbatim; they still find ways around doing what they took an oath for when they became a doctor. All physicians take what is called “Hippocratic Oath”, which forces them to uphold specific ethical standards, including medical confidentiality and Non-Maleficence, which means do no harm.

It is all over the news about what is called the “Opioid Epidemic” spreading around the country and also how the president says he wants to end the so-called “war on drugs”.  The president has claimed he wants to reduce opioid prescriptions by 1/3 of three years and the doctors are supposed to just fall in line with this insanity! The last time I DYrqFg6VwAAE4WPchecked, the president did not go to medical school and therefore does not know anything about medications and or illnesses that affect the people of the country he is supposed to care for! I do not think the doctors are going to fight for their patient’s well-being against the government and risk losing their medical licenses.

I can completely understand that there are people out there that abuse drugs of all different types. I do not think that those that need pain relief should be punished for another person’s abuse because the fault does not lie on the one in need; it lies on the one who has abused the drugs in the first place! If there is someone who has a true and well-documented reason from a medical professional for needing pain relief, they should not ever be scrutinized about this! Those living in pain never asked for this to happen to them and we all wish there was a different option, but we do what we have to do to continue living as normal of a life as we can. When a doctor tells a patient what is needed to continue care, the doctor should not change their minds multiple times and force the patient to go to other doctors and spend money they do not have, just to have the doctor say it isn’t good enough! In my opinion, they are failing drastically is the oath they took!

Looking at the big picture, I know that I really cannot blame the doctors completely because they are doing what they have to do in order to protect their jobs. They are following the laws that are put in place by the people who have absolutely no idea how to treat people! Doctors are listening to those in Washington DC that are on some kind of hne_pain_and_suffering_power trip, trying to fight a war that was created by the government! Logically, how else would all these drugs get onto the streets causing deaths across the nation? The people in this world who suffer are not being taken care of, but they are being mistreated and forced to handle the pain that is ruining their lives daily! A person that suffers from terrible pain has a hard enough time getting out of bed every day, so how can they be expected to do the normal daily things many can do without having any kind of relief from the pain they are inflicted with?

Thinking back about 10 years ago, my specialist who fully knew what I was dealing with was full capable to deal with my pain issues as well without sending me to another expensive doctor. What has changed and why did it change? It was not until recently, those at the top felt it was necessary to crack down on everyone. Pain apparently does not matter if a person is battling cancer, which is slowly killing them each day; they are going to have their pain medicine taken from them. Or what about those dealing with a chronic illness that is slowly taking away their mobility and affecting their day-to-day lives. Why should anyone that does not understand be able to be the judge on what is necessary for that person? Why should anyone be able to make a law that will take away a one-third of people’s rights to a pain-free life? How would the people making the laws, feel if they or someone they loved had to live in pain or would that just be different because it is closer to home for them?

As y’all can tell by this post, I have had a difficult couple days and I am beyond frustrated. My pain is at a high right now and is only getting higher when I have to deal with the doctors! Nothing is making sense to me right now, but I do see the changes being made at the top are doing nothing good for the country! It really makes me sad to see how only one single man can take a country to an extreme low!  I know some are going to disagree with me and that is okay, we are all entitled to our own opinions and I hope nothing I have said offended anyone.

I do really appreciate you taking the time to read this post and I look forward to your comments. I hope y’all have had a great week and the good news is it is almost Friday!  I hope y’all have a nice and relaxing evening. As always, I am sending all of you lots of love and comfort!!

Love 2

Always, Alyssa