Time Change Headaches!

edwardrmurrow1After we set the clocks ahead an hour on Sunday, my schedule seems drastically off kilter! Of course I did change all the clocks in the house ahead a hour, but at the same time I seem to have set my dates in my mind ahead an entire day! I thought Monday was Tuesday and I have thought all day that today was Wednesday! It is not a good feeling to realize what the day actually is and that there is still another day of the week. Hopefully my mind will adjust and actually know what day of the week it is! How are y’all adjusting to the time change? I hope y’all are adjusting better than I have so far! I think it is a little harder getting up in the morning and driving to work in the dark, but I guess on the plus side it does stay light out longer! It is always good to find the positive in every situation!

Crazy question for y’all! Those of you that have Multiple Sclerosis, has anyone ever told you that there is no correlation between MS and headaches? I ask because my current specialist has said just that. I had gone to her about the massive amount of headaches I suffer from and she said it does not have anything to do with my MS. I am sorry to say, but it is a quick and easy Google search to find out there is a relationship between the ms and headachestwo. It may not be an extremely common side effect, but Migraines are twice as common is those with MS that those without. Logically thinking if someone has a decent amount of lesions on their brain, how would that not contribute to headaches? I mean the brain has some intruders present that are not welcomed! Most people who I know that live with Multiple Sclerosis do battle with headaches of some sort. I think it is probably a good time to start looking for another specialist that I am a little more comfortable with. It is very important to have trust in your doctor and her comment made me lose trust in her!

The craziest thing happened to me today at work. One of my co-workers, that was not so pleasant while I was on medical leave, told me she was glad that I was back at work. All I could say was thank you and that I have been back working for a while now. She also decided to talk to me about an illness she was recently diagnosed with that make you lose your hair. As she spoke and told me about how depressed she had been, I did my best to try to motivate her to think positive. I told her that in a way she was lucky Kind wordbecause she has very thick hair and you were not able to see the bald spots she told me about. She even talked to me about the treatments she had to endure and at the same time praised me with how well I had the pain I deal with. It is crazy how it takes someone being diagnosed with an illness before they can have a heart for what another goes through. Even though I did have some ill feelings towards her because of how not compassionate she was towards me when I was struggling, I did feel it was best to try to be supportive and understanding of what she was going through. 

How are y’all feeling today? I hope your week is going well and you are staying as positive as you can. Y’all know that positive thoughts will in time bring positive things to your life! I sincerely appreciate you visiting my site today and I would love to hear your thoughts! I do respond to all comments as quickly as I can! I hope you have a nice and relaxing evening! As always I am sending y’all lots of love and comfort!

Love 2

Always, Alyssa



Different types of Multiple Sclerosis

types_of_ms_chart_largeAs y’all already know, Multiple Sclerosis is a very unpredictable and for some debilitating illness of the Central Nervous System. With MS, the immune system eats away at the protective covering of the nerves. MS disrupts the flow of information within the brain and between the brain and body. Multiple Sclerosis does not discriminate and can attack anyone no matter race or gender, but it is diagnosed 2 to 3 times more often in women than men. Multiple Sclerosis does affect each person differently, so no single person even if they have the same type of MS will experience the same exact symptoms. With that said I would like to take this moment to give a description of the four different types of Multiple Sclerosis.

Relapsing-Remitting Multiple Sclerosis, (RRMS) is by far the most common form. This type is 80-85% the initial diagnosis of MS cases.  RRMS involves clear episodes of inflammatory activity and well-defined attacks of new or recurrent symptoms. The patient will typically experience partial or even full recovery between the episodes. Symptoms do vary between each individual, but some well know traits are: tingling and numbness, visual loss or changes in one or both eyes, fatigue, weakness and balance problems. It is important to know what your baseline is on all these issues so you can communicate any changes with your specialist.

Primary-Progressive Multiple Sclerosis, (PPMS) is another type that is less common. Ms_progression_types.svgThis type is composed of only 10-15% of all MS cases.  With PPMS neurological functions are impaired and become more significant as the disease progresses. Patients will experience occasional plateaus in the progression, but symptoms can also worsen with no relapse between them. There is less damage done to the brain with PPMS, but more damage done to the spinal cord. Symptoms that can come along with PPMS are problems walking, stiff legs and trouble with balance. Like I have already said, it is so important to know what your baseline is with anything to do with your health, so when there are changes you are able to communicate those changes with your specialist.

Secondary-Progressive Multiple Sclerosis, (SPMS) is actually the next stage of Multiple Sclerosis. I have already shared with y’all that I was diagnosed with Multiple Sclerosis when I was only 19 years old, so this year will make 19 years for me. Time flies because it feels like it was just yesterday when my specialist flipped my world upside down telling me I had this illness. Reports indicate that 50% of those with RRMS will develop SPMS within 10 years and 90% will develop in 25 years. SPMS is similar to RRMS, but may or may not involve the occasional relapse. Symptoms with this progressively worsen and may include bowel and bladder problems, weakness and coordination issues, stiff and tightness in legs, fatigue, depression and problems thinking.

MS SymptomsProgressive-Relapsing Multiple Sclerosis, (PRMS) is progressive from the beginning.  With PRMS there will be clear and acute relapses with and without recovery from the damages. The illness will continue to progress between relapses. Symptoms that are associated with PRMS are muscle spasm, weak muscles, chronic pain, vision changes, dizziness and decreased bladder functions.

All those years ago when I was first diagnosed I did a lot of research on Multiple Sclerosis. Now it was a long time ago, but I do not remember reading that RRMS can possibly progress into SPMS in a matter of time. Sadly it was not until recently I learned that I did not know everything I should have. It was not completely my doctor’s fault for not sharing this with me, it was mine for not learning and or remembering this information. Talk about being a little shocked when I found out it does not necessarily matter if I take the medication I am supposed to in order to slow the progression down. This illness has a mind of its own and can progress no matter how hard you fight it. Maybe that sounds a little negative, but I guess the truth is reality is not always positive. 

I know many of you already have a lot of knowledge regarding Multiple Sclerosis, but I have a goal to raise awareness for everyone! This is an illness that crept its way into so many lives, completely uninvited and just will not go away. I want to believe that fight for a curesomeday there will be a cure and our lives will improve drastically. I look forward to the day that I am not dealing with massive amounts of pain, headaches, numbness, that annoying tingling feeling and vision issues. Until that day comes though, I will continue to live my life and enjoy it as much as possible. I will continue to do my best to help and motivate others that are struggling with illnesses and other issues in life. I want to be able to bring positivity into the lives of others to combat the world of so much negativity. I would love to believe it only takes one person to change another person’s  life!

I hope y’all are enjoying your weekend and feeling well! Again the weekend went by pretty fast, but I was able to get my hair done and some cleaning done in my house, which was a fantastic feeling! It is so helpful being able to take short breaks in between cleaning the house because if I didn’t, it would make me feel absolutely horrible with additional pain!

Thank you for visiting my site today! As always I would love to hear your comments on what I have shared. Being able to read your comments and respond builds a great and supportive network that we all need. I hope the rest of your Sunday goes very well and you are able to rest up for the week ahead! Sending y’all much love and comfort!!

Love 2


Always, Alyssa

Hopeful for 2018

Love heartYou might be battling with pain. You might be struggling during difficult times life has thrown your way. You might be dealing with heartaches. You may be enduring life altering changes. You might be trying to figure out where life is taking you. This might be a really tragic time in life and you do not know where to turn to. But, no matter what your struggles are you do have the strength needed to get to a brighter tomorrow. It might be hard to find positivity in life right now but the more you look, you will find something that is positive and that will push away all the negative thoughts. It may not be immediate but one positive memory can brighten your path. It could be that kind hand that reached out to show friendship or love. There is always going to be dark times throughout our lives but we need to focus on what we have found happiness in.

We are so close to the end of a year that may have had traces of struggles for some. Some have been diagnosed with chronic illnesses with no cure. Some have lost or given up a job either due to company cutbacks or downsizing, progression of an illness, family reasons, wanting a change in a career or leaving the work force. You may have had significant losses during 2017 which caused much sadness. Some may have experienced many traumatic events causing depression that is so hard to get past. If you already had a chronic illness you may have encountered a relapse that caused some difficulties. You may have decided to try a new medication with the hopes it would work for your illness, which may not have been the success you had hoped for leaving you back to making quotes-about-life-and-struggle-image-39decisions again.

This past year may have brought on some delightful changes to your life! Maybe you married the person of your dreams! You may have had the exciting opportunity to move to a new city or state to build new memories! Some may have welcomed a child to this world. Maybe you graduated from college and are starting your new career. There are so many glorious events that could have been possible making your year absolutely amazing and unforgettable.

Perhaps during this past year you beat an addiction of some sort. So many people battle addiction to drugs, alcohol and nicotine. It is always common to set a resolution at the beginning of the year to quit whatever you may be addicted to, some succeed but many have minor setbacks. Even if you did have a setback to your goal, never give up on yourself because you do have the strength to win this fight! Whether you did have a never give upslight hindrance in meeting your goal but then successfully won your battle, congratulations to you and be very proud of yourself! Many do have to try again to win the battle and that is okay, just never give up on yourself because you really can do this!

While you look back over 2017, what were the great things that occurred in your life? Did you have numerous misfortunes that required new outlooks on life or forced you to reevaluate your life? Are there any events you wished you could erase? What were the most wonderful things that occurred during the year? Did you have any massive changes during the course of the year that were either encouraging or discouraging? Are there any changes you want to make going into a new year?

Personally, I am looking forward to the New Year! With only 3 days left of 2017, these are my thoughts for the start of ending 2017. The last few months of 2017 have come with a lot of struggles but successes as well. I had a massive flare up that started in October and is gradually healing. I had made the decision to switch my MS medication to Tecfidera after being on Gilenya successfully for 6 years, because I thought the headaches I continued to have were due to the Gilenya. There is no telling if my flare up was due to the change in medicine or due to stress, but through positivity and rest I am on the mends to recovery. Of course I found out that the Tecfidera was not strong enough for my MS and ended up going back to Gilenya, but I am glad for that decision because I would have always wondered if another medication was better for me. I know that the damage my body experienced from the flare up will get better over time and with a lot of patience on my part.Why-Im-Already-Looking-Forward-to-a-Happy-New-Year-1024x512.png

I am hopeful that 2018 holds many positive changes. I am logical enough to realize there will not be some magical cure for all illnesses over night, but there is a chance we are getting just a little closer each day. I hope that the ways of society will start to improve and all that has been lost will be found. Love and respect will be once again practiced.

I started my blog almost 6 months ago and this has truly been one of the best experiences I have had during 2017. I am looking forward to continuing my blog and getting to know more of you! Everyone I have had communications with has been wonderful. It is great getting to know people all over the world and learning about their lives. I appreciate you taking the time to read and comment on my thoughts today. I would love to hear your thoughts on this past year and your hopes for the upcoming year! I hope you had a great day and I hope your evening is relaxing! It might sound like it but this is not my last post of the year! I wish you much love, comfort and peace! 

Love 2

Always, Alyssa


Slow healing

Peaceful SundayEven though our weekend will be coming to an end soon, I hope y’all were able to enjoy the couple of day as much as possible! Monday morning always seems to approach us with super sonic speed that we are never ready for. I do not know about you, but the alarm clock on Monday morning seems to be a little more irritating than the other days of the week!  The best thing to do in preparation of another Monday is spend Sunday relaxing and at peace!

As y’all know I have been trying to get myself back to normal work hours at work, which has been a very SLOW process. Healing from my flare up and then a terrible head cold has been very difficult, but at least I am still trying! One of the most important things in life is to never give up and focus on positive outcomes. It is easy to allow ourselves to get wrapped up with a negative atmosphere, especially when we are suffering with pain or other illness. I honestly find that negativity is suffocating and prevents proper wellness and comfort from life!

Sometimes I wonder if it is even possible to find an escape from the smothering amount of cynicism that has been created. The best way to try to extinguish the negative negative-peoplecomments is to counter them with positivity. It does seem most people find it easier to stay in a pessimistic frame of mind instead of searching for an optimistic outcome! Even when life gets hard for me, I do try my best to stay positive and remember that the end of the gloomy road will brighten again soon!

It really does amaze me how contagious negative attitudes are. I think it is even more contagious than the flu! Finding a remedy for this type of attitude would be able to cure the world and make it an even better place. It really breaks my heart that so many people live with so much hate and hopelessness in their heart and soul. 

change processTomorrow is a new day for me with work and I can only hope that it will be easier. I do not want to set myself up for failure and think it will not come with struggles, but I am going to fight my way through it! I am still finding it hard to sit at a desk all day and to stay completely focused, but I have been dealing with this long enough and it is time for a change! I know change does not happen just by sitting there waiting for it, you have to strive to find it and hold onto it! I do feel like change is something that is desperately needed in my life. I need to get out of my own mind with thinking about the “new” and “active” lesions on both my brain and spine, and start thinking more about those lesions becoming inactive!! I think getting back into my normal and boring daily routine my life will change for the positive. I know the lesions that are causing me troubles will not go away completely but maybe the more I just ignore them by focusing on something else will be helpful! There is a possibility dance in the rainthat the pain in my back and the tingly numbness feeling legs is permanent but I can find the way to get through that! It is all about accepting what is happening and learning how to live with the outcome! I will never have a defeated attitude about anything this illness throws my way!

I hope that y’all had a great weekend and that you are prepared to begin a new and fantastic week! No matter what has happened the past few weeks in your life, the new week will bring wonderful changes and even more life experiences. I am really hopeful and positive that my body will adjust better and I will be able to be my “normal” happy self again! 

Thank you so much for reading and commenting on my post for today! I really do appreciate and value your thoughts and the extraordinary conversations I am able to have with you! As always I will respond to your comments and emails as fast as I can! I hope the rest of your Sunday is wonderful and very relaxing! Continue to stay strong and positive and great things will happen for you! 

Love 2

Always, Alyssa