After over two stressful weeks of dealing with my Neurologist’s office and the Gilenya program, I FINALLY got good news late yesterday! Of course, it took me calling Gilenya at least once a day, sometimes more, and speaking to numerous different people all of which continued giving me the runaround. I have never experienced awful customer service as I did with Gilenya, but at least it is over for the next year and my medication is being overnighted to me. Of course, they made me run out of medication, but thanks to the nurse at my Neurologist’s office who also made several phone calls and faxed the prescription several times, all is behind me now.
Does it sound like I am asking for too much? The only thing I was requesting was to get the medication that I need for Multiple Sclerosis shipped to me in a timely manner so that I would not be forced to go without it. This medication is not something that I am wanting, it is something that is a need for my health, to keep the MS under control or at least under control as much as possible. It is not like Gilenya is some kind of recreational drug, so I will never understand why it took so much work for me to get this taken care of. What I have always known is, my cats do not like to see me cry and they have seen me in tears too many times lately.
When medication is required for someone’s health, it should not cause as much stress as Gilenya caused me. There are several things that can cause issues with Multiple Sclerosis to worsen, stress is one of them. Do you know how many other fully developed countries, like the United States, offer free healthcare? As far as I know, the United States is the ONLY fully developed country that charges a ton of money for health insurance and then charges more money for doctor’s appointments and medications. It is the most ridiculous nonsense I have ever heard of. Then these doctors, who I am sure are in the pocket of the pharmaceutical companies wonder why patients are so frustrated and their health fails!
Thank you for visiting my site today. I appreciate the kind words many of you have shared during the past few weeks, while I was dealing with this stress. I hope you are having a good week and you are feeling as well as possible. I do look forward to reading your comments and I will respond as quickly as I can. Please never forget that I am always sending y’all LOTS of love, comfort, support, and MANY positive vibes!
Reblogged this on Survivors Blog Here Mental Health Collaborative .
I’m really so pleased that you finally got your MS medication, Alyssa. You just shouldn’t have to go through so much to get it, though; it’s ridiculous. It’s not like you’ll get the sniffles without your medication, as with hay fever and antihistamines. Your condition is serious, and they have no right to deprive you of your essential medicines. It’s appalling that you’ve had so much trouble getting it. I’m glad you’ve got it for another year, but then, I guess you’ll have to go through all this again next year. I’d hate to be in the states, where you must pay so much for all your medical needs. At least, in the UK, it doesn’t cost anything to see an NHS doctor or consultant in a hospital unless you want to go privately. However, quite often, you do get better care if you’re able to afford to go privately. Do look after yourself, my friend – you’ve been through a lot with all this lately. Take care. Xx 🤗💕
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You are so sweet, Ellie and I appreciate you and your kind comment! I am so glad the medication finally arrived and hopefully, it will not be the same nonsense next year. Of course, it will not surprise me because things never go the way they should in the states. Even if I do not move out of the states, which I want to, I do want to visit UK. It looks beautiful in pictures at least! I hope you are doing well and I look forward to reading more of your beautiful writings!!
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