It really seems as though no day is exactly the same living with Multiple Sclerosis. I have good days, where the issues I deal with are there but tolerable. On these days I can pretty much just ignore the realities of this illness, which is fantastic! I do not like to dwell on the fact that there is no cure for MS, yet! I enjoy and appreciate my good days with bearable symptoms. On my good days I do my best to do things that I either want to do or need to do without having to push myself further.
Then there are the bad days, which take a little extra effort to do normal easy tasks. On bad days my pain levels will rise above the tolerable limits causing me to move a little slower and need a few extra breaks along the way. I try to not allow additional pain to affect my life too drastically but find ways to alleviate it some. I will utilize my heating pad more than normal and maybe take more Advil. I also try to stretch more to not allow my muscles to just stay tight. I will say that my mood is a little altered on these days but not too horrible.
Unfortunately all my ideas for stopping the pain before it gets too far does not always work which turns my bad day into a terrible day! Today was one of those days. While at work I felt my back, neck, shoulders and legs gradually start increasing with pain. I did not panic and just tried alternating my heating pad from my back to my legs and stretching my back and neck muscles. I even tried getting up from my desk to move around a little hoping I would not start hurting even more. Regrettably nothing I did helped and I started feeling so much worse. I have been trying to increase my hours at work but I was not able to today. I ended up coming home to rest because I was in so much pain it was making me nauseous. Honestly, I was pretty disappointed because I did my best to keep pushing myself to make it through 7 hours at work. I did almost make it but could not handle it any longer. My mood is vastly different on terrible days because I am so irritated with the pain and it is hard to be around anyone. I prefer to just be at home in a nice comfortable and quiet atmosphere.
I do not understand why some days I can handle the pain issues but some days are SO completely unbearable. I thought that maybe it was related to the weather changes. It did go from freezing temperatures to relatively mild temperatures. Last week it was 17 degrees with snow/ice and this week it is 60 degrees with sun! I think that is a pretty drastic change and it has always taken my body time to adjust. How am I supposed to adjust to such rapid changes and be able to feel normal?
The truth is bad days come and go without any warning, they just need to be taken in stride! The bad and terrible days can be very discouraging but it is so important to not allow them to deter us from the good days that are ahead! I have honestly had a horrible day with pain but I am hoping tomorrow will be a better day. Thankfully I am home resting comfortably with my trusty ole heating pad, husband and loving cats!
I hope y’all had a great day today and are feeling well. Thank you so much for stopping by my site today! Even though I have not had a good day, I am still trying to remain positive as I hope y’all are as well! Please leave comments below and I will respond to you just as quickly as I can! I hope y’all have a fantastic evening.
Always, Alyssa
Stay positive 😊.. everything is gonna be alright.. sending my warmest hug.. xxx
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Thank you! I do strongly believe in keeping a positive attitude because it can make a difficult time so much easier! I appreciate your kind comment ♡
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❤❤❤
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Reblogged this on Survivors Blog Here.
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Praying for healing. I’m glad you find comfort in writing. ❤
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Thank you so much Amber! Things will get better, it was just a bad day. I guess we all have them and I normally do not let it get to me as bad as it did today. I hope you are doing well and it isn’t too cold today!!!
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I think you have done amazing building up your hours like you have, rest then come back again 🌹
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Thank you so much! I am doing my best and trying to rest more as well!!
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Thinking of you Alyssa and sorry to hear that you have had a bad pain day 😦 Stretching definitely helps me but sometimes not as much as I’d like it to. I think changes in temperature definitely has an impact. Hope today is a better day 🌷❤️
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Thank you so much!! The weather definitely impacts my pain and it gets a little annoying at time. I hope you had a great day!!!
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I guess the weather really affects you.
Are their some exercises that might somewhat ease the pain? Is it better when you lie down or move?
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It is crazy how much the weather impacts my pain issues! Honestly, it feels better to lie down. I wish they would let me lie down at work!
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Yes. That would be perfect.
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It would be amazing if they saw things the way I do!! I would accomplish so much more!!
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I bet.
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I’m wishing you a better day tomorrow. Sending hugs. 🙂 xxx
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Thank you so much!!!
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The reason we have bad days is so we can have good ones. I love that you recognize that it’s “just a bad day”, even though when bad days are happening, we feel like they will NEVER end. I hope today is a better one for you 🙂
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It definitely can make you appreciate the good days even more! Bad days feel like they last forever but they do always end in time. I always try to be positive even when I am in miserable pain!
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I am sure I am not doing this right, but I tagged you on my post.
https://wordpress.com/post/fightmsdaily.com/6020
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the link doesn’t work. BUT I went to your page and found the post you are talking about. Thank you sweetie!!!!!!! I’m home all night, and will be carless again tomorrow…..so I have PLENTY of time to help if you want…send me a message on FB and we can go from there?
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I am so sorry the link didn’t work, I am not all that great with tagging on WP. I am so glad you were able to find it though. I hope you are able to get plenty of rest and enjoy your time. I hope you enjoy answering the fun questions.
We will definitely figure our fabulous plans out!! We will be millionaires and cure MS all at the same time!!!!
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I can try to explain it here….
go back on your post into the edit option… for my link… highlight my name then scroll to the top and click the link button ( I will send you a screen shot on fb) and follow the instructions there…. my link would be http://www.msgracefulnot.com. I couldnt find hilarys, but i believe this is for crankypants….https://crankypants2.wordpress.com/blog/
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Thank you so much!! I am learning this thing slowly!!! You are fantastic!!
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I think I just added you in the tag! I might have done it right!
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let me check
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I am going to feel like an idiot if I did it wrong!
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BEH!… Not asking questions, and struggling would make you an idiot. Asking for help, means you are trying to learn. And since I am sure you will teach others too it is my pleasure Alyssa, check your facebook messages hun. I took screen shots and put step by step in there.
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Thank you my dear sweet friend!!
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I am not sure I did it right, but I tagged you ♡
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I know the feeling!! The good days are amazing and the bad days are often accompanied my a depressed mood at best. Then it gets confusing because I know that feeling sad and shirt-tempered, hopeless and petty can exacerbate the physical symptoms of my illness. Thanks for sharing. To compound things, if I suffer cognitively and forget things, I end up becoming frustrated and disappointed with myself. It’s nice to know we’re not alone:)
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I understand the frustrations. Moods can change in a moments notice and that can be so discouraging. Through all the trials and tribulations, you are never alone. I’m always here to help as much as I possibly can ♡
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I am sure I am not doing this right, but I tagged you on the post I just did. It is just some fun questions!
https://wordpress.com/post/fightmsdaily.com/6020
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I live the new Header. The way you can tell what program you’re on is look right below the likes on front page, you may not see the if your not in the followers few. Looking at this page I can tell you are on a free site because ads are there. I started a new site about Art, far from ready to roll out but did go with Personal Plan, fee domain, few other perks and no ads. Do you need robust? I paid $48 yr for For the Love of Art and $100 yr for Premium. You may be the type to use all the features but I’m not. The personal offering is fairly new. You can always try one and upgrade from there. I don’t care if I have the money, I would rather shop or give to charity. Paying a $100 a year seems crazy to me when I think about it. Just my two cents.
M
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Thank you! I will probably stick with the Personal plan because it is working well for me. I do appreciate your advice!
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🙂
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Hope you start feeling better. Hugs.
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Thank you so much Casey!!!
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Oh MS is so annoying 🙄 I hope you are feeling better today! Stay strong, you’ve got this ❤️❤️❤️
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MS is definitely annoying and things change daily. Heck, things can change within a few minutes. Somehow we find a way to push through the struggles and make it to the new obstacles. I hope you are feeling well today ♡♡
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I’m pushing through lol have a good day x x
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I hope you have an amazing day Kim!!! Much love girl!! I finally answered the questions you sent the other day. I am so sorry I have been a little behind!!!
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That’s fine I look forward to reading! Hope you’re ok x x
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I am doing well, I hope you are too!!
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I totally agree!!! I know my days aren’t. You are strong!!! Keep fighting the good fight. I just had my MRIs and bloodworm done. Follow up on February 15th for results. Thanks for following my blog. Although I need to get better at keeping it up so I can get more followers!
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It takes time to get into a process but once you do, it is totally amazing! I hope the follow-up gives you good news. Each day brings on new struggles but somehow we manage to conquer the battle! If there’s anything I can do for you, I am always here♡
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